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Repairing the long-term damage from Accutane

 
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(@navile)

Posted : 10/21/2013 4:21 pm

Hi Navile I believe the main thing is the Step 2 where the conguation happens.. Oxidation and excretion (Step 1 and Step 3) happens easily..

Even if you read an researches the main intention of these researches is only Conguation or for specifically Retinols it is "glucuronidation" ...

The drug toxicity can only be removed by conguation where it is converted from Fat soluble oxidised product to water soluble compound which can be excreted either by urine or through fecals..

Agree with you on that. Just wanted to say that I probably would have get detox symptoms even with taking artichoke or something similar. Like anonyy said, it's just getting worse during detoxing.

Any idea how to slow down my detox process? Google isn't really helping, I drink a lot and stopped taking things days ago, isn't really getting better though. Got even worse today just by taking my daily cinnamon extract, crazy. Having some quality artichoke left, maybe that will bring some relief.

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MemberMember
5
(@sunnyhatesacne)

Posted : 10/21/2013 4:26 pm

For me also the detox symptoms went so bad and the only thing that helped me was taking Calcium d glucrate... 500 mg calcium d glucrate is like taking 82 pounds of broccoli..

I am still getting some symptoms for the detox but not as bad as it was a 1 week ago..

 

Hi Navile I believe the main thing is the Step 2 where the conguation happens.. Oxidation and excretion (Step 1 and Step 3) happens easily..

Even if you read an researches the main intention of these researches is only Conguation or for specifically Retinols it is "glucuronidation" ...

The drug toxicity can only be removed by conguation where it is converted from Fat soluble oxidised product to water soluble compound which can be excreted either by urine or through fecals..

Agree with you on that. Just wanted to say that I probably would have get detox symptoms even with taking artichoke or something similar. Like anonyy said, it's just getting worse during detoxing.

Any idea how to slow down my detox process? Google isn't really helping, I drink a lot and stopped taking things days ago, isn't really getting better though. Got even worse today just by taking my daily cinnamon extract, crazy. Having some quality artichoke left, maybe that will bring some relief.

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MemberMember
3
(@navile)

Posted : 10/21/2013 4:31 pm

thanks, will give that a try.

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MemberMember
17
(@shadeo14)

Posted : 10/22/2013 8:01 am

I've read on some propecia forums that finasteride (propecia) use can help treat the sexual side effects of accutane. The logic is it temporarily decreases DHT and re-sensitizes your receptors. Any of you have experience with this? Thoughts?

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MemberMember
44
(@nick-ryan)

Posted : 10/22/2013 12:37 pm

Love it. Love everything about it.

To those reading: be careful with UDCA- depending on pre-existing conditions and even in general has been linked to adverse effects. Cycling is best if anything.

The circadian rhythm stuff is very true- making sure you get proper sleep at proper times alone can go a long way. Your individual condition may demand you get more sleep than you expect.

Moderate portion control - you can fudge a bit and it seems to be OK as long as you regularly watch what/how much you eat. <-- this is 80% of the battle.

To the most unlikely of sources in the beginning, I would like to again say thank you to Jospeh.

Still here, still healthy, still working full time, still improving.

Eating only whiteleg shrimp and white rice and water. Moderate portion control is sufficient.

Try to avoid eating after sundown. Avoid protein late at night. Take 1.5g/d UDCA +. Two source naturals essential enzymes pills with rice. Also take UDCA and colostrum powder with rice. Cycling testosterone cream.

Fixed weekly fatigue cycle by not sharing bed with gf on weekend visits. Now at 7d/week uptime.

Blue Ice Fermented Cod Liver OIl / Butter Oil blend in mornings.

Limit light exposure after sundown. Get light exposure at sunrise.

That's it. Regimen is now pretty robust and fault tolerant. Model accurately predicts tomorrow's health.

KPI tracking switched from dumps to daily uptime, because IBS no longer central.

