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On 2/17/2016 at 6:07 AM, yetanotheraccutanevictim said:I'd rather keep the conversation about MMS public as it may help others.
What about the recommended online stores as recommended by Jim Humble?
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[removed]For those interested in more information:
Great documentary:
[removed]Video overview with Red Cross video:
[Edited link out]@macleod@oli girl Oli girl, sorry to be saying the opposite as you but my intracellular blood tests via spectracell showed retinol deficiency post-accutane treatment.
And macleod, I cured my night vision by eating liver weekly. About a pound a week. However, be aware that my health is not good at the moment. Though, I never got worse from what I noticed. I would HIGHLY advise against taking any supplemental vit A or carotene. It MUST come from healthy animals so your body can recognize it. This is the safest way.
@guitarman01 I want people to look at my parasites to become aware of them. I think I got them from having lowered immunity due to taking accutane. The parasites are encased in oxalates. It's possible that they are producing the oxalates and that is why I am LOADED with them. My body hurts everywhere. Btw, oxalates are the stuff that makes up kidney stones. Yes, I have them throughout my entire body. It's like little shards of glass deposited in my soft tissues, joints, muscles, tendons, skin, fascia, etc..
----
How common is thick blood and/or sluggish blood flow in accutane victims? Is this something we all struggle with or is it more related to my other potential root causes (like Lyme disease). I'd be curious to know who here also struggles with hypercoagulation. I just ordered lumbrokinase (Boluoke) to thin my blood.
I very familiar with who Jim Humble is...in fact some have personally spoken to him. I am not so sure his MMS is pure. I am not posting the contact info on the expert of oxidation/ MMS etc. on the boards.
As for Vitamin A I know many of us not saying all have issues, kind of like the pathways i.e. the way Vit A is processed is damaged etc. I just saying to tread lightly. I know many way back in the 80's who had joint pain etc. took pure cod liver oil and eat high retinol foods thinking it would help and well they felt good at first only for it to backfire.
On 2/17/2016 at 7:01 AM, guitarman01 said:i just wonder if our decreased night vision/blurry day vision light sensitivity is more so due to chronic inflammation and dryness then vitamin a deficiency.
but idk i think i did notice a improvement in night vision while taking vitamin a , but also increased light sensitivity during the daytime? maybe we need just enough but not too much on a daily basis? maybe because we can no longer properly store vitamin a, but if we take too much our bodies get flooded pretty quickly
but idk i think i did notice a improvement in night vision while taking vitamin a , but also increased light sensitivity during the daytime? maybe we need just enough but not too much on a daily basis? maybe because we can no longer properly store vitamin a, but if we take too much our bodies get flooded pretty quickly
if thought of this way it would be like a b vitamin where your just aiming to get 100% daily, nothing more nothing less.
Accutane does cause body wide inflammation in most of us! Lovely isn't it 
im gona get a script for singulair tomorrow it blocks leukotrienesa certain kind of allergic inflammation and see if this have any good effects. my plan is to treat my allergies for a bit with nasonex and singulair. if that dont work i have a course of antibiotics laying around the house, il take those for 7 to 10 days and then start and stay on vsl for awhile. if that dont work, well fuck...
For those with eye issues!
Observed wide ocular effects, short and also suggested long term degenerative effects
Some of the Accutane induced ocular side affects are not reversible when the drug is stopped [10 and more]. Hoffman la Roche itself sees the following associations related to vision in human subjects exposed to (Ro)accutane: corneal opacities, decreased night vision which may persist, cataracts, color vision disorder, conjunctivitis, dry eyes, eyelid inflammation, keratitis, optic neuritis, photophobia and visual disturbances [0]. Non published data suggest (Ro)accutane induced severe tunnelvision in a number of patients. The mechanism for this event is unknown. Lasting increased UV-sensitivity has been observed [10 and more].
Picture 1. Lissamine green corneal staining of a dry eye patient taking isotretinoin. Photo courtesy of Eric Donnenfeld, M.D.
Picture 2. Fluorescein staining of the central cornea in a patient taking isotretinoin. Photo courtesy of Eric Donnenfeld, M.D.
