Anyone had Oral hyaluronic acid supplements - apparently just 1000 milligrams can hold 6 litres of water.
May lessen or eradicate joint pain, help with osteoarthritis (a worry for the future) Must be good for skin and eyes.

15 minutes ago, eph95 said:

It's great that everyone's spirits are high, and optimistic in this forum. however we need to be realistic. People on here are saying "people have recovered" but WHO? Who has recovered? Please give an example.

I still haven't found anything that helps me , only supplements magnesium, L-tyrosine which helps slightly.

15 minutes ago, eph95 said:

It's great that everyone's spirits are high, and optimistic in this forum. however we need to be realistic. People on here are saying "people have recovered" but WHO? Who has recovered? Please give an example.

I still haven't found anything that helps me , only supplements magnesium, L-tyrosine which helps slightly.

Sadly I don't believe anyone is is in high spirits. We are all desperate and personally speaking, not for myself but on behalf of someone I love - I am completely devastated and broken. However with no researchers on board we are not in a good place so I suggest you reach out to any doctors, or researchers who might help us. In the meantime, you yourself just mentioned two things that helped you out, even if in such a small way.
This is all we can do, try things out and help each other. To be saying this in this day and age when medicines for all sorts of things is so advance
chokes me. I should not be saying it. Doctors should be helping but the fact is they are not!
So for now we fight or die - I say fight.
The body is a beautiful and amazing thing - we messed with that!
I really have to believe that with adjustments, diet exercise, being positive and given time our bodies will regenerate to some degree.

Keep positive - trust me, I know it is hard

7 hours ago, macleod said:

I've already reported Vice Caz up there. No idea where he's come from. Looks like another account made just to throw this thread off.  Would be cool if others could report him too. 
 

MusicGal, what do you mean by this? Could you elaborate? There was someone  trolling you in PM?

Well I m sometimes reading this Thread. Not posting. You should ask yourself if it is better to report hopefull post than hopeless post but you can report me that's fine 

I'm sorry for the bad words I have used, I wrote with my emotions and it made me mad to see an hopeless post like that. But sorry again

if at least it was true.. But not a chance
 

3 hours ago, eph95 said:

It's great that everyone's spirits are high, and optimistic in this forum. however we need to be realistic. People on here are saying "people have recovered" but WHO? Who has recovered? Please give an example. 

I still haven't found anything that helps me , only supplements magnesium, L-tyrosine which helps slightly.

Who?  What if you had read all the post here in this thread, and some in others?  It is written Bro ..

Here a post from allthingsmale 

I've got permission to post this story that I had in my inbox the other day. The individual wishes to remain anonymous and thus any speculations to who it is I will neither confirm or deny. However, take it for what it is - good f**king news;

