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Every one of those word search shows this site and this topic on the first page.
We are all frustrated and hoping someone here will find the answer, until we fight each other and people drop off. I don't think I have ever chastised people for their protocols or way of thinking, despite not agreeing-if i have, i apologize. I also understand we are all suffering, and as a result, conflict sometimes occurs. This is normal in my eyes. How many times have we just wanted to yell at the top of our lungs in frustration over the years, or worse? We've all been there.
We need to bring this thread back around to a source of support. I'm not discouraging research at all. This thread is immensely helpful to people in various ways. Being that this thread is a popular search for accutane, let's put things in a way that will help new members and people searching. IS there anyway to link a piggy back thread on this or even a page in which we can list what things have worked in the past for members and what still works? Can we do this moderators? Let's get out of frame of mind of needing to cure ourselves % 100 and help out others with gaining a better quality of life. Don't do it for others, do it for ourselves if need be. Let's share the knowledge we have acquired over the years. This kind of information gathering-albeit seems nuerotic, takes discipkine and sacrafice. Linking the testing results on this page would also be nice for a quick reference. If we were scientists, would we not be studying these tests more in detail? This is why I get frustrated. There is so much time that has gone into this forum, yet it seems the smaller, helpful things that would consume just as much time as daily researching-go undone.
For those who think my ranting and raving is offensive or personal attacks, I want you to know they're not intended to be. I think most people on here are complete badass' and highly intelligent. We just need to be steered in different directions on occasion. I know it is hard because we all want healing and we want it now.
*Moderators if you are seeing this please respond to the ideas that I and others have brought up about linking a page with things that provide relief for members and a place lab results can be organized. This can be done on another thread, but I'd like to see this here somehow. This thread is valuable and with this addition, can only provide more help*
Live long and prosper my fellow taners!
Anyone "fixed" their brain fog ?
Anyone "fixed" their brain fog ?
Post by someone fixing their fog caused by finasteride.
May be interesting to some: link
I think I am going to be doing a water fast along with niacin flushes. I don't know how long I will last. Maybe 3/4 days, who knows..
We are all frustrated and hoping someone here will find the answer, until we fight each other and people drop off. I don't think I have ever chastised people for their protocols or way of thinking, despite not agreeing-if i have, i apologize. I also understand we are all suffering, and as a result, conflict sometimes occurs. This is normal in my eyes. How many times have we just wanted to yell at the top of our lungs in frustration over the years, or worse? We've all been there.
We need to bring this thread back around to a source of support. I'm not discouraging research at all. This thread is immensely helpful to people in various ways. Being that this thread is a popular search for accutane, let's put things in a way that will help new members and people searching. IS there anyway to link a piggy back thread on this or even a page in which we can list what things have worked in the past for members and what still works? Can we do this moderators? Let's get out of frame of mind of needing to cure ourselves % 100 and help out others with gaining a better quality of life. Don't do it for others, do it for ourselves if need be. Let's share the knowledge we have acquired over the years. This kind of information gathering-albeit seems nuerotic, takes discipkine and sacrafice. Linking the testing results on this page would also be nice for a quick reference. If we were scientists, would we not be studying these tests more in detail? This is why I get frustrated. There is so much time that has gone into this forum, yet it seems the smaller, helpful things that would consume just as much time as daily researching-go undone.
For those who think my ranting and raving is offensive or personal attacks, I want you to know they're not intended to be. I think most people on here are complete badass' and highly intelligent. We just need to be steered in different directions on occasion. I know it is hard because we all want healing and we want it now.
*Moderators if you are seeing this please respond to the ideas that I and others have brought up about linking a page with things that provide relief for members and a place lab results can be organized. This can be done on another thread, but I'd like to see this here somehow. This thread is valuable and with this addition, can only provide more help*
Live long and prosper my fellow taners!
I'm not sure how far back you can edit, but we could create the subthreads then ask for IndigoRush to edit his first post and link the subthreads. Afterall, newcomers probably read IndigoRush's post before anything else. But I'm not sure though.
