Moon Bunny,
Honestly I can't really give you a summary. There are too many different people's stories to make a small summary. But in short everyone on this thread has experienced some kind of flushing post accutane, but the causes can vary person to person. How long post accutane are you? I sometimes get petechiae around the eyes or on my shoulders, but its really mild and goes away within a couple of days. I am curious to know why you went to a rheumatologist if you only have flushing?
Yes i have this and i also sweat from my face mainly the nose, upper lip and forehead like fuck now. When i'm going to an event or a night out in a club i take clonidine which reduces this.
Man it is ridiculous how many of the same side effect we have, but what really gets me is how we have them to such varying degrees. Do you have dry mouth? It is next up on my list of minor side effects I am trying to deal with. I don't really mind the dry skin or the dry eyes, but the dry mouth really bugs me. Do you have any recommendations on what to take to try to help with this? From what I understand GLA appears promising, but I wanted to get your take on it as well.
No dry mouth thankfully.....
Have you looked into sjogren's syndrome? my eyes are fucking terrible if i don't treat them.
If you read up on sjogren's syndrome you will see it is again an inflammatory disorder/auto immune. If you can find the right way to modify the immune system you will find some relief....
I have been trying curcumin recently and if you can take it without it making you flush you should try it...
somone said it cured there flushing and really helped with redness
I get sun way more then 10 minutes a day at my job,I work on a restaurant patio by the ocean so when its hot plus the heat reflecting of the water,I get alot of sun.
are there any supplements you take though? that are beneficial
"No dry mouth thankfully.....
Have you looked into sjogren's syndrome? my eyes are fucking terrible if i don't treat them.
If you read up on sjogren's syndrome you will see it is again an inflammatory disorder/auto immune. If you can find the right way to modify the immune system you will find some relief....
I have been trying curcumin recently and if you can take it without it making you flush you should try it..."
Hey guys I have taken about 12 HGH injections. I am not supposed to notice anything significant until about a month deep into it. I a couple months ago my hair started thinning significantly. I am unsure weather it is natural male pattern baldness or tane induced. Lamarr you mentioned you had hairloss, 1 is there any way to tell if it is natural or tane induced and 2 is there anyway to stop it. My doctor is set on this whole thing being hormonal, but if it's something else I need to know how to keep my hair.
If you lose hair across your entire head, e.g. EVERYWHERE, not just the male pattern baldness areas, then you have accutane hairloss.
Either diffuse alopecia areata or Telogen effluvium. I have diffuse alopecia areata which is another auto immune/auto inflammatory condition. Several things help mine, topical steroids, topical essential oils and a home made high powered laser system...
I've told you before bro, ignor your doctors it isn't hormonal. Over time it will begin to mimic normal male pattern baldness, but this isn't because it actually is.... it is because of the inflammatory nature and the fact that it is harder for men to regrow hair in these areas and when your hair sheds so much, it slowly whittles away in these areas.
Unfortunately bro i really don't think it's the GH deficiency causing any of this.... You may have low HGH levels but this is a symptom of somthing else underlying.
I think there is something that happens with Accutane and hair growth. I was on extremely high doses of Accutane, during the last 2 months I noticed that the hair on my legs and underarms had stopped growing and at the time I attributed it to Accutane.
I ended Accutane in 2007 and to this day - I rarely have to shave, there is next to no hair production.
Spooky.
Lamarr: Appreciate the advice bro, time will tell. Did your hair loss completely stop after these treatments, if they did what did you do specifically. Also how did you figure out that this was definitively auto immune/inflammatory and how can I be sure that I have the same thing as you do. I have the flushing and the hair loss. I do not sweat, so there is obviously a glandular problem involved. I also feel pins and needles all over my face before a flush and I am significantly better in the morning. No other symptoms.
Jordan, many rosacea and flushing sufferes find their redness and flushing MUCH better if not non existant in the morning... it's common.
As for the hairloss, well my hairloss persists and i just use the treatments to keep what i have. My hair still sheds like mad but i manage to make it regrow pretty quickly with all the treatments so i haven't lost much tbh.
The way you tell if your hairloss is auto immune is by trying the steroids for a while. If it is auto immune the shedding will be reduced. If the hairloss doesn't change then you know it probably isn't inflammatory.
I think there is something that happens with Accutane and hair growth. I was on extremely high doses of Accutane, during the last 2 months I noticed that the hair on my legs and underarms had stopped growing and at the time I attributed it to Accutane.
I ended Accutane in 2007 and to this day - I rarely have to shave, there is next to no hair production.
Spooky.
For a female that is either due to hormone alterations or you could have alopecia areata of the body. It can affect any area. Your lucky you haven't had the same happen on your scalp!!
The hair across my whole body used to shed, including eyebrows, lashes etc and they all thinned because of this. No other form of hairloss can do this.... Mine is now only restricted to my scalp...
lamarr: What steroids and for how long? And don't the topical steroids work because they block the inflammatory reaction/auto immune reaction. If this is the case HGH supports the immune system more than any other hormone or steroid out there, I feel like if my hair loss in auto immune than the HgH will definitely help when it starts kicking in.
Yeah they do that why i said if they work then you know it is the alopecia areata. Again i don't want to try and seem negative but if it were as easy as using HGH to reverse alopecia areata it would be in wide spread use!!
