Hey everyone, I am from UK - anyone tried out the naltroxene or cannabis oil over here? I am trying to find a supplier to try this out.

My main side effects are my tight and dry face/lips which are always feeling uncomfortable. Some days are better than others but I can't figure out what is causing it. I wash with cerave about once a day and moisturise with the same brand. I also take GLA and hyaluronic acid. My face feels worse at different moments throughout the day, perhaps it flares up or something, but when it does the symptoms feel worse and can also extend to my eyes feeling sore.

I am desperate to get help and have been trying for 11 years!

Can I just say how excited I am that you guys are finally talking about cannabis oil lol....I've been trying to advocate for this all along!! I notice benefits from simply vaping, but unfortunately It's not potent enough to effect permanent change. SO. basically two things I put together as a widespread truth for myself (and my supportive, brilliant doctor). I have out of control inflammation in my body due to wicked dryness. Naltrexone and cannabis both target inflammation directly and work to help modulate the immune response. It's that simple. Naltrexone produces more endorphins in the body so that I can feel less pain and also directly modulates the immune system through this effect. I'm on month 3 of Naltrexone and doing great. I have my one or two off days, but they are tolerable. On a bad day, there is cannabis. I'm working out full time now and can work overtime with no problem. I do a gluten light diet because that's what's possible for me at this time in my life. Please look into naltrexone...it can't hurt to get information on it. It is safe when you are comparing to other medications, and has very minimal side effects. The only thing I initially got was constipation but that subsided after time and taking a super strength probiotic. Should be taking 50 billion organisms or more. I had been taking less than that and ZERO beneficial flora showed up in a stool test. That's a problem! It's winter time and I'm not worried about getting sick since I know it will be tolerable for once.

This girl will be moving to Cali in two years. My life's more important than an awesome job. I hope you all can get your hands on it. Let me know what you find out. I'm in Mass, but dispensaries are not up and running as far as I know yet. You can get a medical marijuana license tho...Totally going to ask about that soon.

 

 

Does anyone know if castor oil is an anti-androgen or contains vitamin A? I'm working to regrow my hair. I'm taking biotin (have tried it in the past with no results so I'm not too hopeful), but I don't want to take ANY anti-androgens since I'm super super sensitive to them. My nostrils will instantly dry up, eyes dry up, amongst other not so comfortable things. Any hair loss remedies that improve blood flow to the crown area that isn't an expensive laser system?? or an insanely shifted diet?

Thanks you guys. Hope you are doing okay.

Hi MovingOn,

Quick few questions if you don't mind? In regards to vaping cannabis, do you feel any benefit beyond while you're high? I simply ask because it may be difficult for me to grow for a while and create RS oil. However, I think I can get hold of a vaper (if I wasn't so fussed with sport I'd simply smoke), so was just wondering if you considered it a worthy benefit? To be honest though, I think getting high once in a while would probably do me some good anyway.

In regards to castor oil I would message anonny, he seems knowledgable on the topic.

Credit 'Mes' for finding the emails of these MP's.

Last message I sent to my parents. Thought some people on here might find it a moderately interesting read.

"It seems I'm venturing down the rabbit hole of conspiracy theories here but bare with me.

This is going off on a tangent on what I'm actually interested in cannabis oil for. However, it's beginning to be recognised that certain compounds within marijuana can be used to treat cancer. The worrying thing is its been around for a while. If you google 'university of Virginia cannabis 1974', a study was done in an attempt to prove that it increases cancer. What it did in fact show was it actually stopped growth and in some got rid of the cancer! This got buried until the last few years apparently. But why would they bury it?

I agree that the health system is there to keep people healthy. However, only when they can make money out of it. If you look through patent laws, it is not possible to patent a plant (marijuana). So what is currently happening is they are trying to create a derivative of the cancer curing properties of marijuana. So their not actually using the original compound that has been shown to be useful, just a synthetic version of it which will have similar effects! This synthetic version can be patented and sold!!

http://scienceblog.cancerresearchuk.org/2009/08/19/cannabinoids-for-treating-cancer/

Here is an excerpt from the above paper:

"In their recent paper, Professor Ines Diaz-Laviada and her team at the University of Alcala in Madrid studied the effects of two cannabinoids “ the catchily named Methanandamide (MET) and JWH-015. These are synthetic chemicals that don™t occur naturally in cannabis, although they are similar to compounds found in the plant."

