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21 hours ago, tryingtohelp2014 said:I found something VERY interesting and could be related.accutane upregulates copper anime oxidase over 3x the normal level during treatment. WHY??? now when you start researching this oxidase.. it starts explaining what theyre used for. in plants , whenever they get wounded, the same oxidase gets upregulated as well. it mechanically heals wounds and strengthens cell walls. in mammals its used for detoxification....it binds to toxicants (xenobiotic animes) and is used in the formation of aldehydes.
in fact it gets upregulated the same exact amount as the P450 retinoid metabolizing enzyme. WHY??? If I could ask a "professional" researcher one question, this would be the one.
Amine oxidases and monooxygenases in the in vivo metabolism of xenobiotic amines in humans: has the involvement of amine oxidases been neglected? http://www.ncbi.nlm.nih.gov/pubmed/17868200
whats even more interesting is the structure of one of these copper oxidases....
look familiar to cyclo?! now what if this oxidase is upregulated to somehow bind with accutane, and in doing so, gets used up, depleting us of the intracellular copper?
Thanks for the research.
I notice that you mention checking for blood histimine levels in your footnote? Why is this? I've had some awful issues with my eyes of late. Truely awful. I have taken an oral antihsitimine the past few days, and my eyes feel noticeably better. At times up to now, I've had frequent periods where the discomfort has been so severe, I've been in a state of silent hysteria. The antihistimines seem to have helped? I have never experienced any allergies previously.
Out of curiosity, a lot of the stuff posted suggests that this is definitely what's happening on a cellular level. If this stuff is definitely happening, why do the seeming majority of people who take accutane, not experience any side effects, if this stuff is 100% going on? Just interested to hear your theory on this? There are plenty of celebrities walking around with what appears to be enough hyaluronic acid (not that you could tell for sure, but I know that it would mess them up pretty bad if they experienced what I'm going through).
got copper blood test results back. NORMAL. few other things I now notice with my adventures with copper. I think it was basically just irritating my nose and respiratory tract at a higher dosage. so much so where it just makes you feel kind of sick with a running nose and maybe irritated throat. also noticed my nose being much more sensitive to smells that bothered the hell out of me. like when I would deliver stuff to factories. So it basically gave a weakened response there. a positive i did notice i think was more mental alertness, but I wouldnt recommend more then 2mg a day, even this dosage is used to treat deficiency, which i dont even have. So not saying there aren't any benefits, but this supplement becomes just like any other one now in my view. some benefits but maybe not the route cause. unless we still believe in the stored accutane theory and this helps" push it out" in a sense, but idk
1 hour ago, guitarman01 said:got copper blood test results back. NORMAL. few other things I now notice with my adventures with copper. I think it was basically just irritating my nose and respiratory tract at a higher dosage. so much so where it just makes you feel kind of sick with a running nose and maybe irritated throat. also noticed my nose being much more sensitive to smells that bothered the hell out of me. like when I would deliver stuff to factories. So it basically gave a weakened response there. a positive i did notice i think was more mental alertness, but I wouldnt recommend more then 2mg a day, even this dosage is used to treat deficiency, which i dont even have. So not saying there aren't any benefits, but this supplement becomes just like any other one now in my view. some benefits but maybe not the route cause. unless we still believe in the stored accutane theory and this helps" push it out" in a sense, but idk
wait a second... werent you taking a lot of copper last week? and then two days ago you you said you were waiting to get tested????? blood results dont come overnight?! and they say to wait at least 4 days without supplementing? which is it?
which test did you get?
what were the levels?
please post scan of test.
15 hours ago, guitarman01 said:quick update. took 45bil culturelle less then couple hours ago, and already crazy oil production on my forehead. no joke. also more powerful throat/voice and sweat ability maybe? that changed like that(snaps fingers)
That's interesting because of the people over on the SolvePFS who've been tested for gut flora, parasites, pathogens have come back with various results (i.e. some have had pathogens, some haven't, some have parasites, and then have different ones not the same etc) but the one thing that is consistent across their results is they ALL have no growth of the 'good' bacteria cultureLactobacillus.
What's in Culturelle?.. it'sbacteria from theLactobacillus cultures... (to be fair it seems to be the most common strain in probiotics)
You really should get tested though, as there are numerous strains of healthy bacteria. Do you have parasites? If so you want to be tackling these, do you have pathogens? Are you lacking in other good bacteria cultures? See what I'm getting at?! You can test this stuff!
