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Btw. Guys my night vision decreased, cars in the back mirror are just two spots of light. Double vision and dryness do not go away. I went to a doctor, he said nothing is wrong and I have to use eye drops. I have been diagnosed with b12 and vit D shortage. Now as night vision problems mostly occur due to the lack of vitA, I think there is something wrong with vitamin usage in my body. Earlier posts mentioned about that; body reacts badly to vitA intake, in the meantime there is lack of vitamin A.
night vision impairment can unfortunately be permanent.How long is it since you took this poison?
I was taking alcohol while on accutane too.
I have seen other posts on the internet about men having sexual sides with alcohol and accutane.
Alcohol might be increasing the toxicity even with low doses.
It damages after 5 pills?
In my case I drank high volume alcohol several times during 2 months period of accutane (votka, beer, wine etc). I had no diet. I thought I damaged my liver. But after 5 pills, can it be a liver damage?Btw. Guys my night vision decreased, cars in the back mirror are just two spots of light. Double vision and dryness do not go away. I went to a doctor, he said nothing is wrong and I have to use eye drops. I have been diagnosed with b12 and vit D shortage. Now as night vision problems mostly occur due to the lack of vitA, I think there is something wrong with vitamin usage in my body. Earlier posts mentioned about that; body reacts badly to vitA intake, in the meantime there is lack of vitamin A.
I post to many other forums that accutane is poison, but people do not listen. They ask me to leave the forum. We should make our sound higher. I started to use this poison in january. If I heard about these side effects before I wouldnt start. I take a little responsibility that new sufferers use this drug because we were not able to make our sound higher. I will write my story and post to the biggest newspapers, may be one of the paper will publish it, or make an interview with me.. I already saved one girl in my office, she was not sure about using accutane and after my effort, she did not start accutane. Now she is ok, she made some diet and sunbath thing, she no more needs accutane..
I still can not believe, is it so easy? If I punch somebody in the street I will be sued and punished. Somebody took our happy lives and we can not do something. Especially my derm, I am sure he is happy now. I wrote him and his response is that everything has a risk. You take risk even when you travel by plane. Accutane was the risk and you may be the unlucky. Fuck you. You should have warned me about the risks.. I am very angry, I hope that my interviews will be on the news, not something like "patient killed dr"..
Btw. Guys my night vision decreased, cars in the back mirror are just two spots of light. Double vision and dryness do not go away. I went to a doctor, he said nothing is wrong and I have to use eye drops. I have been diagnosed with b12 and vit D shortage. Now as night vision problems mostly occur due to the lack of vitA, I think there is something wrong with vitamin usage in my body. Earlier posts mentioned about that; body reacts badly to vitA intake, in the meantime there is lack of vitamin A.
night vision impairment can unfortunately be permanent.How long is it since you took this poison?
Yeah it may be permanent, no suprise.
The weird thing is, during Jan and Feb (2 months where I used accutane 40mg/day) I had the typicall side effects. After I stopped (due to sexual crash), the other side effects came up. Night vision problem came after months I stopped the drug.
Btw. Guys my night vision decreased, cars in the back mirror are just two spots of light. Double vision and dryness do not go away. I went to a doctor, he said nothing is wrong and I have to use eye drops. I have been diagnosed with b12 and vit D shortage. Now as night vision problems mostly occur due to the lack of vitA, I think there is something wrong with vitamin usage in my body. Earlier posts mentioned about that; body reacts badly to vitA intake, in the meantime there is lack of vitamin A.
night vision impairment can unfortunately be permanent.How long is it since you took this poison?
Yeah it may be permanent, no suprise.
The weird thing is, during Jan and Feb (2 months where I used accutane 40mg/day) I had the typicall side effects. After I stopped (due to sexual crash), the other side effects came up. Night vision problem came after months I stopped the drug.
Same with me, my night vision impairment came like 2 years after. It's never consistent either, it lasts for a couple months, then goes away for a couple months.
Accutane has epigenetic effects, plain and simple.
