Notifications
Clear all

Repairing the long-term damage from Accutane

 
MemberMember
397
(@calcified)

Posted : 04/01/2019 5:52 am

2 hours ago, Justdry said:

It's definitely in waves @cnb30-

My main focus is my skin and some days it starts to look great, like everything is healing, then it'll take a step back. It's definitely a detox process with ups and downs. Eventually the ups will be more than the downs as we recover.

My anxiety has started to lift - i've had anxiety and tension for the last 2 years, constantly clenching my jaw. However, the past week it has started to go. I've stopped clenching every second of the day and night, i feel way more relaxed all of a sudden. Nothing else in my life has changed to bring about that effect, only the zero/low vitamin A diet. Been going since Mid December now.

Good to hear people are improving.

Are you losing weight or maintaining?

Quote
MemberMember
1804
(@truejustice)

Posted : 04/01/2019 10:28 pm

You wont find anything new lately other than people advocating the anti Vit A diet - there is nothing else being discussed that I know of.....

You also to my knowledge wonthear from anyone working with any practitioner- everyone is pretty much just working on things themselves - I totally get why, incredible that the medical community was unable to help in the end other than writing referrals to see specialists so we could get some tests done - you could see that coming a mile away with nothing ever been conclusive via tests....too bad

Many have disappeared too - theyve either gone on the anti Vit A dietand will report back every now and then or theyve moved on from forum....

 

Quote
0
(@Anonymous)

Posted : 04/02/2019 7:38 am

Anyone else having fatigue issues after the poison?

Quote
MemberMember
5
(@francisco-blanquez)

Posted : 04/02/2019 5:27 pm

9 hours ago, ShivGeorge said:

Anyone else having fatigue issues after the poison?

I would say ...everybody

Quote
Anna Nim, cnb30, Anna Nim and 3 people reacted
MemberMember
45
(@cnb30)

Posted : 04/02/2019 9:03 pm

I had a RAGING libido this Afternoon for a couple hours.

Also I have been eating somewhat lavishly, but strictly avoiding ALL dairy and ALL vitamin A. I also was accidentally eating Pizza Sauce until a few days ago as well, and Ive been feeling significantly better since cutting that out as well. Also, I eat a decent amount of Steak.

Quote
0
(@Anonymous)

Posted : 04/03/2019 12:21 am

@cnb30That's an interesting observation considering someone improved their ED with cayenne pepper that is very high in VA.

Quote
MemberMember
19
(@justdry)

Posted : 04/03/2019 9:20 am

I've never had ED since taking accutane 8 years ago, it never affected my libido or erections what so ever, functioned perfectly normal.

I realized last night that I hadn't had any urges for a week or 2, which isn't normal for me, so I stuck some porn on last night and found it quite difficult to 'get up for it' which I've never had before. This is whilst doing anti vitamin A - other things are improving. Really strange contradicting development.

Quote
MemberMember
397
(@calcified)

Posted : 04/03/2019 11:47 am

2 hours ago, Justdry said:

I've never had ED since taking accutane 8 years ago, it never affected my libido or erections what so ever, functioned perfectly normal.

I realized last night that I hadn't had any urges for a week or 2, which isn't normal for me, so I stuck some porn on last night and found it quite difficult to 'get up for it' which I've never had before. This is whilst doing anti vitamin A - other things are improving. Really strange contradicting development.

Any inflammation issues on anti A?

Quote
MemberMember
19
(@justdry)

Posted : 04/04/2019 3:15 am

No, everything else has been good. I've seen an improvement in a lot of areas.

Examples:

 

Been using vaseline on my lips multiple times a day for 8 years - the past couple of weeks I've barely had to use it once a day.

Skin doesn't flake when I apply my moisturizer in a morning, previously it was rolling up into little balls as I applied the moisturizer.

I only ever periodically got dry eyes since cessation of accutane, however, I've not had any periods of them being dry lately.

Heels don't have periods of being painful anymore.

Anxiety is lessening more and more every day and mysleep is much improved lately. Last night I had 9 hours sleep and didn't wake up once. That's not happened for a long time.

Skin on my face is up and down - last week it felt good, this week ive had whiteheads breakout in places i don't usually get anything. Redness seems a bit more pronounced too. Thinking of starting regular 10% lactic acid to try and assist with the healing.