Thanks alot man I appreciate it! I owe my life to this plant which is why I now dedicate my life to spreading the knowledge of this amazing medicine. I never expected any of this. To take it back to the start I was *** years old I Was literally the epitome of an athlete and health (sexually included)quite like yourself as I saw you mentioned. The death pill accutane turned me into what I could only expect it would be like at 80+ years old, after 6 months of 40mg per day...if I remember correctly 1 poison pill a day. Still remember near the end of the death treatment I found one of those pills crushed with a sickly orange goo coming out. Later to find out this poison is chemotherapy originally designed for brain cancer, which I now know is a whole other fraud just like most of the 'medical system', but that's another topic. Back to the point. I remember in the summer of 2010 when I was a month or two into the poison I suddenly released my erections were becoming extremely weak and my feelings were slowly dying. I didn't understand what was going on I was only focused on getting rid of the acne. Time went on and I got worse and worse thinking it was only temporary. Never could i have imagined what these criminals had put me on for acne. By the end of the poison I pretty much felt dead. Extreme fatigue, extreme brain fog I could not think normally, could barely make sense out of regular things, at this point I was completely impotent with no more feeling sexually or in my body. Complete loss of sexual function. No erections, no libido, no sexual thoughts or attraction to females at all. Emotionally dead. My joints in my legs ached bad and made cracking sounds when I would move them. My eyes were red and dry and I had horrible night vision I couldn't see outside at night even though I always had been able to in the past. My lips had a big split top and bottom from being so dry and cracked. They would split and bleed daily. I still have the scar lines from it. Basically the poison made me feel like I was no longer human. I don't know if I am forgetting anything but I think that about covers it. It was around 2 years until i really began cannabis treatment. I was feeling worse and worse no improvement at all to the point i was basically bed ridden with no hope. I eventually started off vaping and over the course of a few weeks my brain fog finally was clearing and I was getting some erections and feeling which was very exciting, but it wasnt always too consistent. The reason being i believe is the amount is very little being consumed compared to an oil tolerance. Also i feel that vaping/smoking is very mental so I believe most of the cannabinoids go to the lungs/brain rather than the whole body compared to ingesting oil. But it certainly began to clear up my mind. I began using RSO months later I believe a bit more than 1 1/2 years ago. Within the first few days i knew this was it. I took it very slowly and only increased my dose as I was comfortable but within a few weeks I was beginning to really feel the true healing power. I was feeling alive with energy each morning and I finally began getting more erections. My mind was clearing up even more and feeling and emotion was returning. This is dated around a month or so. I no longer had joint pain and my night vision had returned.I continually increased dosage and I continued to feel even better and better. Every symptom just continued to feel better by the day. Erections and feeling continued to improve as did my energy and mind. Another thing that I think helped a lot is a few times a week i would mix some rso with coconut oil and put it in a condom and wear it. By this time it was around 3 months into treatment. I estimate I consumed around 50 grams of oil or about 12 ounces of bud. At that point I felt completely cured and back to normal. I continued to ingest the oil and continued to feel great. I have used the oil on and off since then as maintenance doses and I still feel great to this day. This oil is truly amazing. Throughout the course I didn't write down dates or measurements so it is mostly estimated. I continually listened to my body And feeling as I went along. That is the most important thing to remember on the oil. Take it slowly and build a tolerance. Once your tolerance is high after a few weeks or months the healing really begins. Start very small and give yourself time to build tolerance. 1/2 rice grain every 8 hours rick Simpson recommends, doubling dosage every 4 days. I started a bit slower but eventually built it up. We all have different tolerances and healing rates so always go at your own comfortable pace. It is important to use indica or indica dominant strains because they provide the best healing and rest. Many people have schedules so if you can only use at night before bed that's still okay. Sativas are not good because they are very mentally energizing and not suitable for healing the way indicas are. Some indica dominant strains have a bit of sativa enough to make a nice balance, but you are looking for potent sedative strains that make you want to sleep. These are the real healers. A few strains I used were afghan kush(indica), northern lights(indica), grand daddy purp(indica), white widow(indica dom), skunk #1 (hybrid). The indicas are definitely best but the hybrids were good to add in the mix for some euphoric good feeling. The best oils are a mix of strains which is what I did. Don't worry about cbd, simply shoot for potent sedative indicas and you will be good. I did not grow the bud I used for these oils, but I have knowledge on growing if you are looking for help. Growing certainly solves many issues in finding this medicine but sadly it is a risk as we know right now. I hope this was detailed enough to be useful and will certainly answer any further questions you may have. I apologize if there isnt a lot of detail but over my course of helping I didn't keep track of much besides how I felt and continued to improve over time. I would love to add more detail but I have been typing for about 2 hours now on my phone because I don't have a computer at the moment. I can't think of much else off the top of my head but Im more than happy to continue to chat and answer questions or help in any way I can. P.s. I tried finding a lawyer for class action lawsuit about 2 years ago by no one would take on the case unless symptoms included IBS or a few others... thats the corrupt system for us. I don't have money for a lawyer so I don't know how realistic suing actually is for me but I am still trying to collect info in the meantime. Very happy to talk to you as well man it's been an unfortunate part of our life but there is certainly a bright future Ahead.

another :

Summary of my knowledge;

I have found 12 people who consider themselves completely recovered that took over a year (ruling out 'natural' recoveries). I have conversed with 7 of them directly. The common link between all 7? Cannabis. Furthermore, there is a dose-response relationship. Those who took it in the most concentrated format - 'Rick Simpson Oil' recovered the fastest, about 3-6 months. Those who smoked/vaped took about 18 month to 2 years to recover.

There is anecdotal evidence, some science & my own personal experience to attest to that cannabis helps and quite possibly cures accutane side effects. Sounds like blasphemy that a recreational drug could do this, I too thought this until I started vapourising. I have been for 3 months and have gone from completely impotent to being able to get it up several times per day. The only sexual side that I have yet to see improvement in is genital numbness.

I hope you'll be able to read Those pictures:  it is screenshots from my phone.
I hope this will give hope to everyone,  I'm deeply conviced that I Will recover. In more to suffering from accutane side I have   ( Erectile Dysfonction, no libido,  no emotion , dry eye, brain fog,  fatigue etc ) if you  think that you wont ever recover it is hell.  I was in this hell 6 months ago.  But my symptoms became more manageable with raw vegan diet . 

I  have not even performed one liver/kidney flush,  not even try cannabis oil, or Isotherapy.  And I feel better , 

the science evidence show also that we can recover from every illnesses. Roaccutane really impacted your liver/kidney, hence symptoms with brain, stomach etc,  basically everywhere.  But the body do have the ability to heal itself if you give to it what he needs to. 

I  forgot to present myself : I'm a french 19 years old man, Victor, I took accutane 7months with 50mg ( 1m88, 80kgs ) and I will recover soon from the side Effects I have 🙂

Good reminder that there is hope. This must have been time consuming so thanks for the effort.

On Thursday, February 18, 2016 at 6:01 AM, eph95 said:

accutane damage, sexual dysfunction and depression for some people are permanent. It is dependant on ones genetics and biochemistry. If your side effects don't go away within 6 months to a year after discontinuing accutane you will have them for the rest of your life. The drug is so powerful you can't reverse the damage, only manage it.