Also out of interest, anyone had their appendix removed? I had mine removed when I was 7, and it's know believed that the appendix as a sort of 'store' of safe bacteria and can replenish the gut after cultures get wiped out.
Sorry to change topic, but it may yield some related finds (someone mentioned cystic fibrosis, and of course everyone's various digestive issues)
So, here's something I've been dealing with lately (past 2 years or so) due to 6+ years of fairly large alcohol consumption coupled with the fact that our body has an inability to heal itself as it once did pre tane (why is that? cellular proliferation? telomeres?)
It's a rare form of pancreatitis called (chronic painless pancreatitis) where I have little to no pain when having my attacks, I will spare the details of my pancreatitis symptoms and how I know it is this disease, just know that it is probably this particular disease, however this report from 1963 has some interesting finds:
http://gut.bmj.com/content/3/3/252.full.pdf
"blood levels were all normal." "lipase levels were normal." "blood pressure normal" "urine normal" ... No symptoms other than diarrhea and weight loss...not even appetite had changed, on top of that they didn't even have any type of pain (the most two common symptoms).
Now, lets go to biopsy...
"Pancreatic tissue obtained by biopsy showed that although the outline of the pancreatic lobules and their ducts remained intact, exocrine cells were almost completely absent (Fig. 1) and were replaced by discrete collections of lymphocytes and plasma cells, neutrophils being conspicuously absent (Fig. 2). Pancreatic fibrosis was marked and was both perilobular and intralobular. Some islets of Langerhans were preserved and vascular changes were minor. "
So, I guess this brings me to wonder, if these guys could only be diagnosed after biopsy.What do you think they would find through a liver biopsy in us? I fear this is the only way doctors will be able to see the genetic changes on a CELLULAR level that Isotretinoin may cause. I'd imagine tiny microscopicperforations throughout various organs in different individuals. and if this is the case...what then?
Today's research is also yielding a lot of hits on the antioxidant Glutathione. Quite possibly deficient GSH levels could lead to our neurological symptoms as well as digestive issues. From what I've gathered in scientific articles is that isotretinoin actually increases GSH level...this is a naturally occurring important antioxidant, perhaps isotretinoin exacerbated our levels too much? Supplementation could bring some form of relief...anyone want to try it out?
3 hours ago, tanedout said:That's interesting because of the people over on the SolvePFS who've been tested for gut flora, parasites, pathogens have come back with various results (i.e. some have had pathogens, some haven't, some have parasites, and then have different ones not the same etc) but the one thing that is consistent across their results is they ALL have no growth of the 'good' bacteria cultureLactobacillus.What's in Culturelle?.. it'sbacteria from theLactobacillus cultures... (to be fair it seems to be the most common strain in probiotics)
You really should get tested though, as there are numerous strains of healthy bacteria. Do you have parasites? If so you want to be tackling these, do you have pathogens? Are you lacking in other good bacteria cultures? See what I'm getting at?! You can test this stuff!
Also out of interest, anyone had their appendix removed? I had mine removed when I was 7, and it's know believed that the appendix as a sort of 'store' of safe bacteria and can replenish the gut after cultures get wiped out.
i hear what your saying. but idk if there is really custom probiotics you can take based on certain aliments or parasites. you only really have a few options say culturelle, align or something multi strain like vsl or the other countless ones out there which are all similar in the strains they contain. culturelle has 800+ studies of its effects compared to all other much less studied probiotics. you also got the fungal probiotic ive tried that too. getting these diff test ie hydrogen breath test, what ever gastrologist test your talking about, is something id maybe look into down the line.but the most researched probiotics should have similar effects on gut issues. and its just a hell of alot cheaper and less time consuming to just see how one responds to various things. and so far doctors havent told me shit.
3 hours ago, tryingtohelp2014 said:wait a second... werent you taking a lot of copper last week? and then two days ago you you said you were waiting to get tested????? blood results dont come overnight?! and they say to wait at least 4 days without supplementing? which is it?
which test did you get?
what were the levels?
please post scan of test.
i got the test at a lab, part of our local hospital ordered from my doctor. it was a ceruloplasmin test. turn around was a couple days. the nurse just called me and said i was in normal range. so i have nothing to post. yes i was supplementing but only for a few days and i dont think that would make a difference in the case of real deficiency according to this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077729/ . copper might still help in our case. im just saying i dont have a real deficiency.
