Acne.org Products
11 hours ago, Aaron76 said:I think there's a better way of replenishing vitamin A than with beef liver or retinol pills.
Daily supplements
Plant based
Black currant
Kyolic original
Brown seaweed
Broccoli sprouts
Terravita sweet potatoOther
Tudca
Vitamin c gummiesIncase of RLS
Now L phenylalanineDiet
Omnivore
Organic when possibleAvoid
Soy
Pork
Alcohol
Tobacco
Black tea
Artificial sweeteners
Artificial preservativesHome water treatment
Chlorine filter/water softener
Let me recommend that you try and get your diet, water intake, sleep, and exercise in check first before taking so many supplements.
The beef liver and broccoli sprouts do sound great and beingthatthey are both natural ingredients too is a hugeplus. Lots swear by bone broth, so the beef liver makes sense. Isnt liver one of the best foods one could consume? Kale is up there too, but I get itchy (allergy?) after eating green leafy vegetables.
1 hour ago, oneaway said:I had ablood test 11years ago and testosterone levels came back at 0.3. Pretty well a zero.There were other hormones out of the normal range as well. They were either super high or near zero.
My Family Doctor denied that I had a tumour and claimed the endocrinologist was wrong. He actually laughed.Later, an MRI showed that I did indeed havea pituitary tumour. And soon after this experience, well let me say,I now have a different Family Doctor!
I recall that a few weeks after taking Accutane I felt different andnot myself. This carried on for about 5 years beingunaware that I even had a tumour underneath my brain. Why would anyone thinkthis?
I almost cried when I heard the endocrinologist say I had a tumour inside my head, but I was happy that I had an answer. Although, still not the final answer to rid of the ongoing mental issues I struggle with each day.
After surgery,I suddenlyfelt closer to normal,the same as idid prior to taking Accutane. It was short lived, however. I soon developed OCD.
**Amazing how something like a tumour can make you feel totally different. I could breathe once again as the tumour was not interfering with my sinuses any longer. *Misdiagnosed sleep apnea was cured and my sleep was better than 2 hours per night.
**It was defined as a macroadenoma as the size was above 1cm. (Under 1cm and they are referred to as an microadenoma.) Mine was pretty big at 3cm in diameter.
Im not claiming everyone has pituitary tumours, but maybe this could help someoneso they dontoverlook this.
I wish someone told me years early to check my pituitary
Aside from your own beliefs on the tumour, did anyone ever officially recognise it as coming from taking Accutane?
I do know pseudo tumour can be a side effect,something to do with too much spinal fluid in the head
Im sorry this happened to you, luckily you have a new lease on life.
Also, how invasive was the surgery? If you could explain the type of surgery involved
I did have an MRI years ago but it was horrible, I was panicking in the machine and moved too much so they couldnt get an accurate reading. Machines are less claustrophobic these days.
Don't want to sound any alarms but I have heard of someone else developing pituitary tumour, got to say with a low testosterone level too.
I guess the big question is why do these people need accutane if testosterone was low. Seems hard to believe its just something that was around before treatment.
Do I have one myself? No I don't.
Just saying not the first time I heard it, and isn't accutane used to shrink pituitary tumours in cushing disease patients?
10 hours ago, TrueJustice said:Aside from your own beliefs on the tumour, did anyone ever officially recognise it as coming from taking Accutane?
I do know pseudo tumour can be a side effect,something to do with too much spinal fluid in the head
Im sorry this happened to you, luckily you have a new lease on life.
Also, how invasive was the surgery? If you could explain the type of surgery involved
I did have an MRI years ago but it was horrible, I was panicking in the machine and moved too much so they couldnt get an accurate reading. Machines are less claustrophobic these days.
No one could point to Accutane as to why I got the pituitary tumour cause the doctors around dont see Accutane doing any harm whatsoever.
I had a CT scan prior to taking Accutane. There waszero evidence of a pituitary tumour at that time.
I doknow pseudo tumour can be a side effect,something to do with too much spinal fluid in the head
After my tumour was removed I got a CSF (cerebral spinal fluid) leak out from my nose. I then was told that I hadmeningitis.They gave me a spinal tap to divert the excess CSFfrom going to my head. I almost died.
Ask for a sedative and try the MRI again. Ive been lucky as I was pretty chilled out during the 5 or 6 that I had. They now monitor any reoccurrence of the tumour from blood tests every 6 months. I do, however, get an MRI every so often,so the endocrinologist is 100 percent sure it isnt there.
The tumour was removed via transsphenoidalsurgery out of my nose.