This is from cancer research UK themselves! The 1st paragraph has been worded carefully. It says that smoking cannabis can't cure cancer but man made synthetic versions of specific cannabis elements potentially can. Not sure if I mentioned it here or not, but the reason that smoking cannabis has been shown not to be helpful for all these issues is that it burns off these beneficial compounds, so technically they speak the truth but not the whole truth.

Furthermore, this has made mainstream news in the last few years:

http://www.dailymail.co.uk/tvshowbiz/article-2157389/Tommy-Chong-claims-beat-cancer-using-cannabis.html

They ridicule him that he is trying to cure his own cancer with cannabis oil, this was in 2012. I googled him to see what had happened to him:

http://www.film-news.co.uk/show-news.asp?H=Tommy-Chong-announces-he-is-cancer-free&nItemID=19214

He is living cancer free now..

I promise I'm not going to run away and become a renegade hippy. "

 

This is promising!

 

I emailed mail@

nickharveymp.com and got this email in response. That last sentence is key! Their considering setting up a specific site/ campaign group with parents and victims of accutane.

I urge you once again to email these MP's (see my signature). We've figured that apart from cannabis oil no-one seems to have recovered from hiding in their rooms trying their own things.

Once we get recognition of this issue is when we get research done into this compound and proper scientific evidence on how we could possibly reverse it and for those outside the

US possibly get compensation when we can prove causation. I've emailed them in response detailing my side effects in gory detail (still being polite and not exaggerating nor using hyperbole).

"Dear Michael,

Many thanks for getting in touch last week and Im sorry to hear that you have suffered adverse effects after taking RoAccutane.

As you say, there are many people who have experienced similar effects, some of those tragically ending in people taking their own lives. Until we can identify why RoAccutane has such markedly adverse side effects on this group of people and why in particular they are vulnerable to it, the drug continues to pose a risk to the public.

Going forward, Nick and other MPs concerned about this are meeting Minsiters at the Department of Health in the new year to discuss this topic Minister Norman Lamb expressed very clearly after the debate a few weeks ago that he was very sympathetic to our concerns and wanted to take this forward in the Department. We are currently building up a database from parents we know of and people who have contacted us of all those affected by this issue and I would be grateful if we could add your name and a few brief details to it, namely where youre from, and just briefly your story i.e. how long you took RoAccutane for and what impact it had upon your life I will also add your email address if thats OK. I hope then that we can keep the list updated on the campaign and see if someone could set up a website or a campaign group where people like yourself can connect with other victims.

Many thanks and kind regards,

Pippa

Pippa Page

Parliamentary Researcher to Sir Nick Harvey MP (North Devon)"

 

 

Credit 'Mes' for finding the emails of these MP's.

This is really encouraging, good work on making the effort Crank! I must write to my local MP too.

Like yourself I'm thinking cannabis oil really is the most promising thing for treating 'tane sides so I'll be looking to get my own sorted if I have no success from my January water fast (another thing which looks to have potential benefits, its just so damn difficult to get done) and Cibdex 20% CBD hemp oil (mentioned I'm going to try this over on the ATM forum - I'm on a differnet username there - Clayton95).

I've ordered 4 bottles of that stuff which are currently stuck at UK customs which isn't great though! Expecting a dawn raid on my home any time!!..

The thing I'm still a bit confused about though is whether THC or CBD, or a combination of the 2 is the most beneficial cannabinoid, and it seems I'm not the only one based on studies. I don't know what the THC content of this Cibdex stuff is, but it'll be under 1.5% as it's classified as hemp. Potentially it could even be one of the other 90+ cannabinoids in the plant, but these are certainly the key 2.

Really hope customs release my shipment as I might give it a go for a few days before my water fast if so.