1 hour ago, macleod said:Today's research is also yielding a lot of hits on the antioxidant Glutathione. Quite possibly deficient GSH levels could lead to our neurological symptoms as well as digestive issues. From what I've gathered in scientific articles is that isotretinoin actually increases GSH level...this is a naturally occurring important antioxidant, perhaps isotretinoin exacerbated our levels too much? Supplementation could bring some form of relief...anyone want to try it out?
there was a news story not long ago that a girl lost her pancreas due to accutane, her hair as well. have people tried pancreas supplements with each meal? I was wondering about glutathione myself related to vitamin b2 not long ago.the main b2 deficiency test is related to reduced gsh levels i believe. ribo is one of the most common deficiencies especially if you avoid dairy. it is also manufactured in the liver. if you have problems converting to the active form of ribo, according to a study i read you become deficient in the liver, the heart and 2 different parts of the brain. a def of gsh like that crazy study i posted about inhaled toxins can lead to burning sensations in different parts of the body including the brain?
8 hours ago, dakiramir said:Thanks for the research.
I notice that you mention checking for blood histimine levels in your footnote? Why is this? I've had some awful issues with my eyes of late. Truely awful. I have taken an oral antihsitimine the past few days, and my eyes feel noticeably better. At times up to now, I've had frequent periods where the discomfort has been so severe, I've been in a state of silent hysteria. The antihistimines seem to have helped? I have never experienced any allergies previously.
yea i still believe there is something to this as well, being allergies or no allergies some kind of inflammation generating more mucus.
i have now a bottle of Montelukast.
this is interesting because it treats inflammation in a different way throughout the body. and its sounds like this could have really good effects or not so good according to wiki.
good
Ludwig Aigner from Paracelsus Medical University in Austria presented findings at the October 2015 meeting of the Society for Neuroscience in Chicago which showed that administration of Montelukast to older rats rejuvenated their brains, returning the same functionality as that of young rats. Human trials are planned, starting with Parkinsons patients.[11]The researchers conducted the experiment with montelukast because it reduces inflammation in the lungs and they thought it might also reduce inflammation in the brain. Some research has suggested that decline in memory skills may be associated with inflammation in the brain.[12]
and lol bad
On June 12, 2009, the FDA concluded their review into the possibility ofneuropsychiatricside effects with leukotriene modulator drugs. Although clinical trials only revealed an increased risk ofinsomnia,post-marketing surveillanceshowed that the drugs are associated with a possible increase insuicidalbehavior and other side effects such asagitation,aggression,anxiousness,dreamabnormalities andhallucinations, depression,irritability,restlessness, andtremor.[8]
so i guess its a coin flip
1 hour ago, guitarman01 said:yea i think we all just have allergies. lol
Come on man...ppl have died taking this med. You're being too broad/vague or facetious.
I have to deal with the mild depression, blind as a bat at night, tinnitus in my ear, intracranial pressure, and spend countless hours a day lifting weights and cannot get the muscle fiber to break down and grow. the tendons fray and bones stress before muscle breaks down and that is not right. it's a genetic transcription or cellular issue.
23 minutes ago, macleod said:Come on man...ppl have died taking this med. You're being to broad or vague or facetious.I have to deal with the mild depression, blind as a bat at night, tinnitus in my ear, intracranial pressure, and spend countless hours a day lifting weights and cannot get the muscle fiber to break down and grow. the tendons fray and bones stress before muscle breaks down and that is not right.
yes my dude this could all be due to inflammation from allergies. im not bullshiting you. i got fkn tinnitus in my left ear that came about years ago and hasn't gone away since. intracranial pressure, yea i got that too. ive had to walk out of restaurants because ive felt so bad,my head burns and feels full and dizzy all the time. this could be low grade inflammation due to allergies. i took allegra this past summer for awhile and felt stronger, made the dizziness go away . the closest ive felt to my normal self has been on claritin when i was outdoors. i live with 2 cats now and shit has just gotten worse.