Isotretinoin is currently used in human subjects for severe recalcitrant nodular acne and has a variety of by independent research well known associated ocular side effects [1 and more]. Observations demonstrate that some of the Accutane induced ocular side affects are not reversible when the drug is stopped [10 and more]. Accumulating evidence is also pointing out that eye-related side-effects may worsen with time after a (Ro)accutane exposure in human subjects.
Subjects exposed to these drugs often show side effects resembling the symptoms of hypovitaminosis A, namely, among other things night blindness and decreased plasma retinol levels [5].
Possible oculomotor deficit developing with time after (Ro)accutane exposure in subjects
Thyroid function is found to be altered in human subjects exposed to retinoic acid, and significant fall in plasma concentrations of thyroxine and triiodthyronine have been found in human subjects exposed to the toxin [6]. This fall is likely explained by a found significant inhibition of thyroid receptor expression in various cell lines in doses related to what could be expected in acne subjects [7]. The long term effects of a hypothyroid condition on vision are not fully evaluated. Thyroid function is suggested to be of importance for oculomotor function and is associtated with ophthalmopathy (ocular-motor deficit) [8, 9].
In adult cats, the Trk receptor isoforms are suggested to be of importance for oculomotor function and exert an influence on the normal operation of the oculomotor circuitry. A similiar function is likely to be present in human. TrkA, TrkB, and TrkC immunopositive cells were found in similar percentages in the oculomotor and in the trochlear nuclei. In the abducens nucleus, however, a significantly higher percentage of cells expressed TrkB than the other two receptors, among both motoneurons (81.8%) and internuclear neurons (88.4%) [11]. Trk receptor isoform gene-expression is suggested to be modulated by among other things thyroxin [12 and 13].
1,25 dihydroxyvitamin D metabolites were found to be significantly lower in human subjects exposed to (Ro)accutane after exposure, implicating a clinical vitamin D deficiency [14 and more]. In the human eye the vitamin D receptor (VDR) was found to be expressed in several areas. Human retinal photoreceptors express vitamin D receptor (VDR), plasma membrane calcium pump and calcium-binding protein epitopes were detected in the outer nuclear layer. VDR epitopes were also seen in lens epithelium. Some immunostaining for VDR, PMCA and calbindin-D28k also was present in the endothelium and in the basal epithelium of the cornea. All three proteins were detected in some cells of the ganglion cell layer, the inner nuclear layer, and the retinal pigment epithelium [16]. Except for inducing the VDR receptor, vitamin D is found to induce Trk receptor isotypes in various tissue [15]. This may also be valid for Trk receptors that are related to the eye. The long-term effects of a clinically significant vitamin D-deficiency on the retinal photoreceptors, the eye-lens, and eye function are unknown.
Little is known about possible long-term ocular side-effects, or possible additional ocular effects appearing with time after exposure. There are no studies showing how photreceptor cell maintenance and signaling is affected long term, no studies on how oculo-motor capacity is affected long term, and no studies of how the crystal lens structure is affected long-term in subjects exposed to retinoic acid.
Degeneration of crystal lens structure
Vitamin A has been found to be inducing regeneration in the lens of adult mammals [17]. A state with vitamin A insufficiency, both circulating and lack of adequate metabolism may therefore affect the lens negative long term.
Night blindness
Isotretinoin can cause nyctalopia (night blindness) [2, 5 and more]. Even a single dose of isotretinoin slowed the recovery of rod signaling after exposure to an intense bleaching light, and that rhodopsin regeneration was markedly slowed. When only a single dose was given, rod function recovered to normal within several days. Rods and cones both showed slow recovery from bleach after isotretinoin in rats and in mice [3].
Retinitis pigmentosa (RP) is a heterogeneous group of retinal dystrophies characterized by photoreceptor cell degeneration. RP causes night blindness, a gradual loss of peripheral visual fields, and eventual loss of central vision [4].
Dry eye syndrome
Persistent dry eye syndrome in human subjects has been observed [10 and more].
49 minutes ago, guitarman01 said:im gona get a script for singulair tomorrow it blocks leukotrienesa certain kind of allergic inflammation and see if this have any good effects. my plan is to treat my allergies for a bit with nasonex and singulair. if that dont work i have a course of antibiotics laying around the house, il take those for 7 to 10 days and then start and stay on vsl for awhile. if that dont work, well fuck...