Hi Tandeout,

Haha customs is such a bummer! The charge I get on ordering Benzoyl Peroxide and the like from this site is extortionate!

This the thing, it seems both have differing beneficial effects. THC seems to be the anti-cancer property and CBD appears to be the neurological property, perhaps with some crossover. The youtube link I posted the other day show's a girl having 300 seizures a week (neurological) used a strain with 17% CBD and 0.5% THC which stopped her seizures. However of note is that both taneabomination used accutaneispoison used regular Rick Simpson Oil which has high THC and reasonable CBD. Again though I've named it the 'apple theory' now. I don't know if it was in a PM to someone or on the board or both, but I remember reading in one of my old textbooks that it's estimated we know about 1-2% of the phytonutrients in an apple. Wouldn't you think that eating an apple would be of more benefit than eating those 1-2% of known phytonutrients?

EDIT: just in case it wasn't clear in the point of this; it would probably be better to get the real thing as opposed to a single extract. But I realise that's easier said than done!

Also to note is I think people have noted that the dose is quite low in the cibdex drops even with a high conc. (Look at the top review on amazon for cibdex). Not trying to crush you before you've started but if it doesn't happen to work don't give up hope! Also remember taneabomination didn't notice effects until about 3 months of consistent use. However, if you notice benefits be sure to let us know. I would love to be proved wrong

Also of note tanedout is that I'm not just writing my own MP (tbh I've yet to do that), I'm just mailing all the MP's that have been mentioned in the news articles. Mainly Mes who seems to find them though!

 

This the thing, it seems both have differing beneficial effects. THC seems to be the anti-cancer property and CBD appears to be the neurological property, perhaps with some crossover. The youtube link I posted the other day show's a girl having 300 seizures a week (neurological) used a strain with 17% CBD and 0.5% THC which stopped her seizures. However of note is that both taneabomination used accutaneispoison used regular Rick Simpson Oil which has high THC and reasonable CBD. Again though I've named it the 'apple theory' now. I don't know if it was in a PM to someone or on the board or both, but I remember reading in one of my old textbooks that it's estimated we know about 1-2% of the phytonutrients in an apple. Wouldn't you think that eating an apple would be of more benefit than eating those 1-2% of known phytonutrients?

EDIT: just in case it wasn't clear in the point of this; it would probably be better to get the real thing as opposed to a single extract. But I realise that's easier said than done!

Do you know what strain/type of cannabis AcctuaneIsPoison or TaneAbomination used for their RSO? I'm tempted to drop them an mail and find out if it's not already know. Could then see what THC/CBD those strains tend to have. It seems AccutaneIsPosion noticed effects much sooner than TaneAbonition did.

I'm still keen to try this Cibdex stuff, and if I feel it's having an effect I might go for the concentrated stuff they do in a syringe. I plan to work up to much higher does than the suggested one...that's assuming I ever get my hands on it - my shipment of 4 x Cibdex finally got released from customs, however FexEx have delivered it somewhere that isn't my home, signed for by someone random! No idea if I'll get hold of it!!

 

 

This the thing, it seems both have differing beneficial effects. THC seems to be the anti-cancer property and CBD appears to be the neurological property, perhaps with some crossover. The youtube link I posted the other day show's a girl having 300 seizures a week (neurological) used a strain with 17% CBD and 0.5% THC which stopped her seizures. However of note is that both taneabomination used accutaneispoison used regular Rick Simpson Oil which has high THC and reasonable CBD. Again though I've named it the 'apple theory' now. I don't know if it was in a PM to someone or on the board or both, but I remember reading in one of my old textbooks that it's estimated we know about 1-2% of the phytonutrients in an apple. Wouldn't you think that eating an apple would be of more benefit than eating those 1-2% of known phytonutrients?

EDIT: just in case it wasn't clear in the point of this; it would probably be better to get the real thing as opposed to a single extract. But I realise that's easier said than done!

