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Hello everyone, I'm 18 years old and I have a low libido and bad erections for 3 months.
I stopped Accutane after a month with these symptoms under the guidance of my doctor. He had never heard of this and he reported it to the proper authorities. I have not seen him since but I still have these problems. Sometimes the libido comes back a few days but the erections are never 100%. I do not understand all your messages and scientific theories that you post but it scares me to be honest. You advise me to do what? I have to see who? Do I have behaviors to adopt to try to come back? Please tell me it's not definitive.
I'm French, I do not speak English, sorry if it's not clear. In French there is nothing on the subject so I try to understand you here.
Help me please
Just curious to find out if anyone of you folks had taken an antibiotic before or after accutane/isotretinoin. I'm curious to see if there was a correlation or regardless of taking an antibiotic like doxycycline it would of have a more adverse reaction. I know of a few cases so far.
Hello All!
A journalist is looking forward to interviewing those suffering from post-Accutane sexual and/or gastrointestinal side-effects. Those who are interviewed may maintain their anonymity if they wish.
More information on ]Edited link out]
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Please contact Louisa when you get a chance. This is a great opportunity to put a spotlight on these problems so we don't have to wallow in shadows of disbelief for the rest of our lives.
Also, any sufferers of Ro/Accutane sexual side effects residing in the UK, please PM me regarding a similar potential interview.
@Dubya_BI did reach out to her, she did not respond unfortunately.
On 7/21/2018 at 5:18 PM, Devolution said:That could be useful for me and anyone else whos lost, or who's hair has thinned from this, we do need to fix the underlying issue but if it doesn't grow back naturally, stem cells definitely look promising.
I was thinking of having a 'stem cell facial' - to try and cure the dry, damaged skin. Only thing stopping me is that I was quoted up to 5,000 here in the UK.
At this point I feel like it would be the only thing that could possibly heal my skin.
3 hours ago, Justdry said:I was thinking of having a 'stem cell facial' - to try and cure the dry, damaged skin. Only thing stopping me is that I was quoted up to 5,000 here in the UK.At this point I feel like it would be the only thing that could possibly heal my skin.
I gather youve tried products like Baxyl but they havent increased the moisture?
I had no real issues with dryness whilst on Accutane 20 years ago, my overall dryness now though especially with the face is horrendous!!
Ive got no sebaceous glands, I sweat like no ones business, in summer it just pours out of me I hate to say....
53 minutes ago, TrueJustice said:I gather youve tried products like Baxyl but they havent increased the moisture?I had no real issues with dryness whilst on Accutane 20 years ago, my overall dryness now though especially with the face is horrendous!!
Ive got no sebaceous glands, I sweat like no ones business, in summer it just pours out of me I hate to say....
Very interesting..I barely sweat at all compared to pre tane.
Hi everyone,
It's the first time I write here, but I've read most of the first pages and posts in this forum. I feel for every difficultness you've been through as I've had a share of mine too, but I don't quite relate to any case I've read here. I don't have any solution, but I would like to share with you my experience with Roacutan (name given at that time in Spain) and see if somebody feels related to my case in some way after taking these pills many years ago.
I started having a strong bad ass acne in my 16-17's (we are talking about the late 80's here cause I'm 45 right now..., yes it's been a long time since then) and at that moment I tried all kinds of treatment, medicines, creams, even injecting medicine directly in each pimple. It was all done by dermatologists from Panama (I was born there) and it was painful. All of that didn't work and it only got my skin more irritated.
When I was 19, I went to Spain and started taking birth control pills (Diane35 was popular at that time) and it lowered a lot my acne production and I guess getting out of my puberty helped also. At my 20's I only had some two or three pimples coming out specially when having my period, but the dark spots on pores would mantain and therfore, the dilatation of pores through out my face, as well as redness and one could feel a rough sensation of the skin (only on my face) when touching it.
At my 26's I was sick and tired of having this situation, so I went to see a dermatologist in Spain who told me that new advances had been made in terms of acne problems and that a medicine had finally turned out to cure acne totally. He explained that it worked from inside, it stopped the production of sebum that our body generated which poduced acne. He didn't explain any side effects, nor short or long. He only said I couldn't get pregnant while taking it and after finishing the treatment I should wait a few months and never ever put any oily product on my skin. He did ask me to do some blood analysis while taking it.
