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Repairing the long-term damage from Accutane

 
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(@Anonymous)

Posted : 09/02/2014 6:35 pm

Congestioned lymphatic system and weak glands, specially thyroid+parathyroid & adrenals, typical. Pineal and adrenals are responsible of this sleeping problem. Depression is parathyroid (also connective tissue, bones, .. problems).

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(@tilex)

Posted : 09/02/2014 7:40 pm

I too am suffering from post-Accutane effects. I noticed when i take 2 tabs of bromelain 2,000 to 3,000 GDU/tab or 3 tabs of Wobazyme it helps with my severe headache and IBS. I agree with you, prescription drugs are all bullshit.

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(@tilex)

Posted : 09/02/2014 7:43 pm

L-arginine 3-6gms/day divided into three times a day should help with the ED/sexual dysfunction

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(@dubya_b)

Posted : 09/02/2014 8:26 pm

Sorry moderateacne.

You are looking for answers to a problem no one understands.

Just tough it out for now.

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(@oli-girl)

Posted : 09/02/2014 9:33 pm

I developed type 1 diabetes due to Accutane also in my early thirties. My question to some of your recent issues are your sugars under control? Do you pump?

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(@movingon)

Posted : 09/02/2014 10:21 pm

To individuals who have blood sugar problems, completely cutting out gluten has ridded me of the blood sugar problems. I can eat all the crap I want (not a great idea, but still) and if i avoid gluten, my body does not get extreme inflammation like it did, and I don't die trying to drink gallons of water a day. the gluten was causing all of these issues. and hey! I did RAS testing and they found ZERO food allergies, yet I know I am intolerant to many things like dairy and wheat for example. That's not to say those with a diagnosis of diabetes will be cured, but it may help the underlying causes and management. I always keep in mind what my doc said about diabetes being a symptom of another problem. and the beat goes on...

although i'm sure many of you already know that about gluten, it took me a while to deduce that it was just the gluten causing that issue for me in particular.

Other random update: Also, been ingesting a small amount of baking soda which has been managing all of my acidic symptoms of reflux, indigestion, scalp itching, and ACTUALLY helping with joint pain. Not a cure by a long shot, but good for management! I take breaks every once in a while.

Completed my 3rd liver flush and honestly, I am feeling better overall, and each times tons of "stones" come out. I know there is controversy over what actually comes out but I am sold it is gall and liver related. I take the same amount of oil each time and each time the stone size and shape is different, and different hues and colors. The interesting thing is the sudden collagen production in the skin after a flush. Like perfect shine and texture, smooth, etc. joint pain nonexistent. Each time I do it the effects last longer so I think there is something to it but it is too early to say it's definitively working. Just have to be very careful to take probiotics and keep electrolytes balances after a flush if you decide to do it. One can dehydrate easily if not paying attention. I'm also not recommending that everyone go and do a flush but just reporting on my efforts. Wish you all well! :)

The only other thing I am taking is L-carnitine for muscle mass which is working swimmingly. Can finally play soccer again and mostly pain free :)

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(@roland1968)

Posted : 09/03/2014 3:10 am

 

 

 

Completed my 3rd liver flush and honestly, I am feeling better overall, and each times tons of "stones" come out.

Hello MovingOn,

this sounds great. I am glad to hear, that you are doing better. What kind of protocol did you follow? Is it Clark or Moritz or something else?

Thanks

Roland

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(@pizzaface10)

