Acne.org Products
In this thread a lot of links are posted and as a regular reader I'd say more than 90% are to sites that are not selling anything, so we are good.
http://www.westonaprice.org/cod-liver-oil/cod-liver-oil-basics
No banners.Only thing they're advertising is their print journal, which every academic journal does too. None of their product links are affiliate.
If it's not ok to post, just ban me, cuz I'm gone.
http://www.westonaprice.org/cod-liver-oil/cod-liver-oil-basics
No banners.Only thing they're advertising is their print journal, which every academic journal does too. None of their product links are affiliate.
If it's not ok to post, just ban me, cuz I'm gone.
The company that produces Blue-Ice brand Cod Liver Oil (Green Pasture) is absolutely an affiliate of the Weston A Price Foundation. The
company is listed as a "platinum" sponsor at the bottom of their official website's main page http://www.westonaprice.org/ , as are 2 of the 3
websites rated as the "BEST" sources for the Blue-Ice supplement in the page you linked. (Dr. Ron's Ultra-Pure and Radiant Life
are also listed as sponsors on the site's main page.)
If you are a firm believer in the Weston A. Price Foundation's advocated diet and supplement lines, then perhaps starting a new website to discuss overcoming the damage of Accutane in the context of their recommendations isn't such a bad idea.
...Says Marsha Clarke to Johnny Cochran. (see the above post).
The announcers of the Indy 500 also don't tout the smooth ride and superior grip of Firestone tires over other brands as personal experience,
I will call it shameless financial back-scratching if you are unsatisfied with equating affiliation to sponsorship, and remind you the health supplement industry often funds studies of its own products through various organizations as well.
So, to the substance (mostly Fish Liver Oil):
Some logical inquiry is badly needed when a particular supplement containing potentially toxic doses of vitamin A are being repeatedly promoted as innocuous in a forum of people who were badly effected by a drug patterned after the same vitamin. This is in light of a poster saying they reacted similarly to your supplement of choice as they did accutane, and many others claiming ill effects from foods and supplements containing high doses of vitamin A.
Are they being ignored to push a product or agenda?
Maybe it is simply survival of the loudest and most prolific.
On a final note:
I would encourage silent observers of this thread to objectively look into the sources of information relating to any treatment discussed here before purchasing something in a blind leap of desperation.
Some food for thought regarding a couple of the repeatedly cited websites who's links were recently removed:
http://en.wikipedia.org/wiki/NaturalNews
http://en.wikipedia.org/wiki/Weston_A._Price_Foundation
There were also links to two online stores targeted at Accutane sufferers that were removed.
This article deals with mesothelioma specifically, but lays out some practical cautionary guidelines for people suffering from seemingly uncurable conditions.
http://www.asbestos.com/blog/2012/10/22/avoiding-supplement-scams/
Notice that they mention the efficacy of some natural products. This is not an argument of all natural products and supplements being useless for anything but running scams.
Nor should they be assumed to be harmless. Many have been scientifically proven to be pharmacologically active.
If rational skepticism and inquiry into potential treatments aren't welcome here anymore, then the basis for this thread is lost since it was someone questioning the reported safety of Accutane that led to its creation.
I will take my leave now for a couple weeks, as this arguing has become as useless and repetitive as the idealogical self-promotion.
Your absence will be as welcome as your reading comprehension is absent.
"a particular supplement containing potentially toxic doses of vitamin A are being repeatedly promoted as innocuous"
Nowhere have I said that Blue Ice is innocuous. In fact, I have warned that taking a high dose is rather uncomfortable.
I have said:
1. It is DIFFERENT THAN regular cod liver oil.
2. It is, by hard repeated experimental evidence, extremely beneficial FOR ME.
3. It MAY BE extremely beneficial for others here.
I have further encouraged someone else here to test a LOW DOSE, ONE TIME. Preferably, NOT someone with a previous or suspected history of reactivity to vitamin A.
Now, please calm down and exit the building.
http://en.wikipedia.org/wiki/Activated_carbon#Medical_applications
Activated carbon interrupts enteroenteric circulation http://en.wikipedia.org/wiki/Enteroenteric_circulation
You take it on empty stomach preferably after fasting a little. After having taken it you flush it out with Natriumsulfate.
