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Repairing the long-term damage from Accutane

 
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(@gladiatoro)

Posted : 04/10/2014 8:52 am

How do you explain chronic dehydration / joint pain if there isn't permanent gene expression change then. ? The only thing I have found that works for this is bone broth soup ( beef ) because it contains natural hyaluronic acid or BAXYL , these two also work great for joint pain. ROCHE

claims it doesn't know the mechanism behind the DRUGS action , but I bet they do if they revealed it the DRUG would be pulled off the market immediately. A whole generation POISONED by there trusted elders that's the legacy of Isotretinoin.

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MemberMember
153
(@crank92)

Posted : 04/10/2014 10:46 am

^ I'm still looking to get making some bone broth soup, alongside water kefir and what not. Just finish up fixing my gastric issues once and for all.

I think it's finally time I got around to testing this theory of anonny's and now HR too. I'll commence the fruit, veg + herbs diet after my GF leaves a week on Monday. I'll add in hemp seeds as well just for the protein (unless this is forbidden in the detox methodology?). I'm just going to put my hands up and say I'm stumped as to how it could work but I don't know everything, so I'll drop my single mindedness and go for it. Anonny has in all fairness explained his point of view thoroughly in PM's, I'm still not entirely convinced. But hey, he's cured, I'm not.

In other news, I had a doctors appointment this morning. Doctor is a family friend, he's aware I'm not the local hypochondriac. He was impressed with the evidence I had amassed and promised to push it up the chain as best he could. In all likelihood, by myself alone this won't achieve much. But if more people do the same, we could inch towards getting this drug pulled. In all honesty, I can't imagine it being on the market for more than another decade tops. It's been in the newspapers more than a few times for its side effects. Roche are also now getting grilled in the UK for their Tamiflu drug which cost the taxpayer 500 million and it apparently wasn't in fact anymore effective than paracetomol at treating swine flu (i.e close to 0 effect). Roche really are a bunch of c**ts.

Here's a brief overview of the diet I will follow once the GF has left and I will stick to as best as possible. Posting it here, so when I come back in a few weeks/months people can see what I'll have been eating. Also anonny you're welcome to add in/ remove what you see fit. Placing my ego firmly somewhere else and I will do as you say. However, I'm not to keen on my LOADS of supplements as I've always thought the majority if not all of an individuals nutrition should come from whole foods.

Fruits

apples, bananas, raisins, grapes, peaches, plums, kiwis, satsumas, blueberries, blackberries, raspberries, strawberries

Vegetables

Broccoli, cauliflower, asparagus, red cabbage, red/green/yellow/orange peppers, avocados, carrots, spinach, onions, garlic

Herbs

Whatever dried ones we have around, fresh parsley/coriander/etc.

Seeds & Nuts if allowed?

Hemp seeds, almonds, cashews, pistachios

Supplements

Aloe vera, water kefir, possibly kombucha

That's pretty much the gist of what I will follow. Will do it for a month minimum and will eat as much as possible raw. However, I can't promise I can cut the coffee. I've got finals coming up at the end of May & June. I need every bit of help I can get to grind my way through all the work I'm going to be doing.

EDIT: Gladiotoro - Random bit of info. I mentioned it before but really wasn't sure if it was true. But I've had surgery on my ankle last Tuesday. Huge swelling. I combined turmeric and black pepper as I heard it was a strong anti-inflammatory on a few occasions and it did seem to reduce the pain quite dramatically. That being said, I like anyone am not immune to the placebo effect.

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MemberMember
223
(@gladiatoro)

Posted : 04/10/2014 2:01 pm

I just ordered some CBD oil from Dixie botanicals medical grade , Life enthusiast web site is the Canadian version with cheaper shipping rates shipping was a reasonable 15 dollars I have heard nothing but good things about this product. Not cheap at 50 dollars per bottle including shipping but I think it's worth it. There is no THC in it Ithink this may be beneficial though as my intentions are not to get high but rather heal the body / mind.

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MemberMember
223
(@gladiatoro)

Posted : 04/10/2014 6:22 pm

I would advice you to get a new derm , amazon .com has some great reviews on Dixie dew drops worth checking out. Btw I got pseudo tumor from Accutane which comes and goes in severity and guess what it's a LISTED SIDE EFFECT and I only took 2500 mg . Google brain scans / Accutane MRI and you will see for yourself what this DRUG does.

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MemberMember
359
(@dubya_b)

Posted : 04/10/2014 10:15 pm

My dermatologist said that none of these side effects are from Accutane.

A dermatologist said Accutane doesn't cause serious side effects. News Flash! It's good to know they won't even humor the possibility.

Did your derm refuse to report the symptoms you believe resulted from the drug?

@Crank- Nice work finding a doctor to speak on your behalf.

