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Accutane and Erectile Dysfunction

 
MemberMember
2
(@babis)

Posted : 06/07/2014 7:56 pm

Some fellas say there needs to be some scientific backing in those claims. Here they are:

One hundred and twenty cases of enduring sexual dysfunction following treatment [isotretinoin, finasteride, SSRI]

The International Journal of Risk and Safety in Medicine, Volume 26, Number 2 / 2014, Pages 109-116

[removed]

Abstract: There have been reports for over a decade linking serotonin reuptake inhibitors, finasteride and isotretinoin with enduring sexual dysfunction after treatment stops. OBJECTIVE: To explore the clinical pictures linked to all 3 drugs. METHODS: We have selected 120 reports to RxISK.org reporting the problem and mined these for data on age, gender, drug of use, and impact of the problem. RESULTS: The data make it clear that the three drugs show extensive overlap in symptom profile, regardless of sex or country of origin. CONCLUSIONS: The availability of 120 reports from over 20 countries add to the case for the validity of the syndrome. This is severe and enduring condition can result in death. An understanding of its physiology and an approach to treatment are needed.

On 7/4/2010 at 8:25 PM, NewEra said:

That is absolutely rediculas to suggest that accutane can be linked directly to you experiencing this condition. People on here who blaim all these phantom illness's on acctuane need to realise, a certain percentage of people in this world develop specific conditions, that's just how life is.

Do you ever think there are alot of people on here who are strung between using accutane as a last resort or potentially harming themselves. They don't need to be hearing all these horror storys which have no medical backing.

ED is something which has a lot to do with how your mind is working, if you believe its going to happen it always will happen, you need to try and totally forget about it. When you were on acctuane, anything that went wrong with your body you would have immediately blamed on the drug, whats to say that wasnt just going to happen to your body anyway?

There needs to be some kind of medical backing to these claims or people are going to be scared for no acceptable reason

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MemberMember
21
(@pathtorecovery91)

Posted : 01/03/2015 10:18 pm

Antisexaccutane,I could write a novel on my past 10 years experience involving Accutane, but I'll try to keep it as short as possible. I started feeling my side effects about a year after taking Accutane. My side effects got increasingly worse up to years 3-5 post Accutane. At this point I had a list of side effects I had never experienced before in my life. Sexually, I could barely keep an erection even during masturbation. Getting hard ons from just looking or thinking about girls was a thing of the past. My orgasms became increasingly less satisfying. My ejaculate went from being strong, thick, and creamy to basically a water like substance. My urination problems were also during this time. I never had any pain or urinary tract infections, but my urine stream was about 20% of what it used to be. Also, when I was done urinating I would have to stand at the toilet for a couple of minutes to let the final drops of pee drip from my penis. In addition to this I also had insomnia. I swear there were weeks when I could only sleep about 20 hours despite being incredibly tired. My hair was falling out at a rapid rate. I had many nosebleeds. I became sensitive to the sun. Every time I went out into the sun a rash appeared on the inside of my elbow. Maybe the worst of my problems were joint, muscle, and back pain. I could probably think of other problems I had, but these were the worst. All of this led to depression to the point where I didn't care if I lived or not. During years 3-5 post Accutane I tried a couple things to heal myself. I went to my doctor and told him about my struggles. He put me on an anti depressant (Lexapro) which made things even worse. I then went to a naturopathic doctor. She put me on many supplements and remedies. This was very expensive because insurance doesn't cover naturopaths, and the healing I received from this was definite but minimal. Then, about 5 years post Accutane I discovered fasting.I tried a 35 day all water fast. I felt significantly better after this. I was not cured, but my side effects had improved a lot. I have done a total of 3 of these fasts in years 5-10 post Accutane. Every time my side effects got better. This is where I got my 75-80% health back. Fasting is not an instant cure, but it speeds up your body's recovery. It is difficult to do, but not as impossible as it sounds. The hardest part for me is finding the time to do it. If you even consider doing this I'm sure you will have many questions. I will try to answer questions you have, but there is an ABUNDANT amount of information on this subject on the Internet. As far as the sexual aspect, I have seen improvements there. My ejaculate is now thicker, and I can get better erections now than previously. My pee stream is a lot better than it used to be. Overall, I am about 75% fully recovered. I'm not back to the way I used to be, but I feel like I am on the way. I hope this helped.

