Lamarr,

Thanks for the reply man. I wonder if the mepacrine would work for me as well since mine is rather more severe. On top of the joint/muscle pain I also don't seem to recover from injuries anymore which at this point has become more worrisome than the flushing (although I still flush daily).

Halfpipe,

Congrats that the mepacrine seems to be starting to work. I hope it works out for you. At this point though I wouldn't sweat the permanent redness. If you are able to fully get rid of the flushing than you can focus in on the redness. You are fortunate that your mom is a professional massage therapist! I have not experienced the shooting pain in my left arm as you have, but occasionally I get chest pain on my left side. Do you ever get muscle spasms? Also, what part of your back is affected? I went to a rheumatologist and got tested, but unsurprisingly everything checked out. The rheumatologists seemed rather unconcerned after my appointment so that is when I realized that the joint/muscle pain was going to be as much of a bother as the flushing.

i had a blood test done by an immulogist/ematology and they found out i had low plaquetes which could be linked to:

joint pain

bruises

flushing

facial redness

auto immune system

you guys should get your blood checked for plaquetes, and see if that is the problem..

It can be fixed.

But if you have- visible facial veins, nose, chin or forehead you most likely have rosacea...

i just have cheek rendess

Ive been flushing like crazy all day today

9 days so far

getting pretty discouraged

has anyone in this forum checked there thyroids, and plaquetes?

i got a thyroid test yesterday and am waiting for the results...and i don't even know what "plaquetes" is/are lol

Hey guys just wanted to update I think the quinacrine is slowly helping but I have now stopped using my sulfur topical at night due to I think its not letting me see the full results

I am scared to really break out by just cleansing and moisturizing but fuck it,I am gonna do it for the sake of not saying (well maybe it could of worked if i stopped using a topical)

has anyone in this forum checked there thyroids, and plaquetes?

Thyroid yes.... Plaquetes no, do you mean platelets?

yes, platelets

thanks lamar

Yeah I have had my thyroid checked a couple of times because thyroid problems run in my family, but it is fine. I probably have had my platelets checked too, but I'll get them checked again when I go to the doctor at the end of the month. Thanks for the heads up peter.

lamarr I now remember u saying when u started you were on 100mg twice a day

is my dose too low?

No dude it's not, i only took the odd dose of 200mg per day. Your results will take longer than it took for me because i was on 3 other drugs to combat the flushing. Your vessels need time to heal. You should SLOWLY notice improvements soon though.

I should stop anything that makes me flush right now to fully see its effects

Hey guys just wanted to update

the quinacrine has definately helped alot with my hands so far,My hands get very red,dry,purple,eczema like

My boss actually commented on it one time

Yeah it cures my rayhnodes (can never spell that). And the dryness/redness on my knuckles.

It will solve your flushing trust me.

hello, after reading the whole blog of post accutane/minocycline facial flushing it seems that some of us have different conditions. Some have Rosacea, Some have keratosis pilaris rubrai faceii, some have sun damage, and some have auto immune system problems (Graves disease).

Is it possible for all of us to start posting close up pictures of our facial redness.

Some of us here are confused with what we have, and maybe we could help each other more.

thank you

peter.

[Edited image out]

I have been reading alot on emu oil

I think it might help alot of us

supposed to be amazing for facial eczema (some review said it worked better then steroids) ,redness,irritation,itchy face

I have about a litre of emu oil sitting around at the moment, i use it on my scalp daily.... For tane induced hairloss it helps reduce some of the inflammation.

Yeah Ive been reading alot about it

I just ordered some ultra emu oil which is supposed to be the best healing one for the face

I wanna get the normal one too though and use it on my scalp

It took me an hour to find the right site,alot of sites have a bunch of stuff added and mixed..

Peter it specifically said it was good for YOUR type of eczema and all other types but it pointed yours out before the general assumption so that might be something to look into.

can you post the link?

halfpipe,

Do you ever get muscle spasms? Also, what part of your back is affected?

Also, guys I tried using emu oil and for me it had no effect on my flushing. Not to say that it wouldn't work for any of you, but that was my experience with it.

halfpipe,

 

Do you ever get muscle spasms? Also, what part of your back is affected?

 

 

Also, guys I tried using emu oil and for me it had no effect on my flushing. Not to say that it wouldn't work for any of you, but that was my experience with it.

Seattle i'm a big believer of the spasms being due to nerve damage from inflammation. I used to get muscles spasms over my cheeks ALL the time when my rosacea was bad. Now that the inflammation is gone i get none...

Just wondering what sort of prescription's people have tried for hot flushing & sweating from accutane and previously used retin a and minocyline?'

Thanks

Lamarr,

Were your muscle spasms limited to your cheeks only? I don't think I have ever had spasms on my face, but pretty much all over the rest of my body (randomly).

seattle, you have an autoimmune system proplem, i am 110% sure. go to a dr