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0
(@Anonymous)

Posted : 04/11/2014 1:12 am

How do you explain chronic dehydration / joint pain if there isn't permanent gene expression change then. ? The only thing I have found that works for this is bone broth soup ( beef ) because it contains natural hyaluronic acid or BAXYL , these two also work great for joint pain. ROCHE

claims it doesn't know the mechanism behind the DRUGS action , but I bet they do if they revealed it the DRUG would be pulled off the market immediately. A whole generation POISONED by there trusted elders that's the legacy of Isotretinoin.

 

Because the skin is the third kidneys, where toxins are expelled (acne), plus accutane destroy it, so toxins + accutane damage are long to restore cause we first need to detoxify enough & permit the body to repair with physiological nutrient. All of that takes times, most of times years. You should stop conventional soap too, full of irritant & toxic chemicals, almost impossible to repair the skin with those.

Pseudotumor cerebri = brain congestion, grains (specially wheat as always) one of the top cause.

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MemberMember
223
(@gladiatoro)

Posted : 04/11/2014 8:33 am

Yes I agree with you pseudotumor cerebri = brain congestion = Accutane you just missed the last part , I have it under control I figured out what activates it , beer, rubbing the skin , infrared saunas , pretty much playing with the skin in any form will do it , bizzare but true . After years of trial and error I have figured out the triggers , once you understand what this drug does and how it ^&*( up our skin receptors you grasp it fully . A lot of people have constant migraines from this drug yet they use all these lotions and potions on there skin ..... and they wonder why . I don't use conventional soap ( Burt's bees ) and when I use soap I use it for a limited time just for basic hygiene . Also watching my diet and limiting vitamin A intake. I don't think any of us signed up willingly for this B.S lol..... I call them DRUG rules and I have to follow them religiously ..... or suffer the consequences.

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(@jari-litmanen)

Posted : 04/11/2014 9:26 am

My dermatologist said that none of these side effects are from Accutane.

Accutane can have some serious side effects but only a small minority get them, and with some bad luck it's possible to get pretty serious side effects even from your everyday ibuprofen.

Don't you people read the leaflets that come with the medication?

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MemberMember
223
(@gladiatoro)

Posted : 04/11/2014 11:05 am

Actually EVERYONE gets side effects from this drug most people just don't realize the extent of them and some like me get the worst side effects years later and everyone can get those because there is permanent change / damage to the body quite simple really what Accutane is is a controlled POISONING of the body nothing more nothing less. And once you take it there is no going back then you are dealing with damage control ie minimize the sides. And like I said before it's a drug that should ONLY be considered if you have severe cystic nodular acne which only about .01 percent of the population have.

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(@jari-litmanen)

Posted : 04/11/2014 11:34 am

Of course everyone gets side effects to some extent, like dry lips and skin and joint pain, it's another thing if they even notice them. The more severe, long term side effects are rare. The fact is that it has helped a lot of people, some of them permanently, and I bet the majority would take it again if needed.

This thread reminds me of propeciahelp where everyone is blaming finasteride for everything what's wrong in their life. Every drug has some serious side effects but it's just wrong to scare people away from them just because there's a one in thousand change they'll get them.

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0
(@Anonymous)

Posted : 04/11/2014 11:54 am

You missed the true cause.

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223
(@gladiatoro)

Posted : 04/11/2014 11:56 am

Yes every DRUG has some serious side effects , that's why I don't take DRUGS but this is a particularly bad one and people must know the life long consequences of it. Tell me do you think pimples are live threatening ? Is mild to moderate acne dangerous or is it just a cosmetic condition that is prevalent in the developed world ONLY... Go to any third world country do you see acne .... NO could it be that all the processed foods we consume has a role in Acne ..... YES , if you are prone to acne processed foods / trigger foods will solve it so why would anyone poison themselves when simple diet changes can fix it.

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(@jari-litmanen)

Posted : 04/11/2014 12:21 pm

I don't eat processed food or anything with a lot of carbohydrates/sugar, and I don't drink milk. I buy organic vegetables and meat whenever it's possible. I've been living like this for years and I still get acne. I'm sure it'll work for me some people, I'm just not one of them.

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359
(@dubya_b)

Posted : 04/11/2014 5:18 pm

Of course everyone gets side effects to some extent, like dry lips and skin and joint pain, it's another thing if they even notice them. The more severe, long term side effects are rare. The fact is that it has helped a lot of people, some of them permanently, and I bet the majority would take it again if needed.

This thread reminds me of propeciahelp where everyone is blaming finasteride for everything what's wrong in their life. Every drug has some serious side effects but it's just wrong to scare people away from them just because there's a one in thousand change they'll get them.

Yes, I blame Accutane for nearly everything wrong with my life. The information pamphlet didn't say anything about having a numb penis and thinking about jumping into traffic every day until I die.

