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Repairing the long-term damage from Accutane

 
MemberMember
223
(@gladiatoro)

Posted : 09/08/2014 10:10 am

Pharmakeia = the administration of toxic substances into the human body , FACT.

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MemberMember
0
(@accutanegavemeeczema)

Posted : 09/08/2014 7:56 pm

Has anyone here found a big help for dry lips post tane?

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MemberMember
0
(@moderateacne10years)

Posted : 09/09/2014 3:25 pm

I have a question:

When Accutane was being used or tested as a chemo drug, what was the dose used on the patients? I have tried googling, but coudln't find anything. I'm very curious. Anyone?

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MemberMember
223
(@gladiatoro)

Posted : 09/09/2014 9:40 pm

Chemotherapy shouldn't even be used for Cancer it's so TOXIC and life destroying there is no place for this poison except in the archives of forgotten medicine , under the term cruel and unusual punishment inflicted on human beings in the name of $$$$ profit. In the not too distant future people will look back and say WTF were they doing they will refer to this time as barbaric and primitive those would be kind words but a good description of the current state of medicine ( allopathic ) that is .

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MemberMember
18
(@accutainted)

Posted : 09/09/2014 10:51 pm

I have a question:

When Accutane was being used or tested as a chemo drug, what was the dose used on the patients? I have tried googling, but coudln't find anything. I'm very curious. Anyone?

It's still used for some brain,pancreatic and skin cancers. I think the dose varies between 2-4 mg per kg a day. I know my gp and derm forgot to mention this to me aswell when I started accutane, must have slipped there mind

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MemberMember
223
(@gladiatoro)

Posted : 09/10/2014 12:06 am

Well Accutainted they don't want to scare future customers of the true reality of there drugs , or the damage they will inflict upon your body / mind , really not good for business . Reality is isotretinoin is a POISON nothing more nothing less anyone that tries to tell you different is simply lying to you . FACT. And once you ingest the poison you will be dealing with damage control for the rest of your life also a FACT. We have to make the best of it it's all we can do our body's have been permanently altered due to a black box drug yes black box drugs are chemo drugs and chemo drugs under allopathic rules are to be used for Cancer but hey let's cross market them to kids and young adults with a few pimples ....brilliant.

Wait I don't think any of us had severe cystic acne I sure as hell didn't I had mild acne hmmm.... btw pimples are harmless isotretinoin therapy CERTAINLY is NOT. I always tell people unless you look like a beast , don't even think of going on this drug even then consider the many other NON TOXIC alternatives available , you can thank me later from sparing you from much misery and suffering .

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MemberMember
18
(@accutainted)

Posted : 09/10/2014 4:43 am

I was once told by a general practitioner that accutane has absolutely no effect on the brain whatsoever, that must be why they use it on some brain cancers

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MemberMember
1
(@pizzaface10)

Posted : 09/10/2014 9:56 am

Just an update I went to the urologist today and he seemed disinterested in what I had to say which was expected even though I showed him everything. On a positive note I masturbated with porn yesterday so I'm really hoping I have PIED

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MemberMember
223
(@gladiatoro)

Posted : 09/10/2014 10:24 am

That's why if you google Accutane and MRI images you can clearly see the brain damage because it has no effect on the human brain yeah , tell me another lie. MRI's don't lie , derms do.

Quote
MemberMember
7
(@09eric09)

Posted : 09/10/2014 11:17 am

I was once told by a general practitioner that accutane has absolutely no effect on the brain whatsoever, that must be why they use it on some brain cancers

Tell me about it. I've actually spoken with a woman, who's son was treated with accutane for cancer of the nervous system.

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MemberMember
0
(@moderateacne10years)

Posted : 09/10/2014 3:16 pm

Does anyone know if it's possible to print this entire thread? If so, can someone explain how? I don't see an option.