I disagree. The effects can be overcome. Not enough people on this forum focusing on the diet and lifestyle side in my opinion thus no getting better. I have spoken to ex accutane people who fixed there side effects after years and years sooo.... if they listened to you they wouldn't have. Moral of the story there is always hope. You don't have the right to be telling people they can never get better. That's fucked up and inaccurate.

I mean, diet is a no brainer for us. I don't know about you, but I wouldn't last a month or two eating fast food or soda or any processed food for that matter. Normal people can...but we can't...all of a sudden. Why is that? Our entire phenotype has changed, so I don't know where ppl are getting at with the diet change...We really have no choice otherwise. Its either become a health conscious individual extracting the ideal nutrients or die.

Ey everybody

I have got a question.

I have a few problems after using accutane.
The main problems are: joint en muscle pain, depression and rosea.
I read in one of the post that fishoil can make everything worse.
So i quit it for a week now and i can say i start feeling a difference. Less joint pain and muscle pain and my brain is less foggy.
So far so good.
But.... iam pregnant.
And i think my baby needs the fishoil for the development of the brains.
Or did i give this problem with vitamine a and fishoil to my baby? Its a genetic thing after you use accutane for a while right?
Dont know what is the right thing to do now.
Sorry for my bad englisch. Iam dutch.

5 hours ago, JustSayinn said:

On 2/18/2016 at 10:01 AM, eph95 said:

accutane damage, sexual dysfunction and depression for some people are permanent. It is dependant on ones genetics and biochemistry. If your side effects don't go away within 6 months to a year after discontinuing accutane you will have them for the rest of your life. The drug is so powerful you can't reverse the damage, only manage it.

I disagree. The effects can be overcome. Not enough people on this forum focusing on the diet and lifestyle side in my opinion thus no getting better. I have spoken to ex accutane people who fixed there side effects after years and years sooo.... if they listened to you they wouldn't have. Moral of the story there is always hope. You don't have the right to be telling people they can never get better. That's fucked up and inaccurate.

Can you name these folks, or give examples of these people's side effects and the specific diet/lifestyle changes?

In the past few years I have been in contact with ~50 people who suffer sexual and reproductive side effects from Accutane. This is counting only people I have regularly PM'd, phoned, or emailed, not those who just randomly show up and post that they got better after many years because of treatment X-Y-Z. Basically, these are friends from the forums who were stuck in the same situation as me. Only 2 of those I am in contact with said they had significant improvement to the point where they considered themselves back to normal , or even close to normal, function. One recovered in the first year and attributed it to a water fast, and the other said he did nothing in particular as a treatment and just naturally recovered in the first year.

You have to account for all of the people who tried the paleo-diet, cannabis oil, water-fasting, ect, without success.

It may be wrong say that a full or nearly full recovery is impossible, but you have to consider the grossly overwhelming number of failed treatment attempts compared to the few recovery stories. This is counting people such as myself who have made years-long attempts at cleaning up their diet and improving physical condition, without the slightest long-term improvement in certain symptoms.

5 hours ago, Dubya_B said:

Can you name these folks, or give examples of these people's side effects and the specific diet/lifestyle changes?

In the past few years I have been in contact with ~50 people who suffer sexual and reproductive side effects from Accutane. This is counting only people I have regularly PM'd, phoned, or emailed, not those who just randomly show up and post that they got better after many years because of treatment X-Y-Z. Basically, these are friends from the forums who were stuck in the same situation as me. Only 2 of those I am in contact with said they had significant improvement to the point where they considered themselves back to normal , or even close to normal, function. One recovered in the first year and attributed it to a water fast, and the other said he did nothing in particular as a treatment and just naturally recovered in the first year.

You have to account for all of the people who tried the paleo-diet, cannabis oil, water-fasting, ect, without success.

It may be wrong say that a full or nearly full recovery is impossible, but you have to consider the grossly overwhelming number of failed treatment attempts compared to the few recovery stories. This is counting people such as myself who have made years-long attempts at cleaning up their diet and improving physical condition, without the slightest long-term improvement in certain symptoms.

Have you tried cannabis oil at least six months? And performed 5/6 liver flush?
i dont think because those you have talked with have not recovered mean that nobody have did it
Those who claim they have recovered are not " random " and have not showed up like you said.
Accutneispoison annoy maynerd Doneat16 ManotibaMoubtain etc wrote a lot in this thread and they are free of all symptom now

you said that some have tried cannabis oil and diet change with out success etc, I would ask at first who ? And what kind of oil was it? Rick Simpson oil ? How long did they use it?

what about liver flush, Isotherapy, sun exposure, exercice , glandular, Dr Morse 3 months protocol, vitamin A in retinol form, vitamin K, herbs for liver , many water fast and not only one?

it may be wrong, but i am deeply conviced that everyone can recover. It may be longer of harder for some but the results will be the Same. I mean, i even know some people who took accutane with out any symptoms. I can admit that everybody is different but side effects cant be permanent for some whereas there is no side effects at all for others. It may be permanent but there is ways to recover.
Here in France we have a guy who took accutane in 2010 and have recovered only last year in 2015, he is claiming free of all symptoms at 95% , and he even feel better in certain point than before taking accutane. And he had really awfull side effects. And I can garantee you he is not a liar. By the way it seems that you think people who recovered are lying. Man like i said , recurrent writer in this thread have recovered , and why some would waste time writing recovery story of accutane if not true? They would have nothing to win

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

2 hours ago, macleod said:

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

2 hours ago, macleod said:

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

2 hours ago, macleod said:

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

2 hours ago, macleod said:

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

2 hours ago, macleod said:

we've been online researching this drug for years. I'm sure if there was a fix all cure, we'd have heard of it by now.

http://www.scielo.br/scielo.php?pid=S0001-37652015000301361&script=sci_arttext

originally posted by guitarman.