Did you ever look up Dr. Mercola i.e. allergies my friend? People came from all over as that is what he initially treated people for with great success and no rx drugs. Have you tried diet change, taking digestive enzymes or a good Omega supplement? Though I caution Omega also as I have posted on here before they have a close relationship with Vit A.
Have you been to a naturopathic doc? I know Mercola closed his office in Barrington in 2014 and has been speaking etc.
On 2/16/2016 at 8:19 AM, yetanotheraccutanevictim said:Anyone here want to take a look at some parasites I've been getting out since doing enemas more frequently?
Any opinions?GRAPHIC:
[Edited links outAccording to some experts, these are egg sacs that haven't fully developed into mature worms.
I'm going to be attacking them in the next few months with MMS, argyntian 23, biocidin, and liposomal artemesinin.
I'm catching up with things here. As I said, I don't know what has been discussed, but has diatomaceous earth come up here at all? Might be all hoodoo, but a lot of people say that it has helped them clear parasites. Apparently it's used as a de-worming agent in animals but comes in a human food grade also. Was thinking of giving it a try but it'd be good to hear if it's been tested here and if it's all bull?
9 hours ago, guitarman01 said:im gona get a script for singulair tomorrow it blocks leukotrienesa certain kind of allergic inflammation and see if this have any good effects. my plan is to treat my allergies for a bit with nasonex and singulair. if that dont work i have a course of antibiotics laying around the house, il take those for 7 to 10 days and then start and stay on vsl for awhile. if that dont work, well fuck...
The antibiotic/vsl is my strongest plan of attack also. I'm hoping that as I've only been suffering a few months, I might be able to intervene. I saw an eye specialist yesterday. It's common for the oil glands (meibomian glands) to be devastated by accutane. The specialist believes I may have quit the course just in time as he could only see one gland that was missing in my lower lid (we have about 30 there), I was seriously relieved. He reckons there may have been some significant inflammation there a while back that would have caused the drop out. However, quite a lot of glands were clogged. I was worried that they weren't producing oil at all, but he expressed them and clear oil came out of most, I just have to hope that they are producing enough. The ones that were clogged he heated and squeezed with a tweezer like instrument. I'd seen videos but never believed that mine would be the same, but he showed me a highly magnified video of the expression and a waxy plug was squeezed out, almost like squeezing toothpaste out of a tube. There were only 6 or 7 glands like it. I believe that accutane closed the oil glands to the point were the oils became trapped and dried to create the plug. Honestly though, if you'd have seen it, you'd know that there was no way you'd get it out without some sort of intervention. He had to squeeze my lids pretty hard and it was painful, but I've read that if glands are inactive for too long, they can atrophy altogether, so I was glad to see the stuff come out.
The reason I'm saying this is, as I mentioned a few posts back, the first line of attack for meibomian gland dysfunction (which in my case, was caused by accutane) is a course of antibiotics. He's prescribed a 3 month course in the hope that it will get things running again (along with some antibiotic and some light steroid fml eye drops).
Now, this caused a dilemma for me as I'm worried that if my gut balance is in anyway normalising (I've had a small amount of oil return to my face....very small, and also, despite me suspecting that my dry eyes are caused by mucous deficiency (when I blink it feels like I'm having a dry finger rubbed over my eye) my genital mucus seems to have returned, marginally. This could just be the accutane losing it's hold, as I stopped the course halfway. I am still however, waking up with a burning joint pain in various joints. It moves around but this morning it was in my shoulders, wrists, fingers, knees and ankles. I'm thinking the same, maybe the long term antibiotic could help quell any overgrowth (I've seen doxycycline being prescribed for small intestine bacterial overgrowth), so maybe, in treating my eyes, I'll be able to quell any negative bacteria to the point where high doses of pro-biotics will be able to culture in there. Assuming that's a problem and if it's contributing.