especially in the winter when im trapped with them so to speak. im not preaching but ive said this a few times before and no one has said they have been allergy tested, skin prick and it came back negative. you could be blind as a bat at night just due to inflammation in your sinuses and around your eyes that is causing blurry vision. no bullshit atm ill come back and tell you if im wrong
1 hour ago, guitarman01 said:yea i think we all just have allergies. lol
cool i can quote my own statement. yea this is a little insensitive. just trying to solve our problems that seem to only grow. they have for me anyways. and the one thing that has kept the most serious issues at bay seems to be various forms of allergy treatment. that help my throat,eyes, skin, mind, breathing,dizziness,fatiuge,brain fog. idk
3 minutes ago, macleod said:No, the photo sensitivity and ocular symptoms are because of fried rods/cones and other various etiology I've read throughout the years. Just chill out. You've been coming across as AlanTookAccutane lately.
lol that hurts man im so zen im going to bed
I'm not throwing what you're saying under the bus. It's just you have an odd way of delivery that throws what you post off. There's a reason I posted that link about my rare form of chronic pancreatitis. It suggests "or the result of an insidious chronic inflammatory process from the beginning is unknown. The latter process suggests the possibility of an auto-immune mechanism but the results of antigen-antibody studies are inconclusive."
8 hours ago, guitarman01 said:i hear what your saying. but idk if there is really custom probiotics you can take based on certain aliments or parasites. you only really have a few options say culturelle, align or something multi strain like vsl or the other countless ones out there which are all similar in the strains they contain. culturelle has 800+ studies of its effects compared to all other much less studied probiotics. you also got the fungal probiotic ive tried that too. getting these diff test ie hydrogen breath test, what ever gastrologist test your talking about, is something id maybe look into down the line.but the most researched probiotics should have similar effects on gut issues. and its just a hell of alot cheaper and less time consuming to just see how one responds to various things. and so far doctors havent told me shit.
No that's totally wrong though! If you have parasites they're extremely hard to get rid of, and you'll need to follow a specific course of antibiotics depending on which parasite you've got. As for gut flora, it's not just as clear cut as good and bad - there are various different cultures, so if you're low, or have no growth of one culture, you take pre & probiotics for that specific culture. If you have a fungal growth like candidia you would probably be looking to change your diet and cut sugar, and potentially looking at antibiotics. It's just a wild stab in the dark otherwise! Still, good that you're feeling you get some improvements from the Culturelle anyway!
9 hours ago, macleod said:Today's research is also yielding a lot of hits on the antioxidant Glutathione. Quite possibly deficient GSH levels could lead to our neurological symptoms as well as digestive issues. From what I've gathered in scientific articles is that isotretinoin actually increases GSH level...this is a naturally occurring important antioxidant, perhaps isotretinoin exacerbated our levels too much? Supplementation could bring some form of relief...anyone want to try it out?
http://www.propeciahelp.com/forum/viewtopic.php?t=5783
have a read of that. Interesting in regards to accutane, there is also another thread about some members trying it with results, although they eventually stop MMT it would seem, I might try it eventually
8 hours ago, guitarman01 said:cool i can quote my own statement. yea this is a little insensitive. just trying to solve our problems that seem to only grow. they have for me anyways. and the one thing that has kept the most serious issues at bay seems to be various forms of allergy treatment. that help my throat,eyes, skin, mind, breathing,dizziness,fatiuge,brain fog. idk lol that hurts man im so zen im going to bed
All cool. I'm only interested in the theoretical stuff anyway.
I wanted to know about the histamine thing because I have never experienced a single allergy in my life. I tried antihistamines on the off chance whilst I was taking accutane and it made no difference to my eyes. When my eyes went horrific overnight a few months back (a month after stopping my course), it seemed as though it was caused purely by relentless dryness. It's only in the last few weeks that I thought I'd take an oral allergy tablet. I Didn't think anything of it, just thought I'd soon know if it would make a difference, and fully expected nothing to happen. In fact, I was worried I'd made things worse last week, by taking it twice, my eyes felt better, but something irritated them. However, the last few days have been categorically different in how my eyes feel. This is messing up my other theories as I thought the accutane itself was still having an effect, but this implies that histimine related inflammation is having a say in my eyes. Either I have developed an allergy spontaneously or because of the drug, which is possible, or this whole raft of symptoms are due to inflammation going on, which has yet to be picked up in any tests (as is constantly mentioned here).
A lot of the advice I've received has likened what I'm going through to reactive arthritis. And when I've researched, it's the only thing that has tied everything together (the burning, dry, bloodshot eyes/burning joint pain/stomach issues). Reactive Arthritis often comes on after an infection, particularly a stomach infection. Of course, I could have standard reactive arthritis, or, accutane could have damaged my gut as has been suggested here before, in a similar way to the damage that could be caused by stomach infections. The result could be stuff getting into my bloodstream that shouldn't be there. If you read reactive arthritis recovery stories, the amount of times people say that it only went away once they altered their diet is ridiculous.
