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Repairing the long-term damage from Accutane

 
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(@dubya_b)

Posted : 12/07/2013 11:26 pm

Thanks for pointing that out Luis.

I'm not sure anyone realized he was jmsil.

Terrible news.

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MemberMember
148
(@oli-girl)

Posted : 12/08/2013 1:07 am

[Edited image out][Edited image out][Edited image out][Edited image out] Is sad! I will add him on the list we have of those who have committed suicide on the ragfourm. We had one on the old one too! In fact he posted, but erased his post on playsomebeat thread on she posted back in 2011 on whether to take Accutane or not and he posted on here.

This should be a reminder to all, that though we may not always agree, that we may get on each other nerves at time and drive each other crazy, we are all human, we all have feelings and we are suffering from the hands from the same poison Accutane!

To Those of you that sent me a pm this weekend or last week I will respond to you this coming up week! - Jen

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20
(@robert1000)

Posted : 12/08/2013 10:21 am

I feel so sorry to hear such news:(

I also read the article posted by Luis, and its just incredible how Roche can keep saying this poison is safe.... May the makers of this drug and the ones who close their eyes and keep supporting, promoting and selling this drug get their reward one day, as they wear blood on their hands. Im not cursing anyone, I only hope they will receive what they deserve.

I'm also very upset on the people who say that the drug is safe and we, the sufferers, are crazy, just because they were lucky enough to not get any bad side effects.

They keep commenting on every article about accutane, on forums ,etc.....saying they dont believe accutane produce those bad side effects, and we were just sick before taking this drug and whatever happens to us we just blame it on accutane,

The moderators of this forum, should not include Accutane as a option in treating the acne, they should put a warning on the first page, and say that nobody should take accutane, saying how people kill themselves, with photos, links and everything, to make they frightened!!! This way, more of the ones who visit this forum will be saved.

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Dubya_B, mes6890, Dubya_B and 3 people reacted
MemberMember
153
(@crank92)

Posted : 12/08/2013 12:18 pm

Damn, sad news about jmsil :(

However, if anyone is contemplating the rick simpson oil here's something interesting:

http://en.wikipedia.org/wiki/Sativex

It is a pharmaceutical based on the compound cannibidiol found in the sativa strain promoted by rick simpson. Thought it would be worth posting considering we've now had 2 members who claim to be cured from the rick simpson oil.

Now without being insensitive, I don't mean to cause offence but I think jmsil would have hoped his suicide would have done more for our cause. A 20 page suicide letter? Somehow I imagine that a large portion of that was probably roaccutane related. Yet, all that gets put just below the headline is "Roche say drug is safe, acne can cause depression". That makes me pretty damn livid!

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timatron, mes6890, timatron and 3 people reacted
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153
(@crank92)

Posted : 12/08/2013 12:37 pm

On further thought, I'm thinking of contacting Martin Robinson (the guy who wrote the article on jmsil's suicide) about our 'cause'. Although I must say our cause is a bit vague at the moment because we do seem to lack a certain amount of pro-activity *points finger at self too*.

Anyone living in the UK willing to be involved in this? I imagine it would at most involve meeting with the journalist, if not conference calls over skype and the like. I would like to share research that I have collated thanks to individuals like Dubya and others who have really done a lot to further our understanding of this drug and give someone with power to spread the knowledge. I've spoken to IndigoRush and he is keen. Anyone else who is please PM me! I'm not going to push you to do anything you're uncomfortable with, but I would like to see someone is interested!

If we can help increase awareness, that is when we start seeing more scientific research into this and realise this is a genuine problem! 'tane has been out since 82 and it's only recently people are at least having a glance over its mechanisms of action (partly due to the progression of science, but also awareness).

Look forward to hearing from some of you.

Mike

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Dubya_B, Dubya_B and Dubya_B reacted
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39
(@mes6890)

Posted : 12/08/2013 1:37 pm

http://www.oxfordmail.co.uk/news/10862353.Acne_drug____took_away_our_bright_and_talented_child___/?action=success

So sad. This young man in England who killed himself after 7 months of Roaccutane was just 16.

