Hi,

I have a same to condition as all of you have, so I went to derm he diagnosed me with papulopustular rosacea. He perscribed me with subantimicrobial dose of doxycycline (40mg), and metronidazole gel. I am wondering if any of you have tried any of those treatments?

@ArtWhitelock I suggested this a few days ago after doing some research. Rosacea type 2 was my guess. I think I could potentially have that which is why I™m so keen to try this Sulphur soap, its meant to help Rosacea, bacterial and fungal Acne hugely.. ideally I don™t want to use antibiotics as it™s  not a long term solution I have heard of the gel you mention though. I™m going to trial the sulphur soap for a couple of weeks and go from there, maybe try that also for yourself.. Nizoral has been working well for me I™m just trying to fine tune everything, I haven™t had a pustule on my chin for a couple of days now but I let my face air dry yesterday after the shower and broke out pretty bad on my right cheek which is so bizarre I™m sure it was the air drying that contributed to this as my face was really oily in the afternoon which it™s not normally. You can see from my picture chin has been clear for a few days now but right cheek broke out yesterday and it was fine in the morning, so strange. I really believe it had something to do with letting my face air dry after the shower and not patting with a towel, sounds crazy right.. the dryer my skin the better! I exfoliated the dead skin away a couple of days ago with sugar and it worked well, perhaps caused a bit of irritation from this as it™s more inflammation than pustules which is not typical of my face. 

@jcbdigger365It looks more like folliculitis to me. The breakouts are near hair follicles. I suggest BP wash. I tried sulfur before and it only dried the hell out of me and caused more breakouts. I tried rosacea medication such as soolantra and oral metrodonizale and it didnt work either. If I were you try BP.

Guys, I know this sounds greedy, but I really just want to find a cure for this and not have to apply ointments, creams, and use BP face washes everyday, because I know these chemicals aren't very healthy for you in the long term. Even though I know the BP route will reduce the amount of pustules greatly, I really yearn for a 100% cure. I'm feeling so depressed lately, and losing hope on this. I know it's superficial, but it's taking a huge toll on my confidence and social life.

Well guys, went to a derm, and I have Rosacea type 2, I bloody knew it! She said its easily confused with fungal but its definitely type 2. I mentioned the sulphur soap which I will start tonight and also been given Azelaic Acid Rx. I mentioned everything Ive been doing and she said its important to moisturise and said perhaps try Eucerin Urea 5% as its also a mild exfoliant. So I guesss il keep you posted as each day passes, also mentioned the key to moisturiser was to pat face not rub avoid physical exfoliation at least to being with. Also not to go all in at once start with sulphur soap for a few days and moisturise then add in the Acid.. also she mentioned some patient had success with oral MSM so Ive ordered that also. I guess I should of realised when I get the occasional flush in the face eating hot food. So here we go chaps.. might be worth considering the same for you also. For reference its called Papulorpustular Rosacea.

5 hours ago, FungalAcne said:

Guys, I know this sounds greedy, but I really just want to find a cure for this and not have to apply ointments, creams, and use BP face washes everyday, because I know these chemicals aren't very healthy for you in the long term. Even though I know the BP route will reduce the amount of pustules greatly, I really yearn for a 100% cure. I'm feeling so depressed lately, and losing hope on this. I know it's superficial, but it's taking a huge toll on my confidence and social life.

I'm living the same feeling. This conditionsis so difficult to bear psychologically. Before, when I was 80% clear during several days or weeks after testing a new solution, I said myself "wow,it's past now, it have been hard but now I'm better, I can resume a normal life" and some days after, the pimples came back and so I was depressed again... Now, Ithink about it all the time even when I'm almost clear.When you have this disease, you feel sick, dirty, uncomfortable all the time even if you are not in a breakout.
A lot of classic situations become difficult : travel, camping, sleeping and wok up with a girl, not having a bathroom during 48h...It's not like a classic disease, skin conditions are sadic.
Some spiritual books (especially bouddhism wich speak a lot about happiness and suffering) helped me to have a new look on this but it never is durable, I fall again everytime in depression during a folliculitis breakout.
Perhaps, the worse is that no one of my family or my friends know what I'm living, because, certainly like you, I hide all of that.
So, effectively, only a real curation of folliculitis, identifying the root cause, could be a real satisfaction.

Can I ask how do you manage this condition and your personnal and sentimal life ?

Furthermore, some of you know if folliculitis decrease from some age ?

