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Repairing the long-term damage from Accutane

 
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78
(@movingon)

Posted : 08/22/2013 11:00 pm

You guys are so awesome! such helpful feedback. I was really skeptical about the plaquenil, but i have heard it has helped others. I'm definitely more of a natural type person, but i stupidly succumbed to trying rogaine...worst poison ever!! the worst part is i knew it was a bad idea and i took it anyways. Kinda of like seeing if I could get away with it but then NOPE, ACCUTANE = cannot tolerate anti-androgen anything. Whatever side effects I acquired came on in the past 3 years...yet i took accutane when i was 16....im 25 now..I don't know if that makes my outlook worse or better that the latency period was so long. Anyways, I digress. I'm going to the doctor tomorrow to get referrals. I want to get my hormones tested to cover all bases, and see what my doc thinks about me supplementing with iodine...she'll probably scream and wet her pants, but we will see. I'm also going to get food allergy tests to see if anything shows up. After that, it's a strictly alkaline diet, and only taking supps i know work well for me. I will say i have noticed green tea extract being a potent circulatory agent and it helps with inflammation. ;) @Nick, I'm glad i didn't take it Plaquenil because i was going to try to get a prescription due to your prior posts saying it worked well! i guess in the longer term it didn't? Anyone actually have success with it in reducing inflammation short-term??

Gosh after writing 15 client session notes my writing is jibberish and stream of consciousness so sorry for anyone who reads this post lol

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MemberMember
85
(@and1)

Posted : 08/26/2013 7:37 am

By accident I came across results from blood tests I had taken way back, which pretty much prove my theory that food intake strongly influences the test results that relate to the liver.

GOT/AST and GP/ALT values that were dervived from a blood sample when I was fasting ("starving"): 21 and 14

GOT/AST and GP/ALT values that were dervived from a blood sample when I was bulking and eating at least 4000 kcal per day: 35 and 28

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Nick Ryan, JosephBuchignani, Nick Ryan and 3 people reacted
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91
(@josephbuchignani)

Posted : 08/26/2013 9:13 am

Agreed. My health is directly correlated to quantity eaten, specifically carb/fat eaten. I'm experimenting with ways to reduce rice+yogurt and increase shrimp.

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MemberMember
85
(@and1)

Posted : 08/26/2013 12:02 pm

Knowing that the liver and gallbladder are the weakest link and the root cause of pretty much all the symptoms I experienced, I am now also taking a closer look at the kidneys and have their detox function checked, because they are part of the detox apparatus of the human body.

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26
(@maynerd)

Posted : 08/27/2013 1:39 pm

The latency thing is like the biggest mystery to me... makes me think accutane gallstones...

On the other hand my success with peppermint followed by now, eating as much fat and food as I want makes me think stomach, somehow--- or perhaps both...

But either way, with my standard process digestive products combined with my peppermint, I eat as much as I want and am trying to eat as much food and fat as possible, since I am following a muscle growth protocol by Timothy Ferriss and his book "The 4 Hour Body"... which I bought initially to get tips on healing my body overall so I could heal and share my successess... If you recall from my earlier posts I have had success with his sleep tips... and now with his slow carb diet, and slow movement excercises I put on good muscle and I lost fat from my stomach in like 4 days... no digestive problems--- except I should be having more frequent stools and nuts show up undigested sometimes, but I mean no terrible noises or discomfort like before.

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MemberMember
85
(@and1)

Posted : 08/27/2013 4:41 pm

Right now I am researching iodine.

Of those who are taking iodine are you taking it as potassium iodine or elemental iodine (Lugol's solution, which contains both forms)?

I read that yoghurt and eggs are high in iodine, I consume both daily, so why should I try supplementation (Edited link out)?

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MemberMember
78
(@movingon)

Posted : 08/27/2013 9:27 pm

Nothing worked for me in food form so i went with Biotics iodine. I started with the RDA of 150mg...now I am up to 3-6 times that. I do it based upon how my body feels. I had normal lab findings for my thyroid keep in mind. I felt like i had a cold coming on for days when i first started taking it but then slowly the mucus thinned out and my skin became smooth and my FAVORITE part no fibromyalgia symptoms or foggy head!