The following study is only a small fraction of those effects:
[Edited link out]
QuoteEffects of Isotretinoin Treatment on Epigenetic Programming in T Cells
Eugenia Becker, Claudia Stanzel, Kirstin Atrott, Gerhard Rogler, Isabelle Frey-WagnerBackground: Retinoids are essential nutrients involved in the maturation of the immune
system. The majority of in vitro and in vivo studies provided evidence that retinoid treatment
exhibits anti-inflammatory properties and is effective acne therapy. However, there is a
controversial discussion about a causal relationship between isotretinoin treatment and the
onset of inflammatory bowel disease (IBD). Some patients have claimed that they developed
acute intestinal inflammation during isotretinoin treatment or had an onset of IBD weeks
or even years after cessation of the medication. We have previously shown that isotretinoin
treatment has no adverse effects in two mouse models of inflammatory bowel disease. Here
we investigated the influence of isotretinoin treatment on genetic imprinting in two T cells
subsets as a potential mediator of long-term effects of isotretinoin treatment on the immune
system. Methods Balb/c mice were treated with isotretinoin (30 mg/kg bodyweight) or vehicle
orally for 2 weeks and kept for further 4 weeks to study potential direct and long-term
effects. Naive T cells and regulatory T cells were isolated directly after the treatment period
and at the end of the study by magnetic cell sorting. After isolation of genomic DNA,
microRNA and mRNA, samples were sequenced with the Illumina technique to study
changes in methylation patterns, microRNA and mRNA expression. For predicting target
genes of determined microRNAs the software Target Scan and Traget Scan Custom were
used. For identification of pathways significantly affected by isotretinoin treatment the
software Meta Core was applied.Results: Analysis of epigenetic modifications in naive and
regulatory T cells revealed potential long-term effects in both T cells subsets. In regulatory
T cells mainly the methylation pattern was altered in T cells isolated four weeks after cessation
of treatment. In naive T cells on the other hand predominantly microRNA expression was
altered in T cells isolated after four weeks without treatment. Pathway analysis by Meta
Core revealed that pathways of immune responses, concerning antigen presentation and
T helper cell differentiation were affected. Further functional analysis of affected pathways
is currently under investigation.Conclusions: Preliminary results identified changes in methyl-
ation pattern and microRNA expression in naive and regulatory T cells which might mediate
potential long-term effects after isotretinoin treatment, yet differences between the different
T cell subsets were far more pronounced than differences induced by isotretinoin treatment.
Accutane is the easily the worst thing I have ever encounted.
After taking it I developed a real bad stutter, that comes along every 5 or so words.
I don't grow a beard. My dad does. I have ED. My scalp flakes all the time and is always itchy. I have persistent eye floaters. No muscle mass what so ever. Find it impossible to gain weight. Peeling lips. Terrible anxiety. No confidence and I still have acne. WTF ! I was frothing on life before this drug. Pretty low on life. It's so hard to improve post accutane
Dubya_B that's a very good find and it confirms my belief about epigenetic changes in the immune system.It's nice to see studies starting coming out which shed light on the real causes of our longterm side effects.If T cells are affected then this explains the link between autoimmune diseases and isotretinoin.Before accutane i also had noticed that whenever i got the flu(which means immune system activation) my acne cleared and my libido dropped.I believe our immune system has become permanently overreactive post accutane and that is why many of us get autoimmune diseases and that's why we have a permanent libido drop.I also believe that these changes in the immune system are induced through the brain as brain and immune system are very closely related and communicate via neuroendocrine signals(e.g:psychiatric disease and autoimmunity connection) and this explains the many psychiatric side effects like depression etc that we get.
hello guys,
i would like to share my success story with you.I was suffering from chronic low libido which i am sure was caused by accutane.I experienced complete absence of sexual sensation on my genitals and as a result erectile dysfunction and difficulty having an orgasm.After i stopped taking accutane my symptoms strangely got worse as the time passed instead of improving.I tried various things to reverse my libido loss such as healthy diet,some drugs that were supposed to help improve libido, but nothing worked.I then found a report in the internet about dr. Pezzi who has written the book ''the science of sex'' and claimed that he reversed his libido loss caused by accutane by taking the drug finasteride.I was determined to find a solution to my problem so i decided to try it.I began taking 1mg/day and then slowly increased to 5mg/day.I took it for a total of 5 months.During that time i started experiencing a return of my acne which was accompanied by a small increase in libido and a slight return of sexual sensation.I continued taking it as long as i noticed some positive effects.The big surprise happened when i decided to stop taking the drug.I experienced a huge increase in libido,sexual sensation and acne.My spontaneous and morning erections which were gone since i had taken accutane came back and i no longer had problems reaching an orgasm.I don't know what exactly this drug did to my system but it worked.6 months have passed since i stopped taking finasteride and i still experience all the positive effects,so i believe the effects are permanent.I now feel like a normal man of my age(i am 28 years old).The only side effect i had was the return of acne but i believe that has to do with the return of my libido but i prefer having acne and a healthy libido than having no acne and no libido.
