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Repairing the long-term damage from Accutane

 
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51
(@acne1776)

Posted : 04/01/2014 6:45 pm

Hi all,

first of all let me apologize that I come back so late. I promised to share my RSO experiences but I was quite busy and found no time to log in. Unfortunately my experiences are not so positive. I did not tolerate RSO so well and had to stop it after only some weeks.

I was recommended to take a dosage of 3x5 drops per day. I started slowly with 1x5 per day and wanted to ramp it up over time. There was an immediate positive effect when I started. The inflammation in my face and the feeling of extreme dryness was reduced within some days. But the negative effect was, that I felt very tired during the day and also felt quite dizzy. I tried to increase the dosage but it was just no doable so I stayed with 1x5 drops per day. The tiredness did not go away and I also felt, that sleep was not so relaxing anymore. When I woke up I felt like a had drunk too much the day before. I have family and a pretty tough job. So I decided to quit after some weeks.

I know, it is disappointing. When the first positive results kicked in, I felt super enthusiastic but this constant tiredness was terrible. I don't know what to do now. I may give it another try. But i can not imagine, that it will be any different. People are saying the tiredness goes away when you take it long enough. So maybe I should just hang in there a little longer?

Why not skip the day doses and just take it at night?

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153
(@crank92)

Posted : 04/02/2014 3:36 am

I'm with acne1776, perhaps just continue on with doses only before bed. I realise you'll still feel groggy in the morning. I vape before bed and am fine in the morning although it took me about 4 weeks before the morning grogginess faded. However, if I also consume the after vaping bud orally, I'll be once again groggy in the morning. I guess due to the fact I'm a student, I can sleep 12 hours a night and no one notices. So that's ideal :D but yea especially as RSO is a much higher dose it wouldn't surprise me that it makes you lethargic even if it is supposedly the 'inactive' form. I've read a few of the guys who used RSO for cancer treatment and they say it put them to sleep for ages too.

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153
(@crank92)

Posted : 04/02/2014 8:19 am

Anyone know if the girl who got MS still checks in? If so this book may be of use;

[Wahls Protocol, The : How I Beat Progressive MS Using Paleo Principles and Functional MedicineHardcover]

Anonny posted about the lady who 'cured' her MS with a specific paleo diet alongside a few other bits and bobs. She's written the above book! There are some skeptics as usual, which is good as it creates debate. The main speculation is that she got misdiagnosed and was simply in the relapse/remitting stage. But surely it's been 4/5 years since she was diagnosed and it was only 2011 when she believed she was cured, so if she was simply in remission surely she should have remitted by now!

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MemberMember
148
(@oli-girl)

Posted : 04/03/2014 10:41 am

High Prolactin levels can be caused by adenomas which is a begin tumor on the pituitary gland. They can be extremely small and sometimes they can grow. Levels of prolactin and testosterone can go back to normal, but you can still have issues. Other things that can cause high prolactin levels and adenomas are certain medications, hypothyroid, estrogen taken by mouth, kidney and liver diseases. In women it can go high during pregnancy, but some it does not go back to normal. It can usually dx by a MRI of the pituitary gland and sometimes levels of prolactin will go back normal, but people still have symptoms and problems. If the tumor gets bigger over the years it can cause headaches, bone loss, vision problems etc.

There have been some cases of people having a pituitary adenoma after taking Accutane.

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0
(@malco)

Posted : 04/03/2014 2:37 pm

Hey friends you don't see my message?

 

I know that you are busy with your problems and research, but if someone among you would be kind enough to advise me it would be really nice!

 

Oli girl is that you still have the flushes?

 

Person allowed you has this problem apart from oli girl?

 

Surely you will understand me.

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MemberMember
148
(@oli-girl)

Posted : 04/03/2014 9:16 pm

I don't have flushing any longer! I am not sure how long you have been on the anti malaria but it should help. I was on it for about 1yr, not sure how long you have been on it, but give it time and stay away from acidic foods. Also, aren't you seeing Dr. Chu? If so you are in good hands my friend.