Transsphenoidal surgery is a type of surgery in which an endoscope or surgical instruments are inserted into part of the brain by going through the nose and the sphenoid bone into the sphenoidal sinus cavity. Transsphenoidal surgery is used to remove tumors of the pituitary gland.Wikipedia
4 hours ago, Calcified said:
I guess the big question is why do these people need accutane if testosterone was low. Seems hard to believe its just something that was around before treatment.
Do I have one myself? No I don't.
Just saying not the first time I heard it, and isn't accutane used to shrink pituitary tumours in cushing disease patients?
I was tested after I took Accutane and it showed that I hadlow (zero) testosterone. I didnt feel there was any need to test my Testosteronebecause I was gaining muscle quite perfectly at the gym prior to taking Accutane.
I sadly recall going to the gym about 4weeks on Accutane and I was horribly weak. From there on I took notice of how my muscles decreased in size. I continued with Accutane a few more weeks and lost even more weight. I developed digestive issues and then I was diagnosed withCrohns diseaseby the Pathologist after it was confirmed by acolonoscopy.
If anyone is worried about an MRIdont be, because colonoscopies are much worse in my opinion.
On 1/26/2021 at 5:35 AM, SaffronAide said:Sorry to hear your story, i hope you can beat this disease. We are very similar. I also took this poison at 16. Can you please and please answer my questions above? About jaw growth and overbite issues. Lower lip staying behind from side profile..
My post is just 3 messages above. Please quote me and contribute to my questions, i am close to figuring something out.
One more question, our clavicle\ shoulder bones suppose to grow up to 3cm's on each side between 16 and 25 years of age! Do you think your shoulders widened at least 2cms since PAS? 2CM's sound very hard to notice but it is not!! It is a very visible change on each side actually.
I have had this yes. You are this first person ive seen mention this on an accutane related discussion. I guess add that to the list of symptoms
13 hours ago, oneaway said:I was tested after I took Accutane and it showed that I hadlow (zero) testosterone. I didnt feel there was any need to test my Testosteronebecause I was gaining muscle quite perfectly at the gym prior to taking Accutane.
I sadly recall going to the gym about 4weeks on Accutane and I was horribly weak. From there on I took notice of how my muscles decreased in size. I continued with Accutane a few more weeks and lost even more weight. I developed digestive issues and then I was diagnosed withCrohns diseaseby the Pathologist after it was confirmed by acolonoscopy.
If anyone is worried about an MRIdont be, because colonoscopies are much worse in my opinion.
I have had a pituitary mri, it was all clear.
Seems strange how we get things after accutane that accutane can actually treat and cure.
Do you still get some acne? I do terribly if b12 and vit D are at normal levels.
11 hours ago, Calcified said:I have had a pituitary mri, it was all clear.
Seems strange how we get things after accutane that accutane can actually treat and cure.
Do you still get some acne? I do terribly if b12 and vit D are at normal levels.
Acne. I could have avoided Accutane altogether if I realized that my diet was the cause of most of it. When I eat cereal, doesnt matter if it is gluten free or not, I get a dry rash on my back with little red/pink bumps. When I eat wheat bread, same thing happens to my back, butmy face goes dry and looks horrible too. It becomes red and blotchy with some whitehead productionunderneath the newly developeddry skin. If I do not eat grains, my face will havea glow to it and 99% free of acne.
I was addicted to cereal, breads, muffins and never realized for a second that they were the culprit. Milk causedissues too to a lesser effect. I tested positive within a hospital for lactose intolerance. I notice that lactose-free also causes issues as well. Probably a casein allergy. Doesnt matter cause I dont drink milk anymore.
I have lowB12 and Vitamin D mostif not all of the time. I dont take supplements at this time. I did get B12 shots regularly, but stopped prior to COVID. Vitamin D;I find that when Im in the sun life is good!
12 hours ago, Calcified said:I have had a pituitary mri, it was all clear.
Seems strange how we get things after accutane that accutane can actually treat and cure.
Do you still get some acne? I do terribly if b12 and vit D are at normal levels.
I put it this way.
just because I dont have a pituitary tumour or crohnsdisease, doesnt mean I dont have persistent head inflammation and chronic reflux still happening
Wed all have to agree that most people and theres been a lot who have testosterone issues post tane,dont have this because of a pituitarytumour!
I have had the colonoscopy and endoscopy whereby they found I have a herniated esophagus, I think brought on by chronic reflux, Dr though thinks I was born with it - how convenient to say that
I dont have Crohns though
Drthough thinks I was born with it - how convenient to say that
They have absolutely no idea. Clueless professionals.