And how are things so far my friend? I have been reading so many threads and you seem the only one who was able to magically reverse the side affects of accutane as the drug magically stole our sex drive away.
Honestly I'd read through the 253 pages of ideas to the solution but Accutane CHANGES you. This thread is completely just.... eh. It is great and all in the light of hope, and definatly caught my attention awhile back. Unfortunately though after chemo It is too late, maybe in the second life? All I know is that at some point in my life something major will happen to this, whether it be death or what I do not know. There is no way I will continue living feeling this depleted and achy, it's hard to word but it is just how it is. Anyone is welcome to message me about anything.
Edit: A note on suppliments, forget about them. It is nothing but more crap you are putting into your body ESPECIALLY the worst are the common letter vitamins, A,B,C,D,E... Taking these will just throw your body farther away from ITS OWN natural equilibrium.
/Thread
hello guys,
i would like to share my success story with you.I was suffering from chronic low libido which i am sure was caused by accutane.I experienced complete absence of sexual sensation on my genitals and as a result erectile dysfunction and difficulty having an orgasm.After i stopped taking accutane my symptoms strangely got worse as the time passed instead of improving.I tried various things to reverse my libido loss such as healthy diet,some drugs that were supposed to help improve libido, but nothing worked.I then found a report in the internet about dr. Pezzi who has written the book ''the science of sex'' and claimed that he reversed his libido loss caused by accutane by taking the drug finasteride.I was determined to find a solution to my problem so i decided to try it.I began taking 1mg/day and then slowly increased to 5mg/day.I took it for a total of 5 months.During that time i started experiencing a return of my acne which was accompanied by a small increase in libido and a slight return of sexual sensation.I continued taking it as long as i noticed some positive effects.The big surprise happened when i decided to stop taking the drug.I experienced a huge increase in libido,sexual sensation and acne.My spontaneous and morning erections which were gone since i had taken accutane came back and i no longer had problems reaching an orgasm.I don't know what exactly this drug did to my system but it worked.6 months have passed since i stopped taking finasteride and i still experience all the positive effects,so i believe the effects are permanent.I now feel like a normal man of my age(i am 28 years old).The only side effect i had was the return of acne but i believe that has to do with the return of my libido but i prefer having acne and a healthy libido than having no acne and no libido.
And how are things so far my friend? I have been reading so many threads and you seem the only one who was able to magically reverse the side affects of accutane as the drug magically stole our sex drive away.
My sex drive has improved dramatically from doing nothing. In fact, my bald spot it now filled back to normal as well, and my bone density has also improved. Weird because my exhaustion/weakness seems to be getting worse, which is by far my worst symptom at this point, can't do much of anything. After my crash, I had no feeling down there for about 9 months. It's now been 1 year and 7 months since my "crash" and my libido is back to about 65-70% of what it was before.
Long time reader, first time poster. I took Accutane over 6 years ago and am still trying to get my life back. I haven't read through all of the pages but it sounds like we are screwed, except for a couple guys who said a large amount of cardio has helped them... correct? I have spent thousands of dollars on doctors and tests. Most recently I had the Alcatz food allergy test done, reacting to about 40 foods. I no longer get the fatigue after eating certain foods although I still have a general fatigue ALL THE TIME. I generally eat paleo. I am not a doctor but to ME I feel like my nervous system is screwed up. I have had poor adrenal function in the past (light headed upon standing, circadian rhythm way out of whack, etc). Thyroid panels have previously been out of whack but actually looked really good this last round of blood work (1 month ago). I have iron issues... doctor explained it something like my iron stores are over full yet my cells are asking for more iron?? Tested positive for autoimmune activity (multiple times). Get sharp pains in my hips frequently. Dry scalp. Brain fog (not good, I am an engineer). ED....