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MemberMember
359
(@dubya_b)

Posted : 04/03/2014 9:28 pm

I'm with acne1776, perhaps just continue on with doses only before bed. I realise you'll still feel groggy in the morning. I vape before bed and am fine in the morning although it took me about 4 weeks before the morning grogginess faded. However, if I also consume the after vaping bud orally, I'll be once again groggy in the morning. I guess due to the fact I'm a student, I can sleep 12 hours a night and no one notices. So that's ideal but yea especially as RSO is a much higher dose it wouldn't surprise me that it makes you lethargic even if it is supposedly the 'inactive' form. I've read a few of the guys who used RSO for cancer treatment and they say it put them to sleep for ages too.

I read a long thread a few months back where cancer patients using RSO were discussing the heavy side-effects of high dosages.

EDIT: ROLAND must have some pretty potent stuff.

The process of boiling-off the alcohol decarboxylates/activates the cannabinoids. RSO is far from the inactive form.

High Prolactin levels can be caused by adenomas which is a begin tumor on the pituitary gland. They can be extremely small and sometimes they can grow. Levels of prolactin and testosterone can go back to normal, but you can still have issues. Other things that can cause high prolactin levels and adenomas are certain medications, hypothyroid, estrogen taken by mouth, kidney and liver diseases. In women it can go high during pregnancy, but some it does not go back to normal. It can usually dx by a MRI of the pituitary gland and sometimes levels of prolactin will go back normal, but people still have symptoms and problems. If the tumor gets bigger over the years it can cause headaches, bone loss, vision problems etc.

There have been some cases of people having a pituitary adenoma after taking Accutane.

Yes, I have also seen an instance of a post-Acutane patient actually discovering a prolactinoma.

Usually though, we get the MRI and nothing shows up.

I spoke with someone who had a prolactinoma, and his levels were over ten-fold higher than the upper limit of the range.

Most people with the tumor find their levels extremely high, not just slightly elevated as most of the Accutane patients with slightly-high prolactin levels have discovered.

This guy was one of the first people in the world to begin treatment with bromocriptine for a prolactinoma, and it totally resolved his symptoms, shrank the tumor, and he has been on a maintenance dose for the last 30 years.

Typically, pituitary adenomas and symptoms of hyperprolactinaemia respond very well to treatment with dopamine agonists.

Oli, thanks for pointing out that thyroid conditions and birth control can also raise prolactin. Almost forgot about that.

Some SSRI anti-depressants and many anti-psychotics are also notorious for raising prolactin during treatment.

High prolactin and lowered dopamine activity are thought to be one of the main causes of low sex-drive during anti-psychotic treatment.

The thing is, you will have difficulty finding anyone suffering from sexual dysfunction caused by elevated prolactin complaining of having numb genitals.

If anything, genital numbness is extremely common among those with Accutane-induced sexual problems.

It's one of those things that distinguishes it from run-of-the-mill ED or low libido.

To whoever is taking the anti-malarial:

Stay the hell away from Lariam (mefloquine) if you must take an anti-malarial drug.

It is another one of Roche's turds that slipped through the cracks that is highly suspected of causing psychotic delusions and permanent neurological damage.

http://www.theguardian.com/uk-news/2013/sep/27/soldiers-psychotic-drug-mefloquine

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153
(@crank92)

Posted : 04/04/2014 7:31 am

Dubya finally some clarification on the RSO whether it is in/acitve! I always wondered whether that process of boiling off the alcohol (roughly 78 degress celsius) would decarboxylate the THC at all. There's an answer then! So with this information, is there any issue with simply consuming it in an edible format like a regular stoner? Perhaps just cooking it at 80 degrees as opposed to the regular 160+?

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0
(@Anonymous)

Posted : 04/04/2014 12:49 pm

Of course RSO is active, any heat activate the THC (even the lamp when growing if too close), maybe not fully for "low" temp but still a little. If RSO wasn't active it will be not effective for cancer. (THC) Vaped, smoked or ingested with fat (like stoner do) bypass the liver and is highly poisonous for the nervous system (i experienced it), i've already made 2 - 3 post about that if i remember. But anyway it's only a symptomatic treatment, a good one but still symptomatic that should be used carefully.

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(@malco)

Posted : 04/04/2014 1:05 pm

Thanks much for your reply oli girl.

