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The answers I got from my doctor about hair loss

 
MemberMember
2
(@_andy_)

Posted : 06/11/2007 10:21 am

My hair feels 100% normal to someone else. To me it feels ever so slightly more dry than normal. Although if i don't wash it every day it goes oily if anything, the slight curling i had at the front also seems to of grown out.. My hair is actually more managable than ever. I can however start to see my scalp where i couldn't before :S

 

Pic below was taken last week, to me my hair looks alot thinner, i would say 30%(yes i was wasted)....

http://i206.photobucket.com/albums/bb298/l...pg?t=1181572475

 

 

This time last year...

Has been thinned alot in this pic...

 

Sorry about the photos i'm just trying to show you how thick it was....No one can tell yet even when i point it out.....But it already looks alot different to me... I will take some with my phone and put them on here after i get my transfer cable. If i lift up my hair just above my ear you can see how much has gone...

 

Lamarr,

 

My hair loss looks like yours. I'll post pictures soon.

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 10:21 am

my mom had TE twice, once from child birth and once from stress from her job. she said she doesn't know how long it lasted, but it did grow back. she said it lasted a long time, as she recalls. she also said she used to almost cry from the globs of hair in the bottom of the shower drain, which would be consistent to what i see after a shower.

 

 

My mum's hairloss lasted about 3 month's each time she tells me. I'm wondering if i should be similar... My mum has extremely long hair, It used to be past her knee's and she is 5 ft 8. This indicates she has a very long anagen growth stage (10years+) Her telogen stage is probably pretty average, where as i feel mine should be shorter due to it being so thick.

David, i would think yours will start to slow off soon, when you get to around 5 months post tane...Don't be worried at all if it doesn't though, because this problem doesn't seem to have much of a pattern or rule to it.

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 10:25 am

My hair feels 100% normal to someone else. To me it feels ever so slightly more dry than normal. Although if i don't wash it every day it goes oily if anything, the slight curling i had at the front also seems to of grown out.. My hair is actually more managable than ever. I can however start to see my scalp where i couldn't before :S

 

Pic below was taken last week, to me my hair looks alot thinner, i would say 30%(yes i was wasted)....

http://i206.photobucket.com/albums/bb298/l...pg?t=1181572475

 

 

This time last year...

Has been thinned alot in this pic...

 

Sorry about the photos i'm just trying to show you how thick it was....No one can tell yet even when i point it out.....But it already looks alot different to me... I will take some with my phone and put them on here after i get my transfer cable. If i lift up my hair just above my ear you can see how much has gone...

 

Lamarr,

 

My hair loss looks like yours. I'll post pictures soon.

 

 

Do you think the texture of mine has changed then? I feel it is pretty similar, it is actually easier to manage now due to it being so much thinner...

 

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 11:00 am

I'm so tempted to just go shave my hair off, only reason i am keeping it is i want to count the number of hairs i loose to see if it is slowing...

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MemberMember
1
(@ithappens)

Posted : 06/11/2007 11:02 am

lamar if the texture of your hair changed even slightlt trust me you would know. there could be a little dyness and all but with my hair the texture started changing about half way through the course and it has become curly thin and wirery all over. when i use nizoral shampoo it seems to help with the texture a little bit just thought i point that out. and yes i do notice the diffuse loss on the sides something that i have as well however your loss in the front top part doesn't seem that bad. i used to be able to wear my hair long like yours and in less than a year i can't because i don't have enough hair left in front to do so. also the back part of my crown is diffusing badly too. i would say i lost 60% of my hair maybe more. and i also do shed a tremendous amount on my pillow as well.

 

 

My hair feels 100% normal to someone else. To me it feels ever so slightly more dry than normal. Although if i don't wash it every day it goes oily if anything, the slight curling i had at the front also seems to of grown out.. My hair is actually more managable than ever. I can however start to see my scalp where i couldn't before :S

 

Pic below was taken last week, to me my hair looks alot thinner, i would say 30%(yes i was wasted)....

http://i206.photobucket.com/albums/bb298/l...pg?t=1181572475

 

 

This time last year...

Has been thinned alot in this pic...

 

Sorry about the photos i'm just trying to show you how thick it was....No one can tell yet even when i point it out.....But it already looks alot different to me... I will take some with my phone and put them on here after i get my transfer cable. If i lift up my hair just above my ear you can see how much has gone...

 

Lamarr,

 

My hair loss looks like yours. I'll post pictures soon.