Just putting it out there as it ties in with all this gut related stuff. It's still early days for me, so I still go to bed at night hoping for a miraculous recovery. But if It doesn't happen, my diet/gut flora/ and methylation optimisation are my weapons of choice so far. Shame I'm intimidated by such huge lifestyle changes in order to get myself back to normal. I remember when I considered this stuff to get myself feeling "great", give myself more energy and the like. This sucks bad.
11 minutes ago, MovingOnMusicGal said:Poor methylation is related to histamine excess. That's my two cents.
Typed my last post when you were submitting this MovingOnMusicGirl. That's interesting. In a bad way for me, because I nearly fully persuaded myself that I have reactive arthritis and felt like there was a way out of this nightmare last night. Maybe it would just take time.
That would be crazy if my methylation could be so messed up that it would cause enough histimine to cause me what looks like severe allergic conjunctivitis (no itching or discharge or anything wrong seen by specialists, just severe discomfort and 90% bloodshot eyes). How could it be that messed up when I didn't even take half the cum/dose. I only hit 4600mg and the target was 9960 for 120mg/kg. I ask this rhetorically I add, I don't expect anyone to actually know............now I'm off to research methylation and histamine levels. Christ sake, I should be thinking about my fantasy football team, and what I want to watch tonight on TV, not having to research this stuff. To quote my dermatologist "accutane, truly is, a wonderful drug".
5 hours ago, koikoi123 said:http://www.propeciahelp.com/forum/viewtopic.php?t=5783
have a read of that. Interesting in regards to accutane, there is also another thread about some members trying it with results, although they eventually stop MMT it would seem, I might try it eventually
"February 2011: I read David Brownstein's book "Iodine - Why You Need It" and began supplementing with a high dose of iodine. This helped mildly with waking up a little easier in the morning and took away my dizzy spells. No negative side effects. An unexpected positive side effect was that, after 5 days on it, I woke up in the morning and had SIGNIFICANTLY better vision. It felt as if someone had zoomed in my eyes over night the way you zoom in with a camera. I could see straight into my neighbor's kitchen for the first time. It wasn't all blurry and fuzzy looking. Moreover, it 100% restored my horrible night time vision and astigmatism that I have had since my Accutane days. 100% I still cannot believe it when I go out at night. I have perfect vision!!! Everything looks so intense, the colors are intense and the blurring of lights is completely gone. I can drive safely at night too. It's amazing!!!"
that thread starter did a well documented timeline, this is what i like to read.
Now thats twice ive read this, Iodine and night vision post accutane. i remember somebody saying that on this forum as well.
14 hours ago, guitarman01 said:it was a ceruloplasmin test. turn around was a couple days. the nurse just called me and said i was in normal range. so i have nothing to post. yes i was supplementing but only for a few days and i dont think that would make a difference in the case of real deficiency according to this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077729/ . copper might still help in our case. im just saying i dont have a real deficiency.
1. not the right first test! RBC test shows you what INSIDE your cell.
2. you took 400% of the RDA for days...and then you tested the carrier enzyme?!
3. that study...youre comparing results with a lady who had gastric bypass and couldnt walk anymore due to neuropathy! cmon man!
can you do this while youre at it... go take 400% of the RDA for vitamin A for a few days, then immediately go get a serum vitamin A test to confirm we have elevated levels of stored retinol?
will somebody please get a test and scan it in? lol.
Ok, so we are all aware that accutane supposed;y shortens tolomeres. Youtube -"Bill Andrews PHD How Telomere research is turning back ageing"
explains this very well. Now I am not looking to endorce their product at all. They have brought their product to market very early and their unique way of selling means you will never find genuine reviews because everyone is selling it.
But it does make sense that rapid shortening off the Tolomere might cause rapid premature ageing. (Amongst all the other very serious side effects, grey hair is mentioned a lot.) It is easy to believe how damaging and how much shock this would cause to the body.
Has anyone come across an article about accutane urine (not sure during or post ) is similar to that of kids with progeria.
So do the brains amongst you think we should give this serious attention?