I read all the side effects on the prospect and if I remember well, I took the normal dosage for only 3 months since at that time my acne was very mild.
During my intake, I went through the typical side effects like redness, tightness of the skin, even peeling and dried lips. I didn't experience any problems with my eyes, depression or hair loss. What I did notice was that when I finished my treatment my skin was incredibly fine, my pores had closed, all the black pore spots were gone and my skin felt smoother and softer. I was realy happy. I thought I had done the best thing taking those pills. However, after some months later, I experienced something strange. I starded to feel pain in my joints, back and knees. When I had to pick up something from the floor or get up from a chair I felt like rusted or like an 80 year old woman and I was only 26 at that time. I started to get worried, so I did some medical check ups. I went to a rheumatologist and made some blood tests and xrays of my back bone, but they didn't find any anomaly. With time (few weeks) this general body pain stopped. So I didn't give it more importance.
Years went by, I had my son at 33, healthy and beautiful so no problem there although I did have a natural misscarage in the second month of the first time I got pregnant at 32, but that is something that unfortunately happens to many women during their first pregnancy.
The thing is that at my 40's I started having those joint pains again. They started very mild and with the years they've become stronger. What I feel is a rustiness when getting up or pick up anything, I can't be laying down in bed while sleeping for more than 7 hours because I start to feel pain in my back and hips. When I get up, I feel pain in my soles during my first steps, but the pain stops when walking a little bit more as well as the pain in my back and hips. The pain is not the same every day. There are some days I don' realy feel it. I do exercise regulary (cardio, streching, pilates) 2 hours, 4 days a week. It doesn't help. I don't have any problem gaining weight as I've read some people have, on the contrary, I've been gaining a lot of weight this last year and a half (although I've always been very thin, but it feels as my metabolism has chaged) and the work out I do doesn't change that. I used to play padle regulary (is a sort of double tennis using walls. It is played mostly in some parts of Europe and South America), but I had to quit three years ago due to a sudden tendonitis in my right shoulder and elbow. My diet is normal, I don't do any special diet, but I always try to eat healthy and it's not so difficult since I live in Spain were you normally follow a home made mediterranean diet which is quite healthy if you put aside all the not so healthy stuff.
I've been to a lot of doctors and done a lot of check ups including rheumatoligist (once again) and they don't find anything wrong in my blood tests or ultrasounds. They say my thyroid is ok as well as my hormones and no rheumatism factor in my blood tests. The only thing that comes up is a high cholesterol, but I've had it for years and it runs in the family. Also lack of vitamin D during the winter time because of low sun exposure, but changes to normal after taking some liquid vitamin D suplements and during summer time my vitamin D is totally normal again, so it's a case of low sun exposure.
Since they don't find anything, the rheumatologist sais it might be my body getting started to menopause... come on! I'm 45 still and have my period regulary every month and I can't stop thinking it might have something to do with my Roacutan intake since it's very similar as to the temporary pain I experienced at that time after taking those pills.
The thing is that I don't know if somebody experienced something like this after so many years of having taken Roacutan. I haven't read any case which is similar and I'm not sure my problem is realy caused by it, but if it's not, then Roacutan did help me and was the best thing ever for me, but I guess I'll never know for sure. I used to think it was the best thing and that I would even give it to my son if he would ever need it in the future since he's now 13 years old and spare him from all the pain I had to go through with other treatments while being a teenager, but now with this happening to me, I doubt I would recomend it to anyone.
On 7/25/2018 at 12:58 PM, TrueJustice said:I gather youve tried products like Baxyl but they havent increased the moisture?I had no real issues with dryness whilst on Accutane 20 years ago, my overall dryness now though especially with the face is horrendous!!
Ive got no sebaceous glands, I sweat like no ones business, in summer it just pours out of me I hate to say....
Never heard of Baxyl. What is it?
I've actually been using a barrier repair cream day and night for 4 or 5 months now and it keeps it well hydrated and you wouldn't really know it's still dry unless you're me and live in it, however, the damage the extreme dryness has left behind isn't healing at all which is why i'd love the stem cell treatment.