Although i ALWAYS feel better after eating sushi, and there is iodine in the seaweed...perhaps thats why i am addicted....that or I am a bear...maybe both.

f'ed up my bear joke. I'll stick to seriousness. I eat salmon/avocado rolls only...bears like salmon...Ha. Okay, drum roll off the stage embarrassed.

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MemberMember
91
(@josephbuchignani)

Posted : 08/28/2013 8:25 am

Maybe you should sashimmy off the stage instead.

Watch the additives in dried seaweed and the bacteria in sushi. I find I'm sensitive to both, probably. Or maybe with the sushi it's fat, can't tell.

Tons of shrimp makes me a happy camper.

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MemberMember
78
(@movingon)

Posted : 08/28/2013 9:02 pm

Sashimmy hahaha worst joke ever. love it

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MemberMember
85
(@and1)

Posted : 08/31/2013 5:16 am

Started today with my own "sauna therapy". My goal is to follow through with going to the sauna daily for the next 6 weeks. From experience I know that it cures me of my remaining skin problems within less than a week, so that is at least one major incentive.

Whenever I used to go the sauna I would hit it hard and lay on the top bench and overdo it with short rest intervalls and so on. I would usually feel the ramifications the next day, often times I would get sick. Now I am wiser, I will exclusively use the benches at the very bottom and start slowly and increase the time spend in the sauna over time.

Read a lot about it, Mark Hyman writes about it and recommends it as well. You also find studies about it where it helped cure people from CFS.

http://www.sciencedirect.com/science/article/pii/S0022399904006452

http://en.wikipedia.org/wiki/Sauna#Health_risks_and_benefits

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MemberMember
85
(@and1)

Posted : 09/02/2013 5:30 pm

Maybe you should sashimmy off the stage instead.

Watch the additives in dried seaweed and the bacteria in sushi. I find I'm sensitive to both, probably. Or maybe with the sushi it's fat, can't tell.

Tons of shrimp makes me a happy camper.

Hey Jospeh!

You said you had your genes tested at 23andme. Have ever taken a closer look at the test results to see in how far you are equipped with genes that make you a good detoxifier? For instance do you have all of the following genes? GSTT1, GSTM1, NAT2, GSTP1

Once you know which genes you are missing, you can in a next step search for the supplements that lessen the impact of these missing genes. For instance I have heard that people with certain gene modifications need a lot more B12 to have their system function properly. In this case you supplement a strong sublingual B12 or take B12 shots.

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MemberMember
85
(@and1)

Posted : 09/02/2013 5:54 pm

Detox genes:

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"... can be particularly helpful to folks who have adverse reactions to drugs, as this is commonly due to a decreased capacity for clearing drugs from the body."

[Edited link out]

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MemberMember
85
(@and1)

Posted : 09/03/2013 3:37 am

I want to highly recommend another book to you guys:

Transcend by Ray Kurzweil and Terry Grossmann

A lot of scientific information is presented here even the once beloved topic of this thread - telomere shortening - is touched upon and how telomeres can be repaired and telomere shortening can be reversed.

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MemberMember
0
(@noanswer23)

Posted : 09/03/2013 11:46 am

Hi, I took accutane in April (40 mg) and May (60 mg) after suffering from severe acne for over 10-11 years. I had to stop after 2 months because I started getting tingling sensation in my feet, which then led to numbness. Doctors including my dermatologist had no idea what was causing it, but I believed it was accutane so I stopped taking it. About 2 weeks after stop taking accutane, the tingling sensation and numbness in my feet started to go away. Ever since then I've been back on Retin-A cream 0.025%. And for past 3 months, it has somewhat helped me control my acne. However, I just moved up to .05% and out of nowhere my feet tingling and now even numbness came back. I just don't know what to do. I also started breaking out after I moved up to .05% and have at least 15+ active pimples at the moment.

My first question is, is it possible that the Retin-A cream is causing my feet tingling / numbness? Cuz it was fine when I was using .025%. It is getting really bad that it's preventing me from doing any other activities.

My second question is, what should I do if I have to stop using the Retin-A cream? Even if I just take like 1 day off, I will get multiple pimples so I'm scared to stop using it but I'm also really scared to keep using it.

