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if you have a prescription for hgh and start taking it monday,then how was it a waste of time?
the hgh might cure you,will it not?
jordan do you have msn?
Jordan a Human growth hormone is a very serious drug,and not too mention there is a very likely possibility that you can develop severe acne from taking a drug like that,but clearly your doctor thinks its a good reason for it but it is a steroid
Halfpipe,
Hey man i'm going to the doctor tomorrow with the specific plan to see if I have an auto immune problem. I will let you know what I find out because at this point I have become pretty convinced that my problem is auto immune.
In regards to Jordan, if I remember correctly, I believe he told me that his only post accutane side effect was flushing and his growth hormone levels were low. In my opinion the flushing that accutane can induce is caused by numerous reasons so the fact that, in his case, his problem is not caused by an auto immune condition does not mean that yours is not. Another example of this is peter who said that IPL helped out his flushing while I know it had no effect for others so I mean we are clearly dealing with multiple issues as peter pointed out in a past post.
Very true,we are not all the same.
For example I had 2 IPL'S with no success on my flushing.
I believe I have a auto immune problem too but my doctor recently put re fill on my quinacrine so now I dont have to worry about not getting it anymore but I am still curious about the scan.
Halfpipe thanks for the warning but you need to get your facts strait man. If someone has a GH deficiency it will actually help their acne. I also need this stuff my pituitary was not stimulated after an arginine infusion, this is not a gamble with my health, if someone like me who is GH deficient takes growth hormone they will only benefit from it. All the horror stories about GH are regarding individuals who abused it, aka taking it when they were not deficient. Your willing to throw down on any drug out there do make your symptoms go away and you have the audacity to question my line of treatment? Bro to answer your question it was a waste of time because I didnt receive the growth hormone from the hemo or allergist. At this point I am wondering if you even know what a hematologist is without asking Lamarr. They did not do shit to help me. How the hell could they prescribe me GH? Come on now.
You basically said the hemo tested you and you are getting the GH this week.
Maybe you should read your posts more clearly and learn how to write a sentence that makes sense then because all you do is contradict yourself.
"The hemo found a high triptase level and did a bone marrow biopsy which came back negative. I have the prescription for hgh and I will be taking my first dose on monday"
to this
"They did not do shit to help me. How the hell could they prescribe me GH? Come on now"
You never said you didn't get it from the hemo in your original post,idiot.
And The fact that you try to insult my intelligence does not really bother me,I am in business school and far from unintelligent and I have studied GH's in one of my science classes in university and even my professor said allot of people get acne from it,for obvious reasons.Even peter mentioned that you can get severe acne from it on msn.Sorry that I ask for lamarrs advice before I run off and do something that might not be beneficial since I am pretty new to this while hes been dealing with it years ago.
douche bag that is not a contradiction if u had read my previous posts you would realize that I have been seeing an endo for the growth hormone deficiency. Also what you are quoting is two separate sentences use some fucking common sense. I am currently getting my PHD in pysc so the idiot comment does not really correlate to well with that. You have no idea what your talking about regarding GH if you have a GHD you need it bottom line. GH only causes acne when you already producing a normal amount of somatotropins, which i am not. If you have read my posts we have the exact same thing you fucking dumb ass. Instead of criticizing me you should be thanking me I just figured out how to cure us.
Lamarr has even said I have all the symptoms he had apart from hairloss and he also said he has severe scaring where as i only seem to get little ones and I had backpain from accutane on top of that,my current derm wanted to send me to the best dermatologist in canada because my case was so severe,Its not just a face thing for me,he could not understand why my hands were like this before i even mentioned it too him (he walked in and noticed the purpleness in my hands)
he even prescribed me a anti histamine one time (lamarr is on them too) because he was at a loss of words and wanted me to go get tested in the university because he could not understand why my test results were coming up negative when he said clearly there is a problem.
Bro I posted the 2 sentences to show you how you were not clear at all and you contradict yourself alot in your posts,you just dont realize it because you seem very arrogant and stubborn
and if your so anti-drugs and give everyone shit for turning to drugs,look whos talking,look what your about to go on
I wish you all the luck and hope it goes well for you but you dont even have the flushing we have,you even said you dont even flush "some days"
like whatever,that is clearly not what me and lamarr and seattle among other old members have
so your not in are situation in seems
I am not going back and forth with you man. Maybe I have been contradictory and if so my mistake and ripping you up on this blog is not helping anyone. All I am saying is do not criticize what you do not fully understand and the same goes for me so we are both in the wrong I guess. Let me say that all our bullshit aside get your GH levels tested man, it is no skin off my back if you don't, but dude a simple blood test won't hurt. I have been diagnosed with pituitary dehydration, is it the cause of my symptoms, time will tell.
Im not here to argue either but you tried to make a low blow joke which was un called for as we are all trying to slowly help eachother
and simple blood test? I have had blood tests before,even the women taking my blood was looking at what my derm sent here (she wanted to check my blood for everything) and the women was like "your doctor is clearly worried,shes testing you to where we have to take a couple shots of blood"
honestly ever since I got those blood tests done and she said I was being tested for everything,Im kind of at a loss..
At this point in my life, I just want to talk to someone who can tell me which pacific doctors to get a referral too and what I should ask to be tested for,so I can move forward even though the quinacrinne is helping,I still want to get tested,I might have something else you never know.
