Hey guys,

I think this was just mentioned recently, but after reading through all 200+ pages after I joined, I wanted to add a suggestion which would eliminate a lot of unnecessary posts and frustration by members answering the same questions over and over. If I have time I will do this, but to be honest with you all, reading through all the posts is quite depressing.

For example, here is a list of things that are popular remedies that members have tried for certain symptoms:

(these are all fictitious, for example)

Dry eyes:

-L carnitine( used by stickman20- took for a month and noticed considerable more tears....blah blah blah

(deebo-used for 6 months, some improvement but experienced headaches...blah blah blah

-baxyl

-dog food

Joints:

Vitamin D3- (used by .....)

IBS: Peppermint(used by....)

or

Dry eyes:

l-carnitine (6/10 found to help)

water (10/10 found helpful)

If we could have this page placed in the beginning of the forum it would be great or at least there can be a reference to the page number on the forum that people could be directed to for basic information. This way, it will give people access to information and allow them to pm people for further information. The personal experiences listed would be great but even the stats would be helpful for each supplement or routine. For example, 8/10 people found l carnitine helpful. I think this would be a tremendous help for new members and help with the confusion and time. Unfortunately from what everyone is saying and what I've learned, our bodies react differently to things than healthy functioning bodies, so I cannot just go on amazon and look at the reviews of supplements or even scientific studies because they are generally not studies on accutane victims. For example, Lamar and others state to stay away from VIt. A and Omega 3's, despite the multitude of benefits omega 3's provide to normal bodies. Please don't debate over the last sentence, just understand my point.

Also, since I might get one reply and then my post will be passed up and overlooked for new posts Can someone please give me some advice for depression/ anxiety, or someone who has tried things like 5htp, saw pawmetto, lithium or Sam-e so I can Pm them personally? I'd really appreciate it. I am looking into Sam-e as a front runner. (Thanks annoy for your help and taking the time to reply). Ive gotten into a little slump since joining this forum and I need a something soon, otherwise I can count on perfect diet and detox for hope in the future. Ignorance was bliss!

Dog food for dry eyes now that is funny ha... Baxyl however does work for this problem as does bone broth soup both high in hyaluronic acid , Vitamin A and omega 3's some accutainted victims respond badly to this , however not all with that being said I have been taking blue ice COD for a while now with no ill

effects to speak of. There have been a few studies that say isotretinoin depletes vit A or causes a deficiency such a strange drug.... Blue Ice is not your

run of the mill cod liver oil it is made in the old school way fermented and comes with grass fed butter for a mixture of vit K D and A it is not cheap

but premium quality stuff.. gel is the best.

As for depression I would recommend lithium orotate the natural form of lithium without the nasty side effects of the synthetic

version , saw palmetto stay away from dht blocker and all.... alcohol is to be avoided I think we can all agree on that or if anything consumed rarely ...

Sam-e not sure on that one ....

I think what we all need is a holiday on some tropical island soak up some natural vitamin D and Hemp Oil / and or high grade Pot .

It's not easy to find a good source for this and like I said try to make your own if you can , but if you have found a good source let us know ( cheap / potent / not a scam )

Pete (=

Hey all,

So I seem to be a rare case in that I got the lovely pseudotumor cerebri from taking Accutane. I have had a few episodes (3-4) of relapse in the 4 years after taking the drug that have sent me back to a neuro-opthalmologist where she usually finds some mild papilledema.

I studied Nutrition in college and I cannot stress enough the importance of watching your Vitamin A intake during and after taking Accutane. That includes both preformed Vitamin A from animal foods and even beta-carotene!! My episodes always come back after either accidentally using a product containing some form of Vitamin A, or eating too many foods high in Vitamin A. First mistake = a serum from Murad that contained retinol. Second mistake = a night cream from Burt's Bees containing beta-carotene! (P.S. a lot of sunscreens contain retinyl palmitate) Third mistake = going overboard with the pumpkin pie and sweet potatoes during Thanksgiving. Even a science nerd like me has made these mistakes.