This article talks about isotretinoin among other things and the pure poison of processed sugar in our diets.
To anyone who has dry skin/hair loss- have you tried getting a humidifier? I just got one and within a day or two my skin felt INFINITELY better, my scalp stopped shedding all over the place and my hair loss is almost nonexistent now. It's worth a try for anyone with those problems.
Hope this helps.
http://crasberrysmith.wordpress.com/2011/05/05/the-initial-phase-diet/
Looks very similar to paleo
More dangerous side effects exposed of anti-life biotic use.
http://www.pbs.org/newshour/bb/health/jan-june11/antibiotics_06-16.html
"Vitamin A: Friend Or Foe": http://www.westonapr...it-of-happiness
"Accutane is not vitamin A. The body handles it differently from natural vitamin A (see Figure 4) and there are a number of lines of evidence showing that it acts as an anti-vitamin A compound that can aggravate vitamin A deficiency. In newborn mice treated with dexamethasone, a drug that induces emphysema-like changes to lung tissue, natural vitamin A helps treat the disorder while the active ingredient of Accutane has no effect and may even make it worse.30 Accutane caused night blindness, a traditional sign of vitamin A deficiency, in a child with cystic fibrosis, whereas vitamin A supplementation resolved the night blindness.31 In rats, the active ingredient of this drug accumulates in the eyes and interferes with vitamin A recycling; rats taking it at high doses took fifty times longer to recover from exposure to intense light than rats that did not take the drug at all.32
A physician published a letter earlier this year reporting that two patients developed depression on Accutane; when the physician took them off the drug and supplemented them with 10-12,000 IU of vitamin A for seven to ten days, the depression resolved and they were able to go back on the drug without it recurring.33 The totality of the evidence strongly suggests that vitamin A deficiency contributes to depression and that Accutane is associated with this mental illness because it interferes with vitamin A metabolism."
So in conclusion vitamin A like Blue Ice cod liver could actually be BENEFICIAL to us , due to accutane mimicking vitamin A deficiency symptoms so Joseph may be onto something with his Blue Ice treatment.
Hi, I've read through pages on this site and on many other sites and am hoping there's help to be found. I just posted this on another thread on this site but I see this one is more active so I thought I'd repost.
I'm 22 and I started taking a version of roaccutane in November 2011 and was on it for about 8 months as far as I remember. I was single while I was on it so I never really noticed anything different as far as my libido/erections went. However just after I stopped taking it I met a girl and when we finally got around to IT (despite her being amazing to look at and everything I want in a girl) I couldn't get a decent erection. At the time I put it down to alcohol and exhaustion as I had spent the night before drinking heavily and not got much sleep then drinking again that night - and maybe a little anxiety over the situation. But then I started to wonder, I started to notice that even when I was well rested and by myself I couldn't get a decent erection or sustain it.
After trying a number of over the counter supplements (not wanting to put my name to anything) I finally bit the bullet and went to a GP who told me it was probably psychological, took some blood and gave me a scrip for Cialis. The blood test showed everything within normal ranges - it even said my testosterone was on the higher end of normal. The Cialis did nothing so the GP sent me to a urologist, who again said it was probably psychological and gave me a scrip for Levitra which also did nothing. The specialist sent me for a penile ultrasound which showed no abnormalities. The urologist then gave me a scrip for Caverject which did nothing. After that it was a medication even stronger and I assume not often required as it isn't available in normal pharmacies and I had to go to a compounding pharmacy to have it made specially. Again nothing. The concentration of the medication was then doubled. This had some minor results but nowhere near where it should be. (and I certainly did not enjoy sticking a needle into my penis)
Tomorrow I am having some other sort of imaging done. I'm not exactly sure what as the appointment was made in a bit of a hurry.
It has become VERY frustrating. I haven't been with my girlfriend for months and I'm getting no results from medications that are powerful enough to give a dead man wood. When the urologist asked if I knew what might be causing it, at first I didn't know but when I thought about it the only thing different in my life from around that time was roaccutane. When I mentioned it he didn't seem to take any notice. Possibly because it had been so long since I had stopped the roaccutane or maybe just because he thought it irrelevant.
