I eat raw plants. It will work for you too. The dose you took does not matter.

 

Going to bed. Good night.

 

whats a typical meal for you? Can you imagine? - our bodies are so fucked up now we cant even process a sandwich or piece of chocolate.

I already dont eat alot of things already and have been a fussy eater my whole life.Never add sugar to anything, drink only water. Dont eats fatty foods etc.

Everybody says to avoid foods with Vit A, but this includes alot of veg. How do you go about that?

 

Protein is necessary to fuel our bodies, how do you get sufficient protein without meat? Iron deficiency is a worry.

Everything I read on the severity of side effects indicate they are dose related, the more you've ingested means the more prolong & intense the side effects

 

I keep my meals simple. Like I'll eat a few apples. Or I'll eat a handful of lettuce.

Our bodies cannot process sandwiches or chocolate anyway. Unfortunately, we all grew up eating this stuff because it was what our culture eats.

I do not worry about or avoid vitamin a foods. My body still needs it and there is no problem when it comes from a natural source.

There is protein in plants. It is how animals get their protein. Carbohydrates in plants create amino acids which then build muscle.

And yes a larger dose of Accutane means more side effects. What I meant was the dose does not matter cause the diet to healing is same for everyone.. Eat the natural and don't eat the processed.

Because my appetite is so effected I try to eat continuously throughout the day snacking on fruit and stuff. I add flax seeds, sunflower seeds anything thats natural and contains omega's etc. All I want is to fix all these issues that are presenting themselves on my exterior so I can look *normal* again.

I cant even begin to imagine what my insides look like if my skin has shriveled like a 50 yo's and my hair has done what its done.

I have pains in the muscles of my face -I think this is from the particularly around the eyes,

I think this is from the fat atrophy in my face, I have lost all the fat around my temples, under my eyes etc and the tightness from the lack of hydration makes me want to rip my face off. a particularly deep under eye wrinkle has formed under one eye and I have alot of pain under there. Its as if there is zero fat support on my face and its been striped down to bare muscle which is very evident in every time I make an expression.

I actually started to think I may have scleroderma or something.

My eyebrows,lids have dropped, my eyelids hurt really badly.

My eyebrows fall out, this started happening round the same time my skin freaked out. I lose many each day, Ive tried using

One of the most things is that because of the severe dehydration my pores have all opened up - every single pore on my face is now dilated and my skin now has the consistency of sandpaper and my face has changed colour,

I cant even begin to imagine what I will do to reverse this process as my skin is now so weak and fragile that anything just irritates & inflames my skin like an open sore all over my face.

Any ideas????????????

 

Okay. A good start would to stop eating white flour. And white sugar. And salt. These are generally accepted as poison.

 

Now for a little less accepted knowledge. I suggest stop eating carcasses. Humans have very long stomachs, unlike meat eating animals, which have short stomachs. We also lack the strong stomach acids to properly break down animal flesh. Eating plants biologically suits our bodies. I could go way more into this but this is the basics of it.

 

Although you are eating fruits and vegetables, they will not heal you if you keep consuming poison.

 

In case you are wondering, the information I am sharing is holistic, and comes from pre-colonized Africa.

 

 

Thanks Conner - What do you eat?

Your yellow colour has faded so much, I only wish I could get skin tone even again as well...I have never heard of anyone being a duration & dosage as long/high as I have. Therefore my sideffects are truly horrific.

 

Try 8 months 4 of thoose on 80mg and the last month was 100mg. You should eat healthy I agree with connor, but my question is have you had any lab work or any tests? When's the last time you saw your physican??? I mean there are some of us who have had positive lab results and tests and have developed autoimmune disorders and alopecia is one that Accutane can cause!

 

 

Okay. A good start would to stop eating white flour. And white sugar. And salt. These are generally accepted as poison.

 

Now for a little less accepted knowledge. I suggest stop eating carcasses. Humans have very long stomachs, unlike meat eating animals, which have short stomachs. We also lack the strong stomach acids to properly break down animal flesh. Eating plants biologically suits our bodies. I could go way more into this but this is the basics of it.

 

Although you are eating fruits and vegetables, they will not heal you if you keep consuming poison.

 

In case you are wondering, the information I am sharing is holistic, and comes from pre-colonized Africa.

 

 

Thanks Conner - What do you eat?

Your yellow colour has faded so much, I only wish I could get skin tone even again as well...I have never heard of anyone being a duration & dosage as long/high as I have. Therefore my sideffects are truly horrific.

 

 

Try 8 months 4 of thoose on 80mg and the last month was 100mg. You should eat healthy I agree with connor, but my question is have you had any lab work or any tests? When's the last time you saw your physican??? I mean there are some of us who have had positive lab results and tests and have developed autoimmune disorders and alopecia is one that Accutane can cause!