10 hours ago, ViceCaz said:

Have you tried cannabis oil at least six months? And performed 5/6 liver flush?
i dont think because those you have talked with have not recovered mean that nobody have did it
Those who claim they have recovered are not " random " and have not showed up like you said.
Accutneispoison annoy maynerd Doneat16 ManotibaMoubtain etc wrote a lot in this thread and they are free of all symptom now

you said that some have tried cannabis oil and diet change with out success etc, I would ask at first who ? And what kind of oil was it? Rick Simpson oil ? How long did they use it?

what about liver flush, Isotherapy, sun exposure, exercice , glandular, Dr Morse 3 months protocol, vitamin A in retinol form, vitamin K, herbs for liver , many water fast and not only one?

it may be wrong, but i am deeply conviced that everyone can recover. It may be longer of harder for some but the results will be the Same. I mean, i even know some people who took accutane with out any symptoms. I can admit that everybody is different but side effects cant be permanent for some whereas there is no side effects at all for others. It may be permanent but there is ways to recover.
Here in France we have a guy who took accutane in 2010 and have recovered only last year in 2015, he is claiming free of all symptoms at 95% , and he even feel better in certain point than before taking accutane. And he had really awfull side effects. And I can garantee you he is not a liar. By the way it seems that you think people who recovered are lying. Man like i said , recurrent writer in this thread have recovered , and why some would waste time writing recovery story of accutane if not true? They would have nothing to win

-I tried 30g oil derived from high CBD strains over 3 months time. No benefits. In fact, I noticed was a bit worse after the treatment than before starting it.

-tanedout tried oil. He is still here and looking for solutions.

-You may be getting Doneat16 and Crank92 confused. Crank92 stated that he seemed to have some initial benefit from vaping, but the oil didn't work well for him. He has been ignoring this site lately, not because he is better, but because he is more interested in getting an education than getting involved in the foolishness that goes on here. All things considered, he is doing okay, but still has problems.

-Doneat16 never posted in this thread. He was a post Accutane person who posted on propeciahelp years ago. I was the one who personally emailed him to ask how he was doing to be told he spontaneously recovered within the first year after developing side effects by doing "nothing in particular" as a treatment. He casually stated that he was having fun and doing quite a bit of partying, including drinking and smoking weed. The possibility that marijuana usage may have played a role in his recovery became contorted through the grapevine as the reason he thought he recovered. He did not make a full recovery either. Only said he regained enough function to not have to worry about ED constantly.

-Not sure Maynerd had sexual side effects or depression. If you can find where he said he recovered from these, that would be great to know.

-A man who goes by Dave22k on many forums did a 14 day and 21 day water fast. They didn't do anything for him.

"Here in France we have a guy who took accutane in 2010 and have recovered only last year in 2015, he is claiming free of all symptoms at 95% , and he even feel better in certain point than before taking accutane. And he had really awfull side effects."

Could you share what his treatment method was?

I've followed around 20 different purported cures to the letter. I'm talking same brand, same dose, same duration, etc...

" I tried "....." for X days/months to treat "..." caused by Accutane, and noticed a miraculous change for the better after X days/months"
This is usually followed by 1 or 2 corroborating success stories and who knows how many people with similar symptoms as the OP who try the treatment and never bother to mention that it didn't work for them.

Not calling everyone claiming a recovery a liar. You are putting words into my mouth.
Moral is that people generally don't bother telling their failure stories after following one of these supposed cures.

http://www.scielo.br/scielo.php?pid=S0001-37652015000301361&script=sci_arttext

Originally posted by guitarman.

Does anyone know of a doctor, researcher, biochemist or anyone that can study this and give us ideas for recovery.
I have been getting names off articles published and emailing - asking for help. I admit nothing helpful is coming back but just connecting
with one scientist may just help us one day. So reach out to anyone and everyone. I reached out to Doug Bremmer, no rely yet - anyone else
care to try.
I even email d that science guy from the pod someone posted a few days ago, no response. I think we just got to keep knocking on doors,
it can't hurt, cost nothing - but one day we might just get someone to help.
I had a couple of doctors who asked me to get more case files but I only got s few responses from you guys so I don't know how to get myself taken seriously. They need numbers if the are going to invest their time and only a few cases don't prove that accutane caused ED and muscle wastage.
So spare the time to pm me. Thanks to the guys who have already done so.

