Acne.org Products
On 6/24/2013 at 11:16 AM, camaroz28 said:On 6/24/2013 at 10:22 AM, sasquire said:I'm on UDCA now, which I believe messes with the results of liver tests?
Otherwise, I'd be happy to get the usual liver tests. If UDCA doesn't work for me, I'll get them done at some point anyway [Edited image out]
Sasquire, that is the reason why you should get your liver checked now. Even if you do have cholestasis (blockage) , doctor guidance is a must.
From experience, doctors tend to make the same fault as most people, they try and manage the symptoms, and not cure them. However, despite my distrust, it can't hurt to have an opinion other then my own 
We know a doctor more willing to listen to different things so it is something I'll take up.
Who knows... I might get a prescription for UDCA then, and not have to empty my bank account every-time I order it 
Got a nasty head cold going around at the mo which is disabling my ability to know if any of these news tablets are doing anything XD.
Again, how much are you paying for UDCA? Is there somehow a difference in price between whether it's prescribed or not?
I cannot recommend Dr. Ohhira's probiotic for those with sensitive stomachs. I had a short and somewhat sharp reaction centered around the pill.
Supposedly this will resolve in a couple of days, but if it doesn't, I'll have lost nearly a week. Screw that. I'll just toss it and try a less gastrically challenging probiotic.
I've taken one more pill this morning, which I expect to resolve itself by 7am tomorrow. If the reaction severity drops, I might consider continuing.
This supports my theory that the improvement in my condition is merely the result of a more correct and rigorously adhered-to coping regimen, rather than any permanent damage reversal. Which is interesting in itself.
I'm in Aussieland which means prescription drugs are much cheaper.
At the mo, I've been ordering my TUDCA/UDCA from America, averaging around $50-$60 per bottle (60 tablets, 250mg). So, yeah. Expensive as hell, especially when I have to try 1g to 2g a day However, if any of it works, it's worth it.
Only thing that's good is I'm confident it's legit as I understand many stores aren't with their UDCA.
Currently using Premium Powders TUDCA and also have some Aegis in the mail to try that also. Worth trying a few brands I'm sure to see which is most potent.
I am currently heavily researching new avenues to speed up the progress. To me one of the critical words to understand in the process of regaining our health is in my eyes the word "methylation". Check out the following link/article. It seems like I am for example an under-methylator, I say this because my reactions to the supplements mentioned in the article are very positive. Many of the supplements in the article/link have been talked about on here as being able to improve our health: zinc, TMG, MSM, Epsom, B6 (which is really critical to me for sleep and recovery, I don't supplement it but get it from my food). Some people don't experience the same benefits from these supplements maybe these people are over-methylators. Check the link to find out more.
[Edited link out]
I am very sorry to hear about your health problems. I know it must be awful. You feel like no one believes you and no one cares. I have been there before. Not because of Accutane but other health conditions. I really hope you start feeling better.
I did wonder something though. It seems like people will literally blame every health problem they face on Accutane. Even if they took it 20 years ago. As we age we will all start to suffer from health problems even if we took Accutane or not. Don't you think maybe it's just part of life and not specifically the fault of Accutane?
I am not saying that Accutane isn't the cause of some of your problems but all? I think people just jump to conclusions.
I know that all sounds really mean but I just didn't know how else to put it. Years before I started taking the drug I had a constant migraine that I thought was going to be the death of me. Six months I laid in bed while doctors tried to figure out what was wrong with me. They never did. It just went away one day.
I guarantee you that if I had taken Accutane before that happened I would have blamed it on the drug no doubt.
For me, I only focus on the symptoms that occurred during or immediately after I was taking accutane.
And even then, I only focus on the ones that bother me the most... I almost completely ignore my dry skin and psoriasis. 
I want my brain back. And to do that, I need to be able to digest nutrients again that my body at this time can't. So I'm working on the liver and digestion.
From accutane users, there's usually a general consensus on the damage as we've all got similar symptoms. And a good way of looking at it... some of the symtpons may not be accutane. Say my psoriasis may be another problem. But the damage done by accutane disables my bodies ability to deal with this problem, even though they are unrelated.
Accutane suffers struggle to heal in specific areas. Regardless if the original source.
