Acne.org Products
@skinshit Thank you so much for the update! Although Im very sorry to hear of your side effects. I took accutane back in college for regular acne and the side effects can certainly be brutal. Still I completely understand that not having the lesions is better than pretty much any side effect that may present itself they are the absolute worst thing ever. I am so happy to hear they are staying away for you! Might your doc consider a very very low intermittent dose to be taken almost forever? Is that even possible?
@skinshit Also just a side note: I have great empathy for you and your fear of the lesions returning. Thats another thing thats so incredibly awful about this disease. Even if we can get it into remission, we have to basically live in fear of its return so we cant even enjoy the times when we dont have the sores. I was able to achieve remission this past summer for about 2 and a half to 3 months using Berberine, and then just when I had hope that maybe I was healed, it came back worse than ever and I have barely left my house in 3 and a half months. Its just so all unfair and horrible! I was waiting to post about the positive impact of Berberine until I knew if it was a permanent thing. Sure enough, it wasnt. This disease is straight up evil. I would think something as strong as accutane would have a much more lasting effect and I sincerely hope that from the bottom of my heart for you!
If anyone needs proof, please see attachment. I am not a troll, unlike some others.
I have suffered greatly. My only point in sharing is to help another.
Read this:
https://pmc.ncbi.nlm.nih.gov/articles/PMC5811176/
@skinshit We sound very similar Ive taken many of those things you listed as well. Along with about 8 million other things as Im sure have you! Im getting desperate so I think accutane may be my next option. I would take it forever if it worked, I wonder if it could be micro dosed long term.
@finerfeedback it can be microdosed! this is what many celebrities do!
Omg! Skinshit is someone to question. Microdosed? "It's what celebrities do". Oh, my goodness!! What is happening on this site where medicine takes a back road to very questionable words. Use judgement!
Why would you insult someone and then ask them for help? Doesnt make much sense to me. The comment about celebrities microdosing accutane was very valid to prove that it can be done and is often done. That is what I was asking. We are all suffering with this terrible disease so I would encourage everyone to be kind and helpful instead of rude.
@finerfeedback Like I said, use judgment. Microdosing accutane is not backed up by science. Certainly not for people who struggle at this level of suffering. Using "celebrities" as a source is one of the worst recommendations I have ever heard. But, my best to you - do it. It won't hurt....but it certainly won't help.
This is the invisible itch, when you feel a sting- it's bitting you. They are like little hairs and come in all sizes, colors so far have been mostly brown, but also white, red and green! I just started taking wormwood and these are coming out of like crazy! You would never see it on you! You may find little pieces of hair on you that's making you itch, that's not a regular hair
@25years the photos don't seem to be showing for me at least!
Hi, I first found this forum the first run in with these f@#$&rs (they deserve that) I learnt then that they react strongly to the wrong treatment and I tried all sorts and some really strong stuff and always made it worse, they in my experience changed forms and iv had all the different forms of this shown in pictures in this forum. So when they returned a few months ago I was careful not to erupt them. I got one onto of my foot where the crease is to leg, I wasn't even going crazy but picking slightly and felt a pain that I can't explain, and I know how much the plugs hurt even just lightly touching them but this was pain that shot though to the bone then my foot blow right up and stayed like that for about 2 weeks, I hit my shin on a step ladder no big deal but it ended up infected and the skin around it was peeling in circles looking a little like ringworm (fungal infection) yes I believe "Aussie scientist" was right and is right even if it doesn't work for everyone all the time. Fungas is hard to kill in general. Anyway that foot from shin down also blown right up luckily not at the same time as right foot. I should mention I have about 10 to 15 spots right now and I recon there is maybe 3-4 different types most very small but if I started picking could all go south. On my left thigh I have 3 5cent to 10cent peice size ones that are the closest looking to my first encounter with white plugs but bid different, these are shaped like a 50cent peice and had few small plugs at first but seem to have a plug with maybe a black hair in them and when I tried to get one I felt pain like my foot pain, and it's so bad I hardly dare touch it, I mean so bad it's un explainable, one of the 3 on my leg is different again and is like a different shape and has like harder texture and also I get real fine hair growing in strange directions sometimes, My right thigh has few that are the strange shape with some having the harder texture under the skin. IV been using the creams that Aussie scientist recommend and they have helped but these are really hard to stop and some that iv pick a bit have doubled in size within about 12hrs after picking and they don't seem to have the one plug that normally when removed would heal but more like a tiny hair that stings and so far like the rest of my spots seems impossible to remove even seems to move somehow and some that have a ring around (resembling ringworm) only unlike ringworm they look like a bad plug site inside the ring. When I have removed the ring with twizers, within about 10 hours while iv slept the ring has been redone and is stronger and deeper. B-My original run in with the plugs scared me, like anyone that has experienced them understands, but this time is a whole new level especially knowing this thread has been going for so long and no solid answer or cure. And seeing how it has changed for me and seems to be worse,
I'm happy that I found this Forum just like anyone that is going through this whatever you call it problem but was bit worried that after 30 pages and years of time that there was no real %100 cure or solution to this and even more bothered that Aussie scientist at left the discussion. The Aussie scientist had mentioned that there was more serious ways of dealing with these things, but with no way to get in contact with her/him I was hoping if there is anyone here that was told what to do with really bad cases they could pass that on to me.