I'm sure you've read already, but studies show that, even though it sounds counter productive, patients who take pro-biotics whilsttaking their course of antibiotics, had a much lower incident of gastric issues following their course than those who took probiotics only after their course was over. Naturally both groups had less problems than those who took no probiotics. Interestingly, the group who took the probiotics during their course had a zero incidence rate of diarrhea caused by C.Diff specifically, whilst 17% of the placebo group got it. That's pretty interesting and suggests it's worth taking some form of decent probiotic whist taking the antibiotics. If it stops C.diff, who knows what else it stops that doesn't have such an obvious end result.
I'm kind of hoping that I have bad flora, which is causing the joint pain by a few actions. 1: releasing various by-products which are harmful and 2: by inhibiting good bacteria from synthesizing vitamins and minerals properly from my diet. If those are then combined with any lingering effects that are specifically from a high dose of synthetic vitamin A (dry skin/additional dry eyes/dry hair/joint issues) then both together could potentially explain everything. I might even do some sort of candida diet whilst on the antibiotics, just to see if I can replace any yeast overgrowth with beneficial bacteria also.
Like I said to @yetanotheraccutanevictim , I'd love it if diatomaceous earth could kill off any paracites in the gut, but I can't say either way as I have no personal experience and the research is sketchy. If I decide to try it, I'll definitely keep an eye on what comes out....though I doubt it'll be as hands-on as yaav's (hope they don't mind me calling them that).
Dak
12 hours ago, guitarman01 said:im gona get a script for singulair tomorrow it blocks leukotrienesa certain kind of allergic inflammation and see if this have any good effects. my plan is to treat my allergies for a bit with nasonex and singulair. if that dont work i have a course of antibiotics laying around the house, il take those for 7 to 10 days and then start and stay on vsl for awhile. if that dont work, well fuck...
I wouldn't take just a random antibiotic and some probiotics just on a whim! There are loads of different types and antibiotics, and you need the right combinations to tackle whatever gut issues you may or may not have.
Just taking that left over antibiotic and some vsl3 will likely just result in you causing even more damage to your gut flora, and wasting your money on vsl 3 which is quite expensive.
If you look at the propecia/fin guys who've gone down this route it looks like pretty much everyone who's been tested has had come back with issues with gut flora/parasites/pathogens, but the results are not the same, and the correct treatment for each thing is different.
You need to get tested first, then take appropriate action depending on what is found!
@dakiramirDiatomaceous earth can be dangerous as some isn't ground to the right size and it can be absorbed into the blood stream to be carried to the kidneys. Some report urinating blood... Think of DE like little shards of glass; effective against parasites? Yes. Effective at cutting up human tissues? Yes.I would not use it myself. However, if you do use it, it definitely kills all kinds of pathogens in the gut by literally busting their outer membranes.
Sorry to ask again but I'm extremely curious:
Does anyone here have sluggish blood flow and/or thick blood due to accutane alone? Is this a common issue or am I dealing with something else? Please private message me if you do not have sluggish blood flow but still suffer from many other side effects due to accutane. I'd appreciate it very much.
1 hour ago, yetanotheraccutanevictim said:@dakiramirDiatomaceous earth can be dangerous as some isn't ground to the right size and it can be absorbed into the blood stream to be carried to the kidneys. Some report urinating blood... Think of DE like little shards of glass; effective against parasites? Yes. Effective at cutting up human tissues? Yes.I would not use it myself. However, if you do use it, it definitely kills all kinds of pathogens in the gut by literally busting their outer membranes.Sorry to ask again but I'm extremely curious:
Does anyone here have sluggish blood flow and/or thick blood due to accutane alone? Is this a common issue or am I dealing with something else? Please private message me if you do not have sluggish blood flow but still suffer from many other side effects due to accutane. I'd appreciate it very much.
I know like 90% of the time when I go for a blood test my blood comes out super slow and it is thick. I rarely ever went for blood test before that so I can't say if Ive always been like this.
19 hours ago, tanedout said:I wouldn't take just a random antibiotic and some probiotics just on a whim! There are loads of different types and antibiotics, and you need the right combinations to tackle whatever gut issues you may or may not have.Just taking that left over antibiotic and some vsl3 will likely just result in you causing even more damage to your gut flora, and wasting your money on vsl 3 which is quite expensive.