Is anyone out there having success with anything? This problem is slowly killing me. I know it will eventually destroy my relationship. Once the pleasure of life is gone you end up just being a drone - work, eat, sleep, work, etc. but what's the point of any of that if u can't enjoy yourself?
This has dragged on a little more than I originally intended so I'll wrap it up now.
Please, if anyone out there has any progress, anything to offer let it be known because its obvious this is a problem that is going to persist for a lot of people.
Hi, I've read through pages on this site and on many other sites and am hoping there's help to be found. I just posted this on another thread on this site but I see this one is more active so I thought I'd repost.
I'm 22 and I started taking a version of roaccutane in November 2011 and was on it for about 8 months as far as I remember. I was single while I was on it so I never really noticed anything different as far as my libido/erections went. However just after I stopped taking it I met a girl and when we finally got around to IT (despite her being amazing to look at and everything I want in a girl) I couldn't get a decent erection. At the time I put it down to alcohol and exhaustion as I had spent the night before drinking heavily and not got much sleep then drinking again that night - and maybe a little anxiety over the situation. But then I started to wonder, I started to notice that even when I was well rested and by myself I couldn't get a decent erection or sustain it.
After trying a number of over the counter supplements (not wanting to put my name to anything) I finally bit the bullet and went to a GP who told me it was probably psychological, took some blood and gave me a scrip for Cialis. The blood test showed everything within normal ranges - it even said my testosterone was on the higher end of normal. The Cialis did nothing so the GP sent me to a urologist, who again said it was probably psychological and gave me a scrip for Levitra which also did nothing. The specialist sent me for a penile ultrasound which showed no abnormalities. The urologist then gave me a scrip for Caverject which did nothing. After that it was a medication even stronger and I assume not often required as it isn't available in normal pharmacies and I had to go to a compounding pharmacy to have it made specially. Again nothing. The concentration of the medication was then doubled. This had some minor results but nowhere near where it should be. (and I certainly did not enjoy sticking a needle into my penis)
Tomorrow I am having some other sort of imaging done. I'm not exactly sure what as the appointment was made in a bit of a hurry.
It has become VERY frustrating. I haven't been with my girlfriend for months and I'm getting no results from medications that are powerful enough to give a dead man wood. When the urologist asked if I knew what might be causing it, at first I didn't know but when I thought about it the only thing different in my life from around that time was roaccutane. When I mentioned it he didn't seem to take any notice. Possibly because it had been so long since I had stopped the roaccutane or maybe just because he thought it irrelevant.
Is anyone out there having success with anything? This problem is slowly killing me. I know it will eventually destroy my relationship. Once the pleasure of life is gone you end up just being a drone - work, eat, sleep, work, etc. but what's the point of any of that if u can't enjoy yourself?
This has dragged on a little more than I originally intended so I'll wrap it up now.
Please, if anyone out there has any progress, anything to offer let it be known because its obvious this is a problem that is going to persist for a lot of people.
Unfortunately erectile dysfunction is another side effect related to isotretinoin , it is dosage related meaning it depends how much you took in 8 months of accutane seem like a lot probably 10 grams or so , that would explain it , I only took around 2.5 grams so luckily I have no problems in that department , I would stay away from things like Viagra they have recently been liked to blindness which doesn't surprise me, perhaps look into something like Tongkat Ali this may be a viable solution for you . Hope this helps. This is a horrible side effect I feel your pain man , good luck.
Talked today to my doc who is very alternative and anti-pharma. I told her why I did not finish the treatment with UDCA, told her about the paper from this egyptian university. Her response was that you never know who is behind these research papers and what is their agenda.
I emailed the woman who wrote the paper, I never got a response back. I may consider going on a cycle of UDCA again in a couple of months.
Talked today to my doc who is very alternative and anti-pharma. I told her why I did not finish the treatment with UDCA, told her about the paper from this egyptian university. Her response was that you never know who is behind these research papers and what is their agenda.
I emailed the woman who wrote the paper, I never got a response back. I may consider going on a cycle of UDCA again in a couple of months.
Sounds like you have a good doc , hard to find these days mine is good too he said takes whatever helps you last time I went there I got tested for diabetes and my thyroid was checked results no diabetes and thyroid is fine.
