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Repairing the long-term damage from Accutane

 
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223
(@gladiatoro)

Posted : 04/13/2014 8:39 am

Shadeo 14. What was your dosage in mg... ? Well like I said if you do drink don't drink very often and mild alcoholic beverages like wine / beer only. I would say a high quality beer eg. German purity law beer can be consumed once in a while but sparingly. Yes it cured my stomach issues but it also caused unwanted side effects ie back pain problem is alcohol dehydrates and since we are dealing with CHRONIC CELLULAR DEHYDRATION well you figure it out. So with that being said if you have stomach issues I would recommend moderate drinking once in a while key word moderate. CBD is something we should all look into no question it has the most promise in our treatment protocol .

I can't believe there putting kids on this evil poison that's just so wrong on so many levels . This stuff messes up a lot of things in the body and a growing child really doesn't need to be poisoned / stunted growth is another side effect . Roche truly is one sinister petrochemical pharmaceutical co. but most are. I would say they are on top of the heap though no question.

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(@shadeo14)

Posted : 04/13/2014 1:20 pm

I was in the upper range, 1mg/kg so 80mg a day. Don't know the exact cumulative dosage but I stopped for a few days halfway through, restarted, and ended about a week early. I think the word has to get out that the side effects are permanent, physicians don't know **** and even the most educated derms don't understand accutane, even though there's plenty of scientific literature on it out there.

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223
(@gladiatoro)

Posted : 04/13/2014 2:18 pm

I dare say we know more about this DRUG than most anyone lol... except maybe for ROCHE but they claim not to know the true

mechanism ok.....

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21
(@pathtorecovery91)

Posted : 04/13/2014 2:31 pm

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

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8
(@sunsetblvd)

Posted : 04/13/2014 7:01 pm

 

However, having looked at the site it espouses the same methodology as anonny; fruit + veg only. Another trend emerging?

 

Also if you don't mind seeing as you've recovered just basically retelling your experiences. These questions can guide you;

 

i) Accutane dosage and duration

ii) when you took accutane

iii) when you first noticed side effects

iv) what side effects, be specific if possible

v) duration of side effects

vi) When you started noticing a recovery

vii) duration of recovery

viii) What you believe to be the cause of your recovery.

No offense man, but I'm not going to answer those questions. I understand you are suffering and feel for you. I know the pain Accutane can cause people because it caused me more pain than anything else ever has come close to. All I can say is take my advice for what it is and get better or continue searching all and testing all these complicated theories of supplements and what not. Getting better doesn't happen over night but eating only fruits and taking Robert Morse herbs is what will do it. I pray for all of us that the suffering ends.

Would you mind specifying the exact herbs you took? Thanks!

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359
(@dubya_b)

Posted : 04/13/2014 9:13 pm

Yeah Dubya a bit over 20 years and I guess I broke your record ha... but I got the worst side effects years later you know Dubya

in the not too distant future they will look back at allopathic medicine and call this time period the DARK AGES and they will

say wow what a primitive / barbaric medical system they had.

Well, we're supposedly still living in the age of 1950's-style medical care. There's always a better way, and I highly doubt "pills = all good and no bad" will last much longer.

@Crank- Nice work as always. I mailed her a brief history of my life's collision with Accutane, and some other info. Thanks.

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153
(@crank92)

Posted : 04/14/2014 12:51 pm

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

 

I wrote a post a few weeks back with all the people I knew who had recovered (over a year out from 'tane, ruling out 'natural recoveries') from my time trawling the internet. Think I found 12 in total, I managed to converse with 7 of them directly. The common link with those 7 was cannabis, whether RSO, vaping, smoking. Before anonny mauls me (one of the seven), he mentions it 'helped' him but was not the cause of his cure. That being said it was the only common link I could find amongst them. There also appeared to be a dose-response relationship between them. AIP & TA who took RSO (concentrated oil) recovered faster than those who smoked it (about 4-6x faster by my estimates).

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21
(@pathtorecovery91)

Posted : 04/14/2014 1:20 pm

 

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

 

I wrote a post a few weeks back with all the people I knew who had recovered (over a year out from 'tane, ruling out 'natural recoveries') from my time trawling the internet. Think I found 12 in total, I managed to converse with 7 of them directly. The common link with those 7 was cannabis, whether RSO, vaping, smoking. Before anonny mauls me (one of the seven), he mentions it 'helped' him but was not the cause of his cure. That being said it was the only common link I could find amongst them. There also appeared to be a dose-response relationship between them. AIP & TA who took RSO (concentrated oil) recovered faster than those who smoked it (about 4-6x faster by my estimates).

I saw amazon sells hemp seed oil. Think that would do something? I wouldn't know how to access the real stuff.

