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Hailey, in all seriousness go to Propeciahelp.com. The discussions there will help you. It's all dudes, so just pretend that you are one too. Peace.
Yes, It can cause neuropathy and also it is listed in the rx information from Roche and Generics that it can cause pernicious anemia or anemia in general. In fact after my course I was found to have 3% iron in my body in which I could of died. I take Iron, Vit B12 (which was found to be low also) folic acid and I take it water and a drink of OJ. However, I have been left with type 1 autoimmune diabetes. My Neuropathy got better over the years and a lot better when my iron, and b12 levels were fixed. If your doc doesn't take you seriously then find a new one or go to the emergency room if needed. I am not saying they will be any better but I sought a slew before I got help and answers.
Have they tested your thyroid, hormones or diabetes???? I hope to god you have stopped Accutane and don't ever take it again!
I am an 18 year old girl. I am about to go into my 3rd month of Accutane. Aside from the horrible cracking and bleeding of my lips, muscle pain, and nosebleeds I have had some other really scary side effects. 6 days into the medication i started having numbness in my hands and feet. i was told that it was not a symptom of Accutane but did some research myself and found that it was. My doctor diagnosed me with pernicious anemia meaning that i no longer had the ability to effectively absorb B12 and that i can no longer produce red blood cells at a normal rate. I have had extreme numbing in my hands and feet and swelling supposedly caused by lack of oxygen to my veins so they couldn't pump the blood properly. Now they are saying that i may have neuropathy. No one seems to know what is going on with me and I'm still hearing from some that it isn't caused by the Accutane (although my doctor is starting to take my complaints more seriously), but i haven't ever had problems like this before. Is anyone else having these problems?
I am an 18 year old girl. I am about to go into my 3rd month of Accutane. Aside from the horrible cracking and bleeding of my lips, muscle pain, and nosebleeds I have had some other really scary side effects. 6 days into the medication i started having numbness in my hands and feet. i was told that it was not a symptom of Accutane but did some research myself and found that it was. My doctor diagnosed me with pernicious anemia meaning that i no longer had the ability to effectively absorb B12 and that i can no longer produce red blood cells at a normal rate. I have had extreme numbing in my hands and feet and swelling supposedly caused by lack of oxygen to my veins so they couldn't pump the blood properly. Now they are saying that i may have neuropathy. No one seems to know what is going on with me and I'm still hearing from some that it isn't caused by the Accutane (although my doctor is starting to take my complaints more seriously), but i haven't ever had problems like this before. Is anyone else having these problems?
Just get off the accutane now, accutane is just hugely toxic amounts of vitamin A given orally. There are a million ways to cure acne with ZERO side effects, if your 3 months in and they are already treating you for secondary problems caused by accutane just stop taking it, it's really as simple as that.
The damage may very well reverse itself if you get off it, ultimately you have to consider your health. The doctor doesn't have to live your life for you, and if they are too stupid to realise it's the accutane thats causing the problem, do you really want someone like that giving you advice?
I slept it off for 7 hours, backed off to 1 blue ice per day, and it was gone. Probably 18 hours total mild discomfort / fatigue, with one night's full sleep instead of polyphasic sleep.
Oh boy, this automatons updates are driving me bonkers. I feel like an orphan desperately trying to maintain consciousness through a b-grade horror movie on Christmas Eve.
I seriously wish i had found this before I started Accutane. I ave already been to a different doctor who is the one getting me actual help. My dermatologist still denies these side effects are from Accutane. I am trying to get into a neurologist but most wont see me because I am not 21 and the pediatric ones wont see me because i turned 18 a week ago. They actually want to send me to one outside the state. If l had any idea Accutane would do this to me I would never have taken it. The only side effects I was told about were dry lips and birth defects. They also told me about depression after i asked because it was on the papers I had to sign. I had been diagnosed with depression before this medication but it was under control until I started it. When i told my dermatologist about it he said that there was no "real" link between depression and Accutane and that I should talk to a therapist. I shouldn't have even been prescribed this medication as my acne was really not that severe. All i can say is that I'm really frustrated and scared. I want answers about what's going on with me but it doesn't seem like they have any.
I seriously wish i had found this before I started Accutane. I ave already been to a different doctor who is the one getting me actual help. My dermatologist still denies these side effects are from Accutane. I am trying to get into a neurologist but most wont see me because I am not 21 and the pediatric ones wont see me because i turned 18 a week ago. They actually want to send me to one outside the state. If l had any idea Accutane would do this to me I would never have taken it. The only side effects I was told about were dry lips and birth defects. They also told me about depression after i asked because it was on the papers I had to sign. I had been diagnosed with depression before this medication but it was under control until I started it. When i told my dermatologist about it he said that there was no "real" link between depression and Accutane and that I should talk to a therapist. I shouldn't have even been prescribed this medication as my acne was really not that severe. All i can say is that I'm really frustrated and scared. I want answers about what's going on with me but it doesn't seem like they have any.
