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Your hair seems like its missing oil, do you wash often? also stay away from those shampoos, i only use johnson and johnson baby shampoo as it has almost no chemicals(recommended by a derm). also what dosage were you on?. maybe you were on a stronger dosage that i was so its takin longer for you. Try natrual oils (flax,fish,sunflower) to help your glands produce more oil.
Your hair seems like its missing oil, do you wash often? also stay away from those shampoos, i only use johnson and johnson baby shampoo as it has almost no chemicals(recommended by a derm). also what dosage were you on?. maybe you were on a stronger dosage that i was so its takin longer for you. Try natrual oils (flax,fish,sunflower) to help your glands produce more oil.
mikey i've been on here going through my ordeal and all longer than u, go back in the history and see i'm like one of the founding fathers of this board. im not going to go through my whole story again as i could go on for days. i was on a probably a much lower doseage than you or most others, 20mg first two months and 40mg the remaining 4. my oil has returned to normal as i do get pimples from time to time again and i've tried the the shampoos showering etc, thats all bs has nothing to do witht he situation. trust me you have recovered and good for u rightfully so as others will too but for some us such as lamar and myself our situations are extreme cases of this, how or why i dont know but they are. it has nothing to do with showering, vitamins, or perhaps even hormones etc. it could be auto-immune but who knows. i know in my case just speaking for myself that it is most likely permanent and what's done is done i just know based upon what i have been through.
Bud i have been battleing this shit for a shorter period than you, but i do feel like i am getting sumwhere even though i still shed a decent amount. Diffuse Alopecia area IS the answer in many many of the prolonged cases. I am certain of this, have been for some time now and was told by a top derm that this is the case. I have been using a topical betametasone for about a month now and it has helped ALOT. The texture change i cannot explain but as you know that is similar to cemo patients, but i do not know the mechanism behind that as it isn't relevent to me.
What i can say is that it is auto immune related in both our cases, just it is effecting us differently. I will continue my search for answers, but for the moment i am trying to get on with my life a bit more, regardless of how tough i find life these days!!
I would like to keep in contact with you ithappens as i do believe i have a treatement option for both of us.
Lamarr- I don't really even understand the most of that long post that you posted. If that is really is the cause, is it likely reversible?
I am still shedding, about 8.5 months now. My hair is still thick, but I'm afraid it won't hold out if this shedding persists for a long time.
I Basically believe what i posted above is the initiation of the auto immune disease Diffuse Alopecia areata. There is potential for it for recover for sure, but seems as if it can take up to a few years. If you have other serious side effects i think you have less of a chance of natural recovery... If you have no other side effects i believe given time you will be fine.
Basically our hair is in a vicious cycle with our immune system, anti bodies were created which caused the body to view them as foreign objects and to break this cycle you need to reduce the anti bodies. I believe the reason women seem to recover from this more is that estrogen is more of an immuno supressant than testosterone, testosterone has also been found to redistribute the immune system to the skin, thus this would explain the higher incidence of hairloss from accutane in men!!
all im saying is no one cant say for exactly what they have and just forget about taking care of themselfs, even if its not a vitamin/etc.. problem it aint gonna do you worse by not taking them. i used to get a few pimples on and off while i was still shedding badly, but now i've gotten alot more and my face become alot more oilier and my hair texture is alot better because of the oil, thats a no brainer. im like one of the only ones who hasnt tried vitamins i only recenlty tried them, last week, while my hair got better even before hand, my recovery is natrual (da results/sideeffects of the accutane have worn off).
Consider yourself lucky if you are recovering.
Its been 16 months+ for me and my hair is shedding still.
Eventually I'll just shave my head.
Toupee aint going to do it for me.
At first I was really in denial but now we have to spin this into a positive light. I'm just happy to be alive.
I've consider taking Propecia but I've read some crazy side effects. I read on a forum that this one guy can't get an erection anymore cuz of Propecia.
I actually have a friend who shaves his head not cause his going bald thought.
His the only friend that I actually spoken to that knows about my thinning hair. Without his support I don't think I would have made up my mind to shave my head.
I have been getting kenalog shots and applying rogaine with no improvements. Some of the hair strands are so thin they go unnoticed when they shed. My hair loss is very unusual with sides being the thinnest and the bald patches above my ears. If Mark's plan is failure for me then Im just going to enjoy the time I have some hair and when it gets worse Im just going shave it.
Pete mate, You will eventually be ok. The hair isn't gone for good as we know you have diffuse AA. You have potential for full recovery!! My plan will work for certain in your case, within 4-8 weeks on the treatement we disscussed you will see your shedding come to a hault.
