09eric09 check your blood glucose levels.High blood glucose goes hand in hand with high triglycerides.I believe our metabolism has been impaired post accutane.I say this because in general i feel colder apart from having higher cholesterol and higher glucose levels.I can't believe how dermatologists and doctors still believe that accutane acts on the skin to get rid of acne.It is obvious that other changes occur which change the brain and the immune system which then change the skin to cure acne,this is why we get so many brain related and immune related side effects(autoimmune diseases,allergies etc),as brain and immune system are closely related and communicate via neuroendocrine signals and via unknown mechanisms.This confirms the study of B.Melnik which states that upregulation of survival genes such as foxo are responsible for the mechanism of action of isotretinoin.The thing is even this author is unable to explain why these changes persist.(here we have to admit that epigenetic longlasting/permanent chyanges occur).

Glucose has always been fine too, I actually always feel hot.

For some people this drug hits them very hard it is after all chemotherapy NOT fun stuff , others are more lucky , I have no sexual side effects yes lucky but no doubt dose related obviously more = more damage , but for some even 200mg is severe it's all how the body deals with the poison we are all different . Other than moodiness I have no sides to report considering the side effects I have had this truly is a blessing.

I recommend people watch there diet , yes avoid DHT blockers , stay away from ANY fish oil , and limit your alcohol intake if you drink at all problem is alcohol dehydrates even mild stuff like beer / wine and since we are dealing with chronic cellular dehydration it's not good. Try beef bone broth soup for joint pain caused by the CHEMO . And most important think positive. Smoke / ingest / vape hemp it works for most .

Pete (=

I really hope the suicide thing was not targeted at me as that is absolutely appauling. I will get you banned from this site permanently if it is. that's despicable to even comment on that.

Furthermore, your insecurities and hatred of other people is apparent. Projected inner self-hatred, placed on others to make yourself feel better. How about we show compassion for others instead of using your big bad vocabulary to tear people down to size....NO ONE else on here is looking for a competition. We are all just looking for answers. BE NICE. PLAIN AND SIMPLE.

 

Anybody else's triglycerides affected from taking accutane? Unbelievable, 5 years later and I'm still borderline high.

The same here with cholesterol.I can't believe how many deep changes this poison has done to us.

Poison causes fatty liver! Also if you suffer from anything like thyroid etc that causes cholesterol issues!

And people wonder why Moon his latest incarnation got banned hmmm... such negative comments spewing from his primitive mind. Fact is we all have life long chemotherapy POISONING with it's latent and often brutal side effects , and what we are dealing with is damage control nothing more nothing less , so we have to make the best of it , in reality it is all we can do.

 

Anybody else's triglycerides affected from taking accutane? Unbelievable, 5 years later and I'm still borderline high.

The same here with cholesterol.I can't believe how many deep changes this poison has done to us.

Poison causes fatty liver! Also if you suffer from anything like thyroid etc that causes cholesterol issues!

that's true.Also low vitamin D which is very common post accutane can cause high cholesterol.But in my case i had a perfectly fine cholesterol level(170) and from the very first month of poisoning with this horrible drug it went up to 200.I thought that it would fall after treatment stopped but it is still in the 200s after 6 years.

Yes, I know what you mean Gladdy; but I am willing to bet that the accumulative effects of ALL the slight changes lead to something immeasurable that we now have to live with. I have no idea buddy about the number of isotretinoin victims but, Im sure there are many lurkers. We are very lucky to have a forum that includes us.

I have a friend of mine who has been taking oral isotretinoin since he was 20 years old.He is now 32.He stops taking it in summer only due to retinoid sunlight toxicity.I am sure that if he had any bad side effects he would have stopped taking it.If he does have side effects they are minor and he probably hasn't linked them to accutane.It's interesting that his father died when he was 38 years old because of brain cancer.So i believe my friend has a strong genetic/epigenetic predisposition to develop brain cancer.As many if not all accutane side effects are related to the brain and given the fact that isotretinoin is a chemotherapy drug often used to treat brain cancers, it is obvious why my friend is so resistant to accutane side effects.

@Joliment isotretinoin may be lipophilic but is not stored longterm like vitamin A.Your dermatologist is such an idiot for believing that it never leaves the body.I can't believe there are doctors out there who have no clue at all about what they are prescribing.

Hi everybody,

I'm new but in fact I've been visiting this thread for like 2 years.. trying to find out what is wrong with me..

I'm a 26 y young male, took accutane at 19..

