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so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
I started the metronidazole and wormwood. The doctors won't give me the ivermectin!?! The papaya seeds are really working! Every time I eat them I see a huge difference! My worst area is definitely my arms, like every pore was bad- literally! The tape helped pull horrible layers out of my skin in order to start the healing. I'm going to order some ivermectin! You rebuilt my hope- sometimes I just feel down and tired. Stay keeping us with updates, I'm so glad you have found relief!
so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
I started the metronidazole and wormwood. The doctors won't give me the ivermectin!?! The papaya seeds are really working! Every time I eat them I see a huge difference! My worst area is definitely my arms, like every pore was bad- literally! The tape helped pull horrible layers out of my skin in order to start the healing. I'm going to order some ivermectin! You rebuilt my hope- sometimes I just feel down and tired. Stay keeping us with updates, I'm so glad you have found relief!
I am just wondering why you dont attribute your initial stages of healing/success to the metronidazole
so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
I started the metronidazole and wormwood. The doctors won't give me the ivermectin!?! The papaya seeds are really working! Every time I eat them I see a huge difference! My worst area is definitely my arms, like every pore was bad- literally! The tape helped pull horrible layers out of my skin in order to start the healing. I'm going to order some ivermectin! You rebuilt my hope- sometimes I just feel down and tired. Stay keeping us with updates, I'm so glad you have found relief!
I am just wondering why you dont attribute your initial stages of healing/success to the metronidazole
I started the metronidazole after the athletic tape, the metronidazole helped dry my skin out from the inside for sure, the tape helped pull out the layers. Each time I did the papaya seeds I can see and feel the difference immediately and the day after. I want to take the metronidazole and the wormwood continuely for a total of 6 months. It hits different with the 2 together! I think I have had this for so long it's taking extra time and efforts. I do look so much better! I'm like 70% better. I can't wait for 100% of relief
I am so so happy for you, I know how debilitating this is. Out of curiosity, did your doctor who prescribed the metronidazole say what they suspected the cause of all of this is? My assumption is demodex, but that hasnt been confirmed.
Actually I learned of the meds metronidazole from this site. She has no idea what is wrong with me, I talked her into just letting me try it, I have to go to a specialist soon to be able to continue the metronidazole. Like I mentioned before I want to keep up everything I'm doing because I actually see and feel a difference! It's the mix of it all that helps. Inside the metronidazole, wormwood and papaya seeds. For the outside I use the athletic tape, peroxide and Vaseline.
I am so happy for you. Keep us updated, Iw wish you continued success.
@skinshit I wanted to check in and see how you are doing on the Accutane? Are things still going well and are you still lesion-free?? Thank you so much in advance for any update that you can provide!
@finerfeedback Hi, here to update!
short version: still never had a new lesion after starting isotretinoin!
long version: Last time I was on here it was the beginning of December. Since then, I got really bad about taking the pills regularly for multiple reasons. I had a lot of personal issues pop up which of course means lots of stress, then travel, more travel for the holidays, etc. Ultimately, I couldn't afford to feel "flu-like symptoms" when trying to juggle everything, then I also didn't have the time/option to get my prescription filled (plus, as you know, they are strict about pregnancy tests & blood work). I was taking my pills maybe twice a week, and not at the prescribed dose. Despite this, my skin was fine, which also sort of contributed to my not so diligent approach to taking my pills. Sometime in January I had a scare which turned out to be just a regular pimple, but now even an occasional pimple makes me worry that this nightmare is returning, and it was enough to make me schedule a derm appointment to get a refill! I was honest with my derm about not taking my pills regularly due to side effects & we settled on lowering my dose to 30 mg. I'm still not taking the 30 mg regularly as I was put in isotretinoin-ipledge jail (have to wait 30 days before a refill since I wasn't regularly showing up to appointments). Essentially, I've been taking isotretinoin consistently, but irregularly and it has been enough to keep me in remission from whatever this condition is. I still stand by my prior opinion: I think anyone dealing with this should try isotretinoin, but I think the dose should be very individual based on what you can personally tolerate (the 60 mg is definitely not for me). How are you doing? Have you managed to see a derm? Were they open to allowing you to try isotretinoin again? Wishing you & everyone all the best! I know how mentally and emotionally draining this is ☹️
@skinshit Thank you so much for your update! Im SO SO happy for you it seems to be going well for you even while not taking it regularly! Seems like a good idea to take a lower dose as your doctor recommended to avoid some of the harsher side effects. I am for sure still considering it. I know I would have no problem getting a prescription as I also have regular acne bad enough to warrant it. Its great to see your progress though and Im very happy to hear it is staving off the lesions. I truly appreciate your updates and will continue to see how it goes for you. I would have to take care of some other things first before I could go on it, so I still have some time before its even possible for me. Please continue to keep us posted over time if this could work permanently, it would be an absolute miracle to end this nightmare!! Thank you again for the update and wishing you all the best as well!
so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
I started the metronidazole and wormwood. The doctors won't give me the ivermectin!?! The papaya seeds are really working! Every time I eat them I see a huge difference! My worst area is definitely my arms, like every pore was bad- literally! The tape helped pull horrible layers out of my skin in order to start the healing. I'm going to order some ivermectin! You rebuilt my hope- sometimes I just feel down and tired. Stay keeping us with updates, I'm so glad you have found relief!