Also I have to say, that as good as this forum is for me and everyone going through this s@$t, I believe that up to about page 2 or 3 this was a genuine discussion but then I can see the agents started getting involved (I don't care if you think that's crazy) it's just the way it is, they are here to misdirect people, you don't think it's strange that the medical world doesn't acknowledge this and samples of plugs come back just negative, this is some bullshit. They don't won't us to understand how things work and fungal is a big part it. So they are probably as much as maybe a quarter of the comments in here, it's disappointing but iv come to know and expect it, it's the same in all platforms like YouTube where anything involving any well guarded truth you will find misdirection. because people are really easily influenced by the comments sections.
I had to let that out but, seriously though I'm not as hostile as that probably sounds and would welcome any one that contacts me about this topic and please do.
I have to admit I have not read every page I just haven't had enough time as I'm sure time is going faster these days, so hope I haven't missed some good remedys. Thanks
@25years the photos don't seem to be showing for me at least!
Not sure why it's not loading!?
@25years the photos don't seem to be showing for me at least!
Not sure why it's not loading!?
Okay I added them to the next post, not sure why I wouldn't add
I wanted to add, I never thought in a million years there were tiny little hairs under my skin like this!? The lesions I had didn't add up to the hairs, the tape is literally pulling them out! I hope this helps someone else out there, I been suffering with this for 30 years and so many doctors! My skin feels lighter, the layers that come out is strange but it works!
Hi, I first found this forum the first run in with these f@#$&rs (they deserve that) I learnt then that they react strongly to the wrong treatment and I tried all sorts and some really strong stuff and always made it worse, they in my experience changed forms and iv had all the different forms of this shown in pictures in this forum. So when they returned a few months ago I was careful not to erupt them. I got one onto of my foot where the crease is to leg, I wasn't even going crazy but picking slightly and felt a pain that I can't explain, and I know how much the plugs hurt even just lightly touching them but this was pain that shot though to the bone then my foot blow right up and stayed like that for about 2 weeks, I hit my shin on a step ladder no big deal but it ended up infected and the skin around it was peeling in circles looking a little like ringworm (fungal infection) yes I believe "Aussie scientist" was right and is right even if it doesn't work for everyone all the time. Fungas is hard to kill in general. Anyway that foot from shin down also blown right up luckily not at the same time as right foot. I should mention I have about 10 to 15 spots right now and I recon there is maybe 3-4 different types most very small but if I started picking could all go south. On my left thigh I have 3 5cent to 10cent peice size ones that are the closest looking to my first encounter with white plugs but bid different, these are shaped like a 50cent peice and had few small plugs at first but seem to have a plug with maybe a black hair in them and when I tried to get one I felt pain like my foot pain, and it's so bad I hardly dare touch it, I mean so bad it's un explainable, one of the 3 on my leg is different again and is like a different shape and has like harder texture and also I get real fine hair growing in strange directions sometimes, My right thigh has few that are the strange shape with some having the harder texture under the skin. IV been using the creams that Aussie scientist recommend and they have helped but these are really hard to stop and some that iv pick a bit have doubled in size within about 12hrs after picking and they don't seem to have the one plug that normally when removed would heal but more like a tiny hair that stings and so far like the rest of my spots seems impossible to remove even seems to move somehow and some that have a ring around (resembling ringworm) only unlike ringworm they look like a bad plug site inside the ring. When I have removed the ring with twizers, within about 10 hours while iv slept the ring has been redone and is stronger and deeper. B-My original run in with the plugs scared me, like anyone that has experienced them understands, but this time is a whole new level especially knowing this thread has been going for so long and no solid answer or cure. And seeing how it has changed for me and seems to be worse,
I'm happy that I found this Forum just like anyone that is going through this whatever you call it problem but was bit worried that after 30 pages and years of time that there was no real %100 cure or solution to this and even more bothered that Aussie scientist at left the discussion. The Aussie scientist had mentioned that there was more serious ways of dealing with these things, but with no way to get in contact with her/him I was hoping if there is anyone here that was told what to do with really bad cases they could pass that on to me.