It may be best to keep everything in this thread, since I've noticed one post will spark another post (on another topic sometimes), which will spark another post etc. And that domino effect keeps the thread alive.
Has anyone noticed they are either too hot and too cold, too full of energy or dead, no regulation?
I have felt so little but so much since I stopped accutane. I started having majority of side effects about now. Four years after I took it. I have known something is wildly innaccurate about my body accutane is potent as shit.
My body hurts, but im pissed that accutane screws up and unargueably changes the brain in a perminant mannor. Docs try and tell me it should go away after accutane. or HA THAT ACCUTANE IS A MIRACLE DRUG! Nope. Even if it was a miracle drug for you just .....shut up......
So whos in charge? Depression was a side effect on the label huh...
I picture them sitting there, (maybe not rosche because i have this weird gut feeling he wasn't the bad guy even though he looks scary)
I picture them sitting there, "What should we call this Toxic Acne Bomb? HMM HOW ABOUT ACCUTANE!"
...It just sounds scary....Accutane..
Why did the doctor screw me up at age 16. i didnt even know i had a nice life going i did though very social, really into being an awesome person lol! VERY EMOTION DRIVEN MAN! i loved wemon, i liked flirting with them and getting mentally aroused, i liked working, it creates a good day and a sucess feeling. not so much anymore. flirting is a chore, and who cares anyway, and work is embarassing, im tired.
The first year off accutane was alright, but when i also starting having brain issues.
I dont have many thoughts, whats up with that accutane? Just.. not really any thoughts, but im here.... "alive"
Maybe ill just do something crazy, after all who cares.
Fatigue
My body is pretty screwed south i have times where my eyes go out of focus and i just dont have the energy to focus them again.
Im here to support everyone, please message me if you want! or email me AT:[removed]
I changed to 100% PALEO in october. its been helping you bet but has also still made me realize how much is wrong.
paleo helped get my body in a more cruisin healthy state, i dont feel like im having sugar attacks anymore. try it i guess.
I feel like ive complained a lot to my family and i also regret that
We are special people that no one understands, you guys wanna start a village or something of post accutane sufferers? LOL
Have fires and eat cabbage.
Eat lots of fat, eat up, and have a beer if you can. -ALAN
On 1/11/2015 at 7:31 AM, awashington said:Has anyone noticed they are either too hot and too cold, too full of energy or dead, no regulation?
I have felt so little but so much since I stopped accutane. I started having majority of side effects about now. Four years after I took it. I have known something is wildly innaccurate about my body accutane is potent as shit.
My body hurts, but im pissed that accutane screws up and unargueably changes the brain in a perminant mannor. Docs try and tell me it should go away after accutane. or HA THAT ACCUTANE IS A MIRACLE DRUG! Nope. Even if it was a miracle drug for you just .....shut up......
So whos in charge? Depression was a side effect on the label huh...
I picture them sitting there, (maybe not rosche because i have this weird gut feeling he wasn't the bad guy even though he looks scary)
I picture them sitting there, "What should we call this Toxic Acne Bomb? HMM HOW ABOUT ACCUTANE!"
...It just sounds scary....Accutane..
Why did the doctor screw me up at age 16. i didnt even know i had a nice life going i did though very social, really into being an awesome person lol! VERY EMOTION DRIVEN MAN! i loved wemon, i liked flirting with them and getting mentally aroused, i liked working, it creates a good day and a sucess feeling. not so much anymore. flirting is a chore, and who cares anyway, and work is embarassing, im tired.
The first year off accutane was alright, but when i also starting having brain issues.
I dont have many thoughts, whats up with that accutane? Just.. not really any thoughts, but im here.... "alive"
Maybe ill just do something crazy, after all who cares.
Fatigue
My body is pretty screwed south i have times where my eyes go out of focus and i just dont have the energy to focus them again.