I take Biotics iodine, 3 drops morning, afternoon, and night. The RDA is 150mcg, which is disgustingly low, so I up it to where my body feels good. I would start very low though with the RDA of 150mcg, and see how your body feels...I do not recommend it if you have apparent autoimmune thyroid and are already on some type of thyroid meds. I'm going based off of ME, someone who was found to have an alright thyroid...yet as soon as I started taking the iodine my eyes had moisture, my spine and legs felt free and loose, and my skin started glowing and ceased itching. Been the same for 3 weeks now. I'm loving it. Not a cure, but definitely makes life enjoyable for me again. HUGE improvement. that and lithium orotate have been setting me on the right track. Good mood, and good body. Gluten free helps digestion as well, but this girl SUCKS at maintaining it.
Been using some Kelp Iodine (not sure if it's of equal effectiveness) but my dose has been too low. Will up it and see the effects. Thanks
Just started taking Lithium Orotate myself, 25mg a day. Same dosage as yourself?
Whoops. I mean , 5mg of Orotate Lithium. 25mg and I might be smelling colours.
btw all of your feedback has been so helpful to me. It's interesting to see what everyone is trying and what has worked and what hasn't. Let's keep the focus positive and solution-focused. If it doesn't work for you, don't bash it if it works for someone else. I will get "street" on you if this happens and I will attack your character. I don't play nice, especially when attacked. With that said, I appreciate your feedback hahaha
Hey guys! First of all I'm very sorry to hear Accutane had terrible side effects on all of you. Wish none of you had to go through any of this!
I'm here for an advice, because I'm at the point where Accutane is the last option and nothing really helps my persistent cyctic acne.
Though somehow I feel I would be the one to suffer the consequences from this medication and I'm terrified to take it. Do you think it's possible to foresee if it's gonna happen to me? Maybe some of you, who had been damaged, would recognize these characteristics:
- My skin is dry - the whole body, especially face, back and legs
- I was taking vitamin A supplements and I highly suspect it significantly increased my scarring;
- Hair is falling out massively every time the season changes, very weak and dry as well;
- I need to use lip balsam 24/7 cause my lips get chapped instantly without it;
- Week nerve system.
Did some of you had similar characteristics, took Accutane and had side effects? Do you think they would be even worse if I'm on Accutane?
short answer, yes. I had dryer skin to begin with. very thin skin. accutane made all of these things worse 10 fold. My advice would be to NOT take that drug. there are other ways to control acne.
honestly it's getting quite frustrating people coming onto this forum and asking this question. read the title.
Hey guys! First of all I'm very sorry to hear Accutane had terrible side effects on all of you. Wish none of you had to go through any of this!
I'm here for an advice, because I'm at the point where Accutane is the last option and nothing really helps my persistent cyctic acne.
Though somehow I feel I would be the one to suffer the consequences from this medication and I'm terrified to take it. Do you think it's possible to foresee if it's gonna happen to me? Maybe some of you, who had been damaged, would recognize these characteristics:
- My skin is dry - the whole body, especially face, back and legs
- I was taking vitamin A supplements and I highly suspect it significantly increased my scarring;
- Hair is falling out massively every time the season changes, very weak and dry as well;
- I need to use lip balsam 24/7 cause my lips get chapped instantly without it;
- Week nerve system.
Did some of you had similar characteristics, took Accutane and had side effects? Do you think they would be even worse if I'm on Accutane?
No I had no similar characteristics before I took Accutane or any of the issues I live with since Accutane. Was a very healthy 32yr old! Yes Accutane will make your existing issue worse! It would NOT be wise in anyway that you ingest Accutane!
Have you had hormones checked? How about your thyroid? You say you have cystic acne are they cyst the color of your skin like sebaceous cysts??? What have you tried for your acne?
Many of the issues you list are things that people who never had these issues suffer with due to Accutane!
Great site, which is also delivering solid hands on info with regards to supplementation (NAC, milk thistle etc.) which is backed up by research. This guy took accutane as well.
[Edited link out]
Alright, I am glad to see that things have calmed down a bit on this thread! If you want to debate or attack each other then do it here!