 

You were on it 8 mnths? I do of course eat healthy as much as possible.

Ive had myriads of testing done. You name it, Ive had it. Positive ANA? yes. thyroid anti bodies within normal range.

anything in particular you wanted to know?

 

 

 

Okay. A good start would to stop eating white flour. And white sugar. And salt. These are generally accepted as poison.

 

Now for a little less accepted knowledge. I suggest stop eating carcasses. Humans have very long stomachs, unlike meat eating animals, which have short stomachs. We also lack the strong stomach acids to properly break down animal flesh. Eating plants biologically suits our bodies. I could go way more into this but this is the basics of it.

 

Although you are eating fruits and vegetables, they will not heal you if you keep consuming poison.

 

In case you are wondering, the information I am sharing is holistic, and comes from pre-colonized Africa.

 

 

Thanks Conner - What do you eat?

Your yellow colour has faded so much, I only wish I could get skin tone even again as well...I have never heard of anyone being a duration & dosage as long/high as I have. Therefore my sideffects are truly horrific.

 

 

Try 8 months 4 of thoose on 80mg and the last month was 100mg. You should eat healthy I agree with connor, but my question is have you had any lab work or any tests? When's the last time you saw your physican??? I mean there are some of us who have had positive lab results and tests and have developed autoimmune disorders and alopecia is one that Accutane can cause!

 

You were on it 8 mnths? I do of course eat healthy as much as possible.

Ive had myriads of testing done. You name it, Ive had it. Positive ANA? yes. thyroid anti bodies within normal range.

anything in particular you wanted to know?

 

So you are saying you had a postive ANA??? If so that could mean any 100 of autoimmune disorders. In which then you need to find a good doctor to find out which one and then go from there. Yes, if you go vegetarian you have to be careful as you can become defcient in many vitamins and essential things, esspecially if you are a female.

By the way guys, some posted this on topix, read the last post....Interesting I might say and would be cool to speak to them since they are close to me. http://www.topix.com/forum/drug/accutane/T9QJ8DO1TLI41VBPN/p23

 

 

 

 

Okay. A good start would to stop eating white flour. And white sugar. And salt. These are generally accepted as poison.

 

Now for a little less accepted knowledge. I suggest stop eating carcasses. Humans have very long stomachs, unlike meat eating animals, which have short stomachs. We also lack the strong stomach acids to properly break down animal flesh. Eating plants biologically suits our bodies. I could go way more into this but this is the basics of it.

 

Although you are eating fruits and vegetables, they will not heal you if you keep consuming poison.

 

In case you are wondering, the information I am sharing is holistic, and comes from pre-colonized Africa.

 

 

Thanks Conner - What do you eat?

Your yellow colour has faded so much, I only wish I could get skin tone even again as well...I have never heard of anyone being a duration & dosage as long/high as I have. Therefore my sideffects are truly horrific.

 

 

Try 8 months 4 of thoose on 80mg and the last month was 100mg. You should eat healthy I agree with connor, but my question is have you had any lab work or any tests? When's the last time you saw your physican??? I mean there are some of us who have had positive lab results and tests and have developed autoimmune disorders and alopecia is one that Accutane can cause!

 

You were on it 8 mnths? I do of course eat healthy as much as possible.

Ive had myriads of testing done. You name it, Ive had it. Positive ANA? yes. thyroid anti bodies within normal range.

anything in particular you wanted to know?

 

 

So you are saying you had a postive ANA??? If so that could mean any 100 of autoimmune disorders. In which then you need to find a good doctor to find out which one and then go from there. Yes, if you go vegetarian you have to be careful as you can become defcient in many vitamins and essential things, esspecially if you are a female.

 

By the way guys, some posted this on topix, read the last post....Interesting I might say and would be cool to speak to them since they are close to me. http://www.topix.com...O1TLI41VBPN/p23

 

Yes, speckled ANA - low tincture positive and an RF factor of 31 - double the normal range & negative for ANCA.

I have seen so many doctors and nobody wants to give me any treatment or diagnose anything. Im starting to think I have CREST Syndrome as I have the reynauds phenomena going on.

I've given up on the mdeial profession and they are only going to attempt to stuff more drugs down my throat so really is it worth the time and money to see a 'professional' when it was a professional that put me in the predicament?

Im finding it so hard to maintain any semblance of a normal life I have given up on everything, I cannot focus on work, my marriage, even cleaning my home has become to much.

Im not veggo - I try to eat meat everyday either lean red or chicken. Ive had all levels tested, vit D was low and zinc was also low but everything fluctuates so often and I got s many blood tests done I started to look like a junky so I stopped in July.