I have approached all high profile PFS doctors. They all want to take on patients but won't engage in a conversation as to their knowledge of accutane and if they have treated accutane victims.

Dr shippep was lovely and fears that accutane is similar to propecia/fin but not really knowledgeable about accutane.
He recommended having tests:

Meet The Doctor Who Says Prescription Drugs Are Killing Us And Hes Not The Only One

On 1/11/2016 at 10:55 AM, yetanotheraccutanevictim said:

For anyone curious about the methylation pathways (and MANY other pathways), this is the best chart I could find: (TY Ben Lynch!)
[Edited link out]

I printed this out fully with 20 sheets of paper and taped it all together and placed it on my wall. Helps me understand it more easily.
Also, if you've had the 23andme test, you may want to label or color code the SNPs on the chart as well.

Regarding the post above, for people that don't know, TMG is a type of betaine. Glycine betaine specifically. Choline can help create TMG which can create methyl-homocysteine (methionine). The other way to create methionine is through the MTR pathway (folate, zinc, functional MTHFR enzyme).
Methylation basics:
[Edited link out]

I really believe that this could be essential if not a cure. It considers the basics. Musical Girl is giving this a try. Unfortunately she has been having treatment with a professional without having the test first. She is only now being tested but still it will be good to see how she gets on and we wish her well.
Have you tried emailing Dr Lynch - he is heavily into research but I cannot find his email anywhere, facebook has no PM and I can't get past his team. Surly if he knew the suffering you guys were going through he maybe able to muster up some help - look into this.

Alternatively look up Matrix health, DR jess Armine and S Bean claim they have knowledge about accutane. They offer treatment and
will give a free 15 minute phone call.
Yetanotheraccutanevitim - can you give this your consideration - talk to these guys?

37 minutes ago, Dubya_B said:

-I tried 30g oil derived from high CBD strains over 3 months time. No benefits. In fact, I noticed was a bit worse off after the treatment than before starting it.

-tanedout tried oil. He is still here and looking for solutions.

-You may be getting Doneat16 and Crank92 confused. Crank92 stated that he seemed to have some initial benefit from vaping, but the oil didn't work well for him. He has been ignoring this site lately, not because he is better, but because he is more interested in getting an education than getting involved in the foolishness that goes on here. All things considered, he is doing okay, but still has problems.

-Doneat16 never posted in this thread. He was a post Accutane person who posted on propeciahelp years ago. I was the one who personally emailed him to ask how he was doing to be told he spontaneously recovered within the first year after developing side effects by doing "nothing in particular" as a treatment. He casually stated that he was having fun and doing quite a bit of partying, including drinking and smoking weed. The possibility that marijuana usage may have played a role in his recovery became contorted through the grapevine as the reason he recovered. He did not make a full recovery either. Only said he regained enough function to not have to worry about ED constantly.

-Not sure Maynerd had sexual side effects or depression. If you can find where he said he recovered from these, that would be great to know.

-A man who goes by Dave22k on many forums did a 14 day and 21 day water fast. They didn't do anything for him.

"Here in France we have a guy who took accutane in 2010 and have recovered only last year in 2015, he is claiming free of all symptoms at 95% , and he even feel better in certain point than before taking accutane. And he had really awfull side effects."

Could you share what his treatment method was?

I've followed around 20 different purported cures to the letter. I'm talking same brand, same dose, same duration, etc...
If we all had a dollar for every time we've heard:
" I tried "....." for X days/months, and noticed a miraculous change for the better after X days/months"

Not calling everyone claiming a recovery a liar. You are putting words into my mouth.
Moral is that people generally don't bother telling their failure stories after following one of these supposed cures.

If you used CBD oil it would be not the way to go . Rick Simpson oil is nearly full of THC, with Indica strains .
RSO have cured many disease, Crohn, cancer, leukemia, glaucom etc. There is only benefits you can have from this oil. But this is really different compare to CBD oil.
moreover recent study have showed that high dose vitamin A can lead to cell death or cell damages. When there is so many people claiming free of disease like cancer after having used cannabis oil ( by Rick Simpson ) it makes sense..

same question about tanedout, which oil did he use? How long?

Thanks for the information about Doneat16 and Crank92. I did not know about Crank
what side effects had Doneat16? Is he still ok recently?

I dont know about Dave, but I dont think doing a 14/22 days water fast would be enaugh to recover. There is a lot to do , not only cannabis oil is a cure. Not only water fast is a cure . Not only diet change is a cure. It is the addition of it

the man who recovered in France really did a lot of things to recover. He is claiming that what have been the more effective is : kidney and liver flush. He performed two kidney flush and 10/12 liver flush .
He followed at least one year a really strict vegan diet with a lot of juice of fresh vegetables / fruits.
'He followed the 3 months protocol of Dr Morse, used glandular , sun exposure, sports, sauna, coconut oil, Isotherapy ( no one talking about this in this thread, is it only well known in France ? ) red skate liver oil, homeopathy for vaccine like hepatit B ..

he also used many herbs like curcuma, desmodium, milk thistle, cascara saggrada etc.