Is anyone refusing to get the COVID-19vaccination because you lacktrustfor any and allpharmaceutical companies?
Are youconcerned that yourbody will react negatively to the shot(s) because of how you reacted to Accutane in the past?
8 hours ago, oneaway said:
Drthough thinks I was born with it - how convenient to say that
They have absolutely no idea. Clueless professionals.
Is anyone refusing to get the COVID-19vaccination because you lacktrustfor any and allpharmaceutical companies?
Are youconcerned that yourbody will react negatively to the shot(s) because of how you reacted to Accutane in the past?
I'm very sceptical about the covid vaccine. I received an invite today, but i'm still making my mind up about it. Everyone in my environment is pushing me to get the vaccine, but i'm afraid. Not only because of my past accutane use, but also because last time i was vaccinated (when i was 14), i passed out and was unconscious for minutes.
13 hours ago, oneaway said:
Drthough thinks I was born with it - how convenient to say that
They have absolutely no idea. Clueless professionals.
Is anyone refusing to get the COVID-19vaccination because you lacktrustfor any and allpharmaceutical companies?
Are youconcerned that yourbody will react negatively to the shot(s) because of how you reacted to Accutane in the past?
Thats a very good question!
Yes, Im slightly concerned I would have to say. Particularly when weve discussed sluggish blood flow on this board before, well before Covid came about. Are we more susceptible to blood clotting!!?
Also Im concerned with my immune system already, having seen my blood under the microscope recently and how its not exactly looking all that good, I wonder what the vaccine might do, could it further compromise my immunity?? I hope not
These are my concerns, having said that Ive already spoken to my kinesiologist and we agreed they can assist in making sure Im ready to receive the vaccine as best as possible, make sure liver meridian for example is working ok along with other things.
I will most likely get the vaccine by years end, I cant see any way around it, especially if you want to travel again in the future
On 5/7/2011 at 4:07 PM, IndigoRush said:Hello.
First of all, don't get too excited if you're in a similar situation to me and were hoping this post would hold the fix for long-term (Ro)accutane damage. I just wanted to express my situation and see if anyone can help.
I'm bored of reading depressing no-way-out answers and I refuse to give up and stop trying to fix myself. I'm also not inviting those who say the side effects aren't caused by this drug - I am 100% sure, and have read enough posts from others to know that Accutane isn't simply 'out' of your system after a month. I've read several theories into why things like IBS, Erectile Dysfunction and knee problems can occur months or years after stopping treatment. I'm talking about the liver storing the high-levels of Vitamin A, Accutane staying in the colon, and even something - which if it's true means only bad news - to do with DNA change and 'Telomere' shortening, which means a slow but sure decrease in health(This has been written by Nathan Carr, who you may of heard of).
But I'm not writing to find out which of these theories, if any, is true. I want to see if anyone can actually give good advice on supplements/diet, or whatever else, to repair damage from this poison.
Below, I will list the details of when I took this drug and what side effects I have + how I cope with life. One last thing - Anyone saying that these side effects are rare, i.e 1%, forget it. 1% reported. Since taking this drug, my life has been limited and difficult. I'm not in that 1% statistic because I haven't reported it directly to the manufacturer. I expect the figure is a lot higher.
As I said, side effects can come on AFTER taking this, so people could be ignorant to the cause. However, I know better, and after watching my health drop dramatically while/after taking Accutane, I can firmly say it's the cause. Let's begin ...
Basics: I'm 21 at the end of this month. It's now 5 years since I touched Ro-accutane (Ro-accutane is just the British name for it). I took it from December 2005 - May 2006. I was meant to finish in June, but stopped due to feeling very depressed/suicidal (because of the drug). My problems are below...
- Dry Eyes (Severe)
- E.D/ Low Libido (Started last year and has gone on consistently since)
- Hair-loss (Including eyebrows, facial hair 'gaps' and body hair)
- Slow Healing (Shaving is a pain now - No, it's not my technique)
- Lack of sebum (oil)
- Brain Fog/ Memory problems - Somewhat minor
- Anxiety (mainly because of the other side effects - i.e. dry eyes causing me to feel embarassed about eye contact)
- Excessive hair (Not related to head, but my beard grows high up on cheeks and even on the outside of my nose)
- I believe I look older than I should due to lack of oil
- Joint/Muscle problems - Aches/ Slow recovery
- Excessive sweating.. Terrible if I go running at the gym, for example.
- Dry mouth
- Nosebleeds more than I should
- Fatigue
- Overall depression and confusion (*Rhetorical question* Is this a direct symptom or am I like it because of all the other side-effects stressing me out?)
