I know most of the people in this thread are quite knowledgeable on accutane and the strain it has on your body. In fact, I'm sure a lot of you probably know more about the harmful effects of this drug then my dumb ass dermatologist did. With that being said is there anyone here who could point me in a good direction on how to deal with accutane induced hair loss? I'm one month post-tane and it's getting worse and worse.

I thought you all might be as amused as I was to learn that Roche's media monitoring software picked up my blog:

[Edited link out]

That screenshot shows a list of referrers to the blog. The second to last one is Roche. The ".ch" indicates Switzerland, where they are based. I doubt they gave it much thought at all, but still.

That same software picks up articles about their drug, so again, feel free to leave comments on them (you can use Google Alerts).

I know most of the people in this thread are quite knowledgeable on accutane and the strain it has on your body. In fact, I'm sure a lot of you probably know more about the harmful effects of this drug then my dumb ass dermatologist did. With that being said is there anyone here who could point me in a good direction on how to deal with accutane induced hair loss? I'm one month post-tane and it's getting worse and worse.

Castor oil, no acidic&mucus-forming food + vegetables juice (for the minerals).

Hey again all:

 

In the U.K., Nick Harvey is the MP for the Medlands. Their son Jon was a med student who hanged himself after taking Accutane for several weeks.

 

Harvey is calling for more research into the side effects etc. You can email him at [email protected].

Excuse me for being computer illiterate, but how did you find his email? I found the site about mailing your own MP, but that didn't allow me to mail this guy only my own MP? I'll email him later

Also how did you find out that Roche is monitoring your page?

Ok so I thought I'd wait a few days before I posted about this to see if it continued, it has;

Friday night I had some mild chest pain, then on Saturday night the same but a bit more intense, then on Sunday it felt like someone had a lighter right behind my sternum (breast bone). Again I don't consider myself a hypochondriac, proof being is I've apparently been walking on a completely ruptured ligament in my ankle with bones fragments floating around for the last 3 years before I bothered getting it checked out. This though, I honestly felt like I was going to have a heart attack. I went to hospital once it settled down, had an ECG and everything was fine. Good I guess, but wtf was wrong then? Went to the doctor the next day and explained my symptoms, he said if it carries on come and see him. One thing I heard though, he likes to mumble to himself when hypothesising is that it could be the onset of gastro-oesophageal reflux disease but then under his breath again he said that doesn't happen till you're like 60-70. Are you fucking sh*tting me!!

I've now put blocks under the head side of my bed to keep my body at angle to stop any suspected stomach acid going up my oesophagus, it helps. But the burning is still there just a bit lower. The only time I've managed to completely alleviate any issues is when I'm pretty much completely upright. Solve IBS, get a new problem - f**k you Roche. 13 months later and it's still finding new and ever unentertaining ways to f**k with me.

Rant over.

EDIT: Taken from Nathan Carrs report:

"Roches track record for creating dangerous drugs extends beyond Accutane. Take Lariam for

On 12/12/2013 at 7:09 PM, Crank92 said:

On 12/12/2013 at 6:53 AM, mes6890 said:

Hey again all:

In the U.K., Nick Harvey is the MP for the Medlands. Their son Jon was a med student who hanged himself after taking Accutane for several weeks.

Harvey is calling for more research into the side effects etc. You can email him at [email protected].

Excuse me for being computer illiterate, but how did you find his email? I found the site about mailing your own MP, but that didn't allow me to mail this guy only my own MP? I'll email him later [Edited image out]

Also how did you find out that Roche is monitoring your page?

Most lawmakers in the U.S. have their own individual websites with contact information, and it appears the same is true in the U.K. I just Googled "MP Nick Harvey" and got to his website which included a contact email.

As for the blog, I use the same blogging platform at work (WordPress). There's a page called "Referrers" that shows where your traffic is coming from. That's why some of the other links in that screenshot are "PropeciaHelp" and "acne.org" and "AllThingsMale." I've had the blog since August (just needed a place to organize my thoughts), but what tripped their software recently was including the word "Roche" in a headline. I put out two more posts and made sure to include Roche in the title, and that will probably do the same thing.

I really doubt they care about it or even read it, but I guess you never know. I can only imagine what they've come across over the years.