He had taken accutane for six months at 40 mgs . What about you?

for the little story, i smoke a bit marijuanna in December, and the day after I got an erection for the first time since one year . I dont know if it is a coincidence or not but I dont think so.
I will try this oil next year. I cant before. I have to go in Colorado and be sure of the quality of the oil.

6 hours ago, ViceCaz said:

If you used CBD oil it would be not the way to go . Rick Simpson oil is nearly full of THC, with Indica strains .
RSO have cured many disease, Crohn, cancer, leukemia, glaucom etc. There is only benefits you can have from this oil. But this is really different compare to CBD oil.
moreover recent study have showed that high dose vitamin A can lead to cell death or cell damages. When there is so many people claiming free of disease like cancer after having used cannabis oil ( by Rick Simpson ) it makes sense..

same question about tanedout, which oil did he use? How long?

Thanks for the information about Doneat16 and Crank92. I did not know about Crank
what side effects had Doneat16? Is he still ok recently?

I dont know about Dave, but I dont think doing a 14/22 days water fast would be enaugh to recover. There is a lot to do , not only cannabis oil is a cure. Not only water fast is a cure . Not only diet change is a cure. It is the addition of it

the man who recovered in France really did a lot of things to recover. He is claiming that what have been the more effective is : kidney and liver flush. He performed two kidney flush and 10/12 liver flush .
He followed at least one year a really strict vegan diet with a lot of juice of fresh vegetables / fruits.
'He followed the 3 months protocol of Dr Morse, used glandular , sun exposure, sports, sauna, coconut oil, Isotherapy ( no one talking about this in this thread, is it only well known in France ? ) red skate liver oil, homeopathy for vaccine like hepatit B ..

he also used many herbs like curcuma, desmodium, milk thistle, cascara saggrada etc.

He had taken accutane for six months at 40 mgs . What about you?

for the little story, i smoke a bit marijuanna in December, and the day after I got an erection for the first time since one year . I dont know if it is a coincidence or not but I dont think so.
I will try this oil next year. I cant before. I have to go in Colorado and be sure of the quality of the oil.

Man, it's all pretty confusing, now we have all of this cannabis oil stuff coming in. I'm interested in the methylation side of things. Reading up on it is pretty confusing as well though. Having said that, reading the list of side effects attributed to deficiencies in the various, and seemingly un-testable, forms of B12, it lines up pretty well with all of the different things we see come up post accutane. Maybe/probably because it's a broad list in general. If the response time is true, I suppose you wouldn't have to test it for long to find out if the deficiency was there:

The major startup responses usually come from mb12. The first thing it does, in minutes to hours, is change how the nervous system works. It almost immediately starts restoring lost functionality. This is perceived as unpleasant mostly as all the many neurological (all aspects of neurological system, peripheral and central) symptoms, many of which people were unaware of as they crept up slowly over 20 years, become very apparant. Nerves that had become slowly pretty numb spring painfully back to life and muscles and things start reacting. At the same time cell division picks up as there is now enough mb12 for that to happen and all sorts of tissues start healing. My burning tongue, burning muscles and burning bladder stopped burning in the first 10 days.

I'm taking this from the http://howirecovered.com/active-b12-therapy-faq/ website. It's pretty interesting to read.

I've had a dry/burning tongue since day 2 of accutane. B12 deficiency was one of my first lines of enquiry.The statements on the website say that more or less any bout of stress can knock B12 levels out. I certainly experienced a lot of stress before starting accutane. I was having anxiety attacks left right and center due to my skin. Add that to the fact that I almost literally sh*t myself taking the first pill because I thought my head was going to tear off, or my intestines would turn inside out, and it would make sense if something like this were to have happened early on. Pile on top of that a 4 month accutane course which was nothing but highly stressful, and, if it's true that B12 is affected by stress, I'd be lucky to have any left. Someone pointed out recently that all those affected do share anxiety/stress in common. In Sheefa's story, he mentions being extremely anxious prior to starting accutane.

On the intro to methylation, that @hatetane recommended, the guy mentioned that bacterial overgrowth can interrupt the cycle as well, so it would tie in with my earlier thoughts on a bacterial overgrowth having some sort of say.

It's frustrating me how much my thoughts go all over the place on this, but maybe the action of the cannabis oil is to reduce stress and allow B12 levels to return to normal. Rather than the endless cycle of stress creating a circle of symptoms. Those it didn't work for, maybe their levels didn't return to normal during their trial of it. I'm trying to work out if there's any sense in any of this. Dubya_B and Tanedout, I don't suppose you paid any attention to B12 whilst on the oil? Not that the variants that methylation refers to can be tested for, but I don't suppose Adb12/mb12 was part of your supplement diet at the time?

Christ knows, I'm clutching at straws here, but this is the only place we can discuss these theories.

Does anyone know if accutane affects B12 in a more direct way?

Sorry if I'm critiquing the cannabis oil theory, it's interesting if some have found it to help, but like Dubya_B mentioned, there's a lot going on in this thread. And if I want to try something, I want to have a theory as to why it could work, and what it could actually be doing, rather than stabbing in the dark. If I do six months hoping cannabis oil is the answer, it's six months I won't get back and my eyes will likely be even redder for it.

