Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
715
(@thomas76)

Posted : 04/02/2022 9:15 am

It's possible. I'm done with the beef liver and broccoli sprouts. I think we are vitamin A deficient, but that supplementing with vitamin A is not the answer. Getting our guts to absorb and utilize carotene from fruits and veggies and retinol from dairy I think is key. I'm trying lactose free whole milk for a bit to see how it goes. I suspect the casomorphines in milk are a non issue if your body digests the milk properly. Milk indigestion is likely the cause of casomorphine issues.

Apigenin and chamomile are my top two supplements for now. Apigenin has been shown to kill colon cancer. See the link below. There may be other studies out there.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5725014/

Quote
MemberMember
1
(@devon98)

Posted : 04/02/2022 11:43 am

Hey everyone,

I wish I wasn't posting here but here goes:

Took accutane last year 80mg from June to October. - Usual side effects wasn't really concerned.

Coming off accutane is a different story. 2 weeks after is when I noticed symptoms appearing. I shalllist them here in severity:

- Zero Libido

- Sometimes Painful/Pleasureless Orgasms

- Slight ED (Soft Glans)

- Gut issues (Constipation, discomfort, floating stools)

- Dry skin, lips, hair

- Headaches, Depression, Anxiety

- Anhidrosis (if I do sweat it is minimal but highly potent)

- Nipple tenderness

- Weakness/fatigue - out of breath easily.

- Insomnia

Ive recently started acupuncture not noticing much improvement but Ihave noticed some very random throbbing sensations following occurring in 2 separate locations simultaneously 1. just above my right ankle, 2. in my lower abdomen just above the groin. Extremely odd but I think it may explain a few things for me anyway. This followed with the decreased sensitivity in my genitals/anus. I have also noticed I cannot clench my arse together significantly, almost as if I amunable to send the signals to the muscles to constrict from my brain.

I assume I must have some sort of CNS dysfunction signal malfunction to my sexual organs and anus. Now this could be caused by the gut issues the liver who really knows. My hormones have come back pretty a okay , bar Prolactin being slightly raised (boner killer?) and decreased folate. Methylation issue? AR fucked up probably.

Reading through everyones problems it seems evident to me that this is body wide disruption and its pretty hard to distinguish the root cause.. does the HPA dysfunction cause the gut issues for example or does the gut issues cause the pelvic floor nerve issues and then that leads to HPA dysfunction.

Been this way for near 6 months now, need to seriously get on with the healing process.

 

Quote
MemberMember
9
(@saffronaide)

Posted : 04/02/2022 1:28 pm

11 hours ago, Thomas76 said:

Guitarman's microbiome research still interests me. What if accutane impacted the microbiome in such a way that the body no longer absorbs beta carotene? What if apigenin could reverse this change in the microbiome? I think I'll stick with apigenin and chamomile only for a while as far as supplements go.

I think you are getting into too much detail. Accutane casued dybiosis and that led to leaky gut, the linings of our gut mucus started to leak pathogens and undigested food which in turn caused pelvic floor dsyfunction and inflammation inside the near organs.

Which led to prostate inflammation= Bam! All sexual sides came. The inflamed prostate couldn't ejaculate the semen probably due to PC muscle dysfucntion and that led to increasing of the symptoms because the dead semen got stuck inside and caused edema inside the prostate.

Do a 3 week water fast, get a gut microbiome test and re-feed your gut with FIBER PRE- BIOTICS and good Pro- Biotics, after your fast,on high doses.

Fix the mucus lining and inflammation and hopefully recover. You first need to kill the BAD BACTERIA with water fasting (They starve to death much faster than good ones.) in order to re-feed your gut with good bacteria, tons of videos and studiesabout it on Youtube, check them out.