Hey, I have the exact same problem as you as far as urination and the erection issues go. You say the water fast helped to speed up your or recovery, how are you doing now days? I commend you for doing a 35 day water fast. I don't think I could do 1 day lol.

 

I hope all is well as it will give me hope that maybe my problems will get better.

 

Please respond if you see this.

Thanks

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MemberMember
0
(@accutanekills)

Posted : 02/06/2015 1:16 pm

I have also been decimated by this malignant poison. I was 40 years old when I took accutane, so they can't brush me off like some kid who is still developing and doesn't know how their body would eventually work. I went from insane levels of libido (I mean really crazy libido levels, not boasting), to not caring about sex at all.

After going to different doctor's for two years (none of which believed me at first ... I can only imagine the trouble a teenage or 20 year old would have), I had an MRI done of my pituitary gland. It showed a pituitary adenoma (benign tumor) that was not there before (I had an MRI 15 years ago that shows part of the pituitary gland). So, that's what this bullsh!t poison does to you. As a result, my testicles are about 1/3rd the size they used to be and at will erections are a thing of the past (though I can still get one). Like some people here, when I have an erection I can feel all the way up the shaft of the penis, but it's like the head is not there. If you pinch it or stick it with a needle (ouch!) you still feel it, but there is some system that is not there or some connection that is not being made between the head of the penis and my brain/glandular system.

You might want to go to an endochrinologist. It's likely you have low testosterone and luteinizing hormone as well, which is a sign of secondary hypogonadism and a pituitary disorder. B12 is supposed to help this and I'm on clomiphene (estrogen blocker) for low testosterone. I would not use testosterone creams that the urologist would give you (one tried to give me that), they will make your testicles wither away (thanks accutane!).

I guess I will try a water fast and see what happens. I could drink and eat nothing but water for 3 months if it helps!

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MemberMember
21
(@pathtorecovery91)

Posted : 02/07/2015 8:33 pm

I have also been decimated by this malignant poison. I was 40 years old when I took accutane, so they can't brush me off like some kid who is still developing and doesn't know how their body would eventually work. I went from insane levels of libido (I mean really crazy libido levels, not boasting), to not caring about sex at all.

After going to different doctor's for two years (none of which believed me at first ... I can only imagine the trouble a teenage or 20 year old would have), I had an MRI done of my pituitary gland. It showed a pituitary adenoma (benign tumor) that was not there before (I had an MRI 15 years ago that shows part of the pituitary gland). So, that's what this bullsh!t poison does to you. As a result, my testicles are about 1/3rd the size they used to be and at will erections are a thing of the past (though I can still get one). Like some people here, when I have an erection I can feel all the way up the shaft of the penis, but it's like the head is not there. If you pinch it or stick it with a needle (ouch!) you still feel it, but there is some system that is not there or some connection that is not being made between the head of the penis and my brain/glandular system.

You might want to go to an endochrinologist. It's likely you have low testosterone and luteinizing hormone as well, which is a sign of secondary hypogonadism and a pituitary disorder. B12 is supposed to help this and I'm on clomiphene (estrogen blocker) for low testosterone. I would not use testosterone creams that the urologist would give you (one tried to give me that), they will make your testicles wither away (thanks accutane!).

I guess I will try a water fast and see what happens. I could drink and eat nothing but water for 3 months if it helps!

Hey, welcome to the forum. If you try a water fast, please update on how it goes along the way and if it helps you any.

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MemberMember
0
(@anhedonia2015)

Posted : 07/19/2015 3:26 pm

Hey,

 

Some of the urinary problems described in this thread mirror my own so much that it's eerie. Didn't start noticing it until a couple of years (year and a half?) after I was on Roaccutane in 03/04 (not sure, memories a bit hazy), but it started to escalate in earnest circa 2009. The time difference makes it easy to say "coincidence" but on top of the IBS and sexual problems it makes it hard to dismiss (not that that would stop a doctor I guess). Can't drink more than small amounts of Alcohol anymore without making several toilet trips.