I dunno about this telomeres theory, but all my signs since ending roaccutane point to severe premature aging -

teeth yellowing, dry mouth, dry skin, wrinkles, hair loss,premature greying, stretch marks, spider veins, those red blotchy things that old people get, rapid hair growth on my face, periods all but stopped, pigmentation, thinning of my skin, fat loss on my face/upper body & weight gain on my lower body I mean..seriously what kind of sick fucking joke is this.............................

Live to regret - I have similar problems. My body has aged. My face have wrinkles that should be there, my skin is so dry with facial discolouring/rosacea. I also have a few age spots which first appeared a few years back (I'm 26 now). MY hair quality/texture, colour and oil have all gone and left with a dry mess. My eyes done in 24/7. And most of the other stuff you listed. So yeah, Accutane has badly effected my looks, so I don't leave the house or see anyone. And that is not even going onto my other problems....

Live to regret - I have similar problems. My body has aged. My face have wrinkles that should be there, my skin is so dry with facial discolouring/rosacea. I also have a few age spots which first appeared a few years back (I'm 26 now). MY hair quality/texture, colour and oil have all gone and left with a dry mess. My eyes done in 24/7. And most of the other stuff you listed. So yeah, Accutane has badly effected my looks, so I don't leave the house or see anyone. And that is not even going onto my other problems....

 

what was your dosage? course duratin? Did you have side effects during? I had none that I can recall at all - maybe moodiness and a little drying of the lips.

This all started 3 mnths after finishing I dont know wtf to do & have never heard of anyone else going through this without having suffered side effects during tx.

 

Live to regret - I have similar problems. My body has aged. My face have wrinkles that should be there, my skin is so dry with facial discolouring/rosacea. I also have a few age spots which first appeared a few years back (I'm 26 now). MY hair quality/texture, colour and oil have all gone and left with a dry mess. My eyes done in 24/7. And most of the other stuff you listed. So yeah, Accutane has badly effected my looks, so I don't leave the house or see anyone. And that is not even going onto my other problems....

 

what was your dosage? course duratin? Did you have side effects during? I had none that I can recall at all - maybe moodiness and a little drying of the lips.

This all started 3 mnths after finishing I dont know wtf to do & have never heard of anyone else going through this without having suffered side effects during tx.

 

Oh there are plenty that have suffered side effects once stopping thier course! Roche says that the long term side effects are unknown and also that it can work up to 2 or so months after the course has stopped. I personally had no side effects except 2wks till my course was over I had a funny string in my foot....2-3 months later hair started falling out, joint pain, 4 months to six months later the eyes and 3yrs later type 1 autoimmune diabetes occured at 35 perfect sugar levels till this past Jan....basically juvienille diabetes as a adult.

 

 

 

 

 

Okay. A good start would to stop eating white flour. And white sugar. And salt. These are generally accepted as poison.

 

Now for a little less accepted knowledge. I suggest stop eating carcasses. Humans have very long stomachs, unlike meat eating animals, which have short stomachs. We also lack the strong stomach acids to properly break down animal flesh. Eating plants biologically suits our bodies. I could go way more into this but this is the basics of it.

 

Although you are eating fruits and vegetables, they will not heal you if you keep consuming poison.

 

In case you are wondering, the information I am sharing is holistic, and comes from pre-colonized Africa.

 

 

Thanks Conner - What do you eat?

Your yellow colour has faded so much, I only wish I could get skin tone even again as well...I have never heard of anyone being a duration & dosage as long/high as I have. Therefore my sideffects are truly horrific.

 

 

Try 8 months 4 of thoose on 80mg and the last month was 100mg. You should eat healthy I agree with connor, but my question is have you had any lab work or any tests? When's the last time you saw your physican??? I mean there are some of us who have had positive lab results and tests and have developed autoimmune disorders and alopecia is one that Accutane can cause!

 

You were on it 8 mnths? I do of course eat healthy as much as possible.

Ive had myriads of testing done. You name it, Ive had it. Positive ANA? yes. thyroid anti bodies within normal range.

anything in particular you wanted to know?

 

 

So you are saying you had a postive ANA??? If so that could mean any 100 of autoimmune disorders. In which then you need to find a good doctor to find out which one and then go from there. Yes, if you go vegetarian you have to be careful as you can become defcient in many vitamins and essential things, esspecially if you are a female.

 

By the way guys, some posted this on topix, read the last post....Interesting I might say and would be cool to speak to them since they are close to me. http://www.topix.com...O1TLI41VBPN/p23

 

Yes, speckled ANA - low tincture positive and an RF factor of 31 - double the normal range & negative for ANCA.

I have seen so many doctors and nobody wants to give me any treatment or diagnose anything. Im starting to think I have CREST Syndrome as I have the reynauds phenomena going on.

I've given up on the mdeial profession and they are only going to attempt to stuff more drugs down my throat so really is it worth the time and money to see a 'professional' when it was a professional that put me in the predicament?