I have to come correct before I meet my family doctor again.
ok honestly we all have different causes but we are looking at either a hormonal, neurological, and/or auto immune issue. My doctors have gone back and forth and this is the next step for me, the neurological component would have been alleviated by the B12 shot I was taking, so that leaves hormones or immune system. Because of my pituitary issue it's seems logical that it is my hormones that are causing this but you just never know. Definitely have an endocrinologist do a complete workup and the same for a immunologist. If nothing comes back then as lamarr said it just can not be tested for at this point.
Lamarr my eyes are feeling very watery these days
do you think thats a bad thing? i tried to pm you/contact u but its full
They are just very watery if that makes sense since starting quinacrinne
maybe its my allergies because I also have huge headaches these days but im under alot of stress right now,going through alot of shit with my girl
I don't really flush that much anymore,still flush like crazy after sex/I havnt tried working out though on it but I think that type of flushing takes longer
Halfpipe,
Haha man i know what you mean about the blood tests. Starting with the monthly accutane blood tests and all of the blood tests since then, its been pretty crazy. Bad news on the doctor front yesterday. I had been waiting a couple of months to see this doctor and for the most part it was encouraging because she was rather thorough and I talked to her for a good 40 minutes, but she wants to start back at square one. I guess she doesn't trust all the other doctors I have seen haha (after really researching doctors in the greater Seattle area she seemed like one of the best). Square one to her is thinking my problems are all anxiety related so she wants me to take one for 5-6 weeks until I see her again as well as ordering more blood tests lol. Obviously this was frustrating to me as I'm basically positive that isn't the problem and I went that route in the past, albeit with a different medication so in my opinion this is basically a waste. Having said that though she made a deal with me that if this doesn't work then she will focus on auto immune. I can't blame her for thinking it is anxiety related because I must come off as crazy, to doctors, when I first meet them. However, for me its stupid because yeah I realize I have anxiety problems now and am more depressed, but these are products of my problems not the problems themselves (which I told her) lol.
Jordan,
I hope that growth hormone works out for you man. That sucks about the B12 shots. Last time I heard from you I thought they were working? Even though i'm pretty sure we don't have the same problem I still appreciate you sharing your thoughts and experiences with your doctors because it can't hurt to have the same tests you had. Checking my hormone levels is still on my list, but it just isn't a top priority right now. One of these times I am going to remember to get that done...
Hey guys,
I am curious about one thing. Have any of you experienced an increase in armpit sweat? In general I never have been a big sweater, but post accutane I definitely have an increased amount of sweat in my armpits, but nowhere else. I literally sweat like an obese man. It really isn't a big deal, but I am just curious to know if any of you have had similar experiences. Thanks.
Lamarr would you say its okay to take doxy and mepacrine at the same time?
my skin is still in pretty bad shape redness wise even though flushing is slowly getting better but I still notice a huge flush after sex (when did you notice this goes away)
and can you use a led light therapy while on doxy?
I wont go on doxy in the summer because its so hot here right now but was just thinking if nothing else works by october..
also i was just thinking if my rosacea is steroid induced then maybe doxy is the only way out..
thanks
also i still dont fully know how to use the led time wise
and the infra red is the most confusing,do i always leave that on always,and do i use it by itself too?
talk to me on msn some time bro its to complicated with the LEDS...The flushing will continue to fade bro it is just taking longer in you because you arent taking shit like clonidine and propranolol. Light therapy on doxy is fine but i wouldn't take doxy unless you really need it. there are plenty of effective treatments for the acne you don't need to take anything internally for that...
anyhow the green as you call it is just a little led to show that the infra red (which are invisible unless you are in the pitch black) are switched on!!
So I guess I came in late to this thread and it's very long so I was wondering if I could get a summary? And here is my story in case you are curious:
I remember my face getting really red before. When I would go outside in the heat in the summer my face would turn bright red, like a lobster. But I never would blush or flush any other time but that. So I took accutane, 40 mgs for 3 months, then 80 mgs for 2 1/2 months. I stopped halfway into my last month because I started blushing and flushing like crazy. It was so frustrating. My face always felt like it was on fire and there was absolutely nothing I could do. I started obsessively researching what it was I had. I eventually thought it was rosacea, but once I started reading about rosacea I felt confused because the only symptoms I experience are blushing/flushing. I started going to so many doctors. I must have seen at least 20 different doctors. I went to a rheumatologist to get batch testing done and everything was perfectly normal. The first thing she commented on when she saw me were my blue hands. They prescribed me lyrica, which didn't do anything. They also prescribed some beta-blocker .. that didn't work either.
I also have something called petichae. They are these little red dots all over my arms, and apparently they appear on my neck now sometimes as well. I used to get them around my eyes when I was little anytime I got sick and threw up a lot.
So my symptoms:
blushing/flushing
petichae
hands turn really red or blue
Yes i have this and i also sweat from my face mainly the nose, upper lip and forehead like fuck now. When i'm going to an event or a night out in a club i take clonidine which reduces this.
Man it is ridiculous how many of the same side effect we have, but what really gets me is how we have them to such varying degrees. Do you have dry mouth? It is next up on my list of minor side effects I am trying to deal with. I don't really mind the dry skin or the dry eyes, but the dry mouth really bugs me. Do you have any recommendations on what to take to try to help with this? From what I understand GLA appears promising, but I wanted to get your take on it as well.