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Just got blood results, B12 and folic acid levels fine, infact B12 higher than range due to me supplementing
I didnt ask but the doctor checked my liver again, whilst better than last time due to some weight loss and more exercise it still indicates a somewhat fatty liver - Answer; continue to exercise, watch alcohol intake and loose more weight.
As expected year after year, nothing ever conclusive with any pathology work I get done....
So yeah, taking B12 is only slightly effective for me cause Im flat out fatigued every second day even with my blood levels above range!!
Six years after still fighting with fatigue. In this all six years there wasn't single day I felt fulled with energy, and I'm 24. This problem rised up to the level I'm considering stimulants for the rest of the life. Firt choice would be Ritalin- metylofenidat. Anyone succesfull with it? The life goes on , and I'm just struggling to survive everyday. What is fucked up - i feel better during the day(best evening/night) the mornings are the worst.
33 minutes ago, RafCej said:Six years after still fighting with fatigue. In this all six years there wasn't single day I felt fulled with energy, and I'm 24. This problem rised up to the level I'm considering stimulants for the rest of the life. Firt choice would be Ritalin- metylofenidat. Anyone succesfull with it? The life goes on , and I'm just struggling to survive everyday. What is fucked up - i feel better during the day(best evening/night) the mornings are the worst.
Have you tried intermittent fasting. Helped me a lot with fatigue. Once you get past the hunger pangs at about 12-16 hours period I start to feel extremely alert, energetic and pain free. Then when I eat the symptoms and fatigue come flooding back. Why this happens im not entirely sure but working on finding out. There's a few good theories out there at the moment.
My GP ordered a B12 test which had total and free, total was ok, free was below range, I too have fatty liver confirmed on contrast ct scan, like others feel 100 years old, I do have low am cortisol on blood test (in range but low). Even stimulants bearly raise my cortisol levels.
1 hour ago, marshl1 said:Have you tried intermittent fasting. Helped me a lot with fatigue. Once you get past the hunger pangs at about 12-16 hours period I start to feel extremely alert, energetic and pain free. Then when I eat the symptoms and fatigue come flooding back. Why this happens im not entirely sure but working on finding out. There's a few good theories out there at the moment.
Fasting can't be a way to live, it's not healthy in a long term... Why fasting is making you better is an evolution mechanism working by orexins. Your body don't get nutrition so your brain gets more focus to find a food ( however it's very complicated , like everything with brain indeed).
14 minutes ago, TrueJustice said:Just curious
How long since anyone has done a fat soluble Vit Test?
A, D, E or K
I once tested low for D but never noticed a difference supplementing with D & K
My d was low getting it up helped stomach issues but may have increase calcification, never tried K or had test for it.
11 minutes ago, RafCej said:Fasting can't be a way to live, it's not healthy in a long term... Why fasting is making you better is an evolution mechanism working by orexins. Your body don't get nutrition so your brain gets more focus to find a food ( however it's very complicated , like everything with brain indeed).
I agree this can't be the way. Stress response from fasting is why people feel better maybe?
40 minutes ago, RafCej said:Fasting can't be a way to live, it's not healthy in a long term... Why fasting is making you better is an evolution mechanism working by orexins. Your body don't get nutrition so your brain gets more focus to find a food ( however it's very complicated , like everything with brain indeed).
I completely disagree. Fasting has been a natural part of our evolution forever. It's only a couple of years since Yoshinori Ishumi won the nobel prize for his research into autophagy (the bodies response to fasting). Food is too abundant today, you can eat every minute of the day and not run out of food and this is a huge problem. The process of autophagy never begins in a lot of people today.
What I am interested in as it pertains to Accutane is what is being depleted when I fast that allows me to feel better. Could this be excess vitamin A, the fat soluble vitamin that is stored in the adipose tissues of the body?
Am I consuming too much Vitamin A in my daily dietthat is preventing me from depleting the levels stored in my fatty tissues.
Another important question, why do I feel worse when I eat after a long fast?
Could this be because Bile containing Vitamin A is flushed out from the liver and into the bloodstream as the bodies natural response to eating.
This Vitamin A release brings back the inflammation and fatigue.
I am having some success thinking along these lines.
15 hours ago, dcrangersfootballclub said:Hi everyone haven't been on this forum in over 5 years, their seems a lot of information on this page now since the early days.