Im here to support everyone, please message me if you want! or email me AT:[removed]
I changed to 100% PALEO in october. its been helping you bet but has also still made me realize how much is wrong.
paleo helped get my body in a more cruisin healthy state, i dont feel like im having sugar attacks anymore. try it i guess.
I feel like ive complained a lot to my family and i also regret that
We are special people that no one understands, you guys wanna start a village or something of post accutane sufferers? LOL
Have fires and eat cabbage.
Eat lots of fat, eat up, and have a beer if you can. -ALAN
I'd like to be one of the village hunters. I'll bring as much milk thistle, lotion and water I can pack in. We can grow our own RSO, make cholama boards of pine and sing songs about our symptoms around the fire. Sign me up!
If I had some money, I would immediately jump on board both of these programs. Has anyone else found a better detoxification and pathogen purge protocol? There is also an entire 5 week program called Gut Thrive in 5 which would be really beneficial for us. I am starting to think that some of my issues aren't from the accutane but from infections that it caused. Vitamin A deficiency from the tane ruins our immune systems.
If someone has the finances, I recommend going through these and reporting back. Would be really interesting to see how a major full body detox would affect symptoms.
[Edited links out]
[Edited links out]
on detox
How do the symptoms get worse years later? I've reread the science about the fox 0 genes and it seems to be the hypothesis fox 01 gene is responsible for isotrentinoins action. Its been talked about here and other forums. So if it had been regulated, can it stay in this state after the drug is metabolized and removed from the body? Altering our oxidative enzymes seems rational as much of my symptoms can be explained from this. It is just one hypothesis that could cause my sides. So do the fox genes stay upregulated, how do they stay in this state, despite no drug presence? I know the drug possibly could still be present, but let's assume it is not? Any thoughts would be welcomed.
Possible role of endogenous retinoid (Vitamin A) toxicity in the pathophysiology of primary biliary cirrhosis.
Primary biliary cirrhosis (PBC) is a chronic, cholestatic disease of unknown etiology commonly affecting women. It is characterized by progressive destruction of the small intrahepatic bile ducts and portal inflammation, leading to fibrosis and cirrhosis. The major signs and symptoms of PBC, which include pruritus, lethargy, the sicca syndrome, and osteoporosis, closely resemble the manifestations of hypervitaminosis A. Based on a review of the literature and other observations connecting PBC with retinoid metabolism (vitamin A and its derivatives), the hypothesis is proposed that exposure to excess endogenous retinoids contributes to the pathogenesis of PBC and may be to the cause of some of the signs and symptoms associated with the disease.
Primary biliary cirrhosis can be caused by vitamin A toxicity, it down regulates bile acid transporters. The pruritus is skin itching associated with the skin conditions that some have developed post (ro)accutane. Sicca syndrome is Sjogren's syndrome and some people on here have said they've been diagnosed with that. The osteoporosis is the joint cracking and aching. I've had light stools for a very long time and i know Vitamin A toxicity has stopped my bile from flowing. It could be that the accutane caused cholestasis due to an over abundance of glucuronides in the liver. The cholestasis continues to get worse and the condition itself continues to get worse because the bile isn't flowing, so any retinol you eat will be stored, thus the reason why some people react to retinol so badly after accutane and why they get worse and worse over the years.
Possible role of endogenous retinoid (Vitamin A) toxicity in the pathophysiology of primary biliary cirrhosis.
Primary biliary cirrhosis (PBC) is a chronic, cholestatic disease of unknown etiology commonly affecting women. It is characterized by progressive destruction of the small intrahepatic bile ducts and portal inflammation, leading to fibrosis and cirrhosis. The major signs and symptoms of PBC, which include pruritus, lethargy, the sicca syndrome, and osteoporosis, closely resemble the manifestations of hypervitaminosis A. Based on a review of the literature and other observations connecting PBC with retinoid metabolism (vitamin A and its derivatives), the hypothesis is proposed that exposure to excess endogenous retinoids contributes to the pathogenesis of PBC and may be to the cause of some of the signs and symptoms associated with the disease.