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MemberMember
85
(@and1)

Posted : 09/03/2013 11:49 am

Hi, I took accutane in April (40 mg) and May (60 mg) after suffering from severe acne for over 10-11 years. I had to stop after 2 months because I started getting tingling sensation in my feet, which then led to numbness. Doctors including my dermatologist had no idea what was causing it, but I believed it was accutane so I stopped taking it. About 2 weeks after stop taking accutane, the tingling sensation and numbness in my feet started to go away. Ever since then I've been back on Retin-A cream 0.025%. And for past 3 months, it has somewhat helped me control my acne. However, I just moved up to .05% and out of nowhere my feet tingling and now even numbness came back. I just don't know what to do. I also started breaking out after I moved up to .05% and have at least 15+ active pimples at the moment.

My first question is, is it possible that the Retin-A cream is causing my feet tingling / numbness? Cuz it was fine when I was using .025%. It is getting really bad that it's preventing me from doing any other activities.

My second question is, what should I do if I have to stop using the Retin-A cream? Even if I just take like 1 day off, I will get multiple pimples so I'm scared to stop using it but I'm also really scared to keep using it.

Just read the 180 pages of this thread backwards that will put you on the fast track to figure out how to cure yourself.

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MemberMember
91
(@josephbuchignani)

Posted : 09/03/2013 7:34 pm

Have all those genes. Have the MTHFR mutations as well. Will try methylfolate.

Very bad reaction when changed shrimp brands to vietnamese tiger prawns. Back on whiteleg shrimp and doing fine. Continuing career progression, life progression.

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and1, Gladiatoro, and1 and 3 people reacted
MemberMember
148
(@oli-girl)

Posted : 09/03/2013 10:01 pm

Hi, I took accutane in April (40 mg) and May (60 mg) after suffering from severe acne for over 10-11 years. I had to stop after 2 months because I started getting tingling sensation in my feet, which then led to numbness. Doctors including my dermatologist had no idea what was causing it, but I believed it was accutane so I stopped taking it. About 2 weeks after stop taking accutane, the tingling sensation and numbness in my feet started to go away. Ever since then I've been back on Retin-A cream 0.025%. And for past 3 months, it has somewhat helped me control my acne. However, I just moved up to .05% and out of nowhere my feet tingling and now even numbness came back. I just don't know what to do. I also started breaking out after I moved up to .05% and have at least 15+ active pimples at the moment.

My first question is, is it possible that the Retin-A cream is causing my feet tingling / numbness? Cuz it was fine when I was using .025%. It is getting really bad that it's preventing me from doing any other activities.

My second question is, what should I do if I have to stop using the Retin-A cream? Even if I just take like 1 day off, I will get multiple pimples so I'm scared to stop using it but I'm also really scared to keep using it.

Are you from the U.S.??? It is possible for Accutane to cause Neuropathy and such. Also, A lot of us are unable to ingest or use any retinol products etc. after being damaged by Accutane.

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MemberMember
223
(@gladiatoro)

Posted : 09/03/2013 10:39 pm

Have all those genes. Have the MTHFR mutations as well. Will try methylfolate.

Very bad reaction when changed shrimp brands to vietnamese tiger prawns. Back on whiteleg shrimp and doing fine. Continuing career progression, life progression.

Have all those genes. Have the MTHFR mutations as well. Will try methylfolate.

Very bad reaction when changed shrimp brands to vietnamese tiger prawns. Back on whiteleg shrimp and doing fine. Continuing career progression, life progression.

Joseph I can't remember if I asked you this maybe 100 pages back or so .... but how many grams did you ingest of isotretinoin? just wondering , I know

obviously the more one takes the worse the damage hence I am asking the question . It's good the whiteleg shrimp are working for you any progress is

good progress.

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MemberMember
91
(@josephbuchignani)

Posted : 09/04/2013 12:12 am

Not sure how many grams, it was a light dose just for a few months. I was a borderline case. But I obviously had bad genes for it. Increased risk for Crohn's, UC, MTHFR.

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MemberMember
223
(@gladiatoro)

Posted : 09/04/2013 12:30 am

Not sure how many grams, it was a light dose just for a few months. I was a borderline case. But I obviously had bad genes for it. Increased risk for Crohn's, UC, MTHFR.