Lines, redness, large pores, all caused by leaving it so dry for so many years.
I've just ordered some 10% glycolic acid to test for a few months to see if the constant exfoliation can help with this. From my research it sounds like something that would really help me in the long term. I definitely won't be trying anything above 10% or having a peel done, I think that would do more harm to my skin than good.
On 7/25/2018 at 3:56 AM, Biggest Brother said:@Dubya_BI did reach out to her, she did not respond unfortunately.
Sorry to hear that. I have not received a reply from her either. A good friend was speaking with her on a regular basis for awhile regarding these interviews and she sounded eager to correspond with us. I will try to ask him what's up. She might simply be on vacation at the moment.
As a group, what story that hasnt already been publishedabout Accutanewould we like to present?
completely pointless doing another dying for clear skin story, its already been done yeah!!
Im keen to know even from a journalist point of view what new story should be presented in 2018?
These journalists are interested specifically in sexual side effects from Accutane. There is one brief mention of this in the Dying for Clear Skin documentary. Do you think that is sufficient warning to those considering the drug or those just beginning to experience sexual side effects?
What story regarding detrimental effects of Accutane doesn't deserve to be published?
Are depression and suicides related to the drug not as pertinent in 2018 as they have been in the past 3 decades?
This is about public awareness and will go to show that stories similar to ours are more than just a passing fad of hysteria.
Well thats good, youve got your thinking cap on, thats the sort of stuff Id be saying to this journalist because if she hasnt done her homework and doesnt know that stories have already been written about the dangers of Accutane then it will make for a pointless story, you and I know plenty has been written but does she??
If I got the chance to talk to her, Id discuss that stories have been done before, and here we are years later still going over the same subject matter. People reading about Accutane for the first time would then understand its been going on for decades, that suffering continues- thats the angle Id be putting across!!
Of course all stories need to be written about Accutane, I just want her to know that hey, here we are still sitting in the corner with our hands up saying we need help over here, that Dying for clear skin article was written 6 years ago now and still we have no one helping us - vital that this info gets expressed if she does write something otherwise again well of moved nowhere from where the last article left off yeah....
The headline should be something like Accutane survivors still waiting for help
that might prompt someone in the medical community to pull their finger out and actually do something!!
Beta-alanine = dry eye relief?
Started using beta-alanine and noticed that my eyes have tears. They are the wettest they've ever been. So much that havent used drops. Nose didnt feel dry either and wasnt bleeding this morning. Not sure the mechanism but it seems to be working. Taking 1 tablet of the gnc brand a day.
On 7/25/2018 at 4:37 AM, Justdry said:I was thinking of having a 'stem cell facial' - to try and cure the dry, damaged skin. Only thing stopping me is that I was quoted up to 5,000 here in the UK.At this point I feel like it would be the only thing that could possibly heal my skin.
Bro, take that money, and run an HGH cycle (4 iu per day). Youtube it. Lookup Sylvester Stallone gh. Throw in some other healing peptides TB-500...BPC157. Research online and take your health into your own hands.
https://www.elitefitness.com/videos/peptides/tb-500-explained/
3 hours ago, macleod said:Bro, take that money, and run an HGH cycle (4 iu per day). Youtube it. Lookup Sylvester Stallone gh. Throw in some other healing peptides TB-500...BPC157. Research online and take your health into your own hands.https://www.elitefitness.com/videos/peptides/tb-500-explained/
And where am I meant to purchase these products (in the UK) and how would they heal already badly damaged skin !?
17 hours ago, Justdry said:20 hours ago, macleod said:Bro, take that money, and run an HGH cycle (4 iu per day). Youtube it. Lookup Sylvester Stallone gh. Throw in some other healing peptides TB-500...BPC157. Research online and take your health into your own hands.https://www.elitefitness.com/videos/peptides/tb-500-explained/
And where am I meant to purchase these products (in the UK) and how would they heal already badly damaged skin !?
