Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
0
(@accutanegavemeeczema)

Posted : 02/27/2014 1:29 am

Hey do any of you guys have graying hair? I started seeing stray greys couple of years ago but now they are certainly noticeable on the sides. I'm white with blonde hair. No history of early graying in the rest of my fam.? My dad didn't start graying until he was in his 50's. Don't know about mom's side. I'm 12 years out and started to see grays probably 10 years out. If this is caused by accutane, which I think it was, what do you think causes this?

I won't ask about the wrinkles, because that is useless.

I know everyone doesn't get affected the same, but I had just dry skin issues right after and most of the years. Now I have more severe sides like premature aging after about 10 years and more inflamation. It's hard not to believe in the premature aging hayflick thing.Whats the point of having hair if its all grey? yehah. Good thing I look like a mad arian when i shaved my head! Damnit! Hey at least theirs hats:)

Well it is certainly a possibility it was influenced by it. I think it can be up to genetics too regardless of your recently family history. Could be kind of an anomaly (thinking positively). I haven't delved much into the theory of accutane causing telomere shortening in DNA, but if so, it could attribute to various accelerated aging processes in us. Perhaps if you were predetermined to get some gray hair the change came sooner after taking the drug. If it makes you feel any better, I don't think having gray hair is nearly as bad as not having any of your hair. And people who don't have hair are still plenty healthy a lot of the time, it's just natural and inevitable for some people. Did you even know some hair dying companies introduced a gray dye for men looking to be more 'professional' and appear older/wiser?

@Nick Ryan - Thanks for weighing in and sharing some of your thoughts. From all I have researched it seems the CBD oils are nut nearly potent enough to receive the beneficial effects. Rick Simpson oil is what truly can change the body over time. Again, it's all relative right now as the studies are still very new with cannabis. In order to receive similar benefits I would guess one couldn't even come close to the same potency by using cbd and vaping a bunch. Still reading and researching a lot.

Quote
MemberMember
51
(@acne1776)

Posted : 02/27/2014 9:54 am

@Nick Ryan - Thanks for weighing in and sharing some of your thoughts. From all I have researched it seems the CBD oils are nut nearly potent enough to receive the beneficial effects. Rick Simpson oil is what truly can change the body over time. Again, it's all relative right now as the studies are still very new with cannabis. In order to receive similar benefits I would guess one couldn't even come close to the same potency by using cbd and vaping a bunch. Still reading and researching a lot.

 

I agree with this.

Quote
MemberMember
44
(@nick-ryan)

Posted : 02/27/2014 11:10 am

Is your brain "feeling refreshed" permanent or was that only while you were under the influence of CBD? I'm curious if CBDs normalizing brain function is permanent or if it is just while it is in your system. Although I believe it is said to actually repair the brain and cause a physiological change in it so it should be a permanent effect. It may take a hell of a lot of those dew drops you're taking to get that effect though. Also I'm not sure why a few drops would be putting you on your ass when that is a very low dose of CBD and low doses are stimulating.

I tried to explain, I guess pretty poorly. I actually felt sort of hazy, and almost stuck being single-minded when I was "under the influence" of the CBD. It wasn't until it cleared my system later that I noticed how much better my brain was functioning. And it did last ;) ... Until I did CBD again and started over -_-

I understand why you guys are saying what you're saying, and I may agree with you as well. Now, when I was mixing with THC I was able to take 10x's the concentration of CBD and feel not only normal but great. Without THC.. CBD's antipsychotic effects overwhelm me; and without CBD, THC's effects will overwhelm. Finding that right balance is almost certainly going to be key. Just again though with the RSO.. Going to have to obtain the drug and make your own oil unless you happen to live where it's not illegal. That's the only trouble. It has probably already been posted, but if someone could link a surefire and easy way to make your own, that would probably benefit a lot of people, myself included.

Quote
MemberMember
8
(@sunsetblvd)

Posted : 02/27/2014 1:46 pm

Hey Volcom3453 I've seen posts that you have made in the past, many of which pertaining to hair loss. Just out of curiosity did your hair loss ever stop? Did you ever get any re-growth?

Quote
MemberMember
0
(@accutanegavemeeczema)

Posted : 02/28/2014 1:04 am

Hey Volcom3453 I've seen posts that you have made in the past, many of which pertaining to hair loss. Just out of curiosity did your hair loss ever stop? Did you ever get any re-growth?

See your PM. But the short answer for everyone here is that my hair is still thinner in certain areas, but it has improved. The shedding I experienced early on slowed down tremendously. I still think there is work to be done to restore my body which will in-turn encourage some regrowth in certain areas.

