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Repairing the long-term damage from Accutane

 
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85
(@jorgeantoniocalderon40)

Posted : 04/26/2022 12:35 pm

for a while I stopped consuming all kinds of sugar, on the third day I felt horrible and I had a great desire to consume it,as time went by I could see how my acne disappeared faster than usual and how my skin produced the same amount of sebum,I don't know if having sebum is equivalent to having acne, I know people with sebum but without acne and people with dry skin and acne,I will try to leave the bad food and use creams such as wax or sunscreens for oily skin

on the other hand, I think that accutane is a drug that has to be eliminated from the market, so many demands and nothing yet,I agree with all the testimonies of permanent or chronic damage, in my case this drug mainly attacked my intestines,on the tenth day I felt like my intestines burned, that was the first alarm to immediately stop the drugfortunately I stopped the drug when my skin started to dry out and went no further..

I participated in eating better to help my intestines post accutane, eating vegetables, probiotics and l glutamine,over time I stopped doing it and I felt better, now I eat garbage and I don't feel anything although it's a bit frustrating to see people with their perfect complexion,but I think that complaining about this is stupid in co-treatment to what we suffer post accutane, there is no doubt the cellular damage generated by this drug,has a potentially destructive ability to be layered to kill the sebocytes of our skin.

After going through that agony, I was able to appreciate myself more and look for natural solutions, we are nature and we must consume the food of it,I know that we are not affected by this drug equally, but I want to encourage others not to give up and move on.

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1
(@moks)

Posted : 04/27/2022 6:55 pm

I saw some guy start promoting on FB group kinda remedy for accutane damage. Can you check, all his links are affiliated?(i dont sure how to check it, but links looks suspicious)

Looks like some guy on propeciahelp forum who scammed many people like this. Forced people to buy huge amount of supplements and get money from affiliate links

https://johndnicoll.com/healing-protocol-for-accutane-recovery/

 

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MemberMember
397
(@calcified)

Posted : 04/27/2022 7:50 pm

50 minutes ago, Moks said:

I saw some guy start promoting on FB group kinda remedy for accutane damage. Can you check, all his links are affiliated?(i dont sure how to check it, but links looks suspicious)

Looks like some guy on propeciahelp forum who scammed many people like this. Forced people to buy huge amount of supplements and get money from affiliate links

https://johndnicoll.com/healing-protocol-for-accutane-recovery/

 

This is probably the most convincing explanation I have ever read, but I don't want to do keto.

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1804
(@truejustice)

Posted : 04/27/2022 9:27 pm

Shit, dont tell me that $200 copper supplement isnt going to work I just ordered from Mito Synergy??

Im sure hoping it does. Interesting that that isnt listed in his protocol for recovery.

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9
(@saffronaide)

Posted : 04/28/2022 10:12 am

On 4/14/2022 at 4:44 AM, Fraz_2010 said:

Hey, how is your progress coming along?

it's a shame so many people are doubtful about the benefits of water fasting on rapid scar healing becauseit 100% works. It can take between 2-4 weeks depending on the extent of the damage but you know it's working when the skin over the scar begins to flake up and peel off.

In order for the water fast to be effective, your body needs to enter autophogy, this takes at least 3-4 days. Once your body enters autophogy, the hunger subsides as the body begins to feed on it's own cells for energy. This is important, because the body will prioritise the damaged cells first, causing the scar tissue to break down and be replaced with fresh new skin at a very rapid rate. You must keep the fast going for at least 10daysto see real improvements. It does get considerably easier after day 4 though when the hunger cravings completely subside.

Yes the information is true. I did few days of Keto before fasting so when i entered the fast i was already in Ketosis stage. Broke the fast on the day 15 with bone broth.

Good news: My water fasting improvements has been permanent. Except the genital and bladder sensitivity increase. My scrotum is still fuller, flaccid penis hangs like Pre- Accutane. I even tried to sabotage my body to see if i regress back, drank alcohol last weekend, Beer (Gluten). And i didn't, kept the gains!