Quote
MemberMember
715
(@thomas76)

Posted : 04/02/2022 7:45 pm

I agree with saffron on the gut bacterial imbalance, leaky gut, pelvic floor dysfunction and prostate inflammation. I disagree on the water only fasting and fiber. I've done water only fasting before and all that does is destroy my hormones. Fiber supplements destroy my cholesterol levels. Cholesterol is the mother of all hormones.

I've cut out the apigenin isolate as I can tell it does far more harm than good, but I'm sticking with the chamomile capsules. 3x4/day. My machine has always listed chamomile high in the homeopathics section, and it's known for ibs, stress and sleep. Chamomile has prebiotic properties and has been shown to alter the gut microbiome.

Ive also cut out all gluten and lactose, which I believe is huge for all accutane ppl. Whole grain rice and oat based non GMO snacks are my grain mainstays. No corn or wheat. Lactose free skim milk is my primary daily beverage. Organic cheese, yogurt, beef, chicken, canned peas and carrots. Some aloe vera juice here and there. Trail mix. Raw fruit when my body asks for it. Fingers crossed. Welcome to the board Devon.

Quote
MemberMember
9
(@saffronaide)

Posted : 04/03/2022 9:26 am

13 hours ago, Thomas76 said:

I agree with saffron on the gut bacterial imbalance, leaky gut, pelvic floor dysfunction and prostate inflammation. I disagree on the water only fasting and fiber. I've done water only fasting before and all that does is destroy my hormones. Fiber supplements destroy my cholesterol levels. Cholesterol is the mother of all hormones. 

I've cut out the apigenin isolate as I can tell it does far more harm than good, but I'm sticking with the chamomile capsules. 3x4/day. My machine has always listed chamomile high in the homeopathics section, and it's known for ibs, stress and sleep. Chamomile has prebiotic properties and has been shown to alter the gut microbiome. 

Ive also cut out all gluten and lactose, which I believe is huge for all accutane ppl. Whole grain rice and oat based non GMO snacks are my grain mainstays. No corn or wheat. Lactose free skim milk is my primary daily beverage. Organic cheese, beef, chicken, canned peas and carrots. Some aloe vera juice here and there. Trail mix. Raw fruit when my body asks for it. Fingers crossed. Welcome to the board Devon. 

You can't sail without fixing the gut microbiome i think.

You are feeding the bad bacteria still with those protocols of yours.

You have to reset your gut from the Accutane's damage first. Only way for this is water fast or intermitted fasting.

 

 

Take a look on these channels and many others.

And you can always get fiber from natural sources. And where that thing come from? How fiber can crash your cholesterol? Sorry but you sound like you are giving too much credit to your "machine?" of yours.

Your diet seems pretty good, it is a good list. But you should get a gut microbiome test to see your spesific issue. That way you can try the correct probiotics to fix. Chamomile tea won't be enough, think about the damage we have, it is hardcore. Hope this helps :)

Quote
MemberMember
715
(@thomas76)

Posted : 04/03/2022 9:47 am

Dude, what do you think organic yogurt and cheese are? PROBIOTICS. What do you think chamomile is? PREBIOTIC. What do you think whole grain non GMO rice and oats are? PREBIOTICS. I'm getting plenty of probiotics and prebiotics with my program. I don't need your bullshit advice.

Starving your body of much needed nutrition? Stupid. Taking a non nutritious psyllium husk supplement, that is 100% pure fiber and zero nutrition? Stupid. You need to stop acting like you know everything because you clearly don't. Restoring autonomic balance is THEE most important aspect of recovering from this shit. Chamomile can do that better than anything else.

Anyone who knows anything about human health knows that soluble fiber pulls cholesterol out of your system. Our cholesterol is already being attacked by accutane, which is why we crave saturated fat. Fiber from nutritious whole grains fruits and veggies is good. Fiber from non nutritious psyllium is bad.