Also I have to say, that as good as this forum is for me and everyone going through this s@$t, I believe that up to about page 2 or 3 this was a genuine discussion but then I can see the agents started getting involved (I don't care if you think that's crazy) it's just the way it is, they are here to misdirect people, you don't think it's strange that the medical world doesn't acknowledge this and samples of plugs come back just negative, this is some bullshit. They don't won't us to understand how things work and fungal is a big part it. So they are probably as much as maybe a quarter of the comments in here, it's disappointing but iv come to know and expect it, it's the same in all platforms like YouTube where anything involving any well guarded truth you will find misdirection. because people are really easily influenced by the comments sections.
I had to let that out but, seriously though I'm not as hostile as that probably sounds and would welcome any one that contacts me about this topic and please do.
I have to admit I have not read every page I just haven't had enough time as I'm sure time is going faster these days, so hope I haven't missed some good remedys. Thanks
Yes I feel your pain! Use the wormwood and the athletic tape faithfully. You will go thru layers, the hairs are what stings, there bitting you! The little hairs have to go for the pain to stop- the plugs are the worst!!!!! Not totally sure what those are, I think they are like a tunnel system for the hairs, the seed things are strange too! It's like the acid liquid stuff is creating the seeds or protecting the seeds? Regardless please use the tape and wormwood for 1 month and you will be surprised of the results
Hi, I first found this forum the first run in with these f@#$&rs (they deserve that) I learnt then that they react strongly to the wrong treatment and I tried all sorts and some really strong stuff and always made it worse, they in my experience changed forms and iv had all the different forms of this shown in pictures in this forum. So when they returned a few months ago I was careful not to erupt them. I got one onto of my foot where the crease is to leg, I wasn't even going crazy but picking slightly and felt a pain that I can't explain, and I know how much the plugs hurt even just lightly touching them but this was pain that shot though to the bone then my foot blow right up and stayed like that for about 2 weeks, I hit my shin on a step ladder no big deal but it ended up infected and the skin around it was peeling in circles looking a little like ringworm (fungal infection) yes I believe "Aussie scientist" was right and is right even if it doesn't work for everyone all the time. Fungas is hard to kill in general. Anyway that foot from shin down also blown right up luckily not at the same time as right foot. I should mention I have about 10 to 15 spots right now and I recon there is maybe 3-4 different types most very small but if I started picking could all go south. On my left thigh I have 3 5cent to 10cent peice size ones that are the closest looking to my first encounter with white plugs but bid different, these are shaped like a 50cent peice and had few small plugs at first but seem to have a plug with maybe a black hair in them and when I tried to get one I felt pain like my foot pain, and it's so bad I hardly dare touch it, I mean so bad it's un explainable, one of the 3 on my leg is different again and is like a different shape and has like harder texture and also I get real fine hair growing in strange directions sometimes, My right thigh has few that are the strange shape with some having the harder texture under the skin. IV been using the creams that Aussie scientist recommend and they have helped but these are really hard to stop and some that iv pick a bit have doubled in size within about 12hrs after picking and they don't seem to have the one plug that normally when removed would heal but more like a tiny hair that stings and so far like the rest of my spots seems impossible to remove even seems to move somehow and some that have a ring around (resembling ringworm) only unlike ringworm they look like a bad plug site inside the ring. When I have removed the ring with twizers, within about 10 hours while iv slept the ring has been redone and is stronger and deeper. B-My original run in with the plugs scared me, like anyone that has experienced them understands, but this time is a whole new level especially knowing this thread has been going for so long and no solid answer or cure. And seeing how it has changed for me and seems to be worse,
I'm happy that I found this Forum just like anyone that is going through this whatever you call it problem but was bit worried that after 30 pages and years of time that there was no real %100 cure or solution to this and even more bothered that Aussie scientist at left the discussion. The Aussie scientist had mentioned that there was more serious ways of dealing with these things, but with no way to get in contact with her/him I was hoping if there is anyone here that was told what to do with really bad cases they could pass that on to me.
Also I have to say, that as good as this forum is for me and everyone going through this s@$t, I believe that up to about page 2 or 3 this was a genuine discussion but then I can see the agents started getting involved (I don't care if you think that's crazy) it's just the way it is, they are here to misdirect people, you don't think it's strange that the medical world doesn't acknowledge this and samples of plugs come back just negative, this is some bullshit. They don't won't us to understand how things work and fungal is a big part it. So they are probably as much as maybe a quarter of the comments in here, it's disappointing but iv come to know and expect it, it's the same in all platforms like YouTube where anything involving any well guarded truth you will find misdirection. because people are really easily influenced by the comments sections.