I left a comment in the comments section and encourage others to do so as well. You can use a pseudonym if you like. I think it's important for our voices to be represented, and I want to speak up for this young guy even though he no longer can.

I have Google Alerts set up for these terms: Accutane, Roaccutane and isotretinoin. So when news stories break, they come through to my email and I leave comments where I can. Sometimes you have to register on the website, which can take a little time. I don't care. Set up Google alerts here: http://www.google.com/alerts

There were some heated comments on this article as well: http://www.refinery29.com/accutane .

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Crank92, Dubya_B, Gladiatoro and 6 people reacted
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51
(@acne1776)

Posted : 12/08/2013 3:35 pm

Having read tons of articles on the stuff for almost a year it is my personal belief that Rick Simpson Oil will save us all.

An article on how cannabis can grow stem cells and repair brain damage:

[Edited link out]

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Dubya_B, Gladiatoro, Dubya_B and 3 people reacted
MemberMember
143
(@indigorush)

Posted : 12/08/2013 5:30 pm

Absolutely gutted to have found out about James :(

[Removed]

The most aggravating thing is when Roche bring up 'Acne can cause depression' even when most articles relate to depression after treatment and when the acne has cleared up. Cunts.

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timatron, Crank92, oli girl and 18 people reacted
MemberMember
359
(@dubya_b)

Posted : 12/08/2013 9:04 pm

@Crank: If Mr. Robinson shows any interest, you can count me in to do a Skype interview. You might want to ask on ATM too. There seems to be quite a few guys from the UK posting there.

@Robert: This thread should be enough of a deterrent. I think if this site took a strong stance against Accutane, it may be considered slanderous and certainly biased. People just don't seem to want to admit to themselves that isotretinoin can have such horrible effects even if they have heard about the dangers associated with it.

@playsomebeat: You're becoming quite the expert pharmacovigilante. Keep up the good work.

@acne1776: Me and crank were just talking about how CBD might bind to steroid receptors. It has already been shown to have an effect on estrogen receptors. Pretty interesting stuff.

@Indigo: Thanks again for all you've done, it may end up having a way bigger impact in getting the dangers of this drug exposed than you ever would have imagined. You already opened a lot of doors.

Is anyone keeping an updated archive of this thread in case it magically vanishes someday, ...as has been known to sometimes happen?

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Crank92, oli girl, acne1776 and 6 people reacted
0
(@Anonymous)

Posted : 12/08/2013 9:26 pm

I think it will still be available on yahoo, bing or google cache and at web.archive.org

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MemberMember
51
(@acne1776)

Posted : 12/08/2013 10:36 pm

@Dubya_B that is very interesting. If CBD is the reason people have been cured I found a website that sells CBD oil which it claims to be legal. Here's the link if anyone is interesting in trying:

[Removed]

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MemberMember
223
(@gladiatoro)

Posted : 12/08/2013 11:37 pm

You have to be careful with these web sites a lot of them are government sting operations.... best to make your own.. plus who knows what you will actually receive if anything...

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Dubya_B, Crank92, Dubya_B and 3 people reacted
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39
(@mes6890)

Posted : 12/09/2013 12:35 am

Thanks for commenting on the Oxford Mail article, Dubya B. It's important, guys.

I would like to write the lawmakers in England.

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MemberMember
39
(@mes6890)

Posted : 12/09/2013 12:52 am

You can email one of the lawmakers, MP Ed Vaizeye, at [email protected]. He is quoted as having spoken with this man's family.

I can't tell you all how to deal with what has happened to you. I won't pretend I don't know what we're up against.

But we've got to speak up. In this case, you can do it naked, from the comfort of a bed or a hammock, if you so desire. It's really easy.