 

What upsets me beyond words is the progressive sexual numbing that I first noticed in early 2004. Weirdly, I've never had a problem with ED or loss of libido, just 98% anorgasmia and loss of sexual-feeling (nerves still still work but touching most of the equipment is like touching my finger or something). Feeling loss started at the base and spread outwards until only some of the head was left. I thought it had stabilised a few years ago and more or less adapted (I was still trying to persuade myself that the neurologist who told me it was in my head was right, which I could almost believe), but I lost more feeling as recently as this year (!), and am now violently depressed.

 

I drive myself mad wondering whether it's a skin thing, or a brain thing. It's too bizarre and eerie, doctors either don't take it seriously or just look non-plussed. I need to know what to do, how to fix the skin, or if it can't be fixed, I'll at least know and can try (somehow) to adapt to an essentially sexless existence. I was so close to feeling like existence was bearable and now I'm falling apart. The slightest return of sensation would make me feel 90% better, but I don't think that's happened in 11 years.

 

Sorry for the rant.

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MemberMember
21
(@pathtorecovery91)

Posted : 07/20/2015 8:40 am

Hey,

 

Some of the urinary problems described in this thread mirror my own so much that it's eerie. Didn't start noticing it until a couple of years (year and a half?) after I was on Roaccutane in 03/04 (not sure, memories a bit hazy), but it started to escalate in earnest circa 2009. The time difference makes it easy to say "coincidence" but on top of the IBS and sexual problems it makes it hard to dismiss (not that that would stop a doctor I guess). Can't drink more than small amounts of Alcohol anymore without making several toilet trips.

 

What upsets me beyond words is the progressive sexual numbing that I first noticed in early 2004. Weirdly, I've never had a problem with ED or loss of libido, just 98% anorgasmia and loss of sexual-feeling (nerves still still work but touching most of the equipment is like touching my finger or something). Feeling loss started at the base and spread outwards until only some of the head was left. I thought it had stabilised a few years ago and more or less adapted (I was still trying to persuade myself that the neurologist who told me it was in my head was right, which I could almost believe), but I lost more feeling as recently as this year (!), and am now violently depressed.

 

I drive myself mad wondering whether it's a skin thing, or a brain thing. It's too bizarre and eerie, doctors either don't take it seriously or just look non-plussed. I need to know what to do, how to fix the skin, or if it can't be fixed, I'll at least know and can try (somehow) to adapt to an essentially sexless existence. I was so close to feeling like existence was bearable and now I'm falling apart. The slightest return of sensation would make me feel 90% better, but I don't think that's happened in 11 years.

 

Sorry for the rant.

Hey man, good to see someone posting to this thread.

Do you find you have a slower or weaker urine stream?

Also for sensation, try not to masterbate for a couple weeks and see if that helps. I know obstaining from masterbation for a while helped other people with sensation.

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0
(@anhedonia2015)

Posted : 07/20/2015 10:01 am

Hey. When I really need to go the flow's strong enough, but there's always extra trickling out for minutes afterwards. I often get this irritating impulse to take extra little "micro-pisses" though, which involves a lot of tedious hanging around.

 

Abstinence doesn't seem to do anything. Sensation isn't so much dulled, it's either absent or...not absent. The minority of skin where I have feeling throws the lack of feeling elsewhere into relief. I'd adapted to it pretty well (which took years), it's just that a few months back the last traces of feeling on one side of the head went, and the asymmetry is slowly driving me mad.

 

My private, scary theory is that sensitive skin became more fragile after going on the 'tane, and that I've exacerbated it in the years since through, ahem, chafing (I have a tendency to go through phases of being kind of hypersexual, chasing an orgasm and trying to reassure myself that I'm a normal, virile man). Still, the last doctor who looked at it thought it looked externally normal, and also, it's not like I was slamming a door on it repeatedly. I'm pretty sure genitals aren't supposed to permanently wear out!

 

Anyway that's enough talking about my genitals for the moment, cos I could go on and on. It would be good to know more about how the pleasure response and erogenous zones actually work, but apparently it's still a bit of a general scientific mystery. It would be good to know what might help.

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MemberMember
359
(@dubya_b)

Posted : 07/29/2015 11:05 pm

Hi Ed.

 

To be brutally honest, this may be something you have to deal with the rest of your life.

 

Just for the sake of helping to get sexual side effects of Accutane to be taken seriously, please file a Yellowcard report with the NIH. There is a link in my signature to do so.

 

There will never be any real research into ways to treat this problem unless it is an officially recognized side effect.

