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Repairing the long-term damage from Accutane

 
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299
(@macleod)

Posted : 04/30/2015 1:45 pm

Hey man, if it's any consolation, I had a family member who had their gallbladder removed, and it is quite a routine thing nowadays. This is just another hurdle of many that you will overcome. I think there are ways you can speed up recovery by 1 or 2% by not using the pain meds regularly and maybe hyperbaric oxygen therapy after the surgery. You've already got nutrition and supplements figured out and in your favor. As for the future, yeah, we're in the same boat. :dan:

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(@ultrab)

Posted : 05/03/2015 10:37 pm

Heya,

 

Do any of you guys still have flaking facial skin years later?

 

Cheers.

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MemberMember
18
(@accutainted)

Posted : 05/03/2015 11:21 pm

Heya,

Do any of you guys still have flaking facial skin years later?

Cheers.

Yes 10 years later I still have this and I feel sunburnt all the time. My skin is constantly dry, tight and uncomfortable and can't tan at all. Sucks a massive scrotum

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(@ultrab)

Posted : 05/03/2015 11:31 pm

"Yes 10 years later I still have this and I feel sunburnt all the time. My skin is constantly dry, tight and uncomfortable and can't tan at all. Sucks a massive scrotum"

 

Ah man.......Exactly how my skins feels(only on my face though).....

Most people think I AM sunburnt all the time!

 

The only time it feels OK is when I am unstressed(i.e doing nothing)......as soon as I enter the fray of everyday normal life, my face flushes gets dry etc

 

I just thought I'd see if anyone else had the flaking....as I thought maybe it might be seb derm.

Never been back to a derm to confirm after my Accutane experience (15yrs ago).....just don't think taking more medications is the answer to our problems.

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MemberMember
180
(@roland1968)

Posted : 05/04/2015 12:33 am

Heya,

 

Do any of you guys still have flaking facial skin years later?

 

Cheers.

 

Yes - 14 years after accutane.

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MemberMember
0
(@ultrab)

Posted : 05/04/2015 12:52 am

 

Heya,

 

Do any of you guys still have flaking facial skin years later?

 

Cheers.

 

Yes - 14 years after accutane.

 

Do any of you guys have any strategies for dealing with this? i.e moisturisers that help, exfoliation etc?

I wash my face once a day with water only,lightly scrub any flakes off and then use an oil free moisturiser.

My skin is not great by any stretch of the imagination - but manageable.

Have to repeat the gentle scrubbing of flakes each day or they seem to build up.

Did any one else develop little weird hard sebum plugs in their nose after taking Accutane? I assume it's related to the flaking skin.

 

The blessings that this drug has bestowed upon us are too numerous :wacko:

 

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MemberMember
18
(@accutainted)

Posted : 05/04/2015 3:36 am

I used to moisturise and use medicated shampoo for my constantly flaking scalp but I just gave up in the end. The moisturisers don't seem to be absorbed properly by my skin. Definately no point going back to a derm about this, they defend accutane as fiercely as though you were attacking there child

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120
(@pido)

Posted : 05/04/2015 4:30 am

 

Did any one else develop little weird hard sebum plugs in their nose after taking Accutane? I assume it's related to the flaking skin.

 

Blackheads? I do, although they're not little or black (doesn't the dark colour just come from dirt?). Wierd thing is that I hardly had these before Accutane and now after when my skin is cleared I have. I don't really understand it.

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MemberMember
180
(@roland1968)

Posted : 05/04/2015 5:43 am

 

Heya,

 

Do any of you guys still have flaking facial skin years later?

 

Cheers.

 

Yes - 14 years after accutane.

 

Do any of you guys have any strategies for dealing with this? i.e moisturisers that help, exfoliation etc?

I wash my face once a day with water only,lightly scrub any flakes off and then use an oil free moisturiser.

My skin is not great by any stretch of the imagination - but manageable.

Have to repeat the gentle scrubbing of flakes each day or they seem to build up.

Did any one else develop little weird hard sebum plugs in their nose after taking Accutane? I assume it's related to the flaking skin.

 

The blessings that this drug has bestowed upon us are too numerous :wacko:

 

 

Moisturizers don't work for me. They make the skin even dryer in my experience.

 

 

 

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MemberMember
0
(@ultrab)

Posted : 05/04/2015 7:44 am

 

 

Did any one else develop little weird hard sebum plugs in their nose after taking Accutane? I assume it's related to the flaking skin.

Blackheads? I do, although they're not little or black (doesn't the dark colour just come from dirt?). Wierd thing is that I hardly had these before Accutane and now after when my skin is cleared I have. I don't really understand it.