Of course the derm denies everything he is scared of lawyers and lawsuits.
I seriously wish i had found this before I started Accutane. I ave already been to a different doctor who is the one getting me actual help. My dermatologist still denies these side effects are from Accutane. I am trying to get into a neurologist but most wont see me because I am not 21 and the pediatric ones wont see me because i turned 18 a week ago. They actually want to send me to one outside the state. If l had any idea Accutane would do this to me I would never have taken it. The only side effects I was told about were dry lips and birth defects. They also told me about depression after i asked because it was on the papers I had to sign. I had been diagnosed with depression before this medication but it was under control until I started it. When i told my dermatologist about it he said that there was no "real" link between depression and Accutane and that I should talk to a therapist. I shouldn't have even been prescribed this medication as my acne was really not that severe. All i can say is that I'm really frustrated and scared. I want answers about what's going on with me but it doesn't seem like they have any.
Of course the derm denies everything he is scared of lawyers and lawsuits.
He probably should be scared of a lawsuit if he is treating everyone the way he has treated me. He told me he wanted to send me to a neurologist 3 weeks after already releasing my medical records to two of them with out the permission of my guardian (I was still 17 at the time of release). Not that I'm opposed to going to a neurologist or anything because I do want to know whats going on but he shouldn't have released my medical records without consent.
Hailey, please taper off the medication if you haven't begun already.
http://balancedconcepts.net/liver_phases_detox_paths.pdf
This is a good link to showing what nutrients are needed for liver detoxification and how accutane and other pharmaceuticals get broken down in the body, between the liver and the kidneys.
A good multivitamin / mineral without vitamin A is foundational, amino acids and nutrients like NAC, milk thistle and other phtyonutrients help the liver to remove chemicals. Likewise a good kidney formula using natural duiretics like nettle leaf, celery seed etc can help fortify the kidneys. In the uk there is a herbal tea called Pukka, they have both a cleanse and a detox tea that with strengthen the kidneys available in most supermarkets.
As far as multi's go heres one without Vitamin A http://www.healthplus.co.uk/Multi-Vits-n-Mins-Without-Vitamin-A.html
For the amino's you want complete proteins like egg white, meat, fish, something like an egg white powder would contain all the essential amino's, with some rice milk, it actually tastes nice.
Another person with unusual though not unexpected side effects from accutane. And that's just the ones who report it somewhere, even if only on an internet forum.
It is vile how doctors poison people and are simultaneously seen as high status.
Anybody any experience with taurine? Have a full a jar from now foods with taurine powder. Took some yesterday and although I can't pinpoint any side effects, don't feel like taking it. The TMG and Silymarin works really good, make liver/bladder bubbling all day. My skin is doing awesome, the best in years. I suspect that having gone paleo/low carb has had large impact also has made me ripped. Going to eat a lot of carbs for the next three days to see how I react.
I tried taurine briefly. It had a very positive effect at first and then not. Common for me and I think for many with Accutane sides.
I don't see any downside to trying it for as long as you feel comfortable with it.
the tooth cleansing anti-plaque effect also continues
You believe this is due to the yogurt if I recall correctly? That is an interesting effect.
Has anybody found any conclusive test results for endocrine disorders instead of taking supplements and what not? [Edited link out]
According to this rats had an increase in pheochromocytoma ( adrenal tumor ) and medullary adrenal hyperplasia ( enlargement). I know that stuff causes some serious fatigue. If people with acne are predisposed to these adrenal disorders like the rats ( which typically present with severe acne) then I wonder if Accutane can clear up the acne but make the actual disorder worse. Sometimes the only symptom is acne. Then sometimes, people get away symptom free from Accutane, which leads me to believe their acne was more dietary or allergen related and they had stronger endocrine organs.
Also, it is not easy to get diagnosed properly unless you find an absolute specialist...but it is possible. Took me two years to get my parathyroid diagnosis. Now I am suspected of SOME type of adrenal disorder. I am wondering if most of us are prone to these hereditary tumor syndromes and present with acne and such as one of the first symptoms. Then you take Accutane and sometimes knock out the acne but become far worse.
5 - healthy overglow translates into social charisma.
Joseph, you smashed it this time, my little polyphasic chameleon. I just know that this is going to stick, this time. Youve been a bathing beauty at the bottom of the well, for way too long. I wanted to get in before anyone else to congratulate you; it couldnt have happened to a nicer fellow. You need a name for level 6 dude.