If you look at the propecia/fin guys who've gone down this route it looks like pretty much everyone who's been tested has had come back with issues with gut flora/parasites/pathogens, but the results are not the same, and the correct treatment for each thing is different.
You need to get tested first, then take appropriate action depending on what is found!
Yeah, sorry, I should have clarified, as I said, my antibiotic course has been prescribed due to severe dry eyes. It's our old friend doxycycline for three months. I looked into it and Doxy is often prescribed for SIBO (small intestinalbacterial overgrowth), although a lot of people claim that their symptoms return within 6 months following their course. That's why I feel that, if I do take it for my eyes, it would be worth at least attempting to hit up some high strength, high variety pro-biotics in the hope that I can hit two areas of concern at once. I'm hoping that the reason for high rates of sibo return within 6 months is down to not culturing the areas of the intestine that have been cleared of overgrowth, with good guys, allowing the bad guys to just return.
7 hours ago, yetanotheraccutanevictim said:@dakiramirDiatomaceous earth can be dangerous as some isn't ground to the right size and it can be absorbed into the blood stream to be carried to the kidneys. Some report urinating blood... Think of DE like little shards of glass; effective against parasites? Yes. Effective at cutting up human tissues? Yes.I would not use it myself. However, if you do use it, it definitely kills all kinds of pathogens in the gut by literally busting their outer membranes.Sorry to ask again but I'm extremely curious:
Does anyone here have sluggish blood flow and/or thick blood due to accutane alone? Is this a common issue or am I dealing with something else? Please private message me if you do not have sluggish blood flow but still suffer from many other side effects due to accutane. I'd appreciate it very much.
On the diatomaceous earth front , yeah, I've been looking for more information on it. A lot of people take it with water (I have to stress that they are taking the food grade stuff, not the stuff they put in pool filters) and swear by it. They also give the food grade stuff to animals to clear worms. I'm not sure that it would cut up human tissues. Maybe it could dehydrate and cause haemorrhoids or similar. It's probably more likely to be useless. But there are some people out there who swear it cured various ailments, various persistent joint pains etc. if I was to look into that, if, and that is a really big if, if it can kill parasites/worms in the gut, maybe people are experiencing better nutrient synthesis and that's how it helps. However, I don't want to talk about it too much because there is absolutely no scientific evidence on it, just a lot of people putting anecdotal evidence online. It's hard to get any hard facts about it because it can't be patented, and thus no drug companies carry out any studies on it. Sucks really. Again, it's not something I'd advise, just wondering if anyone has any first hand experience with it. I saw the stuff that yaav took photos of and was wondering if there was anything that could clear that sort of stuff, without killing any of the useful stuff. Again, this is all working on the hypothesis that some of us are dealing with some sort of bacterial/parasitic overgrowth which is contributing to a lack of nutrient recovery after high doses of synthetic vitamin a knocked everything out of whack.
To answer your second question, it's difficult for me to tell. I was acutely aware of my body before accutane, so I know what my baseline was. What I can say is that I get that speckled effect in various areas of my body wayyy more regularly now. Primarily on my hands, which I barely ever got a year ago. Now it seems to happen 90% of the time. I'm primarily putting it down to dryness and being less active of late, but it is a concern. It's that speckled affect that everyone gets from time to time that most would suspect was poor circulation. I also have freezing cold extremities. My GF used to always comment on my warm hands.....now it's "brrr, cold hands", every time.
Has sluggish blood flow been diagnosed?
5 hours ago, eph95 said:accutane damage, sexual dysfunction and depression for some people are permanent. It is dependant on ones genetics and biochemistry. If your side effects don't go away within 6 months to a year after discontinuing accutane you will have them for the rest of your life. The drug is so powerful you can't reverse the damage, only manage it.
no
8 hours ago, eph95 said:accutane damage, sexual dysfunction and depression for some people are permanent. It is dependant on ones genetics and biochemistry. If your side effects don't go away within 6 months to a year after discontinuing accutane you will have them for the rest of your life. The drug is so powerful you can't reverse the damage, only manage it.
