Acne.org Products
Well I just ordered some NAC, TMG/Betaine, Milk Thistle and Choline Bitrate/Phosphatidylcholine at bulkpowders.co.uk, all this stuff is supposed to help the liver, I ordered 100g of each just to try, have not ordered there before, but the prices are incredible, however can't say nothing about the quality or anything. If anyone else wants to try the site feel free to use my coupon code (FH81989) to get a discount over 5 pounds on your next order.
Now that stuff makes sense, i was going to order from there myself, thank you very much for the coupon code. Have you tried udo's choice oil? thats one supp that i'm really liking right now. Let me know how that goes, your taking udca as well right?
I cannot believe what a waste of time this forum is now. It has dissolved into useless information poor recommendations by half wits and now spam. For those who think they have a bunch of supplements is going to undo the damage- wake up, use your brain (for once) and realise the damage from accutane is irreversible- that is jf you are actually suffering from real side effects.
Some of the garbage being written on here is truly laughable, like watching mice in a maze.
anyone having sexual dysfunction has "post finasteride syndrome" I was just diagnosed by a top doctor at Johns Hopkins. Not sure where to go from here but rick simpson oil looks promising if it is made properly
What did he diagnosis you with? Just sexual dysfunction? Did he give you a reason?
>anyone having sexual dysfunction has "post finasteride syndrome" I was just diagnosed by a top doctor at Johns Hopkins. Not sure where to go from here but rick simpson oil looks promising if it is made pr
operly
What did he diagnosis you with? Just sexual dysfunction? Did he give you a reason?
Sdro123 I am not home yet, buy holy shit! Where did you run across that! I'll have too look into it when I get back lol! Got me curious on who this physician is and uhh I don't remember his name in the past!
He just confirmed that sexual dysfunction caused by accutane is post finasteride syndrome because they are both 5 alpha reductase inhibitors
This is VERY interesting. Thanks for sharing this with us this acne1776!
Did your doctor surmise this based on his own knowledge and experience, or did you have to "educate" him before he reached this conclusion?
This is fantastic news for us if some in the medical community have linked the similarities between Accutane-induced sexual dysfunction and PFS on their own.
I didn't have to educate him on accutane he seemed to know all about it as a 5 alpha reductase inhibitor. He's the first guy i've seen thats known his stuff and he was convinced i have PFS from accutane
I cannot believe what a waste of time this forum is now. It has dissolved into useless information poor recommendations by half wits and now spam. For those who think they have a bunch of supplements is going to undo the damage- wake up, use your brain (for once) and realise the damage from accutane is irreversible- that is jf you are actually suffering from real side effects.
Some of the garbage being written on here is truly laughable, like watching mice in a maze.
So what are you saying, we should all just mope around being morbid and saying how terrible everything is?
I'm saying the conversations are futile and posts have degraded into a pissing contest.
I'm saying that if you continue to suffer after taking this drug that is it-you will continue to suffer.
In my opinion those who delude themselves into thinking that there is some way they will one day recover are in denial- it's time to wake up and smell the 3 thousand useless posts on this thread. Nobody who suffers from real tangible side recover. End of story.
You'll never get to walk to the moon with that attitude! 
And being a half-wit is just a side effect of accutane. Don't judge us for it!
There's four ways to deal with it.
1. Manage it.
2. Cure it.
3. Live with it.
4. Die with it.
And depending on which one you pick, you'll probably conflict with your methodology with the other three.
I have read some stories of people being cured... but most are really just managing the symptoms. The only permanent cures I've heard are from 30 day water fasting. I've got it on my list.... but it's a brutal (and depending on your health, dangerous) fast. Tried three days once and ouch. Suppose to force everything to 'reboot' as well as giving everything a chance to completely detox and heal. Probably good to have the betonite clay and iodine ready for that one.
To me, being mentally crippled by accutane... the fight is important. Even if I don't win.
I don't want to walk on the moon I just want my hair to grow like a normal human and my skin to function like skin should but that's not gonna happen because the truth is once the damage is done that's it.
Once you pour milk in your coffee try extracting it tell me how that goes for you.
I don't want to walk on the moon I just want my hair to grow like a normal human and my skin to function like skin should but that's not gonna happen because the truth is once the damage is done that's it.
