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6 hours ago, Mabbbs said:I did an MRIfor my hip, came back negative (other than minimal effusion which I dont thinkissignificant or at least according to the doc ). Im honestly worried about doing CT scans due to their potentialdangers. I had my first one today (abdominal CT), and it was a terrible experience; I had issues with backflow and side effects post-scan due to the contrast Still waiting for those results. The X-ray for my left shoulder shows aninferior clavicular spur. (And thats from three years ago...). I also did anX-raythree years ago for my hip and it came back normal, I repeated it around the end of last year and it showed a mild crossover sign and subarticular sclerosis in the left sacrolitic joint, even though the right joint is whats causing me the most trouble. The x-ray for my lumbar spine also shows mild sclerosis in the left sacrolitic joint. The x-ray for my knees show patellar maltracking which I didnt talk to the doctor about yet.Regarding the spur in my shoulder,the doctor overlooked it and I dont know if I should go back to do more x-rays or other testsbecause I feel like Im just exposing myself to radiation and harming myself without anything in return. Curious, how old were you when you took Accutane? And how long has it been since then?
I was about 16 when I had accutane and I'm now 42, your abdominal CT should let you know if you have fatty liver.
Yeah I got shoulder (AC joint), knee, feet spurs and I suspect I got them in my elbows too. I actually asked my doc if that's why we feel old cause of the extra spurs and he said yes.
I'm pretty sure accutane stuffed or made worse half of my facet joints in my back.
In regards to ct scan if anyone has back problems xray doesn't show enough. I had doc's give my xray saying everything not to bad, then I got ct and the standout is moderate multi level facet joint arthrosis.
If you got back pain, ct scan they won't have to inject contrast. They will only do area of pain due to radiation, I get half my spine done every couple of years.
See the doc's see this stuff and think ankylosing spondylitis. But we negative on MRI? So it always goes back to hmmmmm....accutane?
Is your back ok?
6 hours ago, User2 said:I could be wrong but judging from photos online, I don't think the scalpbreakouts I get is psoriasis. Mine are more like a sort of acnebreakout that come and go. I suspect certain food trigger it but have not identified the foods - although I suspect certain chocolates. I am pretty sure hemp hearts help me a little.
I've found for my scalp/temple acne that low carbs/sugar/fodmaps/dairy seems to help, but that's really restrictive
2 minutes ago, Calcified said:Have you tried B12 injections? I note that you are supplementing.
Ive read B12 causes acne, definitely doesn't in me.
I take B12 no matter what to bring back my energy and brain/nervous system function after accutane. I find it helps make my skin look healthier but the temple/hairline is persistent
Has anyone looked deeper into thyroid issues - namely into Dysautonomia??
Many of us have talked about either excess sweating or lack of sweating post Tane.Weve alsolately at various times talked about mitochondria, Dysautonomia to the best of my knowledge is a mitochondria disease.
So for me due to sweating a lot Id say Im more hyperthyroid. The opposite as we know is hypothyroidism where we feel the cold even in warm conditions
Id be interested to know what tests one should conduct, perhaps some more complex ones other than the average blood test for thyroid.....if anyone happens to know that is??
Ill consult the kinesiologist too, one particular article I read mentioned Dysautonomia isoften related to blockage in third eye chakra, effecting both thepineal & pituitary glands
This could be an interesting link, esp for those of us with front lobe head tension post Tane, wouldnt surprise me at all if this chakra is blocked.
17 hours ago, User2 said:I have experiencedsimilar social anxiety. For me, if it happens, it is oftenwhile at a grocery checkout with a line of people behind me. I can feel it coming on and always attempt to fight it by thinking to myself everything will be just fine. Sometime I win, sometimes I lose. I don't seem to get the same anger you experience. When I "lose" I simply feel uneasy and feel a flushing/blushing sensation in my face and then once I leave I am fine (well my post accurate fine). It is an odd thing. I don't really know why it happens. I sometimes get a little frustrated with myself that I let it happen. I wonder if caffeine may have something to do with it as I'm not a regular consumer of it. It feels like my nerves are overstimulated. I think regular exercise does help somewhat.