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157
(@tanedout)

Posted : 04/14/2014 1:42 pm

 

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

 

I wrote a post a few weeks back with all the people I knew who had recovered (over a year out from 'tane, ruling out 'natural recoveries') from my time trawling the internet. Think I found 12 in total, I managed to converse with 7 of them directly. The common link with those 7 was cannabis, whether RSO, vaping, smoking. Before anonny mauls me (one of the seven), he mentions it 'helped' him but was not the cause of his cure. That being said it was the only common link I could find amongst them. There also appeared to be a dose-response relationship between them. AIP & TA who took RSO (concentrated oil) recovered faster than those who smoked it (about 4-6x faster by my estimates).

I saw amazon sells hemp seed oil. Think that would do something? I wouldn't know how to access the real stuff.

Hemp seed oil doesn't contain any cannabinoids at all as far as I know, and it's almost certain that these components are vital.

 

I've tried various CBD oils, and also RSHO CBD oil but none of these things had a noticeable effect, however vaping cannabis has done.

 

Are you still taking Protandim? I remember you mentioned this improved your brain fog? I've recently ordered some ashvagandha (one of the 5 herbs that it contains) having read a number of case studies where people have noticed an improvement in mental clarity, sometimes significant. Apparently it is effective at reducing cortisol levels according to some studies, and mine are quite high as is often the case after 'tane.

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21
(@pathtorecovery91)

Posted : 04/14/2014 1:52 pm

 

 

 

 

 

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

 

I wrote a post a few weeks back with all the people I knew who had recovered (over a year out from 'tane, ruling out 'natural recoveries') from my time trawling the internet. Think I found 12 in total, I managed to converse with 7 of them directly. The common link with those 7 was cannabis, whether RSO, vaping, smoking. Before anonny mauls me (one of the seven), he mentions it 'helped' him but was not the cause of his cure. That being said it was the only common link I could find amongst them. There also appeared to be a dose-response relationship between them. AIP & TA who took RSO (concentrated oil) recovered faster than those who smoked it (about 4-6x faster by my estimates).

 

I saw amazon sells hemp seed oil. Think that would do something? I wouldn't know how to access the real stuff.

Hemp seed oil doesn't contain any cannabinoids at all as far as I know, and it's almost certain that these components are vital.

I've tried various CBD oils, and also RSHO CBD oil but none of these things had a noticeable effect, however vaping cannabis has done.

Are you still taking Protandim? I remember you mentioned this improved your brain fog? I've recently ordered some ashvagandha (one of the 5 herbs that it contains) having read a number of case studies where people have noticed an improvement in mental clarity, sometimes significant. Apparently it is effective at reducing cortisol levels according to some studies, and mine are quite high as is often the case after 'tane.

 

 

 

 

 

What's yall opinion on taking vitamin d? I just started 2000 IU/ day yesterday. I read how it could be stored in the liver like vitamin a, but also read how it could help hair loss. Also, does anyone remember the name of that dude who claimed to cure his accutane side effects 100%. Someone mentioned it on this forum about what he did. If I remember right he was taking a certain amount of vitamin d.

 

I wrote a post a few weeks back with all the people I knew who had recovered (over a year out from 'tane, ruling out 'natural recoveries') from my time trawling the internet. Think I found 12 in total, I managed to converse with 7 of them directly. The common link with those 7 was cannabis, whether RSO, vaping, smoking. Before anonny mauls me (one of the seven), he mentions it 'helped' him but was not the cause of his cure. That being said it was the only common link I could find amongst them. There also appeared to be a dose-response relationship between them. AIP & TA who took RSO (concentrated oil) recovered faster than those who smoked it (about 4-6x faster by my estimates).

 

I saw amazon sells hemp seed oil. Think that would do something? I wouldn't know how to access the real stuff.

Hemp seed oil doesn't contain any cannabinoids at all as far as I know, and it's almost certain that these components are vital.

I've tried various CBD oils, and also RSHO CBD oil but none of these things had a noticeable effect, however vaping cannabis has done.

Are you still taking Protandim? I remember you mentioned this improved your brain fog? I've recently ordered some ashvagandha (one of the 5 herbs that it contains) having read a number of case studies where people have noticed an improvement in mental clarity, sometimes significant. Apparently it is effective at reducing cortisol levels according to some studies, and mine are quite high as is often the case after 'tane.

Ok, we'll I won't get the oil then.

 

And yes I still am taking it. I believe that the bacopa plays the part in mental clarity as well. I have read how it improves memory and mental clarity.

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223
(@gladiatoro)

Posted : 04/15/2014 11:30 pm

And don' forget water lots of water we are now way more dehydrated than the average joe , chronic cellular dehydration is what it is ,

plus water helps you sleep better and flushed out toxins , removes headaches etc.. Make sure it' filtered water not tap water full of

fluoride , not good. (= .