Sides being effected like that is typical of diffuse AA, i remember when my shedding first began the sides were the worst hit, David mentioned the same thing...i guess you have just been hit harder by it. But like i said the treatement WILL work and even if you decide against it, the kenalog given time WILL work.
Guys a change from 3-4 strands from 10-11 strands is nothing to even consider as a change in hairloss. Us guys have be shedding hundreds of extra hairs per day for months, i also believe it is generally dose related though. If anything mikey i would be more inclined to use one 10 mg tablet every few days, trust me it works several of my friends have done it over the period of a year or so, no side effects whatsoever. They did it after their acne came back after a round or two of accutane normal doseing and they both said they prefer it the ultra low dose way.
As i said though mikey, leave it for a few months bud, your acne won't suddenly become severe over night so no worries.
Yea I going to leave it off for a couple of months, and only go back on it for a low dose like 10mg every couple of days like you say. Im going to get that Verilux acne lamp with blue and red light for da pimples now and inflimation. also schindler i did not know your still on accutane, i would've thought you got off it since your losing hair. but like you say it aint much so i guess its ok. how long have you been on it?
I guess my main concern about this is, once you finish, does it stop? Will you hair still shed once you stop taking accutane?
I already did a 8 month course of accutane a few years ago and the only side effect I got was dry lips. I'm back on it now, so is it safe to assume I won't get the side effects again?
Pete mate, You will eventually be ok. The hair isn't gone for good as we know you have diffuse AA. You have potential for full recovery!! My plan will work for certain in your case, within 4-8 weeks on the treatement we disscussed you will see your shedding come to a hault.
Sides being effected like that is typical of diffuse AA, i remember when my shedding first began the sides were the worst hit, David mentioned the same thing...i guess you have just been hit harder by it. But like i said the treatement WILL work and even if you decide against it, the kenalog given time WILL work.
not trying to be a dick lamar but what the hell are you talking about. Please don't give these people false hope. by no means am i saying that they should think that they are a worst case scenario like myself but please don't try to sell them on some system that will most likely not work. we can come up with theories all day about accutane hair loss and why and how it is occuring etc etc but the bottom line is no matter what we don't know for sure why this is happening and there is nothing we can do about it. From the people I have talked to and come in contact with who have experienced long term accutane hair loss ie over a year it has been a very permanent situation with most of them being very much bald now. one guy said he was slick bald within three years. trust me lamarr you're still on here grasping for straws and believe me i would like nothing more than for it to grow back but it's time to face facts and just deal with it. myself i will most likely opt for a hair system to at least give me hair throughout my 20s. other than that though i can't worry about it and there's nothing we can really do hence why i dont come on here that much anymore.
Fair enough ithappens. That is all i will say...
P.s. It isn't a crazy theory, blazed has been diagnosed with diffuse AA and my derm also told me about it being a common cause for accutane hairloss. It just isn't well known. But as i said fair enough.
You also have no idea what me and blazed have been disscussing through PM, we have both had strong response to topical steroids....
Ithappens you can't say he is giving them false hope, because with your comments you are making the situation worse. Some of this is mental as well, its almost like a placebo, with your scary comments mekes it seem its inevitable that they will be like you. All that stress on believing that they are fucked will make their condition worse, stress can cause hairloos. most people taht go on accutane recover from hairloss, go read most of them posts under "treatments" and for accutane(iso..) only a few stated hair loss and not permanent, I have returned to normal, I took accutane in the spring of 06 til august 06 and finished my 5 months course i startedd lossing hair then i went on 60mg for 1 month in 07 and it started losing my hair alot more and conintued so it has been basically more than 11 months for me. Either way im back to normal, I represent the majority of accutane users, you represent the minority, and I wouldnt say its accutane 100% for the cause whos to say they werent gonna go bald anyway, accutane just sped it up. Either way most of these people will recover, im proof and so is most of the stories you read(and those you dont because they stop posting and dont want to tell their success), some are bad and those are the ones you haer about, but chances are they would've went bald anyway.
i would not do another course of accutane if someone paid me good money. it's just not worth it, imo, but i think my hair is starting to return to normal. we'll see. in any case i'm not really worried anymore. i've been shedding for 11 months and my hair is still thick enough to where i can live with it.
Lamar - do you think the topical steroid is working b/c your scalp had bumps all over it and it was irritated? My scalp is just ITCHY (emu oil shampoo has calmed it recently). I feel like my derm is a waste of time right now so I'm trying to figure out why you and Blaze have had success with the steroid treatment and if it is worth others looking into it (even though we might not have your current scalp conditions).