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seattle, you have an autoimmune system proplem, i am 110% sure. go to a dr
The last doctor I was working with didn't think it was autoimmune and he had me trying some different stuff, but they didn't really work out. After that I was pretty sure it was autoimmune so I made an appointment with a specialist down where I am living now so that appointment is on the 30th. I am not sure why you assume that I am not working with doctors, but whatever.
Yeah seattle you gotta go see a doctor and get up on your stuff because this thread helps but nothing will cure you if you dont go out there and get it
If you don't want to answer my questions that is fine. Having said that I am not sure why you are under the impression I have not been working with doctors in the past and am not currently working with doctors to solve my problems. I find your post to be very ignorant especially the "get up on your stuff" part. I don't see how being curious about other people having similar side effects makes me not "know my stuff," but whatever. It isn't like I have spent the last two years of my life dealing with this bullshit. I'm sorry that I don't personally know anyone that has post accutane side effects to compare with.
Lamarr,
Were your muscle spasms limited to your cheeks only? I don't think I have ever had spasms on my face, but pretty much all over the rest of my body (randomly).
Yeah bro most limited to the cheeks...it was quite annoying when talking to people and my face was visibly twiching!!
lamarr are you still on propranolol
by the way people,I am not a big fan of clonidine,the cotton mouth is very hard to manage when your out socializing and it makes you dysfunctional,not to mention to me its like a sleeping pill lol
I actually take clonidine and propranolol before i go out to a party or whatever, because accutane gave my excess sweating so i take the clonidine for that when going out. Propranolol also helps stop blushing.
Hey haven't been on here since Jan and had my first bad flush yesterday so reminded me I should check back.
Seattle JT u were right... I told my derm I was coming off the tane. Within a couple of weeks I could see an improvement in the flushes - less severe and fewer triggers.
I'm sitting my last couple finals now so that's why I'm getting worse flushes.
STRESS is definitely my worst trigger- I handle stress badly anyway (it induced IBS for me) and when I'm writing an essay/ sitting an exam I undoubtedly will get one. However I've been off the tane now for a few months now and I'm seeing my derm in a couple weeks so will ask him about how long it's still in my system for.
BAD NEWS:
Adrenalin is definitely a trigger it seems- they should do some research into how this chemical affects the body once a certain dosage of tane is in the bloodstream. Anyway geekstuff to one side- even after a few months I'm still getting the flushes- during sexy time/ when I'm very stressed/ embarrassed/ alcohol.
GOOD NEWS:
Yes this is annoying as hell but I promise you all that the quickness of how much the flushes eased up after I came off the tane can be nothing but reassuring. The whole anxiety about when I think I'm getting a flush only exacerbated the problem. Now when I think I have one the majority of the time I'm pleasantly surprised BECAUSE I DONT! The heat trigger has definitely cooled down (!) - this has usually been the time when I'm hot I'm thinking definitely getting one but nope! When I've been dancing/in clubs the improvement is brilliant. Even when I'm at the gym the flushes are minimal, if at all. But guys if u do get flushes when u exercise just forget it- ppl flush anyway when they exercise even those who have never gone near a skin pill in there life!
I honestly do think once I graduate stress will be at an all time low- so I reckon those induced flushes will start to disappear. I'll let you know how the alcohol effects it once the post-finals celebrations start to commence! But tbh alcohol is a trigger for my IBS so I should lay off it anyhow...I say that everytime 
I don't know why all these derms are saying the flushes aren't connected to the drugs. This is pissing me off- how stupid can you get? Also how has there not been more research into this as a common side-effect?!
Rant over- STAY HAPPY. They WILL go. Minimise trigger factors if you can and drink shit loads of water.
xxxxxxxxx
Wow just re-read it- my grammar is terrible apologies. You can tell haven't had much sleep.
All this talk of alcohol has got me thirsty- off to the pub now!
Safe x
Kleg,
I'm glad to hear that you stopped taking accutane. I think that was the best thing you could do once you started to get the flushing side effect. I assume then that you are four months off accutane? If things have been improving then I would say that you will probably be able to completely get rid of it, naturally, within a year post accutane. Especially if heat doesn't cause you to flush anymore. Just like you stress always makes me flush the worst and I dreaded taking finals, but not for the reason that most students do haha. Sometimes I would leave a final, see myself in a mirror, and be shocked at how bad the flush was.
Regarding how long the accutane stays in your system I have heard a lot of different things about that. I believe most dermatologists will tell you that it will stay in your skin for one year, but I have also heard of it staying in the skin much longer so I guess it can vary from person to person. Based on the fact that you stopped taking it before you really got to the high doses, such as 40, I would assume that you would recover faster.
Are you doing anything to treat your acne right now? I would be very careful about what you are using because you don't want to exacerbate the flushing. Anyways I am glad that your flushing has started to improve and good luck on your finals.
can the blepharitis unduced by accutane fade on its own or be cured?
I'm sorry man, but I don't have any experience with accutane induced blepharitis.
i wouldn't even worry about how long it stays in your body, that isn't the concern. It's the alterations it causes to DNA and the immune system. It also seems to affect the way vitamin A metabolism is carried out.