@Dsophobe Hey man, don™t let it control you™re life, I have had it really bad sometimes but I™ve never let it control my life in the slightest. Always live your life to the fullest people don™t judge you on this condition, I lead an exceptional life which all my friends envy yes I look a mess facially but never let that hold you back. As sufferers we pick up on every little detail on our face but others don™t, please don™t let it get on top of you, embrace life my man! I was only taking yesterday about it with my dad and it™s pretty bad at he moment and he doesn™t really notice because personality shines through.. besides we can talk about it etc talking about it helps  we are in it together. 

There are plenty of people having issues with it. You are not alone.

@FungalAcnePerhaps maybe there is no cure and there is only ways to control it. Im 100 percent clear with BP wash and I dont mind. Some people are slave to skincare routines and other to diets in order to avoid breakouts. My bp wash is 7 dollars and it lasts me almost a month. Its something I can buy at walgreens and dont need a prescription. Im fine with that. It saved me from being self conscious every minuted of the day. From cancelling dates with girls. From going to the bathroom in every place just to look at my skin.

Anyway, thank you all to be here and discuss about your conditions and your cure  

@Thinker5 : I often think about the same thing.. any doctor or biologist having to fight against this condition would become the best skin immunoligist of the world !
Biofilm are a very insteresting way !

Yes. Someone that understands and is experiencing it themselves would help.

Are you all me?!

Wow.

I'm a long time lurker, suffering from the same symptoms for years now. Here's what I was told at a recent (UK) derm appt:

- diagnosed with resistant folliculitis

- advised to have bacterial swabs of ears, nose,armpitsand groin.

- suggested 12 weeks of 2 antibiotics to eliminate bacteria (whether staph or gram-neg) - this is pending a blood test as I have a raised ALT level (perhaps an after-effect ofaccutane)

- potentially suggested to also topically target bacteria (ears, nose etc), dependent on results of swabs.

I read that antibiotics can often do more harm than good, and at best are a short-term relief. However, Derm seems knowledgeable, very friendly, and he's confident this treatment should be effective. I'm paying to see him privately, and will book another appt soon (following swab/blood results).

BACKGROUND

Always assumed this was just a milder form of post-Accutane acne, but after much research decided to look further.

Here's me:

1. 28yo male.
2. Oiliest man alive
3. Seb Dermatitis
4. 2x Accutane courses for severe acne
5. Recently diagnosed with chronic folliculitis by derm.
6. Currently use Epiduo (BP & Adaplene) every evening
7. Started Sulphur masks recently (seems to help reduce Seb Derm flares)
8. Used Hibiclens as a cleanser for years (not in ears or nose though) and noticied little to no diff

Thought it was about time I started contributing and being a little less selfish on my search for skin. It pains me to say, but this has truly been ruining my life for several years.

JCBdigger365, your posts have been particularly helpful, so cheers mate. Interesting that you've been diagnosed. as papo-pustular rosacea - my derm never mentioned this, although our breakouts look almost identical.

Will post any updates in here as and when they come, we may be in this for the long-haul.

Morning guys, just an update on the vicious cycle! I have been using the sulphur soap morning and night the shedding of dead skin is insane, yesterday I developed 3 new pustules during the day. So I have 5 now, yippppeee! I really like the sulphur soap though, I had a thick layer of dead skin on my face and I think that again contributed to these new outbreak, I cant say for sure so last night I exfoliated skin with raw honey and raw oats, my face felt so sooothed afterwards and it got rid of the flakes relatively easily. Im going to exfoliate this way every other day to see if this helps rid the dead skin, I know sulphur sheds the top layer of skin so sort of expected it initially, its only been 3 days so too soon to tell but I prefer the sulphur soap to Nizoral 100%. My Azelaic Acid arrived yesterday but Im not going to use it just yet, I will try without for a while and see how I get on then if no improvements after a couple of weeks ish then I will add this also. Im still baffled why its only on the right side of my face, however my left side just looks stronger and less cracksof that makes sense. Just to reiterate what Im currrently doing, sulphur soap 10% morning and night for a maximum of 30 seconds on face to avoid drying. Exfoliate every other day with raw Manuka honey and grinding raw oats (leave on face for 10 minutes) no moisturiser at all yet. I think its important not to try to much at once as you will not no which particular part of the routine is having an effect. I also bought some MSM suppplement but I havent included that either.

I have a quick question - how long did it take to see the benefits of benozyl peroxide. My face is clearer after two weeks now, but still hace a couple of whiteheads popping up here and there (although they are not as big as before)

I wonder if its better to use the bp day and night which i am, and use include the sulpur soap in my regimen.

9 hours ago, TaralliMonster said:

Are you all me?!

