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Accutane Cured Something In My Body

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(@jamienoble)

Posted : 07/25/2014 6:04 pm

 

Im a 27 year old male from Sweden who have been sick for perhaps all my life, or since i was very young.

 

I have been going to the doctors for almost 10 years and im still undiagnosed, pretty much all of my tests have been normal.

I recently found this forum and decided to share my situation.

 

I divide my symptoms into 3 sections:

 

Appearance - I look ill, pale and sick. My skin colour changes very easily depending on what type of lighting there is. If i for example go outside an autumn/winter day my face is extremely grayish/white.

My eyes are very tired/staring looking with eyelids hanging and dark rings.

I have never seen anyone else that looks like this, perhaps only a few people that look similar.

 

Brain - It feels like my brain and thinking is blocked. I have hard time learning new things because information doesn't stay, in conversations i often forget what im going to say, concentration problems, nervousness, easily irritated

 

Body/The Rest - I have a bad body odor and my hair is dry and lifeless.

Fatigue, no matter how much i sleep i feel tired. Its not that i have to sleep but always tired and no energy.

 

I don't however have any pain whatsoever and i can move perfectly.

 

 

 

Now to the part of my story that is very remarkable and the reason why i post on this forum:

 

 

In 2004 i took accutane against my accne. I took a regular cure for 7 months and then stopped.

A few months after i stopped i noticed that i looked much MUCH better then i have ever done before, skin color, eyes, hair and even body odor, everything changed to normal for me.

 

Then i noticed that i could read articles, watch movies and understand pretty much everything. When i talked to people it was like i saw the words in front of me so i knew what i was going to say all the time. My brain started to work normally!

 

And i also felt healthy in my body for perhaps the first & only time in my life, the feeling was unreal, the fatigue and tiredness went away.

 

I now realized that accutane cured something in my body i didn't realize i even had. Sure i had my suspicion that something could be wrong but i was so young and i didn't take my health seriously.

 

This healthy condition lasted for about 6 months and then when i noticed that i again looked pale i realized that i was going to be sick again.

For every week i felt worse & worse, the symptoms slowly came back again.

 

I have no idea what accutane cured in my body but i know that i have a disease that is treatable.

I have never seen/heard about anyone being cured or feeling better by taking accutane, its always about the side effects and how it destroyed their life afterwards. Its SO weird that i got cured from a medicine that is only known for its side effects.

I have done so many tests during the years and i have checked lyme disease, thyroid & so on

The only thing i have had low levels of since my first blood test is cortisol, but i have had an endocrine investigation and they didn't find anything.

 

Last year i took 2 cortisol tests and they were both kinda low, 180 and 40, (200 is reference level)

I have tried Hydro cortisone but it makes no difference at all..

 

It feels really hopeless, i have never been able to live a normal life and nothing in my situation tells that i will find this disease..

 

If anyone have any ideas what accutane cured in my body or recognize the symptoms i would really(!) appreciate your comments & thoughts!

Oh, and accutane eliminateded my accne, havent had it since then.

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MemberMember
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(@quetzlcoatl)

Posted : 07/27/2014 4:49 pm

Isotretinoin has immunomodulatory effects. It's possible that you're suffering from some sort of mild autoimmune disease, or perhaps an overgrowth of a particular microbe that is releasing endotoxins into your blood. It could even be food-related, in that your immune system is responding to food antigens that you regularly eat, and this response was disrupted temporarily by your treatment. There are a lot of ways you could go about testing these things, but the easiest is diet. You could try going on some sort of a paleo diet for a while, eat safe foods like whole cuts of fish, rice, fruits and vegetables, and forego the wheat and dairy and sugar for a bit.

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(@jamienoble)

Posted : 07/28/2014 7:32 pm

 

thanks for the answer

It may very well be an autoimmune disease, thats what i think. More people claim however that they got an autoimmun disease from accutane, not being treated.

I dont think it has something to do with the diet, i have tryed avoiding lactose and gluten, its no difference.

I dont think its because of microbes or bacterias either because i have now for the second time done gastroscopys and colonoscopy and they didnt find anything (havent recieved the latest results tho), i have done self payed tests looking for bacterias and i have taken bacteria related supliments but no difference here either. =/

In fact nothing has ever made any difference, no suppliments or medicine, never felt worse or better its always on the same level

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