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You know that derm must of been a real fool, i have been researching methotrexate, and he must not of mean't that, he must of mean't Acitretin.... I dont see how he could confuse the two mind you, unless i heard wrong.. He was very hard to understand. Either way he still said he has seen patients recover from these stronger retinoids, which i suppose is something...
You know that derm must of been a real fool, i have been researching methotrexate, and he must not of mean't that, he must of mean't Acitretin.... I dont see how he could confuse the two mind you, unless i heard wrong.. He was very hard to understand. Either way he still said he has seen patients recover from these stronger retinoids, which i suppose is something...
Methotrexate is not a retinoid, but it has the same effect as Accutane, sort of - namely, reducing cell proliferation. It does indeed cause hair loss. The point is to assume that drugs that slow down cell proliferation and cause hair loss as a result only cause that hair loss temporarily.
Still, I fear vitamin A toxicity. Man this shit's annoying, isn't it?
I really really would love it if julius would try a short course of steroids...
When we think about it they say TE is generally more located to the top of the scalp, Women even tend to have more loss at the top of their scalps, they also have a certain level of androgens... Now we all know where DHT/androgens work at their best... As julius has said most forms of hairloss induce some sort of auto immune function... If accutane triggered something like this is in us, all it would take is a short course to knock us back on track and go back to normal, as most patients do...Maybe all some of us need is a bit of a helping hand?
If more of us could visit a tricologist (sp) and have our scalps examined we could come to more conclusions. I know if mine continues for an extended period of time. I won't hesistate to visit one.
I really really would love it if julius would try a short course of steroids...When we think about it they say TE is generally more located to the top of the scalp, Women even tend to have more loss at the top of their scalps, they also have a certain level of androgens... Now we all know where DHT/androgens work at their best... As julius has said most forms of hairloss induce some sort of auto immune function... If accutane triggered something like this is in us, all it would take is a short course to knock us back on track and go back to normal, as most patients do...Maybe all some of us need is a bit of a helping hand?
If more of us could visit a tricologist (sp) and have our scalps examined we could come to more conclusions. I know if mine continues for an extended period of time. I won't hesistate to visit one.
Very true, Lamarr. I'm considering visiting a trichologist next month, actually. Of course, I'll let you all know.
lamar not trying to upest you or be negative so dont jump on my back again but i would advise you to take everything your derm says to you with a big grain of salt. trust me when i say that you, i, and most other people out here know a lot more about the effects of the drugs he/they prescribe than they do, much more in fact, pretty scary. my friend's dad is the head surgeon at U of A and while he cant really help me much because he doesnt really know a whole lot about the accutane and hair loss fields etc he said that as far as derms go they are considered a joke amongst most doctors and shouldn't be taken seriously most of the time. he joked with me about how all of the doctors that struggled in med school and finished at the bottom that he and his colleagues knew all seemed to be derms. trust me on this most derms are jokes and as far as im concerned they arent real doctors. we have to keep researching and figuring stuff out on our own cause while i dont think any one thing we do may cure it all of the sudden, we can sort of help the situation and maybe chip away at it and hopefully in time recover. fuck derms trust me they are bad news. if i recover from my hair loss GOD willing, trust me unless im certain i may have skin cancer i will refuse to set foot in a derms office. im not saying they're all bad cause im sure there are a few very very well educated experts out there etc. but the 95% of shulbs we deal with are idiot quacks.
Just been to the derm... Had a stand in derm as my normal one was on holiday. He said he hasn't seen TE in accutane users before...but has seen it in methotrexate (a stronger retinoid used for treatment of psoriasis)....He seemed pretty confident that it would resolve and kind of laughed at me because my hair still appears perfectly normal, which is highly frustrating...
The nurse however (my normal derms nurse) thought the trigger could easily be the brain swelling i suffered from, so we shall see...
He said his patients on methotrexate suffering from TE recovered just fine and that is far harsher and they are on it for longer than our 5-6 months courses...
Just thought i would let you all know. Hope your all holding in there!!!