Trust me. Search some UK bodybuilding forums online and ye shall find anything that comes to your imagination. Yes, GH has skin healing properties and it is said to aid even the hair and nails. And they are sub Q injections with insulin pins, no more than a pinch into the belly fat.
I'm almost an expert at Sub-Q and intra-muscular injections. I can do vastus lateralis, deltoid, gluteus maximus, pectoral one handed at this point. And that's one handed whilst employing the z-track method.
1 hour ago, macleod said:Trust me. Search some UK bodybuilding forums online and ye shall find anything that comes to your imagination. Yes, GH has skin healing properties and it is said to aid even the hair and nails. And they are sub Q injections, no more than a pinch into the belly fat.I'm almost an expert at Sub-Q and intra-muscular injections. I can do vastus lateralis, deltoid, gluteus maximus, pectoral one handed at this point. And that's one handed whilst employing the z-track method.
Do you still take the mushroom supplements?
When did you take the giant leap from simple supplementing to injecting stuff??
Interesting what youre currently on....
1 hour ago, baffo900 said:i wuold like to know how bad are your eyes? After how long beta alanine started to help? .
I have no tears. At all. So my eyes are as bad as they can get. I took the first dose in the morning and noticed within a couple hours that they had tears. I also have dry nasal passages and bleed every single morning. That also stopped.
I did not take beta alanine for this purpose. It's just a "side effect" I noticed. I will keep taking it as it also has antiaging effects and helps in the gym.
Hey Guys,
Sorry for not being around too much, i wanted to post here a quick update.
I will be presenting my work in London this coming September to a team of Researchers. I will try to convince them to focus their attention to the Liver.
As a summary of what i've been finding over the past 3 months.
-I confirm the importance of Gut. Even though i was not looking too much at this, Gut *is* very important.
-Given the latest findings of Lipkin et. al, we see Phospholipid metabolism alteration. From others we saw Bile Acid Metabolism disruption (Hanson et. al)
-Gut dysbiosis may be responsible for Liver issues such as NAFLD, NASH and Fibrosis. The contrary is also true : Liver Issues result to Gut Dysbiosis (through Bile Acid dysregulation).
Given the above i believe that we have to focus on enterohepatic regulation (not just Liver, not just Gut but both). Please note that Retinoic Acid inhibits Bile acid Metabolism through repression of CYP7A1. This may be setting the stage for Gut Dysbiosis (?).
-One supplement of interest is Butyric acid because it induces expression of MFGE8 (Hypothesis).
I will keep you posted.
I'm eager to hear from you and your presentation! All the best and looking forward to continued posts! @mariovitali
5 hours ago, mariovitali said:Hey Guys,
Sorry for not being around too much, i wanted to post here a quick update.
I will be presenting my work in London this coming September to a team of Researchers. I will try to convince them to focus their attention to the Liver.
As a summary of what i've been finding over the past 3 months.
-I confirm the importance of Gut. Even though i was not looking too much at this, Gut *is* very important.
-Given the latest findings of Lipkin et. al, we see Phospholipid metabolism alteration. From others we saw Bile Acid Metabolism disruption (Hanson et. al)
-Gut dysbiosis may be responsible for Liver issues such as NAFLD, NASH and Fibrosis. The contrary is also true : Liver Issues result to Gut Dysbiosis (through Bile Acid dysregulation).
Given the above i believe that we have to focus on enterohepatic regulation (not just Liver, not just Gut but both). Please note that Retinoic Acid inhibits Bile acid Metabolism through repression of CYP7A1. This may be setting the stage for Gut Dysbiosis (?).
-One supplement of interest is Butyric acid because it induces expression of MFGE8 (Hypothesis).
I will keep you posted.
If it helps with your collecting of information
ive been to one of the best Gastroenterologist in the country if not the world I believe ( one of the doctors is a pioneer on the poo transplant procedure )
Anyway, theyve fixed my acid issues by giving me Pariot but what I did also want to mention is that Ive been on both Vancomycin and Rifaximin to try and fix all gut issues - both havent really changed a thing to be honest.
The doctor in the end decided not to do a poo transplant, might it of actually changed something? Who knows....He concluded there was nothing sinister going on with gut and so that was the end of seeing Gastroenterologist.
Has anyone else seen one??