Posted : 09/03/2014 2:19 pm

Hello I took accutane(myorsian) from May 3rd 2014-July 28th 2014. My acne was sort of bad but my dermatologist suggested accutane and at first I declined because I was terrified to do blood work but eventually I decided to take it because no matter what my acne never went away. Anyways I took 40mg a day for the first two months with my only side effects being dry lips and even worse acne. So during the third month my dermatologist increased my dosage to 60mg a day and told me to take prednisone because of inflammation and an antibiotic also. I was taking 7 pills a day for acne which didn't really bother me. I stopped the antibiotic and prednisone after two weeks because it sort of helped. Then on July 24th I noticed the tip of my dick was red and dry I didn't think much of it but thought it was an uti. The next day was my 18th birthday so my parents let me drink a beer. After that I got worried about the uti so I went to my doctor and came back negative, I am not sexually active so it couldn't be an std. He told me to put powder on it and call back if it persists. The day I tried to masturbate but I couldn't get hard at all. At this time I looked up its connection with accutane and I stopped taking that poison immediately. After about a week with no morning wood or anything it slowly came back and I thought I was 100% cured. The next day was my yearly appointment at my doctors office and I told him everything was better because I honestly thought I was cured. They made me take an eye exam and said I probably need glasses. I then went back to my dermatologist and told her all that and she was 100% certain it was the prednisone that caused the erectile dysfunction but I told her I would never take accutane again. Then a few days later I masturbated again as I thought I was fine but to my surprise I came early even without an erection I got scared as shit but I decided to try it again the next day. For the next few days I noticed it was extremely watery but I didn't care because at least I could get hard. I waited a week before i masturbated again but it was still watery. I also have constipation and brain fog but other than that I'm completely fine. I told my parents about this because I'm nervous so my mom called the FDA and the dermatologist and they both said that they never heard of this side effect and my dermatologist insisted I go back on accutane that bitch. I gave up masturbating now for a week and I noticed I can get erections obviously not as hard as they used to but as long as I can please my lady friend I'll be OK. I also noticed that it has lost a lot of sensitivity and my left testicle sometimes hurts which is probably related. Last night I had a wet dream but it was still just like water. The only way I can get erect now is if through visual stuff but not from masturbating which is weird. I havea urologist aappointment on September 10. But I'm still hopeful because I was on accutane for that long and I'm pretty sure I would've went insane if I continued on it. My dick is still dry and it burns when I piss but whatever. I would like to ask what can I do immediately to help. Like I said I'm doing no pmo so sorry for the long post I just like to talk about my problems. Thanks

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(@movingon)

Posted : 09/03/2014 5:59 pm

Thanks guys. I appreciate your support! I followed the moritz protocol. If you do choose to try this, I would not take as much epsom salts as he recommends, as it is overkill. I take about half the amount, about 2 tablespoons give or take. I've even read that the salts aren't necessary just the olive oil to purge the bile out and release the stones. I also don't do that apple juice due to trying to keep candida in check. You can substitute the apple juice with malic acid, which is what softens the "Stones". I would highly recommend dowloading the amazing liver and gallbladder flush PDF, it's free and very informative. I think some of the stuff is a little "out there" but all in all, the basic components make a lot of sense and seem to be reflected each time i flush.

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(@moisturer)

Posted : 09/03/2014 8:21 pm

 

I will be taking roaccutane on the 21st of September, 20mg ever other day ( body weight 53kg).

I am keen to know, the people who suffered with side effects and long term effects, what dose were you on?

Obviously reading this thread leaves me with a few worries, however i appreciate that not everyone will have the same experiences.

Maybe you will require another course at a slightly higher dose; maybe on your second exposure things will snap. The crux of my point is no one knows what is more dangerous: is it high strength short exposure, or is it low dose long exposure? There are people who got f*cked up by a herb. Its like nobody really knows anything, and it is all a big game of Russian roulette.

 

Accutane is a copy of the vitamin A. A lot of vitamin A give similar symptoms to accutane. I would therefore think that a small dose of accutane over a long period should be better than taking a high dose of accutane for a short ammount of time.

Even if you think of accutane as posion in comparison to vitamin A, people inject themseves with posion (herion for example) over many years, but once they inject a triple dose one time, they die.

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(@sage1)

Posted : 09/03/2014 8:29 pm

You need to follow a liver flush with at least one session of colon irrigation.

*I really loathed having to eat fish sticks as a young pirate; I instinctively knew there weren't real treats from the deep.

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(@Anonymous)

Posted : 09/04/2014 1:10 am

 

One real journalist? Didn't knew that existed.

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(@sage1)

Posted : 09/04/2014 5:06 am

Oh, my dear friend, on the contrary, I spoke in allegory terms, by introducing an aside (I broke from the main subject to voice my inner thoughts, using cheap seafood as a metaphor). I have always loathed fish sticks, but that surface detail (fish stick) was referring to you. In that symbolism, you are the barnacle-bitten fraudster, that I can no longer endure. I can no longer sit idle, as you play these people like a fiddle with your phony empathy and stories. So, you see, I was taking to you. Out. Please, make it permanent this time.

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(@dubya_b)

Posted : 09/04/2014 11:21 am

I told my parents about this because I'm nervous so my mom called the FDA and the dermatologist and they both said that they never heard of this side effect and my dermatologist insisted I go back on accutane that bitch.

 

 

You and your mother are either being fed misinformation or damned lies!

