My 14 year old son has just commenced 10mg for two weeks and now on 20mg for another two weeks then up to 30mg and on to 40mg depending on how he handles it. We did not take this decision lightly by any means. We have tried everything on the market both prescription and over the counter. I would literally sell my soul on the black market to fix this for him. His acne is severe cystic acne. Wanting to hear from similar people or parents who have positive advice or stories. We are now 3 weeks in and so far so good. No severe side effects just dry lips and already seeing an improvement yay!
you would be best posting here
http://www.acne.org/messageboard/forum/4-prescription-acne-medications/
there is many other posts like yours, worth doing a search.
15 hours ago, Missmj said:My 14 year old son has just commenced 10mg for two weeks and now on 20mg for another two weeks then up to 30mg and on to 40mg depending on how he handles it. We did not take this decision lightly by any means. We have tried everything on the market both prescription and over the counter. I would literally sell my soul on the black market to fix this for him. His acne is severe cystic acne. Wanting to hear from similar people or parents who have positive advice or stories. We are now 3 weeks in and so far so good. No severe side effects just dry lips and already seeing an improvement yay!
15 hours ago, Missmj said:My 14 year old son has just commenced 10mg for two weeks and now on 20mg for another two weeks then up to 30mg and on to 40mg depending on how he handles it. We did not take this decision lightly by any means. We have tried everything on the market both prescription and over the counter. I would literally sell my soul on the black market to fix this for him. His acne is severe cystic acne. Wanting to hear from similar people or parents who have positive advice or stories. We are now 3 weeks in and so far so good. No severe side effects just dry lips and already seeing an improvement yay!
This is not a matter of keeping a eye on the side effects and stopping if you have too.
The only reason I am trying to warn patients and parents is that accutane can destroy lives and most of the worst side effects occur post accutane.
I don't know where you are from but why don't you apply to FDA or MHRA under the Freedom of Information Act for all the reported side effects of accutane.
Health Canada has issued a warning that Accutane may cause irreversible sexual side effects.
Google Rxisk
There is an accutane review in June this year to discuss sexual side effects (ED, diminished libido, infertility etc)
Google all the suicides that accutane is responsible for - research and speak to the parents - don't assume your doctors are know alls.
You say you have tried everything on the market - you can't have been trying for very long you son is only 14!
There is no quick fix and your son will most likely grow out of his acne eventually.
You need to address diet and possibly lazer treatments down the line.
You may not like looking in your son's face but how will you feel if your son becomes impotent or has severe mental health issues or worse.
Side effects are not as rare as doctors report and just because they might be rare dos not mean they will not happen to your son.
Thanks hatetane for your reply . I have already heard many of these stories and done plenty of research. As a parent I have agonised, cried and had many sleepless nights and looked at all pros and cons before filling the script. Please refrain from judging parental choices as its really not helpful. I wish you all the best.
My eldest daughter commenced her Accutane journey when she was 15. She is now 18 and has beautiful skin. I have no regrets and she absolutely does not. It made such a difference to her confidence.
I was so nervous about the treatment and even sought an opinion from our family doctor as well as the dermatologist.
The thing that settled my nerves was that the dose could be adjusted (or even stopped) if the side effects were too severe. They weren't formy daughterfortunately. The biggest issue (aside from the usual dry skin/lips) was some joint stiffness as she plays a lot of sports. She learnt to be careful with her stretching before and after and on a few occasions needed ibruprofen.
The course flies by very quickly and the side effects all disappeared in a matter of weeks.
My younger daughter has now been prescribed Accutane and will start next month. My main concern with her is that she isn't as disciplined at self-care as her older sister who was very good at regularly moisturising and using lip balm. Otherwise - I look forward to her skin improving along with her self-confidence.
I really had a positive experience with my elder daughter - I hope you have the same with your son - sounds like he is off to a good start. just remember to ask your dr about any concern you have no matter how small you think it is.
Thanks AUSSIEMUM! My son turns 15 in a few weeks and he has been battling with cystic acne for 2 years. We could have had Roaccutane last year but decided to put it off until now. He was just so fed up with all the antibiotics,creams, lotions. We have a great GP and have been seeing a dermatologist for a year now and they have been fully supportive of us delaying Roaccutane which has been great. My son made the decision to start now as he feels ready and knows he will be more compliant now with sunscreen and moisturiser etc so I get what you mean with your younger daughter. I'm so glad it was a success for your daughter and hope all goes well for your younger daughter. I also look forward to my sons self confidence coming back!! It's comforting to know there are other families going through this journey.