Quote
MemberMember
9
(@saffronaide)

Posted : 04/03/2022 8:44 pm

11 hours ago, Thomas76 said:

Dude, what do you think organic yogurt and cheese are? PROBIOTICS. What do you think chamomile is? PREBIOTIC. What do you think whole grain non GMO rice and oats are? PREBIOTICS. I'm getting plenty of probiotics and prebiotics with my program. I don't need your bullshit advice.

Starving your body of much needed nutrition? Stupid. Taking a non nutritious psyllium husk supplement, that is 100% pure fiber and zero nutrition? Stupid. You need to stop acting like you know everything because you clearly don't. Restoring autonomic balance is THEE most important aspect of recovering from this shit. Chamomile can do that better than anything else.

Anyone who knows anything about human health knows that soluble fiber pulls cholesterol out of your system. Our cholesterol is already being attacked by accutane, which is why we crave saturated fat. Fiber from nutritious whole grains fruits and veggies is good. Fiber from non nutritious psyllium is bad.

You really thought that i didn't know all of these? Your issue is different, and what the heck about autonomic balance? With your own words, "stupid advice."

I don't crave saturated fat. My probiotics does not contain psyllium husk. Most of the PAS cases doesn't have unbalanced Cholesterol.

You are clearly don't know much about water fasting, and have no idea about its benefits and how it heals the gut. I am not gonna spoon fed you here. I never claimed that i know everything, we all know different kind of things.

Hah! Goodluck with fixing your PAS with Chamomile tea and whole grains. I am sincere.

But please don't reply back im closing my account.

No one has to handle your negativity and disrespectful attitude.

Quote
MemberMember
397
(@calcified)

Posted : 04/04/2022 9:37 am

How does fasting improve vitamin A obsorption?

Quote
MemberMember
9
(@saffronaide)

Posted : 04/04/2022 11:38 am

1 hour ago, Calcified said:

How does fasting improve vitamin A obsorption?

There is nothing wrong with your Vitamin A system if you are not a very spesific, special case; its all a pseudo- scientific myth from the 2000's.

Which amazes me, people still falling for that.

Quote
MemberMember
715
(@thomas76)

Posted : 04/04/2022 7:52 pm

Saffron, you say I'm doing nothing for my gut, when I said I cut out lactose and gluten, am including probiotic rich dairy and prebiotic rich whole grains. You say chamomile is no good. How the f would you know if you've never even tried it? Of course I'm going to get angry. What do you expect? My issues are the same as everyone else here. Overactive sympathetic nervous system, underactive parasympathetic nervous system, clogged up liver/gallbladder, sleep, stress, fatigue, ibs, ed issues. I'm no different from any other accutane victim.

I no longer crave saturated fat thanks to the chamomile. It's taken me out of fight or flight mode, and I can tell it's clearing my liver, far better than what milk thistle ever did.

You mentioned the need for me to take a fiber supplement. People should never take a fiber supplement when they are consuming whole grains, fruits and veggies on a regular basis. Most accutane people have a clogged liver/gallbladder and poor bile flow, which impairs fat absorption, which lowers cholesterol, the precursor to testosterone.

I know plenty about water only fasting from personal experience. Hh6 is absolutely correct. Water only fasting wipes out the hormones. Bile comes from cholesterol, which comes from fat. If one is not ingesting fat on a regular basis then it makes it hard to get bile production and flow going.

I absolutely will continue with the chamomile capsules daily as it is working wonders on my liver. Milk thistle cannot touch it. I've also added fish eggs for the dha content. It's very simple. If you attack me, I will attack you back. If you respect me, i will respect you.

Quote
MemberMember
715
(@thomas76)

Posted : 04/05/2022 11:31 am

What I'm finding through research, trial, and error is that chamomile capsules are excellent for deactivating the post accutane fight or flight mode, and pushing toxins from all over the body toward the liver, but once those toxins get to the liver, dandelion is needed to get them completely out via the bile flow. Currently the program is 3 chamomile, 3 dandelion, and 3 fish eggs before bed nightly. Will provide updates when available. Godspeed.