I am just wondering why you dont attribute your initial stages of healing/success to the metronidazole
So, I was at the point where I was ready to try anything, but Im not sure about taking horse paste orally. I have seen throughout the years on this forum a few people suggest Demodex. Last week I went and bought the Nix Lice Cream I would say Im 90% cleared. I am also thinking this is Demodex or some sort of mite/parasite that feeds on the sebum in the hair follicle thus why the accutane works (by reducing said serum)
so its funny because it only burns where there are active/live mites in my opinion. I did slather a very thin layer of horse paste mixed with lotion or Vaseline for quite a few nights and slept with it. Realistically, if yours is that bad, you should get the ivermectin pills and maybe metronidazole. The mites and eggs are in your follicles and youll probably need an extended treatment. I now have not had any new spots for over a month. Now I need to look into how to treat the residual scarring I have on my face - chin especially. I could cry I am so happy, this really has been the lowest point in my life dealing with this.
I started the metronidazole and wormwood. The doctors won't give me the ivermectin!?! The papaya seeds are really working! Every time I eat them I see a huge difference! My worst area is definitely my arms, like every pore was bad- literally! The tape helped pull horrible layers out of my skin in order to start the healing. I'm going to order some ivermectin! You rebuilt my hope- sometimes I just feel down and tired. Stay keeping us with updates, I'm so glad you have found relief!
I am just wondering why you dont attribute your initial stages of healing/success to the metronidazole
So, I was at the point where I was ready to try anything, but Im not sure about taking horse paste orally. I have seen throughout the years on this forum a few people suggest Demodex. Last week I went and bought the Nix Lice Cream I would say Im 90% cleared. I am also thinking this is Demodex or some sort of mite/parasite that feeds on the sebum in the hair follicle thus why the accutane works (by reducing said serum)
It is strange how it is some how connected to the hair follicle. For example, the inside of my arms are clear and beautiful! The outside of my arms are horrible, the worst area on me actually! I see a specialist next week, I'm bringing samples for them to test also! I will keep everyone updated! That's interesting how the cream is clearing you up, I feel like for me it's main issue comes from the inside, I need to try this cream! Does it burn? Do you put it directly on the sores or just when you feel a itch or a burn?
I went to the doctors today and they prescribed me dupixent shots. The doctor told me it should clear me up 80%. I have to give myself a shot every other week, I go back in 3 months, I will keep everyone updated!
Im happy you went and saw someone who can hopefully help you! Did the doctor state they believed it to be some sort of eczema or dermatitis. Im curious to hear if that works for you. Whatever happened to the metronidazole that was working for you before? Did you continue seeing success with it? I ask because I still believe this to be a Demodex issue and that medication specifically treats more severe forms of Demodex.
What is crazy is I have a hyper thyroid, and was positive for hsv, but I have never had a cold sore or genital warts? What meds are u on? I have 4 kids, oldest 21, they have great skin, I believe it's not passed, it's something that got in me.
I am on Valacyclovir. It has been great for me. Started on Acyclovir, but Valacyclovir has been even better. Zero new spots on my skin since starting the med - 3 months ago. I've struggled for 10 years - so three months is amazing. For me, it seems to get even deeper. Beyond Thyroid issues, I have energy issues and other minerals/vitamins that are off, as well as a cytokine, Porphyrins, I could go on. I can give anyone a list who wants it - but in general you want Immunology for Natural Killer Cell testing (2 different tests - numbers and function), and then Endocrinology (Thyroid: make sure it's 5 different tests T3, T4, Free T3, Free T4, TSH; Insulin, Glucagon, Glucose). I have many more tests I could suggest, but those two specialists would be a great start if you can get the referrals. If you struggle with that or need help on how to introduce that to a doctor, let me know. I also have never had any genital or oral HSV symptoms, yet my skin biopsies are coming back positive for HSV2. I even asked ex-boyfriends - they both tested negative after our relationship. It's only in my skin. In terms of genetics, you could have passed along genes that make your children carriers, unaffected, or affected. That's an entirely different topic, but I'd be happy to say more on it. I am in a genetic research study. Sending hope!