Also, if anyone else here has had PTC, there are some drugs (mostly antibiotics) to stay away from as well as they also increase intracranial pressure and have increased mine.

I really wanted to post this because if any of you are having some relapsed/lasting side effects, you might want to take a really good detailed look at how much Vitamin A is in your diet and if you're getting some exposure from any cosmetic products you use. I have now come to the realization that I should keep the A fairly low in my diet (at least not go over the RDA and stay away from foods that are exceptionally high in A). Once I cut down on it my headaches go right away. Once I slip up they come right back. I don't know if this is because the drug is still stored in my liver/fat cells or if it has somehow created a hypersensitivity to Vitamin A....I guess that's probably something many of us sufferers would like to know.

Also, I just started using milk thistle and yogi detox tea along with eating a diet especially good for the liver (avocado, brussels, lemon etc) and I feel like it has significantly helped me feel better. For weeks I was getting neck pain thinking it was my posture and not realizing it was just another episode of PTC!!

Does anyone here know if there's an accurate method out there to assess the body's Vitamin A status? When I told my doctor about this he said that there is no good way to test for it since blood levels are not an accurate measure since Vitamin A is stored in the liver and fat cells. Last time I had an episode of PTC he just ordered a blood test for liver function and I came out normal. Hmmm...

Anyway, I'm no doctor but this is all just from my experience.

Stop looking for supplements of any kind, they are useless, i already tried everything. Supplement who are useful are extracted from plant & should help the natural detoxification of the body. Accutane poison the body but more importantly cause the exhaustion & the accumulation of toxins inside the body, congestioning it (acne was the consequence of an excess of toxins). Almost all toxins came from diet (meat, grains, dairy, etc..) and is worsened by accutane who destroy the intestine and make more toxins pass thru him (hyperpermeability).

You should read this book: [Edited link out] & [Edited link out]
This book is the basis to how to overcome accutane (& other diseases)

Only the body can repair himself, nothing you will take, specially chemical, will help, it will just bring more congestion. Certain supplement cause a kind of stimulation (who we perceive as benefic) but it can be the result of an intoxicating effect, all minerals & vitamin supplement are just rock extract & synthetic crap. The only supplements who are useful are drainors like dandelion, milk thistle, psyllium, cascara, piment, bentonite, ginger, etc.. plants who restore & energize the adrenals are very useful too, without nervous energy the body can't do his work: astragalus, eleutherococcus, natural vitamin c from fruit, etc.. Natural iodine (cranberries, strawberries, kelp for ex) is useful for the thyroid. Plenty of sleep & sunshine are very important too.

Hey all,

So I seem to be a rare case in that I got the lovely pseudotumor cerebri from taking Accutane. I have had a few episodes (3-4) of relapse in the 4 years after taking the drug that have sent me back to a neuro-opthalmologist where she usually finds some mild papilledema.

I studied Nutrition in college and I cannot stress enough the importance of watching your Vitamin A intake during and after taking Accutane. That includes both preformed Vitamin A from animal foods and even beta-carotene!! My episodes always come back after either accidentally using a product containing some form of Vitamin A, or eating too many foods high in Vitamin A. First mistake = a serum from Murad that contained retinol. Second mistake = a night cream from Burt's Bees containing beta-carotene! (P.S. a lot of sunscreens contain retinyl palmitate) Third mistake = going overboard with the pumpkin pie and sweet potatoes during Thanksgiving. Even a science nerd like me has made these mistakes.

Also, if anyone else here has had PTC, there are some drugs (mostly antibiotics) to stay away from as well as they also increase intracranial pressure and have increased mine.