Again, new studies are showing all the time that people can recover from all sorts of illnesses. I mentioned previously that some people have put lupus and similar autoimmune diseases into remission through diet alone. Permanent remission sounds like a cure to me. Imagine if these people decided to not try anything and lived their life in horrible pain. Just because someone told them it was permanent and they'd have to live with it. Just because whatever damage done by accutane is a niche subject, and ways to recover from it have not been studied in the medical world as a result, doesn't mean that anyone suffering should just give in. People are finding things that help. And some have recovered. It'd suck if in 30 years they ran a diagnostic test and it turned out that accutane had just given you an iron deficiency, and you wasted your life suffering because you didn't try to help yourself. I read about a woman who was diagnosed with arthritis in her hip and that she'd struggle to walk for the rest of her life. She researched it, worked hard and found out her problems were being caused by a muscle imbalance. She went on to return to running and doing all the things she loved. I'm sorry to point it out, but no one's helping those damaged because damage is rare. The science is up to us. Science doesn't always happen in a lab. We're the scientists on this one.
hey guys,
I am thinking of pursuing some action following Accutane. I feel like it hurt my hair, I look older, and my lips are dry. I also get this weird thing by my lip where it is extra dry. I have terrible farts that smell like death. My bowel movements again smell like death. I get terrible spurts of fatigue. Times, I feel like I am absolutely exhausted. I had points where I pass out but, I have no clue how or why? I am talking about where I just rest my eyes on my bed and then, I pass out. Its kind of scary because the fatigue only happened after I had gotten Accutane. My lips would peel. My face was red.
Now, I am trying to repair the damage of Accutane. I just don't know where to go. I saw a naturopathic doctor. It was expensive. My dermatologist reminds me of some spiritual shaman. The man is incredible. He reminded me that people visit him usually not for acne but for testing tumors. How about that for perspective?
Something I notice common in everyone here with acne is that, we all seem to have anxiety. I am trying to calm myself and still repair every bit of damage I did.
18 minutes ago, mrjarjarbinks77 said:hey guys,
I am thinking of pursuing some action following Accutane. I feel like it hurt my hair, I look older, and my lips are dry. I also get this weird thing by my lip where it is extra dry. I have terrible farts that smell like death. My bowel movements again smell like death. I get terrible spurts of fatigue. Times, I feel like I am absolutely exhausted. I had points where I pass out but, I have no clue how or why? I am talking about where I just rest my eyes on my bed and then, I pass out. Its kind of scary because the fatigue only happened after I had gotten Accutane. My lips would peel. My face was red.
Now, I am trying to repair the damage of Accutane. I just don't know where to go. I saw a naturopathic doctor. It was expensive. My dermatologist reminds me of some spiritual shaman. The man is incredible. He reminded me that people visit him usually not for acne but for testing tumors. How about that for perspective?
Something I notice common in everyone here with acne is that, we all seem to have anxiety. I am trying to calm myself and still repair every bit of damage I did.
Have you had anytesting or taken anything?
On 18 fevrier 2016 at 4:01 PM, eph95 said:accutane damage, sexual dysfunction and depression for some people are permanent. It is dependant on ones genetics and biochemistry. If your side effects don't go away within 6 months to a year after discontinuing accutane you will have them for the rest of your life. The drug is so powerful you can't reverse the damage, only manage it.
S H U T THE FUCK UP. What the fuck are you talking about ?
SOME HAVE RECOVERED. Do you understand what it means? It means that you are W-R-O-N-G , what is your post for ? In more to be pointless and wrong it may also kill the hope people are having to recover.
Once again some have recovered through;
Raw vegan diet
sun exposure / exercice
kidney / liver flush
isotherapy
glandular
cannabis oil ( rick simpson Oil )
Everyone know what they have to do
From now never post again such an hopeless and full of shit post like that.
Hey Guys, just jumping on to give an update about my methylation protocol.