The link was designed for debates and attacks between pro Accutane users and suffers. Hard to believe I am suggesting it for suffers!
Indigo didn't create this thread for us to attack each other, New suffers are going to be scared off and not even bother! Don't like what someone says use your block feature or report button!
Hey guys! First of all I'm very sorry to hear Accutane had terrible side effects on all of you. Wish none of you had to go through any of this!
I'm here for an advice, because I'm at the point where Accutane is the last option and nothing really helps my persistent cyctic acne.
Though somehow I feel I would be the one to suffer the consequences from this medication and I'm terrified to take it. Do you think it's possible to foresee if it's gonna happen to me? Maybe some of you, who had been damaged, would recognize these characteristics:
- My skin is dry - the whole body, especially face, back and legs
- I was taking vitamin A supplements and I highly suspect it significantly increased my scarring;
- Hair is falling out massively every time the season changes, very weak and dry as well;
- I need to use lip balsam 24/7 cause my lips get chapped instantly without it;
- Week nerve system.
Did some of you had similar characteristics, took Accutane and had side effects? Do you think they would be even worse if I'm on Accutane?
No I had no similar characteristics before I took Accutane or any of the issues I live with since Accutane. Was a very healthy 32yr old! Yes Accutane will make your existing issue worse! It would NOT be wise in anyway that you ingest Accutane!
Have you had hormones checked? How about your thyroid? You say you have cystic acne are they cyst the color of your skin like sebaceous cysts??? What have you tried for your acne?
Many of the issues you list are things that people who never had these issues suffer with due to Accutane!
Thanks a lot for your answer, oli girl! <3
Yup, when I read through this thread and the side effects people get, it feels like I'm already on Accutane! That's so weird...
My thyroid is relatively ok, it was processing too little hormones at some time, but my doctor said it's not enough to put me on any medication. I have PCOS and were taking Diane35 + Androcur for a while now, but recently started feeling some pain in my legs (both mom and granny have vein thrombosis on their legs, so I guess I'll have to terminate my treatment... Which is a pity, because 4 months weren't enough to show any improvement on my skin).
Other than that, I went through 3 minocycline courses (which messed my digestion up), serious topicals like Skinoren, Duac and retinoids. I'm thinking to start the acne.org regimen, but my skin is so terribly dry the thought of applying BP on it makes me ache.
On the top of that, I tried to experiment with diets, but basically I'm not sensitive to neither gluten nor dairy.
The cysts are red and painful, recently started leaving deep scars. That's why I'm considering Accutane. My skin was never scarring that badly as it does now, so I need to somehow prevent new cysts...
It's terrible that it had such an effect on you who didn't have issues with dry skin before Accutane! I can only imagine what it would do to me... I would probably have open bleeding wounds from it...
On 6/26/2013 at 1:43 AM, Pianina said:On 6/25/2013 at 10:33 PM, oli girl said:On 6/25/2013 at 8:32 PM, Pianina said:Hey guys! First of all I'm very sorry to hear Accutane had terrible side effects on all of you. Wish none of you had to go through any of this!
I'm here for an advice, because I'm at the point where Accutane is the last option and nothing really helps my persistent cyctic acne.
Though somehow I feel I would be the one to suffer the consequences from this medication and I'm terrified to take it. Do you think it's possible to foresee if it's gonna happen to me? Maybe some of you, who had been damaged, would recognize these characteristics:
- My skin is dry - the whole body, especially face, back and legs
- I was taking vitamin A supplements and I highly suspect it significantly increased my scarring;
- Hair is falling out massively every time the season changes, very weak and dry as well;
- I need to use lip balsam 24/7 cause my lips get chapped instantly without it;
- Week nerve system.
Did some of you had similar characteristics, took Accutane and had side effects? Do you think they would be even worse if I'm on Accutane?
No I had no similar characteristics before I took Accutane or any of the issues I live with since Accutane. Was a very healthy 32yr old! Yes Accutane will make your existing issue worse! It would NOT be wise in anyway that you ingest Accutane!
Have you had hormones checked? How about your thyroid? You say you have cystic acne are they cyst the color of your skin like sebaceous cysts??? What have you tried for your acne?
Many of the issues you list are things that people who never had these issues suffer with due to Accutane!