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91
(@josephbuchignani)

Posted : 10/22/2013 6:12 pm

Regimen notes:
As far as I know, there is no condition for which cycling UDCA is recommended by the medical establishment. If one has the pre-existing conditions for which UDCA is contraindicated, one should not take it at all. Otherwise, one can take a high dose indefinitely.
I wouldn't say that portion control is 80% of the battle. I could only arrive at that high of a figure by conflating the causational power of bad portion control, with the deleterious effects of sickness-lowered willpower on portion control discipline. The former is controllable, the latter is not.
For regimen maintenance, I find sleep, anti-stress permanent meditation systems, and portion control to be equally important. They are interrelated and not individually fully controllable, but each represents a lever. Together they form a fairly robust control mechanism over one's biorhythm.
During recovery times, required sleep spikes very high. Agreed.
--------
Least probable of sources? It seems to me you are associating likeability and/or mainstream credibility with probability of successful innovation. In fact, the correlation is inverse. High IQ, info obsessive, megalomaniac, heterodox workaholics who persistently run many controlled experiments on a single problem are the solo acts who upset the apple cart of authority.
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44
(@nick-ryan)

Posted : 10/23/2013 7:19 am

Adhering to the circadian rhythm is really key for me.

What about Meditation? I started to get into it. Have been using the following app: https://play.google.com/store/apps/details?id=com.pabloangello.meditatef

I started getting into meditation as well, and it is something that has definitely helped me so add one on to the list of healthy, easy tricks that anyone can try.

To Joseph- 1. http://www.mayoclinic.com/health/drug-information/DR601407/DSECTION=side-effects UDC is not a vitamin, it is a medication and should be taken with care. Hell, even vitamins wreak havoc with my system.

2. Watching what you eat/portion control is a HUGE part of the battle. Getting enough sleep and tweaking the remaining effects after neutralizing the negative eating effects is just as important to achieve optimal health, but I've never been able to address those without adjusting diet first. But I suppose everyone is different.

3. I was making a joke about how you were treated by most in the beginning of your experiments, I don't mean to sound like I'm reinforcing those attitudes, just trying to have a chuckle with ya :P glad you're in a good place and can help others.

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MemberMember
78
(@movingon)

Posted : 10/23/2013 9:51 pm

Update: On week 2 of low-dose Naltrexone....read up about it. Moisture in eyes and nose is back. Still have dry mouth and joint pain...bad joint pain which the iodine seems to have stopped working in conjunction with Naltrexone.Have a new alternative but trained conventional doctor who believes my side effects may have been triggered (laughs inside *may*). He very seriously believes it is automimmune...perhaps hashimoto's but my blood tests always check out fine. ...he still wants to try me on TSH if the Naltrexone cannot get my immune system regulated. I can sleep finally with the naltrexone! It reads like a gimmick, because unfornately, doctors can't make too much money off of it! BOOHOO :(

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223
(@gladiatoro)

Posted : 10/23/2013 11:26 pm

On 10/24/2013 at 10:51 AM, MovingOn said:

Update: On week 2 of low-dose Naltrexone....read up about it. Moisture in eyes and nose is back. Still have dry mouth and joint pain...bad joint pain which the iodine seems to have stopped working in conjunction with Naltrexone.Have a new alternative but trained conventional doctor who believes my side effects may have been triggered (laughs inside *may*). He very seriously believes it is automimmune...perhaps hashimoto's but my blood tests always check out fine. ...he still wants to try me on TSH if the Naltrexone cannot get my immune system regulated. I can sleep finally with the naltrexone! It reads like a gimmick, because unfornately, doctors can't make too much money off of it! BOOHOO [Edited image out]

Did you try the bone broth soup I recommended it is supposed to be great for joint pain , as for not being able to sleep try valerian (herb) not drug , works good for that.

I was reading that in a double-blind study, 44 percent of insomniacs who took valerian described the quality of their sleep as "perfect," and 99 percent said their sleep had improved significantly. None of the patients reported any side effects.

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78
(@movingon)

Posted : 10/24/2013 10:37 pm

Bone broth soup is basically jam packed with HA, and yes HA works for me. thanks for the advice! i'm going to definitely continue with naltrexone. a very powerful antiinflammatory

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4
(@beans36)

Posted : 10/25/2013 5:02 pm

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

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MemberMember
223
(@gladiatoro)

Posted : 10/25/2013 10:36 pm

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

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beans36, beans36 and beans36 reacted
MemberMember
4
(@beans36)

Posted : 10/26/2013 12:23 am

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

Quote
MemberMember
223
(@gladiatoro)

Posted : 10/26/2013 1:08 am

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

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MemberMember
21
(@deebo)