 

I wish you well.

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MemberMember
2
(@antisexaccutane)

Posted : 08/01/2015 5:59 am

I posted here 4-5 years ago telling my story, which at the time was about 10 years since taking Accutane.

 

Almost 15 years later (from taking it at 16-17), I guess I can say I'm recovered - but it's questioning to what degree.

 

In the last couple of years, I've been able to have some of the sexual life i lost an opportunity at in my teens-mid 20's, I can hold more than 1 beer in my bladder, micro pisses happen rarely and only occasionally struggle to get the last squirt of urine out.

 

The prompts to think about Accutane are significantly less, but they are always there. Despite being "recovered" there is always a tainted feeling - knowing that you are not 100% to what you used to be. When in the thick of dealing with Accutane side-effects, it builds a nasty mental blueprint on your mind as you try to wrap your head around it. That blueprint and mentality is something that probably exists and is more detrimental way after the physical effects are gone and has a longer effect. It doesn't rule my life or my thoughts anymore like it used to, I live for the most part a normal life (in a healthy relationship - who I have told my story to), but it is always there.

 

Again to any male considering taking it, whatever the rarity of these cases vs other users. Consider the chance and risk of this happening and if it is something you are willing to sacrifice for potentially clean skin. I would completely advise you not to take the risk.

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MemberMember
21
(@pathtorecovery91)

Posted : 08/03/2015 1:35 pm

antisexaccutane,

It's good to hear back and that you are doing better. I went back and read through your original post.

I can relate with everything you had. I took accutane 4 different times between the ages of 18 and 21. A total of 11 months at 40mg/day.

My ed/libido problems slowly appeared in me when I was around 20/21 when I was trying to get sexually stimulated by thoughts of girls and realized I couldn't reach orgasm. It kind of scared me so I went watch some porn and took care of my business. This slowly progressed to not being able to get a full erection.

So I tried penis pumps. I feel this made things worse for me. My erection quality was diminishing as months passed after doing this.

I just turned 24 and I literally can't get hard or haven't had a morning erection in like a year. When I do masterbate my erection quality is like 75%. The base is flexible and the head deosn't swell up.

 

On top of this I have a weaker urine stream and when I cum it is a weaker output and it dribbles afterwards(urine and semen)

I went to 2 different urologists for the urine flow problem. The first one wanted to go stright to doing a cystoscophy under anesthesia. I didn't do it for money issues. The second was more understanding and asked if I have ever been hit down there and told him maybe a couple of times. He suggested it is probably a urethral stricture which I looked up and believe that is what it is.

 

He wanted to schedule a cystoscophy as well but I am too worried about getting this done and don't feel it's worth the money. I looked up about strictures and all they could really do is periodically do cystoscophies to help widen the tube or do surgery which doesn't have a high success rate, so i feel it is not worrying about unless it gets severe.

 

So that could probably be your problem as well.

 

As for the ED, like I mentioned I feel it was worsened by the use of a penis pump back a couple years ago. But recently I ordered a bathmate is top of the line in penis pumps thinking it would be better, but I think it might of made things slightly worse. I have a round swollen vein on my shaft.

 

Reading everyones posts about going to the urologist about ed issues at a young age, i just feel it's a waist of time and money because they all think it is pshycological. It's not and we all know that, but they only go off what's in the books and studies that have already been done. I guess that's what they have to do.

 

I read how penile damage from penis pumps could be healed with no pmo, but everytime I try it's like I get kindof horny but can't get a hard on. So I masterbate to get a partial erection and do it.

 

I just can't help of thinking back to when I could easily masterbate 3 times a day and be rock hard and have sensation. It scares me that this is all happeneing at such a young age. I have moments where I am depressed and don't know what to do.

 

But I will let this post be a marking of no pmo and I want to stick to it for a month. I will come back in one month on 9/3/2015 and let you know if it does anything to help (for the swollen vein, ed, etc.)

Not expecting much but if anything it may help the vein issue.

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MemberMember
6
(@i-mad)

Posted : 08/05/2015 2:11 am

i wish i did take acutane when i was younger, im 23 with a bunch for scars, i took one pill and gwad dam something wasnt right i could not get it up, now i can get it up almost everyday but this was something else. I close to take go along with it i was already 22 n not getting seave acne

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214
(@lore91)

Posted : 08/06/2015 4:49 am

Edit: no point

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0
(@abi72)

Posted : 07/03/2016 12:24 pm

so guys, any news or updates.
Any up-to-date suggestions?