Thanks a lot for your answer, oli girl! <3
Yup, when I read through this thread and the side effects people get, it feels like I'm already on Accutane! That's so weird...
My thyroid is relatively ok, it was processing too little hormones at some time, but my doctor said it's not enough to put me on any medication. I have PCOS and were taking Diane35 + Androcur for a while now, but recently started feeling some pain in my legs (both mom and granny have vein thrombosis on their legs, so I guess I'll have to terminate my treatment... Which is a pity, because 4 months weren't enough to show any improvement on my skin).
Other than that, I went through 3 minocycline courses (which messed my digestion up), serious topicals like Skinoren, Duac and retinoids. I'm thinking to start the acne.org regimen, but my skin is so terribly dry the thought of applying BP on it makes me ache.
On the top of that, I tried to experiment with diets, but basically I'm not sensitive to neither gluten nor dairy.
The cysts are red and painful, recently started leaving deep scars. That's why I'm considering Accutane. My skin was never scarring that badly as it does now, so I need to somehow prevent new cysts...
It's terrible that it had such an effect on you who didn't have issues with dry skin before Accutane! I can only imagine what it would do to me... I would probably have open bleeding wounds from it...
If you already went on a couple of minocyline cycles I would not recommend you to try Tane. Check the following link
[Edited link out]
Your system is already out of wack from the minocyclin, if your body was not able to recover properly from mimo, tane will add to that and it is not going to be pretty long term, trust me. I had a friend who took both and he is a wreck.
Though somehow I feel I would be the one to suffer the consequences from this medication and I'm terrified to take it. Do you think it's possible to foresee if it's gonna happen to me? Maybe
Pianina, we appreciate your concerns, but no one can rigorously foretell what will happen with Accutane, or, even seemingly lower-ranking treatment modalities, for that matter. I say, this because he even low-dose vitamin A consumption is very dangerous with duration. You may also want to try herbal antiandrogens (saw palmetto, stinging nettle, etc.), but given that long-term supplementation is required, danger is abound. I love the pretty flowers (are they Dendrobium?); we are all quite enamored with Gladiolus here.
Sorry, I see i made a mistake coming here and asking... thanks for the answer though... Others can ignore my post.
Don't take it too much too heart Accutane suffers have alot on their plate, which usually includes a short temper.
There's always some young teenager as well who pops onto a forum here and there, has a few minor pimples in odd spots, and says they're jumping on accutane and they don't care about the consequences. In can make your nerves (those that are left functioning!) go raw.
In the case on cystic acne, I can understand your desperation. Will accutane help with that? Most likely it will. Will it have consequences? Yes, but we can't say how severe at this time. As you're already showing certain symptoms, I would hazard a guess that you are actually more vulnerable to such damage. I know cystic acne is really horrible to have but the cost of using accutane isn't worth it. If you eventually do, you can negate alot of the consequences by taking supps/drugs that protect your liver. UDCA is the best, but cheaper alternatives like NAC, Liv.52 and milk thistle can help. There's quite a few threads of people taking supps to offset accutane damage, but in the end, can't protect yourself 100% from them all because no one really knows how accutane damages us, we're doing alot of guesswork here.
However, Accutane is also considered a neurotoxin that can damage your serotonin receptors. Not sure if protecting your liver can save your from this? Basically means you can have life long mood swings which are just horrible. It all varies from person to person, perhaps reflecting any genetic weaknesses we may already have?
Checking this thread is probably a great idea though as whatever works for an accutane suffer to help with dry skin etc is going to work much more effectively on you who doesn't have the same internal damage. Keep your Vitamin D up high as this will keep your skin more flexible/healthier and will definitely help in avoiding that damage from cystic acne, even if it doesn't stop its intensity (though it should help a little, even with that).
What works for one person, may not work for you, so don't let your hopes get smashed with each experiment you try. I'd go to the curezone website and try a few of the methods they recommend. Organic Cider Vinegar is very potent on Cystic Acne (if I recall, cystic acne can actually have different causes than normal acne as well)... and I personally have a friend who had massive cystic acne (and got alot of damage from it) and got rid of it eventually using organic cider vinegar.
Good luck.