I really wanted to post this because if any of you are having some relapsed/lasting side effects, you might want to take a really good detailed look at how much Vitamin A is in your diet and if you're getting some exposure from any cosmetic products you use. I have now come to the realization that I should keep the A fairly low in my diet (at least not go over the RDA and stay away from foods that are exceptionally high in A). Once I cut down on it my headaches go right away. Once I slip up they come right back. I don't know if this is because the drug is still stored in my liver/fat cells or if it has somehow created a hypersensitivity to Vitamin A....I guess that's probably something many of us sufferers would like to know.

Also, I just started using milk thistle and yogi detox tea along with eating a diet especially good for the liver (avocado, brussels, lemon etc) and I feel like it has significantly helped me feel better. For weeks I was getting neck pain thinking it was my posture and not realizing it was just another episode of PTC!!

Does anyone here know if there's an accurate method out there to assess the body's Vitamin A status? When I told my doctor about this he said that there is no good way to test for it since blood levels are not an accurate measure since Vitamin A is stored in the liver and fat cells. Last time I had an episode of PTC he just ordered a blood test for liver function and I came out normal. Hmmm...

Anyway, I'm no doctor but this is all just from my experience.

That's interesting because I have headaches nearly all the time and I often have neck pain and stiffness, which is unexplained. Never thought of PTC. Also, Doxycycline, Tetracycline, and other antibiotics that are used for acne can cause or worsen PTC.

It's so sad to hear about James. Long before I registered for this site I read posts by him. I look back on his posts and I see that he had many of the same problems that I am currently experiencing, and his mindset toward the end was frighteningly similar to my current thoughts. Some of the stuff he posted could have been posted by me. I feel like I know exactly what he was going through, and it pains me to see somebody (else) at the level of pain that they would consider suicide, let alone actually go through with it.

@Deebo: That's one hell of a novel idea to go back and index this thread from an earlier post through an edit. Seriously! Never heard that one before. No sarcasm brother.

@redheadchick: If it has been years since you took isotretinoin, it is pushing ridiculousness to suggest it is still stored in your body....No offense intended, but if you're a science nerd, look for the effects of cyp450 enzymes and gluccoroidization on the clearance of isotretinoin and its metabolites. ...Most of the effects of isotretinoin are though to be a result of its metabolites. There are other possible explanations for hypersensitivity to retinoids if you look for them other than the drug still being "stuck" in fat cells.

@Gladiatoro: Like your "homegrown" comment. Wish everyone who had that luxury would take advantage of it rather than ordering supplements. There might be some pahrmacological value in the other cannabinoids, Certainly sounds as if the RSO is high in CBD though. There's only a slight chance that this is actually a valid miracle cure considering how many other miracle cures have been mentioned before. Who knows? Sorry if I offended anyone in particular with that comment. If I did, sue me! I'm broke!

@ChampionBlood: Going by personal experience, you'll probably come to that point one day if this doesn't let up for you. Just push yourself through it. Please.Even if your side effects aren't the worst of the worst, this shit will make you crack-up after so long, then you'll get back on track again if you make it through.

Hey all,

So I seem to be a rare case in that I got the lovely pseudotumor cerebri from taking Accutane. I have had a few episodes (3-4) of relapse in the 4 years after taking the drug that have sent me back to a neuro-opthalmologist where she usually finds some mild papilledema.

I studied Nutrition in college and I cannot stress enough the importance of watching your Vitamin A intake during and after taking Accutane. That includes both preformed Vitamin A from animal foods and even beta-carotene!! My episodes always come back after either accidentally using a product containing some form of Vitamin A, or eating too many foods high in Vitamin A. First mistake = a serum from Murad that contained retinol. Second mistake = a night cream from Burt's Bees containing beta-carotene! (P.S. a lot of sunscreens contain retinyl palmitate) Third mistake = going overboard with the pumpkin pie and sweet potatoes during Thanksgiving. Even a science nerd like me has made these mistakes.

Also, if anyone else here has had PTC, there are some drugs (mostly antibiotics) to stay away from as well as they also increase intracranial pressure and have increased mine.