I'm one month in and still feeling pretty great. I went from 40% to 80%. I definitely got sicker first and wanted to stop and then I pushed through. Then BAM, instantly feeling better after a week. It was like a light switch on that 6th or 7th day. My mind was clear, could think logically, etc. My joints are more fluid (i can feel them sliding and popping, but in a lubricated good way, similar to when I first started high dose iodine, but then the iodine began to plateau), my nerves feel more protected (less of that raw stinging feeling when you start moving after inactivity or when you come in from the cold), and less myalgias. BIGGEST news is I am sleeping without having to knock myself out with good old mary jane. Deep, restful sleep which I have not had in several, will say 5 years and I am 11 years post-tane. I have days where my body will go back to feeling pain, but the majority of days are pain free (minimal pain). So in summary, less stiffness, less muscle and joint pain, better sleep. I havn't noticed toooo much with dry skin, however, moisture in my mouth and eyes has been better. I had severe sjogrens's type symptoms, specifically eyes and mouth a year or so back, but since I went HAM on the high dose iodine and keep viruses and bacteria at bay with certain supplements, it's really a non-issue. The biggest one is the dry skin. I guess that's a big improvement if my internal moisture-producing mechanisms are working. Come on skin! work with me. Oh almost forgot, more energy. This piece ebbs and flows still but overall, have more energy during the day. Then my body actually gets tired at night instead of being wired. My body is definitely going through some changes.
I keep taking it day by day. I still have bouts of depression and SI, but they are much easier to put to rest when you aren't in constant pain all the time. Sleep is my favorite thing to do now. I'll take that for what it is.
Also, monolaurin supplement has been helping keep bacteria at bay. I also take mad raw garlic to keep everything else at bay including candida babies. They ain't so cute. But I like to picture them as little cute creatures so I don't feel like a walking petri dish, which I am 
(For the record, I am a veteran member, but I needed to make a new profile since there was someone on here who was trolling people and making people feel more depressed.)
Wishing you all the best of health and new discoveries on this journey with you all!
1 hour ago, MovingOnMusicGal said:Hey Guys, just jumping on to give an update about my methylation protocol.
I'm one month in and still feeling pretty great. I went from 40% to 80%. I definitely got sicker first and wanted to stop and then I pushed through. Then BAM, instantly feeling better after a week. It was like a light switch on that 6th or 7th day. My mind was clear, could think logically, etc. My joints are more fluid (i can feel them sliding and popping, but in a lubricated good way, similar to when I first started high dose iodine, but then the iodine began to plateau), my nerves feel more protected (less of that raw stinging feeling when you start moving after inactivity or when you come in from the cold), and less myalgias. BIGGEST news is I am sleeping without having to knock myself out with good old mary jane. Deep, restful sleep which I have not had in several, will say 5 years and I am 11 years post-tane. I have days where my body will go back to feeling pain, but the majority of days are pain free (minimal pain). So in summary, less stiffness, less muscle and joint pain, better sleep. I havn't noticed toooo much with dry skin, however, moisture in my mouth and eyes has been better. I had severe sjogrens's type symptoms, specifically eyes and mouth a year or so back, but since I went HAM on the high dose iodine and keep viruses and bacteria at bay with certain supplements, it's really a non-issue. The biggest one is the dry skin. I guess that's a big improvement if my internal moisture-producing mechanisms are working. Come on skin! work with me. Oh almost forgot, more energy. This piece ebbs and flows still but overall, have more energy during the day. Then my body actually gets tired at night instead of being wired. My body is definitely going through some changes.
I keep taking it day by day. I still have bouts of depression and SI, but they are much easier to put to rest when you aren't in constant pain all the time. Sleep is my favorite thing to do now. I'll take that for what it is.
Also, monolaurin supplement has been helping keep bacteria at bay. I also take mad raw garlic to keep everything else at bay including candida babies. They ain't so cute. But I like to picture them as little cute creatures so I don't feel like a walking petri dish, which I am
(For the record, I am a veteran member, but I needed to make a new profile since there was someone on here who was trolling people and making people feel more depressed.)
Wishing you all the best of health and new discoveries on this journey with you all!
Sorry, what is it that you are taking to get this recovery??
dont mind if you recommend brands too!!
thanks
On 2/19/2016 at 9:29 AM, macleod said:Check this out guys, maybe a way to communicate and cut through the red tape of asshat doctors and get to these recent college grad scientists. It's currently Live.
