dar-wins

Posted by: @FinerFeedback @mizweirdo Please for your own sake don’t bring up scp-189 to your dermatologist. They will immediately mark you down as crazy and dismiss the reality of your symptoms. SCP-...

@mizweirdo NEVER EVER mention that you think it's a parasite to a doctor. That is the quickest way to "Delusional Parasitosis". That's what many people with this illness get put on their medical recor...

Posted by: @MizWeirdo Hi, I created an account just now so I could contribute my voice to this thread. I almost cried when I found it; I've been struggling with this exact issue for at least 10 years...

@prayingforanswers I looked like that as well. Those white things inside the wounds - those *uckers caused me so many issues for a decade. Sending you strength and hope. You are not alone.

Posted by: @Skinshit @prayingforanswers Hi! First of all, thank you for including pictures - this is exactly what I've been dealing with as well! I have previously thought about this being folliculit...

@finerfeedback I don't know - but I will attempt. I'm just trying to help others. Going Hypo can be equally as bad as going hyperglycemic. The extreme spikes that I was seeing on my Continuous glucose...

@25years I have normal fasting glucose and normal A1C. At first glance, that looks like it's not Diabetes. It wasn't until I had low insulin, low c-peptide, low Pro-insulin, and high proinsulin/insuli...

@gingerpoof We are very similar. Thank so much for your input. The vegetable thing could be Thyroid, or Insulin, or just metabolic dysregulation. I actually have it as well. Thank you so much for lett...

@gingerpoof I have also have had that around hairs/in follicles. I do believe it is excessive keratin - but do your own research. Diabetes, or rare MODY, can impact skin, hair, hair follicles, kerati...

@finerfeedback You and I are the same. It is horrific. Sometimes this website separates people, rather than bringing us together. Please know I hear you. Nothing is proven yet genetically - and it wil...

@25years Technically, I have normal A1C and fasting glucose. Those are the main Diabetes Diagnosis criteria. The problem lies in the criteria. I just have very quick spikes up and spikes down into hyp...

@25years It's going to take years to prove. I am having hard core genetic testing done well beyond a genome and exome. My guess is that the Thyroid is involved in metabolic pathways. Insulin is involv...

@finerfeedback Like I said, I am unclear if Valacyclovir or cutting out sugar is what helped. I went hard core cutting out sugar - not any added sugars in condiments, etc. I just started doing both at...

@coldclimate Hi! Thanks for responding! No, the ulcers were all over my body including my face. I no longer have them - and I am not clear if it's from Valacyclovir or from cutting sugar out of my die...

This is going to be left of center - and I can't say that you are the same. I have endured extensive testing over the last 10 years. I have posted prior regarding low Natural Killer Cells (Immune), Ce...

Just FYI... Read this Article: "History of Morgellons disease: from delusion to definition" "Central nervous system symptoms, cardiac symptoms, endocrine dysfunction (hyperparathyroidism, adrenocorti...

Posted by: @dar-wins Posted by: @25years Posted by: @dar-wins What is crazy is I have a hyper thyroid, and was positive for hsv, but I have never had a cold sore or genital warts? What meds a...

@25years Never bring samples. Never ever. Too late for you, but maybe others can benefit from this sound advice. I know it's counter-intuitive, but please listen to me. Docs will peg you with a Psych ...

Read this Article: "History of Morgellons disease: from delusion to definition" "Central nervous system symptoms, cardiac symptoms, endocrine dysfunction (hyperparathyroidism, adrenocortical hypofunc...

@curlyloucrewhi I happen to believe that everything has a scientific answer. I'm not saying you are wrong, just back it up with test results and science. People stating this or that works, or this or ...

I am no doctor, but it does kind of look like Candida (fungal). If you can, get a doctor to try you on Fluconazole oral, even just to see if it helps. Maybe a doctor will be willing, depending on what...

Posted by: @25years Posted by: @dar-wins What is crazy is I have a hyper thyroid, and was positive for hsv, but I have never had a cold sore or genital warts? What meds are u on? I have 4 kids, ...

@curlyloucrewhi .....Um....Yea, I am in a genetic study that my entire family is involved in. SO, no it has nothing to do with "making up your mind to tackle....parasites". I do feel a little concerne...

Just FYI, but HSV can infect one's CNS system and impact the brain. While there can be issues such as Encephalitis (neck pain/headaches) and Meningitis, I don't think I have ever had (though have had ...