I really wanted to post this because if any of you are having some relapsed/lasting side effects, you might want to take a really good detailed look at how much Vitamin A is in your diet and if you're getting some exposure from any cosmetic products you use. I have now come to the realization that I should keep the A fairly low in my diet (at least not go over the RDA and stay away from foods that are exceptionally high in A). Once I cut down on it my headaches go right away. Once I slip up they come right back. I don't know if this is because the drug is still stored in my liver/fat cells or if it has somehow created a hypersensitivity to Vitamin A....I guess that's probably something many of us sufferers would like to know.

Also, I just started using milk thistle and yogi detox tea along with eating a diet especially good for the liver (avocado, brussels, lemon etc) and I feel like it has significantly helped me feel better. For weeks I was getting neck pain thinking it was my posture and not realizing it was just another episode of PTC!!

Does anyone here know if there's an accurate method out there to assess the body's Vitamin A status? When I told my doctor about this he said that there is no good way to test for it since blood levels are not an accurate measure since Vitamin A is stored in the liver and fat cells. Last time I had an episode of PTC he just ordered a blood test for liver function and I came out normal. Hmmm...

Anyway, I'm no doctor but this is all just from my experience.

Hi Redhead,

this is exactly what I experience too. I do not tolerate any moisturizer or cream. and the most problematic is sun cream. i react with headache to it almost like migraine. i never had this problem before I took accutane. Can you recommend any sunscreen or moisturizer that does not contain Vitamin A. I tried dozens of different creams and had problems with all of them.

@redheadchick: If it has been years since you took isotretinoin, it is pushing ridiculousness to suggest it is still stored in your body....No offense intended, but if you're a science nerd, look for the effects of cyp450 enzymes and gluccoroidization on the clearance of isotretinoin and its metabolites. ...Most of the effects of isotretinoin are though to be a result of its metabolites. There are other possible explanations for hypersensitivity to retinoids if you look for them other than the drug still being "stuck" in fat cells.

Sorry to jump in here but I experience exactly the same problems as Redheadchick and I took accutane 10 years ago. My skin is dry as hell and I can not put any cream on it because I react with migraine like headache. It is just a nightmare.

Due to time being an issue; deadlines and the like. Would anyone be willing to hypothesise that smoking, vaporising, ingesting or any other method bar Rick Simpson Oil (RSO) of consuming some marijuana of the correct strain would have a minor positive effect? I say this because currently I do not have the resources to go about making RSO until some point next year, but if I can obtain even a minor benefit I'd be willing to give it a go!

Studies to back up statements would be appreciated, although I realise I'm just palming off duties that I should myself be going about. However, I've got a 3,000 and a 5,000 word essay to complete by the 7th Jan and 4 3 hour exams before February. -_-

@redheadchick: If it has been years since you took isotretinoin, it is pushing ridiculousness to suggest it is still stored in your body....No offense intended, but if you're a science nerd, look for the effects of cyp450 enzymes and gluccoroidization on the clearance of isotretinoin and its metabolites. ...Most of the effects of isotretinoin are though to be a result of its metabolites. There are other possible explanations for hypersensitivity to retinoids if you look for them other than the drug still being "stuck" in fat cells.

let me clarify...I didn't try to come on here to make a hypothetical explanation for why it happens, just thought that I would share my experience of what makes my PTC come back. It's the most awful thing to have and if I could help someone who has it that was the point of my post.

 

Hey all,

So I seem to be a rare case in that I got the lovely pseudotumor cerebri from taking Accutane. I have had a few episodes (3-4) of relapse in the 4 years after taking the drug that have sent me back to a neuro-opthalmologist where she usually finds some mild papilledema.