Bad news: I am still numb. My prostate didn't heal but i think i can reach there with probiotics because i had clinically low Akkermansia, now im on Gluten free, sugar free, fiber rich diet with tons of supplements, probiotics to heal my gut. High- mega dose of L- Glutamine also+ 30- 40 gr a day.

 

Also thinking about trying Mifepristone next month if my protocols fail to work. Maybe i will do longer water fasts until i die or recover in the future. My acne however seems pretty bad, which is weird that i must have the healthies gut in my lifetime now.

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85
(@jorgeantoniocalderon40)

Posted : 04/28/2022 11:19 am

the fruits and vegetables were a great help in my recovery, the kefir helped little, I forgot to mention that the hip pain went away at about 8 months, it was actually a gradual improvement of this pain,accutane did nothing for me, it left me with the same acne and the same oily skin, maybe where I took it for a few days.

How true it is that some who take vitamin A post accutane suffer from pain, for my part I consume a lot of vitamin A and I don't feel anything,I know it sounds stupid but have you tried powerful multivitamins? Perhaps many of you suffer from vitamin deficiency due to the damage accutane did.

 

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715
(@thomas76)

Posted : 04/29/2022 10:21 am

Hey hh6, my biofeedback machine indicates chronically high levels of h pylori in my stomach, and chronic gallbladder issues have been my lot as well. The 80% seaweed diet I tried was simply unsustainable. Too much fiber and not enough fat and cholesterol.

Undertow and I both agreed earlier about the significance of vitamins b1 and b2 in all of this. Where we disagreed was the issue of beta carotene. I still feel beta carotene can be extremely helpful for us, where as undertow I believe was in the anti all forms of vitamin A camp, led by a prominent American naturopath.

my biofeedback machine has multiple areas of therapy. Although it doesn't list vitamins b1 and b2 in it's recommended supplements section, it does consistently list those 2 vitamins as being significant issues in the pituitary hypothalamus scans.

I've avoided them for several reasons. #1, b1 by itself wipes out my dopamine stores. #2, b2 by itself wipes out my dht levels via 5 alpha reductase inhibition. But I've also found that b1 promotes dht via increased 5 alpha reductase. And b2 promotes dopamine production. So they kind of counterbalance each other with respect to dopamine and dht.currently im trying a daily regimen of vitamins b1, b2, choline and dry beta carotene. Will post results later.

For me my body craves dairy and hates whole beef liver. Dairy has low levels of retinol, beef liver has high levels of retinol. My body also craves carrot juice. Multivitamins do me more harm than good. There's only a few vitamins/minerals that my body really craves, while the others cause irritation and more harm than good.

Glutamine seems to destroy my prostate. And the copper supplement can be returned for refund if it hasn't been opened.

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715
(@thomas76)

Posted : 04/29/2022 10:37 am

I've experienced tmj in the past and I absolutely believe accutane was the cause. Increasing calcium intake was key to fixing it. Ancestral supplements living bone or lactose free skim milk would be the two best things to boost calcium.

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715
(@thomas76)

Posted : 04/29/2022 6:57 pm

I normally turn on my phone's blue light filter in early evening. Just found an app called redmed app. Red light therapy that would probably best be used in bed at night or right before bed. Tonight's my first night doing it.

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85
(@jorgeantoniocalderon40)

Posted : 04/29/2022 8:17 pm

According to your experiences, oatmeal is good?

On 4/28/2022 at 7:10 PM, HopefulHuckleberry6 said:

Anyone have gallbladder problems? I think part of my problems are gallbladder related. I remember in my 2018 endoscopy it showed bile reflux...could also be related to the h pylori infection though, so I'm not totally sure. My new naturopath said that Accutane "torqued my gut" and that I've had the h pylori since I was a baby, which does correlate with my stomach problems before Accutane. I do wonder if the gallbladder is from Accutane though....