And by the way I am currently reading a couple of books. I am going to tell you guys which ones in a minute, I downloaded them on my PC using kindle software, the good thing about that is that you have 7 days to return the book, which is no hassle at all given that the books are digital and you basically only have to fill out a form. I already returned the 1st which saves you a lot of money.
My current reading below. Pretty much got the books because they contain a lot of information about supps, detoxification, the liver and the immune system:
UltramindSolution by Mark Hyman
The Immune System Recovery Plan by Susan Blum and Mark Hyman
Healing Hepatitis and liver disease naturally by Dr Oyakhire
Anyone on here on sjogrens meds? It's been suggested before. Honestly, I am considering it due to intense inflammation of my gums, scalp, joints, etc. Other rheumatic things have been ruled out and I don't have lupus, thyroid, diabetes, etc....just accutainted like many others! I WILL NOT STOP ON THIS JOURNEY.
Updates:
Still doing well on iodine...,smooth skin, joint pain relief, moistened eyes, mouth...but not helping hair loss or scalp inflammation--still have peaks of dry mouth and eyes whenever i come near an anti-androgen but doctors keep prescribing them for my hair loss!! UGH
Glucosamine--need it.
Probiotics --need it...in fact everyone here does.
DHEA---not sure.
Goldenseal--not sure...
Biotin--nails stronger, shit for hair
Green tea extract---energy, metabolism
Going to attempt an alkaline diet slowlllyyy. I suck at diets but i know how important they are for gut health. Any advice would be great! and please do not recommend CLO as it WILL kill me.
I took a anti malaria plaquenil for my systematic inflammation and flushing for about 2 yrs, most sjrogrens patients take it along with using eye drops, lots of water, biotin for dry mouth!
I stopped the plaquenil shortly after being dx with diabetes in which I feel accutane killed my pancreas just took 3 yrs
Did they do the eye exam or biopsy of saliva glands? Also look at a sjrogrens fourm etc....
Anyone on here on sjogrens meds? It's been suggested before. Honestly, I am considering it due to intense inflammation of my gums, scalp, joints, etc. Other rheumatic things have been ruled out and I don't have lupus, thyroid, diabetes, etc....just accutainted like many others! I WILL NOT STOP ON THIS JOURNEY.
Updates:
Still doing well on iodine...,smooth skin, joint pain relief, moistened eyes, mouth...but not helping hair loss or scalp inflammation--still have peaks of dry mouth and eyes whenever i come near an anti-androgen but doctors keep prescribing them for my hair loss!! UGH
Glucosamine--need it.
Probiotics --need it...in fact everyone here does.
DHEA---not sure.
Goldenseal--not sure...
Biotin--nails stronger, shit for hair
Green tea extract---energy, metabolism
Going to attempt an alkaline diet slowlllyyy. I suck at diets but i know how important they are for gut health. Any advice would be great! and please do not recommend CLO as it WILL kill me.
Hi moving on I know your real name but I won't tell lol... yeah we are all accutainted some more than others some less but we are all in the same boat if you will , I thought Biotin was good for the hair hmmm.... I guess not , I don't think I'll be trying that then strange thing is my hair seems to be recovering by itself after all these years , I contribute this to a reduction in beer I'll have the odd beer once in a while now that's about it , green tea extract so a more potent form of green tea I guess likely only available at a health food strore I imagine , no question alkaline diets are very good , for most of us we are all too acidic.
I have a pH testing kit , a acidic body is prone too being weak and this can even induce cancer , our bodies need to stay alkaline in order to stay healthy , alkaline really is where it's at , I have noticed making french onion soup my pH level goes way up to a more alkaline state so watching what you eat does work , there is a book called ALKALIZE OR DIE , everyone should read it. You know when I took this drug the doc told me the drug leaves the body in about a month or so after stopping it , yeah right what it really does is change our bodies PERMANENTLY for the worse and that's the real truth. Stick with a alkaline diet moving on you will see great benefits from it trust me.