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0
(@Anonymous)

Posted : 09/11/2014 8:32 am

For those who do the liver flush try to avoid epsom salt, it's toxic for the kidney & contain too much sulfur. Magnesium citrate is better but still a bit of toxicity. For only one flush epsom salt is acceptable i think but for more it's too toxic to be used.

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MemberMember
359
(@dubya_b)

Posted : 09/11/2014 2:47 pm

On 9/11/2014 at 4:16 AM, moderateacne10years said:

Does anyone know if it's possible to print this entire thread? If so, can someone explain how? I don't see an option.

You can copy/paste text page by page or use an app/browser such as described here:

[Edited link out]

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0
(@Anonymous)

Posted : 09/11/2014 4:18 pm

http:// web . archive.org/save/ http ://********** (without the space ofc)

You can save every page like this manually.

Quote
MemberMember
21
(@pathtorecovery91)

Posted : 09/12/2014 12:32 pm

 

 

My dr says I have prostatitis. He prescribed me antibiotics and alphablocker. Should I use it? There is no pain in that area but other sympthons are common with prostatitis. Pills again sad.png

Please guys, give me some feedback. Do you have prostate problems (difficulty to urinate or frequent urination) as well?

I am about to get prostatitis treatment with antibiotics and I dont want to be missdiagnosed.

I have no pain during pee, but low steam, difficulty in urinate and sometimes frequent urination. Do you have the same?

Hey, I actually have the same problem. I believe it has to do with my prostate because I know prostate problems run in my family. The past few months or so I found it takes like a few seconds or more before I urinate. I don't feel the build up like I used to and the flow isn't that strong anymore. It doesn't hurt to pee or anything but I just don't feel the build up or have a strong stream. Also I don't have frequent urination, just takes a while before it comes out like I said. I was supposed to go to the urologist today but rescheduled it for next monday. I am concerned about having to go on drugs if I have an enlarged prostate because I know that the doc would prescribe me some if somethings wrong but really wouldn't want to take it. In a way though if I do have something wrong with my prostate(which I likely do due to my urination problems), maybe it is the cause of my ED, but also maybe not.

I wouldn't mind taking antibiotics but wouldn't want to take a drug for it.

I'll see what he says when I go and see what's wrong. I'll update when after next monday on what he said and what he chooses to do.

Thanks, there claims that the main problem for ED might be prostatitis or pelvic floor issues written in propeciahelp.com

Another claim is that hormonal imbalance shrunks the prostate and problems occur.

The problems with prostate cause fatigue, back bain, ED, joint and muscle pain etc.. Very similar problems right? And even there is no pain in that area, you can have inflamation/anormalities in prostate..

Another point is that pelvic floor dysfunction. This muscle can become weak and cause several sexual problems.

I realy want to focus on this, I am 34 years old and for 34 years during erection, my muscle between penis an anus it was pretty hard, now this muscle below is weak. There is sure a dysfunction and there are exercises to strenghten this muscle. Again this muscle can be effected by prostate inflamation. Please check propeciahelp forum/prostate section

Yes I do have very similar problems and thanks for the info. I'll go check out those exercises as well. That would be good if prostate problems were the cause of our ED and it could be corrected. I'm only 23 and dealing with this so it would be great if I could fix this especially if it had to do with the prostate.

So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.

So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.

Quote
MemberMember
33
(@ihateaccutane)

Posted : 09/12/2014 1:03 pm

 

 

 

 

 

 

 

 

 

 

My dr says I have prostatitis. He prescribed me antibiotics and alphablocker. Should I use it? There is no pain in that area but other sympthons are common with prostatitis. Pills again sad.png

 

Please guys, give me some feedback. Do you have prostate problems (difficulty to urinate or frequent urination) as well?

I am about to get prostatitis treatment with antibiotics and I dont want to be missdiagnosed.

I have no pain during pee, but low steam, difficulty in urinate and sometimes frequent urination. Do you have the same?