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Crank92, Crank92 and Crank92 reacted
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39
(@mes6890)

Posted : 12/09/2013 3:15 am

Playsomemarimba: You come across as quite sanctimonious and preachy; but, I'm not sure you can pull off the demonstrably facetious subject position of entitlement and victimization with the gusto required? To be fair, many of the others can't do it either. You were very well versed with general anti-androgenicity, as evidenced by your blog; you knew firsthand all about the ills that DHT inhibition could confer on one, even with the ostensibly mild saw palmetto (you identified with the men on Propeciahelp); yet you ignorantly (or bravely?) proceeded to the cocked pistol state of DEFCON 1. I have only commented because you seem to want to hit every point with great vigor.

First of all, I fully take responsibility for taking the things I have taken for my skin. I bought the saw palmetto in 2011 and I signed on all the dotted lines to take Accutane in 2013.

I've bumped into many varied side effects as a result of these items, so "great vigor" would aptly describe the attitude with which I discuss them, I guess.

You're right that I can come across as sanctimonious and preachy. I won't deny that. But I'd venture that you enjoy the sound of your own voice.

You're entitled to your opinion that what I've written is not compelling. There are plenty of folks who disagree with you.

When it comes down to it, I invariably imagine suicide every hour of every day now - would that be enough gusto for you? Would that be what I deserve? Just let me know.

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Dubya_B, Gladiatoro, Dubya_B and 3 people reacted
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153
(@crank92)

Posted : 12/09/2013 11:46 am

You can email one of the lawmakers, MP Ed Vaizeye, at [email protected]. He is quoted as having spoken with this man's family.

I can't tell you all how to deal with what has happened to you. I won't pretend I don't know what we're up against.

But we've got to speak up. In this case, you can do it naked, from the comfort of a bed or a hammock, if you so desire. It's really easy.

 

Emailed him. Let's see if we get a reply!

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mes6890, mes6890 and mes6890 reacted
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153
(@crank92)

Posted : 12/09/2013 12:19 pm

I've got to say this page gives me more hope than the last few (which I'm aware I was part of (if not the sole reason for) the downfall into petty arguments. There is pro-activity in both the awareness aspect as well as the looking into the scientific part.

I'm going to be booking myself into an appointment with a GP who also happens to be a family friend from my fathers childhood, he's known me since I was born. In all likelihood he will take everything seriously that I have to say, hell he's even helping me with my med school applications and the like. If anyone has any suggestions of what tests they think I should get done, or any science they would like me to share with him post away. I'm not asking this for my own benefit, but simply that if we all start getting certain tests and certain anomalies start popping up on our test results we can start to look into the emerging patterns and that can narrow down what we're looking for. However, I'm aware 'tane is a particuarly insidious drug and most peoples tests come back normal. I am of the belief we're just not looking in the right places yet, whether it's due to science not being evolved enough yet or another reason I do not know.

I'll keep people posted when I've got in touch with any journalists/doctors/politicians, I'm trying!

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Dubya_B, Dubya_B and Dubya_B reacted
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157
(@tanedout)

Posted : 12/09/2013 3:50 pm

On 12/9/2013 at 9:36 AM, acne1776 said:

@Dubya_B that is very interesting. If CBD is the reason people have been cured I found a website that sells CBD oil which it claims to be legal. Here's the link if anyone is interesting in trying:

[Removed]

I agree, along with the fact we have 2 documented recoveries on this thread from cannabis oil/rick simpson oil a lot of research seems to suggest this may reverse/repair some of the damage we have sustained from this drug (although the specifics of what this is is still not understood).

My current protocol is intermittent fasting (with some sups including l-glutathione) to help prepare for a 14-21 day water fast starting in Jan. After that I plan on taking CBD rich hemp oil (obviously this is not rick simpson oil, however it's the same cannabinoid and appears to be the one which is key in this case). Cannabis oil is obviously illegal in the UK.

I've looked into a number of brands of CBD-rich hemp oil and reckon 'Cibdex' looks to be the best bet. It's supposed to be 20% CBD and from what I've read some people have said this has been more effective than other brands (for treating anxiety, not tane sides in those cases), but I'll be starting on that soon after my water fast is complete.