Posted : 10/26/2013 3:18 am

Hi everyone,I've followed this forum for a while and have now decided to join in the effort. I want to thank everyone for their dedication and sharing experiences. This site is by far the most beneficial in understanding accutane. I think a lot of people frequenting this forum are sometimes frustrated because of the amount different ailments being thrown into play. This makes it hard to track the analysis of someone when they provide their experiences of trying something new. One person talks about iodine, maybe one person says it works for them and then the topic gets changed to something totally different. Than, twenty pages later, the subject reappears. I know this is hard to control due to the amount of posts. Everyone suffers different symptoms, but I wish posts were more detailed in such a way as scientists track case studies. I'm saying users experiences are incredibly valuable and their pioneering efforts need to be analyzed to see if it can work for most everyone. I think that most of us understand the complexity of this poison and I think the science needs to be focused on like the oxidation, subjugation method. I know someone has tried this and found success, but they say it cured all symptoms (psychic) problems? More details in the changes would be helpful. My post is in an effort to work the trial and error method in more unison. Maybe we can track the amount of people that use a particular solution and how many people it works for. Than we can analyse each experience to see the different variables. I am excited to try some of these solutions but there are so many different things-where does someone start? I have been fortunate enough to have lucked out with no real joint pain or bowel problems, but suffer from the skin related and hair issues and it has certainly changed my life due to lack of confidence. I guess I have accepted that there is no cure yet and have tried to stay focused on things I find passion in. I am excited to start trying some of the simple things everyone has shared. I want to express my thanks for everyone who has battled and fought for answers. Thank you all and everyone stay strong.Together we will persevere and find the answer.

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beans36, Gladiatoro, beans36 and 3 people reacted
MemberMember
4
(@beans36)

Posted : 10/26/2013 12:23 pm

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

I know, its awful, and I can't help but beat myself up about it everyday. I feel terrible guilt knowing that I did all of this to myself for vanity. Although I took Accutane so many times I feel as though my symptoms aren't as severe as some of the other comments I read, and I am so thankful. Although my migraines are absolutely awful, I find comfort in knowing that I have a few pretty specific problems, and not a whole huge range of things to deal with. I am unlucky, and lucky at the same time.

I ordered some Ionyte last night and am extremely excited to try it. I read a bunch of reviews and I'm very hopeful. Thank you so much for recommending this to me!

I have trouble falling asleep, mainly because of the pain in my head, was wondering if you had ever tried Valerian Root? (This goes for anyone!) I was considering buying some last night but I've been spending so much money on treatments and things lately I thought I should hold off until I asked around.

Quote
MemberMember
223
(@gladiatoro)

Posted : 10/26/2013 4:04 pm

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

I know, its awful, and I can't help but beat myself up about it everyday. I feel terrible guilt knowing that I did all of this to myself for vanity. Although I took Accutane so many times I feel as though my symptoms aren't as severe as some of the other comments I read, and I am so thankful. Although my migraines are absolutely awful, I find comfort in knowing that I have a few pretty specific problems, and not a whole huge range of things to deal with. I am unlucky, and lucky at the same time.

I ordered some Ionyte last night and am extremely excited to try it. I read a bunch of reviews and I'm very hopeful. Thank you so much for recommending this to me!

I have trouble falling asleep, mainly because of the pain in my head, was wondering if you had ever tried Valerian Root? (This goes for anyone!) I was considering buying some last night but I've been spending so much money on treatments and things lately I thought I should hold off until I asked around.

I recommended (Valerian) it before just recently it is good for insomnia , I seem to have the opposite problem I sleep too much lol... and thankfully I don't suffer from headaches must be hard to deal with migraines all the time....I do however feel headpressure it comes and goes and I know for a fact it's form isotretinoin , I feel for ya.... you will like the Ionyte trust me on that one. Right now my symptoms are not bad at all , it seems to come in waves such a strange drug . After my experience with this drug many years ago I have learned to stay away from allopathic medicine I consider this a benefit to my health lol..

Quote
MemberMember
66
(@jtm88)

Posted : 10/26/2013 4:19 pm

Has anyone tried taking Curcumin? There are over 100 clinical studies on PubMed showing how Curcumin is very beneficial for people with inflammatory bowel disease, arthritis, liver disease.

Quote
MemberMember
4
(@beans36)

Posted : 10/26/2013 5:56 pm

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

I know, its awful, and I can't help but beat myself up about it everyday. I feel terrible guilt knowing that I did all of this to myself for vanity. Although I took Accutane so many times I feel as though my symptoms aren't as severe as some of the other comments I read, and I am so thankful. Although my migraines are absolutely awful, I find comfort in knowing that I have a few pretty specific problems, and not a whole huge range of things to deal with. I am unlucky, and lucky at the same time.

I ordered some Ionyte last night and am extremely excited to try it. I read a bunch of reviews and I'm very hopeful. Thank you so much for recommending this to me!