Do you know what strain/type of cannabis AcctuaneIsPoison or TaneAbomination used for their RSO? I'm tempted to drop them an mail and find out if it's not already know. Could then see what THC/CBD those strains tend to have. It seems AccutaneIsPosion noticed effects much sooner than TaneAbonition did.

 

I'm still keen to try this Cibdex stuff, and if I feel it's having an effect I might go for the concentrated stuff they do in a syringe. I plan to work up to much higher does than the suggested one...that's assuming I ever get my hands on it - my shipment of 4 x Cibdex finally got released from customs, however FexEx have delivered it somewhere that isn't my home, signed for by someone random! No idea if I'll get hold of it!!

Not yet. I've messaged both and TaneAbomination has replied, I've asked several questions now so just awaiting another response. He's only online sporadically though so might be awhile before I get a reply.

Hahahaha that is a huge pain in the A! Do you reckon you'll get a hold of it, or at least be refunded? Because that is a fair bit of cash (by my student standards anyway). I'm intrigued to see if you get any results as you seem dedicated to the idea rather than half assing it! Let us know what happens!

 

no joint pain, no.

Agreed Nick Ryan, except that it does not logically follow that an epigenetic change induced by environment is therefore reversible by environment. Humpty Dumpty, bullet to the head, etc.

Dubya B, you are on point today. Brainfog clearing?

Judging by your second post, yes, undoubtedly.

"Something I find very interesting is the few recoveries resulting from water fasting. It has been shown in vitro, that if a cell is starved for long enough, it will begin shedding epigenetic tags and makes its way back towards pluripotency."

Damn, but...

" I'm not sure if this has anything to do with the fasting recoveries since it would be difficult to accomplish the level of "starvation" as in the in-vitro experiments while still living, but it is something to think about.

I have completed a 7 day water fast, and a couple other sufferers have gone 21 and 28 days without remission of symptoms, so it is not a sure thing."

Ouch. Mega ouch.

Still. "This kind comes out only by fasting and prayer." Something to think about.

"She eats organic, makes a living from organic farming, and basically lives organic, but still suffers severe side effects. ...It only helps so much. I will try to get her on this board if I get a chance to speak with her again soon."

I'm fascinated by such cases. I wonder how much vegetables and fat she eats. One million percent organic of either would slay me.

Anonyy is probably wonderful to talk to in person. Disorganized posters typically are lively, engaging conversationalists. But not useful on forums.

Ouch, MovingOn. I continue to do quite well on my regimen. Just need the blue blockers to cut the fluorescent light and I'll be 100%. Standing desks help quite a bit with nap adherence and productivity.

Can you summarize Accutaneispoisons recommendations, TaneAbomination? Ah, Rick Simpson oil, yes legit.

"Excerpt: " The following adverse effects have been reported to persist, even after discontinuing therapy, suggesting persistent (or perhaps slowly-reversing) gene expression changes and epigenetic effects: alopecia, arthralgias, ocular abnormalities, inflammatory bowel disease, keloids, osteopenia, hyperlipidemia, erectile dysfunction, and psychiatric disturbances. Isotretinoin is postulated to have complex effects on the brain and central nervous system.""

This.

About 6 weeks ago I started taking 1200 to 1800 mg of NAC spread throughout the day.

Results:

improved energy

far better skin on arms and back, less inflammation

I take ACC Akut 600. I am going to cycle it. Going off NAC for the first time in the next week, let's see what happens.

Interesting to note if anyone is considering vaping (or already doing it):

[Edited link out]

The stuff left behind after vaping apparently has a high cannibinoid content and you can use it with food. Again I'm not promoting this over Rick Simpson Oil (RSO), just another option.

[Edited link out]

Once again not advocating it over RSO, just a suggestion.

I'm wary of some of the theories, but I think altered bile flow is quite plausible as one of the things that can happen.

Thanks Crank for updating us on your correspondence with the MPs. Pippa, Sir Nick's parliamentary researcher, was so kind as to return my email too. She really didn't have to do that since I'm not from the UK, so I appreciated it a lot.