I know the sites say that the different types of B12 can't be tested for. For the record, my latest blood tests state that my serum B12 is at 592 ng/L (NHS puts 180-900 as the normal range) so I'm bang on for that. Though I have yet to fully understand the differences for Adb12 and mb12 that methylation centres around.

A lot of fin guys talk about Bromelain - anyone tried it?

Also some of you have talked about excessive sweating and some not sweating at all. (Are you able to cry?)

It's my understanding that toxins are can be everywhere in the body.

So for the ones that don't sweat, what about taking hyaluronic acid and having some saunas.
Would have to consider loss of other vitamins but as some recoveries state saunas and exercise helped.

I read an aticle about accutane and hylauronic acid was mentioned as being possibly helpful in alleviating chronic dryness.
Can't find the articlebut will post it if i find it.

Any one have any theories on this?

1 hour ago, hatetane said:

A lot of fin guys talk about Bromelain - anyone tried it?

Also some of you have talked about excessive sweating and some not sweating at all. (Are you able to cry?)

It's my understanding that toxins are can be everywhere in the body.

So for the ones that don't sweat, what about taking hyaluronic acid and having some saunas.
Would have to consider loss of other vitamins but as some recoveries state saunas and exercise helped.

I read an aticle about accutane and hylauronic acid was mentioned as being possibly helpful in alleviating chronic dryness.
Can't find the articlebut will post it if i find it.

Any one have any theories on this?

Bill Sardi and a Accutane Victim Matthew Hamilton from South Africa wrote a book on Hyaluronic acid and Accutane. There is a certain Hyaluronic Acid that is reputable to use. I will have to look back and I will post the name of it. Some have had success and with Bromelain. With that said though it is by no means a cure! I am not sure if you can still purchase his online e-book though. You can try and google it. I bought it a long time ago

On 2/23/2016 at 3:58 AM, oli girl said:

Bill Sardi and a Accutane Victim Matthew Hamilton from South Africa wrote a book on Hyaluronic acid and Accutane. There is a certain Hyaluronic Acid that is reputable to use. I will have to look back and I will post the name of it. Some have had success and with Bromelain. With that said though it is by no means a cure! I am not sure if you can still purchase his online e-book though. You can try and google it. I bought it a long time ago

A lot of fin guys talk about Bromelain - anyone tried it?

Also some of you have talked about excessive sweating and some not sweating at all. (Are you able to cry?)

It's my understanding that toxins are can be everywhere in the body.

So for the ones that don't sweat, what about taking hyaluronic acid and having some saunas.
Would have to consider loss of other vitamins but as some recoveries state saunas and exercise helped.

I read an aticle about accutane and hylauronic acid was mentioned as being possibly helpful in alleviating chronic dryness.
Can't find the articlebut will post it if i find it.

Found it.

[Edited link out]

Any one have any theories on this?

Found the article - pretty horrific reading. Very long so you may findit hardto find paragraph relating
to Hyaluronic acid supplement. At a guess around sentence 15 or so

Thanks Oli girl.

Found the article but it is very long so you may have trouble finding the bit bit referencing supplementing Hyaluronic Aid.
It's a horrificread - not for the feint hearted.

At a guess I would say it is between 12 and 15 sentences down.

T

i think what alot of us are suffering is an indirect effect caused by accutane, maybe not a direct effect of the drug itself. I had no depression, eye sensitivity, hair loss, concentration problems, anxiety while on the drug. it wasnt till months off it, i started noticing diff things. and the drug would have been gone by this time. hell girls can get pregnant just days after stopping accutane i believe and not have problems.

4 minutes ago, hatetane said:

A lot of fin guys talk about Bromelain - anyone tried it?

this makes sense because i think some of our brain fog is due to over production of mucus and histimine

i aint saying much yet but im not ruling out a copper deficiency myself yet either, will get tested soon. alot of us have pale skin post tane, loss of hair color and quality, and histamine problems, copper can tie into alot of things including methylation. tryingtohelp is still pimping copper but he loves pimping his own research so we will see.I might be feeling good effects from copper, to soon to say for sure.also recent study that a copper defect may cause altogether nearsightedness .

2 hours ago, dakiramir said:

Man, it's all pretty confusing, now we have all of this cannabis oil stuff coming in. I'm interested in the methylation side of things. Reading up on it is pretty confusing as well though. Having said that, reading the list of side effects attributed to deficiencies in the various, and seemingly un-testable, forms of B12, it lines up pretty well with all of the different things we see come up post accutane. Maybe/probably because it's a broad list in general. If the response time is true, I suppose you wouldn't have to test it for long to find out if the deficiency was there:

The major startup responses usually come from mb12. The first thing it does, in minutes to hours, is change how the nervous system works. It almost immediately starts restoring lost functionality. This is perceived as unpleasant mostly as all the many neurological (all aspects of neurological system, peripheral and central) symptoms, many of which people were unaware of as they crept up slowly over 20 years, become very apparant. Nerves that had become slowly pretty numb spring painfully back to life and muscles and things start reacting. At the same time cell division picks up as there is now enough mb12 for that to happen and all sorts of tissues start healing. My burning tongue, burning muscles and burning bladder stopped burning in the first 10 days.

