So many derms don't recognize AA as the cause of hairloss that it seems nearly impossible to find someone who is willing to treat us. It is pretty much just dumb luck to find a derm who will recognize this as a possible problem. This means a treatment is unavailable to many of us. Really frusturating.
The info will eventually filter down to all derms.... But my derm for instance is on the cutting edge of things. He trialed the use of N-lite for acne and also did the official study on the home light treatment units...
I know that may not seem very relavent to the subject, but alot of these derms are stuck in their ways so takes time to alter how they do things...
After the original derm who gave me tane, i went to three others before i eventually got to see chu, all of them were useless other than him...
i think my hair is returning back to normal. rogaine didn't do much for me, but the hair, skin and nails vitamins im taking helped a lot. im glad its finally over and hope you guys get the same results.
Buddy think about what your saying, you think its the hair skin and nails doing the job? not the kenalog shots? lol. Anyway that is great to hear!!
SW, he actually didnt prescribe it for me. He put me on the idea that diffuse AA was a possibility but he actually thought i was more likely to have TE. I decided to get my grandad to prescribe me a topical steroid anyway as i was certain i had diffuse AA. Chu has since agreed that i have diffuse AA.
I have been using betnovate (0.1% betametasone). Lidix is a comparable product in the US.
Ok, Saw Chu again today.... I asked him a bit more on his accutane hairloss victims, he basically explained to me that he has not yet had a patient who didn't recover. He also told me that he had one patient that lost ALL his body hair, alopecia totalis. But the good news is it DID recover, took him a few years though....
He said i can expect the hairloss to last up to a few years but it will resolve, but for the moment he has given me clobestol propinate (super potent steroid) and has told me i can continue it indefinently... Which suprised me but he said there is no problems with that...
Ok, Saw Chu again today.... I asked him a bit more on his accutane hairloss victims, he basically explained to me that he has not yet had a patient who didn't recover. He also told me that he had one patient that lost ALL his body hair, alopecia totalis. But the good news is it DID recover, took him a few years though....
He said i can expect the hairloss to last up to a few years but it will resolve, but for the moment he has given me clobestol propinate (super potent steroid) and has told me i can continue it indefinently... Which suprised me but he said there is no problems with that...
It seems the only way someone won't recover is that their hair becomes so miniaturized by continuously going through the catagen stage that they will rapidly progress into mpb. This is why I think propecia is of some use, to prevent this miniaturization.
I agree that estrogen in females has a protective action that prevents their hairs from becoming miniturized, that is why you see very few females going bald, and if they do i ususpect they have high androgen levels anyway...
It is the inflamation that causes the hairs to become miniturized, so long as you don't have MPB at the same time i truely believe in the end (be it x amount of years down the line) you will be ok.
SW, are you interested in trying a topical steroid? How much are you shedding these days?
I agree that estrogen in females has a protective action that prevents their hairs from becoming miniturized, that is why you see very few females going bald, and if they do i ususpect they have high androgen levels anyway...
It is the inflamation that causes the hairs to become miniturized, so long as you don't have MPB at the same time i truely believe in the end (be it x amount of years down the line) you will be ok.
SW, are you interested in trying a topical steroid? How much are you shedding these days?
I am interested in trying a topical steroid but getting perscribed one is the tough thing. My shedding varies. Its not an incredible amount, but I shed a lot of short and tapered hairs so I know my hair cycle is still messed up.
topical steroids for scalp problems really are nothing to fear, i don't know why alot of american derms are hesitant to do so. It really won't do any harm to try a topical steroid for a month to see the response, even if you don't have diffuse AA it is a good way to actually diagnose it without cutting into your scalp for a biopsy...
Blazed do you remember what i said in PM mate? i told you you would be fine ina few months due to the kenalog shots, it just takes that long to suppress the immune system enough!!
Not so it depends on the individual. It's been a over a year since I stopped for me and still losing hair every day and IMO not MPB, loss is diffuse and no one in my family has it. THe difference between my situation and the following of everyone on here is as stated before my hair went crazy it literally is mad scientist hair all over. MPB doesn't cause this so the guy who said I had it on here can finger himself in the ass. anyway, i agree it's an auto-immune problem but I also think thyroid plays into it. FYI Lammar I have tried hydrocortisone and they haven't helped the situation really at all it seemed like I was losing more hair on them but it was hard to tell. anyway I'm fairly certain at least in my case it's permanent as the hair loss comes and goes but never does grow back. Mind you I am probably the worst case scenario of anyone on this forum.
