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Repairing the long-term damage from Accutane

 
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299
(@macleod)

Posted : 04/16/2015 5:50 pm

I've heard Baxyl helps with joints as well. Definitely have to try some this summer.

Yea sorry maddiegr, eye problems are prevalent with tane sides, I know a bunch of people complaining of red eyes, dry eyes, and just overall discomfort and have seen many eye doctors to little or no avail. I have many ocular side effects as well, but fortunately (i should be fortunate, lol) my side effects are with the light rods and receptors inside.

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Artaemis, WeCanGetBetter, Artaemis and 3 people reacted
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7
(@wecangetbetter)

Posted : 04/16/2015 7:46 pm

I've heard Baxyl helps with joints as well. Definitely have to try some this summer.

 

Yea sorry maddiegr, eye problems are prevalent with tane sides, I know a bunch of people complaining of red eyes, dry eyes, and just overall discomfort and have seen many eye doctors to little or no avail. I have many ocular side effects as well, but fortunately (i should be fortunate, lol) my side effects are with the light rods and receptors inside.

It does. I've been supplementing Baxyl for 3 months I think, its kind of pricey but I've been making lots of improvements. Will expand later. For once in my life I'm finally putting on some weight, and I feel stronger. Baxyl definitely has helped my joints a lot. I think it also benefits your skin

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Artaemis, macleod, Artaemis and 3 people reacted
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(@maddy1234)

Posted : 04/17/2015 10:40 am

Thanks everyone for the input! I will definitely look into Baxil.

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0
(@Anonymous)

Posted : 04/17/2015 11:43 am

On 4/13/2015 at 10:13 PM, tanedout said:
On 4/13/2015 at 12:52 PM, Ruvik said:

Hi, I think that my analyzes are normal, maybe today I have the results, but if isotretinoin inhibit AR5 why dht is "normal"?, increase dht don't think is the solution, right?

we have the necessary hormones, but the body is not able to use them?

I don't really know why DHT came back high to be honest, this was a surprise as I expected very low. The result is from a blood test of course and not a biopsy, so it may be that DHT levels are low in tissue but normal in blood, I really don't know enough about the mechanisms involved to understand it.

Isotretinion is an AR5 inhibitor however, there is no question of that and you only have to look at people suffering from the effects of other AR5 inhibitors to see the similarity in our side effects - loss of libido, ED, brain fog, depression etc. Unfortunately another common factor is there is no simple way to recover from these effects. We have basically become estrogen dominant as a result. Raising testosterone and lowering estrogen, often with the help of drugs like clomid seems to have helped many propecia sufferers.

I'm currently looking into pine pollen as a way of raising testosterone and a high dose of grape seed extract to lower estrogen (or more specifically from preventing the testosterone from being converted into estrogen & raising e levels further). I'm also eating lots of sorgum grain which makes a good rice substitute as rice is a actually a mild AR5 inhibitor, and sorgum grain has been shown in studies to increase AR5 production fairly significantly.

Post up your results when you get them anyway, be interesting to compare!

[Edited link out]

here are the results, as expected, are perfect, next week I will see the doctor, surely tell you that isotretinoin is not responabile of my problems...

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MemberMember
359
(@dubya_b)

Posted : 04/17/2015 2:38 pm

The results do look ideal Ruvik. Estradiol maybe a small bit on the high side? Thanks for posting the labwork.

It will proabably end up like you say, with your doctor denying an association between your health problems and Accutane.

See the links in my signature to report your side effects if your doctor refuses to file a report.

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MemberMember
33
(@ihateaccutane)

Posted : 04/17/2015 5:34 pm

Anyone tried l-glutamine for sexual dysfunction?

 

I read this:

"

Folks just stopping in with something to try...

 

I've seen great success using L-Glutamine, specifically free form. Others did not work.

 

Has practically removed ED issues. When I don't take it my ED returns.

 

Nothing else has worked since accutane...

 

I'm not too sure the mechanism or reasoning why it would work but its been nothing short of a miracle.

Be curious if it worked for other accutane sufferers.

"

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MemberMember
76
(@yetanotheraccutanevictim)

Posted : 04/17/2015 10:11 pm

On 4/18/2015 at 12:43 AM, Ruvik said:

[Edited link out]

here are the results, as expected, are perfect, next week I will see the doctor, surely tell you that isotretinoin is not responabile of my problems...

Thanks for posting your results. Sorry to see that they are normal. I hate how none of us can find proof on tests that something is horribly wrong with us.

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0
(@Anonymous)

Posted : 04/18/2015 1:57 am

yes, I think that for a man of 26 years, with lean physique and athletic Estradiol is perhaps a little high, let's see if the doctor notices him and what do you think

Anyone tried l-glutamine for sexual dysfunction?

I read this:
"
Folks just stopping in with something to try...

I've seen great success using L-Glutamine, specifically free form. Others did not work.

Has practically removed ED issues. When I don't take it my ED returns.

Nothing else has worked since accutane...

I'm not too sure the mechanism or reasoning why it would work but its been nothing short of a miracle.
Be curious if it worked for other accutane sufferers.
"

Interestingly, what dose you take per day of l-glutamine?