I had to let that out but, seriously though I'm not as hostile as that probably sounds and would welcome any one that contacts me about this topic and please do.
I have to admit I have not read every page I just haven't had enough time as I'm sure time is going faster these days, so hope I haven't missed some good remedys. Thanks
Yes I feel your pain! Use the wormwood and the athletic tape faithfully. You will go thru layers, the hairs are what stings, there bitting you! The little hairs have to go for the pain to stop- the plugs are the worst!!!!! Not totally sure what those are, I think they are like a tunnel system for the hairs, the seed things are strange too! It's like the acid liquid stuff is creating the seeds or protecting the seeds? Regardless please use the tape and wormwood for 1 month and you will be surprised of the results
Also, if you sit in the tub with apple cider vinegar and baking soda you will see the side of the tub gather with the hairs and infection, I even rinse off in the shower after because it's gross
Hello @25 years
I couldn't find a reply button so just hope you see it. Thank you and I will definitely try them products. These bloody hairs I thought I my mind was playing tricks on me, also think my eyes arnt as good as once were, but now I'm more convinced they are a big part of the problem, they are hard to get and swear they move. The ring around some of the sores shaped like a maybe octagon depending how big to how many sides, it seems to go around from hair follicle spot to the next around the effected erea. When I try to extract it, it pulled out fairly easy but returns much deeper and more stuck to skin but pulls out stretchy and believe it's same as plugs made from just thinner and each joining point is small white tiny ball. But again done where in the centre of effected area is a black or brown hair that don't seem to be growing. I forgot to mention I used the dandruff shampoo selsun gold not the blue on but yellow bottle has more of the active ingredient, the first time I used it, within a few hours my skin started to feel a bit prickly and ever now n then thought something was pricking or bitting me but not hurting, then I had fallen asleep and woke up itching my ankle when I came to realised that a white flake had protruded and scratched out and had small bits the same here and there and even hands n feet although my hand had been super dry and constantly peeling for weeks prior, now I know that was apart of it. Now hands 90% better my feet that weren't peeling before shampoo ended up with a strange pattern of peeling and that is still there. Not sure is shampoo helped and it's all been trying to leave or mad it worse, I'll have to wait and find out.
Hello @25 years
I couldn't find a reply button so just hope you see it. Thank you and I will definitely try them products. These bloody hairs I thought I my mind was playing tricks on me, also think my eyes arnt as good as once were, but now I'm more convinced they are a big part of the problem, they are hard to get and swear they move. The ring around some of the sores shaped like a maybe octagon depending how big to how many sides, it seems to go around from hair follicle spot to the next around the effected erea. When I try to extract it, it pulled out fairly easy but returns much deeper and more stuck to skin but pulls out stretchy and believe it's same as plugs made from just thinner and each joining point is small white tiny ball. But again done where in the centre of effected area is a black or brown hair that don't seem to be growing. I forgot to mention I used the dandruff shampoo selsun gold not the blue on but yellow bottle has more of the active ingredient, the first time I used it, within a few hours my skin started to feel a bit prickly and ever now n then thought something was pricking or bitting me but not hurting, then I had fallen asleep and woke up itching my ankle when I came to realised that a white flake had protruded and scratched out and had small bits the same here and there and even hands n feet although my hand had been super dry and constantly peeling for weeks prior, now I know that was apart of it. Now hands 90% better my feet that weren't peeling before shampoo ended up with a strange pattern of peeling and that is still there. Not sure is shampoo helped and it's all been trying to leave or mad it worse, I'll have to wait and find out.
I need to try that shampoo! That is what I'm seeing the secret is, staying dry! The stings hurt like a bitch, but drying them out is killing them! When you continue doing the tape you will go thru a drying out period, Like peeling from a sunburn but different, it's the infection drying up and coming out! As soon as you feel a sting or itch put the tape over it! The hair will come out because it can't breathe then the hair is stuck in the tape. Kinda like the black mask. On wound areas you will see dark yellow to greenish liquid being pulled out! You will even smell certain areas are infected compared to other areas. Make the tape not too long because some areas you need to change out more often. Also, a peroxide bath helps a lot! I want to know what the acid like liquid is? It even burns the surrounding areas? And it spreads fast in a area, keep the whole area covered, the oxygen makes it worse, the tape actually feels good, it takes the pain and stings away
Ive tried the following:
Doxycycline
Tretinoin cream
Metronidazole cream
Mupirocin cream
Panoxyl wash
Sodium sulfacetamide cleanser
Sarna lotion
Vicks
Sulphur soap
Antibacterial soap
Johnson's sensitive lotion
Cetaphil moisturizing cream
Keflex for staph
I have been digging these plugs out of my face for four years. Ive been to three dermatologists and all they want to do is give you some cream and an antibiotic. They tell me its pickers acne. I have even carried this bag of plugs and asked them to biopsy them or look at them through a microscope but they just say its milia, sebaceous filaments, blah, blah. Nothing has helped! Right now Im using the metronidazole cream and Cetaphil cream which has helped some. Im just wanting to know what these are and how to treat them. I really dont know where to go next or what to do. Any advice would be greatly appreciated.