Primary biliary cirrhosis can be caused by vitamin A toxicity, it down regulates bile acid transporters. The pruritus is skin itching associated with the skin conditions that some have developed post (ro)accutane. Sicca syndrome is Sjogren's syndrome and some people on here have said they've been diagnosed with that. The osteoporosis is the joint cracking and aching. I've had light stools for a very long time and i know Vitamin A toxicity has stopped my bile from flowing. It could be that the accutane caused cholestasis due to an over abundance of glucuronides in the liver. The cholestasis continues to get worse and the condition itself continues to get worse because the bile isn't flowing, so any retinol you eat will be stored, thus the reason why some people react to retinol so badly after accutane and why they get worse and worse over the years.
I grasp the idea that vitamin a toxicity can cause these effects, but what I don't understand is why we still suffer from vitaminosis A after we stop taking it. Does this lead to the assumption tane is still stored in our bodies? Can receptors be permanently changed? I guess my question is, if how does hypervitaminosis A cause lasting effects even if we consume no vitamin A what soever?
How do the symptoms get worse years later? I've reread the science about the fox 0 genes and it seems to be the hypothesis fox 01 gene is responsible for isotrentinoins action. Its been talked about here and other forums. So if it had been regulated, can it stay in this state after the drug is metabolized and removed from the body? Altering our oxidative enzymes seems rational as much of my symptoms can be explained from this. It is just one hypothesis that could cause my sides. So do the fox genes stay upregulated, how do they stay in this state, despite no drug presence? I know the drug possibly could still be present, but let's assume it is not? Any thoughts would be welcomed.
I was in contact with the author of the fox0 research paper a while ago. He is a german professor who also works as a dermatologist. according to him fox0 reaches normal level again shortly after the discontinuation if isotretinoin and can not be responsible for long term side effects.
Still this is one of the unanswered questions and if we could answer it we most likely had an idea how to cure our bodies. it is more then 13 years ago, that I took my last Accutane pill and my symptoms have worsened over time. my skin now is much drier and much more sensitive than it was under Accutane. I still remember that I was able to go swimming under Accutane. Something that is completely impossible now. I even took BPO (every other day) for some years after my accutane treatment because I still had some pimples here and there. The sun sensitivity of my skin reached a level, that makes me wear a baseball cap almost every day during summer when I leave the house.
I am 46 now and when I wake up in the morning, then I just don't know how to make it through the day. Especially now in winter through the lower temperature my skin goes crazy. I ask myself, how long will I still be able to work in my job. Sometimes I think about some kind of early retirement but can financially not afford it. So I have to carry on. Just go through the same shit day in & day out.
I wonder why so many people aren't even properly trying liver flushing if they are so desperate for a cure. Why not at least TRY despite what other people may say about it?
Apparently it may take 5-10 flushes until accutane sufferers begin to respond to it at all. And perhaps another 5-10 until there is very noticeable relief.
I'm going to try this for a year and then report back on my findings.
Liver flushes are documented well in the beginning of the thread.
Im personally believe my current problems come from a lealy gut and not candida. Candida is a result of leaky gut. Why ? Because my brain fog amd tiredness disappear after taking a dump. Thats why fasting is temporary beneficial. No toxins leaking into the blood. Peaie reportedly were cured on a 30 day fast but when they reintroduced solid foods it just started.
If I fix my leaku gut i fix 90 percent of my problems.
Glutamine, diet and colostrum will be my bext 4 month diet.
How many liver flushes have you done Walden Rev, included with a week of malic acid beforehand?
Yes they TALK about it, but where is the experimentation? I'm talking extensive experimentation following all of Andreas Moritz's steps. Enemas, malic acid, regular kidney cleanses, epsom salts, perfect timing and possibly 20 total flushes. Obviously congestion is highly personal, so perhaps there are those who need even more than 20, perhaps 50 even. I don't see why you would even need to give up liver flushes while trying out other possibly cures...manganese etc. and trying to get in contact with scientists.