Indigo - I'm sorry to hear that you're feeling this down. I wish I had something uplifting to say except I really identify with a lot of what you described. So that's not helpful... I guess know that I have a lot of those same thought patterns and somehow I'm chugging away (barely, some days). There are fleeting moments of not total happiness, but at least a feeling of life is worth living for a little longer. But it's not enough, as I don't have to tell you.

Random thing I came across whilst studying for January exams (so much for enjoying Christmas). It may has some relevance to the fasting theories of 'starving' the neural cells with the aims of resetting the epigenetic tag structure.

http://jp.physoc.org/content/590/3/607.full

Basically shows that 1 single exhaustive bout of exercise can cause a 50-64% reduction in brain glycogen. So I imagine a fast could reduce that further. Whether or not that achieves anything in regards to resolving any symptoms I have no idea. Although the brain in normal circumstances relies pretty much entirely on glucose it can in certain circumstances utilise ketones. To induce ketosis you would need to either follow a ketogenic diet (no carbohydrates, or very limited) for a while or fast for at least 3-5 days. If anyone has knowledge on the topic feel free to debate but perhaps ketosis is the key aspect of 'starving' the cell or maybe there is some other metabolic implication that fasting induces that a ketogenic diet does not.

Random aside that I never understood mixed with a question...here goes:

I have not been taking any fish oils since I know they can be harmful for some...symptoms in the past when I took fish oil included headaches and overheating, but to be fair it did make my joint pain stop and contributed to me not freezing so badly in the winter. So what is so bad about the fish oil? specifically omega 3 that we cannot tolerate? It's quite annoying since I know it would help insulate my joints...luckily my joints have been feeling very good with the naltrexone though and a modified diet.

Any explanation of this mechanism would help out. I'm not looking for a lecture just an explanation as to why specifically omega 3's are believed to be atrocious/are atrocious for us severely effected.

I'm aware that some has A in it, so I'm not talking about that.

MovingOn, surprised to hear you experience "overheating". I have this uncommon side effect to a pretty severe degree sometimes. Not sure what triggers it, but it will feel as if I am in an oven, and there's no way to get rid of the heat. Just have to wait ill it passes. I don't have any redness/flushing that accompanies it, and never break out in a sweat from it either.

Sound familiar?

Sorry I can't answer your question about omega 3s. Not sure why some people recommend against it, but apparently others have a bad reaction to it after tane. I take fish oil capsules 3 times daily, and don't seem to have any problem with them.

On 12/21/2013 at 1:45 AM, Crank92 said:

Not yet. I've messaged both and TaneAbomination has replied, I've asked several questions now so just awaiting another response. He's only online sporadically though so might be awhile before I get a reply.

Hahahaha that is a huge pain in the A! Do you reckon you'll get a hold of it, or at least be refunded? Because that is a fair bit of cash (by my student standards anyway). I'm intrigued to see if you get any results as you seem dedicated to the idea rather than half assing it! Let us know what happens!

Well I finally got hold of the stuff on Christmas eve! I've taken at least twice the daily dosage over the last couple of days and haven't noticed anything, but didn't really expect to. If I get anything from it it's clearly going to take time and no doubt a higher dosage, but I wanted to try it before going on my water fast just out of curiosity really. It's clearly an 'acquired taste', and I'm seeing why they also offer it in peppermint too now!!.. [Edited image out]

Might be starting my water fast later today if I don't go out tonight. Planning on at least 14 days. Are you still on to start yours late Jan/Feb Crank?

Anyone else tried a long-ish waterfast, i.e. over 14 days? Was interesting to read on propeciahelp that people doing a 7 day water fast generally got no benefit from it, but for a longer term fast - over 14 days, most people felt they saw an improvement in their symptoms so I'm definitely aiming for over 14 days.

Dubya, are you planning on doing another fast? I know you did a 7 day one, but saw no benefit from it. January is a pretty rubbish month, so it seems like a good time to of the year to get it done!

 

Might be starting my water fast later today if I don't go out tonight. Planning on at least 14 days. Are you still on to start yours late Jan/Feb Crank?