[Edited link out]
Interesting - why don't you ask that Greg guy to help us out. He knows his stuff and he seems like a decent guy.
We never going to find a cure by ourselves - you must know that by now. We need to find a compassionate scientist to help us.
Let's reach out to him.
Good luck
On 2/20/2016 at 8:13 AM, TrueJustice said:Sorry, what is it that you are taking to get this recovery??
dont mind if you recommend brands too!!
thanks
Yeah, is this proper methylation treatment following 23andme test with a doctor who knows what they are doing or just your own protocol.
Anyone who doesn't know what I am talking about look up DR Ben Lynch.
It has been dicussed on this forum.
Anyone properly had a real stab at this? It does seem to make sense.
2 hours ago, TrueJustice said:Sorry, what is it that you are taking to get this recovery??dont mind if you recommend brands too!!
thanks
I'm working with my alternative doctor, and she has me on:
200mg SamE two times per day (Jarrow)
5mg Methyl B12 once a day (Protocol for life balance) *started at 2,500mg and increased once I felt better
5mg Methylfolate (MTHF) (Metabolic Maintenance)
There are confusing sites that discuss overmethylation, but from my research it's rare. But either way, use caution and maybe get a doctor's opinion if you can. My doctor is trying this after a long course of trying virtually everything else. She actually brought it up, not me. Thank god for helpful doctors in Massachusetts. 
I'm recovering in many ways, but I don't have all the answers. Don't want to get everyone's hopes up, but figured it may be helpful to some to look into. I think what I am doing is part of a bigger process, but it's a crucial part of the process.
1 hour ago, hatetane said:Interesting - why don't you ask that Greg guy to help us out. He knows his stuff and he seems like a decent guy.
We never going to find a cure by ourselves - you must know that by now. We need to find a compassionate scientist to help us.
Let's reach out to him.Good luck Yeah, is this proper methylation treatment following 23andme test with a doctor who knows what they are doing or just your own protocol.
Anyone who doesn't know what I am talking about look up DR Ben Lynch.
It has been dicussed on this forum.Anyone properly had a real stab at this? It does seem to make sense.
Thanks - I'll look into getting the 23andme test done.
I've already reported Vice Caz up there. No idea where he's come from. Looks like another account made just to throw this thread off. Would be cool if others could report him too.
8 hours ago, MovingOnMusicGal said:(For the record, I am a veteran member, but I needed to make a new profile since there was someone on here who was trolling people and making peoplefeel more depressed.)
MusicGal, what do you mean by this? Could you elaborate? There was someone trolling you in PM?
3 hours ago, macleod said:I've already reported Vice Caz up there. No idea where he's come from. Looks like another account made just to throw this thread off. Would be cool if others could report him too.
MusicGal, what do you mean by this? Could you elaborate? There was someone trolling you in PM?
Eph95 is a really nice guy. Understandably depressed and feeling hopeless - we all been there.
Let's all be understanding - this isn't easy for anyone.
7 hours ago, TrueJustice said:Thanks - I'll look into getting the 23andme test done.
Good, I think methylation is quite popular in Aus. Moving on Musical girl does seem to be taking the right stuff for methylation but I not sure if she got tested first. I do think it is important to be tested properly. I am not so interested in Methylation genetics - more methylation function and I believe these are two different tests.
We in the Uk don't have anyone to talk to about this and the labs that test don't advise - they just do the tests you ask them to do.
Methylation function test should I believe look at copper, lead, mercury toxicity etc as well as mineral deficiency etc.
As I say we need clarification on this.
Methlation for genetics will show if you are predisposed to health issues etc and this is an inherited state.
What we need to find out is - did accutane have an effect on the methylation cycle - throw everything out of sync.
Amongst many other things I think it did. The function test should highlight if anyone suffering from pyrrole disease with might account for other side effects of accutane being suffered.
Dr Emerson(AUS) suggests PFS suffers being tested for pyrrole. You may see a podcast with him which I saw.
Also anyone have any knowledge of glutathione. Apparently it is really essential. What I heard is that if your are deficient, when you exercise
glutathione gets depleted further - is this why many accutane victims suffer intolerance to exercise.
I am just investigating all this so any ideas welcome.