So sorry to hear about the chest pain you're experiencing. The lighter description is horrific. On top of the physical pain (I haven't had any gastrointestinal problems so I can't relate to that one) is the financial expense of dealing with these side effects...you mentioned you had to go to the hospital.

Do you have a hard time with physicians since you only took 10 pills? Granted, a lot of members here took it for longer than that and still have trouble getting through to doctors.

On 12/12/2013 at 9:27 PM, mes6890 said:

On 12/12/2013 at 7:09 PM, Crank92 said:

On 12/12/2013 at 6:53 AM, mes6890 said:

Hey again all:

In the U.K., Nick Harvey is the MP for the Medlands. Their son Jon was a med student who hanged himself after taking Accutane for several weeks.

Harvey is calling for more research into the side effects etc. You can email him at [email protected].

Excuse me for being computer illiterate, but how did you find his email? I found the site about mailing your own MP, but that didn't allow me to mail this guy only my own MP? I'll email him later [Edited image out]

Also how did you find out that Roche is monitoring your page?

Most lawmakers in the U.S. have their own individual websites with contact information, and it appears the same is true in the U.K. I just Googled "MP Nick Harvey" and got to his website which included a contact email.

As for the blog, I use the same blogging platform at work (WordPress). There's a page called "Referrers" that shows where your traffic is coming from. That's why some of the other links in that screenshot are "PropeciaHelp" and "acne.org" and "AllThingsMale." I've had the blog since August (just needed a place to organize my thoughts), but what tripped their software recently was including the word "Roche" in a headline. I put out two more posts and made sure to include Roche in the title, and that will probably do the same thing.

I really doubt they care about it or even read it, but I guess you never know. I can only imagine what they've come across over the years.

So sorry to hear about the chest pain you're experiencing. The lighter description is horrific. On top of the physical pain (I haven't had any gastrointestinal problems so I can't relate to that one) is the financial expense of dealing with these side effects...you mentioned you had to go to the hospital.

Do you have a hard time with physicians since you only took 10 pills? Granted, a lot of members here took it for longer than that and still have trouble getting through to doctors.

Replied to most of this in a PM,

One thing I will note is thankfully I live in the UK which means I've got access to the NHS, alongside that I've got private healthcare through my parents insurance plan. So I can see a doctor whenever I feel like courtesy of the taxpayer and then if I need to see specialists I go private as it's much faster. So thankfully the ECG and other tests + doctor appointment amounts to no cost. I guess that's something to smile about, or at least not be miserable about!

On 12/12/2013 at 9:04 AM, shadeo14 said:

How can one get this Rick Simpson cannabis oil?

Couple of options:

i) Grow your own, 100% Indica appears to be best due to higher CBD content

ii) Find a reliable source who is willing to grow for you

iii) Somehow get hold of a medicinal use license (if you happen to live in the states, or Uraguay who have just legalised marijuana for all)

Once you've obtained enough Mary Jane (I'm learning the lingo now ), follow the instructions for producing it yourself.

I'm sorry if this doesn't fill you with hope. Sadly it's not as easy as popping down to the local supermarket and buying it.

Otherwise there is a bunch of knock offs floating around and from a completely subjective perspective I wouldn't bother.

--

 

I know most of the people in this thread are quite knowledgeable on accutane and the strain it has on your body. In fact, I'm sure a lot of you probably know more about the harmful effects of this drug then my dumb ass dermatologist did. With that being said is there anyone here who could point me in a good direction on how to deal with accutane induced hair loss? I'm one month post-tane and it's getting worse and worse.

 

Castor oil, no acidic&mucus-forming food + vegetables juice (for the minerals).

Thanks a lot for replying man. Do I drink castor oil or use it on my scalp? Sorry to come across as uninformed.

Lol no don't drink it, it's used on the scalp, don't know how precisely but for most people you see very good result after 1-3 month (depend on people) for all the testimony i've saw.

 

Hey again all:

 

In the U.K., Nick Harvey is the MP for the Medlands. Their son Jon was a med student who hanged himself after taking Accutane for several weeks.

 

Harvey is calling for more research into the side effects etc. You can email him at [email protected].