Quote
MemberMember
183
(@monsterdiesel)

Posted : 04/04/2019 9:06 pm

On 3/30/2019 at 10:53 AM, MonsterDiesel said:

I had an abdominal ultrasound yesterday to see if spot anything so I'll post those results. Im the same person that had the liver biopsy years ago but never followed up other than checking liver enzymes here and there.

Great news. Everything normal on ultrasound.

What other sort of testing is out can that can yield clues?

Quote
MemberMember
183
(@monsterdiesel)

Posted : 04/05/2019 8:06 am

what is the name of the drug that was posted here earlier that's supposed to reverse some of the signaling problems caused by accutane? It was a drug for gastritis or hypertension..can't remember.

Quote
Mabbbs, Mabbbs and Mabbbs reacted
MemberMember
1
(@jellyy)

Posted : 04/07/2019 6:54 am

What moisturizer are you guys using? Every moisturizers and essential oils have vitamin a content in it. Need recommendation for moisturizer that containno vitamin Aat all.

Quote
MemberMember
165
(@under_tow)

Posted : 04/07/2019 9:11 am

2 hours ago, jellyy said:

What moisturizer are you guys using? Every moisturizers and essential oils have vitamin a content in it. Need recommendation for moisturizer that containno vitamin Aat all.

Very tough to avoid with the vast amount of chemical names used for vitamin A types. Some are using just regular high oleic safflower oil with a good vitamin E mixed in.

 

Vitamin A

3-Dehydroretinol, Antixerophthalmic Vitamin, Axerophtholum, Dehydroretinol, Oleovitamin A, Retinoids, Retinol, Retinol Acetate, Retinol Palmitate, Retinyl Acetate, Retinyl Palmitate, Vitamin A Acetate, Vitamin A Palmitate

Retinyl palmitate, retinol, retinaldehyde, adapalene, tretinoin, isotretinoin, and tazarotene

provitamin A, A-beta-carotene, beta-cryptoxanthin, carotene, carotenoids, dry alpha carotene, gamma carotene, eyebright, synthetic all-trans beta-carotene

Quote
jellyy, jellyy and jellyy reacted
MemberMember
1804
(@truejustice)

Posted : 04/08/2019 3:45 am

I now just use Rose Hip oil - 4 drops in the hand and a small amount of water

face and arms - it does the trick

Quote
MemberMember
5
(@francisco-blanquez)

Posted : 04/08/2019 5:35 am

I have read on G. Genereux book that when liver is full of vitamin A.. it releases lot of iron. After that... Ihad a look to my blood test, every year 3 blood tests since 2015. I have seen iron level are in the low range and that they was very hight the last year ... when I was having Cod Liver Oil ..hence, I suppose it was them when may liver was full of vitamin A.

So, in my case, I think the overdosage of vitamin A damaged the liver.

Maybe this diet is good for people that really have hight VA in the liver, but in my case.. it seems that diet wouldnot be usefull.

It seems I need VA as my iron level is low, which means there is few VA in my liver

Quote
MemberMember
397
(@calcified)

Posted : 04/08/2019 7:09 am

5 hours ago, Francisco..Blanquez said:

I have read on G. Genereux book that when liver is full of vitamin A.. it releases lot of iron. After that... Ihad a look to my blood test, every year 3 blood tests since 2015. I have seen iron level are in the low range and that they was very hight the last year ... when I was having Cod Liver Oil ..hence, I suppose it was them when may liver was full of vitamin A.

So, in my case, I think the overdosage of vitamin A damaged the liver.

Maybe this diet is good for people that really have hight VA in the liver, but in my case.. it seems that diet wouldnot be usefull.

It seems I need VA as my iron level is low, which means there is few VA in my liver

Same here, my iron is not high either.

Since supplementing palmitate my folliculitis has improved but my wrists are sore which is new.

Malabsorption has improved, but my joints are still stuffed.

So my impression of retinyl palmitate is small improvement.

My liver blood tests have come back normal.

Questions for all - is retinol binding protein stuffed?

Too high or too low?

Or is metabolism of Retinoic acid so fast now that we are actually deficient?

Please need to here more opinions/theories. Seems like anti A won't work for everyone.

 

 

Quote
MemberMember
1804
(@truejustice)

Posted : 04/08/2019 6:44 pm

2 seperate but recent blood tests for me indicated both low Iron and Vit D

Kinesiologist last week held Retinol vile over my liver and it was stressed out by it, hes immediately put me on Taurine.

Ill have to ask him - is my liver stressed cause its full of Vit A or is it stressed more so on not knowing how to process A - possibly both I suspect

Taking Taurine immediately suggests he wants to eliminate A, he didnt specify but said it would help with bile flow.