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MemberMember
8
(@pabpab)

Posted : 04/18/2015 3:54 am

On 4/18/2015 at 2:57 PM, Ruvik said:

yes, I think that for a man of 26 years, with lean physique and athletic Estradiol is perhaps a little high, let's see if the doctor notices him and what do you think

On 4/18/2015 at 6:34 AM, MrErdem said:

Anyone tried l-glutamine for sexual dysfunction?

I read this:

"

Folks just stopping in with something to try...

I've seen great success using L-Glutamine, specifically free form. Others did not work.

Has practically removed ED issues. When I don't take it my ED returns.

Nothing else has worked since accutane...

I'm not too sure the mechanism or reasoning why it would work but its been nothing short of a miracle.

Be curious if it worked for other accutane sufferers.

"

Interestingly, what dose you take per day of l-glutamine?

Discussion is [Edited link out]. Just posted my first experience with l-glutamine which is surprisingly good.

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MemberMember
17
(@artaemis)

Posted : 04/19/2015 6:14 am

Its annoying that you can only get Baxyl at $75 a bottle here in Australia, especially since I'll probably need to take this stuff for the rest of my life. I'll probably need to find an alternative, but I haven't heard of anyone else whose had success with another source of Hyaluronic acid (other than bone broth) who has also been on Accutane. Do any other Aussies have any experience with this?

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MemberMember
7
(@wecangetbetter)

Posted : 04/19/2015 10:53 am

Its annoying that you can only get Baxyl at $75 a bottle here in Australia, especially since I'll probably need to take this stuff for the rest of my life. I'll probably need to find an alternative, but I haven't heard of anyone else whose had success with another source of Hyaluronic acid (other than bone broth) who has also been on Accutane. Do any other Aussies have any experience with this?

Can you order from Amazon in Australia?

Anyone tried l-glutamine for sexual dysfunction?

 

I read this:

"

Folks just stopping in with something to try...

 

I've seen great success using L-Glutamine, specifically free form. Others did not work.

 

Has practically removed ED issues. When I don't take it my ED returns.

 

Nothing else has worked since accutane...

 

I'm not too sure the mechanism or reasoning why it would work but its been nothing short of a miracle.

Be curious if it worked for other accutane sufferers.

"

I don't really suffer from ED, but I am about to start supplementing l-glutamine along with my Sunwarrior protein. I think l-glutamine will benefit people who took Accutane from what I've read about l-glutamine, and there really is no downside when it comes to l glutamine it seems.

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24
(@mike-san)

Posted : 04/19/2015 12:26 pm

Koreofmyth Im in Aus too... just price checked it from Amazon and it comes to 60 AU shipped, so a bit better..

Is there actually any proof Accutane decrease Hyaluronic Acid? I've just been reading posts from various forums about it for the past hour or so, but have yet to come across any citations. Theres one study from about 30 years ago that actually indicates that it increases HA.

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MemberMember
21
(@pathtorecovery91)

Posted : 04/21/2015 9:22 am

Hey guys, I'm about to try a new regimine for my ed assuming it is caused from nerve damage induced by accutane. I have tryed a penis pump a few times in the recent past which I believe made things worse. I stumbled upon a website about penile nerve damage from penis pumps and exessive masterbation in what knot. They advertise a product for nerve repair called kanabo nerve fix. It's on the herballove website.

They are charging a ridiculous price of $40 which I am not paying for a months supply.

However I found a cheaper alternative called nervefix which seems very similar. On top of trying that, I will be trying a glutamine powder like Mr Erdem suggested as well.

Out of curiosity, has anyone tryed fixing ed assuming it is due to nerve damage with a nerve fix product?? I don't recall anyone mentioning.

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(@linpasta)

Posted : 04/23/2015 8:54 am

Hey guys,

I'm considering going on low dose of accutane, 10mg every 2-3 days. Any suggestions?

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MemberMember
21
(@pathtorecovery91)

Posted : 04/23/2015 11:12 am

Hey guys,

I'm considering going on low dose of accutane, 10mg every 2-3 days. Any suggestions?

Hey guys,

I'm considering going on low dose of accutane, 10mg every 2-3 days. Any suggestions?

Sorry but you came to the wrong acne.org forum

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MemberMember
33
(@ihateaccutane)

Posted : 04/23/2015 1:50 pm

Hey guys,

I'm considering going on low dose of accutane, 10mg every 2-3 days. Any suggestions?

Dont do that

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MemberMember
299
(@macleod)

Posted : 04/23/2015 11:13 pm

Lol, yea. wrong thread i think u meant to say path. post your question in the main forum lin, then you can join us here afterwards.

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Nick Ryan, Artaemis, Accutainted and 6 people reacted
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(@asdfghjkl123456789)

Posted : 04/23/2015 11:13 pm

I think that you should try it, pathtorecovery91 seeing as nerve damage can damage libido greatly.

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0
(@Anonymous)

Posted : 04/24/2015 12:46 pm

guys, anyone here has done a prolonged fasting?