Once you pour milk in your coffee try extracting it tell me how that goes for you.
Indeed, I am glad you said that. I would have definitely been charged with inappropriate use of milk and coffee. Areola/Gladiola and her underlings are still in a rambunctious state over the same handful of supplements they were giddy over 12 months ago. And, both sexes have areolas so dont level accusations at me.
I guess all the donations that I was hoping to induce into real research will remain what they were always destined to remain: medicinal cannabis money that will be used to treat this syndrome at NIN concerts.
Silly defeatism from Livetoregret, going on my block list.
I wanted my bowels to function properly; now I form perfect stool. I wanted to be healthy enough to work and live my life, instead of being a bedridden invalid if I was lucky, toiletridden if I wasn't. Now I'm into my second month of a fast paced, demanding, intellectually stimulating job, and it's only getting easier.
Having moments of personal bleakness is acceptable. Trying to bring everyone else down to your level at those moments is not.
Lol. This is what happens when someone is raised by feminists. Explains so much.
WHile I have no opinion on Saw Palmetto,
I am also waiting for charges to be laid here. I am assuming they are being processed and will be forthcoming soon. No one impugns feminism or the job it did on me and gets away with it. The word job carries no-sexual connotations. And, of course, he won't be drawn to comment on saw palmetto; it would mean that the failed Messiah would lose even more of his adherents.
Well sorry if being able to take a shit and contribute to the economy isnt enough for me to feel content with my health or deal with my own personal nightmare day to day.
Fact is some of us will never feel improvement as these effects do not subside for some and nothing we put into or put our bodies through is going to bring us back to baseline.
I do believe that accutane can be cured. One day. And it'll probably be because of the evidence obtained and tested by the average person.
Spam on the other hand, that crap will follow you to hell.
Well sorry if being able to take a shit and contribute to the economy isnt enough for me to feel content with my health or deal with my own personal nightmare day to day.
Fact is some of us will never feel improvement as these effects do not subside for some and nothing we put into or put our bodies through is going to bring us back to baseline.
Livetoregret, you should have a look at the weed wackers blog. To be clear; he is an irresolute weed wacker, because he refuses to eat a vegetable. He may also get freaky when hes medicating himself with medicinal cannabis (it wouldnt surprise me). It took him about 7 years to join the dots on the Accutane sides. That pretty much says it all vis-a-vis the severity of his sides. This is also why he is happy to condone the use of antiandrogens, to desperate people. He is happy to inhale some weed, but, he will be damned, if he has to eat one. It's scallops all the way.
I took accutane and my nose looks like rudolph the red nosed reindeer. My derm put me on Metrogel. I'm not reading 164 pages. Do I have hope? I got put on metrogel .75 3 weeks ago. Does anyone have anything for a really red nose, lol. My complexion is a mix of pefect skin, red dots and a red nose. The metrogel has made me very white and my nose not at all. Post accutane pitted scars haven't helped me as well. Any thoughts would be much appreciated.
I honstely feel like in some spots of my face, my pores shrunk and left red marks, specially my nosel Any info would be a blessing
I have talked to people who used to be posting on this thread who prefered to do their own thing because they felt like there are too many people with negative attitudes on here. And yes supplements can work.
I'm saying the conversations are futile and posts have degraded into a pissing contest.
I'm saying that if you continue to suffer after taking this drug that is it-you will continue to suffer.
In my opinion those who delude themselves into thinking that there is some way they will one day recover are in denial- it's time to wake up and smell the 3 thousand useless posts on this thread. Nobody who suffers from real tangible side recover. End of story.
I cured my hairloss. Haven't cured the skin condition and obviously the scarring will never go away, but if i can stop the skin condition, then i'll do anything to do so. You say your skin is unbelievably dry, mine is too, i'm taking udo's choice oil at the moment and my sebum is back, hasn't been this way for years. I understand how you feel, but you either get back on the horse, or just give up, the latter isn't very appealing.
Re: MSM
Mode: Capsules, not powder. The powder is too bitter.
Dose: 1-2 per day. 1000mg each
I'm fairly senstive to almost everything, so use your judgment and increase the dosage if you need to. You have to find what works for you.
