Yup and Crohn's disease especially if you took anti - life biotics first for a while a double poisoning , stay far away from allopathic doctors they always find a new way to poison people , FACT. Remember the body does not run on synthetic drugs but nutrition , exercise , herbs. I only took a small dose of each antibiotics and Accutane hence my poisoning is manageable .
Awashington what was your dosage ? and how long ?
Hello everyone,
I just joined specifically for this thread, I've been reading it for the last few days on my mobile phone. My life has been wrecked since roaccuatane. I've joined to hopefully get some answers. I've struggled with problems and literally been through hundreds of supplements finding something that will help. I can share these if anyone is interested.
I'm reading right through all 263 pages. Currently up to page 43 and will go all the way through to the end. It's a pity theres so much arguing in here instead of real progress. I think the first two pages had a ton of possible supplement cures and then it slowly faded to arguing and self pity talk lol from indigorush.
From josephbucarinis nonsensical rantings to indigorushs bipolar moodswings it was quite interesting though. I'm almost worried that indigo really did kill himself after threatening too for the first 40 pages. I'll have to read through to find out if anything happened.
So did we ever find a cure from page 43 to here??\
Cheers
Been off Accutane for a year now. Was on it for a month.
Still shedding hair. Been on rogaine for almost 3 months with no results but I will continue to use it for another 3 months.
I am going to try liver flushing and colon cleansing but I'm not convinced they will show results.
Life sucks.
Everyday I tried very hard not to read posts on this forum trying to find myself a cure.
Im a student and couldn't afford to spend money on trying herbs or supplements, or to spend time on trying to find a cure but I can't help it.
I love my life and love what my degree, my friends my family my boyfriend.
Everyday I try to let this go but i can't because i know my hair is thinning and i don;t know why.
Now I wish this was female pattern baldness so i could take treatment or a hair system and just move on.
I know there's worse thing that can happen, but why this has happened to me?
I WANT MY LIFE BACK!
It pisses me off that this drug is the only solution I have left to get rid of acne. When I read these posts I don't want to take it.
How bad is your acne on a scale of 1 to 10?
If it isnt a 9 or 10 I wouldn't even think about taking it.
TemperateCent check out alternativista on this forum she has the answers your looking for. On the topic of acne she knows a lot she is under holistic and nutrition . BTW she was on Accutane too and it did nothing for her . I'm taking Neem oil baths now it's great for the skin only a few drops needed very potent keeps my mild acne in check , best place to buy it is on ebay make sure it's organic .
This drug isn't the solution to get rid of acne. It get rid of the symptoms but not the real cause of acne. By taking accutane you will force your body to keep inside what cames out from your skin and it will burn your body from the inside.
I agree with all that, have you done successful liver flushes? and if so how did you go about it? because i've tried about 6 times and only got stones out once.
Yes i've done 10 successfull flushes, ~1900 stones total. But i'm not sure it's a good idea to do so much, i'll say 4-8 is enough, if after that there is still stones it's because of the still occuring toxicity, liver use cholesterol to protect itself, some people still expell stones after 40 flushes..
Yes i've done 10 successfull flushes, ~1900 stones total. But i'm not sure it's a good idea to do so much, i'll say 4-8 is enough, if after that there is still stones it's because of the still occuring toxicity, liver use cholesterol to protect itself, some people still expell stones after 40 flushes..
Does liver function test actually say anything? My test says my liver is fine :/
I didn;t have any body check before accutane but 6 months post Accutane, I found that my cholesterol level is borderline high. I am a short skinny girl and don't eat much fat.
"In their report on Accutane, dated Feb. 11, 1988, F.D.A. officials recommended to a senior agency official: ''We believe the data presented in this document warrant active consideration of removal of Accutane from the market.'' The report, from the staff of the agency's division of epidemiology and biostatistics, was directed to the deputy director, office of epidemiology and biostatistics. Representative Weiss Agrees
Asked to comment yesterday, Representative Ted Weiss, Democrat of Manhattan, chairman of the House subcommittee with responsibility for overseeing the Food and Drug Administration, said that if the drug agency's experts had urged that Accutane should be essentially withdrawn from the market, ''I see no reason why this course should not be followed,'' with the drug made available only under tightly controlled conditions to the few people who absolutely need it."
This is from a New York Times article a couple of months after I was born 1988.
I literally wish I was never born because of this drug.
Accutane has deformed as many if not more baby's than thalidomide, caused serious long term injuries to thousands of people who were in adequately warned about its potential toxicity and what has changed today?
NOTHING.
Yea conjugated bilirubin elevated. Bilirubin is the best test for liver function (porphyrins too), the one they are doing for accutane every month (enzymes if i remember) is pretty much useless.