Wow.

I'm a long time lurker, suffering from the same symptoms for years now. Here's what I was told at a recent (UK) derm appt:

- diagnosed with resistant folliculitis

- advised to have bacterial swabs of ears, nose,armpitsand groin.

- suggested 12 weeks of 2 antibiotics to eliminate bacteria (whether staph or gram-neg) - this is pending a blood test as I have a raised ALT level (perhaps an after-effect ofaccutane)

- potentially suggested to also topically target bacteria (ears, nose etc), dependent on results of swabs.

I read that antibiotics can often do more harm than good, and at best are a short-term relief. However, Derm seems knowledgeable, very friendly, and he's confident this treatment should be effective. I'm paying to see him privately, and will book another appt soon (following swab/blood results).

BACKGROUND

Always assumed this was just a milder form of post-Accutane acne, but after much research decided to look further.

Here's me:

1. 28yo male.
2. Oiliest man alive
3. Seb Dermatitis
4. 2x Accutane courses for severe acne
5. Recently diagnosed with chronic folliculitis by derm.
6. Currently use Epiduo (BP & Adaplene) every evening
7. Started Sulphur masks recently (seems to help reduce Seb Derm flares)
8. Used Hibiclens as a cleanser for years (not in ears or nose though) and noticied little to no diff

Thought it was about time I started contributing and being a little less selfish on my search for skin. It pains me to say, but this has truly been ruining my life for several years.

JCBdigger365, your posts have been particularly helpful, so cheers mate. Interesting that you've been diagnosed. as papo-pustular rosacea - my derm never mentioned this, although our breakouts look almost identical.

Will post any updates in here as and when they come, we may be in this for the long-haul.

Strange how we are many to suffer Seb Dermatitis in the same time...
Strange that Accutane helped to reduce my folliculitis but causes folliculitis to others..
If you have whiteheads in other places than your face, it is certainly folliculitis and no rosacea. Do you have pimples in your beard area or scalp ?
Be carreful with antibiotics, my folliculitis has spread on my face after cures of cycline and fuicidine on face..

46 minutes ago, Silverinca said:

I have a quick question - how long did it take to see the benefits of benozyl peroxide. My face is clearer after two weeks now, but still hace a couple of whiteheads popping up here and there (although they are not as big as before)

I wonder if its better to use the bp day and night which i am, and use include the sulpur soap in my regimen.

Did you use Hibiclens in your nose and on your face during some days like silverlight22 advised ?
I also try BP since 4 days (but only a 5% BP gel) : good result but still have some very small whiteheads too. By using a BP cleanser and Hibiclens in addition, I think it will be very good. Furthermore, I didn't try BP on my scalp (I'm waiting to receive the BP cleanser).

A question for any of you guys who have used Sulphur, my face is insanely flaky after use does this subside or did you just combat it with moisturising, the flaking is brutal at the moment lie a layer of white!

2 hours ago, jcbdigger365 said:

A question for any of you guys who have used Sulphur, my face is insanely flaky after use does this subside or did you just combat it with moisturising, the flaking is brutal at the moment lie a layer of white!

Hey man,

I use 'De La Cruz', a sulphur leave-on mask, rather than a wash. Still, I notice zero flaking at all.

Perhaps my skin is used to harsh BP and retinoid treatments, but compared to those, I find the Sulphur fairly mild. I always use Cerave PM though, I'm sure my skin would be ridiculously dry if not.

The leave onmay be an option for you if you continue to experience excessive flaking with the wash.

3 hours ago, Dsophobe said:

Strange how we are many to suffer Seb Dermatitis in the same time...
Strange that Accutane helped to reduce my folliculitis but causes folliculitis to others..
If you have whiteheads in other places than your face, it is certainly folliculitis and no rosacea. Do you have pimples in your beard area or scalp ?
Be carreful with antibiotics, my folliculitis has spread on my face after cures of cycline and fuicidine on face..

8

I do have scalp acne/folliculitis and occasionally get relatively mild chest breakouts. I would definitely suspect folliculitis over roseceatoo. Interesting that JCBdigger365 has been told otherwise though. Hmmm.

My new derm says he has treated somebody similar to me and they achieved full remission of symptoms. Can't find (m)any cases on this online though, really. But I have to say., he's the best Derm I've ever seen... and it's not close.

In the meantime, I'm focusing on trying to build my gut health as much as possible. That way, if I do decide to take the antibiotics I may face less damage to the microflora.

----------

Are there any other small communities of sufferers of this condition that you folks visit?