 

Excuse me for being computer illiterate, but how did you find his email? I found the site about mailing your own MP, but that didn't allow me to mail this guy only my own MP? I'll email him later

 

Also how did you find out that Roche is monitoring your page?

Most lawmakers in the U.S. have their own individual websites with contact information, and it appears the same is true in the U.K. I just Googled "MP Nick Harvey" and got to his website which included a contact email.

As for the blog, I use the same blogging platform at work (WordPress). There's a page called "Referrers" that shows where your traffic is coming from. That's why some of the other links in that screenshot are "PropeciaHelp" and "acne.org" and "AllThingsMale." I've had the blog since August (just needed a place to organize my thoughts), but what tripped their software recently was including the word "Roche" in a headline. I put out two more posts and made sure to include Roche in the title, and that will probably do the same thing.

I really doubt they care about it or even read it, but I guess you never know. I can only imagine what they've come across over the years.

So sorry to hear about the chest pain you're experiencing. The lighter description is horrific. On top of the physical pain (I haven't had any gastrointestinal problems so I can't relate to that one) is the financial expense of dealing with these side effects...you mentioned you had to go to the hospital.

Do you have a hard time with physicians since you only took 10 pills? Granted, a lot of members here took it for longer than that and still have trouble getting through to doctors.

 

Replied to most of this in a PM,

 

One thing I will note is thankfully I live in the UK which means I've got access to the NHS, alongside that I've got private healthcare through my parents insurance plan. So I can see a doctor whenever I feel like courtesy of the taxpayer and then if I need to see specialists I go private as it's much faster. So thankfully the ECG and other tests + doctor appointment amounts to no cost. I guess that's something to smile about, or at least not be miserable about!

 

>How can one get this Rick Simpson cannabis oil?

Couple of options:

 

i) Grow your own, 100% Indica appears to be best due to higher CBD content

ii) Find a reliable source who is willing to grow for you

iii) Somehow get hold of a medicinal use license (if you happen to live in the states, or Uraguay who have just legalised marijuana for all)

 

Once you've obtained enough Mary Jane (I'm learning the lingo now ), follow the instructions for producing it yourself.

 

I'm sorry if this doesn't fill you with hope. Sadly it's not as easy as popping down to the local supermarket and buying it.

 

Otherwise there is a bunch of knock offs floating around and from a completely subjective perspective I wouldn't bother.

 

 

Reported my side effects to Roche earlier today: here is the reply.

 

 

 

Dear Mr **********

 

Thank you for informing Roche, via , about your experience of impotent, sexually dysfunctional, emotional blunting & IBS during the use of Roaccutane.

Roche is required to document reports of adverse events, both for comprehensive safety monitoring of its products and also to fulfil reporting requirements to Regulatory Authorities. Therefore, we would like to be able to contact the who provided your treatment with Roaccutane, to obtain additional information regarding your experience.

If you would like to provide the information, please enter your name and address or a contact number on the attached Consent Form. Please sign and return it to [email protected] and [email protected]

The information you have provided will be made anonymous, stored in our confidential database and processed in full compliance with UK Data Protection Legislation. It may be forwarded to the appropriate Regulatory Authorities in the UK and other countries in accordance with the established guidelines. It may also be processed in the UK and other countries for the purposes of continually monitoring the safety of Roche™s medicines.

We thank you for your cooperation and look forward to hearing from you in the near future.

If you do not wish to complete the form or have any queries, please contact us (01707 367554) quoting the reference number LRN2290103.

--

Clair Emms

 

DRUG SAFETY ASSOCIATE

UK Drug Safety Centre

Tel: +44 (0) 1707 367568

Fax: +44 (0) 1707 367582

Departmental email for adverse events: [email protected]

Departmental email for queries: [email protected]

Roche Products Ltd

6 Falcon Way, Shire Park

Welwyn Garden City

AL7 1TW

Registration Number: 100674"

 

 

 

PLEASE EMAIL THEM ALSO IF YOU HAVE SUFFERED SIDE EFFECTS - Here is a link to where I messaged them

http://www.roche.co.uk/portal/uk/xxxcontactxxx

getting a medical license for use sounds like the best way, anyone know how to convince a doctor that you need this?

shadeo14:

http://en.wikipedia.org/wiki/Medical_cannabis

Couple of the uses on there. Random bit of info; I know a few UFC fighters have medicinal use licences such as ex-UFC fighter Matthew Riddle, I think his was something to do with ADD or something along those lines. Again have a dig around the world wide web! Remember if you can get it you want Indica strains (credit Anonny for correcting me) as apparently the Sativa strains have little CBD.