Who knows maybe it will help i just personally don't think it is going to fix the underlying auto immunity!! I hope i am proven wrong bro and i wish you the best of luck!
Lamarr: Thanks man and I read this study regarding aids patients and HGH. It indicated that HGH actually reduced their systemic inflammation. Did your shedding start at the same time as all of your other symptoms because I feel like this has only been going on for the past year, it's just gotten really bad in the past couple months.
Halfpipe: Yeah bro, I go through periods of time where my hair just sheds like crazy. Not clumps but actual shedding like a dog it's ridiculous. It's predominately concentrated to the front portion of my scalp, that is why I feel like it still may be male pattern baldness, but who knows I am only twenty-one. And I remember you saying that about the pins and needles before. I feel like that is a neurological component, the issue being that both your endocrine and immune systems can effect your nerves so I am at a point where I could not be more confused.
Lamarr: Thanks man and I read this study regarding aids patients and HGH. It indicated that HGH actually reduced their systemic inflammation. Did your shedding start at the same time as all of your other symptoms because I feel like this has only been going on for the past year, it's just gotten really bad in the past couple months.
Halfpipe: Yeah bro, I go through periods of time where my hair just sheds like crazy. Not clumps but actual shedding like a dog it's ridiculous. It's predominately concentrated to the front portion of my scalp, that is why I feel like it still may be male pattern baldness, but who knows I am only twenty-one. And I remember you saying that about the pins and needles before. I feel like that is a neurological component, the issue being that both your endocrine and immune systems can effect your nerves so I am at a point where I could not be more confused.
Remember that aids patients have immunosupression and underactive immune systems. The HGH may well up regulate their immune systems, which although wouldn't sound as if it would reduce systemic inflammation it does because it makes the immune system more efficient at killing infections. If you read up on aids patients, which i have before you will find alot of their systemic inflammation is due to infections.
I was interested in aids patients, because some people with lupus have contracted HIV and the two diseases actually counter act each other.... Hard to believe i know!
Firstly my derm (best in the UK) informed me there is two types of hairloss from accutane. Diffuse alopecia areata and Telogen effluvium. Alopecia areata is auto immune, we treated it with topical steroids and the shedding reduced alot, so i have continued using them. My hairloss was one of the first side effects to appear, but yeah within a few month i started developing other side effects.
Try a super potent topical steroid for a while and see if the shedding reduces. You could just have MPB i think a very minor minority can get accutane induced MPB.
I was on accutane for six months about a year ago and after getting off I was put on minocycline which I took from then on until about six weeks ago. Last November I started to get facial redness/flushing on the sides of my face and nowhere else. The main trigger that causes my redness/flushing is heat and my face seems to be extremely sensitive to any heat and I can even flush in temperatures of 65F. At first I thought it was just due to dry skin, but my skin hasn't been dry for months and I still suffer from this problem. My dermatologist had no idea what was wrong with me and she had me stop taking minocycline to see if that helped. I noticed a marked improvement once I stopped taking the minocycline, but I still have facial redness/flushing six weeks later. The minocycline was definitely making things worse, but the biggest change I have seen since stopping it is in the intensity of flushing I get. When I was on the minocycline my face felt like it was on fire and now, even though I still flush, it isn't to the same intensity as before. When my face starts to feel hot my cheeks feel sticky even though my skin still feels smooth to the touch so I guess it is like an internal problem. I am not sure what that means, but I think that maybe my skin doesn't produce enough oil after accutane or something? I used to have pretty oily skin and now I don't have oily skin at all. The only product I am using right now is klaron, but I don't think that it has any connection with flushing and it has been really effective in keeping me acne free. I was hoping to get some advice if anyone had any?
Hey man im experiencing the same thing i was on accutane 2 years ago then was put on tretinoin (retin a) and had been experiencing flushing on both sides of my cheeks... it has gotten somewhat better after being off all medications except clindamycin for mild acne. do you think the flushing will ever go away?
I too have had problems with redness and flushed skin on my face. I ended up trying numerous product that didn't do anything until I tried murad redness system. I ended up liking it because it had the cleanser, serum, and moisturizer for my skin but also these great supplements that I take everyday. i think the system makes the most sense with the external care through the lotion along with the internal care through the supplements.
here's the webstie that I get mine from: *Moderator edit, URL removed - read the board rules. *
hope it helps all, like it helped me
Lamarr: If I live in the US how do I get in contact with the doctor? Also what's the deal the the topical steroids, do they have a specific name? My hair loss started after my flushing, does that mean that there is a possibility that it is not tane induced?
I would say it is almost certainly tane induced bro, it can be the first side effect to appear in some people, the last in others. Contact which doctor? Dr Chu has an email but generally only responds to patients and i'm not supposed to give it out.
The steroids i use are called betnovate and dermovate. Ask for the dermovate to try for a few weeks.
I too have had problems with redness and flushed skin on my face. I ended up trying numerous product that didn't do anything until I tried murad redness system. I ended up liking it because it had the cleanser, serum, and moisturizer for my skin but also these great supplements that I take everyday. i think the system makes the most sense with the external care through the lotion along with the internal care through the supplements.
here's the webstie that I get mine from: *Moderator edit - since a subsequent poster copied and pasted this quote in a reply, it just took that much more time to remove the advertising*
hope it helps all, like it helped me
F**k off.