Hey, I actually have the same problem. I believe it has to do with my prostate because I know prostate problems run in my family. The past few months or so I found it takes like a few seconds or more before I urinate. I don't feel the build up like I used to and the flow isn't that strong anymore. It doesn't hurt to pee or anything but I just don't feel the build up or have a strong stream. Also I don't have frequent urination, just takes a while before it comes out like I said. I was supposed to go to the urologist today but rescheduled it for next monday. I am concerned about having to go on drugs if I have an enlarged prostate because I know that the doc would prescribe me some if somethings wrong but really wouldn't want to take it. In a way though if I do have something wrong with my prostate(which I likely do due to my urination problems), maybe it is the cause of my ED, but also maybe not.

I wouldn't mind taking antibiotics but wouldn't want to take a drug for it.

I'll see what he says when I go and see what's wrong. I'll update when after next monday on what he said and what he chooses to do.

Thanks, there claims that the main problem for ED might be prostatitis or pelvic floor issues written in propeciahelp.com

Another claim is that hormonal imbalance shrunks the prostate and problems occur.

The problems with prostate cause fatigue, back bain, ED, joint and muscle pain etc.. Very similar problems right? And even there is no pain in that area, you can have inflamation/anormalities in prostate..

Another point is that pelvic floor dysfunction. This muscle can become weak and cause several sexual problems.

I realy want to focus on this, I am 34 years old and for 34 years during erection, my muscle between penis an anus it was pretty hard, now this muscle below is weak. There is sure a dysfunction and there are exercises to strenghten this muscle. Again this muscle can be effected by prostate inflamation. Please check propeciahelp forum/prostate section

Yes I do have very similar problems and thanks for the info. I'll go check out those exercises as well. That would be good if prostate problems were the cause of our ED and it could be corrected. I'm only 23 and dealing with this so it would be great if I could fix this especially if it had to do with the prostate.

So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.

So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.

Hey,

Be careful with Fluoroquinolone type of antibiotics (cipro, lavaquine etc) .. There are lots of people suffering from horrible permanent side effects.. I was prescribed this kind of antibiotic and refused to take it. So Dr took my prostate fluid (yeah finger in the butt and push the prostate to get the fluid) to prescribe the right antibiotic. I get the results next week.

Quote
MemberMember
21
(@pathtorecovery91)

Posted : 09/12/2014 1:22 pm

On 9/13/2014 at 2:03 AM, MrErdem said:
On 9/13/2014 at 1:32 AM, pathtorecovery91 said:
On 8/27/2014 at 9:42 PM, pathtorecovery91 said:
On 8/27/2014 at 9:15 PM, MrErdem said:
On 8/27/2014 at 8:18 AM, pathtorecovery91 said:
On 8/27/2014 at 4:33 AM, MrErdem said:
On 8/22/2014 at 1:42 AM, MrErdem said:

My dr says I have prostatitis. He prescribed me antibiotics and alphablocker. Should I use it? There is no pain in that area but other sympthons are common with prostatitis. Pills again [Edited image out]

Please guys, give me some feedback. Do you have prostate problems (difficulty to urinate or frequent urination) as well?

I am about to get prostatitis treatment with antibiotics and I dont want to be missdiagnosed.

I have no pain during pee, but low steam, difficulty in urinate and sometimes frequent urination. Do you have the same?

Hey, I actually have the same problem. I believe it has to do with my prostate because I know prostate problems run in my family. The past few months or so I found it takes like a few seconds or more before I urinate. I don't feel the build up like I used to and the flow isn't that strong anymore. It doesn't hurt to pee or anything but I just don't feel the build up or have a strong stream. Also I don't have frequent urination, just takes a while before it comes out like I said. I was supposed to go to the urologist today but rescheduled it for next monday. I am concerned about having to go on drugs if I have an enlarged prostate because I know that the doc would prescribe me some if somethings wrong but really wouldn't want to take it. In a way though if I do have something wrong with my prostate(which I likely do due to my urination problems), maybe it is the cause of my ED, but also maybe not.