That's what I thought a few months like me I kind of remembered that I think you did tell me once way back when , you know it pisses me off when kids go to there derm with a few pimples and get prescribed accutane , these kids really have no idea of what there getting into and the life long implications involved some worse than others obviously , thanks for the info.

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MemberMember
85
(@and1)

Posted : 09/04/2013 3:08 am

I want to highly recommend another book to you guys:

 

Transcend by Ray Kurzweil and Terry Grossmann

 

A lot of scientific information is presented here even the once beloved topic of this thread - telomere shortening - is touched upon and how telomeres can be repaired and telomere shortening can be reversed.

I am just about to get into the role of genes.Kurzweil writes in his book that research by Dr. Ornish at UCSF has shown that it is possible to change the expression of over 500 genes within 3 months. Thought that was interesting. How did they achieve these changes in gene expression?

- nutrition/supplementation

- excercise

- stress management

- increased social support

Genes definitely play a huge role in how we respond to medication and treatment. This is presumably why it it is so hard to find common denominators in how to heal ourselfes.

Not sure how many grams, it was a light dose just for a few months. I was a borderline case. But I obviously had bad genes for it. Increased risk for Crohn's, UC, MTHFR.

So you can't take most of the available b complexes?! Metabolic Maintenance, Pure Encapsulations and Thorne Research are to my knowledge the only companies that sell B complex products that are well tolerated by people with these genes.

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MemberMember
91
(@josephbuchignani)

Posted : 09/04/2013 3:53 am

Thanks for the tip re brands. I've had strongly positive metabolic reactions to b vitamins in the past, but may have also had stomach trouble from the construction of the pills.

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MemberMember
85
(@and1)

Posted : 09/04/2013 4:28 am

Thanks for the tip re brands. I've had strongly positive metabolic reactions to b vitamins in the past, but may have also had stomach trouble from the construction of the pills.

I have yet to get my genes tested, but due to the fact that I have high homocystein levels (which may be linked to MTHFR) a good B Complex will definitely help to lower these.

I think I get breakouts from Inositol and PABA, which are nowadays found in almost all B Complex products, this is why I take Pure, but will try how I react to the B Complex from Metabolic M in the future, which also has Inositol and PABA.

Thorne just modified their B Complex, be sure not to get their old formula. Their new formula is to my knowledge only available in the states at the moment.

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Gladiatoro, JosephBuchignani, Gladiatoro and 3 people reacted
MemberMember
0
(@noanswer23)

Posted : 09/05/2013 12:07 am

 

Hi, I took accutane in April (40 mg) and May (60 mg) after suffering from severe acne for over 10-11 years. I had to stop after 2 months because I started getting tingling sensation in my feet, which then led to numbness. Doctors including my dermatologist had no idea what was causing it, but I believed it was accutane so I stopped taking it. About 2 weeks after stop taking accutane, the tingling sensation and numbness in my feet started to go away. Ever since then I've been back on Retin-A cream 0.025%. And for past 3 months, it has somewhat helped me control my acne. However, I just moved up to .05% and out of nowhere my feet tingling and now even numbness came back. I just don't know what to do. I also started breaking out after I moved up to .05% and have at least 15+ active pimples at the moment.

My first question is, is it possible that the Retin-A cream is causing my feet tingling / numbness? Cuz it was fine when I was using .025%. It is getting really bad that it's preventing me from doing any other activities.

My second question is, what should I do if I have to stop using the Retin-A cream? Even if I just take like 1 day off, I will get multiple pimples so I'm scared to stop using it but I'm also really scared to keep using it.

Are you from the U.S.??? It is possible for Accutane to cause Neuropathy and such. Also, A lot of us are unable to ingest or use any retinol products etc. after being damaged by Accutane.

Yes, I'm from the US. Also I've read like past 50 pages of this thread but didn't really answer any of my questions. I know some people cannot eat anything with vitamin A in it but never heard anyone post about how just applying it on the skin causes all these reactions and side effects.

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MemberMember
85
(@and1)

Posted : 09/05/2013 1:03 am

You know what do whatever once you messed up you can come back and look for help

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