Accutane induced blepharitis may improve or recover if it is mild, but if you have had it for a long time or it's pretty severe i doubt it will...
i wouldn't even worry about how long it stays in your body, that isn't the concern. It's the alterations it causes to DNA and the immune system. It also seems to affect the way vitamin A metabolism is carried out.
Accutane induced blepharitis may improve or recover if it is mild, but if you have had it for a long time or it's pretty severe i doubt it will...
I hear what you are saying and I agree in our cases. But how do you explain the people that recover naturally then? It seems to me that if it altered their DNA then they wouldn't recover naturally? I'm curious to know what you think about that because it is pretty confusing to me.
i wouldn't even worry about how long it stays in your body, that isn't the concern. It's the alterations it causes to DNA and the immune system. It also seems to affect the way vitamin A metabolism is carried out.
Accutane induced blepharitis may improve or recover if it is mild, but if you have had it for a long time or it's pretty severe i doubt it will...
I hear what you are saying and I agree in our cases. But how do you explain the people that recover naturally then? It seems to me that if it altered their DNA then they wouldn't recover naturally? I'm curious to know what you think about that because it is pretty confusing to me.
Well i think the body can undo a certain extent of DNA damage, stem cells are what does this job. They can only do a limited amount though. That is why when i ask people how long they have had it or how severe it is.
I wouldn't take oral keto, the seb derm will just come back once ur done and it's harsh on the liver.
Lamarr,
Yeah man I could see that. I didn't bring it up because he stopped taking accutane soon after the flushing began and either at the same time that he upped his dose or close thereafter. Obviously I do not know if he will recover naturally, but from what he has said it appears he is recovering more than staying at the same level which is reason enough, for now, not to think too much about it being permanent.
In regards to the muscle spasms I can see how that was a problem. People that didn't know you must have thought you were tweaked out on drugs or something lol. I never have experienced any spasms on my face other than my lower left eyelid twitching which was very annoying. But that seemed to be tied to the cold weather as it came and went in a cold November week. Thanks again for the reply.
Lamarr,
Yeah man I could see that. I didn't bring it up because he stopped taking accutane soon after the flushing began and either at the same time that he upped his dose or close thereafter. Obviously I do not know if he will recover naturally, but from what he has said it appears he is recovering more than staying at the same level which is reason enough, for now, not to think too much about it being permanent.
In regards to the muscle spasms I can see how that was a problem. People that didn't know you must have thought you were tweaked out on drugs or something lol. I never have experienced any spasms on my face other than my lower left eyelid twitching which was very annoying. But that seemed to be tied to the cold weather as it came and went in a cold November week. Thanks again for the reply.
Beofre i started treating all my side effects i looked like an absolute WRECK. swollen folliculitis all in my beard, severe redness all over, diffuse hairloss that looked like chemo patient style. eyelashes and eyebrows all dropping out, swollen nose, people often asked if i had been smoking weed coz my eyes were so bloodshot and swollen all the time!! I also had spontaneous indented scarring appear (yes there is a name for this condition) it is so hard to beleive until it ishappening to yourself. These were just my 'asthetic' issues from tane...
i have found treatments for most of these problems now but it takes up about 30 mins of my time every day to treat them. I accept this though because otherwise i wouldn't feel like leaving the house!!
My eyelashes fall out too..what does that mean?
You got either blepharitis or diffuse alopecia areata. Do you lose hair anywhere else? If not then i would guess at the blepharitis. If you don't have dry eyes though then i'm not sure... Seb derm can cause eyelash and eyebrow fallout... so that is another option i guess and is probably more likely to fit in your case.
I dont think it will make me flush more if it does not touch and I need to get my skin in order
But im still confused about it
so there is a yellow one/red one/green one (shows nothing but I guess this is the infra red)/and I can put the red/yellow/green on together all at once
but could you tell me how to use it
like should i do the red and yellow alone for 10 minutes each without the green button
do you leave the green button on all the time no matter what
very confused
If you could write exacty what to do it would be much appreciated
time/buttons/..other details
just to clarify the green one that shows nothing if infra red?
Also lamar I am about to order this acarid soap and zz cream
http://www.demodexsolutions.com/
I think mites might be the cause to my redness
I got a question though,would the sulfur in the night cream make me sensitive to the LED
thanks and any thoughts on demodex would be greatly appreciated,Ive read good stuff from rocasea sufferers,some even say they got cured
peter keeps telling me to go to a allergist/hematologist (hematology)
He says the hematology is the most important between the 2
whats ur take on this,he says if they find I have a auto immune problem they can most likely cure me
My doctor just gave me a bunch of refills on quinacrine lol so I dont wanna bring him another issue but whats your take on this
have u seen one? wise?
halfpipe don't waste your time I have already seen and allergist and a hemo. The allergist put me on some meds and after that was unsuccessful i never hear from him again. The hemo found a high triptase level and did a bone marrow biopsy which came back negative. I have the prescription for hgh and I will be taking my first dose on monday.