Since then I'm quite fu$k3d..

symptoms:

- sleep is useless (I wake up several times and I'm very annoyed.. I hate sleep even though I'm mostly tired)

- fatigue most of the time

- sexual problems (I'm better now ... a little like 70%)

- trouble concentrating or doing anything and I loved to do alot of stuff .. programming web design playing basketball ..

- bone loss and muscle loss (i've used to work out and yea..)

- unable to grow a beard (this can be related since it's not usual in my family)

- social anxiety.. i don't really want to go out there :/

- blue nails (circulation problems? maybe adrenal problems?..)

- my TSH is high (4.3) - some doctors believe that this is okish..

- my calcium is high 10.2 - also some doctors believe this is okish..

what i've tried:

- supplements.. alot of them.. most of them (D, B Complex, K2, Selenium, Magnesium, Zinc, .. most of them)

- diets (paleo, drlwilson diet, all fruit diet, vegan diet, vegetarian diet and now I follow some principles of ray peat - raypeat.com, peatarian.com)

- i had two surgeries.. i thought I couldn't sleep because of a sleep apnea caused by my tonsils so I had them removed and also fixed my deviated septum.. I feel somehow better.. helped like 10%

- tried to do some yoga, meditation, reading, anything

- i tried CBD oil.. meh nothing much or maybe I haven't tried it long enough

- right now I'm trying some NDT from Thailand (natural dessicated thyroid) + pregnenolone / k2 / vit e i take them in cycle

I am curious if you guys have your calcium level high? Because from what I've been reading I might suffer from "hyperparathyroidysm". To be honest I would be glad to suffer from that and fix it with a (3rd) surgery.. lol

Good luck guys keep it up!

ps: sometimes when you guys show off your health freak potential.. you make me feel great.. I think this drug would be great to test on GP's.. maybe they would be so health concerned as we are lol

ps2: i don't like that anonyy guy

So your friend has been taking isotretinoin for 12 years or so , WTF he truly must be a freak of nature that can handle the poison , like I said we are all different with our genetic make up . But as I have said before this drug should be reserved for sever cystic nodular acne ONLY that is very rare indeed , and NOT for people who have a few pimples . But derms had this stuff out like candy it's just so wrong , people always want the easy answer take the pill for this take a pill for that true healing is not from a synthetic pill but comes from diet , nutrition , NON GMO food / no processed food , exercise , sun light .

This drug (& any other drug) should be reserved only to the mongoloids who created them, no one else. When we understand the cause of all "diseases"/symptoms there is no more use for any chemical crap. I personnaly have more respect for a street drug dealer than a doctor (legal drug dealer). At least the street drug dealer doesn't fool you.

World war 3 is on its way around the next 5 years, you all should all stop mind-masturbating on dumb androgen dht etc.. theories, that's only symptoms, and do what's required while "still possible", there is only one way to be healthy. This will be my last message i tried enough i think.

ps2: i don't like that anonyy guy

I know, people doesn't like truth, they prefer comforting lies and easy solutions.

Hi guys and girls. My name is Erik and I just signed up to the site. I have lurked this site for years off and on and found the info and people on here wonderful. First of all I'd like to say I truely feel for everyone that has suffered the ill effects of Accutane. In my humble opinion it should be banned, once you discover what it does and how it works only a lunatic would disagree. That being said I unfortunately allowed self esteem and poor judment get the best of me and I'm 39 years old. For years I have struggled with moderate severe acne mostly on my face and scalp. I've always known of accutane (my father did 2 courses in his life thus far) and he claims he never had any side effects besides dry lips and a few bloody noses. He had much worse acne did i have ever had and he took his courses years ago when there was less info avilable so I in his case I guess I understand. In my own case I always thought about accutane but the horror stories I have read always pushed me away from it. Recently though I met a new girl and started breaking out bad again and I'm ashamed to say that even at my age I let my insercurity of my skin push me into a horrible possibly life altering desicion.

So to cut to the chase about 3 weeks ago I took 'the plunge' as they call it. And began accutane at 40 mgs per day. In my case everything seemed to come faster than most report. I mean by day 2 i had a horrible intial break out, on day 3 my nose was already dry and blood spots, my lips were already very chapped. Now i knew these were common side effects and people say that means its 'working' yeah working alright..

Anyhow I could deal with the dry lips and nose but 3rd day in I also had very dry eyes that stung like when cutting an onion. I love my video games and I couldnt play them because my eyes were so dry and painful. (dont wear galsses, never had any dry eye or eye problems ever).