Quote
MemberMember
359
(@dubya_b)

Posted : 02/28/2014 3:24 am

The address of the United Kingdom demonstration on the 25th of April.

Roche Products Limited (Pharmaceuticals)
Hexagon Place
6 Falcon Way, Shire Park
Welwyn Garden City
AL7 1TW
United Kingdom

Understandably, not everyone can attend due to travel costs and time restraints. If you have been severely affected by isotretinoin, please schedule a day or two off of work to make it to either the US or UK demonstration if you are within reasonable distance. This must be at least equally important as a doctors visit.

I am currently working on getting the US protest off the ground and getting some former activists active again. It won't be a wasted trip.

A small temporary forum has been created for the discussion of these protests: http://accutaneprotesttalk.forumotion.com/

Updates will continue to be posted on the major forums as well.

Quote
Crank92, Gladiatoro, Crank92 and 3 people reacted
MemberMember
0
(@accutanegavemeeczema)

Posted : 02/28/2014 9:01 pm

That's awesome. Great work Dubya!

Quote
MemberMember
21
(@deebo)

Posted : 03/01/2014 7:23 am

What do you guys think about using carrier oils like argon oil that contain vitamin a for hair. I am experimenting in making my own natural shampoos, conditioners, lotions. The most frustrating thing I am concerned about is the vitamin a issue. Can I use small amounts of vitamin a topically(not retinol, but natural oils that have vitamin a in them)? It's ok to eat vitamin a containing foods, but limit them? I know some have had issues when supplementing with vitamin a and omega 3 but please clarify this for me? This issue has really frustrated me because I am so confused.

Quote
MemberMember
0
(@chaseap01)

Posted : 03/02/2014 6:16 pm

I am just curious if anyone actually read the possible side effects of this medication before taking it? Most of your symptoms are clearly listed in the possible side effects of isotretinoin.

Should the pharmaceutical company be responsible for your side effects if you failed to read that they were possible?

I knew exactly what i was getting in to when I started taking Accutane and would never consider suing Roche.

It's like knowing good and well that you could be severely injured by jumping in front of a moving vehicle but doing it anyway, and then suing the driver.

Quote
MemberMember
51
(@acne1776)

Posted : 03/02/2014 8:29 pm

I am just curious if anyone actually read the possible side effects of this medication before taking it? Most of your symptoms are clearly listed in the possible side effects of isotretinoin.

Should the pharmaceutical company be responsible for your side effects if you failed to read that they were possible?

I knew exactly what i was getting in to when I started taking Accutane and would never consider suing Roche.

It's like knowing good and well that you could be severely injured by jumping in front of a moving vehicle but doing it anyway, and then suing the driver.

Did you seriously come on here just to say this? What a joke you are. We're here trying to REPAIR the damage this drug has done to us. It hasn't been 226 pages of people saying they're going to sue the drug company. And no, permanent sexual dysfunction is not listed in the possible side effects. Neither is permanent skin problems, digestive problems, or permanent hair loss many people here have. No idea what you're trying to accomplish with your post but if you don't have anything helpful to say to us you really don't need to be on here.

Quote
mes6890, mes6890, mes6890 and 21 people reacted
MemberMember
0
(@accutanegavemeeczema)

Posted : 03/03/2014 1:14 am

 

I am just curious if anyone actually read the possible side effects of this medication before taking it? Most of your symptoms are clearly listed in the possible side effects of isotretinoin.

Should the pharmaceutical company be responsible for your side effects if you failed to read that they were possible?

I knew exactly what i was getting in to when I started taking Accutane and would never consider suing Roche.

It's like knowing good and well that you could be severely injured by jumping in front of a moving vehicle but doing it anyway, and then suing the driver.

Did you seriously come on here just to say this? What a joke you are. We're here trying to REPAIR the damage this drug has done to us. It hasn't been 226 pages of people saying they're going to sue the drug company. And no, permanent sexual dysfunction is not listed in the possible side effects. Neither is permanent skin problems, digestive problems, or permanent hair loss many people here have. No idea what you're trying to accomplish with your post but if you don't have anything helpful to say to us you really don't need to be on here.

 

Disregard anyone like that. There are plenty of people who, for some reason, enjoy praising Roche and isotretinoin and putting those down who suffer. Nobody should have to endure such side effects from any pharmaceutical drug. The industry uses and abuses unsuspecting patients. Once this drug started working it's way into the mainstream and getting prescribed for even mild forms of acne is when it became much more dangerous.

