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The answers I got from my doctor about hair loss

 
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(@lamarr1986)

Posted : 10/02/2007 4:24 pm

Sorry to hear that mate, i know how painfull this whole process is, me, yourself, ithappens and julius are all in similar situations...

 

i really believe you should try a course of steroids if you have exhausted every other option btw...

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(@ron19)

Posted : 10/02/2007 5:42 pm

Sorry to hear that mate, i know how painfull this whole process is, me, yourself, ithappens and julius are all in similar situations...

 

i really believe you should try a course of steroids if you have exhausted every other option btw...

 

 

My new derm sayd that in that case only thing i can do is to wait and be optimistic as it is not usual mpb.. even if it worse there.

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(@dingdingding)

Posted : 10/03/2007 8:18 pm

i apologize in advance if my question sounds silly or has been repeated before, as i am not too knowledgeable in the whole hair loss-accutane subject. and i also dont have the time to read thru all 50+ pages of this thread.

 

i know the primary reasons for hair loss caused by accutane that has been discussed here is hair follicle change/damage as well as lack of sebum. i also know that ppl who develop liver problems due to constant stress or whatever, are way way more likely to lose hair b/c of it. So if Accutane/vitamin A affects the liver greatly, is it also possible that this may have contributed to hair loss that some accutane patients experience? And in some rare cases, can permanent hair loss caused by accutane an indication of some irreversible damage to the liver?

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(@lamarr1986)

Posted : 10/03/2007 9:55 pm

I do believe that is a possiblity dingding, but i also believe in prolonged cases the body may trigger some sort of immune response...where by it sees the hair follicles as a foreign object and begins attacking them, i don't believe a lack of sebum is a real reason for the hairloss, maybe in the short term this may contribut to it, but i believe in prolonged cases the hairloss can be due to either chronic telogen effluvium, triggered MPB, vasculitus, or like i said some sort of immune disfunction...

 

Damage to the liver could be a possibility, but the liver has a very good ability to heal itself and if there was real damage being done you would think the blood tests would pick up on it, as it is taking place. But yeah it could still be a possiblity because modern science clearly doesn't have the answers to everything...

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(@ron19)

Posted : 10/04/2007 7:47 am

I do believe that is a possiblity dingding, but i also believe in prolonged cases the body may trigger some sort of immune response...where by it sees the hair follicles as a foreign object and begins attacking them, i don't believe a lack of sebum is a real reason for the hairloss, maybe in the short term this may contribut to it, but i believe in prolonged cases the hairloss can be due to either chronic telogen effluvium, triggered MPB, vasculitus, or like i said some sort of immune disfunction...

 

Damage to the liver could be a possibility, but the liver has a very good ability to heal itself and if there was real damage being done you would think the blood tests would pick up on it, as it is taking place. But yeah it could still be a possiblity because modern science clearly doesn't have the answers to everything...

 

My liver was found some what demeged by the drug actualy.... by my lest tests.

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(@_andy_)

Posted : 10/04/2007 9:46 am

Well, I'm back from Sicily. A few observations:

 

1. I continue to shed hair (about 50 to 75 a day), and yet I see a lot of regrowth. I mean a lot. Wherever I part my hair, I see about 25 tiny, growing hairs.

 

2. Due to intermittent water problems, I could only shower every other day in Sicily. And I noticed something very interesting: when I didn't shampoo, my hair looked and felt twice as thick. I wonder if at least some of the look and feeling of hair thinness is related to a lack of sebum.

 

3. In Sicily at least, most men do not lose hair in a pattern. They thin! But on the plus side, they rarely lose hair on the crown. In other words, it becomes more difficult for me, a Sicilian, to distinguish between TE and MPB.

 

3b. My family (whom I've only met a couple of times) does not have significant hair loss. They have receding hair lines and that's about it. And I can live with that.

 

4. I have stopped Rogaine, because it is annoying to apply. I have decided to keep with the Propecia. I have 0 side effects from it now, which is great.

 

In summary, I continue to shed hair, but I also continue to regrow hair. I am 60% optimistic, 40% pessimistic.

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(@dingdingding)

Posted : 10/04/2007 1:55 pm

I do believe that is a possiblity dingding, but i also believe in prolonged cases the body may trigger some sort of immune response...where by it sees the hair follicles as a foreign object and begins attacking them, i don't believe a lack of sebum is a real reason for the hairloss, maybe in the short term this may contribut to it, but i believe in prolonged cases the hairloss can be due to either chronic telogen effluvium, triggered MPB, vasculitus, or like i said some sort of immune disfunction...

 

Damage to the liver could be a possibility, but the liver has a very good ability to heal itself and if there was real damage being done you would think the blood tests would pick up on it, as it is taking place. But yeah it could still be a possiblity because modern science clearly doesn't have the answers to everything...

 

My liver was found some what demeged by the drug actualy.... by my lest tests.