I studied Nutrition in college and I cannot stress enough the importance of watching your Vitamin A intake during and after taking Accutane. That includes both preformed Vitamin A from animal foods and even beta-carotene!! My episodes always come back after either accidentally using a product containing some form of Vitamin A, or eating too many foods high in Vitamin A. First mistake = a serum from Murad that contained retinol. Second mistake = a night cream from Burt's Bees containing beta-carotene! (P.S. a lot of sunscreens contain retinyl palmitate) Third mistake = going overboard with the pumpkin pie and sweet potatoes during Thanksgiving. Even a science nerd like me has made these mistakes.

Also, if anyone else here has had PTC, there are some drugs (mostly antibiotics) to stay away from as well as they also increase intracranial pressure and have increased mine.

I really wanted to post this because if any of you are having some relapsed/lasting side effects, you might want to take a really good detailed look at how much Vitamin A is in your diet and if you're getting some exposure from any cosmetic products you use. I have now come to the realization that I should keep the A fairly low in my diet (at least not go over the RDA and stay away from foods that are exceptionally high in A). Once I cut down on it my headaches go right away. Once I slip up they come right back. I don't know if this is because the drug is still stored in my liver/fat cells or if it has somehow created a hypersensitivity to Vitamin A....I guess that's probably something many of us sufferers would like to know.

Also, I just started using milk thistle and yogi detox tea along with eating a diet especially good for the liver (avocado, brussels, lemon etc) and I feel like it has significantly helped me feel better. For weeks I was getting neck pain thinking it was my posture and not realizing it was just another episode of PTC!!

Does anyone here know if there's an accurate method out there to assess the body's Vitamin A status? When I told my doctor about this he said that there is no good way to test for it since blood levels are not an accurate measure since Vitamin A is stored in the liver and fat cells. Last time I had an episode of PTC he just ordered a blood test for liver function and I came out normal. Hmmm...

Anyway, I'm no doctor but this is all just from my experience.

Hi Redhead,

this is exactly what I experience too. I do not tolerate any moisturizer or cream. and the most problematic is sun cream. i react with headache to it almost like migraine. i never had this problem before I took accutane. Can you recommend any sunscreen or moisturizer that does not contain Vitamin A. I tried dozens of different creams and had problems with all of them.

Hi Roland,

For me any product that contains any type of Vitamin A stirs up my PTC-that includes anything in the label that says retinol or retinyl and also beta-carotene. I don't know if that's the case for you though if you're saying you don't tolerate any moisturizer or cream. Right now I am using REN products for sensitive skin. It's on the pricey side but it's very nice. Also in the past I've used just straight Vitamin E oil from Trader Joe's at night and that can be nice. PTC to me is a different animal than a migraine or severe headache, but I don't know exactly what you're experiencing. I wouldn't assume it's PTC unless you've gone to a neurologist or neuroopthalmologist to confirm. So I'd try to avoid those things I mentioned and just try to use something with the least ingredients possible. Hope that helps!

 

@redheadchick: If it has been years since you took isotretinoin, it is pushing ridiculousness to suggest it is still stored in your body....No offense intended, but if you're a science nerd, look for the effects of cyp450 enzymes and gluccoroidization on the clearance of isotretinoin and its metabolites. ...Most of the effects of isotretinoin are though to be a result of its metabolites. There are other possible explanations for hypersensitivity to retinoids if you look for them other than the drug still being "stuck" in fat cells.

let me clarify...I didn't try to come on here to make a hypothetical explanation for why it happens, just thought that I would share my experience of what makes my PTC come back. It's the most awful thing to have and if I could help someone who has it that was the point of my post.

I suffer from PTC too it comes and goes but I have learned to control it....

Hi Roland,

For me any product that contains any type of Vitamin A stirs up my PTC-that includes anything in the label that says retinol or retinyl and also beta-carotene. I don't know if that's the case for you though if you're saying you don't tolerate any moisturizer or cream. Right now I am using REN products for sensitive skin. It's on the pricey side but it's very nice. Also in the past I've used just straight Vitamin E oil from Trader Joe's at night and that can be nice. PTC to me is a different animal than a migraine or severe headache, but I don't know exactly what you're experiencing. I wouldn't assume it's PTC unless you've gone to a neurologist or neuroopthalmologist to confirm. So I'd try to avoid those things I mentioned and just try to use something with the least ingredients possible. Hope that helps!