 

There are undoubtedly many dermatologists and FDA employees who have heard of the potential of Accutane to cause sexual side effects.

 

I embarrassed myself in front of the FDA headquarters this Spring protesting the fact that sexual side effects aren't listed in the drug information. Anyone who entered the complex that day was surely aware of it. ...How soon they forget.

 

There was also an instance of a former Accutane patient who murdered his dermatologist in revenge for permanent mental and sexual side effects he blamed on Accutane. His story was making the news up until a few years ago.

 

Nearly every single person I have contacted about this says sexual side effects aren't listed because there have been so few cases reported. Part of this is due to a combination of laziness and fear of embarrassment of patients with these types of health issues. In any case, dermatologists and GPs refuse to report sexual symptoms because of this fact. It's outrageous and self-perpetuating.

You may want to ask your mother to keep calling the FDA until she finds someone who pays attention. You can also report your side effects directly through the FDA's MedWatch program or through RxISK's online system. (both listed in my signature)

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(@accutanereallysucks)

Posted : 09/04/2014 4:01 pm

Down with Roche, and most likely screw your Derm too. Bastards.

Contact Alan Forsberg [removed]
Something will be done about how this drug was marketed twards acne sufferers. Something will be done.

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Dubya_B, Gladiatoro, Dubya_B and 3 people reacted
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(@captain-birds3ye)

Posted : 09/04/2014 6:58 pm

Oh, my dear friend, on the contrary, I spoke in allegory terms, by introducing an aside (I broke from the main subject to voice my inner thoughts, using cheap seafood as a metaphor). I have always loathed fish sticks, but that surface detail (fish stick) was referring to you. In that symbolism, you are the barnacle-bitten fraudster, that I can no longer endure. I can no longer sit idle, as you play these people like a fiddle with your phony empathy and stories. So, you see, I was taking talking to you. Out. Please, make it permanent this time.

Fixed.

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(@gladiatoro)

Posted : 09/04/2014 9:54 pm

What if I told you that there were lots of cures for acne that didn't include chemical drugs .... I call it ACNE Inc. , Just like FOOD Inc. , DRUG Inc. VACCINE Inc. GMO Inc. CANCER Inc . VIRUS Inc. etc... ,basically everything we have been told has been a complete.... LIE. BTW my acne is pretty much gone now by taking Zinc such a simple non toxic cure along with a clean diet who would have thought.... But I still have brain fog from Accutane oh well it's manageable . I have come to realize that you should never trust an allopathic doc or allopathic derm because in reality all they have is modern day SNAKE OIL.

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(@dubya_b)

Posted : 09/04/2014 10:17 pm

On 9/5/2014 at 3:01 AM, awashington said:

Down with Roche, and most likely screw your Derm too. Bastards.

Contact Alan Forsberg @ [removed]

Something will be done about how this drug was marketed twards acne sufferers. Something will be done.

Who is this Alan Forsberg?

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(@captain-birds3ye)

Posted : 09/04/2014 10:19 pm

What if I told you that there were lots of cures for acne that didn't include chemical drugs .... I call it ACNE Inc. , Just like FOOD Inc. , DRUG Inc. ,basically everything we have been told has been a complete.... LIE. BTW my acne is pretty much gone now by taking Zinc such a simple non toxic cure along with a clean diet who would have thought.... But I still have brain fog from Accutane oh well it's manageable . I have come to realize that you should never trust an allopathic doc or allopathic derm because in reality all they have is modern day SNAKE OIL.

Although I love your posts Gladdy and agree with you fundamentally, we should also consider that the liver is basically the hormonal control center of the body. I know we all refer to Accutane as poison, but in most cases (of course there are always exceptions) it is our bodies that converted it to poison, noting the rare group of people we are.

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(@Anonymous)

Posted : 09/05/2014 1:22 am

Liver the hormonal control center? lol. What about the pituitary? (the master gland), the hypothalamus, adrenals, thyroid/parathyroid? You focus on the wrong thing. Every problems accutane induce is by affecting those glands & other organs with lymph congestion.

The real problem human liver isn't adapted to vitamin A overdose compared to other animals (carnivorus & omnivorus species), we cannot detoxify vitamin A overdose (in animal/preformed form [remember that we are not "manufactored" to eat meat/animal products]). With accutane the liver + the skin, intestine & other cells has to convert it to maintain a certain balance (since our liver isn't adapted to excrete it). That cause big problems, when it finally succeed to excrete it month after the end of the treatment it left highly poisoned cells & congestion + weakness everywhere very difficult to fix, that should never happen in that amount in 20+ years naturally, and so fast that our emuntories (skin, kidneys, colon, lungs, ..) can't handle it (acne = filtration via the third kidney, the skin).