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0
(@Anonymous)

Posted : 12/09/2013 4:11 pm

Sativex is a crap chemical, even if it as the same geometric form as the actual true CBD, don't expect to have all benefit from it. For us CBD is more beneficial than THC, but the rick simpson oil is more about the benefit of THC, his oil contain 80-95% THC and only very low level of CBD, as he doesn't use CBD strain.

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MemberMember
21
(@deebo)

Posted : 12/09/2013 5:26 pm

Has anyone tried Sam e for depression? Any reviews? I'm in dark slump and need some help

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0
(@Anonymous)

Posted : 12/09/2013 5:32 pm

I tried almost anything, sam-e too but it's just a superficial remedy with almost 0 effects.
I tried to explain here why we got all those side effects but this book explain it better than me: [Edited link out]

[Edited link out]
There is no all the required information but there is the basis & the most importants ones.

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MemberMember
153
(@crank92)

Posted : 12/09/2013 6:06 pm

On 12/10/2013 at 3:11 AM, anonyy said:

Sativex is a crap chemical, even if it as the same geometric form as the actual true CBD, don't expect to have all benefit from it. For us CBD is more beneficial than THC, but the rick simpson oil is more about the benefit of THC, his oil contain 80-95% THC and only very low level of CBD, as he doesn't use CBD strain.

Rick Simpson suggests using either Indica strains for those who need a more sedative effect and Sativa for a more energising effect. Both are high in CBD, as that is the component they are most interested in.

http://ricksimpsonhempoil.blogspot.co.uk/2012/07/cannabidiol-induced-apoptosis-in-human.html

On 12/10/2013 at 2:50 AM, tanedout said:
On 12/9/2013 at 9:36 AM, acne1776 said:

@Dubya_B that is very interesting. If CBD is the reason people have been cured I found a website that sells CBD oil which it claims to be legal. Here's the link if anyone is interesting in trying:

[Removed]

I agree, along with the fact we have 2 documented recoveries on this thread from cannabis oil/rick simpson oil a lot of research seems to suggest this may reverse/repair some of the damage we have sustained from this drug (although the specifics of what this is is still not understood).

My current protocol is intermittent fasting (with some sups including l-glutathione) to help prepare for a 14-21 day water fast starting in Jan. After that I plan on taking CBD rich hemp oil (obviously this is not rick simpson oil, however it's the same cannabinoid and appears to be the one which is key in this case). Cannabis oil is obviously illegal in the UK.

I've looked into a number of brands of CBD-rich hemp oil and reckon 'Cibdex' looks to be the best bet. It's supposed to be 20% CBD and from what I've read some people have said this has been more effective than other brands (for treating anxiety, not tane sides in those cases), but I'll be starting on that soon after my water fast is complete.

Seems like we will be following the same kind of protocol come New years. I'll be starting a bit later than you on the fast due to exams. I'm also considering growing my own Sativa strain as soon as I have the resources for it. However, if you have luck with Cibdex let us know. The reason why I'll opt for the real deal is there are so many different cannabinoids and only a few have been studied on there effects, so if I try the real thing I'll know I've covered all bases!

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0
(@Anonymous)

Posted : 12/09/2013 6:18 pm

Sorry to contradict you but no, rick simpson use strains low in CBD, as 99% of all strain, those strain contain maximum 1%, you have to find special landrace or special hybrid to get proper CBD amount (5%+).

Just find that on amazon (the prize & the dosage are a joke): [Edited link out]
[Edited link out] & [Edited link out] they are crazy.

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MemberMember
51
(@acne1776)

Posted : 12/09/2013 7:39 pm

Rick Simpson recommends Indicas high in THC and with CBD. Sativa doesn't have CBD in it. Personally I feel like a good bet would be a strain with around 5-10% THC and 10% CBD because both cannabinoids have medical benefits and work synergistically.

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Dubya_B, Dubya_B and Dubya_B reacted
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153
(@crank92)

Posted : 12/09/2013 7:50 pm

Mother of God, that is some expensive stuff!

My bad, I am mistaken! Apologies! Indica it is, where did I get Sativa from..? I'm not a marijuana connoisseur so I clearly read it somewhere. Anyway it doesn't matter, I was wrong!

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