I have got bilirubin, ALT level, and alkaline phosphatase tested. They all came back normal. Well within reference range. Does it mean my liver is perfectly healthy? Will it help me at all if i do liver flush/cleansing?
Most efficient test is porphyrin i think. Bilirubin can test if your bile duct are congestioned by stones but you still can have damage even if there is not enough stones to show in the results yet. Those stones & more deep damage everywhere inside the body evolve in time, i wasn't in a so bad shape first month & 1-2 year after accutane (except for the libido, joint pain thing, slight depression ..), depersonalization, very low energy, huge stomach problems, ibs and more serious problem came in the long term, certainly by the accumulating congestion and the diet i had (as bad as everyone else).
Most efficient test is porphyrin i think. Bilirubin can test if your bile duct are congestioned by stones but you still can have damage even if there is not enough stones to show in the results yet. Those stones & more deep damage everywhere inside the body evolve in time, i wasn't in a so bad shape first month & 1-2 year after accutane (except for the libido, joint pain thing, slight depression ..), depersonalization, very low energy, huge stomach problems, ibs and more serious problem came in the long term, certainly by the accumulating congestion and the diet i had (as bad as everyone else).
My stomach problem was worsened 2 months after stopping Accutane. It's still really bad. I am going to order some probiotics online. However my celiac test came back negative. I hate it when I feel so ill and my test results say im fine. My kidney function test also says I am good. Oh dear
I have hairloss problem from the start of this awful journey. So it probably isn't because of Accutane stored in my liver/colon as my liver function test result came back fine?
So my timeline is:
First started accutane, hairloss --> two months off acctuane, stomach problems --> 4 months off Accutane, extreme fatigue --> 5 months off, developed cold sores for the first time in my life. I did nothing different in my life and my life style is healthy all along. I do stress a lot and I always do --> 7 months off Accutane, major life threathening depression mainly because of my hair loss problem, also started to have scalp tingling and ear ringing.
I have a feeling that Accutane also wrecks my ability to handle stress.
When I asked my derm, why me? He was like, well, you ARE very small so Accutane probably had a very long-lasting effect on you.
Wtf?
Celiac doesn't exist, it just depend on people, some have more problems with gluten than others, after accutane you'll be for sure in that category. Everyone doesn't tolerate gluten, far too complex & toxic protein (especially in modern wheat which is un-official gmo), it's one of the top cause of intestinal issue. Same with dairy, highly toxic & congestioning, especially if pasteurized (not raw). You won't get better without completely stopping grains & all dairy products (& excess meat if no meat at all). The only grain (pseudo-grain actually) who doesn't cause that much problems is quinoa, i tested them all.
It's just unfair that two of my friends who were on accutane for 3 months have no problems with it. I was on it for less than a month.
I don't react to gluten. However, I dont drink milk and I dont like cheese. I dont use butter. My diet is very close to non-gluten as Im from South Asia. I used to be a big fan of bread and had no problems with it. I don;t eat bread everyday now tho.
My stomach problem stems from too much stomach acid i guess. I feel sick after coffee but I consume a lot of it.
Everyone react with gluten even if they don't realize it. It can cause a lot of different symptoms when it cross only partially digested the intestinal tract.
Stopping damaging food isn't enough for most people, you need to make sure your kidneys are filtering (seeing the sediments like snow in the urine) and use herbs to enhance the detox/elimination. Kidneys are the most important, most people have so weak kidneys & adrenals that they don't filter lymph anymore, for years. [Edited link out]
Cleaning the liver enhance every body function since it control nutrition and other things but colon & kidneys are what filter the lymph & toxins, liver isn't a detoxifying organ except some action on drugs (and nutrient-like poison like accutane). Apparently colon drain lymph from the head area, every person with depression or other symptoms there have intestinal/colon problems. Lymph/toxins are filtered at 1/3 by the colon and 2/3 by the kidneys.
First started accutane, hairloss --> two months off acctuane, stomach problems --> 4 months off Accutane, extreme fatigue --> 5 months off, developed cold sores for the first time in my life. I did nothing different in my life and my life style is healthy all along. I do stress a lot and I always do --> 7 months off Accutane, major life threathening depression mainly because of my hair loss problem, also started to have scalp tingling and ear ringing.
Your hairloss may well stop on it's own accord. It took me a long time to link the issues I've experienced over the past 3-4 years since taking accutane to them being sides from the drug - it's only really been reading through threads like this that has made me realise most, if not all are tane sides.
I went through a period about 3 years ago where I used to notice a fair few hairs falling when I was drying my hair with a towel, and I actually bought a couple of bottles of that Alpecine caffine shampoo which is supposed to reduce hair loss. I got through 1 1/2 bottles before stopping using it, and only remembered this when I recently bined the remaining half bottle which I'd had hung on to. It might be worth giving that stuff a go though potentially?