After accutane I underwent an endoscopy and I had h pylori, I really came with pain years before accutane, I did a 14-day treatment taking omeprazole, clarithromycin and amoxicillin, then my pain that had been 7 years stopped, clearly they were intermittent but unbearable pain , that is to say, it was a pain of a week every 3 months that I had been carrying for 7 years thanks to the h. pylori.

 

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715
(@thomas76)

Posted : 04/30/2022 12:41 pm

I would say oatmeal is good. My machine is always recomending oatmeal. Brown rice is another recommendation from my machine. I never see wheat or corn in the food recommendations lists.

Quaker whole grain rice crisps are an awesome way to get whole grains on the go, as are oat based granola bars.

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8
(@ts-allgaier)

Posted : 04/30/2022 5:33 pm

Just wanted to let you know, my doc is trying to organize the mifepristone right now.

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1804
(@truejustice)

Posted : 04/30/2022 8:03 pm

2 hours ago, Thommy280495 said:

Just wanted to let you know, my doc is trying to organize the mifepristone right now.

what if its just bioavailable copper that you need?

have you looked into this yet

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8
(@ts-allgaier)

Posted : 05/01/2022 9:57 am

13 hours ago, TrueJustice said:

what if its just bioavailable copper that you need?

have you looked into this yet

I informed my self a little about the approach with hair mineral analysis, I think they say we have copper toxicity. There is also a protocol online which includes lots of diet tips and so on, but says for supplement tips you need to work with a practitioner. I guess I'm not convinced enough about it to spend the time and money on it.

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1804
(@truejustice)

Posted : 05/01/2022 5:26 pm

Yeah, my hair mineral test concluded high copper. That was like 10 yrs ago, got put on molyzinc to reduce it but nothing happened

My current kinesiologist is a bit smarter, he said quite often, not always you can actually need more copper, not less. Its more about getting it in the cell where its needed, not just floating around in the blood.

Recent discussion based on blood results, the endocrinologist reckons nothing would happen if he put me on anything. Although my testosterone is low as such, its still in range and from that he concluded I should have enough fuel in the tank so to speak. At first I was frustrated with him saying this but Im now thinking hes right, that my fatigue is related to something else, not testosterone

See how I go with this bioavailable copper I guess when it arrives

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85
(@jorgeantoniocalderon40)

Posted : 05/02/2022 9:13 pm

still eating healthy things, the only thing I haven't given up is chicken and beef, I find it great although I don't eat its leather or fat, only cuts of excellence.

my friends for now are vegetables and fruits, leave (for now) milk, candies, sugar, sodas, wheat, peanuts, sparkling water, all kinds of processed foods such as butter, chocolate, potato chips, cereals, white rice, pasta, sausages in general , cheeses, yogurt, desserts, ice cream, normal oil, etc.
I will try these foods first to avoid acne and oily skin xD

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715
(@thomas76)

Posted : 05/04/2022 10:23 am

I think hypochlorhydria is a major piece of the puzzle for us. Not enough stomach acid, which results in a high gi ph, impairing nutrient absorption. Chronic stress is a major cause for this. H pylori is often overgrown in this condition also.

Just introduced calcium and magnesium citrate twice daily, rhodiola in the morning, and magnolia bark and passionflower before bed. The cal and mag citrate seems to be producing a flushing effect of excessive abdominal water (ascites) out of my body in the form of diarrhea, which I definitely am not complaining about.

My current theory is accutane induced brain damage that causes chronic stress, which leads to hypochlorhydria, and long term nutrient malabsorption. Address the brain damage and chronic stress with a relaxing herbal adaptogen such as rhodiola or American ginseng, restore the two major macrominerals in citrate form to help add much needed acidity to the gut, and add some pro testosterone sleep herbs like passionflower and magnolia bark before bed.

I'd avoid ashwaganda as it's a nightshade, and nightshades seem to be a problem for the post accutane gut. And panax ginseng seems to be way too stimulating, exacerbating the chronic stress. Coffee should always be decaf. Will keep the board posted.