I wouldn't mind taking antibiotics but wouldn't want to take a drug for it.

I'll see what he says when I go and see what's wrong. I'll update when after next monday on what he said and what he chooses to do.

Thanks, there claims that the main problem for ED might be prostatitis or pelvic floor issues written in propeciahelp.com

Another claim is that hormonal imbalance shrunks the prostate and problems occur.

The problems with prostate cause fatigue, back bain, ED, joint and muscle pain etc.. Very similar problems right? And even there is no pain in that area, you can have inflamation/anormalities in prostate..

Another point is that pelvic floor dysfunction. This muscle can become weak and cause several sexual problems.

I realy want to focus on this, I am 34 years old and for 34 years during erection, my muscle between penis an anus it was pretty hard, now this muscle below is weak. There is sure a dysfunction and there are exercises to strenghten this muscle. Again this muscle can be effected by prostate inflamation. Please check propeciahelp forum/prostate section

Yes I do have very similar problems and thanks for the info. I'll go check out those exercises as well. That would be good if prostate problems were the cause of our ED and it could be corrected. I'm only 23 and dealing with this so it would be great if I could fix this especially if it had to do with the prostate.

So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.

So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.

Hey,

Be careful with Fluoroquinolone type of antibiotics (cipro, lavaquine etc) .. There are lots of people suffering from horrible permanent side effects.. I was prescribed this kind of antibiotic and refused to take it. So Dr took my prostate fluid (yeah finger in the butt and push the prostate to get the fluid) to prescribe the right antibiotic. I get the results next week.

Yea did the same thing to get the fluids for me, I don't think he told me the name for the antibiotics so when I go to get it I'll see what it is. I know my dad takes cipro for his prostate. Hopefully he prescribed the right one for me as well if he got the fluid from me.

Keep me updated on how antibiotic treatment goes for you and if it helps any

Quote
MemberMember
359
(@dubya_b)

Posted : 09/12/2014 1:28 pm

On 9/13/2014 at 1:32 AM, pathtorecovery91 said:

So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.

So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.

The PRR of developing prostatitis as a result of Accutane, according to FDA and Health Canada reports, is 4.7. Meaning there is an estimated 4.7 times greater risk of developing prostatitis while on Accutane than while taking a different drug.

[Edited link out]

Typical response from your urologist, and I've heard that one before. He can shove his disbelief and his unthoughtful advice up his urethra.

Trust me, a life of ED and generally being ruined sexually is nothing to look forward to.

Quote
Gladiatoro, pathtorecovery91, Gladiatoro and 3 people reacted
MemberMember
21
(@pathtorecovery91)

Posted : 09/12/2014 1:43 pm

On 9/13/2014 at 2:28 AM, Dubya_B said:
On 9/13/2014 at 1:32 AM, pathtorecovery91 said:

So I went to my second urologist in the past week. I went because it takes me a little while to start peeing and have a weakened flow. The first one I went to saw traces of blood in my urine and basically wanted to go stright to doing a cystoscophy where they run a tube up your pee hole to further examine things and would have had to undergone anethesia for the procedure. I was going to go along with it and set a date and everything but later decided it wasn't worth it! I know anethisia costs some money. They didn't even think to check my prostate, which I found kind of funny. So I went to another urologist today and I told him to check my prostate(finger in the butt, very uncomfortable and akward), because of how it could have been an infection, so I was perscribed antibiotics for 2 weeks. I then went to telling him how I took accutane and am pretty sure these problems resulted from me taking it and how there are hundreds and thousands of people going through similar things, but basically he discredited it of course. He said the best thing to do is to not worry about the past and focus on the future. In a way he's right, but it's kind of hard when you are experiencing loss of sensation and ED.