I am facing possible Roaccutane for my 13-year-old daughter who is almost 14. Right now we are doing a last ditch try of cefadroxil and I'm hoping it will be the fix that at least delays taking Roaccutane. At our last visit, the dermatologist was encouraging about Roccutane and reassured me that she would be monitoring it very carefully, so we should not be overly anxious. I know that is hard with all the things you read. We tried very hard on the diet stuff for about 6 weeks, but I could see absolutely no improvement. In fact, I think it may have gotten worse. When I mentioned this to derm, she said that skim milk is really the only diet link that has been confirmed. I've spent many sleepless nights wondering what to do. I had acne myself as a teen, so I know how horrible it can be for your self-esteem. Even though I got over it in my late teens (after Accutane), I think it is only recently that I have stopped thinking of myself as an ugly person, so I am hoping to spare my daughter some of that. I hope your son has a successful experience with his treatment.
Hi BlueSorghum I know exactly how you feel. The decision is not an easy one that's for sure especially when they are our babies. For us we had to exhaust every option before deciding to take Roaccutane we even did a treatment called kleresca which was expensive $2500 but still worth it as we did have some success and for us it bought us time before we were ready for roaccutane. It helped with scarring and tamed the acne quite a bit. We have also done the diet thing and my son is gluten intolerant as well so we eat super clean. We have also been told about the skim milk and have replaced it with Sanitarium almond milk original which is yummy in milkshakes and on cereal. It sounds like you are doing all the right things so trust your gut and your doctors. We are starting off on a low dose and we can stop at anytime. Our Derm and GP have both said to contact them at anytime which has been great. Good luck your daughter is lucky to have such a caring mum.
On 4/26/2017 at 3:09 AM, Missmj said:Thanks hatetane for your reply . I have already heard many of these stories and done plenty of research. As a parent I have agonised, cried and had many sleepless nights and looked at all pros and cons before filling the script. Please refrain from judging parental choices as its really not helpful. I wish you all the best.
Judging parental choices? You can't be serious. You asked an online forum for an opinion and received a plight from an afflicted father...You know what, Accutane was the best thing that happened to me. Let's not beat around the bush, you're here for results. Your daughter is 14, so about 95 lbs, let's say we suggest to your doctor moderate doseage of 60 mg of Accutane per day, two 30's, one in the morning and night. That should do it.
45 minutes ago, macleod said:Judging parental choices? You can't be serious. You asked an online forum for an opinion and received a plight from an afflicted father...You know what, Accutane was the best thing that happened to me. Let's not beat around the bush, you're here for results. Your daughter is 14, so about 95 lbs, let's say we suggest to your doctor moderate doseage of 60 mg of Accutane per day, two 30's, one in the morning and night. That should do it.
Thanks macleod.
Why don't these people understand that we are the ones trying to protect their kids.
If an adult asks for advice - you make sure they are informed and let them make their own decision.
For parents contemplating allowing their kids to go on accutane - my heart just breaks.
What about supporting your kids through the rough times, exploring every alternative and at least waiting to when a child reaches 18 and able to make an informed decision. I know it is not a lack of parental love - but it sure shows a lack of understanding of the true risks v benefits and the fact that these direct sides can be permanent.
Accutane should fall in to the category of a psychotropic because that surly is what it is.
Macleod - do you think we are the crazy people like all these doctors in this video - giving up their own livelihoods to expose pharmaceutical
and protect innocent people.As tiring as it is, many have taken my advice. We have saved some people from making the mistake that we did.
On 4/26/2017 at 8:09 AM, Missmj said:Thanks hatetane for your reply . I have already heard many of these stories and done plenty of research. As a parent I have agonised, cried and had many sleepless nights and looked at all pros and cons before filling the script. Please refrain from judging parental choices as its really not helpful. I wish you all the best.
I wonder what happend to this boy?
On 4/24/2017 at 7:41 AM, Missmj said:My 14 year old son has just commenced 10mg for two weeks and now on 20mg for another two weeks then up to 30mg and on to 40mg depending on how he handles it. We did not take this decision lightly by any means. We have tried everything on the market both prescription and over the counter. I would literally sell my soul on the black market to fix this for him. His acne is severe cystic acne. Wanting to hear from similar people or parents who have positive advice or stories. We are now 3 weeks in and so far so good. No severe side effects just dry lips and already seeing an improvement yay!
Acne is not permanent isotretinoin induced sexual dysfunction is.