 

 

 

do you know what your doctor looked for specifically on your blood test to notice the "somewhat damage" your liver took?

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(@ron19)

Posted : 10/04/2007 2:00 pm

Well, I'm back from Sicily. A few observations:

 

1. I continue to shed hair (about 50 to 75 a day), and yet I see a lot of regrowth. I mean a lot. Wherever I part my hair, I see about 25 tiny, growing hairs.

 

2. Due to intermittent water problems, I could only shower every other day in Sicily. And I noticed something very interesting: when I didn't shampoo, my hair looked and felt twice as thick. I wonder if at least some of the look and feeling of hair thinness is related to a lack of sebum.

 

3. In Sicily at least, most men do not lose hair in a pattern. They thin! But on the plus side, they rarely lose hair on the crown. In other words, it becomes more difficult for me, a Sicilian, to distinguish between TE and MPB.

 

3b. My family (whom I've only met a couple of times) does not have significant hair loss. They have receding hair lines and that's about it. And I can live with that.

 

4. I have stopped Rogaine, because it is annoying to apply. I have decided to keep with the Propecia. I have 0 side effects from it now, which is great.

 

In summary, I continue to shed hair, but I also continue to regrow hair. I am 60% optimistic, 40% pessimistic.

 

well i'm also seeing new growth as well now where my hair line goes.. but losing too much a day to get normal thickness..

so andy i think the propecia may not be the reason whay you have hair growth but keep us posted if the shed stops... if so i think i will go on prop..

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(@_andy_)

Posted : 10/04/2007 3:18 pm

Well, I'm back from Sicily. A few observations:

 

1. I continue to shed hair (about 50 to 75 a day), and yet I see a lot of regrowth. I mean a lot. Wherever I part my hair, I see about 25 tiny, growing hairs.

 

2. Due to intermittent water problems, I could only shower every other day in Sicily. And I noticed something very interesting: when I didn't shampoo, my hair looked and felt twice as thick. I wonder if at least some of the look and feeling of hair thinness is related to a lack of sebum.

 

3. In Sicily at least, most men do not lose hair in a pattern. They thin! But on the plus side, they rarely lose hair on the crown. In other words, it becomes more difficult for me, a Sicilian, to distinguish between TE and MPB.

 

3b. My family (whom I've only met a couple of times) does not have significant hair loss. They have receding hair lines and that's about it. And I can live with that.

 

4. I have stopped Rogaine, because it is annoying to apply. I have decided to keep with the Propecia. I have 0 side effects from it now, which is great.

 

In summary, I continue to shed hair, but I also continue to regrow hair. I am 60% optimistic, 40% pessimistic.

 

well i'm also seeing new growth as well now where my hair line goes.. but losing too much a day to get normal thickness..

so andy i think the propecia may not be the reason whay you have hair growth but keep us posted if the shed stops... if so i think i will go on prop..

 

 

I don't think it's the Propecia, either. I think I'm just recovering. I've said this before, and it's an irritating concept, but I wonder if shedding really does mean regrowth - i.e., that new hair is pushing out old hair. Hence the new shedding. I don't know. The shedding is slowing down, but I want it to stop. I will keep you all posted, as usual.

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(@_mikey_)

Posted : 10/04/2007 10:14 pm

andy, I aswell get that thickness when i got a few days without washing my head. also why don't you think its from the propecia your taking??

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(@lamarr1986)

Posted : 10/05/2007 4:25 pm

Ok guys, bit of an update, im currently being sedated on valium due to the stress from everything going on with my body. I will post pics to prove all of this in a week or sos time. I have been taking pictures of my face over the last few weeks and you will be able to see how it is scaring itself....(with no previous injury)

 

My hair is falling out at the rate of about 400 strands a day (hair on the whole of my body is falling out rapidly aswell), my mouth ulcers have flared up and i flush like a tomatoe...

 

Only good thing that has come from this serverly distressing time for me is that i will now be seeing the two best dermatologists in the country to try and get answers to all of this...

 

Maybe some good will come from it and we can get an insight into why hairloss happens with some of us...

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(@blazedjin)

Posted : 10/05/2007 6:02 pm

Lamar, Im sorry to hear things arent going to good for you but hopefully you will get better. Keep us posted with your conditions and any new information regarding hair loss. Regarding to you're scars, do they look similar to acne scars?

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(@lamarr1986)

Posted : 10/05/2007 7:57 pm

Nope nothing like acne scars, they are mainly liniar, about 2 cm in length... none terribly deep which is the only positive thing i can look at e.g. scar removal techniques should be pretty effective once i sort out whats wrong with me...

 

I do have some acne scars aswell but i didnt have any before tane, these scars come in areas i have never had acne and where no previous injury has occured... it is so scarey as i wake up with a new one every day...

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(@_mikey_)

Posted : 10/05/2007 8:00 pm

looks like your skin is very sinsitive lamarr and is expanding. Damn, i just got out of the shower andmy hair is so ridiculously thin its not even funny. And no signs of improving, I don't know what to do anymore.