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715
(@thomas76)

Posted : 05/04/2022 1:13 pm

I've replaced the herbal adaptogen with aged garlic, and sticking with the calcium and magnesium citrate, washed down with lactose free skim milk.

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715
(@thomas76)
MemberMember
715
(@thomas76)

Posted : 05/06/2022 12:19 pm

Magnesium definitely produces a flushing effect of the colon, but I don't really see it as helpful. The garlic is somewhat helpful for hypertension, but minimally. Trying some magnolia bark nightly before bed. 6 capsules. Will see.

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8
(@ts-allgaier)

Posted : 05/11/2022 8:43 am

My doc has ordered the mife at the manufacturer called Nordic Pharm. I think I'll start taking it next week.

Tomorrow is the last day of the rehab I did and they came to the conclusion that I do not have a cognitive impairment.

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715
(@thomas76)

Posted : 05/11/2022 10:59 am

I approached my machines biofeedback from a different angle last night. Instead of simply relying on its useless recomendations, I dug a little deeper and looked at the blood pathology feedback it's been providing. I'm chronically high in multiple species of white blood cells. Essentially, i have an overactive immune system. An immune system that's attacking my own body. But why? Is it because accutane is still trapped in the lymphatic system, and these wbc are trying to attack it? Or is it because accutane is long gone, but caused permanent damage to my gut, creating leaky gut, and many different types of particles make their way across the gut barrier into the blood, which activates the immune response? Or is it both?

Regardless, I've got some astragalus coming in from Amazon today. First dose should be tonight. Astragalus is an adaptogen that many seem to indicate has an immunoregulatory action....increasing the immune response for underactive immune systems, and decreasing the immune response for overactive immune systems. Not only that, but studies seem to indicate that it has a powerful cleansing action on the lymphatic system. Not only that, but it seems to regulate angiotensin enzyme, which is a major cause of hypertension. Will keep the board posted.

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715
(@thomas76)

Posted : 05/11/2022 2:26 pm

I think accutane leaves it's victims with a permanently cool and dry body constitution. We're also constantly stressed out. Whenever I've been to the doctors office post accutane and they take my temp, it's always low. Accutane is the permanent solution to acne because of the permanent dryness it brings it the skin.

Accutane causes prostate issues because it dries up the urinary tract, which enables bad bacteria to proliferate, which causes prostatitis.

So we should be looking for adaptogens with a warming and hydrating effect. Astragalusand ashwaganda seem to fit that description. Started astragalus today, adding ashwaganda tomorrow. Avena sativa seems to fit that description but I haven't found a brand that is free of toxic fillers. Will report results later.

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715
(@thomas76)

Posted : 05/11/2022 6:29 pm

The ashwaganda is only one per day before bed. The astragalus im going overboard with, unlimited intake daily. The idea is to push the lymphatic fluid as quickly as possible with astragalus.

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9
(@saffronaide)

Posted : 05/13/2022 3:24 pm

On 5/11/2022 at 10:26 PM, Thomas76 said:

I think accutane leaves it's victims with a permanently cool and dry body constitution. We're also constantly stressed out. Whenever I've been to the doctors office post accutane and they take my temp, it's always low. Accutane is the permanent solution to accutane because of the permanent dryness it brings it the skin.

Accutane causes prostate issues because it dries up the urinary tract, which enables bad bacteria to proliferate, which causes prostatitis.

So we should be looking for adaptogens with a warming and hydrating effect. Astragalusand ashwaganda seem to fit that description. Started astragalus today, adding ashwaganda tomorrow. Avena sativa seems to fit that description but I haven't found a brand that is free of toxic fillers. Will report results later.

Have you ever checked up for prostatitis? My Dr. couldn't find any bacteria and leukocytes was in range. But i have prostate edema and numbness. My skin dryness went away within a week though.

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