as far as my situation is going well more bad news. my body is fucked up and has been for some time now however while accutane did cause my hair loss it now seems that my little stint experiment with propecia about 2-3 months back left me with ADRENAL FATIGUE SYNDROME aka my adrenal glands are fucked. this is what basically has happened with my body. took accutane i already have stated the hair loss side so im not going to get into that but as far as other physical and mental sides that go along with it besides the usual dry skin and cracked chapped lips that was about it. my wounds maybe healed slightly slower and a few other minor things but nothing really physical or mental about it. even with the hair loss as i was upset and depressed about it physically and emotionally i was fine during and after the accutane. granted i was down about my hair but the quality of my life was still normal and fine etc. anyway in march cause i had the hair loss going on i tried 1mg of propecia for a week anyway i had horrible sides from it. in only a week this is what i had bloating, hot flashes, loss of libido but not complete ed, acne rash on my back, and brain fog etc. anyway, the worst side effect by far though was the extreme lack of sleep and more so quality of sleep i was getting. granted i have always been a night owl and slept less than the avg person probably but i always had good quality sleep. anyway, while on propecia my body couldnt seem to reach deep REM sleep, it was like i was half asleep whole night uckin horrible, and this was on .25mg mind you. i would wake up and have this feeling of tiredness and numbness and literally had to force myself to get out of bed at times. i also then had a ridiculous zombie like trance where for the first like 2 hours of the day it felt like i was sleep walking. anyway, i thought and heard that these side effects would subside so i continued on for about another 2-3 weeks but they started affecting my life and personality so much. i was so fuckin tired and messed up in the head during the probably from being so out of it, so i stopped using it and have been off of it i would say since mid april. anyway everything soon returned EXCEPT my sleep problems and my emotional problems from it. while i was able to actually physically sleep once off of the drug the quality of my sleep hasn't been the same since. i am not able to hit the deep refreshing sleep that all people get and it seems to be getting slightly worse and worse as the months have gone on. i would say that i haven't gotten a good night's sleep since starting the propecia in march. whenever i wake up it's fuckin weird i still have the same feeling where it's hard to get out of bed and i dont mean just the im tired its early feeling trust me this is a different one its hard to describe though. so in turn without all of this i feel that this is what has contriuted to a lot of my personality changes lately, my mood swings, my depression, my more passive attitude. granted i am depressed about the hair loss but before the propecia i never had problems sleeping and emotionally as well etc. i ahve only recently fully linked all of this back to the propecia and after seeing others who have taken it and suffered from it plus the symptoms i have there is no doubt in my mind i have adrenal fatigue syndrome and am hoepfully going to go to a doctor very soon so i can have all my hormones and blood work checked etc. i did a search and all of my symptoms macth adrenal fatigue dead on i mean tons of stuff. granted ed is actually one of them and my libido is pretty good, returned to normal and all etc so i cant say that it was permanetly affected also.
i also did a search to see if adrenal fatigue causes hair loss or has caused TE as well and has further made my hair loss worse by perhaps setting off another bout of TE etc. however adrenal fatigue doesn't seem to cause or have hair loss like a TE and in general associated with it. However from what i feel i think that perhaps since i haven't been able to reach REM sleep for months my body hasnt been able to repair itself and thus the whole situation hasn't really helped my TE. i am currently looking into some way to get my REM sleep back so i hopefully can at least live a normal life cause the whole sleep thing has slowly gotten out of control and is really starting to affect me. i cant find a regular sleeping pattern and never feel refreshed after sleeping, i get bouts of fatigue throughout the day and rarely have the energy burt i used to, granted working out i am still able to do, and i also just emotionally am depressed and out of it i think because of all of it. i am so much more passice than i used to be and a lot of it has to do witht the fact that i just dont feel right most of the time. in my search for reaching deep sleep again the best thing i have come up with has actually been GHB. i had no clue the same drug some of my friends take at raves is actually benefical to you in small doses and has healing properties, it seems to really, i dunno ill post a link about it later. anyway, it is acutally a sleeping drug in the US and is very illegal to have here unless it is prescribed and the US Govt keeps tight control on it so im viewing alternative substances that are close to it.
Was the whole adrenal fatigue strictly caused by the propecia well i think so but i think maybe cause i took the propecia after only a couple months off tane the combo may have nto helped or the accutane weakened my system to the point where it could happen etc. however, all i know is that my life is just at an all time low now because of all of this. the hair loss, the adrenal fatigue, and now the wanting to go back on propecia but obviously and probably cant etc. this is by far the lowest point i have ever been in in my life i can clearly state that. anyway just felt like telling everyone of my situation and venting a little so take it in if you want. and yes dolph i am worrying about my hair loss look at my pics.
Judging by the pics you posted, my hairloss looks exactly like yours, ithappens. I think i got off the tane about a month after you did, and my hairloss has been steady since month 3 of treatment. If i ever hear that your hairloss slows down or stops, you have no idea how relieved i'll be. I'm not using any supplements currently. I thought about biotin, rogaine, and propecia, but i'm afraid of the side effects. I'm gonna give it another month and see.
Well, I'm shedding again. About 50 hairs a day. However, I am in my third week of Rogaine. Perhaps that is what is causing my shedding. But extremely distressing, to say the least.
well good luck i would try it but since rogaine adds shed to the already large daily sheds i have with my hair i decided not to use it. it would just be a complete disaster right now. as of now im just trying to get through the next couple of weeks, get to a doctor, and figure out what's wrong with me
i would also just like to state that despite of my probable horrible outcome with this situation i really find comfort in what we've been doing here. we have a group of people who are not only dedicated to their problem and finding a solution to it, but also willing to take the time to look at various items such as why and how this is happening, and everyone's individual case. we have our own coalition here. i mean look at what we've compiled so far. in the future if people have questions or issues as to accutane and hair loss there will be a vast amount of information and experience laid out before them over a period of time chronologically. we have put more time and effort into this than most people out there and it shows by us going to 14 pages on here. we own this site.
i would also just like to state that despite of my probable horrible outcome with this situation i really find comfort in what we've been doing here. we have a group of people who are not only dedicated to their problem and finding a solution to it, but also willing to take the time to look at various items such as why and how this is happening, and everyone's individual case. we have our own coalition here. i mean look at what we've compiled so far. in the future if people have questions or issues as to accutane and hair loss there will be a vast amount of information and experience laid out before them over a period of time chronologically. we have put more time and effort into this than most people out there and it shows by us going to 14 pages on here. we own this site.