Also his analogy is asinine seeing as 'medication' is meant to help and heal. Isotretinoin may keep our previous skin troubles at bay, but it wreaks havoc on the entire system if one is susceptible to the damage. Jumping in front of a car is foolish. No one will argue that. Trusting a doctor that listed side effects are extremely rare, and experiencing many unmentioned effects is naivety on our part. And no one truly knows what they are getting themselves into with any potent drug such as roaccutane.

Quote
MemberMember
359
(@dubya_b)

Posted : 03/03/2014 1:28 am

Yes, it is always refreshing to see someone pop-in here every so often to throw a stone at us without thinking about what they say.

Quote
MovingOn, Gladiatoro, acne1776 and 6 people reacted
MemberMember
17
(@shadeo14)

Posted : 03/03/2014 1:03 pm

Anyone have thoughts on using a creatine supplement? Could that help...or potentially do more harm than good (some say it is dehydrating)

Quote
MemberMember
51
(@acne1776)

Posted : 03/03/2014 3:14 pm

Anyone have thoughts on using a creatine supplement? Could that help...or potentially do more harm than good (some say it is dehydrating)

I took creatine a couple years ago. Didn't help or hurt my sides but I did get pretty ripped from it. You do have to drink a lot of water while you're taking it and it's better if you're working out a lot while taking it.

Quote
MemberMember
51
(@acne1776)

Posted : 03/03/2014 4:16 pm

I want to take Accutane but this thread scares me. But I'm sick of having acne.

I know acne sucks and i remember feeling just like you did but I would gladly take my acne back any day of the week if it meant I never took this stuff. I actually still have acne (not as bad) but i literally just don't care about it at all anymore. Having severe problems puts it in perspective. Even if people don't "feel" like they got side effects Accutane decreases brain function and lowers important hormone levels. Not worth it.

If you have cystic acne you may want to look into something called nicotinamide. It's a pill made of vitamins that cured my cystic acne after I came off of Accutane. I don't think they make it anymore but there may be similar products out there. Or you could just buy the niacin and zinc that it is made of and see how that works for you. Also you may want to look into a facial wash with CBD in it. Apparently something that may help our side effects is also the cure for acne as it destroys the bacteria that causes it.

Quote
MemberMember
17
(@shadeo14)

Posted : 03/03/2014 4:30 pm

 

Anyone have thoughts on using a creatine supplement? Could that help...or potentially do more harm than good (some say it is dehydrating)

I took creatine a couple years ago. Didn't help or hurt my sides but I did get pretty ripped from it. You do have to drink a lot of water while you're taking it and it's better if you're working out a lot while taking it.

That's reassuring, I can't seem to put on any muscle since Accutane...so you didn't find it made your skin or hair dryer, just had to increase your water intake?

Quote
MemberMember
51
(@acne1776)

Posted : 03/03/2014 4:45 pm

That's reassuring, I can't seem to put on any muscle since Accutane...so you didn't find it made your skin or hair dryer, just had to increase your water intake?

Yeah I have a hard time putting muscle on too. Creatine increases the conversion of testosterone to DHT so not only does it help put muscle on that way, it also puts water into your muscles to look bigger as well. If anything it definitely helped my confidence a little bit.

I didn't notice my skin or hair getting drier although it was actually 3 years ago so I can't really remember for sure. I don't think so though. And yes you have to drink a lot of water while you take it.

Quote
MemberMember
21
(@pathtorecovery91)

Posted : 03/03/2014 5:05 pm

Did anyone ever find something to help their hair loss? Mines is really bad from accutane. I been loosing it for over a year after taking it. I started the lasercomb about 3 months ago, not seeing much difference from it yet. I also started 10000 mcg of biotin for about the past month and recently started with castor oil before shampooing what bit of hair I have left. It sucks cause im only 22 and I have a pretty bad receding hairline and the hair on top my head is really thin. You could visibly see my scalp with dry hair. It seems to have slowed down a bit but I am still continuing to lose pretty bad everyday.

My dad is 53 and still has the majority of his hair and so did my grandpaw before he died. So I know it isn't genetic, not even on the guys on my mom's side.

Even though I have e.d., at least it isn't visible or known to people. The hair loss is really depressing for me.

So what ya'll think about what I am doing for it now? (I am using head and shoulders for my dry itchy scalp when I shampoo)

Quote
MemberMember
0
(@accutanegavemeeczema)

Posted : 03/04/2014 1:22 am

Did anyone ever find something to help their hair loss? Mines is really bad from accutane. I been loosing it for over a year after taking it. I started the lasercomb about 3 months ago, not seeing much difference from it yet. I also started 10000 mcg of biotin for about the past month and recently started with castor oil before shampooing what bit of hair I have left. It sucks cause im only 22 and I have a pretty bad receding hairline and the hair on top my head is really thin. You could visibly see my scalp with dry hair. It seems to have slowed down a bit but I am still continuing to lose pretty bad everyday.

