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Lamarr,
Hey man I got nothing against the mepacrine, but in my opinion I would prefer to exhaust other potential solutions before I resort to a drug that will not cure the problem. Having said that though I got nothing but respect for you and could see myself using it if things don't work out.
really shocked about what you said because mepacrin is not like other forms of these other drugs (derms/ doctor has been giving it out for over 10 years,no problems) he said he was shocked about the eye problem you had for mepacrin and he told me the following backed up with facts
http://books.google.co.uk/books?id=dpjVmS4...0&ct=result
specifically Page 18 further explains about the eye's
It shows/says that for one the drug quinacrine does not affect the eyes
its a common knowledge in rehmatologists
I even looked at the lupus message boards on quinacrine and they all say the same thing.
quinacrine = quinine = mepacrin by the way
Quinacrine actually has quite a few health benefits believe it or not,prevent diabetes (as you already know it runs in my family,high risk of me getting it already),imrpove cholesterol levels
it can also stop you from developing all sorts of auto immune problems
http://www.sciencedaily.com/releases/2008/...81028120955.htm
I learn't one thing when trying to deal with my side effects from accutane, unless you want to waste the rest of your life looking for non medication cures or treatments then you have to reside to the fact that you need help from meds. I did exhaust all options i feel, i had dozens and dozens of tests, i learn't that tests as they are currently aren't going to detect changes at the DNA level.
They just can't test for the changes accutane induces YET. I tried supplements, i have always been healthy, exercised good diet etc. I was still going down hill if anything. I tried lasers for my rosacea, i tried light therapy etc etc.
Nothing other than the mepacrin had a significant impact on anything. Most of us are left with over active inate immune systems post accutane, there is no more effective way of addressing the inflammation than to take mepacrin. Believe me i did all the reading, even NSAID's are more risky than mepacrin, prednisone (steroids) etc all come with dozens of side effects.
Mepacrin is derived from the bark or resin (can't remember which) of a tree...it is an anti oxident, it lower cholesterol and reduces the chances of other auto immune conditions occuring, like already mentioned....
Only thing that is a real risk (all beit very small) is liver damage. So long as you are having this checked it shouldn't be a problem.
Doctors and rheumetologists whcih are familiar with mepacrin are well aware of it's safety profile. Do you know why it was stopped being produced in certain countries? because it was being used for sterilization of women by INSERT IGNOREING it into the vagina. INSERT IGNOREION of mepacrin into the vagina at extremely high doses is totally different from taking it orally at the dose we take. They had to stop it from being used for this off label though....
Little update
first couple days I noticed a increased flushing (I didn't really notice the first pill but the 2nd and 3rd and 4th yes,but this is to be expected)
I really believe this is gonna help though the true test will be at work tommorow and monday because work=flushing and when I get home everytime from work just sitting down I get a crazy flushing experience so if that does not happen then clearly its working
Will update
yes it most CERTAINLY is....
What you gotta remember is this, synthetic vitamin A (isotretinoin) has caused these problems. Because my problems were so severe it was easy for me to spot what made things worse. If i use topical Vitamin A, oral vitamin A or even to much from my diet i would get alot worse.
I will just say again, none of you should be taking omega 3's, synthetic or fat souble vitamin A or any form of topical retinoid or vitamin A.
If you avoid these things you should see improvement if you have been using them.
You just gotta trust me on this, tane seems to alter how the body processes vitamin A (if you have suffered from side effects anyhow).
Little update
first couple days I noticed a increased flushing (I didn't really notice the first pill but the 2nd and 3rd and 4th yes,but this is to be expected)
I really believe this is gonna help though the true test will be at work tommorow and monday because work=flushing and when I get home everytime from work just sitting down I get a crazy flushing experience so if that does not happen then clearly its working
Will update
This follows with what happened to me. I believe it is due to the way it slightly thins the blood and prevents clotting. Basically the blood flows more easily so until the healing via anti inflammatory properties begin to kick in you will see a slight increase in flushing. I nearly stopped because it was making me flush more at first....
Just got back from work and the flushing is still here
tommorow it will have been a week since I started
And Good to know about the vitamin A,I just bought the dermalogica Intense moisture and it has vitamin a in it so I guess I cant use that anymore
I just checked my dermalogica ultra calming cleanser and that does not have vitamin A in it so thats great,I am now looking for products that dont have it.
Also Lamar Ive been trying to see if your on msn when Im on but your not
I have a couple questions about the led,I dont know if I am using it right
I like put it on my skin and hold it..(the lamp is touching my skin the whole time) is that how your supposed to do it? or do I put it on a stand and let it hit me from a close distance? what do you do?