I have trouble falling asleep, mainly because of the pain in my head, was wondering if you had ever tried Valerian Root? (This goes for anyone!) I was considering buying some last night but I've been spending so much money on treatments and things lately I thought I should hold off until I asked around.

I recommended (Valerian) it before just recently it is good for insomnia , I seem to have the opposite problem I sleep too much lol... and thankfully I don't suffer from headaches must be hard to deal with migraines all the time....I do however feel headpressure it comes and goes and I know for a fact it's form isotretinoin , I feel for ya.... you will like the Ionyte trust me on that one. Right now my symptoms are not bad at all , it seems to come in waves such a strange drug . After my experience with this drug many years ago I have learned to stay away from allopathic medicine I consider this a benefit to my health lol..

I will definitely try the Valerian! What are your symptoms other than the head pressure? I know what you mean about symptoms coming in waves, its frustrating because you think you're doing so well and then they all hit again. I get the same thing.

Quote
MemberMember
223
(@gladiatoro)

Posted : 10/26/2013 10:12 pm

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

I know, its awful, and I can't help but beat myself up about it everyday. I feel terrible guilt knowing that I did all of this to myself for vanity. Although I took Accutane so many times I feel as though my symptoms aren't as severe as some of the other comments I read, and I am so thankful. Although my migraines are absolutely awful, I find comfort in knowing that I have a few pretty specific problems, and not a whole huge range of things to deal with. I am unlucky, and lucky at the same time.

I ordered some Ionyte last night and am extremely excited to try it. I read a bunch of reviews and I'm very hopeful. Thank you so much for recommending this to me!

I have trouble falling asleep, mainly because of the pain in my head, was wondering if you had ever tried Valerian Root? (This goes for anyone!) I was considering buying some last night but I've been spending so much money on treatments and things lately I thought I should hold off until I asked around.

I recommended (Valerian) it before just recently it is good for insomnia , I seem to have the opposite problem I sleep too much lol... and thankfully I don't suffer from headaches must be hard to deal with migraines all the time....I do however feel headpressure it comes and goes and I know for a fact it's form isotretinoin , I feel for ya.... you will like the Ionyte trust me on that one. Right now my symptoms are not bad at all , it seems to come in waves such a strange drug . After my experience with this drug many years ago I have learned to stay away from allopathic medicine I consider this a benefit to my health lol..

I will definitely try the Valerian! What are your symptoms other than the head pressure? I know what you mean about symptoms coming in waves, its frustrating because you think you're doing so well and then they all hit again. I get the same thing.

Right now that's about it , other than moodiness , I experience semi systemic dehydration in other words some days my eyes are super dry other days not my skin goes through the same cycle it seems , I have been through much worse with this drug so I would classify my symptoms as somewhat mild now and I'm thankful for that at the moment. I used to experience a lot of dizziness that has subsided too. My fatigue is improving I contribute this to Ionyte like I said before.

Quote
beans36, beans36 and beans36 reacted
MemberMember
4
(@beans36)

Posted : 10/27/2013 11:41 am

 

New to acne.org but I've been following this thread for quite some time. I decided to finally comment because today my boyfriend called me a hypochondriac and that was just too painful. I've been working so hard to find a resolution to all of my health issues that were caused by Accutane and for them to be seen as me being paranoid is ridiculous. Its getting terribly lonely trying to figure all of this stuff out.

My symptoms:

-Chronic Fatigue

-IBS

-Painful PMS

-HORRIBLE migraines 24/7.. this is by far the worst symptom that has come from taking Accutane. I don't see many other people comment about migraines, but I know mine had to have been caused by Accutane.

Nothing has helped with the fatigue so far, but for IBS I found that cutting out gluten and dairy was extremely helpful. I still get IBS symptoms sometimes, but they're not nearly as painful or often as when I was eating anything I wanted.

As for the migraines, I cut out any foods that were triggers (bacon, MSG, avocados, onions, etc..) and also did Botox injections which were absolutely fantastic. I have tried every drug, vitamin, therapy, etc that one could try for migraines and Botox was the only thing that ever really seemed to help. I then had nerve decompression surgery because if Botox works for your migraines, that means you are a good candidate for the surgery. I'm still in recovery and am not sure how effective it was yet, but my hopes are high.