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0
(@Anonymous)

Posted : 04/16/2014 9:29 am

Bad idea to drink a lot of water in a demineralized and toxic body, it will only bring oedema and exhaust the kidney for nothing, some people got lung oedema while doing this, if you really want to rehydrate your body, re-mineralize it (water attach to minerals ions (or something like that i don't remember precisely sorry)).

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223
(@gladiatoro)

Posted : 04/16/2014 10:24 am

How could drinking water be a bad idea do you realized that the human body is mostly made up of water ? I'm not saying gallons of it just keep hydrated

things like coffee and tea dehydrate and if you drink even things like green tea you will lose water in your body . Re mineralize yes Himalayan salt would

be a good one that's what I use for cooking.

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0
(@Anonymous)

Posted : 04/16/2014 11:04 am

inert minerals doesnt remineralize properly. There is quinton plasma for that but the main source is raw vegs.
It's a bad idea for the reason i said in my previous post.

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(@hatemost)

Posted : 04/16/2014 1:17 pm

Hello everyone guys..

I will make my background really short..

Iam 24 years old , 4,5 years ago i was on accutane for two months (The First month 10mg 5mg in the morning 5 mg at night) (The 2nd month 20mg 10mg in the morning and 10 at night ) After all these post and Reports that i have seen all over the Internet i decided a couple days ago to have my hormones checked just for the sake of my curiosity.

I just came back and the results aint good

briefly

E2 37.52 (Normal Levels 7.63-4260)

Total testo 1.36 (Normal levels 2.80-8.00)

Free testo 16.10 (Normal Levels 15-40)

DHT 0.32 (0.30-0.90)

And i honestly dont know what the heck is going on with my hormones? I mean why are they so low? Is the accutane the cause behind this? It's been almost 5 years since i took it and iam really confused whether testo ,dht and e2 are low because of this freaking drug.

Iam going to be honest here.. i have been unemployed for over 2 years now and while i was staying almost all day home (computer , sitting almost all day long) I have read in many forums that not being active that is to say sitting all day can lower your testo a lot, it might be the reason but why my e2 is so High? it should have been at least 20.

How am i gonna boost my testo from here on out? I've been thinking to hit the gym

Btw Iam not fat iam 172 and 67kg (BF arround 16-17%) so my kg it surely aint the reason of High E2

What's your thoughts on this guys? Iam fucking despered right now

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0
(@Anonymous)

Posted : 04/16/2014 1:41 pm

Testosteone level is also related to vitamin D level (synthetized from sunshine). Accutane affect directly and especially indirectly everything inside the body. The path to recovery is not symptomatic and localized approach, this way of view is a lack of understanding of physiology. Physiological diet & a "detox" help is the only way.

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359
(@dubya_b)

Posted : 04/16/2014 3:51 pm

@ HATEMOST-

Accutane has been observed to lower the pituitary hormone responsible for signaling testosterone production (luteinizing hormone), and to significantly lower 5-alpha reduced hormones, one of them being DHT. So yeah, I would put my money on Accutane as the culprit.

There is a forum dedicated to people with low T and other hormonal problems after Accutane:

[Edited link out]

But it has not been very active lately.

Exercise sounds like a great idea. It has been one of the few things that seems to make me feel noticeably better, but I still have some serious male problems and depression no matter how much I exercise. Resistance training has been shown to increase DHT and other sex hormones in older men also, so it does work on a level that may be of benefit to you.

If you can find a decent endo, they may prescribe a low-dose aromatase inhibitor to help lower E2, which in turn will likely raise your testosterone and DHT levels.

There are also natural aromatase inhibitors, if you want to go for the natural approach over pharmaceuticals.

I truly hope normalizing your hormones helps you.

What are your symptoms, and when did they develop in relation to your time on Accutane?

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(@sky13)

Posted : 04/16/2014 5:59 pm

Im just interested in those with the long term/serious side effects, what dosage you were on and for how long?

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(@hatemost)

Posted : 04/17/2014 1:00 am

Dubya_B Hey mate and thank you for your respond!

So let me get this straight, assuming that i hit the gym and reduce my bodyfat and gain some muscle mass , e2 wont go down? As far as i know the more bodyfat you loose the more e2 goes down right? E2 goes down then testo goes up..

As far as the symptoms goes.. i haven't seen any symptoms since the day i finished the two month treatment, i can't really tell you about how my libido is it because i haven't fapped in 80 days other than that i do have some difficulty to sleep but iam pretty sure is the High e2 behind it.

Another thing is that yesterday i found some Reports that accutane f@cked the putuitary gland of some people which creates hormones such as "FSI" "LH" "SI".

Honestly, i dont know what should i do at this point,, imo the results that i got from my blood work should belong to someone who's 80 years old and iam only 24!