Here here. You're exactly right, ithappens.
i would also just like to state that despite of my probable horrible outcome with this situation i really find comfort in what we've been doing here. we have a group of people who are not only dedicated to their problem and finding a solution to it, but also willing to take the time to look at various items such as why and how this is happening, and everyone's individual case. we have our own coalition here. i mean look at what we've compiled so far. in the future if people have questions or issues as to accutane and hair loss there will be a vast amount of information and experience laid out before them over a period of time chronologically. we have put more time and effort into this than most people out there and it shows by us going to 14 pages on here. we own this site.
Well said man, i have access to pretty much any medication and i will stop at nothing to try and find a cure for this, worst comes to worst, 5 years from now we can have a load of stem cells wacked on our head...lol
My grandad just came round. (Dr for 50 years) due to the fact i have some sort of food poisening. great!! probably make my shedding last another 3 months!
He said that propecia can definently triger shedding for a furthur three months, how long ago did you take propecia now ithappens?, you are probably still shedding from that, and due to the fact it did slow down alot for you and then sped up again, that is probably the case. It also stressed your body in amajor way, so that would definently be possible.
He also said as little as 3-5 weeks after the trigger hair can start falling out... so mypoorhair, same thing goes for you, hate to say it but you will probably shed for another 3 months now!!
well i took propecia for three weeks at .25mg a day, i started at like 1mg for the first week and then dropped down because of sides. at 1mg it seemed to be somewhat helping, but at .25 i dont know how much it was really doing. anyway, i dunno if it caused more of a shed or not etc but i do know that it has fucked up my adrenal galnds majorly. i don't sleep the same way anymore, i have bouts of fatigue, and i've never had this problem before propecia. it's all adrenal fatigue syndrome pretty much. i dunno if it's the propecia alone or a propecia accutane combo, but propecia is a very powerful drug, and it's effects can be just as damaging as accutane in my opinion. anyway, the way i see it i am eventually going to have to take propecia again, but i'm hoping that if i use arimidex and keep my E2 levels down that it will counter all side effects. the thing is though i dont know how the safe the whole propecia idea really is because it can change and shut down you natural hormone production which i think it has done with me.
My grandad just came round. (Dr for 50 years) due to the fact i have some sort of food poisening. great!! probably make my shedding last another 3 months!He said that propecia can definently triger shedding for a furthur three months, how long ago did you take propecia now ithappens?, you are probably still shedding from that, and due to the fact it did slow down alot for you and then sped up again, that is probably the case. It also stressed your body in amajor way, so that would definently be possible.
He also said as little as 3-5 weeks after the trigger hair can start falling out... so mypoorhair, same thing goes for you, hate to say it but you will probably shed for another 3 months now!!
yea but i think i do really have chronic TE because the loss does eventually slow itself down and stabilize at some point. thing is most of the hairs i lose are longer ones however i am regrowing my hair because i am noticing that i am losing short hairs as well at times. however it's not like i'm noticing it at all. my loss is still pretty severe some days are better than others but i just lost like 30 already today and it just started so today is gonna be a bad one. usually the loss is between 30-50 now.
If your shedding did slow right down for a while i would assume that is what has happened, I genuinly think it will stop again, chronic TE would not of stopped at all....
yea but i think i do really have chronic TE because the loss does eventually slow itself down and stabilize at some point. thing is most of the hairs i lose are longer ones however i am regrowing my hair because i am noticing that i am losing short hairs as well at times. however it's not like i'm noticing it at all. my loss is still pretty severe some days are better than others but i just lost like 30 already today and it just started so today is gonna be a bad one. usually the loss is between 30-50 now.
If your shedding did slow right down for a while i would assume that is what has happened, I genuinly think it will stop again, chronic TE would not of stopped at all....
Chronic TE, you would continue to shed 100's of hairs a day. I'm still loosing well over 100, although i think it may be gradually slowing down, but in a rather wierd way, some days i will loose the same as normal then other days slightly less, and it seems like the days which i loose sloghtly less are becoming more common, if you see what i'm saying.
My grandad just came round. (Dr for 50 years) due to the fact i have some sort of food poisening. great!! probably make my shedding last another 3 months!He said that propecia can definently triger shedding for a furthur three months, how long ago did you take propecia now ithappens?, you are probably still shedding from that, and due to the fact it did slow down alot for you and then sped up again, that is probably the case. It also stressed your body in amajor way, so that would definently be possible.
He also said as little as 3-5 weeks after the trigger hair can start falling out... so mypoorhair, same thing goes for you, hate to say it but you will probably shed for another 3 months now!!
What did your grandfather have to say about Accutane hair loss in particular?
He simply said (in my case) he isn't suprised at all that my hair is falling out, but that again in my case it should begin to slow down after three months, due to the fact mine started 5 weeks after i finished. He has seen people loose hair to accutane and it has always return to normal eventually... He hasn't seen vast numbers with accutane induced hairloss mind you.