 

 

Do you think the texture of mine has changed then? I feel it is pretty similar, it is actually easier to manage now due to it being so much thinner...

 

 

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MemberMember
2
(@_andy_)

Posted : 06/11/2007 11:03 am

My hair feels 100% normal to someone else. To me it feels ever so slightly more dry than normal. Although if i don't wash it every day it goes oily if anything, the slight curling i had at the front also seems to of grown out.. My hair is actually more managable than ever. I can however start to see my scalp where i couldn't before :S

 

Pic below was taken last week, to me my hair looks alot thinner, i would say 30%(yes i was wasted)....

http://i206.photobucket.com/albums/bb298/l...pg?t=1181572475

 

 

This time last year...

Has been thinned alot in this pic...

 

Sorry about the photos i'm just trying to show you how thick it was....No one can tell yet even when i point it out.....But it already looks alot different to me... I will take some with my phone and put them on here after i get my transfer cable. If i lift up my hair just above my ear you can see how much has gone...

 

Lamarr,

 

My hair loss looks like yours. I'll post pictures soon.

 

 

Do you think the texture of mine has changed then? I feel it is pretty similar, it is actually easier to manage now due to it being so much thinner...

 

 

Hi,

 

Unfortunately, I can't tell whether or not the texture of your hair has changed. Which means, by the way, that from the pictures, the texture looks the same as always. My hair is just extremely dry.

 

My theory, as I've said before, is that the hair loss should last as long as the Accutane stays in one's system (depending on individual dosage) plus 100 days of telogen. So, theoretically, 2 months + a little more than 3 months. About 5.25 months.

 

Of course, it's been known to last longer. You're right: there's no rhyme or reason to this.

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 11:35 am

Just out of interest, ithappens and mypoorhair... After you have had a shower, does your face still feel tight? and do you use a moisturiser on your face?

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 12:55 pm

"Holy shit, Julius. You have lupus. Inflammation of the hair follicles, hands and feet sensitive to cold, and cold sores. "

 

That is exactly what i thought at one stage as well! I agree that all the symtoms i have described point to an autoimmune cause, and i do think that this may be the underlying mechanism that was triggered by accutane causing my hair loss etc.

 

In 2004 I went to see an Immunologist to discuss this exact point. I was put through a barrage of blood tests (had to go to the hospital to get blood done because they needed 25 or so vials for the tests! some had to be instantly frozen and stuff it was pretty crazy) and some other imaging tests. Was fully examined for rashes and all sorts of things. The results were all negative and they were unable to find evidence of any identifiable autoimmune conditions.

 

Most forms of hair loss involve the immune system.

 

Julius, have you tried a corse of oral steroids?

 

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MemberMember
2
(@_andy_)

Posted : 06/11/2007 2:21 pm

Just out of interest, ithappens and mypoorhair... After you have had a shower, does your face still feel tight? and do you use a moisturiser on your face?

 

My face is still dry and tight after showers.

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MemberMember
1
(@ithappens)

Posted : 06/11/2007 6:44 pm

no i wouldnt say that my skin or face feels tight after i get out of the shower anymore, and i dont use a moistrizer on my face.

 

Just out of interest, ithappens and mypoorhair... After you have had a shower, does your face still feel tight? and do you use a moisturiser on your face?

 

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MemberMember
0
(@julius)

Posted : 06/11/2007 7:33 pm

Nope i've never had a course of oral steriods.

 

You guys hair loss does look similar to mine around the same period of time after accutane.

 

No one bar myself could notice the hair loss until 3+ years after accutane..

 

i actually still had enough to use hair gel and products and it was still completely undetectible until about 4 years post accutane..

 

anyways im off the forums for a while guys... slipping back into my old habbits of letting thisshit rule my life, refreshing forums etc... i'll check back in from time to time

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 7:58 pm

Nope i've never had a course of oral steriods.

 

You guys hair loss does look similar to mine around the same period of time after accutane.

 

No one bar myself could notice the hair loss until 3+ years after accutane..

 

i actually still had enough to use hair gel and products and it was still completely undetectible until about 4 years post accutane..

 

anyways im off the forums for a while guys... slipping back into my old habbits of letting thisshit rule my life, refreshing forums etc... i'll check back in from time to time

 

Try the oral steroids man, I'm pretty certain it would help if you have inflamation of the follicles. My dad is often right on these things. He spotted my sycosis barbae when the dermotologist failed to. The logic behind it is there....