That's what I can think of for now. Of course, I wasn't told about half of these being a possibly problem and I was told any side-effects will be temporary. I was 15, so I had no reason not to trust the Doc's word.
I've tried lots of different supplements (a lot of which I still take just incase they are helping/slowing down the problems) including Omega 3, Biotin, B-Complex, Vitamin E, Vitamin D, Vitamin C, Collagen, Hyaluronic acid, Aloe Vera Juice, MSM, Colostrum, Garlic, Acetyl L-Carnitine, Acetyl L-Cysteine, Milk Thistle, Dandelion Root, Quercetin, Tumeric.
So, yeah, I've tried a lot of things. The Milk Thistle and Dandelion Root are recent additions because despite having my liver test results come back as positive, I've heard your liver can still not be functioning correctly and people are given liver tests monthly while taking this drug for a reason, right? I'm starting to eat better foods as this sh*t taught me that Natural is the way to go. I still binge on cakes and that occasionally - Mainly for comfort. I'm average weight and height, but want to cut out processed foods to support my body.
I don't want to make this EXTREMELY long, so I'll cut it short. I'm currently seeing a Homeopathy about these problems. And Yes, I know "Science says it's boll*cks", and I don't understand how it's supposed to work, but sometimes you have to think outside the box and give things a go. I don't have high hopes for things getting better these days, but I'm not giving up. There is so much more I could say, but let me know your thoughts. I don't want to hear negative and hopeless responses. What HAS helped you? Acne.org seems to be the biggest place to speak about this, but we NEED the word out, so the 'experts' can do the research instead of hoping for someone else to fix us.
Thanks for reading,
Indy.
Accutane is basically treated like a toxin and is stored in the liver as toxins. This wreaks havoc on your body and a sluggish liver is the main root to many health problems. I myself for one am having trouble with healing problems (shaving legs for example, I bleed really easily more than before)hair loss, excessive hair growth on body, belching, depression (this is more because of the scarring that myacne left me), halitosis (bad breath) and waking up randomly in the middle of the night at 3-4 am. I started to take a radical approach to heal after this hefty drug. I am following Medical Medium by Anthony Williams, which goes in to depth in how drugs like accutane can cause liver damage that isnt detected in blood tests and how to heal.
On 6/29/2021 at 5:56 AM, oneaway said:Let me recommend that you try and get your diet, water intake, sleep, and exercise in check first before taking so many supplements.
The beef liver and broccoli sprouts do sound great and beingthatthey are both natural ingredients too is a hugeplus. Lots swear by bone broth, so the beef liver makes sense. Isnt liver one of the best foods one could consume? Kale is up there too, but I get itchy (allergy?) after eating green leafy vegetables.
Those are not synthetic supplements. Except for phenylalanine, they are whole foods. Sleep requires supplements. No supplements, no sleep. Forcing yourself to drink water when you are not thirsty does much more harm than good. Only drink water when you are thirsty. The body can create its own metabolic water from body fat. If you're not thirsty then it's because the body wants to burn some fat and create its own water. As far as diet goes, eat what the body asks for. If the body is asking for fruit, eat fruit. If the body wants whole grains, eat whole grains. If the body wants meat, eat meat. If the body wants dairy, eat dairy. Very simple. My latestprogram is below.
Daily supplements
Terra vita
Apricot
Banana
Pumpkin
Other
Gamma oryzanol 180 mg
Vitamin c gummies, as desired
Diet
Omnivore
Organic when possible
For RLS
Tuna salad
Medjool dates
Avoid
Soy
Pork
Alcohol
Tobacco
Black tea
Artificial sweeteners
Artificial preservatives
Home water treatment
Chlorine filter/water softener
The gamma oryzanol is used to reopen and reactivate the sebaceous glands in the skin, in order to release stored accutane and make way for true vitamin A to come in and replace it. Thiamine might be an acceptable alternative to gamma oryzanol. Pumpkin and apricot are rich in beta carotene, the precursor to vitamin A. Will keep the board posted. Take care.
An analysis of c-reactive protein could also be done, it measures the degree of inflammation of any organ.
I am convinced that the damage is repairable, but with food we do not let our body regenerate.
We are made to eat natural things and not excessively corpse or processed, but it is really difficult to follow a diet more when you have a cheaper hamburger than a lettuce in the supermarket.
well anyway .... someone who tried bone broth and l glutamine? I've heard wonders of bone broth.
I will never get the toxic, harmful covid vaccine and I will have no issues with traveling anywhere. The vaccine is for senior citizens who have preexisting conditions. The world is being duped into thinking it's for more people than that in order to make money for criminals like bill gates.