I've found it only takes a few days to notice something, mainly digestive and bowel improvement. This leads to a mild increase in energy.
After a couple weeks on it I notice it buys me about a day of being able to mess up my diet in small ways.
The little reported fact with MSM is its repair of mucousal linings such as with the stomach and intestines. Crucial for the conditions related to accutane sides.
The best supplements are often dirt cheap and effective for multiple conditions. The rest is sales marketing bullshit, agreed.
Much appreciated Lukez. I've got MSM in tablet form on the way already 
Not sure if it's also covered, but many suffers will also have systemic candida (as I do... male or female are prone). I attempted to deal with it head on, but that's not the way. Candida is a natural part of the body (yeast) which helps with toxins and breakdown of other harmful substances. It often occurs when one has a weakened digestion either from lack of flora (probiotics), lack of bile flow and/or toxicity levels. While it has many side effects when it gets out of control (brain fog, weakness to skin infections and other yeast infections etc) it is ultimately trying to help as well (clear out toxins).
Just increase your probiotics and focus on your digestion... don't attack it head on with Candida clearing drugs. Bile is actually the number one natural method of Candida maintenance.
Also...
[Edited link out]
With a number of accutane suffers, you may have the consequences of increased phosphorus in your blood. Which may also explain why certain people benefit greatly from Vitamin D (which assists in the balance of phosphorus and calcium in the body). Just keep increasing Vit D dosage until you begin to notice benefits (google a dose good for you... anywhere between 3000UI and 10000UI per day is pretty standard for vit d deficient patients).
Ultimately in this case, it is a deficiency with Vit D. Which leads to poor skin, brittle bones/ligaments, lose of hair etc etc. An imbalance of phosphorus also causes mood swings.
Of course, like the wonder drug accutane is, and it's amazing skill of disabling the body of digesting things we need to heal, you may need to focus on digestion/liver to properly utilize the vitamins.
Like everyone else, I'm trying different methods and will report any benefits/failings as they appear.
I have access to MSM powder here so I'll just give it a try as well. Milk mitigates the bitterness btw. One teaspoon in a glass of milk and I barely notice it. Just tastes less sweet .
Concerning candida etc.: I think it's not the problem. This is purely anecdotal but I have an imbalanced gut flora, no candida overgrowth though, and most symptoms subside for a while after bile flow stimulation for example via coffee. I would agree with the point that maintaining proper bile flow will regulate gut flora on its own.
It's a complex topic and my accutainted brain struggles to keep track. Sometimes I'm in doubt where to start. Hormones, organs, everything is interconnected. Treat the liver? Or treat the thyroid and the liver will heal itself? Or treat the brain and the thyroid will heal itself? Or treat on all levels simultaneously and hope for the best? I really don't know... seems the focus is on the liver for now.
Apart from DHT inbition, liver toxicity seems to be the strongest culprit. As far as I read through the posts and science, the exact liver toxic mechanism is not known? Also, no one on this thead has a proper diagnosis showing liver damage? MRI etc.? I personally had moderately elevated liver enzymes in the past which are now very low again, but haven't had ultrasound or more yet. Wouldn't it be helpful if a few of us had their liver thoroughly scanned or even a biopsy? We might get to a point where we are able to connect the dots ourselves (although it's a bit naive I admit) instead of waiting for the research to happen. At least the result would show if it's safe to take UCDA.
I just think the trial and error thing isn't the optimal approach, surely the damage can be diagnosed properly... even if it takes some acting to get the doctors do the tests 
.
I'm on UDCA now, which I believe messes with the results of liver tests?
Otherwise, I'd be happy to get the usual liver tests. If UDCA doesn't work for me, I'll get them done at some point anyway
A thyroid test done a few years back came up as normal and HDLs were very low (good cholesterol). Not sure if that means anything.
Still, I'll aim at a liver test in the near future.
On 6/24/2013 at 10:22 AM, sasquire said:I'm on UDCA now, which I believe messes with the results of liver tests?
Otherwise, I'd be happy to get the usual liver tests. If UDCA doesn't work for me, I'll get them done at some point anyway [Edited image out]
Sasquire, that is the reason why you should get your liver checked now. Even if you do have cholestasis (blockage) , doctor guidance is a must.