Day 5 (after 200mg TOTAL accutane 40mg*5) I came to my senses and said this is definately bad stuff , I'll deal w acne rather than bad eyes ect..

so i stopped taking the accutane and I took my last pill aprrox 3 weeks ago. My eye dryness has not resolved! I went to the eye dr a week ago for a exam and

she said she sees no damage in eyes or vision issues but does see that my eyes are dry and sees dry flakes in my eye lashes, told me to use eye drops and wash eye lashes w baby shampoo/water solution. Till ths day no relief To make matter worse my head hair is shedding away I mean i cant even put my fingers through my hair without several hairs falling out. But accutane seems to be the gift that keeps on giving, because starting 4 days ago Ive been experiencing horrible muscle fatigue and joint pain from head to toe. I mean I cant sleep at night because I ache so bad i toss and turn all night. Then when its time to wake up and go to work I can barely stand at work beacuse mt legs, knees and feet are so weak that getting through a normal day has become an almost undoable task! I feel like Im 80yrs old no joke. ALL THIS FROM 5 40 MG PILLS?!! WOW I'm a grown man and I'm scared!

Other small sides I been getting is burping constant, rashes, slight depression wiich is probaly due to all these things i'm dealing with.

So my question to you guys/girls is is it possible that 200mg total dosage could cause permanent issues for me?? I'm really hoipng because I stopped so soon that this poison will flush out of my system soon and hopefully this joint pain and extreme fatiuge will reside?!

also is there anything I can do or should do to try and reverse some of this damage?

Is it posible my eyes will never recover and always be dry and blood shot now??!

Im freaking out! Please anyody with any insight on this please respond. everyone on this site seems to be educated on this topic. ofcourse my derm and pcp told me that 200 mg of accutane couldnt possibly do any of this to me and that the drug has already left my system, so it must be allergies or some other random coincidence!! ohhh please what a crock of BS! yeah i have NEVER had joint pain or eye issues ever in my life... It make me ill how some dr's will defend this crap to the bitter end....

Thanks for reading my rather long first ever post! I hope to hear back from many of you

~Erik

ps sorry for the typos and mis-spells rushing as im running late to work...

When you can demonstrate appropriate social skills and display any shred of empathy, I'll let you criticize my expertise in psychology. Until that point, you have nothing to stand on. You aren't worth my time either way. In fact most people don't even respond to you because I am almost certain they're fatigued from reading your ridiculously unecessary posts.

Has any wild person tried vitamin A intravenously?? I'm curious as to how the accutainted body would respond. If we cannot successfully metablize vitamin A, could it be the way in which our body obtains in that can effect it/make it harmful? Porbably a dumb question, but my teachers always said there was no such thing

I struggle to understand how some people that I've talked to report getting well after omega 3's and ingesting vitamin A, and the other half of us don't. And you can send me those scientific articles, but, it doesn't really explain the intense variability.

Have fun with your symptoms

Let's face REALITY Accutane is a controlled poisoning of the body with life time side effects nothing more nothing less oh and it's a chemo drug that would explain the poisoning part , any derm that tries to tell you different is LYING to you FACT. With that being said it's not that bad sure we got poisoned and lied to etc... but we have to make the best of it , life is short .................. live it.

I think our comments and insights , experiences , long term side effects will eventually lead to the banning of this EVIL / TERRIBLE drug , it's just not right to poison young people for life , it's so wrong on so many levels , but what would one expect form Allopathic Inc. CUT / POISON / BURN is there specialty . Future generations will thank us . And like I said many times before go to natural news .com if you want to learn something.

anybody? any help or info on my above post..ohh another freak and scary side? it seems i no longer pre-ejaculate... wtf!!??? I'm really freaking out now. seems like i'm getting all the sides from this crap and just 3 weeks after 5 total pills!

@Erik,

The symptoms you speak of are commonly discussed side effects of Accutane.

Please report your side effects to medwatch or RxISK.org, even the embarrassing ones.

A doctor is legally able to use his or her own discretion when determining whether or not to file an adverse-event report.

Sexual side effects from Accutane are extremely under-reported. It is unlikely a medical professional will take your claims of ejaculatory disorders at face value.

Look up "Hans Petersen Accutane", another story of a few pills seriously harming someone.

There was also a young woman previously active in this thread who has long-term damage from only 5 pills.

Neither your derm nor your pcp know how the drugs works, so who are they to dismiss the possibility it is at fault?

There is no guarantee that you will recover, but don't assume the worst yet.