Can someone tell me the whacky theory that was going around about re taking accutane to reverse the body's cycle or something along those lines, i'm sure i seen it posted on here, thanks.
Never read this actually butohhh this sounds interesting.
4 hours ago, Calcified said:My GP ordered a B12 test which had total and free, total was ok, free was below range, I too have fatty liver confirmed on contrast ct scan, like others feel 100 years old, I do have low am cortisol on blood test (in range but low). Even stimulants bearly raise my cortisol levels.
I have issues with cortisol too; Im the opposite though, my amis always above range. I did a dexamthemsone suppression test to bring down my cortisol, and those few hours were the best of my life; all my symptoms and long-term effects were GONE. I was back to my pre-tane self. However, a day later, I crashed and slept for three days, I was barely able to move and felt extremely tired. Currently, this is what Im investigating. My liver function always came back normal. Im wondering, was your liver function (blood tests) normal, even though the CT scan showed a fatty liver?
I think a lot of you might know this, but Accutane is an anti-cancer chemotherapy drug that was then repackaged to treat acne. I did a quick research and the long-term side effects of chemotherapy is very similar to the side effects were experiencing. Of course chemotherapy kills healthy cells during the process of therapy which contributes to the problem. Anyone has input on this correlation? I was thinking of looking into the treatment of the long-term side effects of chemotherapy to treat the side effects of Accutane.
9 minutes ago, Mabbbs said:I have issues with cortisol too; Im the opposite though, my amis always above range. I did a dexamthemsone suppression test to bring down my cortisol, and those few hours were the best of my life; all my symptoms and long-term effects were GONE. I was back to my pre-tane self. However, a day later, I crashed and slept for three days, I was barely able to move and felt extremely tired. Currently, this is what Im investigating. My liver function always came back normal. Im wondering, was your liver function (blood tests) normal, even though the CT scan showed a fatty liver?
My liver function tests sometimes come back better than normal, except on pain pills. I am however 26 years out from accutane. It does however treat Cushing's Disease and sometimes cures. Weird I honestly cant raise mine and have used pregnisolone on flights to prevent weakness, tiredness and vomiting. Pregnisolone I find makes joint pain alot more bareable when flying. Pregnisolone should be avoided as long-term use causes cancer. I think there needs to be more evidence that it doesn't effect peoples pituitary without Cushing's disease. Also my ACTH is barely trying, so my adrenals are fine. I do have chronic enthesopathy of Achilles and patella insertions, moderate multi level thoracic facet joint degeneration with oesteophytes, disk degeneration, I can hear bone spurs tapping in my back when I walk. I have also had nuclear uptake bone scan showing increased sternoclavicular joint uptake. Ive had hidradenitis suppurativa between thighs and a massive outbreak of skin tags. My doc's just tell my I have thoraculumbar Scheuermanns disease made worse by accutane. Are your cortisol results alot over range?
6 hours ago, marshl1 said:I completely disagree. Fasting has been a natural part of our evolution forever. It's only a couple of years since Yoshinori Ishumi won the nobel prize for his research into autophagy (the bodies response to fasting). Food is too abundant today, you can eat every minute of the day and not run out of food and this is a huge problem. The process of autophagy never begins in a lot of people today.
What I am interested in as it pertains to Accutane is what is being depleted when I fast that allows me to feel better. Could this be excess vitamin A, the fat soluble vitamin that is stored in the adipose tissues of the body?
Am I consuming too much Vitamin A in my daily dietthat is preventing me from depleting the levels stored in my fatty tissues.
Another important question, why do I feel worse when I eat after a long fast?
Could this be because Bile containing Vitamin A is flushed out from the liver and into the bloodstream as the bodies natural response to eating.
This Vitamin A release brings back the inflammation and fatigue.
I am having some success thinking along these lines.
I think the accutane is long gone. Fasting is very anti-inflammatory and produces autophagy.I believe this is allowing the gut lining to heal and down regulatesyour immune system (eating puts your immune system athigh alert).
5 hours ago, marshl1 said:Sounds ridiculous. People have very little chance of making any positive progress with these kinds of suggestions
This is just homeopathy where you take a form of the same drug in an attempt to cure your side effects - tried it and it didnt work
If I ask myself what is constant each and every day - its definitely fatigue, but its also inflammation.