As for any girls that have hormonal issues because of Accutane, I cannot say enough good things about progesterone. I was taking it in pill form for a while until I read the nasty side effects associated with that, then I switched to bioidential progesterone cream which is very safe and incredibly effective. My periods are less painful, and the migraine I get before hand is actually bearable now. I used to be out of commission for an entire week or more around my period, but now I'm able to function again. I highly suggest reading the book, "Dr. John Lee's Hormone Balance Made Simple," it talks about the different hormonal problems women can have, has a checklist to help you figure out which problem you're having, and then tells you multiple ways on how to deal with it. Theres also a section in there about men benefiting from progesterone cream, although I skipped that section for obvious reasons.

I hope this helps someone!

For chronic fatigue try IONYTE , the stuff works it's a organic mineral complex with coral calcium it also alkalizes the body bringing down the acidity a good thing.

To avoid migraine headaches avoid ALCOHOL if you haven't already , isotretinoin and alcohol don't mix too well , also perhaps try willow bark a natural form of aspirin without the nasty side effects of the synthetic version , may help. Question what was your dosage? mg.

Thank you so much!! I will definitely be looking into Ionyte and willow bark. I briefly looked up the both of those and they seem great, I will definitely be purchasing some. I rarely, if ever, drink alcohol, if I do I make sure I have nothing to do for the next few days because I know I'll be out of commission.

Do you mean my dosage of Accutane or of Botox? I'm assuming you meant Accutane. I'm not completely sure on the dosage of Accutane; I've taken 3 rounds of it, once when I was 14, another time at 16, and another time at 18. I can only find information about the last round I took, and that was 40mg a day. I don't know as far as the other two rounds, although I'm sure I could call my doctor and ask if you're that curious. I also have no idea what my dosage of Botox is, but I go back to my doctor on Monday and can ask for you if thats what you meant!

WOW three rounds my God I can't imagine ingesting that much poison , that would explain your side effect to be more on the severe side and yeah I meant Accutane , no problem I'm sure those items will help you , Ionyte has worked great for me I was fatigued for a while , sleeping a lot it made a big difference in terms of giving me energy at first I was skeptical as I have tried quite a few things with little improvement but it worked. (=

I know, its awful, and I can't help but beat myself up about it everyday. I feel terrible guilt knowing that I did all of this to myself for vanity. Although I took Accutane so many times I feel as though my symptoms aren't as severe as some of the other comments I read, and I am so thankful. Although my migraines are absolutely awful, I find comfort in knowing that I have a few pretty specific problems, and not a whole huge range of things to deal with. I am unlucky, and lucky at the same time.

I ordered some Ionyte last night and am extremely excited to try it. I read a bunch of reviews and I'm very hopeful. Thank you so much for recommending this to me!

I have trouble falling asleep, mainly because of the pain in my head, was wondering if you had ever tried Valerian Root? (This goes for anyone!) I was considering buying some last night but I've been spending so much money on treatments and things lately I thought I should hold off until I asked around.

I recommended (Valerian) it before just recently it is good for insomnia , I seem to have the opposite problem I sleep too much lol... and thankfully I don't suffer from headaches must be hard to deal with migraines all the time....I do however feel headpressure it comes and goes and I know for a fact it's form isotretinoin , I feel for ya.... you will like the Ionyte trust me on that one. Right now my symptoms are not bad at all , it seems to come in waves such a strange drug . After my experience with this drug many years ago I have learned to stay away from allopathic medicine I consider this a benefit to my health lol..

I will definitely try the Valerian! What are your symptoms other than the head pressure? I know what you mean about symptoms coming in waves, its frustrating because you think you're doing so well and then they all hit again. I get the same thing.

Right now that's about it , other than moodiness , I experience semi systemic dehydration in other words some days my eyes are super dry other days not my skin goes through the same cycle it seems , I have been through much worse with this drug so I would classify my symptoms as somewhat mild now and I'm thankful for that at the moment. I used to experience a lot of dizziness that has subsided too. My fatigue is improving I contribute this to Ionyte like I said before.

I'm so glad things are somewhat mild for you right now! I hope everything continues to get better! Thank you again for the tip on the Ionyte, I can't wait to try it.

Quote
MemberMember
359
(@dubya_b)

Posted : 10/27/2013 4:18 pm

I've read on some propecia forums that finasteride (propecia) use can help treat the sexual side effects of accutane. The logic is it temporarily decreases DHT and re-sensitizes your receptors. Any of you have experience with this? Thoughts?

This idea seems to have originated from Kevin Pezzi, who claimed in one of his books that he permanently recovered from sexual sides of Accutane by using finasteride.