Might be best to give it another month and see if your situation improves before panicking.

anybody? any help or info on my above post..ohh another freak and scary side? it seems i no longer pre-ejaculate... wtf!!??? I'm really freaking out now. seems like i'm getting all the sides from this crap and just 3 weeks after 5 total pills!

have you noticed any genital numbness or libido issues?

It's hard to tell at this point but something doesn't seem right down there. I woke up today w a rash on my right arm.. add that to my continued dry irritated eyes, joint muscle pain, hair loss, and overall fatigue and depression. Wow the fing gift that just keeps ongiving . I feel like my life has been derailed. I have no want to do anything I have to force myself to work.. how the hell can a Dr give me this for moderate acne and sleep at night , I feel like I'm stuck in a nightmare

@Erik,

The symptoms you speak of are commonly discussed side effects of Accutane.

Please report your side effects to medwatch or RxISK.org, even the embarrassing ones.

A doctor is legally able to use his or her own discretion when determining whether or not to file an adverse-event report.

Sexual side effects from Accutane are extremely under-reported. It is unlikely a medical professional will take your claims of ejaculatory disorders at face value.

Look up "Hans Petersen Accutane", another story of a few pills seriously harming someone.

There was also a young woman previously active in this thread who has long-term damage from only 5 pills.

Neither your derm nor your pcp know how the drugs works, so who are they to dismiss the possibility it is at fault?

There is no guarantee that you will recover, but don't assume the worst yet.

Might be best to give it another month and see if your situation improves before panicking.

Thank you for your reply. That's what I hoping is this nightmare is temporary, but the research and reading I been doing honestly is scaring the hell out of me. I agree I should try not to panic but it's easier said than done! Ofcourse my acne has came back full force which I expected due to the fact I discontinued the poison and seriously lesson learned because at this point I could care less about acne it's the very LEAST of my problems now. If we could only turn back time.. That being said I was hoping and wishing and ecstatic to see my acne and facial oil return, because my self theory was that would be a sign that the poison has left my body, but unfortunately although my oil and acne is back to the state of pre-accutane all the symptoms continue and seem to be getting worse. I'm sorry for the babbling but I feel so alone and I have no one to vent this to because unless you suffer this like we do people just don't understand. I have family members that brush it off as it's in your head or you read too much on the internet, but I'm 39yrs old I know my body and how it normally acts and feels and this is not normal for me in any sense of the word.

Hi everybody,

I'm new but in fact I've been visiting this thread for like 2 years.. trying to find out what is wrong with me..

I'm a 26 y young male, took accutane at 19..

Since then I'm quite fu$k3d..

symptoms:

- sleep is useless (I wake up several times and I'm very annoyed.. I hate sleep even though I'm mostly tired)

- fatigue most of the time

- sexual problems (I'm better now ... a little like 70%)

- trouble concentrating or doing anything and I loved to do alot of stuff .. programming web design playing basketball ..

- bone loss and muscle loss (i've used to work out and yea..)

- unable to grow a beard (this can be related since it's not usual in my family)

- social anxiety.. i don't really want to go out there :/

- blue nails (circulation problems? maybe adrenal problems?..)

- my TSH is high (4.3) - some doctors believe that this is okish..

- my calcium is high 10.2 - also some doctors believe this is okish..

what i've tried:

- supplements.. alot of them.. most of them (D, B Complex, K2, Selenium, Magnesium, Zinc, .. most of them)

- diets (paleo, drlwilson diet, all fruit diet, vegan diet, vegetarian diet and now I follow some principles of ray peat - raypeat.com, peatarian.com)

- i had two surgeries.. i thought I couldn't sleep because of a sleep apnea caused by my tonsils so I had them removed and also fixed my deviated septum.. I feel somehow better.. helped like 10%

- tried to do some yoga, meditation, reading, anything

- i tried CBD oil.. meh nothing much or maybe I haven't tried it long enough

- right now I'm trying some NDT from Thailand (natural dessicated thyroid) + pregnenolone / k2 / vit e i take them in cycle

I am curious if you guys have your calcium level high? Because from what I've been reading I might suffer from "hyperparathyroidysm". To be honest I would be glad to suffer from that and fix it with a (3rd) surgery.. lol

Good luck guys keep it up!

ps: sometimes when you guys show off your health freak potential.. you make me feel great.. I think this drug would be great to test on GP's.. maybe they would be so health concerned as we are lol

ps2: i don't like that anonyy guy

You have a parathyroid issue. Get parathyroid hormone tested alongside calcium. Your doctors are idiots for ignoring it, by the way. A good resource I use is parathyroid.com, or google it or something. It has all the information on that crud.