Im finding it so hard to maintain any semblance of a normal life I have given up on everything, I cannot focus on work, my marriage, even cleaning my home has become to much.

Im not veggo - I try to eat meat everyday either lean red or chicken. Ive had all levels tested, vit D was low and zinc was also low but everything fluctuates so often and I got s many blood tests done I started to look like a junky so I stopped in July.

I dunno about this telomeres theory, but all my signs since ending roaccutane point to severe premature aging -

teeth yellowing, dry mouth, dry skin, wrinkles, hair loss,premature greying, stretch marks, spider veins, those red blotchy things that old people get, rapid hair growth on my face, periods all but stopped, pigmentation, thinning of my skin, fat loss on my face/upper body & weight gain on my lower body I mean..seriously what kind of sick fucking joke is this.............................

 

You need to find another doctor and not even mention accutane. Where do you live? A speckled ANA usually means lupus, however you had a postive Rhuematoid factor which usually means Rhuematoid Arthritis...In which did they test sed rate, etc... You should read up on some supplements that RA pts and Raynaud's pts do. Most are deficient in Vit D, B12, iron etc. Gluten free diet can help tremendously.

Autoimmune disorders can cause many of what your stated in this post. Read some of Lamarr1986 posts has he has lupus issues from Roaccutane and is treated by a physican who understands what roaccutane does, and he has done things

himself for raynaud's etc... Mine has kinda gotten better. Also rapid hair growth on the face, loss of hair, loss of periods can point to polycystic ovarian disorder and can cause weight gain on the lower body.

I understand your upset,but you need to calm down and find a new doctor and get help! I do a lot of holistic stuff, but considering I have autoimmune diabetes, and autoimmune thyroid disorder, loss in height and sjorgens (another autoimmune disorder) I have found that I have to take certian meds or I die! I will not let Roche win I keep going!!!!!!!!!!!

Lamarr- glad to see your post. Hope things are well

I took 1-2 grams, Believe.

Welcome Bamdaze, I admire your genius and industry.

I would be in such a state if my face wasnt in such discomfort - the tightness & dryness of my skin literally makes me want to rip my face off.

Ive spent so much time & money seeing doctors, with not one being able to help me.

Im about to lose my job because not only have I taken so much time off but everyday is such a struggle I literally drag myself through each day to make it home, wash and smother oils and moisturizers all over my face & body and try to shut out the discomfort of this sensation under my skin.

The rapid hair growth is over my entire body - thick white blonde vellus hairs that grow very long in length and cover my face, back, neck, arms etc.

Endocrinoligist I saw tested all my hormones and Ive done the pelvic and trans vag U/S that showed 'typical additional follices' - "formation not typical of PCOS"

hormones are within 'normal' range for whats its worth but that means nothing. Ive been back on the pill for 3 mnths in the hope of treating hairloss/ regulating cycles and I started having very light 2 day periods.

I have severe dry mouth and nose also. But have been told by doctors that I 'self diagnose; nobody takes me seriously at all.

Ive walked out on so many appt's in tears and so frustrated I cannot go on like this there is just no help for us out there.

Doctor today told me that I cannot reverse this process..I alked out of there and just wanted to step in front of a bus.

Its like my body is progressively shutting down - eg. the last 12 mnths my sweating was so profuse paper towels could not stop the patches all over my clothing - I was damp all the time. Now I do not sweat. It was the same with urination.

My body is fighting so hard to function but cannot heal and if my skin has deteriorated so much externally I am shit scared of whats going on inside.

I fluctuate between diarrhea and constipation and find that I need to eat foods high in fibre to bind otherwise Im in big trouble.

metamucil and stuff has no effect.

Live To Regret - I took it for LONGER then you. I took it on and off (mostly on) for 2.5 years. I had a few weeks off it here and there but the acne came back so I went back on it. I had a 6 month break during it though because I developed rosacea from taking Accutane and had laser treatment for it, but didn't help. I was on 20mg a day at the begining and then 20mg every other day. But for the duration I was on it, it is no wonder I am in this mess. The dermatologist never told me to stop, or how long courses of treatment last. In the end I decided to stop myself. Aside from rosacea during the course, my hair quality changed and dry lips. It's been 8 years this December that I last took Accutane and my health hasn't stopped deteriating. I am unrecognizable to this person I was. I look and feel very ill, and not compatible with this life anymore. If there was a way to 100% definitely end my life, I'd do it instantly.

I want to report on UDCA. First off, it is no magic super duper pill that cures all disease, but it does help. It might be liver flushing in a pill, but in comparison to liver flushing it probably takes quite some time to get the same effect as one would get with a regular flush combined with colon hydro therapy, at this point it is still too early to tell.