Hi Redhead,

a neurologist looks into this now. There will be a MRI done from my brain next week. It is a very severe issue. In first week of the new year I will discuss the results with the neurologist and then I will know more. I will let you know what comes out.

For those interested in growing your own, a self-proclaimed cannabis expert I know has recommended this site for purchasing seeds:

[Edited link out]

This particular one is 100% indica. He says he has ordered many a time from here. I did ask if he could grow some for me but currently he has moved in with his girlfriends family to save money to travel in the future which is a bit of a bummer because otherwise he would have been more than happy to grow for me.

I'm with Dubya though. Despite my enthusiasm for this, I'm still restraining any optimism until I see results first hand if any. Unless RSO has some specific ability to 'activate' compounds in marijuana beyond what smoking does then surely any regular smokers of the reefer should improve some of their side effects? (if required specific compounds are in the strain they smoke) Do we have any 'regular' stoners on this board?

@ChampionBlood - I'll admit if you have it as bad as JMSIL, then you're worse off than me. I have also contemplated ending it, nothing more than contemplation but still it's not pleasant. I find rather than focussing on the negative, rechannel your energy into something positive. I'm trying to be slightly pro-active on awareness as well as looking into other options. In the future perhaps compensation from Roche no matter how unlikely that is, the goal itself gives me something to strive for. For now CBD sounds interesting and going about obtaining rick simpson oil gives me something to look into. Otherwise hobbies such as playing an instrument and such things really do help. Sticking around on this forum isn't actually a great idea because it is mostly depressing. IndigoRush himself has said he has improved in his outlook on life when he just got on with life. However, to get something done sticking around on the forums is a wise idea to keep up with what's going on. Oli Girl and Dubya are fine examples of this.

@redhead: Didn't mean it like that. Sorry to hear you're reacting badly to retinoids since Accutane. Thanks for posting about it too. I didn't realize there were that many of us with PTC until the couple responses you got. I was just trying to inform you of a few reasons to believe the negative reaction is not being caused by the drug still being in your cells, but still a response to the effects the drug did have while still in your system. It seems as if a hypersensitivity to any form of vitamin A is Accutane's legacy for many of us for whatever reason.

@crank: There are some people and at least one study I came across stating that smoking burns off many of the beneficial cannabinoids.

I would stick to using an oil.

Really no chance for any US victims to see financial awards.

The generic manufacturers are invulnerable since a supreme court ruling a couple years ago.

It seems to have greatly impacted the attention Accutane suicides get in the US.

You would think it never happens anymore, and we all no that's not true.

I don't think coroners even have to report drug-related suicides unless it involves an overdose.

The only positive to come from the ruling is the fact that no one can say we are in it for the money over here.

Oli sent me an old ragforum thread full of people falsely assuming this is all about "dirty money".

They can eat shit.

Seems like we will be following the same kind of protocol come New years. I'll be starting a bit later than you on the fast due to exams. I'm also considering growing my own Sativa strain as soon as I have the resources for it. However, if you have luck with Cibdex let us know. The reason why I'll opt for the real deal is there are so many different cannabinoids and only a few have been studied on there effects, so if I try the real thing I'll know I've covered all bases!

Yep it's pretty confusing with all the different strains. It clearly isn't fully understood why Rick Simpson oil is effective at treating some conditons, but studies do seem to suggest CBD is the most likely cannabinoid that has the healing effect for many ailments. Hemp is obviously very similar to cannabis - I believe it's classified as hemp when THC is under 1.5%. Hemp is obviously just bred for for different purposes - whereas cannabis you want as high THC as possible, with low CBD, hemp up until now has generally been bred for it's fiber or oil (like cooking oil) and has minimal THC.