2 hours ago, tryingtohelp2014 said:"February 2011: I read David Brownstein's book "Iodine - Why You Need It" and began supplementing with a high dose of iodine. This helped mildly with waking up a little easier in the morning and took away my dizzy spells. No negative side effects. An unexpected positive side effect was that, after 5 days on it, I woke up in the morning and had SIGNIFICANTLY better vision. It felt as if someone had zoomed in my eyes over night the way you zoom in with a camera. I could see straight into my neighbor's kitchen for the first time. It wasn't all blurry and fuzzy looking. Moreover, it 100% restored my horrible night time vision and astigmatism that I have had since my Accutane days. 100% I still cannot believe it when I go out at night. I have perfect vision!!! Everything looks so intense, the colors are intense and the blurring of lights is completely gone. I can drive safely at night too. It's amazing!!!"that thread starter did a well documented timeline, this is what i like to read.
Now thats twice ive read this, Iodine and night vision post accutane. i remember somebody saying that on this forum as well.
1. not the right first test! RBC test shows you what INSIDE your cell.
2. you took 400% of the RDA for days...and then you tested the carrier enzyme?!
3. that study...youre comparing results with a lady who had gastric bypass and couldnt walk anymore due to neuropathy! cmon man!can you do this while youre at it... go take 400% of the RDA for vitamin A for a few days, then immediately go get a serum vitamin A test to confirm we have elevated levels of stored retinol?
will somebody please get a test and scan it in? lol.
yea i still wonder about copper. it generated mucus in me like nothing else.I was blowing my nose like crazy, and thick mucus would come out like it was coming out of the depth of hell. id get yellow and bloody mucus as well. but im not sure if this was just an irritating effect from the copper,(which if that was the case i was well within safe dose range so you think this would already be documented as a side effect.) or if i was generating more mucus as a protective or cleansing effect that should have been there all along but has been lacking in us post tane. but im still not convinced we are greatly deficient in copper, but there could def be some other mechanisms going on here. i know with the extra mucus it was easier to talk first thing in the morning,without feeling cotton mouth or like i needed to drink something right away. and i do think i felt quicker first thing in the morning.
il say this if i take 2mg of copper per day and still have those powerful type effects, then their is def something going on there. or its antagonizing the real problem.
Kudos to all of you who are trying to make this situation better for those affected. Ive come to appreciate several of you for your optimism and your patience with those who seem to have lost hope.
Regarding post-Accutane sexual dysfunction:
So here: http://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/#respond (see comment on July 26, 2015) Dr. David Healy (who might be a good source for you, Hatetane) says that Accutane is an SSRI also. Considering the widespread use of SSRIs, theres a huge body of sufferers of PSSD there who might also be a pool for research/information/lawsuit.
Someone on this forum said that the cure might come from PFS sufferers. So I was looking into that as well.
So because I was so encouraged by the inclusion of success stories a few pages back, and also that some of these might help someone, or help in making a connection with symptoms and cures, following is a list of success stories that Ive found from either post-accutane, pfs, or pssd sufferers. Some seem crazy, like licorice root, but when you look up what it does, it makes sense why it might help someone.
Sorry if this is just a compilation of things you have all seen and discarded. I know some of these are not new to you because I see Dubya_Bs name on one of these comment pages. In no particular order:
1. Choline+inositol+B5 see comment #73 on 10/27/10 - Michaelsad
http://ejaculatoryanhedonia.com/index.php?topic=12.60
2. Licorice root - Conundrum
http://www.dr-bob.org/babble/20101203/msgs/972934.html
3. Acupuncture
http://ssrisexdysfunction.blogspot.com/2011/11/healing-your-sexual-dysfunction-with.html?m=1
My son took 4 weekly sessions of acupuncture. He thinks it did help a bit. Ive been interested to read in the past few pages someone who mentioned their blood is thick and runs slow. Acupuncture, of course, is about circulation. My son complained of what many Accutane sufferers complain of cold feet and he said after acupuncture, his feet are no longer cold. So perhaps, with patience, a longer run of acupuncture would be beneficial.
4. Exercise, Acupuncture, vitamins, and herbs
5. Discussed elsewhere on this forum two antibiotics (metronidazole and paromomycin) may be two accounts of the same guys
[Edited link out]
[Edited link out] see point #6
6. Viagra/Cialis, eventually not needed (comment #6 by JB on 2/24/14) also comment by Thomas Oct. 18, 2015.
[Edited link out]
(Somewhere I saw a cure where a guy was on a very small, daily dose of sildenafil, for a while, and eventually did not need it either. But I cant find the story now.)