UDCA reduced acne on my shoulders, from what I have seen and smelled in the toilet it seems to detox the liver/gallbladder, at the beginning I had very minor detox symptoms. My endurance, recovery time, stool quality, dry skin and clarity is somewhat improved by UDCA. As I posted before, you take it several times a day for the first three months, thereafter only a megadose every night. After a minimum of 6 and a maximum of 24 month the cholesterine stones will be disolved if everything works out according to plan. I hope to take my body to a new equilibrium with UDCA. It is a drug you are supposed to take long term. I take it according to plan and have not taken a megadose of 1g at time so far.

Live To Regret - I took it for LONGER then you. I took it on and off (mostly on) for 2.5 years. I had a few weeks off it here and there but the acne came back so I went back on it. I had a 6 month break during it though because I

developed rosacea from taking Accutane and

had laser treatment for it, but didn't help. I was on 20mg a day at the begining and then 20mg every other day. But for the duration I was on it, it is no wonder I am in this mess. The

dermatologist never told me to stop, or how long courses of treatment last. In the end I decided to stop myself. Aside from rosacea during the course, my hair quality changed and dry lips. It's been 8 years this December that I last took Accutane and my health hasn't stopped deteriating. I am unrecognizable to this person I was. I look and feel very ill, and not compatible with this life anymore. If there was a way to 100% definitely end my life, I'd do it instantly.

 

Jmsil - has your skin and hair recovered at all?

What have you done to treat these?

Oligirl- hows your hair has it stopped shedding?

With your other issues have you found any way to overcome them?

It's like I've just started the drug. Today after I showered I was drying the tops of my feet and skin was coming off. Its been yet another day spent on forums trying to find answers/ solutions..

I'm like a rat in a maze..

If I could give you some advice, it is to give up searching the internet for answers to Accutane problems. There aren't any answers.

This thread is probably the best source for reasonable information, once you learn to ignore some egos and biased info . All you will find elsewhere is further desperation from scared people who have no answers. This is a confirmation bias, as the only people posting information are the ones still suffering. This makes it seem there is no hope and will worsen your own mood.

I know because I must have, collectively, spent days searching; finding myself reading obscure scientific papers I barely understand at early hours of the morning. It does more harm than good.

 

Live To Regret - I took it for LONGER then you. I took it on and off (mostly on) for 2.5 years. I had a few weeks off it here and there but the acne came back so I went back on it. I had a 6 month break during it though because I

developed rosacea from taking Accutane and

had laser treatment for it, but didn't help. I was on 20mg a day at the begining and then 20mg every other day. But for the duration I was on it, it is no wonder I am in this mess. The

dermatologist never told me to stop, or how long courses of treatment last. In the end I decided to stop myself. Aside from rosacea during the course, my hair quality changed and dry lips. It's been 8 years this December that I last took Accutane and my health hasn't stopped deteriating. I am unrecognizable to this person I was. I look and feel very ill, and not compatible with this life anymore. If there was a way to 100% definitely end my life, I'd do it instantly.

 

 

Jmsil - has your skin and hair recovered at all?

What have you done to treat these?

Oligirl- hows your hair has it stopped shedding?

With your other issues have you found any way to overcome them?

It's like I've just started the drug. Today after I showered I was drying the tops of my feet and skin was coming off. Its been yet another day spent on forums trying to find answers/ solutions..

I'm like a rat in a maze..

 

Liquid iodine has been the most effective for my skin, hair, mood, anything. It balances the thyroid. Don't bother putting faith in your doc's interpretation of your thyroid tests. Take iodine. Just the recommended dose, it might help you somewhat...It is important not to freak the fuck out. To kill yourself is to disrespect the opportunity to learn from this. Wishing us all the best.

On 10/26/2012 at 10:31 AM, oli girl said:

You need to find another doctor and not even mention accutane. Where do you live? A speckled ANA usually means lupus, however you had a postive Rhuematoid factor which usually means Rhuematoid Arthritis...In which did they test sed rate, etc... You should read up on some supplements that RA pts and Raynaud's pts do. Most are deficient in Vit D, B12, iron etc. Gluten free diet can help tremendously.

Autoimmune disorders can cause many of what your stated in this post. Read some of Lamarr1986 posts has he has lupus issues from Roaccutane and is treated by a physican who understands what roaccutane does, and he has done things

himself for raynaud's etc... Mine has kinda gotten better. Also rapid hair growth on the face, loss of hair, loss of periods can point to polycystic ovarian disorder and can cause weight gain on the lower body.

I understand your upset,but you need to calm down and find a new doctor and get help! I do a lot of holistic stuff, but considering I have autoimmune diabetes, and autoimmune thyroid disorder, loss in height and sjorgens (another autoimmune disorder) I have found that I have to take certian meds or I die! I will not let Roche win I keep going!!!!!!!!!!!