I use a few websites for acne, fungal acne,and sebdermatitis info. Doesn't seem to be much out there for chronic, resistant facial folliculitis though.

Maybe putting a similar resource website together is a project I could work on - documenting any treatment options, without having to searchindividual forum posts and piece things together. Would take some time, so IDK. Just a thought.

If you tell people a condition is rare, then they can't demand better treatments. F that shit. That's why there are organizations for conditions demanding better treatments or at least putting pressure on the medical community to find them.

@TaralliMonsterUse only BP. Dont use epiduo since it has other stuff in it. BP wash on scalp and face. The shampoo u are using may contribute to ur breakouts.

@Silverincato be fully clear it took me like a month. I noticed that if I got a pimple it was way smaller and non inflamed and lasted very little. Eventually I didnt get anything anymore. Now if I get a pimple is maybe once a month and its very small and non inflamed and its probably irritation from the shaving. My lymph nodes behind the scalp shrinked to normal size. Lymph node enlargement is a sign of infection. I was infected probably with gram negative folliculitis which happens to flourish in very oily skin which I have or misuse of antibiotics. I still follow my routine. BP wash for scalp and face at least once a day. Now I dont have seb derm neither acne. Im clear.

11 hours ago, jcbdigger365 said:

A question for any of you guys who have used Sulphur, my face is insanely flaky after use does this subside or did you just combat it with moisturising, the flaking is brutal at the moment lie a layer of white!

Yes, Sulfur soap dry to much my face and so my face was very flaky...and it scraped me a lot :unbearable!

9 hours ago, TaralliMonster said:

Are there any other small communities of sufferers of this condition that you folks visit?

I use a few websites for acne, fungal acne,and sebdermatitis info. Doesn't seem to be much out there for chronic, resistant facial folliculitis though.

Maybe putting a similar resource website together is a project I could work on - documenting any treatment options, without having to searchindividual forum posts and piece things together. Would take some time, so IDK. Just a thought.

6 hours ago, Thinker5 said:

If you tell people a condition is rare, then they can't demand better treatments. F that shit. That's why there are organizations for conditions demanding better treatments or at least putting pressure on the medical community to find them.

This is exactly what I think. We need a forum or even a specifically dedicated association.
In all countries you find a forum or an association dedicated to psoriasis, Seb Derm or Eczema. So why not for folliculitis ? Lobbying is the key to make progress in research.

Anyone else here who realized that the postules come after eating foods that are high on the glycemic index (GI)?
Here is a list (also note the vegetables) [Edited link out]
I read the original Paleo Diet book by Loren Cordain and it is mentioned that foods high on the GI contribute to acne.

Morning guys, quick update. I don™t want to get to ahead of myself but bloody hell my skin is looking great and it™s only been 5 days! 
Perhaps worth a try.. this is exactly my routine. Rinse face, lather up 10% sulphur soap (Derma Medico) gently rub into face for 20-30 seconds and rinse. That™s it no moisturiser. In the evening rinse face and rub sulphur soap in again for 20-30 seconds, rinse, then I put on a mix of Manuka honey and grided raw oat on my face, leave for 10 mins and rinse if I have dead skin I use the mix to exfoliate whilst it™s on my face if not I just rinse off. Also no moisturiser, the honey is so soothing. I think it™s improtbsnt to use Manuka as opposed to standard honey, both honey and oats are soothing to the skin perfect for over night repair. I have a feeling I may have found the solution as my skin texture is actually changing subtly. I will keep all posted but the initial shedding from the sulphur has drastically reduced. See picture, still have some redness from previous pustules bits it™s reducing day by day. Overall I™m ecstatic!

On 8/19/2018 at 1:44 PM, Maicon said:

Anyone else here who realized that the postules come after eating foods that are high on the glycemic index (GI)?
Here is a list (also note the vegetables): [Edited link out]
I read the original Paleo Diet book by Loren Cordain and it is mentioned that foods high on the GI contribute to acne.

Yes I already spoke about GI on this thread : I suspect it to worse my folliculitis when I eat french fries orpastry for example.

But I don't know if it is the root cause. Perhaps glycemiaaffects the activity of sebaceous glands and therefore exacerbates folliculitis... Furthermore diabetics are prone to folliculitis ..

This is my fcking face right now after listening to a doctor who prescribed me with Mupirocin. It's worse than before. Im literally at my wit's end. I don't know if I should stop using it right now, as its only been 4 days since I started, I don't want to get bacterial resistance to this stuff. Anyone got any advice?                       

@jcbdigger365 Hey man, where did you purchase your manuka honey from? What brand is it?

Any cultures?