 

Anyway man, i understand what your saying, Best of luck trying to get over the issue man...

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 8:59 pm

Mypoorhair, mate, did your hair just suddenly stop shedding one day or did it gradually slow down? most articles seem to suggest the latter, but im after your personal experience.

Last 3-4 days, mine seems to slow down in general, but only at certain times of the day, it's very strange, other times of the day, it does seem slightly slower, but not considerably. Like at the moment i can run my hands through many many times and get nothing, where as at other times of the day i would get a 2 at a time sometimes...

In general, and im probably going to jinx it, but it does seem to be slowing down slightly...

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MemberMember
2
(@_andy_)

Posted : 06/11/2007 9:57 pm

Mypoorhair, mate, did your hair just suddenly stop shedding one day or did it gradually slow down? most articles seem to suggest the latter, but im after your personal experience.

Last 3-4 days, mine seems to slow down in general, but only at certain times of the day, it's very strange, other times of the day, it does seem slightly slower, but not considerably. Like at the moment i can run my hands through many many times and get nothing, where as at other times of the day i would get a 2 at a time sometimes...

In general, and im probably going to jinx it, but it does seem to be slowing down slightly...

 

Well, mine just stopped. But it may have been slowing down the whole time. The thing with me is that I would periodically rub my head to make as much fall out as possible - because I'm a masochist.

 

Remember: mine stopped falling out at 3.5 months. If you're around that mark, your hair fall might stop soon, too. But I don't want to jinx it for you either.

 

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 10:02 pm

Only at 6 weeks man, I am 3 months post tane, but i'm definenelty hopeing way to much!!!

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MemberMember
1
(@ithappens)

Posted : 06/11/2007 10:10 pm

welli'm fucked it's buzz time probably in the next month or so that or propecia combined with some arimidex. more drugs more drugs

 

 

Nope i've never had a course of oral steriods.

 

You guys hair loss does look similar to mine around the same period of time after accutane.

 

No one bar myself could notice the hair loss until 3+ years after accutane..

 

i actually still had enough to use hair gel and products and it was still completely undetectible until about 4 years post accutane..

 

anyways im off the forums for a while guys... slipping back into my old habbits of letting thisshit rule my life, refreshing forums etc... i'll check back in from time to time

 

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 10:29 pm

welli'm fucked it's buzz time probably in the next month or so that or propecia combined with some arimidex. more drugs more drugs

 

 

Nope i've never had a course of oral steriods.

 

You guys hair loss does look similar to mine around the same period of time after accutane.

 

No one bar myself could notice the hair loss until 3+ years after accutane..

 

i actually still had enough to use hair gel and products and it was still completely undetectible until about 4 years post accutane..

 

anyways im off the forums for a while guys... slipping back into my old habbits of letting thisshit rule my life, refreshing forums etc... i'll check back in from time to time

 

 

 

Is that to combat the estrogen side effects? the arimidex i mean...

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MemberMember
1147
(@lamarr1986)

Posted : 06/11/2007 10:58 pm

You should perhaps try the propecia at a lower dose first man... you may not need the armimidex.

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MemberMember
1
(@ithappens)

Posted : 06/12/2007 1:27 am

You should perhaps try the propecia at a lower dose first man... you may not need the armimidex.

 

dude i tried propecia for three weeks at .25mg and had bad sides so im pretty sure i would need the arimidex to combat the excess estrogen. since my hair loss is similar to julius's then i probably will have the same long term hair loss and all. so as of now im pretty paniced. i guess i should really start right on propecia and arimidex but i want to just wait it out for a little while longer and enjoy the next couple of weeks before i either buzz it off or go on the drugs. i'm sure the drugs will have a lot of side effects so i will have to make a choice whether i want more problems or hair so i dunno.

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MemberMember
0
(@davidhatesacne)

Posted : 06/12/2007 2:53 am

does propecia stop hair loss or make hair regrow, or does it just slow it down a bit?

 

i'm going to wait a month, maybe two longer before i worry about that. i've always thought that propecia was for MPB and that since we have something completely different it won't really help.

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MemberMember
1
(@ithappens)

Posted : 06/12/2007 7:40 am

does propecia stop hair loss or make hair regrow, or does it just slow it down a bit?

 

i'm going to wait a month, maybe two longer before i worry about that. i've always thought that propecia was for MPB and that since we have something completely different it won't really help.