Lamarr- glad to see your post. Hope things are well [Edited image out]

Hi Oli girl- I can attest to the gluten-free thing and have you heard anything about this - it's from this: [Edited link out]

Epsom Salts & Autism

" In January I had the luck of attending a brain storming session (Rimland's Defeat Autism Now conf.). At that meeting was a British researcher, Rosemary Waring who was working in the field of alzheimers(originally), autism and migraine. She has found a fundamental enzyme shortage in all three of these populations, it is PST, phenol sulfer transferase. This enzyme has two functions, it ensures that your mucous membranes are ciaoted with a slimy surface to protect them and make them resilient (membranes of the gut, nose, ears etc.) It also helps to hydrolate (surround toxins with extra water molecules) toxins out of your body. If you don't have this, your body builds up with toxins, and also places like your gut can become permeable to undigested peptides from say gluten (wheat, oats, barley and rye) and casein( All milk products) these peptides then travel to the brain looking like pseudo neurotransmitters. Not good. So at the meeting I asked Rosemary how do I get PST in my kid assuming he's got a shortage. She said magnesium sulphate".

It appears to have a relationship to the systemic problems we experience for the most part and pre-empts the gluten intolerance itself. THese epsom salts immediately healed my hand eczema (an autoimmune disorder) when I either rub it into my hands with a little emu or coconut oil, or soak my hands in a bowl of water with epsom salts. Worth a try, anyway, right? As far as arthritis, the most effective (and happily, the most tasty) treatment I've encountered for my joint pain problems has been a popular home remedy of golden raisins that are covered in gin and left for a few days to soak up the liquid. I take 10 a day and haven't experienced any joint pain since. Both the golden raisins and the gin have properties that heal this stuff. See here.. [Edited link out]

On 10/27/2012 at 4:52 PM, Livetoregret said:

On 10/26/2012 at 3:59 PM, jmsil said:

Live To Regret - I took it for LONGER then you. I took it on and off (mostly on) for 2.5 years. I had a few weeks off it here and there but the acne came back so I went back on it. I had a 6 month break during it though because I

developed rosacea from taking Accutane and

had laser treatment for it, but didn't help. I was on 20mg a day at the begining and then 20mg every other day. But for the duration I was on it, it is no wonder I am in this mess. The

dermatologist never told me to stop, or how long courses of treatment last. In the end I decided to stop myself. Aside from rosacea during the course, my hair quality changed and dry lips. It's been 8 years this December that I last took Accutane and my health hasn't stopped deteriating. I am unrecognizable to this person I was. I look and feel very ill, and not compatible with this life anymore. If there was a way to 100% definitely end my life, I'd do it instantly.

Jmsil - has your skin and hair recovered at all?

What have you done to treat these?

Oligirl- hows your hair has it stopped shedding?

With your other issues have you found any way to overcome them?

It's like I've just started the drug. Today after I showered I was drying the tops of my feet and skin was coming off. Its been yet another day spent on forums trying to find answers/ solutions..

I'm like a rat in a maze..

Yes, my hair stopped shedding a little over a year after my course. I was found to have only 8% iron in my body, low ferritin, Vit D, Graves Disease/ Sjrogren's. Once I got treatment for my aliments my hair has stopped shedding. It does seem to go in cycles where it will shed a little and then grow back. It is not as thick as it use to be and I am just grateful for the hair I have. Then being dx w/ autoimmune diabetes this last yr my hair was extremly dry and shedding again. Once I started insulin all is good. I do a lot of matience. Take supplements. pay alot of money on shampoos, conditioner, oils and I go to the salon every 6wks and have it trimmed.

I take biotin, Iron, b12 and many other supplements.

It appears you have a hormonal issue, and then you stated you had a postive RA factor & ANA. It might be best for you to contact Lamarr if you are from the U.K. his email is on his profile. He takes a med for lupus. I not understanding how the physicans can disregard your postive ANA and RA factor????

On 10/28/2012 at 6:57 AM, CHIRON said:

On 10/26/2012 at 10:31 AM, oli girl said:

You need to find another doctor and not even mention accutane. Where do you live? A speckled ANA usually means lupus, however you had a postive Rhuematoid factor which usually means Rhuematoid Arthritis...In which did they test sed rate, etc... You should read up on some supplements that RA pts and Raynaud's pts do. Most are deficient in Vit D, B12, iron etc. Gluten free diet can help tremendously.

Autoimmune disorders can cause many of what your stated in this post. Read some of Lamarr1986 posts has he has lupus issues from Roaccutane and is treated by a physican who understands what roaccutane does, and he has done things

himself for raynaud's etc... Mine has kinda gotten better. Also rapid hair growth on the face, loss of hair, loss of periods can point to polycystic ovarian disorder and can cause weight gain on the lower body.