I believe the harden plugs are from this mucus stuff, this is what is causing the wounds, not sure what it is, but when you pull the plug and it comes back- it is because it's a thick liquid like substance that just flows back into any open pore
Update: It appears to be HSV2 localized to my skin only. My organs are ok - which is very important! To be clear, I have never had any symptoms of genital herpes. I don't think I've had cold sores ever. Testing backs up a negative HSV1 (cold sores/mouth). There are many blood tests that you should request be completed:
1. Natural Killer Cells, Numbers and Function
2. IgG blood test for HSV2 (can be called a "Herpes Select" test).
2. Skin Biopsy with Immunohistochemical Stain for HSV 1/2
3. There are a multitude of blood tests that can show abnormalities. To quote:
Morgellons patients commonly also have, "Central nervous system symptoms, cardiac symptoms, endocrine dysfunction (hyperparathyroidism, adrenocortical hypofunction, Hashimotos thyroiditis, hypercalcemia, elevated fasting insulin levels, and parathyroid adenomas, a high rate of autoimmune disease, and low core body temperature were commonly encountered in their cohort. Laboratory evidence of abnormalities that were commonly encountered included anemia, leukopenia, high monocyte count, low natural-killer cells, elevated serum calcium, elevated globulin levels, and elevated inflammatory markers (CRP, TNF, IFN). Skin abnormalities included excoriations, angiomas, and filament/granule production. The need for a credible MD case definition was emphasized.")
https://pmc.ncbi.nlm.nih.gov/articles/PMC5811176/
This means in addition to the above, you want your thyroid tested (free t3, free t4, t4, t3, TSH - request all 5!), other endocrine tests (adrenals, Insulin/Glucagon [which is different from Glucose], sex hormones, Cytokines, inflammatory markers as mentioned). And I would personally add Iodine and Zinc testing.
It's Herpes. HSV, I don't know if it is HSV1 or HSV2 yet - but I will find out. You need a skin biopsy/punch biopsy that specifically tests for HSV 1 and 2, if not also VZV (called Immunohistochemical Stain). They might be able to do a swab of your open lesions, there are HSV PCR tests for that, but a biopsy might be a better, more accurate result. Make sure they do it on a current or past infected area. Don't let them just do a general biopsy or a microscopic review of sample - it must be a Herpes specific stain or a Herpes specific PCR test.
Source: I have written on this site on and off for years. I have had for 10 years, but now I know I had it before that, 20 years at least. I have been to so many doctors - always pushing through their shame and blame, kept moving forward. I have a Natural Killer Cell Deficiency (NK Cells), which if you read research articles on Morgellons, you will see that this deficiency is very common among patients. NK Cells control Herpesviruses in the body, there are 8 Herpesviruses as of now. You can read articles on the function of NK Cells, see an Immunologist to get NK Cells tested - 2 separate tests: numbers and function. Don't let them just test numbers. Myself and my family have undergone genetic testing and it is still under review. Looking at genes that cause NK Cell Deficiencies. Henceforth my susceptibility to unique presentations of HSV1/2. You need oral Acyclovir at a minimum. Dosage is important, and you might get under-dosed if you have a NK Cell Deficiency that hasn't been diagnosed yet.
My Immunohistochemical stain of my skin (a biopsy from my face with no current ulcerations, but was a site of continuous trouble, had been ulcerated) came back positive for HSV 1/2. The test itself didn't differentiate btwn the two, but it can be differentiated through further testing.
If Doc's just do a blood tests for HSV 1 or 2, it really doesn't help you that much as so much of the population is positive for that. I have also had Thyroid issues, but I believe that is because I had untreated HSV for so very long.
Edit: If doc's say they don't see an active open ulcer with which to do a biopsy on - or anything along those lines, still request the testing on/near old sites that have scarred. If they still don't do it, find a doc that will.