Hi everybody,

I'm new but in fact I've been visiting this thread for like 2 years.. trying to find out what is wrong with me..

I'm a 26 y young male, took accutane at 19..

Since then I'm quite fu$k3d..

symptoms:

- sleep is useless (I wake up several times and I'm very annoyed.. I hate sleep even though I'm mostly tired)

- fatigue most of the time

- sexual problems (I'm better now ... a little like 70%)

- trouble concentrating or doing anything and I loved to do alot of stuff .. programming web design playing basketball ..

- bone loss and muscle loss (i've used to work out and yea..)

- unable to grow a beard (this can be related since it's not usual in my family)

- social anxiety.. i don't really want to go out there :/

- blue nails (circulation problems? maybe adrenal problems?..)

- my TSH is high (4.3) - some doctors believe that this is okish..

- my calcium is high 10.2 - also some doctors believe this is okish..

what i've tried:

- supplements.. alot of them.. most of them (D, B Complex, K2, Selenium, Magnesium, Zinc, .. most of them)

- diets (paleo, drlwilson diet, all fruit diet, vegan diet, vegetarian diet and now I follow some principles of ray peat - raypeat.com, peatarian.com)

- i had two surgeries.. i thought I couldn't sleep because of a sleep apnea caused by my tonsils so I had them removed and also fixed my deviated septum.. I feel somehow better.. helped like 10%

- tried to do some yoga, meditation, reading, anything

- i tried CBD oil.. meh nothing much or maybe I haven't tried it long enough

- right now I'm trying some NDT from Thailand (natural dessicated thyroid) + pregnenolone / k2 / vit e i take them in cycle

I am curious if you guys have your calcium level high? Because from what I've been reading I might suffer from "hyperparathyroidysm". To be honest I would be glad to suffer from that and fix it with a (3rd) surgery.. lol

Good luck guys keep it up!

ps: sometimes when you guys show off your health freak potential.. you make me feel great.. I think this drug would be great to test on GP's.. maybe they would be so health concerned as we are lol

ps2: i don't like that anonyy guy

Hey man

when u say you have tried dr wilsons diet do you mean the nutrional balancing program he recomends? I think it takes about a year to do properly.

I'm going to put this bluntly ACCUTANE = CHEMO TORTURE and thus symptom management nothing more nothing less.

And Allopathic medicine = modern day SNAKE OIL.

It damages after 5 pills?

In my case I drank high volume alcohol several times during 2 months period of accutane (votka, beer, wine etc). I had no diet. I thought I damaged my liver. But after 5 pills, can it be a liver damage?

Btw. Guys my night vision decreased, cars in the back mirror are just two spots of light. Double vision and dryness do not go away. I went to a doctor, he said nothing is wrong and I have to use eye drops. I have been diagnosed with b12 and vit D shortage. Now as night vision problems mostly occur due to the lack of vitA, I think there is something wrong with vitamin usage in my body. Earlier posts mentioned about that; body reacts badly to vitA intake, in the meantime there is lack of vitamin A.

I post to many other forums that accutane is poison, but people do not listen. They ask me to leave the forum. We should make our sound higher. I started to use this poison in january. If I heard about these side effects before I wouldnt start. I take a little responsibility that new sufferers use this drug because we were not able to make our sound higher. I will write my story and post to the biggest newspapers, may be one of the paper will publish it, or make an interview with me.. I already saved one girl in my office, she was not sure about using accutane and after my effort, she did not start accutane. Now she is ok, she made some diet and sunbath thing, she no more needs accutane..

I still can not believe, is it so easy? If I punch somebody in the street I will be sued and punished. Somebody took our happy lives and we can not do something. Especially my derm, I am sure he is happy now. I wrote him and his response is that everything has a risk. You take risk even when you travel by plane. Accutane was the risk and you may be the unlucky. Fuck you. You should have warned me about the risks.. I am very angry, I hope that my interviews will be on the news, not something like "patient killed dr"..

The best part of the entire travesty is that we have gotten nowhere really after 30 years.

No acceptance of a link between Accutane and many of its side effects, sparse and incomplete scientific investigation into the causes of side effects, and no reliable treatments for most of its side effects.

Seek medical attention for permanent sexual side effects, expect to be laughed out of every physician's office.

Complain of severe side effects after a few pills, expect to be laughed out of every physician's office.

Commit suicide to escape the side effects of Accutane, expect the blame to be shifted elsewhere.

Seek help from family and friends, expect to see many eye rolls.

We got fucked and are expected to take it in stride.