 

Anyone else tried a long-ish waterfast, i.e. over 14 days? Was interesting to read on propeciahelp that people doing a 7 day water fast generally got no benefit from it, but for a longer term fast - over 14 days, most people felt they saw an improvement in their symptoms so I'm definitely aiming for over 14 days.

Sensible, TaneAbomination took about 3 months before he noticed real benefits and he was using the legit Rick Simpson Oil so I would hold out a little longer haha yea extracts never taste good it'd be like chewing on caffeine pills rather than drinking coffee (which is also an acquired taste I guess)

Nice, let us know how it goes. Just remember to take it easy, it's a long time without food. Hunger pangs generally don't last more than hour so try to hold out!

It does match up with the texts that I read that the healing properties of fasting don't really kick in till day 10. However, saying that there are some who go 28 days with no real improvement. Seems 50/50, hopefully you'll be in the good 50%

I was but I've encountered a problem. I was planning on doing it in the 2 week break between end of exams and start of next term. Now though it seems I'm going skiing for 10 days in this break (mixed emotions). I'm exploring a different route now though. Vaping as well as consuming the AVB (after vaping bud) which apparently contains CBD and other cannibinoids. So will see how that goes. I think RSO and fasting may have to wait till post uni (June-July).

On 12/27/2013 at 9:39 PM, Crank92 said:

I was but I've encountered a problem. I was planning on doing it in the 2 week break between end of exams and start of next term. Now though it seems I'm going skiing for 10 days in this break [Edited image out]{Edited image out](mixed emotions). I'm exploring a different route now though. Vaping as well as consuming the AVB (after vaping bud) which apparently contains CBD and other cannibinoids. So will see how that goes. I think RSO and fasting may have to wait till post uni (June-July).

Cheers, yeah I'm pretty determined to do at least 14 days with it. I'll probably look like Skeletor at the end of it, but so be it! I'll be starting probably Sunday now as I'm off out tonight - which will be the last time for a while.

I think you're making the right decision by going skiing to be honest Crank - skiing is class so getting out there and enjoying yourself and not even thinking about 'tane sides for 10 days will probably do you good!

One of my mates was diagnosed with MS in her early 20's - she litterally used to be the life and soul of the party, but now shes in a position now where she's had periods of months of not even being able to get out of bed and obviously can't work anymore. She manages to always look on the positive side, but her condition will only get worse. Sort of puts things in perspecitve - lots of us on her having a nightmare with 'tane sides, but most of us can at least have a normal life for the most part, so got to make the most of that!

Do you plan to vape just normal 'street' cannabis, or grown your own? I've considered growing to make RSO, but the process of extracting the oil is the stumbling block for me. Boiling a pot of leaves in alcohol just sounds a bit too risky to me, unless you have somewhere you can do it outdoors. I'm guessing you've watched the video with vaping that AccutaneIsPoison posted up. Be interested to know how you get on with that method. Don't know how much produce you need to get decent amounts of vaped stuff though?

Cheers, yeah I'm pretty determined to do at least 14 days with it. I'll probably look like Skeletor at the end of it, but so be it! I'll be starting probably Sunday now as I'm off out tonight - which will be the last time for a while.

 

I think you're making the right decision by going skiing to be honest Crank - skiing is class so getting out there and enjoying yourself and not even thinking about 'tane sides for 10 days will probably do you good!

 

One of my mates was diagnosed with MS in her early 20's - she litterally used to be the life and soul of the party, but now shes in a position now where she's had periods of months of not even being able to get out of bed and obviously can't work anymore. She manages to always look on the positive side, but her condition will only get worse. Sort of puts things in perspecitve - lots of us on her having a nightmare with 'tane sides, but most of us can at least have a normal life for the most part, so got to make the most of that!

 

Do you plan to vape just normal 'street' cannabis, or grown your own? I've considered growing to make RSO, but the process of extracting the oil is the stumbling block for me. Boiling a pot of leaves in alcohol just sounds a bit too risky to me, unless you have somewhere you can do it outdoors. I'm guessing you've watched the video with vaping that AccutaneIsPoison posted up. Be interested to know how you get on with that method. Don't know how much produce you need to get decent amounts of vaped stuff though?