There seem to be breeders trying to breed strains of hemp with high CBD now, and its clearly a fairly new thing. Cibdex definitely looks promising on paper, and although it's pretty expensive I've spent a fortune on trying all sorts of suppliments so the price doesn't sound too bad considering. Definitely worth a go.

AccutaneIsPoison has posted up some quite good links on page 68 of this thread regarding RSO etc - you've probably already seen. He also reckoned he saw improvements from smoking it, which is what initially led him to believe that was a cure, and looks like he was right - in his case at least, and then TaneAbominaton went on to try the same method - also resulting in a 'cure'. I think the availability, legality and cost of getting the stuff is what has stopped more people from trying I'm guessing?

Ok, so I've been reading for a while but just signed up, basically I was very sensitive to accutane, I was given 30mg a day and later dropped to 20mg due to the insane amount of side effects i was getting (All the usuals plus I couldn't sleep much) But I always found it very hard to concentrate while on accutane, since I've come off I've noticed a small improvement but not nearly fully recovered, most people seem to think that the problem is the Vitamin A is still being stored in the fat cells and can stay there for a very long time, but it appears Alcohol of all things might help.

"The objective of this review is to explore the relationship between alcohol and the metabolism of the essential micronutrient, vitamin A; as well as the impact this interaction has on alcohol-induced disease in adults. Depleted hepatic vitamin A content has been reported in human alcoholics, an observation that has been confirmed in animal models of chronic alcohol consumption. Indeed, alcohol consumption has been associated with declines in hepatic levels of retinol (vitamin A), as well as retinyl ester and retinoic acid; collectively referred to as retinoids. Through the use of animal models, the complex interplay between alcohol metabolism and vitamin A homeostasis has been studied; the reviewed research supports the notion that chronic alcohol consumption precipitates a decline in hepatic retinoid levels through increased breakdown, as well as increased export to extra-hepatic tissues. While the precise biochemical mechanisms governing alcohols effect remain to be elucidated, its profound effect on hepatic retinoid status is irrefutable. In addition to a review of the literature related to studies on tissue retinoid levels and the metabolic interactions between alcohol and retinoids, the significance of altered hepatic retinoid metabolism in the context of alcoholic liver disease is also considered."

You can email one of the lawmakers, MP Ed Vaizeye, at [email protected]. He is quoted as having spoken with this man's family.

I can't tell you all how to deal with what has happened to you. I won't pretend I don't know what we're up against.

But we've got to speak up. In this case, you can do it naked, from the comfort of a bed or a hammock, if you so desire. It's really easy.

I just got an email from Ed Vaizey!

Anyone in the UK PLEASE PLEASE PLEASE email him. This is where we start to get recognised as a group!

Here is what I sent him:

"Dear Ed,

I amongst others have recently read of your mention within the article of Jack Bowlbys suicide and its link to roaccutane. There are many of us just like Jack Bowlby, who took this drug in pursuit of ridding ourselves of what in hindsight might be considered quite mild acne. Now what we are left with is the somewhat debilitating side effects which some have been dealing with for over 10 years. We are strong in number but we have not yet found a way to make it known to the general public what this drug can do. The only way this gets in the news is for those who choose to end their lives because they feel it is no longer worth living, the rest of us seem to suffer in relative silence. Is there anything that you could suggest that would help raise awareness of the possible severe side effects this drug can exert? This is not just for me, this for all the individuals that I have spoken to in person and online who since taking that drug have changed their lives for the worse and would not inflict this on their worst enemies. I hope to hear from you soon.

Regards,

Mike"

People who are prominent members on other relevant boards please share this. I cannot create a new thread on AllThingsMale.com in reference to this, if anyone could that would be great.

If you decide to email him, please be polite and courteous! We want to come off as normal people with bad problems, not hypochondriac nutters.