No one here considered side effects lasting forever.

I hope you are one in a thousand to experience being destroyed by a pimple pill and then told you are full of it.

It would be nice to have one more person on our side.

Good day.

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51
(@acne1776)

Posted : 04/11/2014 6:07 pm

Of course everyone gets side effects to some extent, like dry lips and skin and joint pain, it's another thing if they even notice them. The more severe, long term side effects are rare. The fact is that it has helped a lot of people, some of them permanently, and I bet the majority would take it again if needed.

This thread reminds me of propeciahelp where everyone is blaming finasteride for everything what's wrong in their life. Every drug has some serious side effects but it's just wrong to scare people away from them just because there's a one in thousand change they'll get them.

You're a moron dude. For EVERYONE that takes it, accutane decreases frontal lobe activity by around 21%, decreases thyroid levels, decreases levels of DHT, and provides absolutely nothing beneficial other than poisoning your body so it can no longer produce acne. Most people probably don't feel much different immediately but that doesn't change the fact that the stuff is absolutely terrible for you.

And you've been on the propeciahelp website. Do you just read threads of people dealing with medical issues for fun? Might want to get a real hobby pal.

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MemberMember
223
(@gladiatoro)

Posted : 04/11/2014 7:07 pm

Yes everyone gets brain damage , MRI's don't lie it is a fact. The frontal lobe of the brain controls emotions among other things but that's just one of the many side effects and here is the KICKER some are permanent which to me is bizzare but true well after I did extensive research not so much anymore. I have high hopes for the CBD oil because these days I'm just dealing with moodiness and I consider that a blessing from

what I have been through with this drug.

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17
(@shadeo14)

Posted : 04/11/2014 10:21 pm

Are you saying your cured? What side effects did you have that went away?

Yes everyone gets brain damage , MRI's don't lie it is a fact. The frontal lobe of the brain controls emotions among other things but that's just one of the many side effects and here is the KICKER some are permanent which to me is bizzare but true well after I did extensive research not so much anymore. I have high hopes for the CBD oil because these days I'm just dealing with moodiness and I consider that a blessing from

what I have been through with this drug.

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223
(@gladiatoro)

Posted : 04/12/2014 10:08 am

Pretty much yes I had stomach issues severe interestingly enough german beer healed that (hops ) they are a healing herb , lower back pain severe , all gone I'm hoping the CBD oil will take care of my moodiness and regulate my brain waves so I'm back to the way I used to be Pre- Accutane era lol.... never had the sexual side effects lucky there , definitely avoid alcohol that's a no no or severely limit it and only mild like beer or wine . What is funny though is I had mild acne pre Accutane I still have mild acne , so my question is what was the whole point of being poisoned ha... this experience has left a sour taste in my mouth , Accutane pretty much brought me to my knees for a while there but it made me realize what pharmaceutical drugs are capable of and that it's not the answer not at all. The last time I took a prescription drug was over 20 years ago and for good reason.

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359
(@dubya_b)

Posted : 04/12/2014 3:10 pm

Gladiatoro,

You mean you have been dealing with side effects for 20 years since taking Accutane?

Thought I was the unfortunate record-holder here.

I spoke with someone recently who has been suffering from severe pains, depression, breathing difficulties, and sexual dysfunction since a course of Accutane in 1987! There seems to be no end to it.

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MemberMember
223
(@gladiatoro)

Posted : 04/12/2014 5:14 pm

Yeah Dubya a bit over 20 years and I guess I broke your record ha... but I got the worst side effects years later you know Dubya

in the not too distant future they will look back at allopathic medicine and call this time period the DARK AGES and they will

say wow what a primitive / barbaric medical system they had.

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MemberMember
0
(@accutanegavemeeczema)

Posted : 04/12/2014 8:48 pm

 

How do you explain chronic dehydration / joint pain if there isn't permanent gene expression change then. ? The only thing I have found that works for this is bone broth soup ( beef ) because it contains natural hyaluronic acid or BAXYL , these two also work great for joint pain. ROCHE

claims it doesn't know the mechanism behind the DRUGS action , but I bet they do if they revealed it the DRUG would be pulled off the market immediately. A whole generation POISONED by there trusted elders that's the legacy of Isotretinoin.

 

Because the skin is the third kidneys, where toxins are expelled (acne), plus accutane destroy it, so toxins + accutane damage are long to restore cause we first need to detoxify enough & permit the body to repair with physiological nutrient. All of that takes times, most of times years. You should stop conventional soap too, full of irritant & toxic chemicals, almost impossible to repair the skin with those.

Pseudotumor cerebri = brain congestion, grains (specially wheat as always) one of the top cause.