Has anybody found any conclusive test results for endocrine disorders instead of taking supplements and what not? http://www.roche-australia.com/fmfiles/re7229005/downloads/retinoids/roaccutane-pi.pdf
According to this rats had an increase in pheochromocytoma ( adrenal tumor ) and medullary adrenal hyperplasia ( enlargement). I know that stuff causes some serious fatigue. If people with acne are predisposed to these adrenal disorders like the rats ( which typically present with severe acne) then I wonder if Accutane can clear up the acne but make the actual disorder worse. Sometimes the only symptom is acne. Then sometimes, people get away symptom free from Accutane, which leads me to believe their acne was more dietary or allergen related and they had stronger endocrine organs.
Also, it is not easy to get diagnosed properly unless you find an absolute specialist...but it is possible. Took me two years to get my parathyroid diagnosis. Now I am suspected of SOME type of adrenal disorder. I am wondering if most of us are prone to these hereditary tumor syndromes and present with acne and such as one of the first symptoms. Then you take Accutane and sometimes knock out the acne but become far worse.
Strange, as I was suspected of having both pheochromocytoma and adrenal hyperplasia after having cortisol, DHEA-S, and epinephrine come back as high in blood test results. I have been in a nearly constant state of anxiety since Accutane also. Further testing revealing I had neither condition though.
Many victims of Accutane who post on the All-Things Male forum have mentioned having over-the top high DHEA-S, which is a sign of adrenal hyperplasia or an overactive adrenal gland. Accutane has also been shown in clinical studies to elevate DHEA-S.
What does high DHEA-S mean, mine is very close to the upper limit of the reference spectrum. My doc was like, you are probably supplementing DHEA, I was like no...
High DHEA can be a marker for some types of adrenal hyperplasia or adrenal tumors ( sometimes pituitary tumors) and if it's adrenal hyperplasia it's more than likely the non classical type ( meaning you weren't born with it as the classic type is VERY dangerous, but you have a benign type developed later in life).
Sometimes the only manifestations ARE severe acne and infertility ( and those androgens play a big part in that, and sometimes excessive body hair growth). It is often mistaken for PCOS in women but usually it is not. I hate to tell you this, but only absolute specialists are good at diagnosing these things. Trust me; I've been to over 20 doctors, diagnosed myself and my mother successfully ( after they FINALLY realized my labs were serious biznizz with the first thing I had, and believe me, but most doctors are truly idiots) and we believe my acne is androgen related and I have one more specialist to go to this summer before I save Accutane as an absolute last resort if finding out THIS is the cause to my acne.
In my experience, acne is cause by the adrenal glands overreacting in some way to some sort of stimulation..perhaps why doctors believe acne is a genetic condition, because these adrenal issues are ALL genetic. After all, it releases all the wonderful androgens we use. When I had what's called a cosyntropin stimulation test ( you stimulate the pituitary with ACTH, a hormone the pituitary makes that stimulates the adrenals to make cortisol ) a hormone called OH-17 pregnenolone in my blood came out to be 1260 when the reference range stops at at <200 and I should have suppressed that hormone. I also flushed a bit red from this. This hormone is the 'midway' hormone that is instead dumping out in the adrenal pathways instead of successfully converting to cortisol, because we convert cholesterol through a step by step process all the way to cortisol. Except it seems I'm not successfully converting. So I either have a tumor secreting too much of something or I have adrenal hyperplasia.
If your doctor is telling you that you are supplementing with DHEA and you are really not, he is an idiot and obviously is not wanting to treat you. This is not uncommon in doctors that don't see this. You need to have further lab tests done and possibly find another doctor. I have NEVER had luck with endocrinologists; only surgeons and internal medicine doctors. Endocrinologists ( ironically ) only seem to see diabetes patients. I guess the danger here is if any of you were prone to the genetic problem of adrenal pathway issues ( read up more on it, it's a lot of shit honestly ) then that's why you had acne, and Accutane likely made it worse by inducing worse adrenal hyperplasia. Which is why I'm trying to be patient and see why I have acne instead of hitting the Tane yet.
Edit: Let me also add that I believe some people get away with Accutane side effects because their acne was dietary and not really "genetic." It could be that because of this, they had no underlying condition that they could worsen by taking Tane, so it's possible they didn't feel it as harshly. This is just theory though like anything else. But I deeply feel it makes some sense. I will admit that some people do clear up on diet..that just wasn't me. That's probably because whatever genetic condition it is causing the acne. I'm sorry whoever here was damaged by Accutane and truly hope you get the correct diagnosis you need...it can be an uphill battle, but it was worth it in the end for me.