 

Next week I might have four days away from work and sports, I will try

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MemberMember
33
(@ihateaccutane)

Posted : 04/26/2015 8:12 am

guys, anyone here has done a prolonged fasting?

Next week I might have four days away from work and sports, I will try

Whenever I eat less, or do fasting for a couple of days, I feel better. Does not help for ED in my case, but makes me more energic like preaccutane

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20
(@heinstar)

Posted : 04/27/2015 6:38 am

I recommend being very cautious when taking Vitamin A supplements for those who's been on Accutane. I had a feeling that I've become hypersensitive to Vitamin A after feeling slightly sick/depressive mood from 2500IU(750ug) Vitamin A that's in my Zinc supplement even though 900ug is the RDI for adult males. I should've listened to my body, because today, I took 5000IU(1500ug) Vitamin A(for health purposes since we do need some vitamin A) which is the lowest dose availabe at my pharmacy and that was a very bad idea... I started feeling shortness of breath and had nerve pains around my arm. I don't understand how that's possible since 1500ug is well under the daily upper level of intake of 10,000IU(3000ug) which is also sold as a supplement at the pharmacy. I guess I now have to completely avoid Vitamin A now since my body doesn't seem to accept it anymore. It's been over 5 months since I've been on roaccutane so all of the Vitamin A should've been out of my system by now. Not to mention I was only on roaccutane for 5 days. Has anyone else become hypersensitive to Vitamin A after going on roaccutane or is it just me?

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MemberMember
960
(@tryingtohelp2014)

Posted : 04/27/2015 12:17 pm

 

  • The amino acids Taurine, Choline (lecithin) and Methionine are beneficial for encouraging bile acid. They contain sulphur components which help to increase liver detoxification processes and stimulate the synthesis of bile and gall bladder function

 

  • Healthy bacteria in the digestive tract coverts bile from the gall bladder into bile acids, low gut bacteria may therefore be a contributing factor. You may consider introducing more probiotics into the diet, especially if he has had courses of anti-biotics in the past
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17
(@artaemis)

Posted : 04/28/2015 11:59 pm

Apparently I have gallstones. I truly believe that accutane triggered a predisposition since everyone on my dad's side has had their gallbladder removed. I eat extremely healthy, although low carb and high fat (olive and coconut oil).

Everyone is telling me to get my gallbladder removed but I've lost all trust in what doctors and my parents tell me to do.

 

Can someone please tell me bluntly whether or not it would be a wise choice to get it removed?

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MemberMember
299
(@macleod)

Posted : 04/29/2015 4:22 am

Well, when it comes to things like organs, that have been studied for hundreds of years, I think its best to listen to medical doctors. Accutane definitely predisposes us to many diseases we would of gotten in the future and goes after our susceptibilities and weaknesses. What the doctors can't see is how our cellular proliferation is so slowed. And how our white blood cells are so active and in a constant 'itis' mode. This is what scares me the MOST about ever having surgery or getting into a bad accident. Our plasticity is shot.

 

It really is interesting to watch my father eat things daily that would definitely cause MY pancreas to have another Acute Pancreatitis attack. I hear his indigestion, I know his pancreas is struggling at his age (60) to process the food, yet after a good nights rest, his cells are able to regenerate. Whereas I would need a week of diet and fasting after a meal like that to prevent strain on my weak organs. And it never used to be like that.

 

If I were to get a paper cut right now, at the same time as a 65 year old man, I am 80% confident his paper cut would heal faster than mine. And it shouldn't be like that. I'm not anemic. Or diabetic. I'm just Accutained.

 

As far as your question Kore, Isn't there a chemical method of dissolving those stones? Any other less intrusive way?

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MemberMember
17
(@artaemis)

Posted : 04/30/2015 5:09 am

Well, when it comes to things like organs, that have been studied for hundreds of years, I think its best to listen to medical doctors. Accutane definitely predisposes us to many diseases we would of gotten in the future and goes after our susceptibilities and weaknesses. What the doctors can't see is how our cellular proliferation is so slowed. And how our white blood cells are so active and in a constant 'itis' mode. This is what scares me the MOST about ever having surgery or getting into a bad accident. Our plasticity is shot.

 

It really is interesting to watch my father eat things daily that would definitely cause MY pancreas to have another Acute Pancreatitis attack. I hear his indigestion, I know his pancreas is struggling at his age (60) to process the food, yet after a good nights rest, his cells are able to regenerate. Whereas I would need a week of diet and fasting after a meal like that to prevent strain on my weak organs. And it never used to be like that.

 

If I were to get a paper cut right now, at the same time as a 65 year old man, I am 80% confident his paper cut would heal faster than mine. And it shouldn't be like that. I'm not anemic. Or diabetic. I'm just Accutained.

 

As far as your question Kore, Isn't there a chemical method of dissolving those stones? Any other less intrusive way?

 

My GP and Gastrointestinal doctor said there were no other effective alternatives when I asked. They told me that dissolving the stones involved dangerous chemicals and that they were not willing to take the risk. I don't have the energy to seek out more doctors. I might try the herbal route first, combined with malic acid and long water fasts.

 

I'm terrified about what my future might hold as my genetics are not in my favor at all.

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