And I still dont get the buttons
I have a yellow lamp button,a red lamp button,and a green button (shows nothing)
do I always leave the green one on even if I am not using the yellow and red at the same time?
is it wise to use the yellow lamp/red lamp without the green?
i've been sitting exam the past few days so been kiinda busy i.e. not on msn. i will be soon though. Bro i would keep things simple for the moment....find out how the mepacrin is working for you without the leds for a while ...You don't want them touching your skin because you don't want them warming your skin up.
As i said, wait for a week or two before starting the leds again, once the mepacrin kicks in the LEDs will clear the redness and vessels nicely.
With roacea you have to try one thing at a time, everyone responds slightly differently to things so you need to gauge your results. If you start everal things at once you won't know if one thing is working but the other is causing a flare, canceling out the benefit. It is a tough diseae to get ur head round but trying one thing at a time is the only way.
For the moment just use a simple moisturiser and cleanser and the mepacrin.
ssssssssss key isnt working!!
Lamarr, I am in complete agreement w/ you, if it is indeed systemic mutation, there will not be a test to detect the problem. However, I have not yet exhausted all available options. If you feel you have then I believe that mepacrine is the right choice. I still have several other things to try and in this day and age drug companies worldwide are putting more pressure of the governments to pass legislation allowing the mass distribution of all these meds. This does not mean that we have to buy into the bullshit. Yes, two and a half years is a long time and I have been tempted to ask for some kind of powerful anti inflammatory. However, there is a greater possibility that accutane has caused systemic damage rather than systemic mutation. The fact that I am getting better from the B12 shots proves that it is not systemic mutation and that the damage can be heeled. I have been going through this way too long and I feel like I am on the verge of solving this puzzle.
Halfpipe, I am not trying to avoid this drug, I will take it if I have to. But, not yet, there is a way to fix this, it may take a while and no one wants to hear that. My adrenal is completely shot and so is my pituitary. There are two test results right there. Damage that can and will be fixed. I did not mean to be offensive when I said taking mepacrine is tapping out maybe not other your and lamarrs sittuation, but in my situation it is. I will keep everyone posted to the update on the arginine infusion test.
Hey guys I recently came over an interesting find
http://rosaceagroup.org/The_Rosacea_Forum/...ead.php?t=15577
I have read 2 pages so far and the results seem kind of hard to believe
maybe someone can give it a shot and see if it works
I wanna stay on mepacrine/rameron for a couple weeks before i try that
here is one post out of many positive reviews I found moving
Hi there, I used to post a few years back under the name Joninoxford on various Rosacea forums, and a couple of years ago virtually gave up after two failed ETS operations, 9 photofacial sessions and 1000's of pounds spent on pills and potions.
I started trying taking 3000mg of Lysine (an essential amino acid) supplement which also contains within the supplement Vitamin C (1000mg) and Zinc (20mg). Within 2 days the Rosacea has reduced around 50% and my unknowing work mates and friends have commented that my skin looks really healthy. I am 30, and wish I had known about Lysine before. I have been vegetarian for 25 years and therefore I was likely lysine deficient for all this time. The supplement is really cheap, I suggest everybody try it, you can get a bottle of Lysine and Vitamin C for 5 pounds or $10, very cheap thing to try.
Now two weeks later I have been able to eat spicy foods for the first time in years without turning purple and have been able to run the heater in my car (always used to bring me out in massive flush, I was that sensitive!) and now can drive warm here in the chilly Melbourne winter. Give it a go, and report back on this thread. Lysine and Vitamin C is also said to be a possible cure for heart disease. The theroy is the the combination greatly improves cell membrane strength. This strengthening helps us rosacea suffers. Give it a go, cheers, Jon
On another note
Acne.org people are crazy lmao
http://www.acne.org/messageboard/cum-face-t235352.html
Lamarr,
Hey did the mepacrine help at all with your joint pain? I know you said that your joint pain was mild, but I am curious to see if the mepacrine had any effect. Thanks.
My joint pain was mild but flared pretty badly in two joints for a few weeks. Anyway yeah, it stops the joint pain and muscle soreness i had.
I went to the pub tonight and didn't drink
I dont wanna drink while testing this out
Also I took zinc for like the first 5 days on this and read lamarr's post so I stopped that
and seattle I too have joint pain,we were thinking of going to a specialist for it
My hands have joint pain
back
and this may sound weird but sometimes I get a shooting pain in my left arm..kind of like the symptoms of getting a heart attack
this only happens rarely though but the back and joint pain happens alot,I have done alot of good things for my back which has helped alot
my mom is a professional massage therapist haha