So anyway I'll see if the antibiotics do anything to help my situation in anyway and I'll be sure to update ya'll after two weeks.

The PRR of developing prostatitis as a result of Accutane, according to FDA and Health Canada reports, is 4.7. Meaning there is an estimated 4.7 times greater risk of developing prostatitis while on Accutane than while taking a different drug.

[Edited link out]

Typical response from your urologist, and I've heard that one before. He can shove his disbelief and his unthoughtful advice up his urethra.

Trust me, a life of ED and generally being ruined sexually is nothing to look forward to.

Yea Dubya, and when a doctor tells me that, I should tell them to take accutane for a year as an experiment to see what it does to them if they think it's so good. Then they could judge for them selves when the side effects start happening if it's still this "awesome" drug afterwards. I would want every derm. that promotes this drug for mild to moderate acne, or even severe, to do that, then, then maybe it would change their mind about prescribing to clueless teenagers who know nothing about accutane like in my situation.

But in my opinion Dubya, I think we are finally getting towards a stage where more people and some doctors are opening their eyes to the side effects of this drug that come after taking it. Maybe some time in the near future, or who knows maybe now, there is a scientist out there working on possible causes for these long term side effects and maybe we are getting closer to possible treatments, who knows, right?

I know you are a veteren for accutane side effects and have been posting for many years, and thank you for that. We just need to continue to get more and more people like us on the forum to continue spreading the word no matter what doctors say to us!

By the way, do you know if there is any kind of petition they have or that could be made for the forum for people to sign who have suffered? That would help us sufferers out if we could get say 10,000 or more signitures.

Quote
MemberMember
359
(@dubya_b)

Posted : 09/12/2014 4:29 pm

Quote

Yea Dubya, and when a doctor tells me that, I should tell them to take accutane for a year as an experiment to see what it does to them if they think it's so good. Then they could judge for them selves when the side effects start happening if it's still this "awesome" drug afterwards. I would want every derm. that promotes this drug for mild to moderate acne, or even severe, to do that, then, then maybe it would change their mind about prescribing to clueless teenagers who know nothing about accutane like in my situation.

Not a bad idea.

To prove the supposed safety of Accutane, force-feeding these hubristic derms and physicians the drug for 6 months sounds very entertaining, but it would certainly be misconstrued as attempted murder by poisoning after the side-effects set in.

...Or not. Maybe they would simply be told they are full of shit and sent home by their doctors with a prescription for anti-depressents and/or Viagra like the rest of us.

Quote

But in my opinion Dubya, I think we are finally getting towards a stage where more people and some doctors are opening their eyes to the side effects of this drug that come after taking it. Maybe some time in the near future, or who knows maybe now, there is a scientist out there working on possible causes for these long term side effects and maybe we are getting closer to possible treatments, who knows, right?

Not really. No one cares. Our doctors often refuse to report our side effects, and most of us are apparently too lazy or cowardly to assure that their side-effects have been officially recorded or to stand up for themselves and fight. Shame on anyone reading this who didn't file a report online! It's easy.

I've never heard of a scientist in recent times who is specifically looking for a causal link between Accutane and adverse effects. It's mostly been wishy-washy statistics, which are far from representative of the true number of suicides and adverse effects experienced as a result of Accutane. Only those that are reported make it into the pie charts and bar graphs.

And many , if not most, long-term sufferers think this mess is entirely solvable going by what we know now. It's like we have been flapping our arms for years on end trying to fly to the moon instead of lobbying to have a rocket built.

Anyone disagree?

Quote

We just need to continue to get more and more people like us on the forum to continue spreading the word no matter what doctors say to us!

The forums alone only provide us with places to hold meetings. Let's find a way to actually push the issue no matter what some misinformed doctors have to say.

They say they have never heard of such things as what we claim happening to anyone else, yet here we are speaking with each other.

I'll spend the next couple of months looking into cost-effective ways to spread a loud and clear message outside of a small and somewhat closed circle such as the one we have here.