 

I am glad you have healed the flushing flushes of heat, I hope you'll have success on your other problems.

 

I read a lot what you said in the other thread and I know that plaquenil you also help joints I hope you had permanent success for this problem too.

 

Yes I saw for the first time Dr. Chu and at the moment I am taking clonidine and plaquenil the clonidine effects were almost immediate and I saw a clear improvement, while plaquenil it's been almost 6 weeks I take and I don't see any improvements in addition to clonidine, I know that it takes time but in 5 weeks ought to begin at work and I see no big thingI hope it will work for me also.

 

 

Let me you ask if you are completely cured of the induced rosacea accutane?

 

You can switch from cold to hot, stress, even if not very hot shower, meals, sunset, sport, all it no longer triggers?

 

You consider yourself as before accutane with regard to your skin?

 

Your skin is still very dry?

 

Have you find a solution for dry skin, I have to put of the cream on all the body after every shower otherwise I scratch me too and my face become red, dry, reddened to nothing.

 

If I am well recall you had results fast with plaquenil, is what they was clear or it was subtle at first?

 

Forgive me for the questions and my translator.

 

Thanks for your help oli girl

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MemberMember
359
(@dubya_b)

Posted : 04/04/2014 10:40 pm

Accutane Action Facebook Page

Amy Simonetti, the mother of Accutane-suicide victim Joshua Leigh Daniels, has created a Facebook page in memory of her son.

Accutane Action US:
[removed]

There is also a UK-based Facebook page.

Roaccutane Action UK:
[Edited link out]

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13
(@trendycat)

Posted : 04/05/2014 4:08 am

Yea i saw somewhere niacin is proposed before every sauna session. http://www.healingdaily.com/detoxification-diet/niacin.htm i personnaly think it's far from the best way to detox but idk, if someone want to try. some plants do the same like pimento & ginger.

Hi anonyy, I've been following the thread and reading yours and others posts about post accutane issues. I see that you mention in many bits in pieces the "best" ways to do some things such as diet, kidney detox, liver detox etc. However, it's difficult to put it all together since it's scattered across the thread. Is it possible for you to compile your exact diet and detoxes that you went through in one post so that interested sufferers could attempt it? As it is now, I can't make sense of some of the ambiguities, but I'll try and summarize what I've gathered from you.

1. Remove dairy/grains/gluten/meat from diet. Drink home prepared vegetable and fruit juices (which vegetables and fruits?) with some additives (herbs and roots?). I'm assuming your primary source of protein comes from fish? Your primary source of fat comes from nuts/nut butters? What is your specific diet? Is there a name for it?

-You also mention that since the intestines are damaged after accutane, which mine most certainly are, that it is more 'complicated' than simply consuming vegetable and fruits, that more must be done. Can you elaborate on what else you did to repair your intestines?

2. Boil parsley and drink the water every day to remove sexual issues.

3. Perform liver/kidney detoxes (which ones, how often?)

Apologies if you have explained these in detail in previous posts but I have just read the last 30 pages. I am busy with uni so I don't have the time to read this entire thread at the moment.

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MemberMember
157
(@tanedout)

Posted : 04/05/2014 12:01 pm

Hi all,

first of all let me apologize that I come back so late. I promised to share my RSO experiences but I was quite busy and found no time to log in. Unfortunately my experiences are not so positive. I did not tolerate RSO so well and had to stop it after only some weeks.

I was recommended to take a dosage of 3x5 drops per day. I started slowly with 1x5 per day and wanted to ramp it up over time. There was an immediate positive effect when I started. The inflammation in my face and the feeling of extreme dryness was reduced within some days. But the negative effect was, that I felt very tired during the day and also felt quite dizzy. I tried to increase the dosage but it was just no doable so I stayed with 1x5 drops per day. The tiredness did not go away and I also felt, that sleep was not so relaxing anymore. When I woke up I felt like a had drunk too much the day before. I have family and a pretty tough job. So I decided to quit after some weeks.

I know, it is disappointing. When the first positive results kicked in, I felt super enthusiastic but this constant tiredness was terrible. I don't know what to do now. I may give it another try. But i can not imagine, that it will be any different. People are saying the tiredness goes away when you take it long enough. So maybe I should just hang in there a little longer?