Hi Redhead,

a neurologist looks into this now. There will be a MRI done from my brain next week. It is a very severe issue. In first week of the new year I will discuss the results with the neurologist and then I will know more. I will let you know what comes out.

Good luck to you! I did an MRI 4 years ago. It came out normal. I've never had a spinal tap done yet and was prescribed Diamox as an option to reduce the CSF swelling. Never filled that prescription. Neuro also said if I thought it was my diet then to eliminate the Vit A and see what happens and sure enough it went away. Let me know what happens and all the best!

 

Seems like we will be following the same kind of protocol come New years. I'll be starting a bit later than you on the fast due to exams. I'm also considering growing my own Sativa strain as soon as I have the resources for it. However, if you have luck with Cibdex let us know. The reason why I'll opt for the real deal is there are so many different cannabinoids and only a few have been studied on there effects, so if I try the real thing I'll know I've covered all bases!

Yep it's pretty confusing with all the different strains. It clearly isn't fully understood why Rick Simpson oil is effective at treating some conditons, but studies do seem to suggest CBD is the most likely cannabinoid that has the healing effect for many ailments. Hemp is obviously very similar to cannabis - I believe it's classified as hemp when THC is under 1.5%. Hemp is obviously just bred for for different purposes - whereas cannabis you want as high THC as possible, with low CBD, hemp up until now has generally been bred for it's fiber or oil (like cooking oil) and has minimal THC.

 

There seem to be breeders trying to breed strains of hemp with high CBD now, and its clearly a fairly new thing. Cibdex definitely looks promising on paper, and although it's pretty expensive I've spent a fortune on trying all sorts of suppliments so the price doesn't sound too bad considering. Definitely worth a go.

 

AccutaneIsPoison has posted up some quite good links on page 68 of this thread regarding RSO etc - you've probably already seen. He also reckoned he saw improvements from smoking it, which is what initially led him to believe that was a cure, and looks like he was right - in his case at least, and then TaneAbominaton went on to try the same method - also resulting in a 'cure'. I think the availability, legality and cost of getting the stuff is what has stopped more people from trying I'm guessing?

This is the thing did AccutaneIsPoison ever get around to trying the real deal (RSO). Because on page 68 he was only smoking it at the time and says it had some benefits, but he 'believed' RSO was the cure. Did he come around to fulfilling that statement? On his profile I couldn't see any posts suggesting it, but then again I couldn't see his post on p.68 on his profile..

I might see if I can get a prescription for the sativax (seeing as that's got a THC:CBD ratio of 1:1) from the family friend GP while I wait to try RSO, and I won't turn down a joint in the meantime!

@Crank: Done! The info is posted on the ATM board. Thank you!

The outline of long-term isotreinoin induced sexual symptoms is up on RxISK.com.

[Edited link out]

Please, I hope everyone here reports ALL of the Accutane side effects they have experienced.

@Crank92 Yes Accutaneispoison used Rick Simpson Oil. Smoking joints will not do anything

Page 108 is where Accutaneispoison posted about being cured although his post was subsequently removed. You can still find it quoted on that page.

[Edited link out]

If anyone wishes to email their local MP's here is a link. I know some of you will grow tired of my pestering, but this will help in the long run!

On 12/11/2013 at 8:43 PM, Crank92 said:

[Content removed]

So hard to read these articles without wanting to explode. Such a despicable company Roche is. As I said, I signed a lot of papers to take my five pills, but only since have I had the pleasure of learning about this company's tactics.

Thanks for sharing Crank and for giving us an update on your correspondence with the MP.

Hey again all:

In the U.K., Nick Harvey is the MP for the Medlands. Their son Jon was a med student who hanged himself after taking Accutane for several weeks.

Harvey is calling for more research into the side effects etc. You can email him at [email protected].

How can one get this Rick Simpson cannabis oil?