I know most of the people in this thread are quite knowledgeable on accutane and the strain it has on your body. In fact, I'm sure a lot of you probably know more about the harmful effects of this drug then my dumb ass dermatologist did. With that being said is there anyone here who could point me in a good direction on how to deal with accutane induced hair loss? I'm one month post-tane and it's getting worse and worse.

I don't have experience with this. However, if you go to the doctors about this and they try to prescribe you propecia; run a f**king mile.

CBD as little to do with sativa or indica. There is himalayan sativa landrace who have very high cbd ratio compared to modern indica.

There is a list of all high cbd strain (i dont like cbdcrew they wanted to create GMO's):[Edited link out]

My favorite: [Edited link out]

Psychedelic effect of indica aren't recommanded to people with psychic problems, but with the rick simpson oil it doesn't care as you don't have those psychedelic effects.

On 12/13/2013 at 12:26 PM, anonyy said:

CBD as little to do with sativa or indica. There is himalayan sativa landrace who have very high cbd ratio compared to modern indica.

There is a list of all high cbd strain (i dont like cbdcrew they wanted to create GMO's):[Edited link out]

My favorite: [Edited link out]

Psychedelic effect of indica aren't recommanded to people with psychic problems, but with the rick simpson oil it doesn't care as you don't have those psychedelic effect

There is no way I can grow the one you recommend - it's 3-4m peak height my attic would be like wading through the Amazon and no way I could practically get enough lighting in there without setting my house ablaze.

I might look into:

[Edited link out]

As its got a 2:1 ratio of CBD:THC, 1m max height.

Sure, it require special conditions x)
First time i see a strain with 15% cbd. But she have a low yield, not sure if you can do enough oil with that (if you want to).

Yea, looks like I'd have to splash out to get enough seeds - thinking 12-20 plants are needed total -_-

Think I'll look into starting growing come February-March or if I'm lucky late January 2014. Once christmas is over I'll start raw vegan just for the hell of it seeing as it's not far off what I'm doing at the moment bar chicken and salmon. Not expecting to see a huge change but I'm interested to see if I can cope without meat Might do a fast once I'm back from post-exam holiday too.

Bit of a coincidence, but I know 2 unrelated people who make or have made their own oil. Just learned about the second person last night.

I don't put much faith in any treatment anymore, but if the price is not beyond me, and the strains they used have a high cannabinoid to THC ratio, I will get some early next year.

What was interesting is that the person who told me about the second person that makes the oil said that she tried it and was getting aggravated because she couldn't get high from it, but it made her feel very relaxed. ....meaning there was likely a comparatively low ratio of THC to CBD and/or other cannabinoids.

I'm not a fan of the THC high, so that is good news for me and makes me eager to attempt trying it.

I still see it as a shot-in-the-dark, but I'm desperate for anything that will help without potentially having severe negative consequences at this point.

So I've just had a 3 hour chat (read presentation) with my parents:

Just PM'ed mes about it, but I broke it down in a fairly systematic way

i) Corporate greed - Vioxx scandal, pharmaceutical companies aren't bothered by health only money
ii) Listed side effects - showed them a generic site which included the most listed side effects
iii) Scientific journals - discussion of mechanisms of action
iv) Actual side effects - showed them some of the boards
v) mentioned background of accutane as a chemotherapy drug
vi) Media - showed them articles on all the kids who committed suicide including JMSIL (james sillcock), I humanised him somewhat but showing his posts to my parents. Also showed them some of IndigoRush's videos on youtube.
vii) Nathan Carr's report - Read through it and highlighted certain paragraphs

My dad connected more with the science behind it. My mum connected more with the humanising characteristics such as IndigoRushes videos on youtube or JMSIL's comments. Then explaining that medicinal cannabis as an actual legitimate thing this video summed it up best - my mum even shed a tear:

Charlotte used a strain with 0.5% THC and 17% CBD - I WANT SOME OF THAT.