Yes. Our bodies are expelling toxins through secondary emunctories because the liver & kidneys have been taxed to the limit. If we keep congesting them, we will keep suffering. Anonyy, any soaps you use and recommend most? I tend to use tea tree or else mixtures of lemon/ginger soap.

As far as jari or whatever his name is, don't even humor any of them. Anyone who can't at least partially empathize is worthless to speak with on this matter.

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0
(@Anonymous)

Posted : 04/13/2014 1:05 am

I'm french so i use a french brand, this one: http://www.mondebio.com/hygiene-naturelle/cosmo-naturel/bain-douche-relaxant-verveine-exotique-250ml/8242.html
Still contain 3 not so natural (but not irritant) surfactants but the main common poison like petrochemicals, parabens, sulfated surfactants, phtalates, synthetic perfume & dye aren't in it. This soap doesnt dry out my skin like all others i tried, didn't find better yet.

Found a list here: http://redgumsoaps.com.au/skin-care/chemicals.html

http://www.laveritesurlescosmetiques.com/themen2012_08.php (french)

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MemberMember
153
(@crank92)

Posted : 04/13/2014 4:27 am

Article in The Times (UK) today, page 27 about Roche & Tamiflu (Swine flu drug). Theme of the story is very biased research, conflicting evidence being buried and Roche presenting Tamiflu with a smile on their face saying it cures swine flu. This has surfaced finally, that none of the research supported it, evidence was buried and the side effects led to people committing suicide. Sound familiar? This is a drug which the UK government spent 1/2 a BILLION on and it STILL took 5 years to pry the data from Roches hands - Roche refused to let the evidence be seen once people started doubting its effectiveness. Took a few legal battles to get there, they've clearly got a lot to hide in their vault.

However, thinking pro-actively I reckon anyone who considers themselves good with words should perhaps contact the author of the article - Jenni Russell. There is no email contact address but there is a twitter handle in the foot note @jennirsl, Dubya and acne1776 I think both of you should try and write to her if possible. Was thinking of just linking N. Carrs report and something else. I'm going to have a dig around and see if I can find a personal email. Just a possibility, but we could get the anti-Roche message to snow-ball. However this needs to be done relatively quick for it to gather momentum.

EDIT: If you wish for her email, message me. I thought it would be better if we didn't spam her.

Edit 2: Here's a link to the article, however, you'll have to get a free trial to read the full article or buy todays newspaper

[Edited link out]

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MemberMember
153
(@crank92)

Posted : 04/13/2014 4:56 am

What I wrote to Jenni Russel;

"Dear Jenni,

I read your article in The Sunday Times this morning in regards to Roche & Tamiflu. Sadly, I felt a terrible sense of deja vu. I took a drug manufactured by Roche by the name of (Ro)Accutane back in 2012. I have been left with debilitating side effects alongside many other individuals, I even know a couple who have committed suicide personally (Google 'James Silcock'). Many of them are still not listed as possible side effects, this is despite the fact that Accutane has one of the highest number of listed side effects there is amongst prescription drugs. You would imagine a drug this dangerous would be utilised for severe illnesses, this is not the case, this is simply a drug to treat acne. A little known fact is that Accutane was in fact developed to treat skin cancer, it is a chemotherapeutic agent. Children as young as 13 are being given chemotherapy for as long as 6 months at a time for a few pimples. Roche have time and time again buried evidence to the contrary of its purported safety. They have even been fined for hiding information of reported side effects to the FDA for over 10 years!

If you are interested, I can send you a lot of my own personal research alongside that of others. There are many of us on the online forums, although we are scattered across various locations. Our next step is to host protests at the UK and USA Roche headquarters on the 25th of April.

Thank you for taking the time to read this,

Kind regards,

Mike"

Yes that was a little lie about James Silcock, but I've read most of his posts on this thread (Username: JMsil)

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(@shadeo14)

Posted : 04/13/2014 7:54 am

Pretty much yes I had stomach issues severe interestingly enough german beer healed that (hops ) they are a healing herb , lower back pain severe , all gone I'm hoping the CBD oil will take care of my moodiness and regulate my brain waves so I'm back to the way I used to be Pre- Accutane era lol.... never had the sexual side effects lucky there , definitely avoid alcohol that's a no no or severely limit it and only mild like beer or wine . What is funny though is I had mild acne pre Accutane I still have mild acne , so my question is what was the whole point of being poisoned ha... this experience has left a sour taste in my mouth , Accutane pretty much brought me to my knees for a while there but it made me realize what pharmaceutical drugs are capable of and that it's not the answer not at all. The last time I took a prescription drug was over 20 years ago and for good reason.

I feel i have the same symptoms, but got lucky on the sexual side effects.There may have been some structural changes but I guess I should be lucky it still works down there. I still had acne after accutane so maybe thats a sign. Im not sure what your thoughts are on alcohol though, it helped your stomach issues but caused some other symptoms?

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