I'm taking this from the http://howirecovered.com/active-b12-therapy-faq/ website. It's pretty interesting to read.

I've had a dry/burning tongue since day 2 of accutane. B12 deficiency was one of my first lines of enquiry.The statements on the website say that more or less any bout of stress can knock B12 levels out. I certainly experienced a lot of stress before starting accutane. I was having anxiety attacks left right and center due to my skin. Add that to the fact that I almost literally sh*t myself taking the first pill because I thought my head was going to tear off, or my intestines would turn inside out, and it would make sense if something like this were to have happened early on. Pile on top of that a 4 month accutane course which was nothing but highly stressful, and, if it's true that B12 is affected by stress, I'd be lucky to have any left. Someone pointed out recently that all those affected do share anxiety/stress in common. In Sheefa's story, he mentions being extremely anxious prior to starting accutane.

On the intro to methylation, that @hatetane recommended, the guy mentioned that bacterial overgrowth can interrupt the cycle as well, so it would tie in with my earlier thoughts on a bacterial overgrowth having some sort of say.

It's frustrating me how much my thoughts go all over the place on this, but maybe the action of the cannabis oil is to reduce stress and allow B12 levels to return to normal. Rather than the endless cycle of stress creating a circle of symptoms. Those it didn't work for, maybe their levels didn't return to normal during their trial of it. I'm trying to work out if there's any sense in any of this. Dubya_B and Tanedout, I don't suppose you paid any attention to B12 whilst on the oil? Not that the variants that methylation refers to can be tested for, but I don't suppose Adb12/mb12 was part of your supplement diet at the time?

Christ knows, I'm clutching at straws here, but this is the only place we can discuss these theories.

Does anyone know if accutane affects B12 in a more direct way?

Sorry if I'm critiquing the cannabis oil theory, it's interesting if some have found it to help, but like Dubya_B mentioned, there's a lot going on in this thread. And if I want to try something, I want to have a theory as to why it could work, and what it could actually be doing, rather than stabbing in the dark. If I do six months hoping cannabis oil is the answer, it's six months I won't get back and my eyes will likely be even redder for it.

I know the sites say that the different types of B12 can't be tested for. For the record, my latest blood tests state that my serum B12 is at 592 ng/L (NHS puts 180-900 as the normal range) so I'm bang on for that. Though I have yet to fully understand the differences for Adb12 and mb12 that methylation centres around.

Thanks for your comments Dak. Methylation function test is the way to go, About 125 in UK Maybe a little cheaper US.
See my msg on this page - speak to expert Dr Jess Armine. You can get a free 15 min call with him. Can you give him a call by arrangement and let us all know what he say says.

for the record - I tried RSO (both sativa dominant and indica dominant) and if i ingested it (or took as suppoistories) it gave me anxiety/panic attacks+racing thoughts. Terrible. I tried also so called "tacking" method as shown here : here but my oil coudn;t adhere to the gums.''

Re comment about masturbation - I did 100 days of no fap/no sex. Erections were better but had no libido like always.

11 hours ago, hatetane said:

I really believe that this could be essential if not a cure. It considers the basics. Musical Girl is giving this a try. Unfortunately she has been having treatment with a professional without having the test first. She is only now being tested but still it will be good to see how she gets on and we wish her well.
Have you tried emailing Dr Lynch - he is heavily into research but I cannot find his email anywhere, facebook has no PM and I can't get past his team. Surly if he knew the suffering you guys were going through he maybe able to muster up some help - look into this.

Alternatively  look up  Matrix health, DR jess Armine and S Bean claim they have knowledge about accutane. They offer treatment and
will give a free 15 minute phone call. 
Yetanotheraccutanevitim - can you give this your consideration - talk to these guys?

7

Yes, I communicate with Dr. Jess Armine. I'm following his advice. He believes I have been floxed by the drug.
A "floxie" is someone who suffered intense mitochondrial damage from fluoroquinolones.
I have genetic polymorphism in my mitochondrial genes for complex 1. Supposedly, every single person who has been floxed has had these same SNPs. Attached are the Floxie genes I had.

I have nothing to report yet but I am on a boat load of stuff that might help me. Also, we believe I have Lyme disease, parasites, and oxalate toxicity. I am building my body up for a few months before I attack the microbes. There's nothing I'm doing that's really accutane damage specific. It's mainly a wide spectrum of stuff that enhances cellular function: colostrum, phosphatidyl choline, liposomal vit C, etc.

I'm also probably going to run through Dietrich Klinghardt's detoxification protocol:
Look up on YouTube his "2 hour presentation on products."
I am typing up a summary of his protocol right now and will share it soon.

Lastly, I should add that I am taking Boluoke (lumbrokinase) which has been incredibly helpful to me. It greatly thins my blood within about 15 minutes of taking it on an empty stomach. It's not as good as heparin but it's the best natural enzyme.