Hope you are alll doing well.

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MemberMember
264
(@snarkygirl)

Posted : 07/03/2016 3:31 pm

On 7/4/2010 at 10:25 AM, NewEra said:

That is absolutely rediculas to suggest that accutane can be linked directly to you experiencing this condition. People on here who blaim all these phantom illness's on acctuane need to realise, a certain percentage of people in this world develop specific conditions, that's just how life is.

 

Do you ever think there are alot of people on here who are strung between using accutane as a last resort or potentially harming themselves. They don't need to be hearing all these horror storys which have no medical backing.

 

ED is something which has a lot to do with how your mind is working, if you believe its going to happen it always will happen, you need to try and totally forget about it. When you were on acctuane, anything that went wrong with your body you would have immediately blamed on the drug, whats to say that wasnt just going to happen to your body anyway?

 

There needs to be some kind of medical backing to these claims or people are going to be scared for no acceptable reason

No its not.
Accutane causes lowered testosterone AND lowered serotonin. That's why it makes some people depressed and or suicidal. Did you know accutane was created as a chemotherapy drug?
Whether or not a person chooses accutane is their own decision but they should be informed on good and bad possible outcomes before taking it. Its definitely a risk and for you to suggest that accutane can't cause erectile dysfunction or any other side effect is irresponsible.
My boyfriend had taken about 1 month of 20mg and attempted suicide, without a depression history.
There us plenty of reason to be scared if accutane PLENTY. The doctors don't make you sign those wavers for shits and giggles.

On 8/3/2015 at 2:35 PM, pathtorecovery91 said:

antisexaccutane,

It's good to hear back and that you are doing better. I went back and read through your original post.

I can relate with everything you had. I took accutane 4 different times between the ages of 18 and 21. A total of 11 months at 40mg/day.

My ed/libido problems slowly appeared in me when I was around 20/21 when I was trying to get sexually stimulated by thoughts of girls and realized I couldn't reach orgasm. It kind of scared me so I went watch some porn and took care of my business. This slowly progressed to not being able to get a full erection.

So I tried penis pumps. I feel this made things worse for me. My erection quality was diminishing as months passed after doing this.

I just turned 24 and I literally can't get hard or haven't had a morning erection in like a year. When I do masterbate my erection quality is like 75%. The base is flexible and the head deosn't swell up.

 

On top of this I have a weaker urine stream and when I cum it is a weaker output and it dribbles afterwards(urine and semen)

I went to 2 different urologists for the urine flow problem. The first one wanted to go stright to doing a cystoscophy under anesthesia. I didn't do it for money issues. The second was more understanding and asked if I have ever been hit down there and told him maybe a couple of times. He suggested it is probably a urethral stricture which I looked up and believe that is what it is.

 

He wanted to schedule a cystoscophy as well but I am too worried about getting this done and don't feel it's worth the money. I looked up about strictures and all they could really do is periodically do cystoscophies to help widen the tube or do surgery which doesn't have a high success rate, so i feel it is not worrying about unless it gets severe.

 

So that could probably be your problem as well.

 

As for the ED, like I mentioned I feel it was worsened by the use of a penis pump back a couple years ago. But recently I ordered a bathmate is top of the line in penis pumps thinking it would be better, but I think it might of made things slightly worse. I have a round swollen vein on my shaft.

 

Reading everyones posts about going to the urologist about ed issues at a young age, i just feel it's a waist of time and money because they all think it is pshycological. It's not and we all know that, but they only go off what's in the books and studies that have already been done. I guess that's what they have to do.

 

I read how penile damage from penis pumps could be healed with no pmo, but everytime I try it's like I get kindof horny but can't get a hard on. So I masterbate to get a partial erection and do it.

 

I just can't help of thinking back to when I could easily masterbate 3 times a day and be rock hard and have sensation. It scares me that this is all happeneing at such a young age. I have moments where I am depressed and don't know what to do.

 

But I will let this post be a marking of no pmo and I want to stick to it for a month. I will come back in one month on 9/3/2015 and let you know if it does anything to help (for the swollen vein, ed, etc.)