I understand your upset,but you need to calm down and find a new doctor and get help! I do a lot of holistic stuff, but considering I have autoimmune diabetes, and autoimmune thyroid disorder, loss in height and sjorgens (another autoimmune disorder) I have found that I have to take certian meds or I die! I will not let Roche win I keep going!!!!!!!!!!!

Lamarr- glad to see your post. Hope things are well [Edited image out]

Hi Oli girl- I can attest to the gluten-free thing and have you heard anything about this - it's from this: [Edited link out]

Epsom Salts & Autism

" In January I had the luck of attending a brain storming session (Rimland's Defeat Autism Now conf.). At that meeting was a British researcher, Rosemary Waring who was working in the field of alzheimers(originally), autism and migraine. She has found a fundamental enzyme shortage in all three of these populations, it is PST, phenol sulfer transferase. This enzyme has two functions, it ensures that your mucous membranes are ciaoted with a slimy surface to protect them and make them resilient (membranes of the gut, nose, ears etc.) It also helps to hydrolate (surround toxins with extra water molecules) toxins out of your body. If you don't have this, your body builds up with toxins, and also places like your gut can become permeable to undigested peptides from say gluten (wheat, oats, barley and rye) and casein( All milk products) these peptides then travel to the brain looking like pseudo neurotransmitters. Not good. So at the meeting I asked Rosemary how do I get PST in my kid assuming he's got a shortage. She said magnesium sulphate".

It appears to have a relationship to the systemic problems we experience for the most part and pre-empts the gluten intolerance itself. THese epsom salts immediately healed my hand eczema (an autoimmune disorder) when I either rub it into my hands with a little emu or coconut oil, or soak my hands in a bowl of water with epsom salts. Worth a try, anyway, right? As far as arthritis, the most effective (and happily, the most tasty) treatment I've encountered for my joint pain problems has been a popular home remedy of golden raisins that are covered in gin and left for a few days to soak up the liquid. I take 10 a day and haven't experienced any joint pain since. Both the golden raisins and the gin have properties that heal this stuff. See here.. [Edited link out]

epsom salt has been good to me on joints. I will have to try the golden raisins and gin. Any paticular special gin or raisins you use???? Yes, I have found when I eat gluten free I feel alot better. I believe alot who suffer from autoimmune induced by accutane poision or just accutane poison in general are sensitive to gluten.

 

Live To Regret - I took it for LONGER then you. I took it on and off (mostly on) for 2.5 years. I had a few weeks off it here and there but the acne came back so I went back on it. I had a 6 month break during it though because I

developed rosacea from taking Accutane and

had laser treatment for it, but didn't help. I was on 20mg a day at the begining and then 20mg every other day. But for the duration I was on it, it is no wonder I am in this mess. The

dermatologist never told me to stop, or how long courses of treatment last. In the end I decided to stop myself. Aside from rosacea during the course, my hair quality changed and dry lips. It's been 8 years this December that I last took Accutane and my health hasn't stopped deteriating. I am unrecognizable to this person I was. I look and feel very ill, and not compatible with this life anymore. If there was a way to 100% definitely end my life, I'd do it instantly.

 

 

Jmsil - has your skin and hair recovered at all?

What have you done to treat these?

Oligirl- hows your hair has it stopped shedding?

With your other issues have you found any way to overcome them?

It's like I've just started the drug. Today after I showered I was drying the tops of my feet and skin was coming off. Its been yet another day spent on forums trying to find answers/ solutions..

I'm like a rat in a maze..

 

I thought I would add for you a link of when Sheefa posted my story on here! I was in bad shape, looked like a walking skelton etcc. I made it and so can you, so don't give up and suicide is not the answer. To answer about my other issues. Yes I have to take meds, If I don't take my thyroid meds I die, If I don't take my insulin I die and for the sjorgren and osteopenia I manage. I take supplements, eat healthy and exercise. I have good days and I have bad days, but I be dam if I am let Roche take my life away I lost 1 whole yr and I have never looked back and push on! Stay strong.

http://www.acne.org/messageboard/index.php/topic/225085-all-these-accutane-scare-stories/page__p__2524961__hl__sheefa#entry2524961

Jen

Interesting that Epsom salt/magnesium sulfate pops up in the discussion once again.

You all probably know that you take it in large quantities when doing a liver flush. As I have posted before, I have always assumed that the benefits I have gotten from liver flushing are actually due to the magnesium sulfate intake and liver flushing cured all my symptoms. Compared the UDCA I am taking now iit plays in another league.

Furthermore I have experimented with bathing in Espom salt, I have ordered 25 kg of Epsom salt already twice in my life - who else can beat that, lol - and it heals my body acne very quickly for the time being, but it is too much an effort to bathe or rather soak in this stuff twice a week.