My dad is 53 and still has the majority of his hair and so did my grandpaw before he died. So I know it isn't genetic, not even on the guys on my mom's side.

Even though I have e.d., at least it isn't visible or known to people. The hair loss is really depressing for me.

So what ya'll think about what I am doing for it now? (I am using head and shoulders for my dry itchy scalp when I shampoo)

What you're doing right now sounds pretty good. My hair recovered somewhat over time. It's not like it was before, but I have seen improvement in density in some areas. I'd be happy to talk more about my experience if you PM me.

 

Anyone have thoughts on using a creatine supplement? Could that help...or potentially do more harm than good (some say it is dehydrating)

I wouldn't bother with creatine right now. If you do decide, at least use kre-alkalyn powder. I wouldn't advise any if you have slight gut issues though. Just make sure to read about it in detail before starting. I'm in the same boat though. I'm very thin, ectomorph. Hard to put on muscle and maintain it.

Quote
MemberMember
17
(@shadeo14)

Posted : 03/04/2014 5:46 pm

 

Did anyone ever find something to help their hair loss? Mines is really bad from accutane. I been loosing it for over a year after taking it. I started the lasercomb about 3 months ago, not seeing much difference from it yet. I also started 10000 mcg of biotin for about the past month and recently started with castor oil before shampooing what bit of hair I have left. It sucks cause im only 22 and I have a pretty bad receding hairline and the hair on top my head is really thin. You could visibly see my scalp with dry hair. It seems to have slowed down a bit but I am still continuing to lose pretty bad everyday.

My dad is 53 and still has the majority of his hair and so did my grandpaw before he died. So I know it isn't genetic, not even on the guys on my mom's side.

Even though I have e.d., at least it isn't visible or known to people. The hair loss is really depressing for me.

So what ya'll think about what I am doing for it now? (I am using head and shoulders for my dry itchy scalp when I shampoo)

What you're doing right now sounds pretty good. My hair recovered somewhat over time. It's not like it was before, but I have seen improvement in density in some areas. I'd be happy to talk more about my experience if you PM me.

 

>Anyone have thoughts on using a creatine supplement? Could that help...or potentially do more harm than good (some say it is dehydrating)

I wouldn't bother with creatine right now. If you do decide, at least use kre-alkalyn powder. I wouldn't advise any if you have slight gut issues though. Just make sure to read about it in detail before starting. I'm in the same boat though. I'm very thin, ectomorph. Hard to put on muscle and maintain it.

Already started! Notice some strong energy improvements after 3 days, going to try it at a low dose for a while and see how things go....why would you advise against it for gut issues?

Quote
MemberMember
359
(@dubya_b)

Posted : 03/04/2014 9:37 pm

The United Kingdom demonstration on the 25th of April will begin at

7:30 am

at the following location:

Roche Products Limited (Pharmaceuticals)
Hexagon Place
6 Falcon Way, Shire Park
Welwyn Garden City
AL7 1TW
United Kingdom

Many thanks to those who have agreed to attend the U.K. protest.

Apologies if everything isn't quite clear yet for the U.S. protest, but I am in the process of ironing-out finer details with the police department in Silver Springs MD.

Exact time and location for the U.S. demonstration should be known by the end of the work week.

It is still slated to occur on or around the premises of the US FDA HQ on the 25th of April.

Quote
MemberMember
78
(@movingon)

Posted : 03/05/2014 6:56 pm

Hey guys. Just need details on the US protest. I would like to make time to be there since it is majorly important.

I've always wondered about stem cells treatment for hair growth. This seems to incorporate both nutirnet dense blood and stem cells to regrow hair:

I'm going to contact them soon if I don't have any luck elsewhere...interesting that I also get my naltrexone from Boca Raton, good stuff happening down there.

 

Quote
MemberMember
148
(@oli-girl)

Posted : 03/05/2014 11:16 pm

Well if your saying you have E.D. then you may have some underlying hormonal issue caused by Accutane in which could be related to your hair loss. I don't know about all, but most who suffer sexual dysfunction suffer hair loss. Sometimes the side effects are related and sometimes they are not and victims suffer from multiple different things. Maybe speak with Dubya regarding the E.D./Hair Loss

Good Luck

Quote
MemberMember
3
(@hopefulremedy)

Posted : 03/06/2014 4:41 am

@anonyy,

Where and how can I do this Isotherapy?! It makes sense let me know please.

Quote
MemberMember
78
(@movingon)

Posted : 03/06/2014 6:09 pm

I am a woman lol. But yes low libido is something i struggle with

Quote