Let me try and explain my current feeling... If I had to sprint 10 yards I could do it, but the act of standing is just too much for me. Its like I am all or nothing. This feeling comes and goes, but is especially bad today. I am so sick of being tired and moody all the time. Sleep doesn't help. I used to weigh 20 lbs more than I do now, before I took accutane. That was 20 lbs of muscle. I can't even lift weights anymore I am so fatigued and achy.
We need to somehow pull together and fix this problem we all share!!!! Can we find a common thread besides symptoms that we all have such as blood work markers? Something common that all the sufferers have to help pinpoint the cause of this? Is there ONE spot for us to put information rather than spread out over 250 pages??
On 8/10/2014 at 7:18 AM, SCOTT242 said:We need to somehow pull together and fix this problem we all share!!!! Can we find a common thread besides symptoms that we all have such as blood work markers? Something common that all the sufferers have to help pinpoint the cause of this? Is there ONE spot for us to put information rather than spread out over 250 pages??
Well said.
This thread is quite the popular spot but it is a mess for collecting data.
Our best option at the moment is the Accutane sub-forum at All Things Male:
[Edited link out]
The forum configurations and structure leave a lot to be desired, but there have been a few members who have posted their symptom profile and bloodwork on the site.
if you think that you are not going to recover after accutane you most probably won't. Not because your mind has to be happy and harmonious to recover. To an extent it does, but I find its mainly that you have to have massive amounts of motivation to try anything if your life is set around a pessimistic state accutane has left you in, it makes you give up on trying anything new, that could well be amazingly beneficial.
Consider this. After accutane (infact I can almost remember the week) I suffered a massive variety of problems with my health. I could barely string a sentence together, a had a terrrrible social anxiety (around my best friends I found myself short of breath,my heart rate would spike) , I looked constantly pale, my gums would bleed almost every day even with very good dental hygiene, i found myself constanttttly brain fogged (i literally felt like someone was applying a small amount of pressure to my head at all time) , my best friends stated that I seemed out of it and slowly started to distance themselves, I had terrrrible short term memory, blanking on events weeks and days before, sometimes that extended to forgetting the best memories high school memories and my skin eventually began to break out again.
2 years of this and now Im here. My 'symptoms' have more or less subsided. With the exception of a minor few. I still get pimples, my scalp is itchy but over the last month or so that has greatly reduced. My gums still draw up blood although only after a good hard brushing. My memory ahs improved ten fold, which goes hand in hand with my social anxiety. It allows me to contrive my thoughts through experiances I can vividly remember now and this allows me to feel a whole lot more confident. At the same time my brain fog has nearly lifted. I can honestly say that with the last few jobs Ive had I feel as though I am one of the sharpest members in the team.
I wouldnt totally consider this a success story and state that i am 'healed'. Perhaps in another year or so I may deem that worthy of my condition. But I can 1000% say that I have made massive and significant improvements over me initial state, post accutane.
Im not going to go into massive details but basically I have always considered myself a 'do'er'. I scour the internet nearly everyday for anything that looks remotely promising through forum posts, back this up by finding other mutiple forum posts with the same angle and a more or less convincing honest tone. I then generally try and find more posts by the user who seems like he's on to something and through that I generally notice a pattern of relative success, or indeed failure. From there I just fucking try whatever the hell is the main theme around that point. In the beginning it was hard to justify spending the money when I could just as easy spend that same money on doing cool shit and buying cool stuff for my life. Now (and this may seem lame) I spend a good majority of my earnings on possible remedies, by that I mean committing all the way for a good solid period of time. If It feels harmful (and most of the time it isnt, it might just achieve nothing at all) I stop early. For the ideas I find that are backed up by say 10 or more forum posts and say a youtube video or two, Ill commint for a solid 3 or 4 months (currently commited to 1 remedy with probably 10 months left until I say Im done)
I honestly believe this is what it takes. I don't consider myself to be the guru of health just a persistent bastard. In 50 years if I still have these problems that I have associated to accutane Id rather have thought fuck Im glad I gave it my all then rather than just slothing through and being a depressed dude who gave up.