Any helpful ideas?

Quote

By the way, do you know if there is any kind of petition they have or that could be made for the forum for people to sign who have suffered? That would help us sufferers out if we could get say 10,000 or more signitures.

[Edited link out]

Quote
MemberMember
21
(@pathtorecovery91)

Posted : 09/12/2014 4:58 pm

On 9/13/2014 at 5:29 AM, Dubya_B said:
Quote

Yea Dubya, and when a doctor tells me that, I should tell them to take accutane for a year as an experiment to see what it does to them if they think it's so good. Then they could judge for them selves when the side effects start happening if it's still this "awesome" drug afterwards. I would want every derm. that promotes this drug for mild to moderate acne, or even severe, to do that, then, then maybe it would change their mind about prescribing to clueless teenagers who know nothing about accutane like in my situation.

Not a bad idea.

To prove the supposed safety of Accutane, force-feeding these hubristic derms and physicians the drug for 6 months sounds very entertaining, but it would certainly be misconstrued as attempted murder by poisoning after the side-effects set in.

...Or not. Maybe they would simply be told they are full of shit and sent home by their doctors with a prescription for anti-depressents and/or Viagra like the rest of us.

Quote

>But in my opinion Dubya, I think we are finally getting towards a stage where more people and some doctors are opening their eyes to the side effects of this drug that come after taking it. Maybe some time in the near future, or who knows maybe now, there is a scientist out there working on possible causes for these long term side effects and maybe we are getting closer to possible treatments, who knows, right?

Not really. No one cares. Our doctors often refuse to report our side effects, and most of us are apparently too lazy or cowardly to assure that their side-effects have been officially recorded or to stand up for themselves and fight. Shame on anyone reading this who didn't file a report online! It's easy.

I've never heard of a scientist in recent times who is specifically looking for a causal link between Accutane and adverse effects. It's mostly been wishy-washy statistics, which are far from representative of the true number of suicides and adverse effects experienced as a result of Accutane. Only those that are reported make it into the pie charts and bar graphs.

And many , if not most, long-term sufferers think this mess is entirely solvable going by what we know now. It's like we have been flapping our arms for years on end trying to fly to the moon instead of lobbying to have a rocket built.

Anyone disagree?

Quote

We just need to continue to get more and more people like us on the forum to continue spreading the word no matter what doctors say to us!

The forums alone only provide us with places to hold meetings. Let's find a way to actually push the issue no matter what some misinformed doctors have to say.

They say they have never heard of such things as what we claim happening to anyone else, yet here we are speaking with each other.

I'll spend the next couple of months looking into cost-effective ways to spread a loud and clear message outside of a small and somewhat closed circle such as the one we have here.

Any helpful ideas?

Quote

By the way, do you know if there is any kind of petition they have or that could be made for the forum for people to sign who have suffered? That would help us sufferers out if we could get say 10,000 or more signitures.

[Edited link out]

If only there was a way to get news coverage about these side effects for the generic versions of accutane. The problem with that though is they would probably need more proof that many people are suffering from the side effects long term. Like you said we are speaking amoungst ourselves in closed walls on this forum.

I feel if there was anything that could be done to get some kind of news coverage on this, it would help tremendously.

Quote
MemberMember
153
(@crank92)

Posted : 09/13/2014 9:49 am

On 9/13/2014 at 5:58 AM, pathtorecovery91 said:
On 9/13/2014 at 5:29 AM, Dubya_B said:
Quote

Yea Dubya, and when a doctor tells me that, I should tell them to take accutane for a year as an experiment to see what it does to them if they think it's so good. Then they could judge for them selves when the side effects start happening if it's still this "awesome" drug afterwards. I would want every derm. that promotes this drug for mild to moderate acne, or even severe, to do that, then, then maybe it would change their mind about prescribing to clueless teenagers who know nothing about accutane like in my situation.