I think it's a mistake to take off the THC, both CBD & THC are important for their medicinal effects. With an oil taked without fat THC isn't psychoactive in proper dosage, the liver directly transform it in a better form (11-hydroxy-THC).

Can I just say how excited I am that you guys are finally talking about cannabis oil lol....I've been trying to advocate for this all along!! I notice benefits from simply vaping, but unfortunately It's not potent enough to effect permanent change. SO. basically two things I put together as a widespread truth for myself (and my supportive, brilliant doctor). I have out of control inflammation in my body due to wicked dryness. Naltrexone and cannabis both target inflammation directly and work to help modulate the immune response. It's that simple. Naltrexone produces more endorphins in the body so that I can feel less pain and also directly modulates the immune system through this effect. I'm on month 3 of Naltrexone and doing great. I have my one or two off days, but they are tolerable. On a bad day, there is cannabis. I'm working out full time now and can work overtime with no problem. I do a gluten light diet because that's what's possible for me at this time in my life. Please look into naltrexone...it can't hurt to get information on it. It is safe when you are comparing to other medications, and has very minimal side effects. The only thing I initially got was constipation but that subsided after time and taking a super strength probiotic. Should be taking 50 billion organisms or more. I had been taking less than that and ZERO beneficial flora showed up in a stool test. That's a problem! It's winter time and I'm not worried about getting sick since I know it will be tolerable for once.

This girl will be moving to Cali in two years. My life's more important than an awesome job. I hope you all can get your hands on it. Let me know what you find out. I'm in Mass, but dispensaries are not up and running as far as I know yet. You can get a medical marijuana license tho...Totally going to ask about that soon.

Does anyone know if castor oil is an anti-androgen or contains vitamin A? I'm working to regrow my hair. I'm taking biotin (have tried it in the past with no results so I'm not too hopeful), but I don't want to take ANY anti-androgens since I'm super super sensitive to them. My nostrils will instantly dry up, eyes dry up, amongst other not so comfortable things. Any hair loss remedies that improve blood flow to the crown area that isn't an expensive laser system?? or an insanely shifted diet?

Thanks you guys. Hope you are doing okay.

I completely agree Anonyy. Not sure where the idea of removing the THC came from but the two people cured used Rick Simpson Oil which is very high in THC so it clearly has a desired effect on us.

Well I may be wrong, but a documentary was done on CNN by Dr. Gupta on pot and stopping severe seizure disorder and some other chronic illnesses. They found that strain was low in THC and high in CBD which has medicinal properties, but no psycoactivity. scientist believe the CBD quiets the excessive electrical and chemical activity in the brain that cause seizures and etc....One very young girl couldn't even walk etc.... She takes it liquid in her food. There is only one dispensary in Colorado I believe it is and they only ask for donation.

You can read or watch the documentary just Google it, for some reason it won't let me copy and paste lately I don't know why???? It's called weed and featured on CNN.

On 12/14/2013 at 9:51 AM, Crank92 said:

[Edited link out]

Here is the place where people have gone to get hold of the highest grade CBD rich strains in oil form. You need a medicinal use licence and to live in California or Colorado. So I presume that counts everyone out?

That does not count me out, as I have both of those requirements met. That's doesn't mean that I'm planning on using any Rick Simpson oil anytime soon because I don't react well to marijuana. I would gladly try it if I knew it wouldn't have any unwanted psychological effects or increase anxiety.

On 12/15/2013 at 6:20 PM, ChampionBlood said:

On 12/14/2013 at 9:51 AM, Crank92 said:

[Edited link out]

Here is the place where people have gone to get hold of the highest grade CBD rich strains in oil form. You need a medicinal use licence and to live in California or Colorado. So I presume that counts everyone out?

That does not count me out, as I have both of those requirements met. That's doesn't mean that I'm planning on using any Rick Simpson oil anytime soon because I don't react well to marijuana. I would gladly try it if I knew it wouldn't have any unwanted psychological effects or increase anxiety.

You're aware that if you increase the dose in the correct way you'll likely never get high? See here:

[Edited link out]