One or two people have said (and you might despise this) that accutane is more or less a significant factor that turned their life around for the better. If you truely take the time to conquer this shit, you will have learnt a massive shit ton of knowledge about what is good and bad for the body, delving into food, exercise and lifestyle changes that truly do inevitably shift you into be a more optimistic person. And that I think goes a long way into what I consider would be a life worth living, a distorted sense of meaning and substance.
TL;DR - Try stuff, commit, don't just read posts and gather an view that all is fucked and nothing will change. Acknowledge that to overcome something as brutal as accutane you really will have to make some really massive lifestyle changes that are permanent ( I cant stress that enough ) also spend the money to do all this, fashion and electronics are over rated these days.
It looks like persistent erectile dysfunction after treatments such as accutane and finasteride were brought to light in the medical community. I just saw this posted in pubmed. Check it out.
This could be one step closer to something being done about this.
For those messaging me; my RSO is prepped and ready in the fridge at home. I cannot start though till I return from holiday in 2 weeks time. I will update with progress.
Of note is that a PFS'er I recently initiated conversation with due to what I deemed to be someone who could stick to a protocol in a somewhat religious manner. I shared my research and under my non-medically qualified suggestion he has commenced vaping recently and for the first time since pre-finasteride (2+years) he has been able to have sex without viagra. He has also ordered some cannabis oil from Holland which from my perspective looks more legit than anything else I've ever seen on the internet. I'll keep you updated on any progress he receives. Furthermore, there are few individuals on this thread that are undergoing RSO treatment. They will post when they are ready. So patience people.
Those of you remaining productive &/or positive on this thread. Congratulations.
Once again newbies, can you please report your side effects to the links listed in mine/Dubya's signature. The study that pathtorecovery91 has posted is due to people doing exactly that!
Hi all,
I finished my first and only course of accutane ~8 months ago.
Since then i've been suffering from 3 different things linked to accutane :
-Hair loss
-Dry lips
-Dry/peeling skin on my arms
I had pretty much accepted the fact that it was irreversible but a few weeks ago i saw my dry skin problem on my arms resolved itself. From one day to the next almost, one day i just looked at my arms and noticed my skin wasn't peeling anymore like it had for the past 8 months and they were back to normal. It was the "least bad" of the three problems but it gives me hope to see the two others maybe also go away with time.
Stay strong.
Hi all,
I finished my first and only course of accutane ~8 months ago.
Since then i've been suffering from 3 different things linked to accutane :
-Hair loss
-Dry lips
-Dry/peeling skin on my arms
I had pretty much accepted the fact that it was irreversible but a few weeks ago i saw my dry skin problem on my arms resolved itself. From one day to the next almost, one day i just looked at my arms and noticed my skin wasn't peeling anymore like it had for the past 8 months and they were back to normal. It was the "least bad" of the three problems but it gives me hope to see the two others maybe also go away with time.
Stay strong.
Are you male?did you experience any libido loss?
Just wanted to make a quick update on my Rso
Some changes.
I restarted my job which requires light exercise and instead of exercise breaking my body down it now adds to my muscle mass.
The last couple years I couldnt make any more than 2-3 pullups. It had no use when I did it everyday or twice a day, my body just couldnt grow any muscle or strentgh.
Im doing ten atm with ease.
I completely got my muscle mass back.
My libido is completely back. It goes erect without having a concious thought about sex, when I see a sexy woman it goes erect even when I dont think she is my type.
Im currently off Rso. I was unable to take it for a week but my libido is still the same. Im even confident enough to say I dont need it anymore because my body is switched on again and it is a matter of time before my body completely heals itself.
Just wanted to make a quick update on my Rso
Some changes.
I restarted my job which requires light exercise and instead of exercise breaking my body down it now adds to my muscle mass.
The last couple years I couldnt make any more than 2-3 pullups. It had no use when I did it everyday or twice a day, my body just couldnt grow any muscle or strentgh.
Im doing ten atm with ease.
I completely got my muscle mass back.
My libido is completely back. It goes erect without having a concious thought about sex, when I see a sexy woman it goes erect even when I dont think she is my type.
Im currently off Rso. I was unable to take it for a week but my libido is still the same. Im even confident enough to say I dont need it anymore because my body is switched on again and it is a matter of time before my body completely heals itself.
Did you have any other symptoms?