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(@blazedjin)

Posted : 10/05/2007 8:12 pm

mikey, have you tried any hair med? such as propecia or avodart.

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(@_mikey_)

Posted : 10/05/2007 8:20 pm

no, blaze, the only thing I've been doing is takin vitamins, and its not working. Imma go on rogaine in a few days, because I just am not happy with this. I know they say that hair falling out is a good sign but i almost look like a cancer patient, my hair is thin al over my head, not just on top like mpb my hairline has not receded. its just thin.

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(@_mikey_)

Posted : 10/05/2007 8:28 pm

also look what i found on the label for rogaine.

 

Do not use if:

your amount of hair loss is different than that shown in the inside of this label of your hair loss is on the front of the scalp. 5% Minoxidil topical foam is not intended for frontal baldness or receding hairline

your hair loss is sudden and/or patchy

you do not know the reason for your hair loss;

 

so should i really use rogaine? why, if it says i shouldnt. I don't know the reason for my hairloss and my hairloss is sudden.

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(@lamarr1986)

Posted : 10/06/2007 1:14 am

Some derms say Minoxidil is usefull for telogen effluvium, others recomend just waiting it out... the reason why it says dont use in those situations is because the hairloss could be due to an auto immune disease, and also hasnt been tested for use in telogen effluvium so they cannot recomend its use for those reasons...

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(@ron19)

Posted : 10/06/2007 4:01 am

Some derms say Minoxidil is usefull for telogen effluvium, others recomend just waiting it out... the reason why it says dont use in those situations is because the hairloss could be due to an auto immune disease, and also hasnt been tested for use in telogen effluvium so they cannot recomend its use for those reasons...

 

I'm sory to hear the things that are now happening to you man, try to make a conection to accutane thet the M.Ds acknowledge! then try to sue the hell out of the company.. it's not supposed to make your life go away..only make them better but still pretty much killed my self confidence.

 

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(@lamarr1986)

Posted : 10/06/2007 9:24 am

Some derms say Minoxidil is usefull for telogen effluvium, others recomend just waiting it out... the reason why it says dont use in those situations is because the hairloss could be due to an auto immune disease, and also hasnt been tested for use in telogen effluvium so they cannot recomend its use for those reasons...

 

I'm sory to hear the things that are now happening to you man, try to make a conection to accutane thet the M.Ds acknowledge! then try to sue the hell out of the company.. it's not supposed to make your life go away..only make them better but still pretty much killed my self confidence.

 

 

 

I'm not interested in money i just want my life back to how it was EVEN with acne!! i really can't even believe this is my life anymore it has done a total 180 and it ALL stems from accutane, i broke down last night and made my mum cry i really hate myself for doing that...

 

Ron have your side effects improved? do you still have the dry mouth etc?

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(@ron19)

Posted : 10/06/2007 11:45 am

yes i am still suffering from the other side affects as well.. bitch.. but hey i manged to stay at one of the hardest boot camps in the I.D.F..one month left for me then the special trainig:) so i'm down to but not so bad yet.

 

http://en.wikipedia.org/wiki/Golani_Brigade

I'm now at the lightning battalion:)

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(@lamarr1986)

Posted : 10/06/2007 3:49 pm

Gratz man, and you can feel as if you have done more than anyone else, doing that whilst going through what you are!!

 

Have your side effects lessened at all?

 

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(@sverd)

Posted : 10/06/2007 10:47 pm

Okay now I'm not so sure if my hair loss really stopped. Today I've been losing a lot of hair, especially from the front of my head. The thing is, over the past 6 or 7 months of shedding my hairline hasn't receded and my hair loss hasn't been noticeable to anyone. I don't know what to believe anymore. I'm going to start taking my Hair, Skin, and Nails vitamins again.

 

Edit: My scalp is itching again.

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(@ron19)

Posted : 10/07/2007 12:41 am

Gratz man, and you can feel as if you have done more than anyone else, doing that whilst going through what you are!!

 

Have your side effects lessened at all?

 

no not realy.. some worsened as my hair loss.. but i can think of a reason. my hair loss went normal after starting daily vitamin b complex and biotin intake.. now i almost have no time so i forget to take.. meybe thats whay my hair loss is so bad again.

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(@sverd)

Posted : 10/07/2007 1:00 am

Gratz man, and you can feel as if you have done more than anyone else, doing that whilst going through what you are!!

 

Have your side effects lessened at all?

 

no not realy.. some worsened as my hair loss.. but i can think of a reason. my hair loss went normal after starting daily vitamin b complex and biotin intake.. now i almost have no time so i forget to take.. meybe thats whay my hair loss is so bad again.

 

Hey i stopped taking biotin about a month ago, maybe thats why my hair loss is coming back. I'll start taking it again tomorrow that gives me a bit of reassurance..

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