Quote
MemberMember
715
(@thomas76)

Posted : 04/05/2022 2:54 pm

Hey hh6, yeah, chamomiles scent isn't too bad. I agree with you on the e. Coli. My machine shows quite a bit of it quite often.

I've actually just dropped the chamomile and added back the natural beta carotene, while maintaining the dandelion root. I'm back to the theory that accutane is still in is. When it comes to bile herbs there are two types. Choleretics and cholagogues. Choleretics increase bile production. Cholagogues increase bile flow. Dandelion root is the rare herb that performs both actions.

Vitamin A regulates the hpa. Google it. That's where the natural beta carotene comes in. Will report updates as they come.

Quote
MemberMember
1
(@moks)

Posted : 04/06/2022 8:39 am

Hey guys, what's your body temperature during the day?

Mine always rise to 37.2C(98.6F)

Quote
MemberMember
715
(@thomas76)

Posted : 04/06/2022 9:36 am

Haven't checked in years but can recall it was always low, between 95 and 98. Accutane is a chemo poison and chemo poisons typically make the body more yin, or cool. Ive always craved yang foods post accutane.

Vitamin A is known to convert serotonin into melatonin. Without adequate retinol, serotonin levels rise and melatonin levels fall, inducing insomnia.

Quote
MemberMember
85
(@jorgeantoniocalderon40)

Posted : 04/06/2022 8:16 pm

still dealing with this drug? I have forgotten this forum and the bad times that this medication made me go through, I have never been in better health and passed the stage of uncertainty of this drug, I really still have acne and I love myself as I am, despite of that the oily skin fucks me every time.
Does anyone know how to get rid of oily skin? It really bothers me to be dealing with wet skin all day, that is, when I pass my face with some glass or my hands it gets totally wet and it's a bit frustrating.
Greetings people :D

 

 

Quote
MemberMember
715
(@thomas76)

Posted : 04/08/2022 10:54 am

Well sebum derives from saturated fat, so the best thing I could recommend would be cutting back on fat and boosting fruits and veggies. It sounds like you were able to escape accutane without any brain damage, unlike so many others.

I've been such a fool for skirting the issue all this time. My current theory is that accutane causes brain damage, which in turn decreases sebum production/secretion and thus, no more acne. If you still get acne after accutane then the brain was not damaged enough.

I believe the brain damage can be minimized with the right pharmaceutical, possibly celexa. Drugs.com lists the top 11 drugs used for stress, and celexa is at the top of the ratings list. People indicate that celexa resolves the fight or flight response. Accutane has always felt like ptsd to me. If I can eliminate the fight or flight response in my head I solve my issues. Dr appt is Wednesday. Will report more info when available.

Forgot to mention, celexa seems to be without the sexual side effects that so many brain drugs are known for.

Quote
MemberMember
715
(@thomas76)

Posted : 04/08/2022 11:49 am

There is a herb known as burdock root available in capsules that might address the excessive sebum.

Quote
MemberMember
183
(@monsterdiesel)

Posted : 04/08/2022 11:53 am

6 minutes ago, Thomas76 said:

There is a herb known as burdock root available in capsules that might address the excessive sebum.

What else do you know about burdock? Ergo log has studies showing it can increase testosterone. Have you noticed this? I have a bottle ive yet to use..

Quote
MemberMember
715
(@thomas76)

Posted : 04/08/2022 1:55 pm

Ergo log is correct, burdock can increase testosterone. For me it works well for a day, and then after that I'm completely drained of dopamine and have to stop. Burdock would probably be good for a guy who isn't brain damaged. For an accutane brain damaged individual like myself, I need a drug such as celexa. Celexa has been shown to increase dopamine and decrease adrenaline, which is exactly what I'm looking to accomplish. Will report celexa effects next week as they occur.