Same goes for ringing in ears/tinitus - I have this in my left ear especially and just put it down to loud music in clubs and stuff, but potentially this is a tane side as I'm pretty sure I didn't used to have it. I still have this, but it's only really noticeable in quiet environments.
@ Samantha and TanedOut, any headaches or visual disturbances along with the tinnitus? I had this trio of symptoms during treatment and shortly after.
This combination sometimes indicates psuedotumor cerebri (intracranial hypertension), which is a somewhat common recognized side effect of retinoid drugs like Accutane.
On 9/13/2014 at 2:22 AM, pathtorecovery91 said:On 9/13/2014 at 2:03 AM, MrErdem said:On 9/13/2014 at 1:32 AM, pathtorecovery91 said:On 8/27/2014 at 9:42 PM, pathtorecovery91 said:On 8/27/2014 at 9:15 PM, MrErdem said:On 8/27/2014 at 8:18 AM, pathtorecovery91 said:On 8/27/2014 at 4:33 AM, MrErdem said:On 8/22/2014 at 1:42 AM, MrErdem said:My dr says I have prostatitis. He prescribed me antibiotics and alphablocker. Should I use it? There is no pain in that area but other sympthons are common with prostatitis. Pills again [Edited image out]
Please guys, give me some feedback. Do you have prostate problems (difficulty to urinate or frequent urination) as well?
I am about to get prostatitis treatment with antibiotics and I dont want to be missdiagnosed.
I have no pain during pee, but low steam, difficulty in urinate and sometimes frequent urination. Do you have the same?
Hey, I actually have the same problem. I believe it has to do with my prostate because I know prostate problems run in my family. The past few months or so I found it takes like a few seconds or more before I urinate. I don't feel the build up like I used to and the flow isn't that strong anymore. It doesn't hurt to pee or anything but I just don't feel the build up or have a strong stream. Also I don't have frequent urination, just takes a while before it comes out like I said. I was supposed to go to the urologist today but rescheduled it for next monday. I am concerned about having to go on drugs if I have an enlarged prostate because I know that the doc would prescribe me some if somethings wrong but really wouldn't want to take it. In a way though if I do have something wrong with my prostate(which I likely do due to my urination problems), maybe it is the cause of my ED, but also maybe not.
I wouldn't mind taking antibiotics but wouldn't want to take a drug for it.
I'll see what he says when I go and see what's wrong. I'll update when after next monday on what he said and what he chooses to do.
Thanks, there claims that the main problem for ED might be prostatitis or pelvic floor issues written in propeciahelp.com
Another claim is that hormonal imbalance shrunks the prostate and problems occur.
The problems with prostate cause fatigue, back bain, ED, joint and muscle pain etc.. Very similar problems right? And even there is no pain in that area, you can have inflamation/anormalities in prostate..
Another point is that pelvic floor dysfunction. This muscle can become weak and cause several sexual problems.
I realy want to focus on this, I am 34 years old and for 34 years during erection, my muscle between penis an anus it was pretty hard, now this muscle below is weak. There is sure a dysfunction and there are exercises to strenghten this muscle. Again this muscle can be effected by prostate inflamation. Please check propeciahelp forum/prostate section
Yes I do have very similar problems and thanks for the info. I'll go check out those exercises as well. That would be good if prostate problems were the cause of our ED and it could be corrected. I'm only 23 and dealing with this so it would be great if I could fix this especially if it had to do with the prostate.
So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.
So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.
Hey,
Be careful with Fluoroquinolone type of antibiotics (cipro, lavaquine etc) .. There are lots of people suffering from horrible permanent side effects.. I was prescribed this kind of antibiotic and refused to take it. So Dr took my prostate fluid (yeah finger in the butt and push the prostate to get the fluid) to prescribe the right antibiotic. I get the results next week.
Yea did the same thing to get the fluids for me, I don't think he told me the name for the antibiotics so when I go to get it I'll see what it is. I know my dad takes cipro for his prostate. Hopefully he prescribed the right one for me as well if he got the fluid from me.
Keep me updated on how antibiotic treatment goes for you and if it helps any
Hey,
I received the results and no bacteria is found in urine and prostate fluid. Thanks god, I didn't take Fluoroquinolone type of antibiotic as prescribed.
The funny thing is; after the prostate massage (to get the fluid out) the discomfort (the urgency to urinate and the feeling to pee all the time) is gone by 90%. Somebody had to finger my butt I guess.
Btw, l-arginin is an interesting supplement. It has been less than 1 week and I sleep with semi hard erection in the nights. I had to wait this morning for wc like good old days It feels good but still not a cure!