7. Exercising PC muscle - comment by Fernando #11 on 10/12/14. Fernando only took 4 accutane pills, so he may not have had a bad case.
[Edited link out]
8. Mianserin trycyclic anti-depressant (older generation of AD, not an SSRI)
9. Reinstatement and taper off SSRI by sufferer OP (Hair of the dog that bit you, I guess.)
[Edited link out]
10. Closely related to the above tianeptine (Stablon and others)
[Edited link out]
11. Cocktail of herbs/teas - Comment by R March 26, 2015
http://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/#respond
12. St. Johns wort
http://www.pssdforum.com/viewtopic.php?f=20&t=185
14. Buproprion and dianabol steroid look at last comment by PSSD Paxil
http://rxisk.org/treating-pssd/
15. Nutritional balancing (copper toxicity) an answer to the Famous Indigo Rush look at the second answer by Blistering Fate he doesnt say what the cause of his ED is, just says he was cured from it
[Edited link out]
Heres other claims of cures, but Im not convinced.
A. Not a success story, as such, but the writer believes it is a cure, so it might tie in. He thinks its all caused by inflammation, and also goes into leaky gut and SIBO, among other things. Look out, cuz Mr. Free T would like to sign you up for something.
[Edited link out]
B. Alkalization, I think is the gist of this one
http://ted.earthclinic.com/cures/erectile-dysfunction.html
Two other things:
Somewhere I saw l-citrulline caused someone a complete cure, but I cant find it now.
And a temporary cure:
Loratadine (antihistamine) and Viagra taken together - Gonzo
[Edited link out]
And finally, not claiming a cure, but helping at least:
Ginkgo Biloba (increases circulation and has anticoagulant effects)
http://virilityprotocol.com/gingko-biloba-effective-treatment-for-sexual-dysfunction/
http://www.philstar.com/opinion/215085/ginkgo-may-beat-ssri-sexual-dysfunction?nomobile=1
In reply to the negativity from a few members of this forum, we have no idea how many people have found this forum, read of something that helped someone else, and cured themselves or their loved one with information found here, all without ever having logged on and said a word. I would guess that number is higher than we would imagine.
Pabpab one of the recovery stories regarding RSO says that to avoid the anxiety caused by it, you must begin with a tiny dose grain of rice size and build tolerance.
Sorry, not sure how to make all the links live. But you can highlight and "go to".
I guess they livened up when I posted. : )
Also, I'm not an accutane user, my son is, but I had shoulder pain for years and couldn't make it go away. Finally just a couple of doses of Purity Products Fast Action H.A. (Hyaluronic Acid Super Formula) made the pain go away and it hasn't come back, so I think that's an H.A. brand that actually works.
Guys, please help if anyone can direct me with valuable information.. I finished accutane 2 years ago and I still have SLOW WOUND HEALING, SCAR.. And what really strange for me that I can't find anyone with any suggestions how to treat this thing or any idea why it's happening? If anyone know anything, please reply, thank you
On 2/27/2016 at 2:59 AM, Justmom said:Kudos to all of you who are trying to make this situation better for those affected. Ive come to appreciate several of you for your optimism and your patience with those who seem to have lost hope.
Regarding post-Accutane sexual dysfunction:
So here: http://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/#respond (see comment on July 26, 2015) Dr. David Healy (who might be a good source for you, Hatetane) says that Accutane is an SSRI also. Considering the widespread use of SSRIs, theres a huge body of sufferers of PSSD there who might also be a pool for research/information/lawsuit.
Someone on this forum said that the cure might come from PFS sufferers. So I was looking into that as well.
So because I was so encouraged by the inclusion of success stories a few pages back, and also that some of these might help someone, or help in making a connection with symptoms and cures, following is a list of success stories that Ive found from either post-accutane, pfs, or pssd sufferers. Some seem crazy, like licorice root, but when you look up what it does, it makes sense why it might help someone.
Sorry if this is just a compilation of things you have all seen and discarded. I know some of these are not new to you because I see Dubya_Bs name on one of these comment pages. In no particular order:
1. Choline+inositol+B5 see comment #73 on 10/27/10 - Michaelsad
http://ejaculatoryanhedonia.com/index.php?topic=12.60
2. Licorice root - Conundrum
http://www.dr-bob.org/babble/20101203/msgs/972934.html
3. Acupuncture
http://ssrisexdysfunction.blogspot.com/2011/11/healing-your-sexual-dysfunction-with.html?m=1
My son took 4 weekly sessions of acupuncture. He thinks it did help a bit. Ive been interested to read in the past few pages someone who mentioned their blood is thick and runs slow. Acupuncture, of course, is about circulation. My son complained of what many Accutane sufferers complain of cold feet and he said after acupuncture, his feet are no longer cold. So perhaps, with patience, a longer run of acupuncture would be beneficial.