Raven178 First month 10mg(5 morning 5 at night) 2nd month 20 mg (10 morning and 10 at night) that's all.

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359
(@dubya_b)

Posted : 04/18/2014 5:30 pm

@HATEMOST-
I stumbled upon this study on another forum recently:
K. Sato, M. Iemitsu, K. Matsutani, T. Kurihara, T. Hamaoka, and S. Fujita, Resistance training restores muscle sex steroid hormone steroidogenesis in older men, FASEB J., vol. 28, no. 4, pp. 18911897, Apr. 2014.
Resistance training not only raises testosterone, but it raises 5-ar activity/DHT also.
I think if you have more testosterone being converted into DHT vis 5-ar, it means you will likely have less testosterone being converted into estrogen.
The hypothalamus uses estrogen levels to regulate testosterone production for some reason.
If your estrogen is too high, your testosterone will probably be low. If you block estrogen from binding to its receptor or lower estrogen somehow, testosterone will usually rise.
Probably wouldn't hurt to start exercising, but there have been a few post-taners who have said exercise makes them feel much worse for whatever reason.
Difficult to say for sure until you try it.
...80 days is a long time to go without.
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153
(@crank92)

Posted : 04/20/2014 5:45 am

Good News

That doctor I went to see ages ago, the sexual dysfunction specialist who told me it was all in my head. Well, I told you I had sent him my research, he got back to me today! He believes I definitely have found something here and he's going to push it one step further up the ladder. That's 2 out of 2 doctors now that I have shown research too who believe I'm onto something. I'm going to gently probe to see if there's anything more that he can do, he did at the time of the appointment say if he found anything he would possibly start a case study.... Fingers crossed!

If anyone wants my research to take to the doctors regarding sexual dysfunction - please email at [email protected] with subject title 'ACCUTANE SCIENCE PLEASE', in caps and the please is essential (manners count after all)

Hatemost; I've personally found exercise to be beneficial, cognitively anyway. I find aerobic exercise better for cognitive issues (my case fatigue and emotional blunting). I do a lot of resistance exercise too but it's not as effective I find, but got to have some aesthetics plus it carries over to my preferred sports quite well. I never suffered from aching joints or lost muscle (thank f**k).

ALSO: anyone who has done any research and has referenced some sources on why cannabis appears to be beneficial please email them to me, the family friend doctor was quite intrigued to that aspect and I wanted to show him some of the research.

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1
(@anafiona)

Posted : 04/20/2014 11:11 am

Hi, I just joined the community. I have severe acne and my doctor told me to use accutante but I am reading stories about side effects and getting scared. It is bad for the liver?

thank you !

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(@hatemost)

Posted : 04/21/2014 12:55 am

@Cranck How long have you been lifting? I dont feel fatigue/depression either. however, sometimes i have hard time get aroused but maybe it's all in my head or maybe is because i haven't fapped in 90 days and probably iam on flatline.

Iam gonna email you soon enough to get that Research

Also, in the morning i always wake up qwith crazy mood like i want to dance, with other words i feel just fine, iam gonna have my blood test once again because my endo said my results is surely false because i had my blood tested at 8"00 p.m and it suggested that i go early morning between 8:00-10:00 to get the most accurate results.

In my previous test i had pretty low testosterone and my Free testosterone was pretty High which he told me it's impossible to have low total test and High Free test, so he thinks that my results wash't accurate so he had me to hit the labs one more time.

I always liked cardio especially running on football field but i ripped my shoes off and iam waiting my NEW shoes to start again i always felt good after a good jogging+short burst sprint (15-30 seconds) i have heard it can boost yout teststerone.

anyway iam being off topic! Peace brah and have hope that's the only thing we got at this point!`

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223
(@gladiatoro)

Posted : 04/21/2014 1:09 am

Anafiona , rule number 1 , never take a drug you cannot spell correctly , lol... in fact I would advice you to skip drugs entirely and look under the holistic section ie clean up your diet find your trigger foods.

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(@lionfish)

Posted : 04/21/2014 6:23 am

Hi all.

I'm not really sure if I should be posting here as my experiences are not as bad as others. I would say I have been left with mild side effects and disappointment that it didn't work.

I had two courses of accutane in the last couple of years. Both times I had fairly bad muscle and joint pain, dry eyes and mental symptoms like fatigue and depression. It hasn't cured my acne and I have been left with really dry skin, dry eyes and although I can't really explain it properly I feel like the medication is still in my system somehow?

I'm looking to improve my diet to see if that helps. I have been diagnosed as vitamin D deficient so I am taking high dose supplements to see if that helps. I'm also taking folate as I was deficient, zinc and vitamin C because it seems like a good idea.

Does anyone have any tips on diet or skin care routines that can improve the remaining acne and dry skin. E45/Aqueous cream doesn't seem to work.

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