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(@movingon)

Posted : 09/05/2014 7:46 pm

I found this article to be very interesting, mostly stuff I knew from previous research and experience but it ties everything together nicely in terms of digestive health.

http://chriskresser.com/9-steps-to-perfect-health-5-heal-your-gut

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(@accutanereallysucks)

Posted : 09/05/2014 8:59 pm

I am Alan Forsberg working with attorny at law and I am putting together a serious deal as an accutane sufferer. Nearly every doctor I've met can get out of town with their mis information. I have colities, arthritus, and mental imparment from accutane, and its taking all my energy to put this together but again, I have been screwed so bad with this chemo that something is going to happen.

Liver the hormonal control center? lol. What about the pituitary? (the master gland), the hypothalamus, adrenals, thyroid/parathyroid? You focus on the wrong thing. Every problems accutane induce is by affecting those glands & other organs with lymph congestion.

The real problem human liver isn't adapted to vitamin A overdose compared to other animals (carnivorus species), we cannot detoxify vitamin A overdose (in animal/preformed form [remember that we are not "manufactored" to eat meat/animal products]). With accutane the liver + the skin, intestine & other cells has to convert it to maintain a certain balance (since our liver isn't adapted to excrete it). That cause big problems, when it finally succeed to excrete it month after the end of the treatment it left highly poisoned cells & congestion + weakness everywhere very difficult to fix, that should never happen in that amount in 20+ years naturally, and so fast that our emuntories (skin, kidneys, colon, lungs, ..) can't handle it (acne = filtration via the third kidney, the skin).

+1 Great post, Great thoughts.

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(@accutanereallysucks)

Posted : 09/05/2014 10:33 pm

I know its basically impossible to make a new post about these side effects of accutane. It seems like everything has all been "complained" about before. This leaves us at "???????????....!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!" But why? It is really simple.... Accutane is not meant for the human body and with a slightly larger dose prescribed, that many more people would be having side effects. It is really not complaining when you are actually influenced by the drug and it feels like your dead ended on one thing or another in your life. I FEEL YOU. You don't know it tell you feel it, like depression but even more confusing with accutane. And then a place comes like acne.org, where the truth is revealed through many lights. Look at this thread, I sparked when I saw it. (With as little spark as my adrenals can still zap). Stephan,You are the man LOL!

At this point, when someone is doing well on accutane and says that we are all whiners, in a very mature way us sufferers laugh! YOU'VE BEEN WARNED.Youll know when you are damaged and that is up to you. Check here if you (hand on bible here) have been damaged by accutane.

So besides the list of accutanes crap, and trying to dig any deeper into it, what the "#@*%" do we do about it still? And dont tell me a high intensity workout. Id rather walk the dog and enjoy the sunshine if you know what I mean.

My first thought is how much time are you willing to devote towards this whole thing, say we started a group getting serious about it, still nothing would happen.

If I was predisposed to any of this, than screw you previous generations of family for taking prescription posions and messing up our family tree! DOWN with the fucking FDA for heaven sake. And you will notice I didn't resort to cursing until the last bit here.

*Chanting* Down with FDA with evil and down with money. Did Roche know what they did there? Hoffman could have been nothing but a gentleman for all I know. Like Scarface says, I trust me.

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(@accutainted)

Posted : 09/06/2014 5:20 am

On the last couple of pages of the medschat accutane thread there is this guy called dr Steve discussing accutane side effects , he is a dermatologist who actually seems interested in understanding the long term side effects of the drug instead of just flat out denying them like they usually do. Check it out if you have time:)

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(@dubya_b)

Posted : 09/06/2014 8:17 am

^ This Dr. Steve does actually sound a bit interested in us:

[Edited link out]

On 9/6/2014 at 9:59 AM, awashington said:

I am Alan Forsberg working with attorny at law and I am putting together a serious deal as an accutane sufferer. Nearly every doctor I've met can get out of town with their mis information. I have colities, arthritus, and mental imparment from accutane, and its taking all my energy to put this together but again, I have been screwed so bad with this chemo that something is going to happen.

Great! I assume you live outside of the US because no attorney here seems to want to touch these cases due to the legal invulnerability of generic manufacturers? Hope I'm wrong about this.

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