Solid effort if you achieve it! Have you mentioned anything to friends/family so they don't freak out, or just going to plough through regardless?

Indeed, I might have mentioned it before but I volunteer in a local hospital and in a kind of morbid way it's almost therapeutic as you said it can put things in perspective. However, in a sense I think I might be angry because of how unjust it is. For example my joints are f**ked I'm 21 years old and already had surgery on both shoulders due to overuse injuries and I'll be getting another surgery on my left shoulder. I also have a fully ruptured ligament in my foot which needs repairing. All of this will probably take me out of sports for a total of 2-2.5years but I accept it is as something that is due to my own actions and in my genes I am aware of the risks of sports and I'm aware that I don't have the strongest joints but I'll still do it. Accutane I had no idea could do this to me and that's what bums me out the most. However, again you're right there are people in far worse positions.

I haven't decided exactly yet. One of the girls I used to work with and am good mates with her bf is like a proper weed connoisseur he knows all about Indica/Sativa CBD/THC Vaping, RSO everything. Sadly he doesn't grow his own anymore but he may know where to get some good stuff. Otherwise, one of the guys on this board messaged me a guy who sends stuff out from amsterdam. Otherwise probably just street stuff if either of those fail to materialise. I will be growing my own at some point but it will probably be post uni, so June sometime -_- I'm aware vaping will be nowhere near as effective as RSO but to be honest I wouldn't mind having something to chill out from time to time before bed!

Just came in to post (the short version of) my story.

Antibiotics for a combined total of 2.5 years.

Accutane starting from late 2012 to early 2013 (i think i finished in march 2013).

July 2013 - i started getting sick, a few months later i was diagnosed with Crohns.

Crohn's disease, the disease i had only heard of in the context of accutane warnings by people on the internet. People I had ignored because the odds were supposedly so slim. My dermatologist didnt tell me shit about the risks, that was the surprising thing. I KNEW them all because i had done my research, but the fact that the derm just mentioned dry lips and possibly a bit of 'feeling down' seems ridiculous looking back.

To be fair, i dont completely blame the accutane, it seems that 'gut dysbiosis' plays a huge role in crohns, and antibiotics are the prime suspect for that.

I feel like if i had never started taking antibiotics as a kid, the hormonal acne would have gone and i would have ended up fine. But instead i took them and the acne got worse as a result of destroyed gut bacteria balance. After that it was just a case of sliding down that slippery slope.

Antibiotics for acne NEED to stop.

Yup anti-life biotics as I call them are bad bad news , I only took them once for two weeks I remember the severe stomach pain I had , they

destroy the immune system which in the long run causes more acne and a laundry list of other health problems looking back

the doc wanted me to stay on them for 4 months I made a wise decision to stop on my own accord.

I wish you the best for your recovery .....

Just came in to post (the short version of) my story.

Antibiotics for a combined total of 2.5 years.

Accutane starting from late 2012 to early 2013 (i think i finished in march 2013).

July 2013 - i started getting sick, a few months later i was diagnosed with Crohns.

Crohn's disease, the disease i had only heard of in the context of accutane warnings by people on the internet. People I had ignored because the odds were supposedly so slim. My dermatologist didnt tell me shit about the risks, that was the surprising thing. I KNEW them all because i had done my research, but the fact that the derm just mentioned dry lips and possibly a bit of 'feeling down' seems ridiculous looking back.

To be fair, i dont completely blame the accutane, it seems that 'gut dysbiosis' plays a huge role in crohns, and antibiotics are the prime suspect for that.

I feel like if i had never started taking antibiotics as a kid, the hormonal acne would have gone and i would have ended up fine. But instead i took them and the acne got worse as a result of destroyed gut bacteria balance. After that it was just a case of sliding down that slippery slope.

Antibiotics for acne NEED to stop.