Not expecting much but if anything it may help the vein issue.

Sorry this happened to you. I believe its definitely possible acvutane was the cause. Accutane lowers testosterone and serotonin. Serotonin is responsible for reward and and pleasure feelings in the brain, so that could have a lot to do with ED.

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MemberMember
5
(@mynameisacne)

Posted : 07/04/2016 11:50 pm

Yeah man i would not trust the accutane for that. Are you on any other prescription meds? Such as ssris or add adhd meds?

I suggest looking into medicinal marijauna for this. Help restore your natural balance in your brain.

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MemberMember
45
(@cnb30)

Posted : 07/31/2016 2:22 pm

looking back, I can remember the lower back of my head (what I now know as the Pituary gland) hurting like crap. I realize a lot of that might have to do with the impotence. Honestly, at this rate since its permanent I might just kill myself.

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MemberMember
264
(@snarkygirl)

Posted : 08/01/2016 10:16 am

19 hours ago, cnb30 said:

looking back, I can remember the lower back of my head (what I now know as the Pituary gland) hurting like crap. I realize a lot of that might have to do with the impotence. Honestly, at this rate since its permanent I might just kill myself.

have you tried cannabis?

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MemberMember
1
(@344136_1443949632)

Posted : 10/13/2018 6:08 pm

Hello all,

This is my first time posting on this blog. Let me start with this: I am a [censored]; I am not a urologist or psychiatrist, but I went through and did well in internal medicine training. I am also a fellow sufferer of Isotretinoin-related side effects and as such I am frustrated by much of what I see posted here. Anyone reading this is presumably struggling with erectile dysfunction, and they deserve sympathy and support. And we all deserve a way out.

First are foremost I will say that I THINK this is a real phenomenon. Note that I can't say "Isotretinoin causes erectile dysfunction." The only way to prove causation is with a randomized control trial (RCT), and isotretinoin came of age in the 70s/80s before the RCT became as mature and ubiquitous as it is today. Per a 2017 review from the British Journal of Dermatology ( https://onlinelibrary.wiley.com/doi/full/10.1111/bjd.15668 ) only 2 trials of isotretinoin were placebo-controlled and they included less than 100 patients in total followed up for 12 weeks at the longest. Thus it would be more accurate to say that there is simply NO data on isotretinoin. AT ALL.

We are left with anecdotal evidence. And my personal experience mirrors most of what I've heard on this forum. I took 2 full courses of isotretinoin and 2 smaller courses (which, in retrospect, is terrible). The first course was two months, my acne got 95% better but I had to stop for AST/ALT elevations (I was drinking a lot then). Mild acne persisted and so I took my first full, 5 month course at age 23. I had some mild ED after that, mostly an ability to keep an erection for >15 minutes during sex. I didn't care much and attributed it to stress, aging (at 23!), and boredom with the same girlfriend of 2+ years. At 27 I took two months worth and only a months LATER did it hit: numbness of the head, decreased size (only while flaccid), inability to maintain erections without excessive manipulation or pornography, near total loss of morning/spontaneous erections; there was no true loss of libido, just a lack of interest in doing something I was suddenly bad at. I saw a physician - my testosterone, prolactin and TSH were all normal; I've never been depressed. I dealt with this silently for 4 years without an answer. At 31 I decided to try something: I had been watching porn/masturbating twice a day, and I quit cold turkey. THE RESULT WAS INCREDIBLE - in 2 weeks I was able to have sex, GOOD sex, 1-2 times a day, multiple days in a row. I was ecstatic. Mild acne continued, and because I didn't know better, I took my second full course of isotretinoin -- all the symptoms came back, worse than before. I am ok with it (see below).

Why am I sharing this? I believe in community. Reading other posts here has helped me cope, and I want to do the same for others. Specifically I want people to know 1) Its not in your head and 2) It CAN go away. Furthermore, ED is multi-factorial. Your problem may be isotretinoin AND something else. If you resorted to watching porn excessively, TRY stopping - it can't hurt you. If you've not seen a physician, TRY - most are genuinely concerned with you, and their testing can rule out reversible causes. Finally, try treating yourself while you're waiting to be see. PDE-5 inhibitors in small amounts seem to help, and as a cheaper option Ginseng seems to be effective and safe. See this paper (written by an actual expert) for more recommendations: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3217797/

Most importantly we need to keep talking about it.