This is Indigo, the guy who started this thread for anyone who doesn't know.
20 hours ago, Calcified said:I was about 16 when I had accutane and I'm now 42, your abdominal CT should let you know if you have fatty liver.
Yeah I got shoulder (AC joint), knee, feet spurs and I suspect I got them in my elbows too. I actually asked my doc if that's why we feel old cause of the extra spurs and he said yes.
I'm pretty sure accutane stuffed or made worse half of my facet joints in my back.
In regards to ct scan if anyone has back problems xray doesn't show enough. I had doc's give my xray saying everything not to bad, then I got ct and the standout is moderate multi level facet joint arthrosis.
If you got back pain, ct scan they won't have to inject contrast. They will only do area of pain due to radiation, I get half my spine done every couple of years.
See the doc's see this stuff and think ankylosing spondylitis. But we negative on MRI? So it always goes back to hmmmmm....accutane?
Is your back ok?
Thats a very long time, mustve been painful all these years. Im asking because Ive noticed that people who took Accutane when they were younger tend to develop long-termeffects while people who were older (21+) tend to not develop those; maybe theres a correlation between growth and Accutane? Its also known that Accutane stunts growth.
My doctor suspected Ankylosing Spondylitis but ruled it it out after my hla b27 came back negative. I used to not have back issues butonly developed them recently. My x-rays were normal other than the recent mild sclerosis which make sense becausemy lower back is hurting me. A doctor pointed out that my lower back is slightly pushed inside I did notice that, but its something that seemed to become apparent only recently. Im planning on going to a spine specialist in the near future.
3 hours ago, Mabbbs said:Thats a very long time, mustve been painful all these years. Im asking because Ive noticed that people who took Accutane when they were younger tend to develop long-termeffects while people who were older (21+) tend to not develop those; maybe theres a correlation between growth and Accutane? Its also known that Accutane stunts growth.
My doctor suspected Ankylosing Spondylitis but ruled it it out after my hla b27 came back negative. I used to not have back issues butonly developed them recently. My x-rays were normal other than the recent mild sclerosis which make sense becausemy lower back is hurting me. A doctor pointed out that my lower back is slightly pushed inside I did notice that, but its something that seemed to become apparent only recently. Im planning on going to a spine specialist in the near future.
Yeah I grew a few inches after tane. Yeah growing after tane could be problematic. I was 20 when I new something was way wrong with my joints.
For a long time I didn't think Tane had anything to do with it, but my doc said I look like I got hyperostosis, so it didn't take long to figure out what may have contributed, so i think when it leaves the body, like months or years after treatment, things have changed.
It's hard to point the finger as acne and folliculitis go with arthritis, sapho syndrome etc.
On 1/30/2019 at 6:15 PM, TrueJustice said:FYI - Dysautonomia lists erectile dysfunction too for those who are concerned
On 1/30/2019 at 12:50 AM, TrueJustice said:Id be interested to know what tests one should conduct, perhaps some more complex ones other than the average blood test for thyroid.....if anyone happens to know that is??
I™ll consult the kinesiologist too, one particular article I read mentioned Dysautonomia is often related to blockage in third eye chakra, effecting both the pineal & pituitary glands
This could be an interesting link, esp for those of us with front lobe head tension post Tane, wouldn™t surprise me at all if this chakra is blocked.
ED is more closely related to a blockage of mojo, rather than blockage of chakra. 
A thorough thyroid panel would be TSH, T3, T4, Free T3 and T4, anti-thyroid antibodies, calcitonin, and parathyroid hormone. Reverse T3 could be tested, but I'm not sure there is much utility in that.
Yeah, I wouldnt necessarily link those either.
third eye chakra was more in relation to head tension in front lobes which in turn is linked to issues with pituitary and pineal glands.