Yeah - that's what I meant.

Not blackheads but weird little plugs all over my nose.

Same thing - never had them before accutane.

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MemberMember
160
(@il90)

Posted : 05/04/2015 4:15 pm

Use vaseline at night over your face. I know sounds super disgusting. I had dry skin before Accutane, now I have also rashes all over, eyes etc. But vaseline helps with it all. Use it at night and nothing day time. It helps my skin a lot. Just a suggestion for flaking skin. Keeps moisture in which is very different from normal moisturizers that I can't stand either just makes it worse.

 

Also, LED red light helps with the flushing, the redness and sun sensitivity

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143
(@indigorush)

Posted : 05/05/2015 2:00 pm

My skin is on the drier side, but it's not bad.

And hey, I still remember how oily it was back in the acne-days.

 

For my skin, I use a tea tree oil foam (so nice when you wash off with cold water).

Then, I have an anti-aging moisturizer I use (I have the night and day version of Nivea Q10 - was in offer at the time and works well).

 

My face is then smooth and softer for the day.

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MemberMember
299
(@macleod)

Posted : 05/07/2015 1:26 am

Omg, IndigoRush sighting! You're like famous man. I seen you on youtube. Keep fighting the good fight.

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MemberMember
33
(@ihateaccutane)

Posted : 05/07/2015 2:36 pm

Hey,

 

I received my latest blood work and now I am low on plt. It is below 150. (116)

Anyone has the same?

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MemberMember
14
(@octopusfrog)

Posted : 05/07/2015 8:52 pm

Posting my bloodwork from my Doc, hoping someone here might have some insight as well:

 

Bioavailable testosterone is high573 ng/dL (128-430), while your estradiol is up in the normal range 32.8 pg/mL (8.0-35.0). LH is normal at 4.4 mIU/mL (1.7-8.6) while FSH is low at 1.3 mIU/mL (1.5-12.4) this was a surprise, given your report of pretty severe hypogonadism.

ARJ MD

 

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MemberMember
299
(@macleod)

Posted : 05/08/2015 12:54 am

What if Accutane is the last solution for treatment resistant acne?

 

That's exactly what it is...and should be.

 

Are you asking a hypothetical? Let's see there are two solutions that come to mind. A. You take the medication. B. You accept nature and your genetic makeup.

 

The choice is yours Neo. Yellow Pill or No Pill. Good Luck.

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MemberMember
128
(@melloman)

Posted : 05/08/2015 4:53 am

 

What if Accutane is the last solution for treatment resistant acne?

 

That's exactly what it is...and should be.

 

Are you asking a hypothetical? Let's see there are two solutions that come to mind. A. You take the medication. B. You accept nature and your genetic makeup.

 

The choice is yours Neo. Yellow Pill or No Pill. Good Luck.

 

I disagree. "Treatments" are treatments. Not cures. If you want to be cured, you must heal. If you want to heal, you must figure out what's wrong with your body. Acne isn't just some random disease (as it's now classified). It's a rash indicating something is wrong.

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MemberMember
24
(@mike-san)

Posted : 05/08/2015 9:55 am

Have people found that have to avoid Vitamin A after the course? I tried a Vit A supp a couple years after thinking I might somehow be deficient, but it sent me downwards quickly with headaches, insomnia etc.

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MemberMember
76
(@yetanotheraccutanevictim)

Posted : 05/08/2015 8:09 pm

Hey,

 

I received my latest blood work and now I am low on plt. It is below 150. (116)

Anyone has the same?

platelets? if so, yes.

 

throughout my 5 month course, my platelet count kept dropping. it dropped from an average of 170 to 125. it consistently went down each month on the accutane. it has now been 2 and a half years post-tane and my platelet count is still 125-130 on each blood test.

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MemberMember
128
(@melloman)

Posted : 05/09/2015 12:54 am

 

What if Accutane is the last solution for treatment resistant acne?

 

 

I disagree. "Treatments" are treatments. Not cures. If you want to be cured, you must heal. If you want to heal, you must figure out what's wrong with your body. Acne isn't just some random disease (as it's now classified). It's a rash indicating something is wrong.

Some people do become "cured" with treatments like Accutane, though. They take it and never get acne again.

 

There are more severe cases that don't respond to anything. It's really a depressing situation. You can try and fail in treatments forver or risk getting the side effects from Accutane that people on here describe. You can live with acne but it damages your mental health and you become the target of abuse from people who want to make you feel like shit for having it.