Back when I was still liver flushing, I figured, if magnesium sulfate is really what is helping me, why not supplement the stuff daily?! Unfortunately I found out that it is supposed to be harsh on the kidneys, so I never tried regular supplementation. Instead I tried to find out what Epsom salts are made of - magnesium sulfate - in order to get individual supplements which mirror the effect of magnesium sulfate and which the body can tolerate on a daily basis.

Soon I started supplementing magnesium and indeed it helped a great deal, I take it to this day.

Then I had to find a supplement to cover the sulfate part of Epsom salt. The only supplement I deemed suitable was MSM, but to this day I have not taken it for more than two days, because I was never sure about the dose at which it would be effective or harmful. Furthermore I read that MSM may also be harsh on the kidneys. As I have never really taken MSM I can't say whether it may work or not. The people who claim that it works for them, usually take two full spoons a day which is much more than the recommended dose listed on the supplement.

I may try to make my own Epsom salt cream and will try molybdenum.

I will also try this:

"If the level is low, she advises tiny amounts (a pinch or two) of magensium sulphate (Epsom Salts) given in drinks several times a day"

[Edited link out]

Has anyone tried NAC? I searched this thread and apparently some have tried it, I will do too. Definitely supports liver detox.

Hey everyone,

How are you all coping with what feels like really bad dryness all over? I am 10 years post tane use and my face is still really uncomfortably dry and irritated. I also have lots of joint cracking.

I have tried so many topicals and internal supplements (e.g. hyaluronic acid, GLA, b vitamins, etc. etc.) with no luck.

I went to a doctor who prescribed NEURONTIN to deal with this because it could well be some nerve damage which is making me constantly feel uncomfortable. I don't know if anyone has tried such things but it makes sense. It will probably dull the nerve sensations of dryness and irritability from a systemic level, something which all the supplements in the world would not do. I agree it is a mask of symptoms but perhaps it is a good option.

In the mean time I will still follow a healthy lifestyle but I think these side effects are going to be around for a bit longer

All the best to all of you!

On 10/28/2012 at 1:03 PM, oli girl said:

epsom salt has been good to me on joints. I will have to try the golden raisins and gin. Any paticular special gin or raisins you use???? Yes, I have found when I eat gluten free I feel alot better. I believe alot who suffer from autoimmune induced by accutane poision or just accutane poison in general are sensitive to gluten.

I get organic raisins (they have to be the golden colored type, not black raisins) and any standard gin I believe. I still have problems with my joints popping all the time...it's annoying, but feels good...but not really any joint pain as such.

On 10/28/2012 at 9:04 PM, jamie10 said:

Hey everyone,

How are you all coping with what feels like really bad dryness all over? I am 10 years post tane use and my face is still really uncomfortably dry and irritated. I also have lots of joint cracking.

I have tried so many topicals and internal supplements (e.g. hyaluronic acid, GLA, b vitamins, etc. etc.) with no luck.

I went to a doctor who prescribed NEURONTIN to deal with this because it could well be some nerve damage which is making me constantly feel uncomfortable. I don't know if anyone has tried such things but it makes sense. It will probably dull the nerve sensations of dryness and irritability from a systemic level, something which all the supplements in the world would not do. I agree it is a mask of symptoms but perhaps it is a good option.

In the mean time I will still follow a healthy lifestyle but I think these side effects are going to be around for a bit longer [Edited image out]

All the best to all of you!

I have joint cracking and dryness, too. I will look into neurontin. My Dad takes that stuff for his sciatic pain. I know it's also used to treat Parkinson's. Anyway, I have been taking iodine in liquid form which did wonders for my hydration. My eyes aren't nearly as dry and my phlegm has finally returned. So has increased saliva in my mouth. I began spitting while talking which is hilarious but undesirable. But luckily that's subsided quite a bit and I still feel much more hydrated. Iodine evened out my moodswings and anxiety, too. Thank you for posting.

Live To Regret - My hair and skin have never been what they were before Accutane. It's a slow, degeneration of not just those things, but my whole body. I, like you and others have said, feel my body has aged by taking this drug.

I'm praying that because All my issues with akin have only started over the last 6 months that it is temporary and will improve with time but the deterioration has been so rapid that I don't know what to make of it and keep thinking it must have been triggered by supplements or sitting under one if those hair laser lights which I did twice a week from Jan till march it was late April early may that I became aware of my skin issues and since then it's been all down hill. Ive tried so many things and nothing has helped up to this point. Do you produce oil now at least? My hair is the biggest indicator and it's present state is so godamn dry on the ends so I know I am not producing any oil to hydrate my hair or skin. I pray for us all...

Live To Regret - My hair and skin have never been what they were before Accutane. It's a slow, degeneration of not just those things, but my whole body. I, like you and others have said, feel my body has aged by taking this drug.