This in turn would be linked to hormone issues where one might suffer lack of mojo and ED issues - I dont really know, Im just trying to connect the dots.
Dysautonomia could be completely way off what we have going on - just thought Id chuck it out there.
Thx for more info on thyroid testing - Ill look into those areas!!
On 1/30/2019 at 1:08 PM, gutskinaxis said:I take B12 no matter what to bring back my energy and brain/nervous system function after accutane. I find it helps make my skin look healthier but the temple/hairline is persistent
Honestly can say B12 injection not helping much now with folliculitis/scalp acne. In the early days I had issues at the temples. The only other thing I find that helps a bit is keeping hair not too long.
3 hours ago, Calcified said:Honestly can say B12 injection not helping much now with folliculitis/scalp acne. In the early days I had issues at the temples. The only other thing I find that helps a bit is keeping hair not too long.
Did your temple acne naturally go away? This is my worst area but my hair is a bit long
3 hours ago, Calcified said:Honestly can say B12 injection not helping much now with folliculitis/scalp acne. In the early days I had issues at the temples. The only other thing I find that helps a bit is keeping hair not too long.
Also I have a weird feeling that caffeine could be affecting my temple acne. Any experience with that?
6 hours ago, gutskinaxis said:Did your temple acne naturally go away? This is my worst area but my hair is a bit long.
With mine it kept going untill the hair was gone, are you experiencing and receeding of the hairline? Like others here 3 years after treatment mine hair was shedding like crazy, doc's say mpb, im actually seeing a dermatologist soon so I'm gonna ask them, I also tried Finasteride for a while and it was close to useless.
6 hours ago, gutskinaxis said:Also I have a weird feeling that caffeine could be affecting my temple acne. Any experience with that?
I don't think it makes a difference in me. I get it on low and high caffeine, I get it more in the crown these days.
2 hours ago, Calcified said:With mine it kept going untill the hair was gone, are you experiencing and receeding of the hairline? Like others here 3 years after treatment mine hair was shedding like crazy, doc's say mpb, im actually seeing a dermatologist soon so I'm gonna ask them, I also tried Finasteride for a while and it was close to useless.
I don't think it makes a difference in me. I get it on low and high caffeine, I get it more in the crown these days.
How much hair loss have you had?
On 1/19/2019 at 11:19 AM, guitarman01 said:In addition, isotretinoin normalizes [58,59] exaggerated TLR-2- mediated responses in acne patients [60,61]. Since TLR2 plays many positive physiological roles, deleterious consequences of its blockade are expected. TLR2 regulates the production of neurotrophic factors in intestinal smooth muscle cells and promotes survival of enteric neurons and glial cells [62,63]. TLR2 controls mucosal renewal. Cells kinetics of villous columnar epithelial cells are modulated by TLR2 and controls the proliferation of indigenous bacteria [64-66]. TLR2 enables local tolerance via Bacteroides fragilis. It discriminates between pathogens and symbiotic bacterial molecules in a process that engenders commensal beneficial colonization [67,68]. TLR2 controls indigenous bacteria proliferation in the upper alimentary tract. Lack of TLR-2 contribute to the settlement of undesirable bacteria, especially Gram-positive, or candida [69,66,70,4].
Speaking of tests, I tested positive for all candida antibodies. This was a pretty cheap test from walkinlabs where you can get your own blood tests. Something this simple could be a start. A Type of dysbiosis that never corrects itself. Youd maybe be talking about something that becomes a part of you, that forms highly resistant biofilms that can only be eradicated and replaced with beneficial biofilms, from beneficial microbes.
If this were true, I, along with current research doesn't quite know how to correct this if possible. Whats right, whats wrong.
I am heavily focused on the bifido species, being that this is dominant from birth, and happens to metabolise retinoic acid. In some this could almost be considered a type of birth defect if lacking. Again if true, what happens if you were only to figure this out 20 years later? or Since birth?