MovingOn, surprised to hear you experience "overheating". I have this uncommon side effect to a pretty severe degree sometimes. Not sure what triggers it, but it will feel as if I am in an oven, and there's no way to get rid of the heat. Just have to wait ill it passes. I don't have any redness/flushing that accompanies it, and never break out in a sweat from it either.

Sound familiar?

Sorry I can't answer your question about omega 3s. Not sure why some people recommend against it, but apparently others have a bad reaction to it after tane. I take fish oil capsules 3 times daily, and don't seem to have any problem with them.

I only get the overheating when I do stupid things like taking apaprently antiandrogenic substances on accident. I had no idea about the anti-androgenic effects. I am super sensitive to these effects as many are. It's stange that you aren't effected by fish oil. I don't overheat since naltrexone, but it does help me to feel warm.

Anyone know a good shampoo without cococnut oil, that has zinc pyrthione, and NO sulfates or parabens in it? I keep realizing that one bullshit ingredient ruins my shampoo, there's coconut oil in a lot and it's a NO GO.

On 12/29/2013 at 12:00 AM, NiRoMa said:

Just came in to post (the short version of) my story.

Antibiotics for a combined total of 2.5 years.

Accutane starting from late 2012 to early 2013 (i think i finished in march 2013).

July 2013 - i started getting sick, a few months later i was diagnosed with Crohns.

Crohn's disease, the disease i had only heard of in the context of accutane warnings by people on the internet. People I had ignored because the odds were supposedly so slim. My dermatologist didnt tell me shit about the risks, that was the surprising thing. I KNEW them all because i had done my research, but the fact that the derm just mentioned dry lips and possibly a bit of 'feeling down' seems ridiculous looking back.

To be fair, i dont completely blame the accutane, it seems that 'gut dysbiosis' plays a huge role in crohns, and antibiotics are the prime suspect for that.

I feel like if i had never started taking antibiotics as a kid, the hormonal acne would have gone and i would have ended up fine. But instead i took them and the acne got worse as a result of destroyed gut bacteria balance. After that it was just a case of sliding down that slippery slope.

Antibiotics for acne NEED to stop.

Hi NiRoMa,

Sorry to hear yet another victim of the medical industry. I highly highly recommend either the specific carbohydrate diet (SCD) or the Gut and Psychology Syndrome Diet (GAPS) - they're both pretty much the same GAPS is a bit more strict. I too believe that anti-biotics and tane ruined my gut. I spent the first 3 months after tane not able to leave the house due to diarrhoea. However, now if I follow this diet strictly I am regular without gut issues. But I have to stress I have to be immaculate with the diet as soon as I stray I have issues (although they are very very slowly fading).

[Edited link out]

Both of these diets are specifically intended for Chrons, Ulcerative Colitis and anti-biotic induced diarrhoea. Read the amazon reviews, this is legit stuff. I vouch for it too. Sad thing is when you can help yourself with some dietary modification, doctors will cry bullshit and try and prescribe you MORE antibiotics

Honestly try either of these diets 100% strict for 2 weeks and tell me you don't see a huge improvement in symptoms!

 

Solid effort if you achieve it! Have you mentioned anything to friends/family so they don't freak out, or just going to plough through regardless?

 

 

I've told workmates I'm planning on a crash diet/detox for a couple of weeks! I'd previously discussed juice/water fasts with workmates to test the water (no pun intended!..) but a lot them think you'd have to be mad to stop eating for more than a day, so I can't be arsed having to argue my case all the time, so the crash diet/detox route seems better! I've also got a week booked off work, and plan to get 2 more days booked off if things go to plan. I've actually started the fast today at 13:00, so will see how things go. I'm slim anyway, so the weightloss won't as obviously as if I was a bit portly.

Is that someone from Amsterdam supplying ready made RSO? If so I might well look to get some if it's apparently decent quality. I'll be getting back on the Cibdex once my fast is over, and upping the dosage. The same firm also offer syringes of thick oil which is much stronger, but it's expensive - 150 delivered for a 10 dose syringe. RSO is probably cheaper, but if I feel like I'm getting some benefits from the Cibdex I might consider a couple of syringes of the stuff.