On 9/19/2014 at 1:06 AM, MrErdem said:On 9/13/2014 at 2:22 AM, pathtorecovery91 said:On 9/13/2014 at 2:03 AM, MrErdem said:On 9/13/2014 at 1:32 AM, pathtorecovery91 said:On 8/27/2014 at 9:42 PM, pathtorecovery91 said:On 8/27/2014 at 9:15 PM, MrErdem said:On 8/27/2014 at 8:18 AM, pathtorecovery91 said:On 8/27/2014 at 4:33 AM, MrErdem said:On 8/22/2014 at 1:42 AM, MrErdem said:My dr says I have prostatitis. He prescribed me antibiotics and alphablocker. Should I use it? There is no pain in that area but other sympthons are common with prostatitis. Pills again [Edited image out]
Please guys, give me some feedback. Do you have prostate problems (difficulty to urinate or frequent urination) as well?
I am about to get prostatitis treatment with antibiotics and I dont want to be missdiagnosed.
I have no pain during pee, but low steam, difficulty in urinate and sometimes frequent urination. Do you have the same?
Hey, I actually have the same problem. I believe it has to do with my prostate because I know prostate problems run in my family. The past few months or so I found it takes like a few seconds or more before I urinate. I don't feel the build up like I used to and the flow isn't that strong anymore. It doesn't hurt to pee or anything but I just don't feel the build up or have a strong stream. Also I don't have frequent urination, just takes a while before it comes out like I said. I was supposed to go to the urologist today but rescheduled it for next monday. I am concerned about having to go on drugs if I have an enlarged prostate because I know that the doc would prescribe me some if somethings wrong but really wouldn't want to take it. In a way though if I do have something wrong with my prostate(which I likely do due to my urination problems), maybe it is the cause of my ED, but also maybe not.
I wouldn't mind taking antibiotics but wouldn't want to take a drug for it.
I'll see what he says when I go and see what's wrong. I'll update when after next monday on what he said and what he chooses to do.
Thanks, there claims that the main problem for ED might be prostatitis or pelvic floor issues written in propeciahelp.com
Another claim is that hormonal imbalance shrunks the prostate and problems occur.
The problems with prostate cause fatigue, back bain, ED, joint and muscle pain etc.. Very similar problems right? And even there is no pain in that area, you can have inflamation/anormalities in prostate..
Another point is that pelvic floor dysfunction. This muscle can become weak and cause several sexual problems.
I realy want to focus on this, I am 34 years old and for 34 years during erection, my muscle between penis an anus it was pretty hard, now this muscle below is weak. There is sure a dysfunction and there are exercises to strenghten this muscle. Again this muscle can be effected by prostate inflamation. Please check propeciahelp forum/prostate section
Yes I do have very similar problems and thanks for the info. I'll go check out those exercises as well. That would be good if prostate problems were the cause of our ED and it could be corrected. I'm only 23 and dealing with this so it would be great if I could fix this especially if it had to do with the prostate.
So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.
So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.
Hey,
Be careful with Fluoroquinolone type of antibiotics (cipro, lavaquine etc) .. There are lots of people suffering from horrible permanent side effects.. I was prescribed this kind of antibiotic and refused to take it. So Dr took my prostate fluid (yeah finger in the butt and push the prostate to get the fluid) to prescribe the right antibiotic. I get the results next week.
Yea did the same thing to get the fluids for me, I don't think he told me the name for the antibiotics so when I go to get it I'll see what it is. I know my dad takes cipro for his prostate. Hopefully he prescribed the right one for me as well if he got the fluid from me.
Keep me updated on how antibiotic treatment goes for you and if it helps any
Hey,
I received the results and no bacteria is found in urine and prostate fluid. Thanks god, I didn't take Fluoroquinolone type of antibiotic as prescribed.
The funny thing is; after the prostate massage (to get the fluid out) the discomfort (the urgency to urinate and the feeling to pee all the time) is gone by 90%. Somebody had to finger my butt I guess.
Btw, l-arginin is an interesting supplement. It has been less than 1 week and I sleep with semi hard erection in the nights. I had to wait this morning for wc like good old days It feels good but still not a cure!
That's god man. Strangely the same day after getting my prostate check and the day after, my urination almost felt normal again but then went back to what it was. I was prescribed antibiotics. They are called Doxy-cycl hycl. I looked up Fluoroquinolone type of antibiotics and I didn't see the ones I'm taking in the list of them. Been on them about a week and don't really see any difference. I'm going to be on them for 15 days so I will see what happens.
Doxycyclin does lot of damage, doctor's (in france) don't prescribe it anymore since some years ago (at least for acne, they used it for that too). And why the hell does you even think that a toxic poison will help you to get better? you don't even have infection. Accutane worst side effect is killing the intestine and you detroy it even more with an antibiotic trying to get better? ok ok.