4. Exercise, Acupuncture, vitamins, and herbs
5. Discussed elsewhere on this forum two antibiotics (metronidazole and paromomycin) may be two accounts of the same guys
[Edited links out]
[Edited link out] see point #6
6. Viagra/Cialis, eventually not needed (comment #6 by JB on 2/24/14) also comment by Thomas Oct. 18, 2015.
http://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/#respond
(Somewhere I saw a cure where a guy was on a very small, daily dose of sildenafil, for a while, and eventually did not need it either. But I cant find the story now.)
7. Exercising PC muscle - comment by Fernando #11 on 10/12/14. Fernando only took 4 accutane pills, so he may not have had a bad case.
[Edited link out]
8. Mianserin trycyclic anti-depressant (older generation of AD, not an SSRI)
9. Reinstatement and taper off SSRI by sufferer OP (Hair of the dog that bit you, I guess.)
[Edited link out]
10. Closely related to the above tianeptine (Stablon and others)
[Edited link out]
11. Cocktail of herbs/teas - Comment by R March 26, 2015
http://rxisk.org/accutane-30-years-of-trading-our-sex-lives-for-clear-skin/#respond
12. St. Johns wort
[Edited link out]
14. Buproprion and dianabol steroid look at last comment by PSSD Paxil
http://rxisk.org/treating-pssd/
15. Nutritional balancing (copper toxicity) an answer to the Famous Indigo Rush look at the second answer by Blistering Fate he doesnt say what the cause of his ED is, just says he was cured from it
[Edited link out]
Heres other claims of cures, but Im not convinced.
A. Not a success story, as such, but the writer believes it is a cure, so it might tie in. He thinks its all caused by inflammation, and also goes into leaky gut and SIBO, among other things. Look out, cuz Mr. Free T would like to sign you up for something.
[Edited link out]
B. Alkalization, I think is the gist of this one
http://ted.earthclinic.com/cures/erectile-dysfunction.html
Two other things:
Somewhere I saw l-citrulline caused someone a complete cure, but I cant find it now.
And a temporary cure:
Loratadine (antihistamine) and Viagra taken together - Gonzo
[Edited link out]
And finally, not claiming a cure, but helping at least:
Ginkgo Biloba (increases circulation and has anticoagulant effects)
http://virilityprotocol.com/gingko-biloba-effective-treatment-for-sexual-dysfunction/
http://www.philstar.com/opinion/215085/ginkgo-may-beat-ssri-sexual-dysfunction?nomobile=1
In reply to the negativity from a few members of this forum, we have no idea how many people have found this forum, read of something that helped someone else, and cured themselves or their loved one with information found here, all without ever having logged on and said a word. I would guess that number is higher than we would imagine.
Pabpab one of the recovery stories regarding RSO says that to avoid the anxiety caused by it, you must begin with a tiny dose grain of rice size and build tolerance.
Sorry, not sure how to make all the links live. But you can highlight and "go to".
I guess they livened up when I posted. : )
Also, I'm not an accutane user, my son is, but I had shoulder pain for years and couldn't make it go away. Finally just a couple of doses of Purity Products Fast Action H.A. (Hyaluronic Acid Super Formula) made the pain go away and it hasn't come back, so I think that's an H.A. brand that actually works.
That's a lot of effort Just Mum. I really don't like Dr healy at all. He is very negative. He may be right in what he says but why isn't he all over the media saving all these people from hell post these drugs. There must me middle ground but it is unlikely that we would hear about these cases. I just can't accept that it is an all or nothing situation which is pretty much what he is saying. Also the only advise he offers is "help yourself" Why hasn't he instigated any research? Good to hear about the HA. Nathan Carr's report suggests all acctaners should supplement HA. Night all
Yep, Hatetane, all good points re Dr. Healy. Incredible to know how many years these drugs have been on the market, how long they've known, and even today some poor kids are probably trotting off to the pharmacy to fill their new Rx for the wonder drug that will clear up their face.