Dubya_B liked
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(@duperele)

Posted : 10/15/2018 11:55 am

On 2010-07-04 at 8:41 PM, User116745 said:

How can a perfectly healthly 17 year old go from hard as rock to almost completely impotent? And all this happens the same exact time I'm on accutane.

 

And what kind of logic is this, "if you believe its going to happen it always will happen"? I didn't think I was going to get ED while on accutane. I didn't even know it was a side effect!! But by the time I learned, it was too late.

 

And people who are considering accutane as the last resort, I'm telling this story to let them know the possible side effects which will cause you more pain than you are in currently with acne on your face.

 

NewEra pull your head out of your ass. I'm here to share my experience. Just because it's a scary one doesn't mean people shouldn't hear it.

Maybe u jacked off too much?

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359
(@dubya_b)

Posted : 10/21/2018 12:11 am

On 10/15/2018 at 12:55 PM, Duperele said:
On 7/4/2010 at 2:41 PM, User116745 said:

How can a perfectly healthly 17 year old go from hard as rock to almost completely impotent? And all this happens the same exact time I'm on accutane.

 

And what kind of logic is this, "if you believe its going to happen it always will happen"? I didn't think I was going to get ED while on accutane. I didn't even know it was a side effect!! But by the time I learned, it was too late.

 

And people who are considering accutane as the last resort, I'm telling this story to let them know the possible side effects which will cause you more pain than you are in currently with acne on your face.

 

NewEra pull your head out of your ass. I'm here to share my experience. Just because it's a scary one doesn't mean people shouldn't hear it.

Maybe u jacked off too much?

So did your father, buddy! :)

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(@duperele)

Posted : 10/22/2018 8:53 am

On 2018-10-21 at 7:11 AM, Dubya_B said:
So did your father, buddy! :)

I do not understand, can you explain? (Seriously idk whether it's a joke or an insult, curious to find out)

Dubya_B liked
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(@david1)

Posted : 05/13/2019 7:00 pm

After 2 years Ive FINALLY cured my erectile dysfunction that was caused by Accutane!!

Simply put, I take 750mg of Tribulus Terrestris that I buy from Holland and Barrett a day. Thats 1 capsule 3 times a day with meals.I take this with 20mg of Cialis whenever its needed and I have great results. Im FINALLY normal again and dating is amazing! I dont know if this is a long term solution or how Tribulus will affect my body in the long run but its a start. Im going to continue to hunt for cleaner, safer solutions for my future.

 

Advise for those dealing with impotency caused by Accutane:

1. There IS a solution out there, it just takes work and research so dont panic!

2. Get off Accutane immediately and if problems persist after 1 month then go to your doctor.

3. Get testosterone and sexual hormone blood tests.

4. Get referred to a urologist.

5. Experiment with supplements. Be careful with this, dont rush to take them all at once and do your research to make sure youre not hurting yourself.

6. One persons solution wont work for everyone.

7. Maybe get referred to an encrinologist.

8. Ask to try testosterone gel/ treatment even if your test levels arent low, ya never know. Youll only find results from trial and error.

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(@accutanesufferer2019)

Posted : 05/19/2019 5:11 pm

Did anyone end up recovering from ED caused by accutane? I too suffered an ED after stopping the treating for 2 weeks. PLEASE HELP!

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(@cle-parent)

Posted : 06/07/2019 2:37 pm

My son did eventually recover from ED, but it took several years. He took Accutane while in high school, and about three months after starting it he became depressed and moody. After talking with him he told me that he could no longer get an erection. I work in medicine, and after researching it realized that it was the Accutane that caused it. I searched for and found a very good urologist that was willing to help. He prescribed ED medication for him, which he used for about 2-3 years. He is 26 now and is fine, but I have heard other people say that they never recovered. My advice would be to find a good urologist, preferably one that works at a large, research and teaching hospital, and when you go for a consultation takeresearch articles with you that support your case. I am talking about research articles from a good sources, like the New England Journal of Medicine, etc. Many doctors are not aware that Accutane can cause ED, and I think it is because most Accutane users are younger, and they are afraid or embarrassed to tell anyone. It's a terrible problem and I believe Accutane should be taken off the market.

Good Luck-

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