So the real question is why is everything we consume still giving us inflammation, its like we still get inflammation from drinking fucking water but why??
It must stem from how the immune system is responding that much I know.
So yeah I can see why fasting provides relief but its still not addressing the underlying problem which is immune system related....
On a side note - my NT Factor order should arrive today. Looking forward to seeing if this can improve my mitochondria
5 hours ago, Calcified said:My liver function tests sometimes come back better than normal, except on pain pills. I am however 26 years out from accutane. It does however treat Cushing's Disease and sometimes cures. Weird I honestly cant raise mine and have used pregnisolone on flights to prevent weakness, tiredness and vomiting. Pregnisolone I find makes joint pain alot more bareable when flying. Pregnisolone should be avoided as long-term use causes cancer. I think there needs to be more evidence that it doesn't effect peoples pituitary without Cushing's disease. Also my ACTH is barely trying, so my adrenals are fine. I do have chronic enthesopathy of Achilles and patella insertions, moderate multi level thoracic facet joint degeneration with oesteophytes, disk degeneration, I can hear bone spurs tapping in my back when I walk. I have also had nuclear uptake bone scan showing increased sternoclavicular joint uptake. Ive had hidradenitis suppurativa between thighs and a massive outbreak of skin tags. My doc's just tell my I have thoraculumbar Scheuermanns disease made worse by accutane. Are your cortisol results alot over range?
I did a quick research andprednisone lowers cortisol levels. Did you have low cortisol levels before taking it? The fact that your ACTH is also affected is worrisome. If you did have high cortisol levels before takingprednisone, then I highly suggest being referred to an endocrinologist. You need to eliminate some of the big issues that cause low cortisol, namely tumors, infection, etc... For tumors, a normal MRI scan wont do, you would need to do a specialized MRI for the gland, and even if they came back normal, you might have tumors that are not visible, and would need further testing. Its a long process but its important to find a really good doctor. As for my cortisol levels, theyre not borderline, but theyre not very high either theyre definitely above range enough to be considered abnormal. I did the test quite a lot of times plus a 24 urine test, swab test, etc...
1 hour ago, TrueJustice said:This is just homeopathy where you take a form of the same drug in an attempt to cure your side effects - tried it and it didnt work
If I ask myself what is constant each and every day - its definitely fatigue, but its also inflammation.
So the real question is why is everything we consume still giving us inflammation, its like we still get inflammation from drinking fucking water but why??
It must stem from how the immune system is responding that much I know.
So yeah I can see why fasting provides relief but its still not addressing the underlying problem which is immune system related....
On a side note - my NT Factor order should arrive today. Looking forward to seeing if this can improve my mitochondria
Fasting regenerates stem cells and repairsimmune system.
http://news.mit.edu/2018/fasting-boosts-stem-cells-regenerative-capacity-0503
Another really good study.
Gut inflammation in chronic fatigue syndrome
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2964729/
Chronic fatigue syndrome (CFS) is a debilitating disease characterized by unexplained disabling fatigue and a combination of accompanying symptoms the pathology of which is incompletely understood. Many CFS patients complain of gut dysfunction. In fact, patients with CFS are more likely to report a previous diagnosis of irritable bowel syndrome (IBS), a common functional disorder of the gut, and experience IBS-related symptoms. Recently, evidence for interactions between the intestinal microbiota, mucosal barrier function, and the immune system have been shown to play a role in the disorder's pathogenesis.
3 hours ago, Mabbbs said:I did a quick research andprednisone lowers cortisol levels. Did you have low cortisol levels before taking it? The fact that your ACTH is also affected is worrisome. If you did have high cortisol levels before takingprednisone, then I highly suggest being referred to an endocrinologist. You need to eliminate some of the big issues that cause low cortisol, namely tumors, infection, etc... For tumors, a normal MRI scan wont do, you would need to do a specialized MRI for the gland, and even if they came back normal, you might have tumors that are not visible, and would need further testing. Its a long process but its important to find a really good doctor. As for my cortisol levels, theyre not borderline, but theyre not very high either theyre definitely above range enough to be considered abnormal. I did the test quite a lot of times plus a 24 urine test, swab test, etc...