Not a bad idea.

To prove the supposed safety of Accutane, force-feeding these hubristic derms and physicians the drug for 6 months sounds very entertaining, but it would certainly be misconstrued as attempted murder by poisoning after the side-effects set in.

...Or not. Maybe they would simply be told they are full of shit and sent home by their doctors with a prescription for anti-depressents and/or Viagra like the rest of us.

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>>But in my opinion Dubya, I think we are finally getting towards a stage where more people and some doctors are opening their eyes to the side effects of this drug that come after taking it. Maybe some time in the near future, or who knows maybe now, there is a scientist out there working on possible causes for these long term side effects and maybe we are getting closer to possible treatments, who knows, right?

lockquote>

Not really. No one cares. Our doctors often refuse to report our side effects, and most of us are apparently too lazy or cowardly to assure that their side-effects have been officially recorded or to stand up for themselves and fight. Shame on anyone reading this who didn't file a report online! It's easy.

I've never heard of a scientist in recent times who is specifically looking for a causal link between Accutane and adverse effects. It's mostly been wishy-washy statistics, which are far from representative of the true number of suicides and adverse effects experienced as a result of Accutane. Only those that are reported make it into the pie charts and bar graphs.

And many , if not most, long-term sufferers think this mess is entirely solvable going by what we know now. It's like we have been flapping our arms for years on end trying to fly to the moon instead of lobbying to have a rocket built.

Anyone disagree?

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>We just need to continue to get more and more people like us on the forum to continue spreading the word no matter what doctors say to us!

The forums alone only provide us with places to hold meetings. Let's find a way to actually push the issue no matter what some misinformed doctors have to say.

They say they have never heard of such things as what we claim happening to anyone else, yet here we are speaking with each other.

I'll spend the next couple of months looking into cost-effective ways to spread a loud and clear message outside of a small and somewhat closed circle such as the one we have here.

Any helpful ideas?

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By the way, do you know if there is any kind of petition they have or that could be made for the forum for people to sign who have suffered? That would help us sufferers out if we could get say 10,000 or more signitures.

[Edited link out]

If only there was a way to get news coverage about these side effects for the generic versions of accutane. The problem with that though is they would probably need more proof that many people are suffering from the side effects long term. Like you said we are speaking amoungst ourselves in closed walls on this forum.

I feel if there was anything that could be done to get some kind of news coverage on this, it would help tremendously.

There was a protest earlier this year both in the US and UK.

Dubya was the only one who turned up in the US, myself and one other sufferer turned up to the UK one alongside some parents of the suicide victims. And that was all..

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0
(@Anonymous)

Posted : 09/13/2014 7:56 pm

This movie could have been better but was nice ^^

You can get your health back but never those years lost.

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MemberMember
5
(@accutanereallysucks)

Posted : 09/13/2014 8:10 pm

If something is going down with accutane, sign me in/up. I wouldn't mind selling a lawyer the last bit of my dried up soul to at least get the group of serious suffers some compensation, even if its just an apology somewhere from whoever suggested accutane. or better yet an apology to the medical world from Rouch, we might just accept it

This movie could have been better but was nice ^^

You can get your health back but never those years lost.

How can i just get my health back, i mean sure a real caveman diet of simple foods is delicious and all....

i have to avoid all kinds of crap now only attempting to find something that is a livable diet.

health doesn't always come back to acceptable terms. although i do hope my 100% always straight diarrhea gets better

i also have some pretty chronic (for my age, its painful) arthritis going on. eyesight strain and problems are hell

its all only getting worse in this last year (I'm four years off accutane), confusion is even kicking in on what to do about it.

cannibis has helped me gain some momentum and stimulate

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(@Anonymous)

Posted : 09/13/2014 8:41 pm

It became worse and worse each years yea. To break this it first start with diet, then to get your health back it require a lot of cleansing for years also, not funny but it's the only way.

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