Im also still working on breaking down biofilms etc so they have me on NAC, B6 and now Rhodiola which aids in helping to eliminate from body the broken down biofilms. It has the added benefit of stabilising mood too.

Quote
MemberMember
397
(@calcified)

Posted : 04/09/2019 12:57 am

6 hours ago, TrueJustice said:

2 seperate but recent blood tests for me indicated both low Iron and Vit D

Kinesiologist last week held Retinol vile over my liver and it was stressed out by it, hes immediately put me on Taurine.

Ill have to ask him - is my liver stressed cause its full of Vit A or is it stressed more so on not knowing how to process A - possibly both I suspect

Taking Taurine immediately suggests he wants to eliminate A, he didnt specify but said it would help with bile flow.

Im also still working on breaking down biofilms etc so they have me on NAC, B6 and now Rhodiola which aids in helping to eliminate from body the broken down biofilms. It has the added benefit of stabilising mood too.

Retinoid resistance?

13cis Ra metabolism to alltrans, causing alltrans resistance?

Truejustice has this been suggested before ?

Under_tow your thoughts?

 

Quote
0
(@Anonymous)

Posted : 04/09/2019 2:21 am

Sorry to bring this up and change topic, but I'd like to know - Is there anyone who has been able to live a happy, fulfilling life after consuming isotretinoin at 20mg for a month (or higher or alonger duration)? I find that I have great difficulty in focusing and doing work and generally feel fatigued. I also know someone who consumed it at 10mg for two months and they seemed to be fine.

Quote
MemberMember
1804
(@truejustice)

Posted : 04/09/2019 2:39 am

1 hour ago, Calcified said:

Retinoid resistance?

13cis Ra metabolism to alltrans, causing alltrans resistance?

Truejustice has this been suggested before ?

Under_tow your thoughts?

 

Sorry man, can youfillme in with more info on what you mean? Excuse my ignorance.Beyond having increased or decreased levels of certain things I dont know anything else i.e signalling etc

I also should add, I sent my kinesiologist the Grant Genereux PDF which he looked at last week,Didnt say too much other than interesting perspective -didnt dismiss it either.

Having said that, his thoughts havent changed on what he thinks I need to do which is fix HPA Axis.

I even said to him yesterday - giventworecent blood tests have indicated low Iron and Vit D, should I get any more things tested, wouldthat help you I asked

He said no, not needed -he knows whats wrong and well just continue to work on things - I could still be doing weekly visits for next 9 months......dont care, if thats what it takes to get my life back, so be it.

Interesting yesterday, we worked on pancreas blockage and its relation to B12, its not all gallbladder/liver related our issues.None of this you could work out for yourself so very grateful for finding this specialist!!

 

Quote
MemberMember
5
(@francisco-blanquez)

Posted : 04/09/2019 4:24 am

9 hours ago, TrueJustice said:

2 seperate but recent blood tests for me indicated both low Iron and Vit D

Kinesiologist last week held Retinol vile over my liver and it was stressed out by it, hes immediately put me on Taurine.

Ill have to ask him - is my liver stressed cause its full of Vit A or is it stressed more so on not knowing how to process A - possibly both I suspect

Taking Taurine immediately suggests he wants to eliminate A, he didnt specify but said it would help with bile flow.

Im also still working on breaking down biofilms etc so they have me on NAC, B6 and now Rhodiola which aids in helping to eliminate from body the broken down biofilms. It has the added benefit of stabilising mood too.

if your Iron level is low, it might be because there is no (or notenough)vitamin A in your liver. I think that what he saw is that you have not enough vile and he told you to have taurine to increase vile levels but..... if you have no Vitamin A.. how vile level will be increased?. ...Well, it is just my hypothesis.

 

Tell him what low Iron level means and what I observed on my blood tests when having cod liver oil.

 

Quote
MemberMember
1804
(@truejustice)

Posted : 04/09/2019 5:15 am

33 minutes ago, Francisco..Blanquez said:

if your Iron level is low, it might be because there is no (or notenough)vitamin A in your liver. I think that what he saw is that you have not enough vile and he told you to have taurine to increase vile levels but..... if you have no Vitamin A.. how vile level will be increased?. ...Well, it is just my hypothesis.

 

Tell him what low Iron level means and what I observed on my blood tests when having cod liver oil.