Please point me the way to where that is in the thread?
I grasp the idea that vitamin a toxicity can cause these effects, but what I don't understand is why we still suffer from vitaminosis A after we stop taking it. Does this lead to the assumption tane is still stored in our bodies? Can receptors be permanently changed? I guess my question is, if how does hypervitaminosis A cause lasting effects even if we consume no vitamin A what soever?
What happens in my opinion is that during some point during the treatment the bile stops flowing and thats when the problems start. You'd still be taking accutane at this point but the body wouldn't be able to get rid of it. After ceasing treatment the body is incapable of removing the accutane and stores it in the body. Thats were the methylation argument comes from. The genes aren't switched on and off without something to stimulate it, so this idea that accutane just switches genes on and off and then leaves the body i believe to be false. I think the accutane is still there triggering the epigenetic changes.
Thats why when some of us eat retinol we react so badly to it. Our body is telling us not to consume that substance because we've already got too much of it. What starts as maybe a skin condition starts to get worse and eventually you end up with testicular or ovarian damage due to the Vitamin A toxicity amongst other things like liver damage, hair loss, joint cracking and other manifestations of Vitamin A toxicity. The skin conditions some people develop after ceasing the drug are conditions were the skin grows abnormally quickly like psoriasis. Accutane is stored were you have skin that grows too quickly, so hypothetically if you've developed sebborheic dermatitis after ceasing accutane, that is were the accutane is stored in your body. I'll explain, retinoic acid causes skin cell differentiation, so were it's stored in high volumes will cause the skin to shed or grow at an abnormal rate in that area.
It's complex but it basically starts with the bile flow being affected and then the problems get worse due to the continual consumption of retinol in food. It's a case of adamantly staying away from retinol in food if you have a bad reaction to it, not to make you better but simply to stop making you any worse.
I grasp the idea that vitamin a toxicity can cause these effects, but what I don't understand is why we still suffer from vitaminosis A after we stop taking it. Does this lead to the assumption tane is still stored in our bodies? Can receptors be permanently changed? I guess my question is, if how does hypervitaminosis A cause lasting effects even if we consume no vitamin A what soever?
What happens in my opinion is that during some point during the treatment the bile stops flowing and thats when the problems start. You'd still be taking accutane at this point but the body wouldn't be able to get rid of it. After ceasing treatment the body is incapable of removing the accutane and stores it in the body. Thats were the methylation argument comes from. The genes aren't switched on and off without something to stimulate it, so this idea that accutane just switches genes on and off and then leaves the body i believe to be false. I think the accutane is still there triggering the epigenetic changes.
Thats why when some of us eat retinol we react so badly to it. Our body is telling us not to consume that substance because we've already got too much of it. What starts as maybe a skin condition starts to get worse and eventually you end up with testicular or ovarian damage due to the Vitamin A toxicity amongst other things like liver damage, hair loss, joint cracking and other manifestations of Vitamin A toxicity. The skin conditions some people develop after ceasing the drug are conditions were the skin grows abnormally quickly like psoriasis. Accutane is stored were you have skin that grows too quickly, so hypothetically if you've developed sebborheic dermatitis after ceasing accutane, that is were the accutane is stored in your body. I'll explain, retinoic acid causes skin cell differentiation, so were it's stored in high volumes will cause the skin to shed or grow at an abnormal rate in that area.
It's complex but it basically starts with the bile flow being affected and then the problems get worse due to the continual consumption of retinol in food. It's a case of adamantly staying away from retinol in food if you have a bad reaction to it, not to make you better but simply to stop making you any worse.
In my case, It seems I have psoriasis around my ears, temples and perhaps my forehead. Those areas were my major acne areas before starting accutane. Now those areas remain red and irritated basically all the time.
If accutane is "stored" in my skin, do you think Niacin flushing or extreme sweating would help get rid of it? Or is that an oversimplification?