Pleased to hear you've experienced an improvement in your sides after taking this Roland. Do you know anything about the oil you are taking? Is it diluted at all? Assuming it's in a tincture?

 

Once you stopped taking the oil did your side effects slowly come back, or does the improvement seem to have been permanent, or is it too early to say?

 

As others have suggested I would just lower your dose, and then you should be able to slowly increase it as your tolerance increases.

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0
(@Anonymous)

Posted : 04/06/2014 2:52 pm

Hi trendycat,

Basicaly it's just come back to physiological habits of eating & living and assisting the body in his tasks with plants.

 

Answers for your questions:

Any vegetables & fruits you want, personaly i do apple, parsley, kale, carrots, curcuma root, celeri in my juice. Some say it's not good to mix too much ingredient but i like it that way.

I prefer avocado but yes nuts too, soaked & not heated.

Parsley is good for adrenals & kidneys too, thats why it work for sexual issues.

I did only one 3week long "clark" kidney flush & 1 "moritz" liver flush every 3-4 week for a total of 11.

I dont eat fish, sometimes i eat quinoa, more rarely buckwheat pasta but there is enough protein in raw fruits & vegetables.

To heal the intestine greens juice is the most effective, plus cleanse with psyllium & bentonite for example, aloe vera & other plants can directly heal them too.

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3
(@hopefulremedy)

Posted : 04/06/2014 3:25 pm

Google "Robert Morse ND" nuff said. Enough looking for answers. Detox detox detox. Stop searching for answers when the answer is right in front of your face.

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MemberMember
359
(@dubya_b)

Posted : 04/06/2014 9:04 pm

Google "Robert Morse ND" nuff said. Enough looking for answers. Detox detox detox. Stop searching for answers when the answer is right in front of your face.

I take it you have been nearly cured if you are making these claims?

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MemberMember
3
(@hopefulremedy)

Posted : 04/06/2014 9:42 pm

 

Google "Robert Morse ND" nuff said. Enough looking for answers. Detox detox detox. Stop searching for answers when the answer is right in front of your face.

I take it you have been nearly cured if you are making these claims?

Call them claims but yes I have. Thanks for asking :)

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MemberMember
180
(@roland1968)

Posted : 04/07/2014 2:33 am

 

Hi all,

first of all let me apologize that I come back so late. I promised to share my RSO experiences but I was quite busy and found no time to log in. Unfortunately my experiences are not so positive. I did not tolerate RSO so well and had to stop it after only some weeks.

I was recommended to take a dosage of 3x5 drops per day. I started slowly with 1x5 per day and wanted to ramp it up over time. There was an immediate positive effect when I started. The inflammation in my face and the feeling of extreme dryness was reduced within some days. But the negative effect was, that I felt very tired during the day and also felt quite dizzy. I tried to increase the dosage but it was just no doable so I stayed with 1x5 drops per day. The tiredness did not go away and I also felt, that sleep was not so relaxing anymore. When I woke up I felt like a had drunk too much the day before. I have family and a pretty tough job. So I decided to quit after some weeks.

I know, it is disappointing. When the first positive results kicked in, I felt super enthusiastic but this constant tiredness was terrible. I don't know what to do now. I may give it another try. But i can not imagine, that it will be any different. People are saying the tiredness goes away when you take it long enough. So maybe I should just hang in there a little longer?

Pleased to hear you've experienced an improvement in your sides after taking this Roland. Do you know anything about the oil you are taking? Is it diluted at all? Assuming it's in a tincture?

 

Once you stopped taking the oil did your side effects slowly come back, or does the improvement seem to have been permanent, or is it too early to say?

 

As others have suggested I would just lower your dose, and then you should be able to slowly increase it as your tolerance increases.

I do not know much about this oil. I am in contact to a group of people here in Germany who produce this oil as an alternative medication for cancer. Most of them have a cancer history or similar diseases. When I explained my problems post-accutane I was recommended to take low THC / high CBD oil. And I bought a bottle of this oil. That is all I know.

When I stopped taking the oil the positive effects lasted for some more weeks. But I would not say, that there is a permanent change.