I've never heard of any other Accutane sufferer finding relief by this method, although a few finasteride victims said they temporarily recovered from their sexual side effects by going back on finasteride. The only problem was that the recoveries didn't last, and a couple of them ended up with worse-off than they were in the first place.

It's a risky gamble. You might want to carefully investigate the potential sexual side effects of finasteride before making any desperate moves.

Quote
MemberMember
0
(@grammab)

Posted : 10/27/2013 4:27 pm

Chiron, I am seeking more information about the regimen you have tried to counter the side effects of Accutane. My granddaughter took Accutane for 6 months 2 years ago. Subsequently, and probably unrelated, she had surgery to repair a hernia and the valve from her esophagus to her stomach. She has since developed an alarming number of symptoms which sound like the ones being described by others suffering Accutane side effects. Migraines entered into it but may have been caused by the proton inhibitors prescribed to alleviate stomach problems. She has also been found to be allergic to things she had previously eaten all her life as well as gluten and dairy intolerant. She has so many of the symptoms you and others describe and it seems to be getting worse instead of better. I have been looking for solutions and find very little in the way of how to deal with the problems and live a reasonably normal life so when I read your posts, it seems you have found some solutions and I am so hoping you are willing to share a little more detail with me. My granddaughter is 26, a competitive swimmer (attended college on an athletic scholarship) until now, the pain of working out and swimming is about to stop her swimming altogether. This has turned out to be longer than I intended, I apologize. I am just looking for help as the medical community seems to have nothing to offer except one more expensive test after another with no results. I know you are not a doctor and any information you can give me will be accepted only as information about your solution and not advice that we should do it. Thank you in advance for any aid you can provide. Barbara Gilbert

Quote
MemberMember
223
(@gladiatoro)

Posted : 10/27/2013 7:51 pm

 

I've read on some propecia forums that finasteride (propecia) use can help treat the sexual side effects of accutane. The logic is it temporarily decreases DHT and re-sensitizes your receptors. Any of you have experience with this? Thoughts?

This idea seems to have originated from Kevin Pezzi, who claimed in one of his books that he permanently recovered from sexual sides of Accutane by using finasteride.

I've never heard of any other Accutane sufferer finding relief by this method, although a few finasteride victims said they temporarily recovered from their sexual side effects by going back on finasteride. The only problem was that the recoveries didn't last, and a couple of them ended up with worse-off than they were in the first place.

It's a risky gamble. You might want to carefully investigate the potential sexual side effects of finasteride before making any desperate moves.

I wouldn't recommend propecia I have heard some bad things about that drug , it's a DHT blocker no doubt. I think the last thing an Accutainted victim needs is more drugs. Sexual side effects can often be relieved with something as simple as ..... exercise . There are herbs to try but most are DHT blockers ...Goji berries may be worth a try or tonkat ali these could be helpful herbs , but them main thing as I mentioned would be exercise get the blood flowing throughout the body . There is no question isotretinoin affects circulation in the winter months my fingers go numb easy I'm more susceptible to the cold now.

Quote
MemberMember
148
(@oli-girl)

Posted : 10/27/2013 10:11 pm

Chiron, I am seeking more information about the regimen you have tried to counter the side effects of Accutane. My granddaughter took Accutane for 6 months 2 years ago. Subsequently, and probably unrelated, she had surgery to repair a hernia and the valve from her esophagus to her stomach. She has since developed an alarming number of symptoms which sound like the ones being described by others suffering Accutane side effects. Migraines entered into it but may have been caused by the proton inhibitors prescribed to alleviate stomach problems. She has also been found to be allergic to things she had previously eaten all her life as well as gluten and dairy intolerant. She has so many of the symptoms you and others describe and it seems to be getting worse instead of better. I have been looking for solutions and find very little in the way of how to deal with the problems and live a reasonably normal life so when I read your posts, it seems you have found some solutions and I am so hoping you are willing to share a little more detail with me. My granddaughter is 26, a competitive swimmer (attended college on an athletic scholarship) until now, the pain of working out and swimming is about to stop her swimming altogether. This has turned out to be longer than I intended, I apologize. I am just looking for help as the medical community seems to have nothing to offer except one more expensive test after another with no results. I know you are not a doctor and any information you can give me will be accepted only as information about your solution and not advice that we should do it. Thank you in advance for any aid you can provide. Barbara Gilbert

Hernia and esophagus issues are related to Accutane. It is noted in rx info. Is your granddaughter adopted a gluten free and dairy free diet? What has she tried for the joint pain and other issues. I leave the rest to Chiron!

Quote