@curlyloucrewhi I happen to believe that everything has a scientific answer. I'm not saying you are wrong, just back it up with test results and science. People stating this or that works, or this or that is my theory (which is a dime a dozen) - does not solve a 40 year unsolved illness where people are mistreated and dismissed by the scientific and medical community. If you want to help others, and you truly believe what you state - get medical documents. Get proof.
Read this Article: https://www.tandfonline.com/doi/full/10.2147/CCID.S152343#d1e1787
"History of Morgellons disease: from delusion to definition"
"Central nervous system symptoms, cardiac symptoms, endocrine dysfunction (hyperparathyroidism, adrenocortical hypofunction, Hashimotos thyroiditis, hypercalcemia, elevated fasting insulin levels, and parathyroid adenomas), a high rate of autoimmune disease, and low core body temperature were commonly encountered in their cohort. Laboratory evidence of abnormalities that were commonly encountered included anemia, leukopenia, high monocyte count, low natural-killer cells, elevated serum calcium, elevated globulin levels, and elevated inflammatory markers (CRP, TNF, IFN). "
I also happen to have high IL-1 Beta, which is a Cytokine/Inflammatory marker. I could write another page on the rest of what is highlighted in the article - but I don't know who, or if anyone, is hearing me.
@25years Never bring samples. Never ever. Too late for you, but maybe others can benefit from this sound advice. I know it's counter-intuitive, but please listen to me. Docs will peg you with a Psych condition solely based on you bringing in a sample.
Im happy you went and saw someone who can hopefully help you! Did the doctor state they believed it to be some sort of eczema or dermatitis. Im curious to hear if that works for you. Whatever happened to the metronidazole that was working for you before? Did you continue seeing success with it? I ask because I still believe this to be a Demodex issue and that medication specifically treats more severe forms of Demodex.
The shot is mainly for the itching and pain, they still don't know what is wrong with me though!?I just did the shot like 30min ago. I will definitely keep everyone updated, I'm hoping this brings some relief
@25years Never bring samples. Never ever. Too late for you, but maybe others can benefit from this sound advice. I know it's counter-intuitive, but please listen to me. Docs will peg you with a Psych condition solely based on you bringing in a sample.
They said they have no lab to send it to! He said he will look under a microscope, I think he just threw everything away honestly. I wish I knew a lab that I can pay myself to test samples
If I actually could find a lawyer in enforce my constitutional rights that were deprived from me when I was kidnapped when I went to the ER for this then I would own a 350 million hospital except for I can't find a lawyer all of them say they only have 20 law firms working under them with only 15 employees each and I would need at least 50 with 200 to take on the Hartford hospital
I have had this problem for almost 4 years now. You guys probably know the drill that derms don't know what it is - subscribe creams, ointments, don't touch it because you have a picking problem, biopsies, etc.I have always thought this was a parasite, and this is what has been working for me.
DURVET IVERMECTIN SHEEP DRENCH. I have tried oral and cream ivermectin and they didn't work. I put a fresh Q-tip in the bottle and apply the liquid to my sore. I don't dilute it. I just use a fresh Q-tip each time so I don't contaminate the bottle. It doesn't sting, which is wonderful. I then cover my sore with DuoDERM extra thin CGF dressing by ConvaTec. These are about 4" x 4" bandages and I cut them to the size I need. I apply the ivermectin and bandage in the morning and evening. When I remove the dressing, I wash the sore with soap and water and use kleenex and roll over the sore and pieces of the parasite roll into balls and come off. It hurts less than digging them out.
I have been doing this for a couple of weeks. Seems to be working. I still have to open up the bumps that are filled with these things under my skin to get the ivermectin drench directly on the parasite. This has been a 4 year nightmare. I genuinely hope this helps anyone struggling with this. I have spent hundreds on various things that haven't worked. The Durvet ivermectin sheep drench is about $35 for 8 oz on Amazon as of 3-11-2025. The DuoDERM dressings are about $20 - $30 on Amazon too.
Hi 👋, Long time follower, but just joined!
I have been suffering with this issue for ages, but its all got me to a point where I am so burnt out with exhaustion, weight loss, shivers, lots of white or clear things pushing out of my arms , with it now spreading to other areas, my nightsweats are drenching with most days a full bed change is required. Dizziness, Brain fog and headaches. Sore joints and just feel unwell !
I have been through a PetCT scanner and seen a number of different dermatologists.
- I finally got to a point where I have approach
Dr. Ravichandran G, Dermatologist
the world leading Dermatologist in India, And I was lucky enough to get a reply on a diagnosis!
Consultant's Feedback Based on the reports received, the patient is suffering with Ecto
parasitic infestation or myiasis. The patient needs detailed clinical
evaluation, followed by the patient been recommended for skin
biopsy, Microbiogy isolation of the mites Treatment.
Based on the assessment further treatment will be decided.
I am now going to see if I can get some treatment!
wish me luck!