Dude, i told him he would be OK as he has been recieving intradermal kenalog shots (as used for alopecia areata).
You using hydrocortisone is a joke, it won't even tickle things lol. Your thyroid isn't playing a part at all (your hairloss anyway).
Im using dermovate scalp application (class 1 super potent topical steroid) clobetasol propinate. Look up the different classes of topical steroid and you will see why hydrocortisone won't do shit. I bet every penny i have and will ever have that if you were using the same as i am, your shedding would stop.
My hair is looking the best it has since this all began, also have regorwth on the temples where i never thought i would see regrowth at one point.
The reason why this shit often looks like MPB to derms and the average onlooker is that estrogen ecourages regrowth and protects against inflammation etc etc which means MPB regions are hardest hit as we have a lack of it, when compared to women.
Ithappens. I am not guessing this shit, this is fact as i said take it as you will, more fool you.
Blazed my friend, your derm diagnosed you with diffuse AA and gave you topical and intradermal kenalog shots. I think that it what led to your recovery not the vitamins.
When was the last kenalog shot now? they are effective for up to about 6 weeks
The problem though is that I don't feel that it's a good thing for the body to keep getting constant injections of high amounts of cortisone every 6 weeks. Would this have to be continued forever or would it eventually wear its course etc. Also if kenalog shots do in fact lead to permanent scarring it may not be such a good thing. either way though im not sure. at the very least i would like my hair to return to somewhat of a normal state texture wise as it is out of control now.
The scarring thing my derm told me is where he has had to do it over many years, so we should be ok. He also said because we aren't genetically predisposed to it (most of us anyway) then it is much much more likely to spontanesouly resolve than those with it genetically. The kenalog is injected at no more than 20mg per time, it doesn't even cause adrenal suppression.
It shouldn't be a parmanent thing, it just enables the negative feedback loop e.g. the production of marker cells and the production of anti bodies for these cells to be broken.
Edit: i think that is the thing ithappens, people after accutane are scared of all drugs. The fact of the matter is very few drugs on the market are as nasty as accutane. There are drugs as bad but none even come close to being used in conditions such as moderate acne for christ sake!!
my hair is doing much better with time it will get back to complete normal. I just wanted to say that if anyone is looking to get into accutane, do not, it sucks the side effects suck and you have to put up with all the blood test and shit, the best thing is vitamin b5, i've been on it for about a month now and im clear again, because i started to get acne again after my accutane started to wear off and im taking 500mg a day of b5 and its smoothed out my face and cleared it and reduced oil its with no side effects, ecept when i went on 2 500mg pills a day i would get headaches but this has stopped when i went back down to 500mg pill a day. and my hair is good and im clear, so fuck accutane, b5 is the way to go.
Well i figured out my hair loss situation with accutane and i've got the shedding pretty much under control. Without explaining my whole theory as to why accutane causes hair loss the bottome line is the drug inflames the stomach and intestines causing an allergic reaction where our immune system basically goes crazy. I'm not sure if it's also related to Candida infestion as well, but the bottom line is certain foods such as wheat etc cause more inflamation cause the stomach lining and immune system is all fucked. basically that's part of it as i'm sure accutane also did something alone and of itself. anyway following a no wheat/dairy diet for the past few days i've seen my constant shedding reduced to a few hairs throughout the day, and between 5-10 in the shower. Thing is though I do feel for most guys at least to some extent the loss can be very much permanent unfortunately. I'm glad the shedding is udner control now and if it stays this way i won't go bald anytime soon, but the damage has already been done so to speak as my hair is so so thin from what it once was. I'll give it some time of course but the good thing is i probably plan on getting a hairpiece in the near future.
hey mikey .. did b5 vitam help with your hair condition... or only for acne side?
Im another ex tane consumer who still has hair problems after this venture? My hair is so thin that i think in 3,4 year im gonna loose it for all .
btw lamarr1986 , CP serum did help you? Im using it for 2 months now but no result i think..
Paks i used the copper peptides for a while on my scalp and it did relieve the itching, along with the emu oil. It reduced the shedding somewhat and i do believe it helped regrow hair. The thing is it just made my hair look so messy, and now that i have topical steroids to use i only rarely use them. The topical steroids are working really well for me... i have been applying minox to my temples and the clobetasol propinate over my entire scalp and i now only shed about 50 hairs a day? which for me is amazing, coupled with the fact i am having tones of regrowth even on my hairline....