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MemberMember
153
(@crank92)

Posted : 04/08/2014 2:27 pm

 

Google "Robert Morse ND" nuff said. Enough looking for answers. Detox detox detox. Stop searching for answers when the answer is right in front of your face.

I take it you have been nearly cured if you are making these claims?

Call them claims but yes I have. Thanks for asking

 

Did you happen to be in the sub 1 year side effects group? We've had people on this thread saying the cure is 'drink more water and play more sports'.

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MemberMember
153
(@crank92)

Posted : 04/08/2014 2:42 pm

However, having looked at the site it espouses the same methodology as anonny; fruit + veg only. Another trend emerging?

Also if you don't mind seeing as you've recovered just basically retelling your experiences. These questions can guide you;

i) Accutane dosage and duration
ii) when you took accutane
iii) when you first noticed side effects
iv) what side effects, be specific if possible
v) duration of side effects
vi) When you started noticing a recovery
vii) duration of recovery
viii) What you believe to be the cause of your recovery.

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MemberMember
0
(@lex77)

Posted : 04/09/2014 7:07 am

what is the amount of THC in the CBD oil? I found a shop selling CBD oil and it has 2.3% CBD and only 0.173% THC.

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MemberMember
3
(@hopefulremedy)

Posted : 04/09/2014 2:28 pm

However, having looked at the site it espouses the same methodology as anonny; fruit + veg only. Another trend emerging?

 

Also if you don't mind seeing as you've recovered just basically retelling your experiences. These questions can guide you;

 

i) Accutane dosage and duration

ii) when you took accutane

iii) when you first noticed side effects

iv) what side effects, be specific if possible

v) duration of side effects

vi) When you started noticing a recovery

vii) duration of recovery

viii) What you believe to be the cause of your recovery.

No offense man, but I'm not going to answer those questions. I understand you are suffering and feel for you. I know the pain Accutane can cause people because it caused me more pain than anything else ever has come close to. All I can say is take my advice for what it is and get better or continue searching all and testing all these complicated theories of supplements and what not. Getting better doesn't happen over night but eating only fruits and taking Robert Morse herbs is what will do it. I pray for all of us that the suffering ends.

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MemberMember
153
(@crank92)

Posted : 04/09/2014 2:55 pm

Very helpful, cheers...

From what I can gather from HR's previous posts he posted 1st on 6th March asking about isotherapy, then by 24th March he had spoken about already trying some sort of juice fasting. So let's just say a week prior to that he had started some sort of fruit only juice fasting (estimate). That means recovery was achieved in circa 3 weeks from fruit only diet + what Robert Nurse refers to as 'Gods Herbs'.

Hopefulremedy, if you change your mind can you please PM me. I am not simply in this for myself, I want this drug off the market and prevent further unnecessary damage. More details I can accumulate the better shot we have at this.

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223
(@gladiatoro)

Posted : 04/09/2014 7:51 pm

I don't like how Accutane was presented to us , as an " ACNE CURE / WONDER DRUG " since many times it's not the case , acne comes back and you end up doing permanent damage to your body , what a joke. Long term side effects where never told to me just that the drug leaves your system in 2 months yeah right , that's why I am constantly dehydrated / joint pain comes and goes / hair loss / brain fog cycles because it left my system ...... rather it changed my gene expressions permanently . Nothing but lies come out of allopathic medicine .

There are so many law suits against this company it's not even funny , after all they also make the date rape drug Rohypnol and are the makers

of other nasty drugs including synthetic vitamins a real charming DRUG company. But truly what Accutane is is a chemotherapy drug which are known to be the most potent and toxic drugs ever created often called black box drugs I think that says it all then cross marketed to treat something as mild as pimples which are btw harmless.

Accutane should have been reserved for severe cystic acne cases only which actually it was originally ONLY approved for even then your life might be better without it as most would say yet they derms hand it out like candy for mild to moderate acne which most of us had , that is just so wrong. I read that this drug has the potential to actually shorten our lives , great.

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0
(@Anonymous)

Posted : 04/10/2014 4:06 am

rather it changed my gene expressions permanently

 

Impossible.

 

 

hopefulremedy you right, we don't need testimony after we understand physiology and how things work, the search for testimony can be deceiving and just slow us down.

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