 

I think you might have missed what I was trying to express. I was saying that acne is a sign that something is wrong. And in order to "cure" it, you must figure out what's causing it. As far as accutane goes, it does have a lot of success with people, but the acne returns within a year for a lot of them. For others, the acne leaves their face or back, and then reappears on another part of the body. Treatments sometimes "cure" acne directly or indirectly. But the reasons for that are often complicated. For example, accutane uses Vitamin A in some advanced form, a long with other ingredients which together ultimately helped the skin to effectively eliminate the acne. This doesn't, however, solve the problem. As you can see with the many cases of it returning after a year of stopping its use. Even if it goes away forever, the underlying cause may still be there.

 

In other words, I think people should avoid treatments and focus on healing.

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MemberMember
24
(@mike-san)

Posted : 05/09/2015 1:14 am

If only it was that easy to figure out what was causing it though.

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MemberMember
33
(@ihateaccutane)

Posted : 05/09/2015 4:17 am

 

Hey,

I received my latest blood work and now I am low on plt. It is below 150. (116)

Anyone has the same?

platelets? if so, yes.

throughout my 5 month course, my platelet count kept dropping. it dropped from an average of 170 to 125. it consistently went down each month on the accutane. it has now been 2 and a half years post-tane and my platelet count is still 125-130 on each blood test.

Yes, platelets.

After my 2 months course it was 167, later went down to 155, now after more than 1 year it is 116.

You know, it is a serious condition. Fast healing depends on it. If it keeps going down, you will have bleedings without accident or any cut. (Below 50) My theory is that my endocrine system is out of balance, that caused bone density differences and it effects the plt values, because plt is produced in bones.

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MemberMember
359
(@dubya_b)

Posted : 05/09/2015 9:45 am

Effects of Isotretinoin on the Platelet Counts and the Mean Platelet Volume in Patients with Acne Vulgaris

[Edited link out]

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Aim. The aim of this study was to evaluate the platelet counts and the mean platelet volume in patients who received isotretinoin for the treatment of acne vulgaris. Method. A total of 110 patients were included in this retrospective study. Complete blood count parameters were recorded prior to and three-months following the treatment. Results. Both platelet counts and the mean platelet volume were significantly decreased following the treatment. No significant differences were noted on the levels of hemoglobin, hematocrit, and white blood cell count. Conclusion. Platelet counts and mean platelet volume significantly decreased following isotretinoin treatment. Since the decrease of platelet counts and the mean platelet volume was seen concomitantly, it is concluded that the effect of isotretinoin was through the suppression of bone marrow.

No surprise that a drug that was once a popular treatment for leukemia would mess with someone's platelet count.

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MemberMember
33
(@ihateaccutane)

Posted : 05/09/2015 10:00 am

On 5/9/2015 at 10:45 PM, Dubya_B said:

Effects of Isotretinoin on the Platelet Counts and the Mean Platelet Volume in Patients with Acne Vulgaris [Edited link out]

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Aim. The aim of this study was to evaluate the platelet counts and the mean platelet volume in patients who received isotretinoin for the treatment of acne vulgaris. Method. A total of 110 patients were included in this retrospective study. Complete blood count parameters were recorded prior to and three-months following the treatment. Results. Both platelet counts and the mean platelet volume were significantly decreased following the treatment. No significant differences were noted on the levels of hemoglobin, hematocrit, and white blood cell count. Conclusion. Platelet counts and mean platelet volume significantly decreased following isotretinoin treatment. Since the decrease of platelet counts and the mean platelet volume was seen concomitantly, it is concluded that the effect of isotretinoin was through the suppression of bone marrow.

No surprise that a drug that was once a popular treatment for leukemia would mess with someone's platelet count.

I really want to kill my dr who gave me this shit.

He said it is all safe, nothing would happen, it is just a type of vitamin A.

Fuck you, you ignorant moron bastard.

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MemberMember
299
(@macleod)

Posted : 05/09/2015 4:19 pm

Yea, but its not the docs' fault. Mine even had the whole snake oil pitch. He left the room and had a pretty young assistant tell me about how all it does is dry your lips out, and your skin peels, maybe some lower back, etc. etc. And I believed them. But, like you said, a lot of these old docs are ignorant. Not saying they aren't smart and knowledgeable dermatologists, but scientists? No.

 

And the industry is so perverse nowadays. This preventative craze. I'm all for preventative medicine which kicked off in the 50's with vaccines and what not, but they're really becoming more and more...I can't find the words but you know what I mean. They don't know any better. Or maybe they do. Either way the ones responsible are the ones who created it and profited. They should be held accountable and cover medical expenses. That is something worth fighting for.

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