 

propecia is used mainly to treat MPB by stopping the conversion of testosterone to DHT. It's not as much a factor at regrowing hair but more or less maintaining what you have although many people do regrow hair while on it. Yes while our hair loss is diffuse and different my derm said that it has also been known to help people dealing with chronic TE. why and how he doesn't know but it has helped he said. i'm thinking to myself that if i can take it along with arimidex that i may be able to stop any of the sides associated with it. david as far as you worrying about it i wouldn't just yet you still have pleanty of hair where your loss probably isn't apparent or close to it while mine has become very bad and noticeable. just wait it out and see what happens. even in the pretty bleak condition i have i am going to wait it out till the end of the month or so.

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MemberMember
1147
(@lamarr1986)

Posted : 06/12/2007 10:56 am

Just been to the derm... Had a stand in derm as my normal one was on holiday. He said he hasn't seen TE in accutane users before...but has seen it in methotrexate (a stronger retinoid used for treatment of psoriasis)....

He seemed pretty confident that it would resolve and kind of laughed at me because my hair still appears perfectly normal, which is highly frustrating...

The nurse however (my normal derms nurse) thought the trigger could easily be the brain swelling i suffered from, so we shall see...

He said his patients on methotrexate suffering from TE recovered just fine and that is far harsher and they are on it for longer than our 5-6 months courses...

 

Just thought i would let you all know. Hope your all holding in there!!!

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MemberMember
1147
(@lamarr1986)

Posted : 06/12/2007 11:23 am

You should perhaps try the propecia at a lower dose first man... you may not need the armimidex.

 

dude i tried propecia for three weeks at .25mg and had bad sides so im pretty sure i would need the arimidex to combat the excess estrogen. since my hair loss is similar to julius's then i probably will have the same long term hair loss and all. so as of now im pretty paniced. i guess i should really start right on propecia and arimidex but i want to just wait it out for a little while longer and enjoy the next couple of weeks before i either buzz it off or go on the drugs. i'm sure the drugs will have a lot of side effects so i will have to make a choice whether i want more problems or hair so i dunno.

 

 

Once you have been on the arimidex and propecia for several months, you would probably be ok to slowly tapper off the arimidex. Syrum levels of free testosterone increase over time with use of propecia. And with side effects such as gyno, it's more about the balance of estrogen/testosterone. Not simply the seperate levels of each, so when your levels of testosterone increase from the use of the propecia, the balance will become more stabalised again over time. I think that is also why people who persevere through the side effects often see them diminish...

 

 

 

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MemberMember
2
(@_andy_)

Posted : 06/12/2007 11:26 am

Just been to the derm... Had a stand in derm as my normal one was on holiday. He said he hasn't seen TE in accutane users before...but has seen it in methotrexate (a stronger retinoid used for treatment of psoriasis)....

He seemed pretty confident that it would resolve and kind of laughed at me because my hair still appears perfectly normal, which is highly frustrating...

The nurse however (my normal derms nurse) thought the trigger could easily be the brain swelling i suffered from, so we shall see...

He said his patients on methotrexate suffering from TE recovered just fine and that is far harsher and they are on it for longer than our 5-6 months courses...

 

Just thought i would let you all know. Hope your all holding in there!!!

 

Hi Lamarr,

 

Good to know the doctor sees recovery with stronger retinoids than Accutane.

 

Did he give you any kind of timeframe of recovery?

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MemberMember
1147
(@lamarr1986)

Posted : 06/12/2007 11:37 am

Just been to the derm... Had a stand in derm as my normal one was on holiday. He said he hasn't seen TE in accutane users before...but has seen it in methotrexate (a stronger retinoid used for treatment of psoriasis)....

He seemed pretty confident that it would resolve and kind of laughed at me because my hair still appears perfectly normal, which is highly frustrating...

The nurse however (my normal derms nurse) thought the trigger could easily be the brain swelling i suffered from, so we shall see...

He said his patients on methotrexate suffering from TE recovered just fine and that is far harsher and they are on it for longer than our 5-6 months courses...

 

Just thought i would let you all know. Hope your all holding in there!!!

 

Hi Lamarr,

 

Good to know the doctor sees recovery with stronger retinoids than Accutane.

 

Did he give you any kind of timeframe of recovery?

 

 

He said 6 months is often long enough to see the shedding stop (once the drug is stopped), sometimes longer is needed though. Thickness going back to normal he didn't really say, but he said they did recover eventually!!

 

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