2 hours ago, Shelly399 said:Accutane is basically treated like a toxin and is stored in the liver as toxins. This wreaks havoc on your body and a sluggish liver is the main root to many health problems. I myself for one am having trouble with healing problems (shaving legs for example, I bleed really easily more than before)hair loss, excessive hair growth on body, belching, depression (this is more because of the scarring that myacne left me), halitosis (bad breath) and waking up randomly in the middle of the night at 3-4 am. I started to take a radical approach to heal after this hefty drug. I am following Medical Medium by Anthony Williams, which goes in to depth in how drugs like accutane can cause liver damage that isnt detected in blood tests and how to heal.
whats the protocol for fixing liver??
What supplements and drugs do they recommend?
thx for post
5 hours ago, Shelly399 said:Accutane is basically treated like a toxin and is stored in the liver as toxins. This wreaks havoc on your body and a sluggish liver is the main root to many health problems. I myself for one am having trouble with healing problems (shaving legs for example, I bleed really easily more than before)hair loss, excessive hair growth on body, belching, depression (this is more because of the scarring that myacne left me), halitosis (bad breath) and waking up randomly in the middle of the night at 3-4 am. I started to take a radical approach to heal after this hefty drug. I am following Medical Medium by Anthony Williams, which goes in to depth in how drugs like accutane can cause liver damage that isnt detected in blood tests and how to heal.
I agree 100% with this fact, but also let's not forget that accutane is extremely toxic to intestinal bacteria,reducing them greatly so good probiotics are needed to strengthen the strains, also if the bacteria are eliminated the consequences are (if they are not treated) over time intestinal permeability and a low immune system with vitamin B12 deficiency develop,Bactarian strains (probiotics) are responsible for maintaining a healthy and strong immune system, if they die, the body will be reflected in an end to unfavorable immune and psychological problems, first the intestine must be cured to heal the whole body, this would be my point.
Repopulating an intestinal flora takes a maximum of 1 year, together with the consumption of probiotics and prebiotics with fermented foods. Eliminating certain things like gluten or milk in excess or having a diet with a low glycemic index is the best thing to be able to strengthen our body. MY point of view for those who suffer from mental problems, I can be sure that it is because its flora is precarious and this affects our thoughts and energy.
What do you think of a liver cleanse?
Real liver cleaning and not superficial like some, this in Spanish but you can translate it: https://www.drlarosa.com/single-post/2017/04/26/Depuraciones-hepaticas
https://pubmed.ncbi.nlm.nih.gov/6542895/
this guy says accutane is stored in the skin, and I think he's right. Accutane's presence in the skin drastically lowers vitamin A presence in the liver, resulting in liver dysfunction. Remove accutane from the skin, replenish true vitamin A systemically, and liver function resolves. The reason accutane remains trapped in the skin for years is because it has shut down the sebaceous glands. Gamma oryzanol opens up the sebaceous glands allowing for accutane to be released from the skin.
Whenever I would take gamma oryzanol by itself in the past, it would always stimulate a massive dopamine loss, and I'd have to stop within a day of use. When I take 6 sweet potato capsules with it, no dopamine loss. Why?
Because vitamin A regulates the brains dopamine system. Lack of vitamin A and your brains ability to regulate dopamine is gone. Sweet potato or pumpkin capsules helps replenish vitamin A and helps improve the dopaminergic system in the brain.
Thiamine I believe has an action very similar to gamma oryzanol on the sebaceous glands. I'm going with gamma o, but theoretically one could instead use thiamine to accomplish the same thing that gamma o does.
Aged garlic pills helps to feed good gut bugs and kill bad gut bugs.
3 hours ago, Aaron76 said:https://pubmed.ncbi.nlm.nih.gov/6542895/
this guy says accutane is stored in the skin, and I think he's right. Accutane's presence in the skin drastically lowers vitamin A presence in the liver, resulting in liver dysfunction. Remove accutane from the skin, replenish true vitamin A systemically, and liver function resolves. The reason accutane remains trapped in the skin for years is because it has shut down the sebaceous glands. Gamma oryzanol opens up the sebaceous glands allowing for accutane to be released from the skin.
Retinol increases in skinduring accutane treatment, according to studies.
13 cis retinoic acid increases in skin during treatment, which pushes out other components of vitamin A. 13 cis retinoic acid remains trapped in skin until the sebaceous glands are opened up and reactivated. Arginine is yet a third substance capable of opening up the sebaceous glands. Aged garlic is likely the best product for rebalancing the gut microbiome.