Anyone on here on sjogrens meds? It's been suggested before. Honestly, I am considering it due to intense inflammation of my gums, scalp, joints, etc. Other rheumatic things have been ruled out and I don't have lupus, thyroid, diabetes, etc....just accutainted like many others! I WILL NOT STOP ON THIS JOURNEY.
Updates:
Still doing well on iodine...,smooth skin, joint pain relief, moistened eyes, mouth...but not helping hair loss or scalp inflammation--still have peaks of dry mouth and eyes whenever i come near an anti-androgen but doctors keep prescribing them for my hair loss!! UGH
Glucosamine--need it.
Probiotics --need it...in fact everyone here does.
DHEA---not sure.
Goldenseal--not sure...
Biotin--nails stronger, shit for hair
Green tea extract---energy, metabolism
Going to attempt an alkaline diet slowlllyyy. I suck at diets but i know how important they are for gut health. Any advice would be great! and please do not recommend CLO as it WILL kill me.
You still seem to be at the very beginning of your journey. I would recommend you to get this book, it is a good intro for somebody like you.
The Immune System Recovery Plan by Susan Blum and Mark Hyman
I just read the book a couple of days ago, there was not a lot of new information in it for me, that is why I returned it to Amazon, but for you it seems like the ideal place to start. The other two books I mentioned in an earlier post are probably a good read for you too, but they are not as well tailored to your situation.
To me it looks like Accutane caused somekind of misguided autoimmune response in your system that you need to control, that's why you got all this inflammation. You really have to take care of the inflammation and step by step calm it down. The book has a systematic approach to how to do it.
Also have your DHEA levels checked, I for example have very high DHEA-S.
Anyone on here on sjogrens meds? It's been suggested before. Honestly, I am considering it due to intense inflammation of my gums, scalp, joints, etc. Other rheumatic things have been ruled out and I don't have lupus, thyroid, diabetes, etc....just accutainted like many others! I WILL NOT STOP ON THIS JOURNEY.
Updates:
Still doing well on iodine...,smooth skin, joint pain relief, moistened eyes, mouth...but not helping hair loss or scalp inflammation--still have peaks of dry mouth and eyes whenever i come near an anti-androgen but doctors keep prescribing them for my hair loss!! UGH
Glucosamine--need it.
Probiotics --need it...in fact everyone here does.
DHEA---not sure.
Goldenseal--not sure...
Biotin--nails stronger, shit for hair
Green tea extract---energy, metabolism
Going to attempt an alkaline diet slowlllyyy. I suck at diets but i know how important they are for gut health. Any advice would be great! and please do not recommend CLO as it WILL kill me.
As far as DMARD's, I've taken Minocycline (actually worked but probably gave me drug-induced lupus for a short period, as well as doctors are moving away from it because of bad side effects), and I've taken Plaquenil. In the name of all that is holy never take that drug. I have no idea if it works or not but you guys think Accutane is bad, try being on that medicine.
All in all as long as whatever you're taking reduces inflammation, you'll be good. You can even just ask for an industrial strength anti-inflammatory and I'm sure they'll give it to you. Just have to be careful what you take and for what period.
I stopped everything at the moment and just have a humidifier in my room, that I also work out of so I'm getting constant exposure. Let me tell you how much my scalp does not lose hair by the clumps anymore and my skin is smooth and not shedding everywhere as well. The humidifier saved my life and it's something really simple and healthy anyone can try if you haven't already.
Good luck.
If dubya b thinks that I'm the problem here then, whatever... I'll spare the economic and philosophical dialogue as to why providing good products and services at good prices to people who need them as well as procuring profits is not a bad thing... Perhaps he would prefer I be silent about my success and let everybody continue to spend $$$ on shit that doesn't work.
Look at my earlier posts and you will see that before I created my website and when I started noticing good effects with the dermatrophin and occulotrophin I implored people to buy Standard Process Products from AMAZON, to see if you guys noticed good effects too.
If you want to buy from them instead of a fellow sufferer, go ahead, just please don't question my morals as if I haven't been in the trenches with everyone else here, desperate for relief for over two years.
Here is an article on glandulars that I have been sharing with a many of the people who have been sending my private messages, asking me details about my recovery and website... Thank you to all who have been messaging me, I hope my responses have been thorough and helpful!
Cheers
[Edited link out]