 

Were talking aboutBile yeah?

he uses a vialin his test kit, thats what they place against your organs as they simultaneously muscle test to see how you respond to whatever is in the vial,tomy knowledge they have multiple kits and can test everything from Retinol to viruses and bacteria etc etc

He said to me, its not uncommon to have low Iron and D synthesis with all these gut related issues going on -its about correcting these gut issues then absorption of all Vit & Min will be fine.

Having said that, as part of the process of unblocking energy points and all the physical stuff they do, my guy will also give the patient supplements when needed - in some instances you might hit them hard for only 2 weeks as you work on a blockage, keep in mind Im seeing them weekly so supplementing alone would not be enough. Getting these things to absorb is key - like yesterday I took B12 50 mins before seeing him yet it wasnt being absorbed after he startedtesting meand he determined my pancreas meridian was blocked and was able to unblock it. Ill determine next week if it has stayed unblocked

Can I ask - why would I have No Vit A occurring now??? I dont understand

Quote
MemberMember
397
(@calcified)

Posted : 04/09/2019 5:25 am

3 minutes ago, TrueJustice said:

Were talking aboutBile yeah?

he uses a vialin his test kit, thats what they place against your organs as they simultaneously muscle test to see how you respond to whatever is in the vial,tomy knowledge they have multiple kits and can test everything from Retinol to viruses and bacteria etc etc

He said to me, its not uncommon to have low Iron and D synthesis with all these gut related issues going on -its about correcting these gut issues then absorption of all Vit & Min will be fine.

Having said that, as part of the process of unblocking energy points and all the physical stuff they do, my guy will also give the patient supplements when needed - in some instances you might hit them hard for only 2 weeks as you work on a blockage, keep in mind Im seeing them weekly so supplementing alone would not be enough. Getting these things to absorb is key - like yesterday I took B12 50 mins before seeing him yet it wasnt being absorbed after he startedtesting meand he determined my pancreas meridian was blocked and was able to unblock it. Ill determine next week if it has stayed unblocked

Can I ask - why would I have No Vit A occurring now??? I dont understand

I think what Francisco is saying is that guys book says low iron = low VA.

Also Fransisco is probably not aware Vitamin A deficiency increases bile, which has been mentioned by under_tow and I have experienced this myself.

Quote
MemberMember
1804
(@truejustice)

Posted : 04/09/2019 5:35 am

1 minute ago, Calcified said:

I think what Francisco is saying is that guys book says low iron = low VA.

Also Fransisco is probably not aware Vitamin A deficiency increases bile, which has been mentioned by under_tow and I have experienced this myself.

Possibly, not sure it always works that way that low Iron = low VA in every instance??

Are you talking about Grants book? Hes all about eliminating A to my knowledge not trying to increase A

You sound like me - still undecided on whether we need A or were to avoid like the plague. I guess its important what form we may need from hereyeah - this recent testing of Retinol stressing my liver is a step in the right direction for me.

Getting liver ultrasounds etc are all well and good for determining a fatty liver but my Retinol info was determined in less than a minute without all the hassle - albeit Ive now got some follow up questions to ask....

Quote
MemberMember
5
(@francisco-blanquez)

Posted : 04/09/2019 5:40 am

10 minutes ago, TrueJustice said:

Were talking aboutBile yeah?

he uses a vialin his test kit, thats what they place against your organs as they simultaneously muscle test to see how you respond to whatever is in the vial,tomy knowledge they have multiple kits and can test everything from Retinol to viruses and bacteria etc etc

He said to me, its not uncommon to have low Iron and D synthesis with all these gut related issues going on -its about correcting these gut issues then absorption of all Vit & Min will be fine.

Having said that, as part of the process of unblocking energy points and all the physical stuff they do, my guy will also give the patient supplements when needed - in some instances you might hit them hard for only 2 weeks as you work on a blockage, keep in mind Im seeing them weekly so supplementing alone would not be enough. Getting these things to absorb is key - like yesterday I took B12 50 mins before seeing him yet it wasnt being absorbed after he startedtesting meand he determined my pancreas meridian was blocked and was able to unblock it. Ill determine next week if it has stayed unblocked

Can I ask - why would I have No Vit A occurring now??? I dont understand

sorry I just thought we all have low iron hence we have low Vit A. But Ihavereview again my blood tests and an iron level around100seem not too low, the range is (50-180). Anyway when having cod liver oil, iron level increased to 170 as well as my mood and energy. Just forgive what I said about not having vitamin A

Quote