My cortisol was always low, Prednisone is cortisol, just bumps it up a bit and I haven't taken it for long periods. Had MRI and it was totally normal. Hope B12 will increase my cortisol awakening response. Did you get a diagnosis after all your tests?
4 hours ago, TrueJustice said:This is just homeopathy where you take a form of the same drug in an attempt to cure your side effects - tried it and it didnt work
If I ask myself what is constant each and every day - its definitely fatigue, but its also inflammation.
So the real question is why is everything we consume still giving us inflammation, its like we still get inflammation from drinking fucking water but why??
It must stem from how the immune system is responding that much I know.
So yeah I can see why fasting provides relief but its still not addressing the underlying problem which is immune system related....
On a side note - my NT Factor order should arrive today. Looking forward to seeing if this can improve my mitochondria
Totally agree. I did read once that dermatologists stated that people with long term problems after treatment probably had sapho syndrome prior to treatment and that treatment could make it worse. I am curious if this is relatable to yourself or anyone else?
Im going to say absolutely not.
i had some acne on face a bit which went away around 19
What led me to Accutane was persistent acne on my back & shoulders
In hindsight Id say all brought on by imperfect western diet with way too much sugar and dairy - so simple to have fixed but I got led astray by a dermatologist and my own lack of knowledge at the time
On 1/7/2019 at 3:12 AM, gutskinaxis said:Strong B vitamin supplementation has helped me quite a bit, I'm a firm believer in that many of the severe symptoms caused by accurate are from B12 deficiency, malabsorption, destruction etc.
I also think a low vitamin A diet is worth exploring
Does B12 get rid of the dizziness and brain fog?
No, I dont believe B12 willdo that.
I too suffer that dizziness feeling, coupled with head tension. Kinesiologist without me asking picked up on it. You may also suffer that jumbled brain feeling where the left & the right get muddled and coordination becomes an issue - I get this happening even in the things I like to do such as guitar playing......very frustrating
Again kinesiology has been helping to reverse this.....not completely solved yet though.
Also: Inseeing kinesiologist yesterday and mentioning my B12 levels are actually higher than the range ( due to supplementing) she tested with the vile to see if it was stressing me out - turns out that it isnt and so she said I can continue to supplement if I like.
4 hours ago, Gatu77777 said:Does B12 get rid of the dizziness and brain fog?
I found it helped mostly with energy. And I don't mean just B12. I think you should look into B3, B6, B12, possibly choline for brain fog
For dizziness I really am not sure what the answer is, but I'm inclined to say B3 and B12 again because it might be a blood flow issue
7 hours ago, gutskinaxis said:I found it helped mostly with energy. And I don't mean just B12. I think you should look into B3, B6, B12, possibly choline for brain fog
For dizziness I really am not sure what the answer is, but I'm inclined to say B3 and B12 again because it might be a blood flow issue
OK thanks man
10 hours ago, TrueJustice said:No, I dont believe B12 willdo that.
I too suffer that dizziness feeling, coupled with head tension. Kinesiologist without me asking picked up on it. You may also suffer that jumbled brain feeling where the left & the right get muddled and coordination becomes an issue - I get this happening even in the things I like to do such as guitar playing......very frustrating
Again kinesiology has been helping to reverse this.....not completely solved yet though.
Also: Inseeing kinesiologist yesterday and mentioning my B12 levels are actually higher than the range ( due to supplementing) she tested with the vile to see if it was stressing me out - turns out that it isnt and so she said I can continue to supplement if I like.
Yes it is very frustrating. I can't even walk properly I keep walking into things.
I fasted yesterday and I feel amazing right now. My dizziness is going away. I can also see clearer and the tension on my head is going away. Why is this happening?
I want to fast for the rest of the day but I'm so hungry.
Have you tried phosphatidylcholine? I heard it helps with proper brain function
6 hours ago, Gatu77777 said:Yes it is very frustrating. I can't even walk properly I keep walking into things.
I fasted yesterday and I feel amazing right now. My dizziness is going away. I can also see clearer and the tension on my head is going away. Why is this happening?
I want to fast for the rest of the day but I'm so hungry.
Have you tried phosphatidylcholine? I heard it helps with proper brain function
Im currently on a 4 day fast and feel amazing as well. Theres something definitely to it.