Quote
MemberMember
715
(@thomas76)

Posted : 04/08/2022 2:29 pm

Guys who've come here in the past saying to simply change your diet and you'll be good to go were never suffering from accutane damage. They were suffering from a poor diet. Don't let these morons confuse you. Your pain and suffering is very real, and no diet can fix it. Hopefully celexa can.

Quote
MemberMember
9
(@saffronaide)

Posted : 04/09/2022 4:30 am

11th day on water fast, feeling fantastic. Recovery started to happen. Scrotum is getting fuller each day. Bladder is more sensitive. Definitely something going on after 7 years. Tears are rolling down from my cheeks. I guess my gut waits my final probiotic blow to fix my clinically low Akkermansia levels. Too early to tell anything for certain, but hoping for the best.

I guess this isgoing to be the biggestlesson of my life after i have done with it. The concept of hope was essential for me, and that is how i battled with the darkest pits of my life. Leaving the forums for a while for now.

''Our scars can destroy us, even after the physical wounds have healed. But if we survive them, they can transform us. They can give us the power to endure, and the strength to fight.''

Quote
MemberMember
183
(@monsterdiesel)

Posted : 04/09/2022 8:26 am

18 hours ago, Thomas76 said:

I'm completely drained of dopamine and have to stop.

Have you tried folate for dopamine support? Remember tane upregulates that enzyme that uses up folate (PNMT?). Cant remember the name.

Quote
MemberMember
8
(@ts-allgaier)

Posted : 04/10/2022 8:22 pm

I talked to my doctor about the mife and he wants to get a second opinion. Has anyone tried licorice root 450 mg for 3 months? It's a natural way to downregulate the HPA axis.

I started a neurological rehab for covid longhaulers bc they also experience brain fog and such and it is really helping. I recommend it.

Also I started meditating and my anxiety levels went down drastically and my energy levels went up.

I will keep you all updated.

Quote
MemberMember
0
(@johntylar)

Posted : 04/11/2022 10:48 pm

Saffron please keep us updated. Finished a 3 day water fast a few days ago, definite improvement but need to go longer. Was on a vegetable and fruit diet which made my digestion near perfect. These two ideas combined I believe will be the best remedy for these problems. Thankyou.

Quote
MemberMember
4
(@fraz_2010)

Posted : 04/13/2022 8:44 pm

On 4/9/2022 at 10:30 AM, SaffronAide said:

11th day on water fast, feeling fantastic. Recovery started to happen. Scrotum is getting fuller each day. Bladder is more sensitive. Definitely something going on after 7 years. Tears are rolling down from my cheeks. I guess my gut waits my final probiotic blow to fix my clinically low Akkermansia levels. Too early to tell anything for certain, but hoping for the best.

I guess this isgoing to be the biggestlesson of my life after i have done with it. The concept of hope was essential for me, and that is how i battled with the darkest pits of my life. Leaving the forums for a while for now.

''Our scars can destroy us, even after the physical wounds have healed. But if we survive them, they can transform us. They can give us the power to endure, and the strength to fight.''

Hey, how is your progress coming along?

it's a shame so many people are doubtful about the benefits of water fasting on rapid scar healing becauseit 100% works. It can take between 2-4 weeks depending on the extent of the damage but you know it's working when the skin over the scar begins to flake up and peel off.

On 4/12/2022 at 4:48 AM, johnTylar said:

Saffron please keep us updated. Finished a 3 day water fast a few days ago, definite improvement but need to go longer. Was on a vegetable and fruit diet which made my digestion near perfect. These two ideas combined I believe will be the best remedy for these problems. Thankyou.

In order for the water fast to be effective, your body needs to enter autophogy, this takes at least 3-4 days. Once your body enters autophogy, the hunger subsides as the body begins to feed on it's own cells for energy. This is important, because the body will prioritise the damaged cells first, causing the scar tissue to break down and be replaced with fresh new skin at a very rapid rate. You must keep the fast going for at least 10daysto see real improvements. It does get considerably easier after day 4 though when the hunger cravings completely subside.

Quote